Celebrafing 25 Years - Hydrocephalus Association
Celebrafing 25 Years - Hydrocephalus Association
Celebrafing 25 Years - Hydrocephalus Association
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Celebrating <strong>25</strong> <strong>Years</strong><br />
ANNUAL REPORT 2008
We Want to Change the Future<br />
After <strong>25</strong> years of providing support, education and advocacy to those living<br />
with hydrocephalus, the <strong>Hydrocephalus</strong> <strong>Association</strong> has a new mission – to<br />
eliminate the challenges of hydrocephalus. This will change the shape of the<br />
HA in the years to come. Our support and education of people diagnosed<br />
with hydrocephalus and their families has been an essential resource<br />
for them in coping with the unknown and guiding them through dramatic<br />
life and health changes. But we have grown dissatisfied with this.<br />
We want more for our children, parents, brothers, sisters, and friends. We<br />
want to change the future. We want better treatments, better outcomes,<br />
preventative measures and someday maybe even a cure for each and every<br />
form of hydrocephalus.<br />
We started this evolution five years ago when we initiated the first ever<br />
workshop on hydrocephalus sponsored by the National Institutes of Health<br />
(NIH). That watershed event led to the formation of the <strong>Hydrocephalus</strong><br />
Clinical Research Network and caused NIH program directors to pay more<br />
attention to the problems of hydrocephalus. The result was a tripling of<br />
research funding for hydrocephalus. However, at less than two million dollars<br />
annually, this is a drop in the bucket relative to what is needed. In 2009 we<br />
will launch our first multi-year campaign to raise millions of dollars to<br />
catalyze and fund promising hydrocephalus research. We are expanding our<br />
circle of partners and supporters. We are bolstering our board of directors<br />
and staff with the capacity to tackle this bold new mission. We are resolved<br />
to eliminate the challenges of hydrocephalus.<br />
Momentum begets momentum and we are excited about our ability to join<br />
forces with our members and change the future for everyone with hydrocephalus.<br />
Paul H. Gross<br />
Chairman, Board of Directors<br />
Paul and his son William Gross<br />
“Can you help me and all the other kids<br />
who have hydrocephalus?”
Celebrating <strong>25</strong> <strong>Years</strong><br />
ANNUAL REPORT 2008
2008<br />
2008<br />
RESEARCH<br />
was a year of growth for the <strong>Hydrocephalus</strong> <strong>Association</strong>.<br />
It was a year of new horizons, resources and an expanded<br />
mission; while maintaining the <strong>Association</strong>’s core values.<br />
ADVOCACY<br />
In 2008, the <strong>Association</strong> enlarged its vision to include<br />
the direct funding of research. Our research initiative,<br />
launching in 2009, will focus for the first year on<br />
Mentored Young Investigator Awards to support young<br />
scientists or clinicians building a career in hydrocephalus<br />
research. The award is designed to address the need for<br />
a greater number of scientists and physician scientists<br />
focusing on hydrocephalus.<br />
“The HA is positioned at the nexus of a movement to<br />
strategically drive hydrocephalus research… It is our intent to<br />
drive and support the research agenda by directly funding<br />
hydrocephalus research.”<br />
- Former Board President, Bob Jacobsen<br />
