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Winter 2005 - Kids Cancer Care

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<strong>Kids</strong><br />

CANCER CARE NEWS<br />

FOR THE PARTICIPANTS, VOLUNTEERS AND SUPPORTERS OF KIDS CANCER CARE FOUNDATION OF ALBERTA WINTER <strong>2005</strong><br />

Creating Calgary’s First Innovative<br />

Research Facility<br />

An exciting new research presence is fast taking shape in Calgary. With the<br />

help of the community, KCCFA is determined to raise $1.5 million of a $4.5<br />

million floor in the new Health Research Innovation Centre (HRIC)<br />

dedicated to pediatric oncology research – the first in western Canada.<br />

The HRIC is a sophisticated lab with physical connections to a teaching,<br />

research and wellness building. At a total cost of $200 million, opening in<br />

the Spring 2006, the centre will enable different research groups and related<br />

clinical practices to work together. The Southern Alberta <strong>Cancer</strong> Research Institute (SACRI)<br />

is one of six new Institutes that will occupy the new buildings.<br />

The innovative design of the buildings allows natural collaboration to happen. The new lab is a<br />

five-story research facility with office and support space on the ends and wet labs (chemistry,<br />

biology, etc.) in the middle. There is space between each floor for easy access to, and development<br />

of, mechanical and electrical infrastructure – an important feature in today’s high-tech labs.<br />

The director of the Southern Alberta <strong>Cancer</strong> Research Institute, Dr. Chris Brown, is enthusiastic<br />

about the possibilities that the centre creates, “this kind of centre will attract the best and the<br />

brightest researchers to Calgary, most researchers love sharing their ideas and discussing new<br />

ways of looking at the same problem, the HRIC design and atmosphere makes that collaboration<br />

so much easier.”<br />

Architect’s rendering of the<br />

Health Innovation Research<br />

Centre to open in 2006.<br />

The production of this newsletter is<br />

made possible through a generous<br />

donation from an anonymous donor.<br />

SACRI<br />

Objectives<br />

• PROVIDE AN ENVIRON-<br />

MENT FOR THE ATTAIN-<br />

MENT OF INDIVIDUAL<br />

AND COLLABORATIVE<br />

EXCELLENCE IN CANCER<br />

RESEARCH<br />

• FOSTER AN INTERDISCI-<br />

PLINARY APPROACH TO<br />

EXPERIMENTAL QUESTIONS<br />

IN CANCER RESEARCH<br />

• TRAIN THE NEXT<br />

GENERATION OF<br />

CANCER RESEARCHERS<br />

WHO SHARE THIS<br />

INTERDISCIPLINARY<br />

VISION<br />

The director of the Children’s <strong>Cancer</strong> Program at the Alberta Children’s<br />

Hospital and Tom Baker <strong>Cancer</strong> Centre, Dr. Max Coppes, shares<br />

this enthusiasm, as childhood cancer research will be an instrumental<br />

part of the new research facility. Together with Drs. Steve Robbins,<br />

Aru Narendran, Peter Forsyth, and Susan Lees-Miller, Dr. Coppes has<br />

established the Centre for Experimental and Molecular Therapeutics.<br />

This will be a collaborative effort between several researchers, all<br />

focused on developing new treatments for children with cancer.<br />

While the group has already identified several topnotch researchers<br />

for as potential candidates for relocation to Calgary, at present, they<br />

are unable to offer any research space in Calgary. The recently<br />

announced $1.5 million commitment from KCCFA will actually<br />

provide the Centre for Experimental and Molecular Therapeutics with<br />

the opportunity to attract three investigators and their laboratories to<br />

Calgary. Dr. Coppes says, “this initiative will help make a dream<br />

come true, childhood cancer research will benefit tremendously<br />

from this new Research Institute.”<br />

www.kidscancercare.ab.ca<br />

Inside....<br />

Favourite Friends 2/3<br />

COCA Conference/ 4<br />

Greetings from Tokyo<br />

CEO Message 5<br />

Camp & Community 6/7<br />

Board Member Profile<br />

Perspectives 8<br />

Climbing our own<br />

Mountains 9<br />

Profiles 10<br />

Coming Events 11<br />

Volunteer Opportunities 12<br />

1


Favourite Friends<br />

Friends help to make great things happen at KCCFA! Thanks to everyone who has raised funds through<br />

