Winter 2005 - Kids Cancer Care
Winter 2005 - Kids Cancer Care
Winter 2005 - Kids Cancer Care
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<strong>Kids</strong><br />
CANCER CARE NEWS<br />
FOR THE PARTICIPANTS, VOLUNTEERS AND SUPPORTERS OF KIDS CANCER CARE FOUNDATION OF ALBERTA WINTER <strong>2005</strong><br />
Creating Calgary’s First Innovative<br />
Research Facility<br />
An exciting new research presence is fast taking shape in Calgary. With the<br />
help of the community, KCCFA is determined to raise $1.5 million of a $4.5<br />
million floor in the new Health Research Innovation Centre (HRIC)<br />
dedicated to pediatric oncology research – the first in western Canada.<br />
The HRIC is a sophisticated lab with physical connections to a teaching,<br />
research and wellness building. At a total cost of $200 million, opening in<br />
the Spring 2006, the centre will enable different research groups and related<br />
clinical practices to work together. The Southern Alberta <strong>Cancer</strong> Research Institute (SACRI)<br />
is one of six new Institutes that will occupy the new buildings.<br />
The innovative design of the buildings allows natural collaboration to happen. The new lab is a<br />
five-story research facility with office and support space on the ends and wet labs (chemistry,<br />
biology, etc.) in the middle. There is space between each floor for easy access to, and development<br />
of, mechanical and electrical infrastructure – an important feature in today’s high-tech labs.<br />
The director of the Southern Alberta <strong>Cancer</strong> Research Institute, Dr. Chris Brown, is enthusiastic<br />
about the possibilities that the centre creates, “this kind of centre will attract the best and the<br />
brightest researchers to Calgary, most researchers love sharing their ideas and discussing new<br />
ways of looking at the same problem, the HRIC design and atmosphere makes that collaboration<br />
so much easier.”<br />
Architect’s rendering of the<br />
Health Innovation Research<br />
Centre to open in 2006.<br />
The production of this newsletter is<br />
made possible through a generous<br />
donation from an anonymous donor.<br />
SACRI<br />
Objectives<br />
• PROVIDE AN ENVIRON-<br />
MENT FOR THE ATTAIN-<br />
MENT OF INDIVIDUAL<br />
AND COLLABORATIVE<br />
EXCELLENCE IN CANCER<br />
RESEARCH<br />
• FOSTER AN INTERDISCI-<br />
PLINARY APPROACH TO<br />
EXPERIMENTAL QUESTIONS<br />
IN CANCER RESEARCH<br />
• TRAIN THE NEXT<br />
GENERATION OF<br />
CANCER RESEARCHERS<br />
WHO SHARE THIS<br />
INTERDISCIPLINARY<br />
VISION<br />
The director of the Children’s <strong>Cancer</strong> Program at the Alberta Children’s<br />
Hospital and Tom Baker <strong>Cancer</strong> Centre, Dr. Max Coppes, shares<br />
this enthusiasm, as childhood cancer research will be an instrumental<br />
part of the new research facility. Together with Drs. Steve Robbins,<br />
Aru Narendran, Peter Forsyth, and Susan Lees-Miller, Dr. Coppes has<br />
established the Centre for Experimental and Molecular Therapeutics.<br />
This will be a collaborative effort between several researchers, all<br />
focused on developing new treatments for children with cancer.<br />
While the group has already identified several topnotch researchers<br />
for as potential candidates for relocation to Calgary, at present, they<br />
are unable to offer any research space in Calgary. The recently<br />
announced $1.5 million commitment from KCCFA will actually<br />
provide the Centre for Experimental and Molecular Therapeutics with<br />
the opportunity to attract three investigators and their laboratories to<br />
Calgary. Dr. Coppes says, “this initiative will help make a dream<br />
come true, childhood cancer research will benefit tremendously<br />
from this new Research Institute.”<br />
www.kidscancercare.ab.ca<br />
Inside....<br />
Favourite Friends 2/3<br />
COCA Conference/ 4<br />
Greetings from Tokyo<br />
CEO Message 5<br />
Camp & Community 6/7<br />
Board Member Profile<br />
Perspectives 8<br />
Climbing our own<br />
Mountains 9<br />
Profiles 10<br />
Coming Events 11<br />
Volunteer Opportunities 12<br />
1
Favourite Friends<br />
Friends help to make great things happen at KCCFA! Thanks to everyone who has raised funds through<br />
various initiatives and those who shaved their lids for the kids.<br />
Mentors for Life during a<br />
recent planning session.<br />
"Happiness is<br />
not so much<br />
in having as<br />
sharing. We<br />
make a living by<br />
what we get, but<br />
we make a life by<br />
what we give."<br />
– Norman MacEwan<br />
Ronald MacDonald Reaches Out<br />
Our friends at Ronald MacDonald House<br />
Charities (RMHC) have provided funds in<br />
support of a KCCFA resource library for<br />
families touched by childhood cancer. This<br />
funding will allow us to make available the<br />
latest parent support materials and childhood<br />
cancer publications. Thanks to RMHC for<br />
recognizing the importance of information and<br />
support to families experiencing cancer.<br />
CIBC World Market<br />
Children’s Foundation<br />
KCCFA’s Mentors for Life<br />
program is one of the<br />
recipients of funds raised<br />
through the CIBC World<br />
Markets Children’s Miracle<br />
Day. Each year, on the first<br />
Wednesday in December,<br />
CIBC World Markets and<br />
Wood Gundy investment<br />
advisors, sales and trading staff across Canada<br />
and around the world, donate their fees and<br />