The <strong>Association</strong> continues to support research by<br />
bringing together scientists and clinicians to share<br />
insights and improve research collaboration. In 2008,<br />
the HA successfully applied for an NIH grant for the<br />
research workshop “Improving Outcomes in <strong>Hydrocephalus</strong>:<br />
Bridging the Gap between Basic Science and<br />
Clinical Management” to be held in Baltimore in<br />
September 2009. This workshop will address some of<br />
the key priorities identified in the 2005 NIH <strong>Hydrocephalus</strong><br />
workshop “<strong>Hydrocephalus</strong>: Myths, New Facts, Clear<br />
Directions,” the results of which were published in the<br />
Journal of Neurosurgery: Pediatrics in December 2007.<br />
The <strong>Association</strong> continued to amplify and unify the voice of those with hydrocephalus<br />
nationally through our research advocacy work in Washington, D. C. We drafted a resolution<br />
calling for more federal support of hydrocephalus research, which passed the U.S. Senate in<br />
January 2008 (S. Con. Res. 63), along with LHHS Appropriations Report Language. (The<br />
House version of the resolution [H. Con. Res. 74] passed in 2007.) As specified in the<br />
legislation, the NIH formed a trans-NIH hydrocephalus working group in June 2008 with<br />
representatives from many institutes, including NINDS, NIBIB, and NICHD. After this<br />
legislation, the NIH’s investment in hydrocephalus nearly tripled to $1.78 million in one year.<br />
PATHWAYS<br />
In 2008 we launched the new look and feel of our quarterly newsletter, which included a<br />
change to the graphics and color palette as well as the incorporation of our new logo. This<br />
was all part of a comprehensive effort to streamline attempts to reach and inform a larger<br />
audience.<br />
2008 CONFERENCE<br />
In 2008, we also held our 10th annual National Conference on <strong>Hydrocephalus</strong> in Park City,<br />
Utah. It was a 4-day conference to provide tools and connections to address the medical,<br />
educational, and social challenges of living with hydrocephalus. The conference consisted of<br />
over 55 educational sessions in which individuals with hydrocephalus and their families had<br />
direct access to specialized medical professionals. In addition, participants were invited to<br />
interactive sessions for peer-to-peer networking. Over 500 national and international<br />
participants attended.<br />
“…Kudos to all; it was another outstanding conference from start to finish…your hard working staff<br />
did a terrific job…the affirmation from our community shows how important they (the conferences) are.”<br />
- Anonymous<br />
IN HONOR<br />
Anthony Abbene<br />
Daughter Abbey DuPan<br />
Doctor Abbot<br />
Alexandra Acevedo<br />
Amanda Akbar<br />
Matthew Alban<br />
Zara Allender<br />
Catalina Aloi<br />
Nick Altimore<br />
Chase Alvarado<br />
Mark Anderson<br />
Lara Andren<br />
Ashton Kade Ardoin<br />
Eleanor Arnold<br />
Thomas Ascherl<br />
Caleb Backus<br />
Micah Bacus<br />
John-Henry Baker<br />
Joshua Bashant<br />
Michael Basirico<br />
Joseph Batterman<br />
Brian M. Bauer<br />
Michael Bauer<br />
Nola Gracyn Bawcum<br />
Marie Bearden<br />
Lynn Beirl<br />
Nicolette Belanger<br />
Lynzee Benoit<br />
Dr. Marvin Bergenseider<br />
Madeleine Bergeson<br />
Leanne Beyer<br />
Lee Bills<br />
Zachary Borneke<br />
Warren Bowden<br />
Sarah-Beth Bowers<br />
Nancy K. Bradley<br />
Kurt Brailsford<br />
Charley Breeden<br />