various initiatives and those who shaved their lids for the kids.<br />

Mentors for Life during a<br />

recent planning session.<br />

"Happiness is<br />

not so much<br />

in having as<br />

sharing. We<br />

make a living by<br />

what we get, but<br />

we make a life by<br />

what we give."<br />

– Norman MacEwan<br />

Ronald MacDonald Reaches Out<br />

Our friends at Ronald MacDonald House<br />

Charities (RMHC) have provided funds in<br />

support of a KCCFA resource library for<br />

families touched by childhood cancer. This<br />

funding will allow us to make available the<br />

latest parent support materials and childhood<br />

cancer publications. Thanks to RMHC for<br />

recognizing the importance of information and<br />

support to families experiencing cancer.<br />

CIBC World Market<br />

Children’s Foundation<br />

KCCFA’s Mentors for Life<br />

program is one of the<br />

recipients of funds raised<br />

through the CIBC World<br />

Markets Children’s Miracle<br />

Day. Each year, on the first<br />

Wednesday in December,<br />

CIBC World Markets and<br />

Wood Gundy investment<br />

advisors, sales and trading staff across Canada<br />

and around the world, donate their fees and<br />

commissions to children’s charities. CIBC<br />

World Markets Children’s Foundation chose<br />

to support the Mentors for Life program<br />

throughout 2004 and we applaud their investment<br />

in youth.<br />

Walking Upright Through Fire<br />

Alan and Sandy Wilson lost their son Josh to<br />

cancer in 2002. Now Alan has written a<br />

touching account of Josh’s last few months and<br />

presented a reading of his play “Walking<br />

Upright Through Fire” in Lethbridge and<br />

Calgary. Eugene Stickland, a Calgary playwright,<br />

directed the reading and the audience<br />

left feeling moved and inspired. Our thanks to<br />

the Wilsons for sharing their story in support<br />

of KCCFA and supporters who attended the<br />

reading and made a donation in Josh’s name.<br />

Angels Among Us<br />

Debbie Logelin lost her infant granddaughter,<br />

Italia Ellen Puglia, to cancer in 2002. Wanting<br />

to make a difference in the lives of children<br />

with cancer, Debbie launched the Guardian<br />

Angel campaign. Each year, on Italia’s birthday,<br />

Debbie asks family, friends and business<br />

associates to donate what they can in memory<br />

of her granddaughter. All donors receive a<br />

guardian angel pin provided by Fosters Garden<br />

Chapel. Over the past two years, this campaign<br />

has raised over $6,000 for childhood<br />

cancer research.<br />

Help comes in all sizes<br />

Preschoolers Lindsay & Katie Bray, Abigayle &<br />

Daniel Blackmore, Elizabeth & Daniel Handford<br />

and Alyssa Schultz sold Kool-Aid, cookies and<br />

candy with the help of Susan Bray, their<br />

dayhome caregiver. They were so proud of<br />

their achievement and decided amongst<br />

themselves that they wanted to give the<br />

money they raised to children with cancer.<br />

With a little help from a mom, the tiny tots<br />

sent the proceeds ($10) to KCCFA.<br />

Payback Time<br />

Innovative Fitness trainers got a taste of their<br />

own medicine at their recent Train the Trainer<br />

event. Clients bid on the opportunity to put<br />

their trainers to work with crunches, ball<br />

workouts and weightlifting (to name a few).<br />

They consoled their aching muscles the next<br />

day knowing that they raised over $7,000 to<br />

help with KCCFA programs. Congratulations<br />

to both the trainers and the trainees!<br />

Cheeky clients enjoy a toast while Innovative Fitness<br />

trainer is forced to undergo an extreme workout.<br />

2<br />

www.kidscancercare.ab.ca


Calgary Stampeders – Nice touchdown<br />

Cookies + Enthusiasm = A Winning<br />

Combination<br />

Sisters Sarah Esposito and Aimee Strong were<br />

truly impressed by the selfless act of a young<br />

boy who supported a head shave they organized.<br />

Matthew was saving his earnings from<br />

mowing lawns in order to buy a cell phone;<br />

when he heard about Sarah and Aimee’s<br />

efforts, he donated his earnings to their head<br />

shave instead.<br />

®<br />

<br />

Jamie Crysdale, offensive<br />

lineman for the Calgary<br />

Stampeders, led his<br />

teammates in a head<br />

shave to support 3-yearold<br />

Grace, Jamie’s daughter,<br />

who was diagnosed<br />

with cancer. More than<br />

20 players, staff and<br />

management participated<br />

along with Stamps fans<br />

who donated spare<br />

change after a game for a<br />

total gain of $15,000.<br />

Sarah and Aimee<br />

also baked 122<br />

dozen cookies to<br />

raise funds for<br />

KCCFA. After<br />

selling loads of<br />

cookies at a<br />

Saturday evening<br />

mass, the girls<br />

were worried<br />

that they didn’t<br />

have enough<br />

cookies for the Sunday morning masses, so<br />

they stayed up until 4 a.m. baking another 22<br />

dozen! The result was a sweet $5,000 treat.<br />

Generosity of Spirit<br />

Award<br />

Congratulations to<br />

Wayne Chiu, president,<br />

Trico Homes, on his 2004 Generosity of Spirit Award. The<br />

awards are presented to ordinary people who have made<br />

extraordinary contributions of time, leadership and financial<br />

support to the community. Wayne has done all of that and<br />

more for KCCFA. We were proud to nominate him in the<br />

category of Outstanding Small Business Philanthropist.<br />

Red Deer College Rallies around Maggie<br />

Maggie Hamilton, cancer survivor, having<br />

already lost her hair through treatment,<br />

decided to talk her fellow classmates into<br />

shaving their heads! Not only did she succeed<br />

in recruiting several school friends, she also (to<br />

the astonishment of many of her colleagues)<br />

convinced Red Deer College president Ron<br />

Woodward to shave his head. A very smart<br />

move Maggie, with a $17,000 payoff.<br />

Eleanor and Wayne Chiu demonstrate<br />

community spirit<br />

The awards are part of Philanthropy Week organized by the Association of Fundraising Professionals (AFP).<br />

AFP represents 26,000 members in more than 170 chapters throughout the world, working to advance<br />

philanthropy through advocacy, research, education and certification programs.<br />

