Research in Action: Public - University of Calgary
Research in Action: Public - University of Calgary
Research in Action: Public - University of Calgary
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Empower<strong>in</strong>g people<br />
who have schizophrenia.<br />
A group <strong>of</strong> Calgarians with schizophrenia was given a rare chance to dramatically voice their feel<strong>in</strong>gs <strong>of</strong><br />
loss <strong>of</strong> control <strong>in</strong> deal<strong>in</strong>g with hous<strong>in</strong>g and medical service providers as part <strong>of</strong> a <strong>University</strong> <strong>of</strong> <strong>Calgary</strong><br />
research project. The group is shar<strong>in</strong>g their <strong>in</strong>sights, experiences and hopes through a dramatic read<strong>in</strong>g<br />
they co-wrote as part <strong>of</strong> an 18-month project led by Dr. Barbara Schneider <strong>of</strong> the U <strong>of</strong> C’s Faculty <strong>of</strong><br />
Communication and Culture.<br />
Team members performed the dramatic read<strong>in</strong>g dur<strong>in</strong>g <strong>Calgary</strong>’s Homeless Awareness Week, and will<br />
perform at the <strong>Calgary</strong> Health Region’s Conference on Health and Homelessness and at the Edmonton<br />
Schizophrenia Conference. In addition to the performance piece, team members used photographs to express<br />
what home means to them and produced an emotionally compell<strong>in</strong>g poster entitled Search<strong>in</strong>g for Sanctuary:<br />
What Home Means to Me.<br />
The challenge <strong>of</strong> give and take<br />
Schneider’s research revealed tension between care and control <strong>in</strong> the relationship between people with<br />
psychiatric disabilities and hous<strong>in</strong>g and medical service providers. The <strong>in</strong>dividuals want, need and appreciate<br />
the care they receive from family, mental health pr<strong>of</strong>essionals, government agencies and other service<br />
providers. Yet, to receive care, they feel they must submit themselves to a number <strong>of</strong> <strong>in</strong>trusive surveillance<br />
and coercive controls over many aspects <strong>of</strong> their lives. If not, they run the risk that care, services and hous<strong>in</strong>g<br />
will be withheld.<br />
The performance script is one <strong>of</strong> several results <strong>of</strong> the research project, which explored hous<strong>in</strong>g problems<br />
experienced by people struggl<strong>in</strong>g with psychiatric disabilities, and was funded by the Social Sciences and<br />
Humanities <strong>Research</strong> Council <strong>of</strong> Canada (SSHRC). The study team <strong>in</strong>cluded n<strong>in</strong>e members <strong>of</strong> the Peer Support<br />
Unsung Heroes Program at the Schizophrenia Society <strong>of</strong> Alberta, <strong>Calgary</strong> Chapter.<br />
“Through this study, the participants ga<strong>in</strong>ed a sense <strong>of</strong> themselves as competent <strong>in</strong>dividuals who could make<br />
a mean<strong>in</strong>gful contribution to society,” says Schneider. “They now have a voice to share their feel<strong>in</strong>gs, personal<br />
stories and challenges with access<strong>in</strong>g and reta<strong>in</strong><strong>in</strong>g hous<strong>in</strong>g. They expect to have a significant impact through<br />
presentations <strong>of</strong> the script, <strong>in</strong>fluenc<strong>in</strong>g service providers and legislators.”<br />
As co-researchers under Schneider’s guidance, the group selected the research topic, and conducted <strong>in</strong>terviews<br />
and focus groups with others who have schizophrenia and have experienced homelessness or hous<strong>in</strong>g <strong>in</strong>stability.<br />
The Mustard Seed M<strong>in</strong>istry and the <strong>Calgary</strong> Association <strong>of</strong> Self Help helped recruit additional participants. Tom<br />
Everrett, a graduate student <strong>in</strong> the Faculty <strong>of</strong> Communication and Culture, has produced a documentary film<br />
<strong>of</strong> the project, Hear<strong>in</strong>g Our Voices: A Participatory <strong>Research</strong> Project on Schizophrenia and Homelessness.<br />
Schneider speaks frequently about the research f<strong>in</strong>d<strong>in</strong>gs and writes papers and articles. She has begun a<br />
second phase <strong>of</strong> the project and is conduct<strong>in</strong>g <strong>in</strong>terviews with hous<strong>in</strong>g agencies to explore how hous<strong>in</strong>g<br />
services are provided.<br />
http://callhome.ucalgary.ca<br />
www.schizophrenia.ab.ca<br />
<strong>University</strong> <strong>of</strong> <strong>Calgary</strong> <strong>Research</strong> <strong>in</strong> <strong>Action</strong> 22