Philip Brooks<br />
Cecilia Bulone<br />
Rebecca, Jim, Bryon and Joan Burness<br />
Marijke Bush<br />
Aaron Buttram<br />
Cecilia Calabi<br />
Jeffrey Chrismer<br />
Finn Clancy<br />
Thomas Clark<br />
Ryan Cochran<br />
Jack and Julie Coe<br />
Daniel Cohen<br />
Elizabeth Conner<br />
Cole Jaden Cooper<br />
Joshua Cooper<br />
William Erickson Cooper<br />
Jake Cors<br />
Reece Cotter<br />
Brooke Covington and Family<br />
Riet Cramer<br />
Nancy Crossman<br />
Ali Cryan<br />
Jennica Dabrowski<br />
Our Daughter<br />
Jordan Davidson<br />
Allison DeGrood<br />
Johnathan DelaTorre<br />
Scott DeMicco<br />
Sam Denney<br />
Bridget Grace Denning<br />
Destiny<br />
Chase Devlin<br />
Elizabeth DiPietro<br />
Claire Dixon<br />
Joe Dozier<br />
Nicholas Drubin<br />
Karen J. Dubin<br />
Mary Lou Duffy<br />
Wesley Eason<br />
Alex Edwardo<br />
Christian Eischeid<br />
Elizabeth<br />
Stanley Ellis<br />
Rachel Engelmann<br />
Mrs. Katina Engle<br />
Owen Evans-McLaughlin<br />
The Henerlau Family<br />
Sean Fank<br />
Ian Farnkopf<br />
Heather Faulkner<br />
Dr. Michael Fine<br />
Samuel Fine<br />
Josh Fineman<br />
Phyllis Fineman<br />
Kate Finlayson<br />
Zale Funston<br />
The Funston Family<br />
Samantha Garcia-Salas<br />
Emma Georgiou<br />
Brian Gibson<br />
Barbara Gillman<br />
Gisselle Gonzalez<br />
Wyatt Grimes<br />
Paul Gross<br />
Vanessa Gross<br />
Austin Hahn<br />
Zachary Halcomb<br />
Trisha Hammond<br />
Ernest Hanan<br />
Bengamin Hodges<br />
Donny Hodgkins<br />
Day Hogue<br />
Zachary Holcomb<br />
Tianna Jeflene Howell<br />
Betty Hudgins<br />
Ann Huettl<br />
Kenneth G. Hughes<br />
Craig Hundley<br />
Jacob Husson<br />
Mary Hutchcraft<br />
Cole Illions<br />
David E. Islas, III<br />
Bernie Itzen<br />
Jake<br />
Rose Jicinsky<br />
Amy Johnson<br />
Mr. and Mrs. Rick Jonas and Family<br />
Mary Stewart Jones<br />
Nile Jones<br />
Joshua<br />
Cindy and Kevin Joslyn<br />
Mathew Juette<br />
Emma Kaczor<br />
Sarah Kell<br />
John H. Kenworthy<br />
Emily Kessler<br />
Jack Klug
DIRECT SUPPORT<br />
One-On-One<br />
On the support front, in 2008 we were able to provide one-on-one support electronically or<br />
via telephone to more than 2,200 individuals from the United States, Canada, and other<br />
countries around the globe.<br />
Website<br />
2008 also saw the unveiling of our new website with improved functionality that makes all of<br />
our printed resources available at the touch of a button. We served over 111,000 visitors<br />
who printed over 63,000 articles, booklets, and fact sheets.<br />
“Thank you so very much for your help and for sending the information. Your kindness on the phone<br />
meant so much. I was feeling so scared and sad, and you really helped me.”<br />
- Anonymous<br />
PARTNERS NETWORK PROGRAM<br />
The Partners Network, which is comprised of Support Group Leaders, Walk Chairs, and<br />
Advocacy Point Persons, is rapidly expanding. There are currently 17 pediatric support<br />
groups and 4 NPH support groups in 17 states across the U.S. In 2009, we look forward to<br />
considerable growth in this arena.<br />
In 2008, 23 Awareness WALKS were held aross the country.<br />
2008 <strong>Hydrocephalus</strong> WALKS<br />
Oroville, CA Birmingham, AL<br />
San Francisco, CA Chicago, IL<br />
New Braunfels, TX Milwaukee, WI<br />
Salt Lake City, UT Cleveland, OH<br />
Denver, CO<br />
Edison, NJ<br />
Phoenix, AZ Washington, DC<br />
Albuquerque, NM Bloomsburg, PA<br />
Tampa Bay, FL Philadelphia, PA<br />
Boston, MA Graham, NC<br />