commissions to children’s charities. CIBC<br />
World Markets Children’s Foundation chose<br />
to support the Mentors for Life program<br />
throughout 2004 and we applaud their investment<br />
in youth.<br />
Walking Upright Through Fire<br />
Alan and Sandy Wilson lost their son Josh to<br />
cancer in 2002. Now Alan has written a<br />
touching account of Josh’s last few months and<br />
presented a reading of his play “Walking<br />
Upright Through Fire” in Lethbridge and<br />
Calgary. Eugene Stickland, a Calgary playwright,<br />
directed the reading and the audience<br />
left feeling moved and inspired. Our thanks to<br />
the Wilsons for sharing their story in support<br />
of KCCFA and supporters who attended the<br />
reading and made a donation in Josh’s name.<br />
Angels Among Us<br />
Debbie Logelin lost her infant granddaughter,<br />
Italia Ellen Puglia, to cancer in 2002. Wanting<br />
to make a difference in the lives of children<br />
with cancer, Debbie launched the Guardian<br />
Angel campaign. Each year, on Italia’s birthday,<br />
Debbie asks family, friends and business<br />
associates to donate what they can in memory<br />
of her granddaughter. All donors receive a<br />
guardian angel pin provided by Fosters Garden<br />
Chapel. Over the past two years, this campaign<br />
has raised over $6,000 for childhood<br />
cancer research.<br />
Help comes in all sizes<br />
Preschoolers Lindsay & Katie Bray, Abigayle &<br />
Daniel Blackmore, Elizabeth & Daniel Handford<br />
and Alyssa Schultz sold Kool-Aid, cookies and<br />
candy with the help of Susan Bray, their<br />
dayhome caregiver. They were so proud of<br />
their achievement and decided amongst<br />
themselves that they wanted to give the<br />
money they raised to children with cancer.<br />
With a little help from a mom, the tiny tots<br />
sent the proceeds ($10) to KCCFA.<br />
Payback Time<br />
Innovative Fitness trainers got a taste of their<br />
own medicine at their recent Train the Trainer<br />
event. Clients bid on the opportunity to put<br />
their trainers to work with crunches, ball<br />
workouts and weightlifting (to name a few).<br />
They consoled their aching muscles the next<br />
day knowing that they raised over $7,000 to<br />
help with KCCFA programs. Congratulations<br />
to both the trainers and the trainees!<br />
Cheeky clients enjoy a toast while Innovative Fitness<br />
trainer is forced to undergo an extreme workout.<br />
2<br />
www.kidscancercare.ab.ca
Calgary Stampeders – Nice touchdown<br />
Cookies + Enthusiasm = A Winning<br />
Combination<br />
Sisters Sarah Esposito and Aimee Strong were<br />
truly impressed by the selfless act of a young<br />
boy who supported a head shave they organized.<br />
Matthew was saving his earnings from<br />
mowing lawns in order to buy a cell phone;<br />
when he heard about Sarah and Aimee’s<br />
efforts, he donated his earnings to their head<br />
shave instead.<br />
®<br />
<br />
Jamie Crysdale, offensive<br />
lineman for the Calgary<br />
Stampeders, led his<br />
teammates in a head<br />
shave to support 3-yearold<br />
Grace, Jamie’s daughter,<br />
who was diagnosed<br />
with cancer. More than<br />
20 players, staff and<br />
management participated<br />
along with Stamps fans<br />
who donated spare<br />
change after a game for a<br />
total gain of $15,000.<br />
Sarah and Aimee<br />
also baked 122<br />
dozen cookies to<br />
raise funds for<br />
KCCFA. After<br />
selling loads of<br />
cookies at a<br />
Saturday evening<br />
mass, the girls<br />
were worried<br />
that they didn’t<br />
have enough<br />
cookies for the Sunday morning masses, so<br />
they stayed up until 4 a.m. baking another 22<br />
dozen! The result was a sweet $5,000 treat.<br />
Generosity of Spirit<br />
Award<br />
Congratulations to<br />
Wayne Chiu, president,<br />
Trico Homes, on his 2004 Generosity of Spirit Award. The<br />
awards are presented to ordinary people who have made<br />
extraordinary contributions of time, leadership and financial<br />
support to the community. Wayne has done all of that and<br />
more for KCCFA. We were proud to nominate him in the<br />
category of Outstanding Small Business Philanthropist.<br />
Red Deer College Rallies around Maggie<br />
Maggie Hamilton, cancer survivor, having<br />
already lost her hair through treatment,<br />
decided to talk her fellow classmates into<br />
shaving their heads! Not only did she succeed<br />
in recruiting several school friends, she also (to<br />
the astonishment of many of her colleagues)<br />
convinced Red Deer College president Ron<br />
Woodward to shave his head. A very smart<br />
move Maggie, with a $17,000 payoff.<br />
Eleanor and Wayne Chiu demonstrate<br />
community spirit<br />
The awards are part of Philanthropy Week organized by the Association of Fundraising Professionals (AFP).<br />
AFP represents 26,000 members in more than 170 chapters throughout the world, working to advance<br />
philanthropy through advocacy, research, education and certification programs.<br />
Trico Homes is in the business of “Building Strong Communities.” Wayne and his team take this<br />
role seriously, whether they are building homes or contributing time and energy to KCCFA.<br />
Trico’s support for KCCFA is invaluable and we salute Wayne Chiu’s leadership and generous<br />
spirit.<br />
Photo: Monique de St. Croix, www.uniqueperspectives.ca<br />
Grace checks out dad’s new<br />
doo and the Stampeder gang<br />
shows off their new shine.<br />
