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National Action Plan for Bone Health - Osteogenesis Imperfecta ...

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Developing a <strong>National</strong> <strong>Action</strong><br />

<strong>Plan</strong> <strong>for</strong> <strong>Bone</strong> <strong>Health</strong><br />

Assessing Progress and Charting a Course<br />

In 2008, the <strong>National</strong> Coalition <strong>for</strong> Osteoporosis and Related <strong>Bone</strong> Diseases (also<br />

known as the ‘<strong>Bone</strong> Coalition’) commissioned several studies, including an environmental<br />

scan and a literature review, to assess progress made toward reaching the goals<br />

of the 2004 Surgeon General’s report. In interviews with 24 opinion leaders, the study<br />

found that while progress had been made in building the science base, much less had<br />

been accomplished in terms of increasing awareness, integrating messages, or changing<br />

paradigms.<br />

Environmental Scan Key Findings<br />

Positive achievements included the following:<br />

n Development of pharmaceuticals to maintain or increase bone density<br />

n Use of DXA screening<br />

n Advances in the assessment of risk factors, such as development of the FRAX® tool<br />

n Increased recognition of the importance of vitamin D in promoting bone health<br />

n Greater understanding of the factors regulating bone cells and development of<br />

monoclonal antibody therapy<br />

Negative findings included the following:<br />

n Little has been done to change the treatment paradigm<br />

n Public education programs have been inadequate in raising public awareness<br />

n <strong>Health</strong> care professionals receive inadequate training about bone health<br />

n Little has been done to integrate messages about bone health with broader messages about<br />

the importance of healthy lifestyles in preventing an array of chronic disease problems<br />

<strong>National</strong> Coalition<br />

<strong>for</strong> Osteoporosis and<br />

Related <strong>Bone</strong> Diseases<br />

n American Society <strong>for</strong> <strong>Bone</strong><br />

and Mineral Research<br />

n <strong>National</strong> Osteoporosis<br />

Foundation<br />

n <strong>Osteogenesis</strong> <strong>Imperfecta</strong><br />

Foundation<br />

n The Paget Foundation<br />

<strong>National</strong> <strong>Action</strong> <strong>Plan</strong> <strong>for</strong> <strong>Bone</strong> <strong>Health</strong>:<br />

Recommendations from the Summit <strong>for</strong> a <strong>National</strong> <strong>Action</strong> <strong>Plan</strong> <strong>for</strong> <strong>Bone</strong> <strong>Health</strong><br />

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