Long Island, NY Colonie, NY<br />
St. Louis, MO Louisville, KY<br />
Lenoir, NC<br />
<strong>Hydrocephalus</strong> Awareness Events<br />
Florida<br />
Pennsylvania<br />
Utah<br />
Colorado<br />
Support Groups<br />
Sacramento, CA<br />
Indianapolis, IN<br />
Phoenix, AZ<br />
Salt Lake City, UT<br />
St. Louis, MO<br />
Tampa Bay, FL<br />
Edison, NJ<br />
Baltimore, MD<br />
Long Island, NY<br />
Boston, MA<br />
Seattle, WA<br />
Chicago, IL<br />
SCHOLARSHIPS<br />
In 2008 we proudly provided scholarships to elev<br />
deserving young people with hydrocephalus who are<br />
pursuing post-high school education.<br />
Gerard Swartz Fudge Memorial Scholarships<br />
Anthony Abbene Scholarship<br />
Justin Scot Alston Memorial Scholarship<br />
Laura Beckley Barsotti Memorial Scholarship<br />
Mario J. Tocco <strong>Hydrocephalus</strong> Foundation Scholarship<br />
Morris and Rebecca Ziskind Memorial Scholarship<br />
PUBLICATIONS<br />
The <strong>Hydrocephalus</strong> <strong>Association</strong> provides the following<br />
resources to individuals and families affected by<br />
hydrocephalus:<br />
Booklets<br />
About <strong>Hydrocephalus</strong>—A Book for Families (in English and Spanish)<br />
About Normal Pressure <strong>Hydrocephalus</strong> (Adult-Onset)<br />
Prenatal <strong>Hydrocephalus</strong>—A Book for Parents<br />
<strong>Hydrocephalus</strong> Diagnosed in Young to Middle-Aged Adults<br />
A Teacher’s Guide to <strong>Hydrocephalus</strong><br />
Health-Care Transition Guide for Teens and Young Adults<br />
Directory of Pediatric Neurosurgeons<br />
Directory of Neurosurgeons for Adults<br />
Fact Sheets<br />
Primary Care Needs of Children with <strong>Hydrocephalus</strong><br />
Learning Disabilities in Children with <strong>Hydrocephalus</strong><br />
Hospitalization Tips<br />
Headaches and <strong>Hydrocephalus</strong><br />
Social Skills Development in Children with <strong>Hydrocephalus</strong><br />
Eye Problems Associated with <strong>Hydrocephalus</strong><br />
Survival Skills for the Family Unit<br />
Durable Power of Attorney for Health Care Decisions<br />
Endoscopic Third Ventriculostomy<br />
Cerebrospinal Fluid Shunt Systems for Management of <strong>Hydrocephalus</strong><br />
Nonverbal Learning Disorder Syndrome<br />
How to Be an Assertive Member of the Treatment Team<br />
Second Opinions<br />
College & <strong>Hydrocephalus</strong><br />
Understanding Your Child’s Education Needs/IEP Resource Packets<br />
Frank David Kovack<br />
Hannah Krempler<br />
Ariel Krinsky<br />
Lacy Krueger<br />
Antonia Kuefler<br />
Krista Lamison<br />
Isaac LeVahn<br />
Tim Lindsay<br />
Paige Linley<br />
Jordan Nicole Lionberger<br />
Mia Lopez<br />
Maureen Lorello<br />
Sam Lovick<br />
Austin Lucero<br />
Autumn Mabon<br />
Brian Madden<br />
Grace Sheila Maguire<br />
Carol Malloy<br />
Elyse and Ashley Mandel<br />
Saxon Maxe<br />
Catherine McDermott<br />
John Stephen McGhee<br />
Jacob McKenney<br />
Benjamin Methner<br />
Waylon Metts<br />
Erheart Mianan<br />
Savannah Miller<br />
Thomas Edward Mingst<br />
Janine Mohler<br />
Mom and Dad<br />
Michael Mooney<br />
Mr. and Mrs. William Moore<br />
Darma Mortimer<br />
Matthew Mulligan<br />
Brian Murphy<br />
Spencer Neff<br />
Adora F. Norris<br />
Emiliano Ortega<br />
Kenton Osborne<br />
Charley Otto<br />
Tyler Padron<br />
Madison Pardi<br />
Jack D. Parker<br />
Amanda Patrick<br />
Jake Peacock<br />
Erin Pearce<br />
Mackenzie Pembrook<br />
Gavin Scott Penkal<br />
Sarah Percell<br />