Congratulations to<br />
our friends Don,<br />
Joanne and the<br />
Coach on receiving a<br />
Gold Ribbon Award<br />
for Community<br />
Service from the<br />
Canadian Association<br />
of Broadcasters. Don,<br />
Joanne & The Coach<br />
won the coveted<br />
award for their work<br />
on behalf of the<br />
Foundation...with<br />
countless hours of<br />
dedication and<br />
commitment, the Lite<br />
96 team has supported<br />
KCCFA in<br />
many ways.<br />
www.kidscancercare.ab.ca<br />
3
COCA Conference<br />
Children’s Oncology Camping Association (COCA) Conference<br />
We were honoured to host the 22nd Annual Children’s Oncology Camping<br />
Association (COCA) International Conference in November with 163 delegates<br />
in attendance from the US, Ireland and Canada. A terrific group of volunteers<br />
made this conference a success. Delegates enjoyed the sessions in music therapy,<br />
fostering hope, kinesthetic learning and technology at camp.<br />
Healing<br />
Dr. Stan Whitsett, Psychologist specializing in pediatric oncology from the University<br />
of Washington, presented a session on the psychosocial impacts of childhood<br />
cancer. Dr. Whitsett addressed the dynamic needs of childhood cancer survivors<br />
and the value of the camp experience for children facing childhood cancer.<br />
COCA delegates along<br />
with volunteer host, Roy,<br />
enjoy the festivities at<br />
Heritage Park<br />
Hope<br />
Dr. Len Bruton and his daughter Nicole, a KCCFA staff member and a cancer survivor, shared<br />
their experience and suggestions for helping families to make it through their personal challenges<br />
with childhood cancer.<br />
Humour<br />
Cheryl Oberg, a.k.a. ‘Miss Loosie’, a professional clown and President of the Canadian Laughter<br />
Association, introduced delegates to the power of laughter in healing the mind, body and soul. We<br />
were also fortunate to have Jonathan MacDonald, a stand up comic and KCCFA parent, provide a<br />
short routine laughing at cancer through the eyes of a parent.<br />
Greetings from Tokyo<br />
Erie Yamashita is a Japanese student who attended Camp SunMaker for one month this past summer.<br />
She is a leukemia survivor who wanted to observe our camping programs as part of her university thesis.<br />
From Tokyo, Japan, I want to send my big love and much appreciation to everyone that I met in<br />
Canada this summer.<br />
In Japan, we have only a very short history in offering a pediatric cancer camp — we started seven<br />
years ago and hold the camp at different sites each year. In northern Japan, one permanent camp<br />
is in the planning stage, but I think it will take more than five years to be completed.<br />
When I arrived in Calgary on July 28, I was so happy to arrive at last, but also I was little bit<br />
nervous because I wondered if I could do well for a whole month at camp. I didn’t need to worry<br />
at all. My stay at the camp passed so fast and it was full of happiness and joy. I met so many<br />
wonderful people. I enjoyed every minute there. I really wish I could be there again!<br />
Erie, shown here with<br />
Nicole, fondly remembers<br />
her visit to Calgary.<br />
The most wonderful event for me was the dance each Friday night. The children were so cute in<br />
their pretty dresses and we laughed and had so much fun. I also enjoyed climbing and the giant<br />
swing. I rafted for the first time in my life. It was so exciting. The nights were so clear, I have never<br />
seen so many beautiful stars in my life. I wished I could have kept seeing stars all night. I really<br />
respect the wonderful nature of Canada.<br />
I asked to join the camp for my graduation thesis and now I’m writing the last part. When I’m<br />
writing I always remember my wonderful days, wonderful staff members and the campers. I think I<br />
am writing a nice thesis because the camp was so wonderful.<br />
I hope to visit Canada again soon, Erie.<br />
4<br />
www.kidscancercare.ab.ca
From the Desk of the CEO<br />
<strong>2005</strong> promises to be another exciting year for KCCFA. We have an opportunity to play an<br />
integral role as a funding partner in a research space dedicated to pediatric oncology research.<br />
With the community behind us, we are determined to raise $1.5 million of a $4.5 million floor in<br />
the new Health Research Innovation Centre.<br />
Encouraged by Dr. Chris Brown, director of the Southern Alberta <strong>Cancer</strong> Research Institute, the<br />
KCCFA board of directors committed to playing an active part in the creation of this historic<br />
centre. This centre will become a core element in an international world-class phase one consortium<br />
as it brings together the people, facilities and ideas. I truly believe the dream of finding a cure<br />
for many childhood cancers will be so much closer because of this centre. When it opens in 2006,<br />
KCCFA will take its place among the many community partners that combined their dreams to<br />
make it a reality.<br />
Recently, I was honoured and humbled to receive a Meritorious Service Medal from Her<br />
Excellency the Right Honourable Adrienne Clarkson, Governor General of Canada. I<br />
accepted this decoration on behalf of the <strong>Kids</strong> <strong>Cancer</strong> <strong>Care</strong> Foundation of Alberta because I know<br />
that I did not achieve this recognition on my own. Many people have contributed their time,<br />