Trico Homes is in the business of “Building Strong Communities.” Wayne and his team take this<br />

role seriously, whether they are building homes or contributing time and energy to KCCFA.<br />

Trico’s support for KCCFA is invaluable and we salute Wayne Chiu’s leadership and generous<br />

spirit.<br />

Photo: Monique de St. Croix, www.uniqueperspectives.ca<br />

Grace checks out dad’s new<br />

doo and the Stampeder gang<br />

shows off their new shine.<br />

Congratulations to<br />

our friends Don,<br />

Joanne and the<br />

Coach on receiving a<br />

Gold Ribbon Award<br />

for Community<br />

Service from the<br />

Canadian Association<br />

of Broadcasters. Don,<br />

Joanne & The Coach<br />

won the coveted<br />

award for their work<br />

on behalf of the<br />

Foundation...with<br />

countless hours of<br />

dedication and<br />

commitment, the Lite<br />

96 team has supported<br />

KCCFA in<br />

many ways.<br />

www.kidscancercare.ab.ca<br />

3


COCA Conference<br />

Children’s Oncology Camping Association (COCA) Conference<br />

We were honoured to host the 22nd Annual Children’s Oncology Camping<br />

Association (COCA) International Conference in November with 163 delegates<br />

in attendance from the US, Ireland and Canada. A terrific group of volunteers<br />

made this conference a success. Delegates enjoyed the sessions in music therapy,<br />

fostering hope, kinesthetic learning and technology at camp.<br />

Healing<br />

Dr. Stan Whitsett, Psychologist specializing in pediatric oncology from the University<br />

of Washington, presented a session on the psychosocial impacts of childhood<br />

cancer. Dr. Whitsett addressed the dynamic needs of childhood cancer survivors<br />

and the value of the camp experience for children facing childhood cancer.<br />

COCA delegates along<br />

with volunteer host, Roy,<br />

enjoy the festivities at<br />

Heritage Park<br />

Hope<br />

Dr. Len Bruton and his daughter Nicole, a KCCFA staff member and a cancer survivor, shared<br />

their experience and suggestions for helping families to make it through their personal challenges<br />

with childhood cancer.<br />

Humour<br />

Cheryl Oberg, a.k.a. ‘Miss Loosie’, a professional clown and President of the Canadian Laughter<br />

Association, introduced delegates to the power of laughter in healing the mind, body and soul. We<br />

were also fortunate to have Jonathan MacDonald, a stand up comic and KCCFA parent, provide a<br />

short routine laughing at cancer through the eyes of a parent.<br />

Greetings from Tokyo<br />

Erie Yamashita is a Japanese student who attended Camp SunMaker for one month this past summer.<br />

She is a leukemia survivor who wanted to observe our camping programs as part of her university thesis.<br />

From Tokyo, Japan, I want to send my big love and much appreciation to everyone that I met in<br />

Canada this summer.<br />

In Japan, we have only a very short history in offering a pediatric cancer camp — we started seven<br />

years ago and hold the camp at different sites each year. In northern Japan, one permanent camp<br />

is in the planning stage, but I think it will take more than five years to be completed.<br />

When I arrived in Calgary on July 28, I was so happy to arrive at last, but also I was little bit<br />

nervous because I wondered if I could do well for a whole month at camp. I didn’t need to worry<br />

at all. My stay at the camp passed so fast and it was full of happiness and joy. I met so many<br />

wonderful people. I enjoyed every minute there. I really wish I could be there again!<br />

Erie, shown here with<br />

Nicole, fondly remembers<br />

her visit to Calgary.<br />

The most wonderful event for me was the dance each Friday night. The children were so cute in<br />

their pretty dresses and we laughed and had so much fun. I also enjoyed climbing and the giant<br />

swing. I rafted for the first time in my life. It was so exciting. The nights were so clear, I have never<br />

seen so many beautiful stars in my life. I wished I could have kept seeing stars all night. I really<br />

respect the wonderful nature of Canada.<br />

I asked to join the camp for my graduation thesis and now I’m writing the last part. When I’m<br />

writing I always remember my wonderful days, wonderful staff members and the campers. I think I<br />

am writing a nice thesis because the camp was so wonderful.<br />

I hope to visit Canada again soon, Erie.<br />

4<br />

www.kidscancercare.ab.ca


From the Desk of the CEO<br />

<strong>2005</strong> promises to be another exciting year for KCCFA. We have an opportunity to play an<br />

integral role as a funding partner in a research space dedicated to pediatric oncology research.<br />

With the community behind us, we are determined to raise $1.5 million of a $4.5 million floor in<br />

the new Health Research Innovation Centre.<br />

Encouraged by Dr. Chris Brown, director of the Southern Alberta <strong>Cancer</strong> Research Institute, the<br />

KCCFA board of directors committed to playing an active part in the creation of this historic<br />

centre. This centre will become a core element in an international world-class phase one consortium<br />

as it brings together the people, facilities and ideas. I truly believe the dream of finding a cure<br />

for many childhood cancers will be so much closer because of this centre. When it opens in 2006,<br />

KCCFA will take its place among the many community partners that combined their dreams to<br />

make it a reality.<br />

Recently, I was honoured and humbled to receive a Meritorious Service Medal from Her<br />