Giovanni Perez<br />
Rebekah Perkins<br />
Samuel Phelan<br />
Ida Phillips<br />
Noah Elmer Plantikow<br />
Isaac Poole<br />
Amy Poskey<br />
Ashlyn Marie Powell<br />
Charles T. Ray<br />
Siobham Reardon<br />
John and Diane Reseska<br />
Shawn Rice<br />
Hayley Roach<br />
Alexis Rocciola<br />
Giancarlo Rodriguez Guerrero, II<br />
Emily Rogers<br />
Phillip Rosenthal<br />
Hilary Rossen<br />
Amber Rowen<br />
Antonina Ruriani<br />
Elizabeth Saavedra<br />
Ben Sanchez<br />
Emerson Page Sarre<br />
Benjamin Saylor<br />
Romi Scarlett<br />
Aaron Scarpato<br />
Angie Scherer<br />
Sara Schieder<br />
Dennis Schreibeis and Family<br />
Dr. Robert Schultz<br />
Elane Schwarz<br />
James G. Sclimos<br />
Colfax Selby<br />
Alexander Senanou<br />
Eric Carter Shields<br />
Brenna Smith<br />
Joe Neal Smith<br />
Tara Smoot<br />
Noelle Joy Sokolnicki<br />
Jorden Mitchell Spring<br />
Michael Stabile<br />
Agnes M. Stone<br />
Emma Stoner<br />
Jeremy Tam<br />
Maria Tatman<br />
Lucy Tatum Tayler<br />
Abbey Testa<br />
Katherine Mae Thayer<br />
Karson Palmer Thomas<br />
Matthew Thomas<br />
Odekunle Titilayo<br />
Ashlee Tracy<br />
Cheri Trieber<br />
Nicholas Trotto<br />
David Updike<br />
Salvatore Vassallo<br />
Remington Veillieux<br />
Christine Votraw<br />
Rachel Walden<br />
Sophia Walsh<br />
Sadie Waters<br />
June Webb<br />
Hannah Weil<br />
Dr. Stuart Weiss<br />
Tycen Welle<br />
Chad Whisenant<br />
Will<br />
Abigail Wood<br />
Warren Yalowitz<br />
Quinten Zalesky<br />
Donors
MAJOR DONORS<br />
CORPORATE / FOUNDATION<br />
Robert and Sara Adler<br />
Marty Allen<br />
Sebastian Aloi<br />
Maria and Daniel Andrzejek<br />
DeAnna Backus<br />
Angela and Chris Batterman<br />
Theodore Batterman<br />
Lynn Beirl<br />
Miguel Bejar<br />
Sarah Billinghurst and Howard Solomon<br />
Bradley Blake<br />
Richard Mark Bonney<br />
Candy Bretschneider<br />
Berta Brightman<br />
Lisa and David Browdy<br />
Craig and Vicki Brown<br />
Linda Diane Burger<br />
Tina and Michael Burke<br />
Susan Cahalan-Roach<br />
Joy and Joel Campbell<br />
Abigail Collins<br />
Marylyn and Tom Conley<br />
Shawn and Teri Cooper<br />
Helen Daltoso<br />
Don Davis<br />
Erin and Steve De Haan<br />
John and Liz Devlin<br />
Richard Dickstein<br />
Nicholas and Joanne Drinkwater<br />
Randy Dueck and Jenna Stanley<br />
Gary East<br />
Sanford and Adrienne Eckerling<br />
Warwick Every-Burns<br />
Kathy and Roger Farmer<br />
Debbi Fields<br />
Mary Finlayson<br />
Pamela Finlayson<br />
Lance and Christina Funston<br />
Alicia and Alex Georgiou<br />
Carla Gigante<br />
Marty Gleason<br />
Jay and Kathryn Goemmer<br />
Elizabeth and Hilton Goldreich<br />
Glenn T. Good<br />
Adam Goodman<br />
Tom, Margo and Jessica Graham<br />
Edith Gross<br />
Paul Gross & Lori Poliski<br />
Asha and Nikhil Gupte<br />
Todd and Joni Hahn<br />
Tim and Mary Beth Harris<br />
Johnetta Heltz<br />
Roger Hudgins<br />
Cathy Humphrey<br />
Mary Hutchcraft<br />
Kimberly and Michael Illions<br />
Ervin and Beth Jackson<br />
DeCesare James<br />
Susan and Ron Kaplan<br />
Stephen and Winifred Keane<br />
Eileen and Roger Kimber<br />
John Kingsley<br />
Roger Kissin<br />
Martha Lee<br />
Patti and Fred Lorenzen<br />
Cathy and Dan Maccoux<br />
Christina Maldonado<br />
Joseph and Mary Maloney<br />
Amy Maynard<br />
Mark, Karney, Caitlin and Timothy Maynard<br />
J. Gordon McComb<br />
Kris McFadden<br />
Guy McKhann<br />
C. Scott McLanahan<br />
June and Ray Moser<br />
Craig Muenter<br />
Richard Nakashian<br />