energy and money to the fight against childhood cancer. I thank each of you for your support and<br />
wear this medal with pride.<br />
Keeping the kids at the forefront of everything we do is made easier when we listen to their<br />
stories and learn from them. Katherine Douglas is a young woman who has also realized the<br />
benefits of sharing her personal cancer story – read more about Katherine in this issue.<br />
Another young woman who told her story – many times – this year, is our outgoing spokeskid,<br />
Laura Cuthbertson. For Laura and her family, dad John, mom Dawn and sister Emily, being the<br />
KCCFA 2004 spokeskid was a family affair. When Laura wasn't able to tell her own story, her<br />
family members stepped up and told theirs. Audiences everywhere got a true picture of what it is<br />
like to live with childhood cancer. Thank you Cuthbertsons! And, a quick welcome to Jeffery<br />
Eden, our <strong>2005</strong> Spokeskid – I know that he will bring his own touch to this important job. You<br />
can read more about Jeffery and his new role in the spring issue.<br />
Christine Wandzura<br />
Happy New Year<br />
from the staff of<br />
the <strong>Kids</strong> <strong>Cancer</strong><br />
<strong>Care</strong> Foundation<br />
of Alberta<br />
Co-chairing National Philanthropy Week in 2004 was a powerful experience<br />
for me. Turning the spotlight on seven individuals and companies<br />
that demonstrate how we can be philanthropists in our own way was a<br />
great honour. Congratulations to Wayne Chui and his team at Trico<br />
Homes for their efforts in making our community a better place to live.<br />
I look forward to working with two new members of the KCCFA board<br />
of directors, Brad Stevens and Wayne Berg. Brad and Wayne both<br />
bring valuable skill sets to the board. I have known Wayne for many<br />
years; he is a banker, community supporter and a parent of a long-term<br />
cancer survivor, Jillian. Brad brings a love of children – having four of his<br />
own – and a desire to lend his business acumen to a worthy cause. We<br />
are fortunate to have the leadership of both in helping direct the future<br />
of the Foundation.<br />
From the Board and Staff of the <strong>Kids</strong> <strong>Cancer</strong> <strong>Care</strong> Foundation the very best to everyone during<br />
this holiday season. Thanks for your part in making the first 10 years so remarkable! Here’s to<br />
the next 10 years and to the hope of a brighter tomorrow for children with cancer<br />
and their families.<br />
Christine Wandzura, M.S.M., CFRE, Chief Executive Officer<br />
Send me a note; drop me a line, at wandzura@kidscancercare.ab.ca<br />
Left to Right: Top: Ryan<br />
Murray, Barb Smeltzer, Mike<br />
MacKay, Middle: Trish<br />
Matheson, Candice Martin,<br />
Wylma Williams, Bottom:<br />
Nicole Bruton, Christine<br />
Wandzura and Kristie<br />
Pshyk...and honorary staff<br />
member Carmen.<br />
www.kidscancercare.ab.ca<br />
5
Camp & Community<br />
Lance Armstrong: Glad for Every Day<br />
By Leon Lau, Mentors for Life<br />
Six-time Tour de France winner and cancer survivor Lance Armstrong brought his Tour of Courage<br />
fundraising event to Calgary in September 2004. One of our own cancer survivors, Leon Lau, met and<br />
talked with Lance during that visit...here is his account.<br />
After many weeks of hoping, John Kunka and I heard that we would be among the lucky few to<br />
meet and chat with our fellow cancer survivor and world-famous cycling superstar, Lance<br />
Armstrong.<br />
Shortly after 4 p.m. on Saturday, September 25, thirteen members of<br />
KCCFA’s Mentors for Life program, along with current patients<br />
and staff of the Tom Baker Centre, greeted Lance – not with loud<br />
applause, but with silent reverence.<br />
Mentors for Life share<br />
some time with Lance<br />
Armstrong<br />
"...because the<br />
way you live<br />
your life, the<br />
perspective you<br />
select, is a<br />
choice you<br />
make every<br />
single day you<br />
wake up. It's<br />
yours to<br />
decide."<br />
– Lance Armstrong,<br />
from his book, Every<br />
Second Counts.<br />
Dr. Chris Brown introduced us and Lance started fielding questions.<br />
We asked him what his thoughts were upon his initial diagnosis and<br />
during treatment. We discovered that his battles were long, hard<br />
and similar to our own. He told us that his resolve to get well was<br />
similar to his determination to win cycling races: he never gave up<br />
and took encouragement from every piece of positive news.<br />
Although he had moments of doubt about beating cancer, he quickly<br />
banished those thoughts. He would not let bad news disappoint<br />
him; it only made him strive harder to get better and achieve his<br />
goals.<br />
While we asked him to autograph many books and cycling paraphernalia, we also gave him a<br />
KCCFA pin and a Mentors for Life sweatshirt. We also presented him with our very own “yellow<br />
jersey” signed by all the mentors – a yellow <strong>Cancer</strong> Survivor T-shirt used in the Canadian <strong>Cancer</strong><br />
Society Relay for Life celebrations. Since the Tour de France leader traditionally wears a yellow<br />
jersey, we thought it appropriate to give him a yellow jersey for leading all cancer patient and<br />
survivors through their battles.<br />
Our time with Lance was over all too soon, however, our encounter with him inspired us to<br />
achieve our goals. If a fellow cancer survivor can win the most difficult sporting event in the world<br />
