National Action Plan for Bone Health - Osteogenesis Imperfecta ...

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PRIORITY AREA #4: ENHANCE RESEARCH, SURVEILLANCE, AND EVALUATION Strategy Action Steps Implementer/ Stakeholders Continue and expand research now underway, and find ways to make more effective use of existing research Collect and analyze data to better understand who is at risk and improve prevention, diagnosis, and treatment Evaluate whether existing public education programs work Continue research at all levels (i.e., basic, clinical and translational research) Translate findings and developments to the field for application to treatment and care Conduct research to understand how clinical and pharmaceutical research translates into the community setting Conduct research to learn more about racial, socioeconomic, and gender differences in bone health and disease Identify gaps and opportunities in current data collection, reporting and evaluation Analyze existing data Conduct gap analysis Utilize surveys to collect data Continue to include existing questions about bone health in federal and private surveys Support efforts to include bone health issues in all major national surveys and national goals related to health and well-being (e.g., NHANES, CDC Healthy People 2020 goals, etc.) Develop new questions to address emerging issues and research questions Collect baseline data through available mechanisms – for example: Pharmaceutical prescriptions written for osteoporosis prevention and treatment medications (tracked by industry or pharmaceutical companies) Number of DXA tests completed each year (Medicare) Vitamin D and calcium sales (by survey or by sales) Fracture rates (Medicare) Awareness, knowledge, beliefs, and practices (public opinion surveys) Inventory of public education programs conducted at all levels Coordinate with the National Chronic Disease Directors and the National Osteoporosis Foundation Include aspects such as social marketing products and ancillary materials, target audiences, key messages and themes, action steps, and the results of any evaluation measures Include any major public policy or legislative measures undertaken that would support or promote the measures in the social marketing campaign Conduct evaluations of existing programs to determine what works Examine effective models used for other chronic conditions (e.g., diabetes, breast cancer, substance use, HIV/AIDS) specific populations (e.g. people of color, men), and specific behaviors (e.g., injury prevention) Adapt for use with bone health Work with partners to highlight effective strategies Federal agencies charged with basic research Industry researchers Policymakers who influence funding Academicians and other researchers Professional and voluntary health organizations that sponsor social marketing programs, in tandem with groups that evaluate and study such programs Federal agencies charged with basic research Industry researchers Policymakers who influence funding Federal agencies Academicians and other researchers 34 National Action Plan for Bone Health: Recommendations from the Summit for a National Action Plan for Bone Health
Appendices A. Bone Health Summit Agenda B. Bone Health Summit Planning Committee C. Bone Health Summit Sponsors D. Bone Health Summit Participant List E. Resources: Bone Health Prevention and Education Programs National Action Plan for Bone Health: Recommendations from the Summit for a National Action Plan for Bone Health 35
Page 1: National Action Plan for Bone Healt
Page 4 and 5: Preface In June 2008, more than 150
Page 6 and 7: “Our understanding of bone health
Page 8 and 9: 4 National Action Plan for Bone Hea
Page 10 and 11: “…More than enough is known tod
Page 12 and 13: 8 National Action Plan for Bone Hea
Page 14 and 15: Summit for a National Action Plan f
Page 16 and 17: Priority One: Develop A Bone Health
Page 18 and 19: “There is a serious gap between w
Page 20 and 21: Build capacity of health care provi
Page 22 and 23: To maximize efforts, advocates shou
Page 24 and 25: the rates by which hip and other fr
Page 26 and 27: Find better ways to diagnose diseas
Page 28 and 29: the patient and arranged for a prim
Page 30 and 31: Continue basic research now underwa
Page 32 and 33: 28 National Action Plan for Bone He
Page 34 and 35: n n Take a multidisciplinary approa
Page 36 and 37: PRIORITY AREA #2: PROMOTE BONE HEAL
Page 40 and 41: Appendix A. Bone Health Summit Agen
Page 42 and 43: Panel I What Has Been Accomplished
Page 44 and 45: Cross-Disciplinary Work Group Sessi
Page 46 and 47: Appendix B. Bone Health Summit Plan
Page 48 and 49: Children’s National Medical Cente
Page 50 and 51: Office of Disease Prevention and He
Page 52 and 53: Appendix E. Resources: Bone Health
Page 54: 28 Cranney A, Horsley T, O’Donnel

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