Alan and Barbara Neff<br />
Marsha Nelson<br />
John and Patty Nohr<br />
Austin Noll<br />
Paul Rogers and Barrett O'Connor<br />
Chris Palochak<br />
Maureen and Marco Pardi<br />
Bruce, Cheryl and Thomas Penman<br />
Marion and Daniel Phalen<br />
Abby and Jamie Puckett<br />
Michael Rehaut<br />
Lucy and David Rich<br />
Daniele Rigamonti<br />
Darlene Rogers<br />
William Rutz<br />
Peter Scarpato<br />
Paul Schulte<br />
Joseph and Doris Segel<br />
Brad and Nicole Silver<br />
Faith and Bobby Joe Smith<br />
Thomas and Kathryn Stamey<br />
Micki Stewart<br />
Peter Sun<br />
Vanessa Taliaferro-Jones<br />
Dianne and Andrew Tannariello & Family<br />
Janet and Charles Tarino<br />
William, Kathleen and Alex Tarmann<br />
Beth and Woody Tatman<br />
Pam and Richard K. Thomas<br />
Isnoelia Trevino<br />
Debbie and Jan Van der Sanden<br />
Tessa Van Der Willigen<br />
Hildegard Vetter<br />
William and Amy Vincent<br />
Carrie and Jay Weaver<br />
Kenneth Weaver<br />
Carl and Laura Weiss<br />
Bernie Wendler<br />
Elizabeth Wilson<br />
Aizik Wolf<br />
Margaret Wood<br />
Sara Zalesky<br />
A Cut Above<br />
AAA<br />
Aesculap, Inc.<br />
The Ahn Family Foundation<br />
AIG Matching Grants Program<br />
AllianceBernstein<br />
American Express Foundation<br />
America's Charities<br />
Ameriprise Financial Employee Giving<br />
Campaign<br />
Amgen Foundation Matching Gift<br />
Bank of America Foundation, Inc.<br />
Bank of Marin<br />
Batterman Family Foundation<br />
Boehm Birth Defects Center, Inc.<br />
The Brain and Spine Center<br />
Brownstein<br />
CA Inc.<br />
Cadence Design Systems, Inc.<br />
Capital Group Companies<br />
Caring Fund<br />
CFC<br />
CFC - Global Impact<br />
CFCNCA<br />
Charles Schwab Foundation<br />
Cincinnati Children's Hospital<br />
The Clorox Company Foundation Employee<br />
Giving Campaign<br />
CN Employees' and Pensioners' Community<br />
Fund<br />
Codman, a Johnson and Johnson Co.<br />
Combined Charities Campaign<br />
Community Foundation for Southeast<br />
Michigan<br />
Community Health Charities of CA<br />
Community Shares of Minnesota<br />
Deutsche Bank Americas Foundation<br />
EBay Foundation<br />
The Elms Inn<br />
FactSet Research Systems, Inc.<br />
Fidelity Charitable Gift Fund<br />
First American Title Insurance Co.<br />
George H. Sandy Foundation<br />
Give With Liberty Employee Donations<br />
GoodSearch<br />
The Hanover Insurance Group Foundation, Inc.<br />
Hecht-Levi Foundation<br />
High Level Fitness<br />
The Home Depot Political Action Committee<br />
<strong>Hydrocephalus</strong> Foundation, Inc.<br />
IBM Employee Services Center<br />
Jewish Community Federation of Cleveland<br />
John M. and Catherine F. Thalheimer Family<br />
Charitable Foundation<br />
Johnson and Johnson<br />
JPMorgan Chase Foundation<br />
JustGive.org<br />
Kaiser Permanente Community Giving<br />
Campaign<br />
Key Foundation<br />
Kraft Foods Matching Gift Program<br />
Landscaping and Tree Service, Inc.<br />
Law Office of Maynard and Cataldo<br />
LeVahn Family Foundation<br />
Macy's Foundation<br />
Maltbie Incorporated<br />
Marine Corps League<br />
The McGraw-Hill Companies, Inc.<br />
Medtronic<br />
Medtronic Neurologic Technologies<br />
Mentor Graphics Foundation<br />
Merck Partnership for Giving<br />
Messer Construction Co.<br />
Methodist Hospital<br />
Microsoft Giving Campaign<br />
Monarch Realty, Inc.<br />
Monsanto Fund<br />
Navesink Foundation<br />
Network For Good<br />
NPO Gateway<br />
PASCO<br />
PASCO Foundation<br />