six times in a row, then surely we can all achieve our own goals if we stay focused and work<br />
towards them.<br />
Summer Camp Dates<br />
The dates have been set for this Summer’s Camp programs.<br />
SunDance:<br />
SunMaker:<br />
July 11 – 15, and July 18 – 22, Edmonton<br />
July 25 – 29, and August 1 – 5, Calgary<br />
July 11 – 16, July 18 – 23, July 25 – 30, August 1 – 6, Camp Horizon<br />
SunSeeker is a new teen adventure camp. We will be running 3, 10-day summer sessions as<br />
well as weekend outings in May and June. Watch for more details on these exciting new camps:<br />
Whitewater Adventure Camp: July 1 – 10<br />
Rock Climbing and Ecotourism Camp: August 8 – 17<br />
Multi-sport Camp: August 22 – 31<br />
6<br />
www.kidscancercare.ab.ca
Notice to All Families<br />
As a means to cut down on mailing costs we have started to use e-mail to send out notices for<br />
upcoming programs and special events. We are also planning to start a monthly e-news to<br />
highlight KCCFA programs and events. If you have not been receiving messages<br />
regarding programs over the past 2 months, we probably don’t have a current<br />
email address for your family. Please send your email address along with any change<br />
in your mailing address or phone number directly to: baptiste@kidscancercare.ab.ca<br />
Parents try on a new set of<br />
skis at a weekend family<br />
retreat.<br />
<strong>2005</strong> Bereaved Family Retreat<br />
This spring KCCFA will host a weekend retreat for bereaved families. This<br />
initiative was created to support the entire family in dealing with the stress and<br />
social issues that arise when a family loses a child to cancer. The retreat will offer<br />
a break for the parents, fun and activities for the children and teens. Family<br />
members will be able to connect with others facing similar challenges. Parents<br />
will be treated to relaxation treatments and information sessions. Further<br />
details will be available on our website in the spring.<br />
For more information about the family retreat contact Mike MacKay at 403.216.9210, ext. 223 or<br />
mackay@kidscancercare.ab.ca.<br />
Fall SunKeeper Weekend<br />
52 teenagers and 13 volunteers explored their five senses at KCCFA’s annual Fall SunKeeper<br />
Retreat. With a “sensational” theme, participants got a taste of the world using all of their senses.<br />
Wearing blindfolds, the kids ate interesting foods found in nature. Hmmm, worms anyone? Learning<br />
sign language, and exploring music with their hands gave campers a different perspective.<br />
Following tradition, campers ended the retreat with a dance and magical moments campfire.<br />
Jacob with his catch and<br />
soon-to-be released.<br />
This was a very successful weekend and we look forward to the upcoming SunKeeper Retreat in<br />
April <strong>2005</strong>. We would like to extend a huge thank you to Easter Seal Camp Horizon, our volunteers<br />
and phenomenal nurses who made the weekend so special.<br />
Research Participants Wanted<br />
We have two opportunities for families to participate in research studies. Below is a brief description of<br />
each study. Please get in touch with the appropriate contact person if you would like more information.<br />
TREK: Adventures in Physical Activities<br />
Looking for a little extra fun this winter? Thinking about gearing up for those summer activities?<br />
Then, join us on a journey where you will explore a wide variety of physical activities in a supportive,<br />
group environment. Project TREK is a research project being conducted at the University<br />
of Calgary. Our goal is to assess the impact of physical activity on the physical, social, and<br />
emotional well-being of adolescent cancer survivors. Program starts March <strong>2005</strong>. This program<br />
is funded in part by KCCFA. For more information call: Melanie Keats, PhD Candidate at (403) 210-<br />
8482 or keatsm@shaw.ca<br />
Pediatric Oncology Internet Study<br />
The Department of Psychology at the University of Alberta is looking for volunteers for a short<br />
survey regarding parents' use of the Internet. If you are a parent (or a primary caregiver) of a<br />
child diagnosed with any form of cancer, and have experience using the World Wide Web, we<br />
would like to hear from you. The questionnaire will take no more than an hour's time and may be<br />
completed at your convenience. The results of this study will be used to educate parents and<br />
caregivers regarding the safe use of on-line information for children's health. If you are interested<br />
in participating, please contact Dr. Matthew Stephens, Dept. of Psychology at (780) 492-8827 or by e-<br />
mail at matthew.stephens@ualberta.ca.<br />
Young Adult<br />
Conference –<br />
February 17-20th,<br />
<strong>2005</strong><br />
If you are in high<br />
school or beyond<br />
and have had cancer<br />
touch your life, you<br />
will be interested<br />
in this weekend<br />
designed especially<br />
for you. Mark your<br />
calendars and stay<br />
tuned for more info.<br />
www.kidscancercare.ab.ca<br />
7
Perspectives<br />
The emptiness<br />
that comes from<br />
not being able to<br />
participate in<br />
many activities<br />
as a kid has<br />
allowed me to<br />
look at life from<br />
a whole new<br />
perspective.<br />
I am 16 and a cancer survivor for six years. I was 10 when I was<br />
diagnosed with osteogenic sarcoma in my left arm. I was the first girl in<br />