Excellency the Right Honourable Adrienne Clarkson, Governor General of Canada. I<br />

accepted this decoration on behalf of the <strong>Kids</strong> <strong>Cancer</strong> <strong>Care</strong> Foundation of Alberta because I know<br />

that I did not achieve this recognition on my own. Many people have contributed their time,<br />

energy and money to the fight against childhood cancer. I thank each of you for your support and<br />

wear this medal with pride.<br />

Keeping the kids at the forefront of everything we do is made easier when we listen to their<br />

stories and learn from them. Katherine Douglas is a young woman who has also realized the<br />

benefits of sharing her personal cancer story – read more about Katherine in this issue.<br />

Another young woman who told her story – many times – this year, is our outgoing spokeskid,<br />

Laura Cuthbertson. For Laura and her family, dad John, mom Dawn and sister Emily, being the<br />

KCCFA 2004 spokeskid was a family affair. When Laura wasn't able to tell her own story, her<br />

family members stepped up and told theirs. Audiences everywhere got a true picture of what it is<br />

like to live with childhood cancer. Thank you Cuthbertsons! And, a quick welcome to Jeffery<br />

Eden, our <strong>2005</strong> Spokeskid – I know that he will bring his own touch to this important job. You<br />

can read more about Jeffery and his new role in the spring issue.<br />

Christine Wandzura<br />

Happy New Year<br />

from the staff of<br />

the <strong>Kids</strong> <strong>Cancer</strong><br />

<strong>Care</strong> Foundation<br />

of Alberta<br />

Co-chairing National Philanthropy Week in 2004 was a powerful experience<br />

for me. Turning the spotlight on seven individuals and companies<br />

that demonstrate how we can be philanthropists in our own way was a<br />

great honour. Congratulations to Wayne Chui and his team at Trico<br />

Homes for their efforts in making our community a better place to live.<br />

I look forward to working with two new members of the KCCFA board<br />

of directors, Brad Stevens and Wayne Berg. Brad and Wayne both<br />

bring valuable skill sets to the board. I have known Wayne for many<br />

years; he is a banker, community supporter and a parent of a long-term<br />

cancer survivor, Jillian. Brad brings a love of children – having four of his<br />

own – and a desire to lend his business acumen to a worthy cause. We<br />

are fortunate to have the leadership of both in helping direct the future<br />

of the Foundation.<br />

From the Board and Staff of the <strong>Kids</strong> <strong>Cancer</strong> <strong>Care</strong> Foundation the very best to everyone during<br />

this holiday season. Thanks for your part in making the first 10 years so remarkable! Here’s to<br />

the next 10 years and to the hope of a brighter tomorrow for children with cancer<br />

and their families.<br />

Christine Wandzura, M.S.M., CFRE, Chief Executive Officer<br />

Send me a note; drop me a line, at wandzura@kidscancercare.ab.ca<br />

Left to Right: Top: Ryan<br />

Murray, Barb Smeltzer, Mike<br />

MacKay, Middle: Trish<br />

Matheson, Candice Martin,<br />

Wylma Williams, Bottom:<br />

Nicole Bruton, Christine<br />

Wandzura and Kristie<br />

Pshyk...and honorary staff<br />

member Carmen.<br />

www.kidscancercare.ab.ca<br />

5


Camp & Community<br />

Lance Armstrong: Glad for Every Day<br />

By Leon Lau, Mentors for Life<br />

Six-time Tour de France winner and cancer survivor Lance Armstrong brought his Tour of Courage<br />

fundraising event to Calgary in September 2004. One of our own cancer survivors, Leon Lau, met and<br />

talked with Lance during that visit...here is his account.<br />

After many weeks of hoping, John Kunka and I heard that we would be among the lucky few to<br />

meet and chat with our fellow cancer survivor and world-famous cycling superstar, Lance<br />

Armstrong.<br />

Shortly after 4 p.m. on Saturday, September 25, thirteen members of<br />

KCCFA’s Mentors for Life program, along with current patients<br />

and staff of the Tom Baker Centre, greeted Lance – not with loud<br />

applause, but with silent reverence.<br />

Mentors for Life share<br />

some time with Lance<br />

Armstrong<br />

"...because the<br />

way you live<br />

your life, the<br />

perspective you<br />

select, is a<br />

choice you<br />

make every<br />

single day you<br />

wake up. It's<br />

yours to<br />

decide."<br />

– Lance Armstrong,<br />

from his book, Every<br />

Second Counts.<br />

Dr. Chris Brown introduced us and Lance started fielding questions.<br />

We asked him what his thoughts were upon his initial diagnosis and<br />

during treatment. We discovered that his battles were long, hard<br />

and similar to our own. He told us that his resolve to get well was<br />

similar to his determination to win cycling races: he never gave up<br />

and took encouragement from every piece of positive news.<br />

Although he had moments of doubt about beating cancer, he quickly<br />

banished those thoughts. He would not let bad news disappoint<br />

him; it only made him strive harder to get better and achieve his<br />

goals.<br />

While we asked him to autograph many books and cycling paraphernalia, we also gave him a<br />

KCCFA pin and a Mentors for Life sweatshirt. We also presented him with our very own “yellow<br />

jersey” signed by all the mentors – a yellow <strong>Cancer</strong> Survivor T-shirt used in the Canadian <strong>Cancer</strong><br />