Pfizer Foundation Matching Gift Program<br />
Pine Valley Middle School<br />
Pitkin County<br />
The Pittsburgh Foundation<br />
Prudential Foundation Matching Gift<br />
RapidForms<br />
Ronald and Pat McClain Good Samaritan Trust<br />
Rose Fin, Inc.<br />
Rudi Schulte Research Institute<br />
Sandman Family<br />
Sara Lee Foundation<br />
Seeking Techniques Advancing Research in<br />
Shunts<br />
Sinai Hospital<br />
Sophysa, USA, Inc.<br />
Spiritus Christi Tithing<br />
St. Thomas Thrift Shop<br />
SunTrust Bank<br />
Survtech Corp<br />
Tenet Healthcare Foundation<br />
The Terlecki Family<br />
Thomson West<br />
Toys R Us<br />
Tractebel North American Services<br />
U.S. Bancorp Foundation<br />
UBS<br />
United Business Media LLC<br />
United Way New York<br />
United Way of Alamance Co.<br />
United Way of Madison County, Inc.<br />
United Way Pfizer<br />
United Way Southern Nevada<br />
Verizon Foundation<br />
Wachovia Foundation Matching Gifts Program<br />
The Walmart Foundation<br />
Wellpoint Associate Giving Program<br />
Wells Fargo Community Support<br />
IN MEMORY<br />
Aurora Adler<br />
Walter Aglietti<br />
Curtis L. Allen, III<br />
Melvin R. Auch<br />
Nancy Bagsten-Collins<br />
Sog Baker<br />
Lorraine Belmont<br />
Joseph Beninati<br />
Florence Berger<br />
Rachelle Bryant-Bither<br />
Carmella Buemi<br />
Peter Caporino<br />
Joseph Carotenuto<br />
Charity<br />
Cole and Tracy<br />
ike Collins<br />
Jay Copeland<br />
Bernice Crespin<br />
Sam Cypert<br />
Sandra DeWald<br />
Diane<br />
Michele and Rachel DiCosola<br />
Carl DiPietro<br />
Ann C. Domsic<br />
George Dorsey<br />
Harold Douville<br />
Mary Lou Duffy<br />
Laura Dunafin<br />
Nancy Ann Eich<br />
Mike Farris<br />
Teddy Fattoross<br />
Cole Thomas Fonger<br />
Francis<br />
Sidney Franklin<br />
Ira Frieder<br />
Uncle Fritz<br />
Gerard Fudge<br />
John Gilkison, Jr.<br />
Janet Gorter<br />
Robert Gossen<br />
Angel Gwak<br />
Dr. Mary Hammock<br />
Robert W. Heard<br />
Virgil Hiveley<br />
Kenneth Hughes<br />
Eldred Hulbert<br />
Eleanor Jacobs<br />
Bernadette Janus<br />
Marilyn M. Jarvi<br />
Mildred and Toge Johansson<br />
Aaron Johnson<br />
Rebecca Grace Jones<br />
John C. Kase<br />
Thomas Kelley<br />
Bessyanna Knapp<br />
Mr. and Mrs. Richard Kranz<br />
Edythe Magduff<br />
Phyllis Mancuso<br />
Samuel Adam Margolis<br />
Ida Markus<br />
Ronald and Pat McClain<br />
Ashley Kim McDaneld<br />
Francis Mello<br />
Tyler Michael<br />
Sue Middleton<br />
Patricia O. Milligan<br />
Christian Molica<br />
Eloise Moons<br />
Sally Mullen<br />
Dr. Samuel Neff<br />
Dave Newsom<br />
Gemma Marie Norkus<br />
Aurora Padron<br />
Irene Peckham<br />
Nathan Carl Pedersen<br />
Diana Pennell<br />
June Perkins<br />
D'Anne Quinton<br />
Liam Jon Robbins<br />
Sidney Rubenstein<br />
Charles Rubin<br />
Michael Sherrill<br />
William Sinclair<br />
Carson Smith<br />
Leonard Soranno<br />
Dr. Marvin Stern<br />
Dr. W. James Sullivan<br />
Betty Sykora<br />
Mabel Toft<br />
Anne Traneis<br />
Faith Valentino<br />
Earl Van Sickle<br />
Valerie McMahon Vincent<br />
Danelle Williams<br />
Susan Zingone
2008 Audited Financial Statements<br />
STATEMENT OF FINANCIAL POSITION<br />
as of December 31, 2008<br />
STATEMENT OF ACTIVITIES<br />
ASSETS<br />
Current Assets:<br />
Cash and cash equivalents<br />
Pledges receivable within one year<br />
Prepaid expenses<br />
Inventory<br />
Total Current Assets<br />
Money market funds permanently restricted<br />
Pledges receivable in two to four years<br />
