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Autumn 2011 Issue - University of Central Lancashire

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Feature Articles<br />

9<br />

Nursing Children at Home<br />

An Interview with Bernie Carter<br />

School <strong>of</strong> Health<br />

Pr<strong>of</strong>essor Mike Holmes, Head <strong>of</strong> the<br />

Graduate Research School, and Alison<br />

Naylor went to meet with Pr<strong>of</strong>essor Bernie<br />

Carter, following the recent publication <strong>of</strong><br />

Department <strong>of</strong> Health Report ‘NHS at Home:<br />

Community Children’s Nursing Services’.<br />

Mike joined Bernie in her <strong>of</strong>fice in Brook<br />

Building, and began with a key question<br />

– What is your research about?<br />

Broadly my research is to do with children<br />

and their experiences <strong>of</strong> being ill and in pain.<br />

This involves me researching with (not on)<br />

them, their siblings and their families.<br />

Children’s nursing is family orientated so that<br />

means we always think <strong>of</strong> the child in the<br />

context <strong>of</strong> their family. In the last couple <strong>of</strong><br />

years, most <strong>of</strong> my work has been with<br />

children who have complex healthcare needs<br />

such as cancer, congenital disorders and / or<br />

disabilities. All <strong>of</strong> my work is trying to find<br />

out about their experiences <strong>of</strong> sickness,<br />

disability, treatment and interventions.<br />

I’m also interested in how healthcare<br />

pr<strong>of</strong>essionals treat them, the changes that<br />

illness brings to their family and friends<br />

them, and the ways in which they can<br />

become either marginalised by or integrated<br />

into society.<br />

My research with children is mainly<br />

qualitative and I use an arts/activities and<br />

story based approach which is quite<br />

innovative. I use the stories the children tell<br />

me to gain insights into their worlds. I want<br />

to understand their perceptions <strong>of</strong><br />

healthcare pr<strong>of</strong>essionals. I want to improve<br />

services and the way we communicate with<br />

the children about their illness and how we<br />

can support them. A lot <strong>of</strong> the children that<br />

children’s nurses care for in <strong>2011</strong> would<br />

never have previously survived beyond the<br />

neonatal period or early childhood. Although<br />

many more children survive, many have high<br />

levels <strong>of</strong> morbidity. Survival is now possible<br />

due to new medications and new<br />

technology which also improves the quality<br />

<strong>of</strong> survival. For example, back in the late<br />

1970s when I trained as a nurse, a life<br />

support machine (ventilator) used to be the<br />

equivalent size <strong>of</strong> a couple <strong>of</strong> filing cabinets<br />

(and sound like a twin tub washing

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