IDF Patient & Family Handbook for Primary Immunodeficiency ... - IDFA

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118 Adolescents with Primary Immunodeficiency Diseases Adolescent Insurance Concerns continued If an adolescent’s insurance is about to end, it is important to understand what is available well in advance. Here are some important questions to research to provide a better picture of what insurance options are available: • How long am I entitled to insurance under my parent’s plan? • Will COBRA be available to me after I graduate? If yes, how will the premiums be paid? • Will my Medicaid end when I turn 19? • If I get a job, how long is the waiting period before benefits begin? • Does my state have a high risk pool? What are the premiums? • Does my state Medicaid plan offer incentives to work despite my disability? Coordinated Support As you, your family members, and your adolescent with a primary immunodeficiency disease handle the challenges that may accompany that disease, remember to keep your support system close at hand. Particularly stressful times, when support is most needed, may also be the times when it is the most difficult to maintain those connections with family, friends, and the professionals that are in your support network. Stay current through your adolescent’s healthcare providers, your reading, and networking. Keep your circle of support informed and involved. Show your adolescent how to both be realistic about the challenges as well as encouraged by the choices in life.
Adults with Primary Immunodeficiency Diseases chapter 21 Adults with primary immunodeficiency diseases live full lives in the real world. They work, play, marry and have families.
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Patient & Family Handbook For Prima
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Patient & Family Handbook For Prima
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Patient and Family Handbook i Prefa
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Patient and Family Handbook iii Abo
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The Immune System and Primary Immun
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The Immune System And Primary Immun
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Common Variable Immune Deficiency c
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Common Variable Immune Deficiency 1
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X-Linked Agammaglobulinemia chapter
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X-Linked Agammaglobulinemia 17 Clin
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Selective IgA Deficiency chapter 4
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Selective IgA Deficiency 21 Clinica
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Severe Combined Immunodeficiency ch
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Severe Combined Immunodeficiency 25
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Chronic Granulomatous Disease 31 De
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Chronic Granulomatous Disease 33 Di
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Chronic Granulomatous Disease 35 Tr
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Wiskott-Aldrich Syndrome 37 Definit
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Wiskott-Aldrich Syndrome 39 Maligna
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Wiskott-Aldrich Syndrome 41 Treatme
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Hyper IgM Syndrome 43 Definition of
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Hyper IgM Syndrome 45 Treatment of
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DiGeorge Syndrome 47 Definition of
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DiGeorge Syndrome 49 Therapy for Di
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IgG Subclass Deficiency and Specifi
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IgG Subclass Deficiency and Specifi
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Ataxia Telangiectasia 55 Definition
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Ataxia Telangiectasia 57 General Tr
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Hyper IgE Syndrome 59 Definition of
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Hyper IgE Syndrome 61 Inheritance o
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Complement Deficiencies 63 Definiti
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Complement Deficiencies 65 Treatmen
Page 75 and 76: Other Important Primary Immunodefic
Page 77 and 78: Other Important Primary Immunodefic
Page 79 and 80: Inheritance chapter 15 Many disease
Page 81 and 82: Inheritance 73 Types of Inheritance
Page 83 and 84: Inheritance 75 Types of Inheritance
Page 85 and 86: Inheritance 77 Reproductive Options
Page 87 and 88: Laboratory Tests chapter 16 Laborat
Page 89 and 90: Laboratory Tests 81 Major Categorie
Page 91 and 92: Laboratory Tests 83 Summary Laborat
Page 93 and 94: General Care 85 General Health Meas
Page 95 and 96: General Care 87 Exercise Participat
Page 97 and 98: General Care 89 General Care During
Page 99 and 100: General Care 91 General Care During
Page 101 and 102: Specific Medical Therapy 93 Introdu
Page 103 and 104: Specific Medical Therapy 95 General
Page 105 and 106: Specific Medical Therapy 97 Hematop
Page 107 and 108: Specific Medical Therapy 99 Granulo
Page 109 and 110: Specific Medical Therapy 101 PEG-AD
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Page 133 and 134: Health Insurance chapter 22 Having
Page 135 and 136: Health Insurance 127 Who Are the
Page 141 and 142: Health Insurance 133 LIFETIME MAXIM
Page 143 and 144: Glossary 135 Gamma globulins: The p
Page 145 and 146: Glossary 137 Sepsis: An infection o
Page 147 and 148: Reference 139 NIH Clinical Trials w
Page 149 and 150: Reference 141 International Patient
Page 151 and 152: Reference 143 Manufacturing Compani
Page 153 and 154: Reference 145 Books For Youth Balkw
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