Property and equipment<br />
(net of accumulated depreciation)<br />
Deposits<br />
Total Assets<br />
LIABILITIES<br />
Current Liabilities:<br />
Accounts payable and accrued expenses<br />
Lease payable, current<br />
Total Current Liabilities<br />
Long term Liabilities:<br />
Lease payable, non-current<br />
$9<strong>25</strong>,928<br />
94,758<br />
17,167<br />
12,617<br />
$1,050,470<br />
$80,218<br />
30,000<br />
20,028<br />
4,876<br />
$1,185,592<br />
$51,462<br />
4,776<br />
$56,238<br />
$13,288<br />
SUPPORT AND REVENUE<br />
Restricted grants and donations<br />
Unrestricted contributions<br />
Fundraising<br />
($466,961 revenues less $137,031 expenses)<br />
Conference fees<br />
Sale of books and publications<br />
Interest and dividends<br />
Net investment gain (loss)<br />
Other income<br />
Total Support and Revenue<br />
EXPENSES<br />
Public support, education & advocacy<br />
<strong>Hydrocephalus</strong> conference<br />
Research<br />
Total Program Expenses<br />
Administration<br />
Fundraising<br />
Total Expenses<br />
Change in net assets<br />
Net assets at beginning of period<br />
TOTAL<br />
$492,570<br />
260,615<br />
329,948<br />
56,485<br />
21,136<br />
17,447<br />
(6,379)<br />
60<br />
$1,171,882<br />
$534,641<br />
191,453<br />
13,864<br />
739,958<br />
149,354<br />
1<strong>25</strong>,522<br />
$1,014,834<br />
$157,048<br />
$959,018<br />
Total Liabilities<br />
$69,526<br />
Net assets at end of period<br />
$1,116,066<br />
NET ASSETS<br />
Unrestricted net assets<br />
Temporarily restricted net assets<br />
Permanently restricted net assets<br />
$781,706<br />
<strong>25</strong>4,142<br />
80,218<br />
Fundraising 12%<br />
Total Net Assets<br />
Total Net Assets and Liabilities<br />
$1,116,066<br />
$1,185,592<br />
Administration 15%<br />
Programs 73%<br />
Celebrating <strong>25</strong> <strong>Years</strong><br />
ANNUAL REPORT 2008
MISSION<br />
The <strong>Hydrocephalus</strong> <strong>Association</strong>’s mission is to eliminate the challenges of hydrocephalus by stimulating<br />
innovative research and providing support, education and advocacy for individuals, families and<br />
professionals dealing with hydrocephalus.<br />
OFFICERS OF THE BOARD<br />
Paul Gross, Chairman<br />
Deborah Phillips, Secretary<br />
Raymond Moser, Jr., Vice Chairman<br />
Curt Stewart, Treasurer<br />
DIRECTORS<br />
David Browdy<br />
Matt Kursh<br />
Russell Fudge<br />
Craig Brown<br />
Ralph Kistler<br />
Marvin Sussman, PhD<br />
Marion Walker, MD<br />
George Breed<br />
Marc Randolph<br />
Mike Schwab<br />
Debby Buffa<br />
MEDICAL ADVISORY BOARD<br />
Rick Abbott, MD<br />
Marvin Bergsneider, MD<br />
James Drake, MD<br />
Michael Egnor, MD<br />
Richard Ellenbogen, MD<br />
Ann Marie Flannery, MD<br />
Bruce Kaufman, MD<br />
John Kestle, MD<br />
Mark Luciano, MD<br />
Joseph Madsen, MD<br />
Anthony Marmarou, PhD<br />
J. P. McAllister II, PhD<br />
J. Gordon McComb, MD<br />
C. Scott McLanahan, MD<br />
David McLone, MD<br />
Joseph Piatt Jr., MD<br />
Harold Rekate, MD<br />
Marion Walker, MD<br />
Michael Williams, MD<br />
Michael Edwards, MD (emeritus)<br />
<strong>Hydrocephalus</strong> <strong>Association</strong><br />
870 Market Street, Suite 705<br />
San Francisco, CA 94102<br />
Telephone: (415) 732-7040 / (888) 598-3789<br />
Fax: (415) 732-7044<br />
www.hydroassoc.org<br />
info@hydroassoc.org<br />
Celebrating <strong>25</strong> <strong>Years</strong>
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