Canada to undergo a dramatic surgery where my bone was replaced<br />
with a metal rod. I can’t hold my arm up or to the side or any major<br />
movement. The emptiness that comes from not being able to participate<br />
in many activities as a kid has allowed me to look at life from a<br />
whole new perspective. I try to help kids with cancer or cancer organizations<br />
in any way I can.<br />
Last year, my friends and I raised money for cancer research and the<br />
Make a Wish Foundation. We put tents on our school roof and didn’t<br />
come down until we raised a great deal of money! It gave me the opportunity to share my story<br />
with the whole school and the community through the media coverage. That experience gave me<br />
the confidence to express my feelings and share my experience with many people.<br />
Friends and grade 11 classes at St. Mary’s High School in Taber are my focus at the moment. I am<br />
developing a love for art and music, plays, movies and other forms of entertainment.<br />
My future goals are pretty simple. I want to travel with friends, go backpacking through Europe,<br />
and visit Italy and many other places. I plan to major in nursing then specialize in oncology at a<br />
post-secondary institution. I want to give back what was given to me by following my<br />
dream to become a nurse.<br />
KCCFA has impacted me in more ways than one. The camp experience and meeting other kids<br />
that have been through the same long challenge that I went through was an amazing gift. It gave<br />
me a sense of belonging and hope. KCCFA put a smile on my face and gave me many happy<br />
moments to share with friends.<br />
My experience with cancer is with me every day. I only have to look at my arm. I look back at the<br />
photos and remember my experience. It helps me explain to other people what I went through,<br />
and what other people go through. Words can only do so much, but a picture can say it without<br />
any words at all.<br />
Katherine Douglas<br />
Friends Wanted<br />
...sport’s tournaments, fun runs, bake sales, canoe-a-thon, spell-athons,<br />
bike-a-thons, golf tournaments, raffles, jelly bean contests,<br />
handmade arts and crafts...<br />
The Bearberry motorcycle<br />
ride is just one example of<br />
a unique community<br />
fundraiser.<br />
Community events help fund our research and family-focused programs. If you<br />
want to help – why not organize a community event? Bake sales, tennis<br />
tournaments, even hosting a gala – simple or elaborate, it’s up to you!<br />
For more ideas and information on how to get involved contact Kristie Pshyk at<br />
216-9210 ext 225 or pshyk@kidscancercare.ab.ca.<br />
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www.kidscancercare.ab.ca
Climbing our Own Mountains<br />
Photo by Bruce Kirkby, Copyright © Alan Hobson, 1997<br />
Mount Everest<br />
As a salute to the Foundation’s volunteers and key supporters,<br />
Alan Hobson, adventurer and cancer survivor, spoke at<br />
our 10th Anniversary event. Alan’s message was simple, yet<br />
powerful – hold on to your dreams and persevere despite the<br />
challenges that come our way.<br />
In 1997, with sheer determination, Alan reached the summit of<br />
Mount Everest after years of planning, training and two previous<br />
summit attempts. In 2000, he began to climb his “medical<br />
mountain” – his battle with leukemia fortified by a stem cell<br />
transplant from his brother.<br />
Alan says that climbing his medical mountain was, by far,<br />
the greater challenge. In doing so, he drew upon the same<br />
strengths that got him to the top of Everest – perseverance,<br />
courage, focus, teamwork and belief in oneself.<br />
His message of hope resonated with the audience as he shared his personal story of<br />
triumph over cancer. At diagnosis, 90 per cent of the cells in his bone marrow were<br />
cancerous. Today, he is one of fewer than a dozen people in the world to have achieved an<br />
elite level of fitness after receiving a blood stem cell transplant for acute leukemia.<br />
Alan’s inspirational story is important for donors and volunteers too. It is easy to be<br />
sidetracked by all of life’s demands, but by keeping our personal visions in mind we can<br />
achieve our goals. For all of us who are a part of KCCFA – donors, volunteers, staff,<br />
doctors, nurses and researchers – we have to believe firmly in the possibility of a world without<br />
childhood cancer and hold on to that as we work day-to-day to improve the lives of young people<br />
affected by cancer.<br />
A sincere thank you to the organizations that made this event possible, Petro-Canada, Enbridge<br />
Inc., FirstEnergy Capital, Dome Brittania, and Canada Safeway.<br />
Trish Matheson, CFRE, Director of Development & Communications<br />
Contact me at 403.216-9210, ext 224 or by e-mail at matheson@kidscancercare.ab.ca<br />
Laura Cuthbertson, Alan<br />
Hobson and Christine<br />
Wandzura all share in our<br />
hope for a cure.<br />
It’s not the<br />
destination that<br />
counts, it’s the<br />
journey.<br />
– Alan Hobson<br />
Climb Back from <strong>Cancer</strong><br />
Alan and his wife Cecilia have recently published a book that may be of interest to families<br />
and supporters. “Climb Back From <strong>Cancer</strong>: A Survivor and <strong>Care</strong>giver’s Inspirational Journey”,<br />
is available through our resource lending library. There are also a limited number of<br />
