NATIONAL ADAP MONITORING PROJECT - AIDS United

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Acknowledgements The Henry J. Kaiser Family Foundation, The National Alliance of State and Territorial AIDS Directors (NASTAD) and the AIDS Treatment Data Network (ATDN) would like to thank the state ADAP and AIDS program managers and staff for their time and efforts in completing the National ADAP Survey, June 2001, which serves as the foundation for this report. The authors also wish to thank Murray Penner (NASTAD) and Ardine Hockaday (Kaiser Family Foundation) for their research and graphic design assistance. About AIDS Drug Assistance Programs In 1987, Congress first appropriated funds to assist states in providing the relatively costly drug AZT [the first antiretroviral approved by the Food and Drug Administration (FDA)] to AIDS patients. State health departments were directed by Congress to use these AZT Assistance Program funds to purchase and deliver AZT to eligible individuals. As AIDS treatment options increased and resources allowed, AZT Assistance Programs began to cover other approved antiretroviral medications and drugs to prevent and treat opportunistic infections. These programs were incorporated into Title II of the Ryan White CARE Act upon its initial passage in 1990 and became commonly known as AIDS Drug Assistance Programs (ADAPs). ADAPs provide FDA approved HIV-related prescription drugs to underinsured and uninsured individuals living with HIV/AIDS. The CARE Act gives states 1 broad authority to set program eligibility criteria and to decide what HIVrelated treatments to include on ADAP formularies. For many people with HIV, ADAPs serve as a gateway to a broad array of healthcare and supportive services funded through the CARE Act and to other sources of coverage including Medicaid, Medicare, and private insurance. Since 1996, Congress has earmarked funds under Title II of the CARE Act specifically for ADAPs. Many states also provide state resources to ADAPs. All 50 states, the District of Columbia, Guam, Puerto Rico, and the Virgin Islands currently operate ADAPs. 2 The National ADAP Monitoring Project The Henry J. Kaiser Family Foundation (KFF) commissions the National ADAP Monitoring Project, which is conducted in partnership with the National Alliance of State and Territorial AIDS Directors (NASTAD) and the AIDS Treatment Data Network (ATDN). The Project seeks to provide timely information on the current status of state and territorial ADAPs, trends over time, and key issues that impact ADAPs and their ability to provide medications to people living with HIV/AIDS. The National ADAP Survey, conducted by NASTAD and ATDN, serves as the basis for the Project’s Annual Report. The survey, sent to all state and territorial ADAP directors, includes questions on budgets, expenditures, client utilization, client demographics, eligibility criteria, and formularies from June of each year. The resulting data create a snapshot of ADAPs that can be compared over time. The Project’s Annual Report is released in the spring of each year. The National ADAP Monitoring Project Annual Report, 2002 This report represents the sixth annual report released by the National ADAP Monitoring Project and is based on data from June 2001, unless otherwise indicated. All 54 state and territorial ADAPs responded to the 2001 survey. Due to differences in data collection among states and territories, some ADAPs do not answer all survey questions. Where trend data are presented, only states that provided relevant data in all periods are included. Every effort has been made to ensure that the annual report represents the current status of ADAPs as reported by survey respondents; however, some data may have changed between collection and this report’s release. 1 The term “state” is used generically in this report to include both states and territories. 2 The Federated states of Micronesia and the Marshall Islands, two Pacific U.S. territories, will receive federal ADAP earmark funding for the first time in FY 2002.
National ADAP Monitoring Project: Annual Report April 2002 TABLE OF CONTENTS Executive Summary 5 Introduction 5 National ADAP Trends & Key Themes Detailed Findings from the Current Survey 6 State-by-State Summary ADAP Profile 9 States/Territories with Current or Planned Program Restrictions, February 2002 11 State/Territorial ADAP Coverage of Recommended Drugs to Prevent Opportunistic 12 Infections, 2001 Charts 15 Conclusion 37 Appendices 43 Appendix I: Total Clients Served, Expenditures and Prescriptions Filled in June 2000 and June 2001 Appendix II: ADAP Expenditures, by Class, June 2001 Appendix III: Prescriptions Filled, by Class, June 2001 Appendix IV: Race/Ethnicity of June 2001 ADAP Clients Appendix V: Gender and Age of June 2001 ADAP Clients Appendix VI: Income Level and Insurance Status of June 2001 ADAP Clients Appendix VII: Health Status of ADAP Clients Enrolled During 12-Month Period, FY 2001 Appendix VIII: ADAP Budget FY 2001: Federal and State Sources Appendix IX: ADAP Budgets for FY 2000 and FY 2001: Total Federal and State Appendix X: Major FY 2001 Budget Categories Compared with FY 2000 Appendix XI: ADAP Formularies by State/Territory
Page 1 and 2: NATIONAL ADAP MONITORING PROJECT AN
Page 3: NATIONAL ADAP MONITORING PROJECT AN
Page 7 and 8: Introduction Spending on prescripti
Page 9 and 10: • ADAPs continue to serve a low-i
Page 11 and 12: State-by-State Summary ADAP Profile
Page 13 and 14: States/Territories with Current or
Page 15 and 16: Charts
Page 17 and 18: Chart 2 ADAP Drug Expenditures and
Page 19 and 20: Millions of Dollars Chart 4 Trends
Page 21 and 22: Chart 6 ADAP Drug Expenditures, by
Page 23 and 24: Chart 8 ADAP Clients, by Race/Ethni
Page 25 and 26: Unknown >400% FPL 301-200% FPL 201-
Page 27 and 28: Chart 12 Health Status of ADAP Clie
Page 29 and 30: Millions of Dollars Milions of Doll
Page 31 and 32: Millions in Dollars Millions in Dol
Page 33 and 34: Millions in Dollars Millions in Dol
Page 35 and 36: Chart 20 ADAP Cost Recovery Resourc
Page 37 and 38: Serving almost 77,000 largely unins
Page 39 and 40: Appendices
Page 41 and 42: Total Clients Served, Expenditures
Page 43 and 44: Appendix II ADAP Expenditures, By C
Page 45 and 46: ADAP Expenditures, By Class, June 2
Page 47 and 48: Prescriptions Filled, by Class, Jun
Page 49 and 50: Appendix IV Race/Ethnicity of June
Page 51 and 52: Appendix V Gender and Age of June 2
Page 53 and 54: Appendix VI Income Level and Insura
Page 55 and 56:
Income Level and Insurance Status o
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Health Status of ADAP Clients Enrol
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ADAP Budget FY 2001: Federal and St
Page 61 and 62:
Appendix IX ADAP Budgets for FY 200
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Appendix X Major FY 2001 Budget Cat
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Major FY 2001 Budget Categories Com
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Alabama ADAP FORMULARIES ANTIRETROV
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Connecticut ADAP FORMULARIES ANTIRE
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Distric of Columbia ADAP FORMULARIE
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Illinois ANTIRETROVIRALS NRTIs- aba
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Maine ADAP FORMULARIES ANTIRETROVIR
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Mississippi ANTIRETROVIRALS NRTIs-
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New Hampshire ADAP FORMULARIES ANTI
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New York ADAP FORMULARIES ANTIRETRO
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Oklahoma ADAP FORMULARIES ANTIRETRO
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Rhode Island ADAP FORMULARIES ANTIR
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Vermont ADAP FORMULARIES ANTIRETROV
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Wisconsin ADAP FORMULARIES ANTIRETR
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NATIONAL ADAP MONITORING PROJECT - AIDS United

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