National Action Plan for Bone Health - Osteogenesis Imperfecta ...
National Action Plan for Bone Health - Osteogenesis Imperfecta ...
National Action Plan for Bone Health - Osteogenesis Imperfecta ...
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Cross-Disciplinary Work Group Session<br />
12:45 p.m. Work Group Session and Lunch<br />
Cross-disciplinary work groups meet with facilitators over boxed lunches to develop<br />
strategies <strong>for</strong> addressing bone health priorities.<br />
2:30 p.m. Break<br />
2:50 p.m. Work Group Session<br />
Work groups continue discussions.<br />
5:00 p.m. Adjourn <strong>for</strong> Day<br />
Evening Reception<br />
6:00 p.m. Reception<br />
Participants will have the opportunity to network over light hors d’oeuvres.<br />
Friday, June 27<br />
Morning Briefing<br />
7:00 a.m. Continental Breakfast<br />
8:00 a.m. Introduction: Tracy Hart, <strong>Osteogenesis</strong> <strong>Imperfecta</strong> Foundation<br />
Moderator: Caswell A. Evans, Jr., D.D.S., M.P.H., University of Illinois<br />
at Chicago College of Dentistry<br />
The Power of Partnerships<br />
Presentations on how partnerships between and among stakeholder groups can be<br />
structured to implement the <strong>National</strong> <strong>Action</strong> <strong>Plan</strong>, with examples of effective<br />
partnerships <strong>for</strong> other chronic disease prevention collaborations.<br />
Amy B. Slonim, Ph.D., Centers <strong>for</strong> Disease Control and Prevention (CDC)<br />
<strong>Health</strong>y Aging Program-AARP<br />
Caswell Evans, Jr., D.D.S., M.P.H., University of Illinois at Chicago College<br />
of Dentistry<br />
8:25 a.m. Living with <strong>Bone</strong> Disease and Taking <strong>Action</strong><br />
Presentations from individuals living with osteogenesis imperfecta and other rare<br />
bone diseases.<br />
8:35 a.m. Discussion<br />
Jamie Kendall, Living with <strong>Osteogenesis</strong> <strong>Imperfecta</strong><br />
Charles Harles, Living with a Rare <strong>Bone</strong> Disease<br />
Summit <strong>for</strong> a <strong>National</strong> <strong>Action</strong> <strong>Plan</strong> <strong>for</strong> <strong>Bone</strong> <strong>Health</strong> June 26 – 27, 2008