Pediatric Perspectives Summer 2009 - Cleveland Clinic

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Skilled Congenital Heart Surgeons Offer Care from Infancy through Adulthood, Focus on Outcomes Constantine Mavroudis, MD, Ross Chair of Pediatric and Adult Congenital Heart Surgery, and Chairman of the Department of Pediatric and Congenital Heart Surgery, brings extensive experience to the Cleveland Clinic Children’s Hospital’s heart team. He is an expert in atrial arrhythmia surgery, Fontan conversion, valve-sparing tetralogy of Fallot repairs, and repairs of congenital coronary artery anomalies and transposition of the great arteries. Dr. Mavroudis specializes in congenital heart surgery for adults as well as children. He has numerous research publications and is currently overseeing the publication of the fourth edition of his Pediatric Cardiac Surgery textbook. To contact Dr. Mavroudis, please call 216.636.5288 or 800.223.2273, ext. 65288. Marshall L. Jacobs, MD, joined the Department of Pediatric and Adult Congenital Heart Surgery as Adjunct Professor of Surgery and Director of Clinical Research on June 1. An accomplished and innovative congenital heart surgeon, Dr. Jacobs will now focus on outcomes research and the development of new strategies and technologies to enhance the care of pediatric and congenital heart disease patients. Dr. Jacobs holds leadership positions in many professional societies, and serves as Editor of World Journal for Pediatric and Congenital Heart Surgery. His specialty interests include surgery for single-ventricle anomalies and improved quality of care, and he participates in the national databases of the Congenital Heart Surgeons Society, Society of Thoracic Surgeons and American Association for Thoracic Surgery. To contact Dr. Jacobs, please call 216.444.8912 or 800.223.2273, ext. 48912. Page 8 | Pediatric Perspectives | Summer 09 | Congenital Heart Disease Follow-up Between Primary Care Physicians Children with congenital heart disease require close medical follow-up throughout their lives. The Cleveland Clinic Children’s Hospital pediatric heart team partners with pediatricians and family physicians throughout the region to manage patients’ cardiac conditions from birth through adulthood. In this country, the incidence of congenital heart disease is 6 per 1,000 live births. That rate more than doubles for mild to moderate defects such as bicuspid aortic valve, at 13 per 1,000 live births. Depending on the severity of the defect and the complexity of the repair, surgical mortality for these patients is generally 4 to 5 percent or less. At Cleveland Clinic Children’s Hospital, our surgical mortality rate for all congenital heart disease patients is less than 2 percent. With survival rates this high, 760,000 congenital heart disease patients are expected to be over 18 years of age by the year 2020. Key issues to keep in mind when following these patients include: Feeding and weight gain. Early on, many cardiac defects impact feeding and weight gain. Counseling parents on the importance of high-calorie formulas and diets is critical. Infant feeding specialists at Cleveland Clinic Children’s Hospital for Rehabilitation are available to ensure adequate nutrition for young patients with feeding issues. New Cardiac Rehabilitation Program for Children A comprehensive Pediatric Cardiac Rehabilitation Program is now available at the Cleveland Clinic Children’s Hospital for Rehabilitation on our Shaker Campus. Infants, children and adolescents recovering from heart surgery or heart transplantation will receive individualized inpatient or outpatient care from therapists supervised by our pediatric cardiologists. The goal is to build young patients' endurance, strength, aerobic capacity and flexibility. Family education is a key component of the program. For more information, call Gerard Boyle, MD, Chairman of Pediatric Cardiology, at 216.444.3083. Cleveland Clinic’s toll-free physician number is 800.553.5056
Requires Partnership and Heart Specialists Growth and development. Monitoring children with congenital heart disease is especially important when growth and development lag, because prompt referral to early intervention programs can be beneficial. Developmental pediatricians at our Children’s Hospital for Rehabilitation are well-attuned to the needs of children with congenital heart disease and will work closely with referring pediatricians. Immunization. When a patient requires cardiopulmonary bypass for an upcoming heart operation, the timing of immunizations is critical. Children’s Hospital heart specialists always notify colleagues in primary care about the need to delay immunizations in their patients with congenital heart disease. Red flags. Any complaints of chest pain, palpita- tions and/or syncope should be promptly evalu- ated and discussed with the child’s cardiologist to determine whether intervention is needed. For example, arrhythmias are especially dan- gerous in children or adolescents with single- ventricle physiology. Our heart surgeons, cardiologists, and cardiac nurse practitioners and nurses will respond to questions about your patients by phone or email. Cardiac Referrals, Urgent Consults, Transport Same-day appointments are available with a staff cardiologist in our Center for Pediatric and Congenital Heart Diseases. To refer infants, children or adults, call 216.445.5015 or 800.223.2273, ext. 55015. To reach a pediatric cardiologist after hours, please call 216.444.2200 or 800.223.2273 (CCF.CARE) and ask for pager no. 24444. To transfer patients to Cleveland Clinic Children’s Hospital, our Pediatric Critical Care Transport Team offers 24/7 ground, rotor-wing or fixed-wing transport from any location across the globe. Call 216.444.8302 or 800.553.5056. Cleveland Clinic Children’s Hospital Expands Pediatric Cardiology Team Our pediatric cardiology team in the Center for Pediatric and Congenital Heart Diseases has been the largest in Northern Ohio, including: Gerard Boyle, MD Chairman Janine Arruda, MD Thomas Edwards, MD Larry Latson, MD Richard Lorber, MD Tamar Preminger, MD Lourdes Prieto, MD Athar Qureshi, MD Marcy Schwartz, MD Richard Sterba, MD On July 1, 2009, the group welcomed four new pediatric cardiologists to further expand its ranks: Francine Erenberg, MD Specialty Interest(s): Echocardiography, fetal echocardiography, pediatric cardiology 216.445.7144 or erenbef@ccf.org Alex Golden, MD Specialty Interest(s): Interventional pediatric cardiology 216.445.7116 or goldena@ccf.org Ernest Siwik, MD Specialty Interest(s): Interventional cardiology, pediatric cardiology 216.445.7118 or siwike@ccf.org Kenneth Zahka, MD Specialty Interest(s): Genetic cardiovascular diseases (Marfan syndrome, Ehlers-Danlos syndrome, hypertrophic cardiomyopathy, familial aortic aneurysm, mitochondrial disease), exercise physiology, cardiovascular sports medicine, adult congenital heart disease 216.445.7146 or zahkak@ccf.org Our pediatric cardiologists now see patients at even more community locations across Northeast Ohio. For a complete staff directory and location list, visit clevelandclinic.org/peds-heart. Our new staff, left to right: Drs. Zahka, Siwik, Golden and Erenberg Visit clevelandclinic.org/peds | Pediatric Perspectives | Summer 09 | Page 9
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