Society Relay for Life celebrations. Since the Tour de France leader traditionally wears a yellow<br />

jersey, we thought it appropriate to give him a yellow jersey for leading all cancer patient and<br />

survivors through their battles.<br />

Our time with Lance was over all too soon, however, our encounter with him inspired us to<br />

achieve our goals. If a fellow cancer survivor can win the most difficult sporting event in the world<br />

six times in a row, then surely we can all achieve our own goals if we stay focused and work<br />

towards them.<br />

Summer Camp Dates<br />

The dates have been set for this Summer’s Camp programs.<br />

SunDance:<br />

SunMaker:<br />

July 11 – 15, and July 18 – 22, Edmonton<br />

July 25 – 29, and August 1 – 5, Calgary<br />

July 11 – 16, July 18 – 23, July 25 – 30, August 1 – 6, Camp Horizon<br />

SunSeeker is a new teen adventure camp. We will be running 3, 10-day summer sessions as<br />

well as weekend outings in May and June. Watch for more details on these exciting new camps:<br />

Whitewater Adventure Camp: July 1 – 10<br />

Rock Climbing and Ecotourism Camp: August 8 – 17<br />

Multi-sport Camp: August 22 – 31<br />

6<br />

www.kidscancercare.ab.ca


Notice to All Families<br />

As a means to cut down on mailing costs we have started to use e-mail to send out notices for<br />

upcoming programs and special events. We are also planning to start a monthly e-news to<br />

highlight KCCFA programs and events. If you have not been receiving messages<br />

regarding programs over the past 2 months, we probably don’t have a current<br />

email address for your family. Please send your email address along with any change<br />

in your mailing address or phone number directly to: baptiste@kidscancercare.ab.ca<br />

Parents try on a new set of<br />

skis at a weekend family<br />

retreat.<br />

<strong>2005</strong> Bereaved Family Retreat<br />

This spring KCCFA will host a weekend retreat for bereaved families. This<br />

initiative was created to support the entire family in dealing with the stress and<br />

social issues that arise when a family loses a child to cancer. The retreat will offer<br />

a break for the parents, fun and activities for the children and teens. Family<br />

members will be able to connect with others facing similar challenges. Parents<br />

will be treated to relaxation treatments and information sessions. Further<br />

details will be available on our website in the spring.<br />

For more information about the family retreat contact Mike MacKay at 403.216.9210, ext. 223 or<br />

mackay@kidscancercare.ab.ca.<br />

Fall SunKeeper Weekend<br />

52 teenagers and 13 volunteers explored their five senses at KCCFA’s annual Fall SunKeeper<br />

Retreat. With a “sensational” theme, participants got a taste of the world using all of their senses.<br />

Wearing blindfolds, the kids ate interesting foods found in nature. Hmmm, worms anyone? Learning<br />

sign language, and exploring music with their hands gave campers a different perspective.<br />

Following tradition, campers ended the retreat with a dance and magical moments campfire.<br />

Jacob with his catch and<br />

soon-to-be released.<br />

This was a very successful weekend and we look forward to the upcoming SunKeeper Retreat in<br />

April <strong>2005</strong>. We would like to extend a huge thank you to Easter Seal Camp Horizon, our volunteers<br />

and phenomenal nurses who made the weekend so special.<br />

Research Participants Wanted<br />

We have two opportunities for families to participate in research studies. Below is a brief description of<br />

each study. Please get in touch with the appropriate contact person if you would like more information.<br />

TREK: Adventures in Physical Activities<br />

Looking for a little extra fun this winter? Thinking about gearing up for those summer activities?<br />

Then, join us on a journey where you will explore a wide variety of physical activities in a supportive,<br />

group environment. Project TREK is a research project being conducted at the University<br />

of Calgary. Our goal is to assess the impact of physical activity on the physical, social, and<br />

emotional well-being of adolescent cancer survivors. Program starts March <strong>2005</strong>. This program<br />

is funded in part by KCCFA. For more information call: Melanie Keats, PhD Candidate at (403) 210-<br />

8482 or keatsm@shaw.ca<br />

Pediatric Oncology Internet Study<br />

The Department of Psychology at the University of Alberta is looking for volunteers for a short<br />

survey regarding parents' use of the Internet. If you are a parent (or a primary caregiver) of a<br />

child diagnosed with any form of cancer, and have experience using the World Wide Web, we<br />

would like to hear from you. The questionnaire will take no more than an hour's time and may be<br />

completed at your convenience. The results of this study will be used to educate parents and<br />

caregivers regarding the safe use of on-line information for children's health. If you are interested<br />

in participating, please contact Dr. Matthew Stephens, Dept. of Psychology at (780) 492-8827 or by e-<br />

mail at matthew.stephens@ualberta.ca.<br />

Young Adult<br />

Conference –<br />

February 17-20th,<br />

<strong>2005</strong><br />

If you are in high<br />

school or beyond<br />

and have had cancer<br />

touch your life, you<br />

will be interested<br />

in this weekend<br />

designed especially<br />

for you. Mark your<br />

calendars and stay<br />

tuned for more info.<br />

www.kidscancercare.ab.ca<br />

7


Perspectives<br />

The emptiness<br />

that comes from<br />

not being able to<br />

participate in<br />

many activities<br />

as a kid has<br />

allowed me to<br />

look at life from<br />

a whole new<br />

perspective.<br />

I am 16 and a cancer survivor for six years. I was 10 when I was<br />

diagnosed with osteogenic sarcoma in my left arm. I was the first girl in<br />

Canada to undergo a dramatic surgery where my bone was replaced<br />

with a metal rod. I can’t hold my arm up or to the side or any major<br />

movement. The emptiness that comes from not being able to participate<br />

in many activities as a kid has allowed me to look at life from a<br />

whole new perspective. I try to help kids with cancer or cancer organizations<br />

