IDF Patient & Family Handbook for Primary Immunodeficiency ... - IDFA

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This book contains general medical information which cannot be applied safely to any individual case. Medical knowledge and practice can change rapidly. Therefore, this book should not be used as a substitute for professional medical advice. FOURTH EDITION COPYRIGHT 1987, 1993, 2001, 2007 IMMUNE DEFICIENCY FOUNDATION Copyright 2007 by Immune Deficiency Foundation, USA. Readers may redistribute this article to other individuals for non-commercial use, provided that the text, html codes, and this notice remain intact and unaltered in any way. The Patient & Family Handbook may not be resold, reprinted or redistributed for compensation of any kind without prior written permission from Immune Deficiency Foundation. If you have any questions about permission, please contact: Immune Deficiency Foundation, 40 West Chesapeake Avenue, Suite 308, Towson, MD 21204, USA; or by telephone at 1-800-296-4433.
Patient & Family Handbook For Primary Immunodeficiency Diseases 4th Edition This publication has been made possible through a generous grant from Baxter Healthcare Corporation 40 West Chesapeake Avenue, Suite 308 Towson, Maryland 21204 800-296-4433 www.primaryimmune.org idf@primaryimmune.org
Page 1: Patient & Family Handbook For Prima
Page 5 and 6: Patient and Family Handbook i Prefa
Page 7 and 8: Patient and Family Handbook iii Abo
Page 9 and 10: The Immune System and Primary Immun
Page 11 and 12: The Immune System And Primary Immun
Page 19 and 20: Common Variable Immune Deficiency c
Page 21 and 22: Common Variable Immune Deficiency 1
Page 23 and 24: X-Linked Agammaglobulinemia chapter
Page 25 and 26: X-Linked Agammaglobulinemia 17 Clin
Page 27 and 28: Selective IgA Deficiency chapter 4
Page 29 and 30: Selective IgA Deficiency 21 Clinica
Page 31 and 32: Severe Combined Immunodeficiency ch
Page 33 and 34: Severe Combined Immunodeficiency 25
Page 39 and 40: Chronic Granulomatous Disease 31 De
Page 41 and 42: Chronic Granulomatous Disease 33 Di
Page 43 and 44: Chronic Granulomatous Disease 35 Tr
Page 45 and 46: Wiskott-Aldrich Syndrome 37 Definit
Page 47 and 48: Wiskott-Aldrich Syndrome 39 Maligna
Page 49 and 50: Wiskott-Aldrich Syndrome 41 Treatme
Page 51 and 52: Hyper IgM Syndrome 43 Definition of
Page 53 and 54:
Hyper IgM Syndrome 45 Treatment of
Page 55 and 56:
DiGeorge Syndrome 47 Definition of
Page 57 and 58:
DiGeorge Syndrome 49 Therapy for Di
Page 59 and 60:
IgG Subclass Deficiency and Specifi
Page 61 and 62:
IgG Subclass Deficiency and Specifi
Page 63 and 64:
Ataxia Telangiectasia 55 Definition
Page 65 and 66:
Ataxia Telangiectasia 57 General Tr
Page 67 and 68:
Hyper IgE Syndrome 59 Definition of
Page 69 and 70:
Hyper IgE Syndrome 61 Inheritance o
Page 71 and 72:
Complement Deficiencies 63 Definiti
Page 73 and 74:
Complement Deficiencies 65 Treatmen
Page 75 and 76:
Other Important Primary Immunodefic
Page 77 and 78:
Other Important Primary Immunodefic
Page 79 and 80:
Inheritance chapter 15 Many disease
Page 81 and 82:
Inheritance 73 Types of Inheritance
Page 83 and 84:
Inheritance 75 Types of Inheritance
Page 85 and 86:
Inheritance 77 Reproductive Options
Page 87 and 88:
Laboratory Tests chapter 16 Laborat
Page 89 and 90:
Laboratory Tests 81 Major Categorie
Page 91 and 92:
Laboratory Tests 83 Summary Laborat
Page 93 and 94:
General Care 85 General Health Meas
Page 95 and 96:
General Care 87 Exercise Participat
Page 97 and 98:
General Care 89 General Care During
Page 99 and 100:
General Care 91 General Care During
Page 101 and 102:
Specific Medical Therapy 93 Introdu
Page 103 and 104:
Specific Medical Therapy 95 General
Page 105 and 106:
Specific Medical Therapy 97 Hematop
Page 107 and 108:
Specific Medical Therapy 99 Granulo
Page 109 and 110:
Specific Medical Therapy 101 PEG-AD
Page 111 and 112:
Specific Medical Therapy 103 Gene T
Page 113 and 114:
Infants and Children with Primary I
Page 115 and 116:
Page 117 and 118:
Page 119 and 120:
Adolescents with Primary Immunodefi
Page 121 and 122:
Page 123 and 124:
Page 125 and 126:
Page 127 and 128:
Adults with Primary Immunodeficienc
Page 129 and 130:
Page 131 and 132:
Page 133 and 134:
Health Insurance chapter 22 Having
Page 135 and 136:
Health Insurance 127 Who Are the
Page 137 and 138:
Page 139 and 140:
Page 141 and 142:
Health Insurance 133 LIFETIME MAXIM
Page 143 and 144:
Glossary 135 Gamma globulins: The p
Page 145 and 146:
Glossary 137 Sepsis: An infection o
Page 147 and 148:
Reference 139 NIH Clinical Trials w
Page 149 and 150:
Reference 141 International Patient
Page 151 and 152:
Reference 143 Manufacturing Compani
Page 153 and 154:
Reference 145 Books For Youth Balkw
Page 156:
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