books for sale through the KCCFA office. Call the office at 403.216.9210 for more details.<br />
Where There's a Will, There's a Way.<br />
Many people continue to put off the minor inconvenience of making a Will. But the consequence<br />
of not having a Will can be a major problem to the family and friends you leave behind.<br />
We encourage you to make a Will today...your family will appreciate it. The charities you support<br />
will appreciate it. And you will appreciate the peace of mind knowing your loved ones are taken<br />
care of.<br />
If you would like information on how you can provide a bequest to KCCFA, contact your financial advisor,<br />
or Trish Matheson at 403.216.9210 ext. 224.<br />
www.kidscancercare.ab.ca<br />
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Board Profile — Brad Stevens<br />
Why did you choose to support KCCFA by becoming a board member?<br />
That question has a two-part answer. I work for The City of Calgary and had just finished<br />
my MBA when the city manager, Owen Tobert, challenged me to use the time I had set<br />
aside to do my MBA in a meaningful way. He had a good point, if I didn't use the free time<br />
that I now had, I would probably just fritter it away. Dr. Max Coppes was part of my MBA<br />
class; when he heard of the challenge Owen had set before me, he encouraged me to<br />
become involved with KCCFA.<br />
What do you bring to the Board?<br />
Quite frankly, first of all, I would like to learn from the board and get a sense of where I<br />
best fit. I think one of my strengths is long-range strategic planning and I hope to bring that<br />
skill to the table. I want help the organization continue its work in providing leading edge<br />
programs that will help children and their families living with cancer.<br />
What is your background?<br />
Giving of yourself<br />
is an investment<br />
that will come<br />
back tenfold.<br />
I began working with The City of Calgary in 1992 as an articling student to the City Solicitor after<br />
graduating from the University of Calgary’s Law School. I was admitted to the bar by then Chief<br />
Justice Moore and I joined the litigation division of the department. Since that time, I've had<br />
various management positions with The City of Calgary in the Board of Commissioner’s Office,<br />
Executive Office and Environmental Management.<br />
Brad, his wife Connie and their four children, Jordan, 13, Taylor, 10, Madison, 7 and Chase, 5, enjoy many<br />
hours of fun at Lake Sundance. Summer and winter, Brad and his family can be found on or near the lake.<br />
Brad also coaches several children's baseball and basketball teams.<br />
Volunteer Profile — Roy Roth<br />
“ I expect to pass through this world just once. Any good therefore that I can do or any<br />
kindness that I can show to any fellow creature, let me do it now; let me not defer it or<br />
neglect it, for I shall not pass this way again” – Anonymous<br />
More than just an adage, these words act as a guiding mission statement for one of<br />
our most committed volunteers – Roy Roth. Working as an EMT with the Medicine<br />
Hat Ambulance Service, Roy came across one of our camp volunteer posters and<br />
decided to get involved. That was 1998; six years later Roy has spent over 1,200<br />
hours with KCCFA, from camp to fundraising events, he has done it all.<br />
Roy Roth with Child Life<br />
Therapist, Sandy Baggott<br />
Roy credits his parents for his desire to always do his best, “if you are going to do<br />
it, do it well, if not, don’t bother coming out.” His strong belief in KCCFA enables<br />
him to get the most out of his volunteer commitments, producing what he describes<br />
as “many magical moments.” He feels that even the smallest contribution<br />
can make an enormous difference in someone’s life, “from seeing a child smile, to learning from<br />
like-minded people, every moment has the opportunity to produce magic.”<br />
With the pace of life these days many people struggle to find the time to get involved with their<br />
community, but Roy doesn’t believe that life’s responsibilities should deter anyone from<br />
contributing, “giving of yourself is an investment that will come back tenfold.” Truly<br />
words to live by.<br />
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www.kidscancercare.ab.ca
Coming Events<br />
This dazzling event promises to be a fun night out for you and your<br />
friends, featuring a champagne reception, dinner, silent and live<br />
auction and dancing to the Dino Martinis.<br />
Parents of children with cancer organize this annual<br />
event that raised $120,000 for childhood cancer<br />
research last year. At the event, you will hear about<br />
how your contribution to pediatric oncology research<br />
is making a difference right here in Calgary.<br />
WHAT: 2nd Annual Parents Quest for the<br />
Cure Gala<br />
WHERE: Sheraton Eau Claire<br />
WHEN: Saturday, February 5, <strong>2005</strong><br />
6 PM – Champagne Reception, Dinner & Dancing to follow<br />
HOW: Tickets – $100 each, contact:<br />
Lisa Clarke Potts 403.284.4492<br />
Kathleen Kirzinger 403.249.5783<br />
Kathy Harris 403.238.0434<br />
"The place to<br />
improve the<br />
world is first in<br />
one's own heart<br />
and head and<br />
hands, and<br />
then work<br />
out-ward from<br />
there."<br />
– Robert M. Pirsig<br />
Silent or live auction donations are welcomed, please contact Lisa, Kathleen or Kathy to contribute.<br />