in any way I can.<br />

Last year, my friends and I raised money for cancer research and the<br />

Make a Wish Foundation. We put tents on our school roof and didn’t<br />

come down until we raised a great deal of money! It gave me the opportunity to share my story<br />

with the whole school and the community through the media coverage. That experience gave me<br />

the confidence to express my feelings and share my experience with many people.<br />

Friends and grade 11 classes at St. Mary’s High School in Taber are my focus at the moment. I am<br />

developing a love for art and music, plays, movies and other forms of entertainment.<br />

My future goals are pretty simple. I want to travel with friends, go backpacking through Europe,<br />

and visit Italy and many other places. I plan to major in nursing then specialize in oncology at a<br />

post-secondary institution. I want to give back what was given to me by following my<br />

dream to become a nurse.<br />

KCCFA has impacted me in more ways than one. The camp experience and meeting other kids<br />

that have been through the same long challenge that I went through was an amazing gift. It gave<br />

me a sense of belonging and hope. KCCFA put a smile on my face and gave me many happy<br />

moments to share with friends.<br />

My experience with cancer is with me every day. I only have to look at my arm. I look back at the<br />

photos and remember my experience. It helps me explain to other people what I went through,<br />

and what other people go through. Words can only do so much, but a picture can say it without<br />

any words at all.<br />

Katherine Douglas<br />

Friends Wanted<br />

...sport’s tournaments, fun runs, bake sales, canoe-a-thon, spell-athons,<br />

bike-a-thons, golf tournaments, raffles, jelly bean contests,<br />

handmade arts and crafts...<br />

The Bearberry motorcycle<br />

ride is just one example of<br />

a unique community<br />

fundraiser.<br />

Community events help fund our research and family-focused programs. If you<br />

want to help – why not organize a community event? Bake sales, tennis<br />

tournaments, even hosting a gala – simple or elaborate, it’s up to you!<br />

For more ideas and information on how to get involved contact Kristie Pshyk at<br />

216-9210 ext 225 or pshyk@kidscancercare.ab.ca.<br />

8<br />

www.kidscancercare.ab.ca


Climbing our Own Mountains<br />

Photo by Bruce Kirkby, Copyright © Alan Hobson, 1997<br />

Mount Everest<br />

As a salute to the Foundation’s volunteers and key supporters,<br />

Alan Hobson, adventurer and cancer survivor, spoke at<br />

our 10th Anniversary event. Alan’s message was simple, yet<br />

powerful – hold on to your dreams and persevere despite the<br />

challenges that come our way.<br />

In 1997, with sheer determination, Alan reached the summit of<br />

Mount Everest after years of planning, training and two previous<br />

summit attempts. In 2000, he began to climb his “medical<br />

mountain” – his battle with leukemia fortified by a stem cell<br />

transplant from his brother.<br />

Alan says that climbing his medical mountain was, by far,<br />

the greater challenge. In doing so, he drew upon the same<br />

strengths that got him to the top of Everest – perseverance,<br />

courage, focus, teamwork and belief in oneself.<br />

His message of hope resonated with the audience as he shared his personal story of<br />

triumph over cancer. At diagnosis, 90 per cent of the cells in his bone marrow were<br />

cancerous. Today, he is one of fewer than a dozen people in the world to have achieved an<br />

elite level of fitness after receiving a blood stem cell transplant for acute leukemia.<br />

Alan’s inspirational story is important for donors and volunteers too. It is easy to be<br />

sidetracked by all of life’s demands, but by keeping our personal visions in mind we can<br />

achieve our goals. For all of us who are a part of KCCFA – donors, volunteers, staff,<br />

doctors, nurses and researchers – we have to believe firmly in the possibility of a world without<br />

childhood cancer and hold on to that as we work day-to-day to improve the lives of young people<br />

affected by cancer.<br />

A sincere thank you to the organizations that made this event possible, Petro-Canada, Enbridge<br />

Inc., FirstEnergy Capital, Dome Brittania, and Canada Safeway.<br />

Trish Matheson, CFRE, Director of Development & Communications<br />

Contact me at 403.216-9210, ext 224 or by e-mail at matheson@kidscancercare.ab.ca<br />

Laura Cuthbertson, Alan<br />

Hobson and Christine<br />

Wandzura all share in our<br />

hope for a cure.<br />

It’s not the<br />

destination that<br />

counts, it’s the<br />

journey.<br />

– Alan Hobson<br />

Climb Back from <strong>Cancer</strong><br />

Alan and his wife Cecilia have recently published a book that may be of interest to families<br />

and supporters. “Climb Back From <strong>Cancer</strong>: A Survivor and <strong>Care</strong>giver’s Inspirational Journey”,<br />

is available through our resource lending library. There are also a limited number of<br />

books for sale through the KCCFA office. Call the office at 403.216.9210 for more details.<br />

Where There's a Will, There's a Way.<br />

Many people continue to put off the minor inconvenience of making a Will. But the consequence<br />

of not having a Will can be a major problem to the family and friends you leave behind.<br />

We encourage you to make a Will today...your family will appreciate it. The charities you support<br />

will appreciate it. And you will appreciate the peace of mind knowing your loved ones are taken<br />

care of.<br />

If you would like information on how you can provide a bequest to KCCFA, contact your financial advisor,<br />

or Trish Matheson at 403.216.9210 ext. 224.<br />

www.kidscancercare.ab.ca<br />

9


Board Profile — Brad Stevens<br />

Why did you choose to support KCCFA by becoming a board member?<br />

That question has a two-part answer. I work for The City of Calgary and had just finished<br />

my MBA when the city manager, Owen Tobert, challenged me to use the time I had set<br />

aside to do my MBA in a meaningful way. He had a good point, if I didn't use the free time<br />

that I now had, I would probably just fritter it away. Dr. Max Coppes was part of my MBA<br />

class; when he heard of the challenge Owen had set before me, he encouraged me to<br />

become involved with KCCFA.<br />

What do you bring to the Board?<br />

Quite frankly, first of all, I would like to learn from the board and get a sense of where I<br />

best fit. I think one of my strengths is long-range strategic planning and I hope to bring that<br />

skill to the table. I want help the organization continue its work in providing leading edge<br />

programs that will help children and their families living with cancer.<br />

What is your background?<br />

Giving of yourself<br />

is an investment<br />

that will come<br />

back tenfold.<br />

I began working with The City of Calgary in 1992 as an articling student to the City Solicitor after<br />

graduating from the University of Calgary’s Law School. I was admitted to the bar by then Chief<br />

Justice Moore and I joined the litigation division of the department. Since that time, I've had<br />

various management positions with The City of Calgary in the Board of Commissioner’s Office,<br />

Executive Office and Environmental Management.<br />

Brad, his wife Connie and their four children, Jordan, 13, Taylor, 10, Madison, 7 and Chase, 5, enjoy many<br />

hours of fun at Lake Sundance. Summer and winter, Brad and his family can be found on or near the lake.<br />

Brad also coaches several children's baseball and basketball teams.<br />

Volunteer Profile — Roy Roth<br />

“ I expect to pass through this world just once. Any good therefore that I can do or any<br />

kindness that I can show to any fellow creature, let me do it now; let me not defer it or<br />

neglect it, for I shall not pass this way again” – Anonymous<br />

More than just an adage, these words act as a guiding mission statement for one of<br />

our most committed volunteers – Roy Roth. Working as an EMT with the Medicine<br />

Hat Ambulance Service, Roy came across one of our camp volunteer posters and<br />

decided to get involved. That was 1998; six years later Roy has spent over 1,200<br />

hours with KCCFA, from camp to fundraising events, he has done it all.<br />

Roy Roth with Child Life<br />

Therapist, Sandy Baggott<br />

Roy credits his parents for his desire to always do his best, “if you are going to do<br />

it, do it well, if not, don’t bother coming out.” His strong belief in KCCFA enables<br />

him to get the most out of his volunteer commitments, producing what he describes<br />

as “many magical moments.” He feels that even the smallest contribution<br />

can make an enormous difference in someone’s life, “from seeing a child smile, to learning from<br />

like-minded people, every moment has the opportunity to produce magic.”<br />

With the pace of life these days many people struggle to find the time to get involved with their<br />

community, but Roy doesn’t believe that life’s responsibilities should deter anyone from<br />

contributing, “giving of yourself is an investment that will come back tenfold.” Truly<br />

words to live by.<br />

10<br />

www.kidscancercare.ab.ca


Coming Events<br />

This dazzling event promises to be a fun night out for you and your<br />

friends, featuring a champagne reception, dinner, silent and live<br />

auction and dancing to the Dino Martinis.<br />

Parents of children with cancer organize this annual<br />

event that raised $120,000 for childhood cancer<br />

research last year. At the event, you will hear about<br />

how your contribution to pediatric oncology research<br />

is making a difference right here in Calgary.<br />

WHAT: 2nd Annual Parents Quest for the<br />

Cure Gala<br />

WHERE: Sheraton Eau Claire<br />

WHEN: Saturday, February 5, <strong>2005</strong><br />

6 PM – Champagne Reception, Dinner & Dancing to follow<br />

HOW: Tickets – $100 each, contact:<br />

Lisa Clarke Potts 403.284.4492<br />

Kathleen Kirzinger 403.249.5783<br />

Kathy Harris 403.238.0434<br />

"The place to<br />

improve the<br />

world is first in<br />

one's own heart<br />

and head and<br />

hands, and<br />

then work<br />

out-ward from<br />

there."<br />

– Robert M. Pirsig<br />

Silent or live auction donations are welcomed, please contact Lisa, Kathleen or Kathy to contribute.<br />