Don’t delay in ordering your tickets. Last year’s event sold out!<br />
Show Your Heart<br />
On February 12 to 28, <strong>2005</strong> Canada Safeway stores<br />
will feature their Show Your Heart campaign. KCCFA<br />
is proud to be a Because We <strong>Care</strong> Charity at the<br />
following locations: Dalhousie, Beacon Heights,<br />
Glenmore Landing, West Lethbridge and Cochrane.<br />
Customers can make a recommended donation of $3<br />
and receive a Show Your Heart coupon book, which contains over $150 worth<br />
of in-store savings. It’s great value and all proceeds go to charitable organizations<br />
in your community.<br />
Three Cheers for the Hitmen...and Cardel Homes<br />
Cardel Homes has pledged $100 for KCCFA for every goal the<br />
Hitmen score. The Hitmen are off to a great start this season and<br />
the kids will be the big winners this year!<br />
Beacon Heights Safeway<br />
employees celebrate their<br />
campaign success in 2004.<br />
Volunteer Development<br />
A new year brings new resolutions and here at KCCFA the volunteer program has created a few<br />
of our own. Look for exciting volunteer development courses, program expansions, new opportunities<br />
and much more! The monthly volunteer email newsletter will bring you all the details.<br />
There has never been a better time to get involved!<br />
www.kidscancercare.ab.ca<br />
11
Board of Directors<br />
Jack Perraton CM, QC, Chair<br />
Bill Smith QC, Secretary<br />
Wayne Berg<br />
Pattie Culver<br />
Sean Durfy<br />
Cindy Gibson<br />
A. Joni Hughes<br />
Dr. Randy Johnston<br />
Bob Millar<br />
Brad Stevens<br />
Dr. Doug Strother<br />
Staff Team<br />
Christine␣ Wandzura,<br />
M.S.M.,CFRE<br />
Chief Executive Officer<br />
Christopher Baptiste<br />
Program Assistant (part-time)<br />
Nicole Bruton<br />
Residential Camp Coordinator<br />
Mike MacKay<br />
Camp & Community Outreach Director<br />
Candice Martin<br />
Development Associate<br />
Trish Matheson, CFRE<br />
Director of Development &<br />
Communications<br />
Ryan Murray<br />
Special Events Assistant (part-time)<br />
Kristie Pshyk<br />
Community Events Manager<br />
Barbara Smeltzer<br />
Volunteer Manager<br />
Wylma Williams<br />
Donor Relations Coordinator<br />
Volunteer Opportunities<br />
KCCFA Casino – February 24 and 25, Casino Calgary<br />
Don’t wait any longer to sign up for this fun event! Positions include cashiers, chip runners and count<br />
room volunteers with day and evening shifts available.<br />
Camp Volunteers<br />
Even though it is the middle of winter, believe it or not camp is around the corner! SunMaker,<br />
SunRise, and our newest program SunSeeker (replaces SunMaker Extreme) are airing out the sleeping<br />
bags to welcome our <strong>2005</strong> volunteers! Don’t miss the opportunity to get in touch with your inner<br />
child this summer – we are looking for volunteers to share their talents, love of children and, most<br />
importantly, their sense of fun!<br />
Young Adult Conference<br />
KCCFA is hosting our Young Adult Conference from February 17th to 20th, <strong>2005</strong> at the Sheraton<br />
Cavalier NE in Calgary. The four day conference will explore personal development for ages 16 to 25<br />
who have been affected by cancer. We are looking for oncology and registered nurses, conference<br />
assistants and evening chaperones to provide assistance over the four days. Deadline to apply is<br />
January 14th.<br />
Interested in these opportunities or want to chat about other ways to get involved, contact Barb Smeltzer<br />
at 403.216.9210 ext 222 or smeltzer@kidscancercare.ab.ca.<br />
National Volunteer Week April 17 to 23, <strong>2005</strong><br />
Across Canada, thousands of organizations rely on the constant commitment and dedication of<br />
volunteers. National Volunteer Week is a wonderful way to publicly recognize our country’s 6.5<br />
million volunteers who give of themselves in many ways.<br />
At KCCFA we are keenly aware of the enormous value of our volunteers. Simply put, we could<br />
not run our programs without volunteers contributing their time and talent. From leading camp<br />
activities, to shaving heads, to organizing the<br />
office...volunteers are the heart of this<br />
organization. On behalf of the kids and<br />
families who benefit from your support, thank<br />
you!!<br />
If you would like to learn more about volunteering<br />
with KCCFA, please contact Barb Smeltzer at<br />
403.216-9210, ext. 222 or by e-mail at<br />
smeltzer@kidscancercare.ab.ca<br />
If you are interested in other initiatives happening<br />
around the country please visit<br />
www.volunteercanada.ca for more information.<br />
RETURN UNDELIVERABLE CANADIAN ADDRESSES TO:<br />
205, 609 - 14th Street NW<br />
Calgary, Alberta T2N 2A1<br />
Phone: 403.216.9210<br />
Fax: 403.216.9215<br />
Toll Free: 1.888.554.2267<br />
email: staff @kidscancercare.ab.ca<br />
www.kidscancercare.ab.ca<br />
Newsletter Editor, Lynda Phelan<br />
Camp & Community Research Clinical Support<br />
Rolanda Ostrom<br />
Community Events Coordinator<br />
Wylma Williams<br />
Donor Relations Coordinator<br />
Mailings: We appreciate the opportunity to communicate with you about the activities of the Foundation; however, if you would like to alter the amount or type of mail you receive,<br />
please call Wylma at 403.216.9210, ext. 227 or e-mail at williams@kidscancercare.ab.ca.<br />
Canadian Publications<br />
Agreement # 4004962<br />
12<br />
www.kidscancercare.ab.ca