Don’t delay in ordering your tickets. Last year’s event sold out!<br />

Show Your Heart<br />

On February 12 to 28, <strong>2005</strong> Canada Safeway stores<br />

will feature their Show Your Heart campaign. KCCFA<br />

is proud to be a Because We <strong>Care</strong> Charity at the<br />

following locations: Dalhousie, Beacon Heights,<br />

Glenmore Landing, West Lethbridge and Cochrane.<br />

Customers can make a recommended donation of $3<br />

and receive a Show Your Heart coupon book, which contains over $150 worth<br />

of in-store savings. It’s great value and all proceeds go to charitable organizations<br />

in your community.<br />

Three Cheers for the Hitmen...and Cardel Homes<br />

Cardel Homes has pledged $100 for KCCFA for every goal the<br />

Hitmen score. The Hitmen are off to a great start this season and<br />

the kids will be the big winners this year!<br />

Beacon Heights Safeway<br />

employees celebrate their<br />

campaign success in 2004.<br />

Volunteer Development<br />

A new year brings new resolutions and here at KCCFA the volunteer program has created a few<br />

of our own. Look for exciting volunteer development courses, program expansions, new opportunities<br />

and much more! The monthly volunteer email newsletter will bring you all the details.<br />

There has never been a better time to get involved!<br />

www.kidscancercare.ab.ca<br />

11


Board of Directors<br />

Jack Perraton CM, QC, Chair<br />

Bill Smith QC, Secretary<br />

Wayne Berg<br />

Pattie Culver<br />

Sean Durfy<br />

Cindy Gibson<br />

A. Joni Hughes<br />

Dr. Randy Johnston<br />

Bob Millar<br />

Brad Stevens<br />

Dr. Doug Strother<br />

Staff Team<br />

Christine␣ Wandzura,<br />

M.S.M.,CFRE<br />

Chief Executive Officer<br />

Christopher Baptiste<br />

Program Assistant (part-time)<br />

Nicole Bruton<br />

Residential Camp Coordinator<br />

Mike MacKay<br />

Camp & Community Outreach Director<br />

Candice Martin<br />

Development Associate<br />

Trish Matheson, CFRE<br />

Director of Development &<br />

Communications<br />

Ryan Murray<br />

Special Events Assistant (part-time)<br />

Kristie Pshyk<br />

Community Events Manager<br />

Barbara Smeltzer<br />

Volunteer Manager<br />

Wylma Williams<br />

Donor Relations Coordinator<br />

Volunteer Opportunities<br />

KCCFA Casino – February 24 and 25, Casino Calgary<br />

Don’t wait any longer to sign up for this fun event! Positions include cashiers, chip runners and count<br />

room volunteers with day and evening shifts available.<br />

Camp Volunteers<br />

Even though it is the middle of winter, believe it or not camp is around the corner! SunMaker,<br />

SunRise, and our newest program SunSeeker (replaces SunMaker Extreme) are airing out the sleeping<br />

bags to welcome our <strong>2005</strong> volunteers! Don’t miss the opportunity to get in touch with your inner<br />

child this summer – we are looking for volunteers to share their talents, love of children and, most<br />

importantly, their sense of fun!<br />

Young Adult Conference<br />

KCCFA is hosting our Young Adult Conference from February 17th to 20th, <strong>2005</strong> at the Sheraton<br />

Cavalier NE in Calgary. The four day conference will explore personal development for ages 16 to 25<br />

who have been affected by cancer. We are looking for oncology and registered nurses, conference<br />

assistants and evening chaperones to provide assistance over the four days. Deadline to apply is<br />

January 14th.<br />

Interested in these opportunities or want to chat about other ways to get involved, contact Barb Smeltzer<br />

at 403.216.9210 ext 222 or smeltzer@kidscancercare.ab.ca.<br />

National Volunteer Week April 17 to 23, <strong>2005</strong><br />

Across Canada, thousands of organizations rely on the constant commitment and dedication of<br />

volunteers. National Volunteer Week is a wonderful way to publicly recognize our country’s 6.5<br />

million volunteers who give of themselves in many ways.<br />

At KCCFA we are keenly aware of the enormous value of our volunteers. Simply put, we could<br />

not run our programs without volunteers contributing their time and talent. From leading camp<br />

activities, to shaving heads, to organizing the<br />

office...volunteers are the heart of this<br />

organization. On behalf of the kids and<br />

families who benefit from your support, thank<br />

you!!<br />

If you would like to learn more about volunteering<br />

with KCCFA, please contact Barb Smeltzer at<br />

403.216-9210, ext. 222 or by e-mail at<br />

smeltzer@kidscancercare.ab.ca<br />

If you are interested in other initiatives happening<br />

around the country please visit<br />

www.volunteercanada.ca for more information.<br />

RETURN UNDELIVERABLE CANADIAN ADDRESSES TO:<br />

205, 609 - 14th Street NW<br />

Calgary, Alberta T2N 2A1<br />

Phone: 403.216.9210<br />

Fax: 403.216.9215<br />

Toll Free: 1.888.554.2267<br />

email: staff @kidscancercare.ab.ca<br />

www.kidscancercare.ab.ca<br />

Newsletter Editor, Lynda Phelan<br />

Camp & Community Research Clinical Support<br />

Rolanda Ostrom<br />

Community Events Coordinator<br />

Wylma Williams<br />

Donor Relations Coordinator<br />

Mailings: We appreciate the opportunity to communicate with you about the activities of the Foundation; however, if you would like to alter the amount or type of mail you receive,<br />

please call Wylma at 403.216.9210, ext. 227 or e-mail at williams@kidscancercare.ab.ca.<br />

Canadian Publications<br />

Agreement # 4004962<br />

12<br />

www.kidscancercare.ab.ca

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