IDF Patient & Family Handbook for Primary Immunodeficiency ... - IDFA

More documents

Recommendations

Info

chapter 17 General Care This chapter provides information pertinent to the general care of the primary immunodeficient patient in the home, at school, at work, and at play. General measures, both those that maximize the body’s resistance to infection and those that reduce the risk of acquiring an infection from the environment are included. In addition, specific illnesses are discussed in terms of their characteristic symptoms and supportive therapies.
General Care 85 General Health Measures Nutrition An adequate diet provides nutrients essential for normal growth and development, body repair and maintenance. While good dietary habits are important for everyone, they are extremely important for the primary immunodeficient individual. Children, in particular, need a balanced diet to grow and develop normally. Dietary guidelines for Americans encourage eating a variety of foods, maintaining an ideal body weight, consuming adequate starch and fiber and limiting the intake of fat, cholesterol, sugar, salt and alcohol. There are a number of “fad” diets and other diet recommendations that claim to boost immune resistance or help fight disease. It is very important to consider any unusual diet very carefully and to partner with your physician in this decision. The only truly proven dietary measure for increasing immunity is to have a balanced diet with adequate nutrition. CHAPTER 17; FIGURE 1 Digestive System Special Medical Diets In times of infection, illness, or food intolerance, the normal diet may need to be modified. Talk to your doctor to learn when these diets are indicated. Clear Liquid Diet A clear liquid diet may be used when there is a severe intolerance to food during infection or illness, or when nausea, vomiting and diarrhea are present. Since it is nutritiously inadequate, a clear liquid diet is usually only used for one to two days. The main purpose of a clear liquid diet is to replace lost fluids. Suggested fluids include: electrolyte replacement solutions such as Pedialyte and Gatorade , fat-free broth, strained vegetable broth, strained citrus juices, plain Jell-O , and fruit ices. Full Liquid Diet A full liquid diet may be ordered when there is difficulty in chewing or swallowing solid foods, as in pharyngitis, or when advancing from clear liquids. When properly planned, this diet can be nutritious and used for extended periods of time. A full liquid diet includes all foods that are liquid at room and body temperatures. Eggs (soft-cooked), strained meats, fruits and vegetables, ice cream, milkshakes and creamed soups are examples of food which can be added to the diet. Soft Diet A soft or bland diet is the transitional step between a liquid and a regular diet. Suggested foods include those that are easily chewed, swallowed and digested. Foods to be avoided include those that have high fiber content, are rich and highly flavored or are fried and greasy. In some circumstances, if patients are not able to eat or drink normally, or if they can eat but are unable to absorb nutrients adequately from their stomach and intestines, there are procedures to assist them in maintaining adequate nutrition.
Page 1 and 2:
Patient & Family Handbook For Prima
Page 3 and 4:
Patient & Family Handbook For Prima
Page 5 and 6:
Patient and Family Handbook i Prefa
Page 7 and 8:
Patient and Family Handbook iii Abo
Page 9 and 10:
The Immune System and Primary Immun
Page 11 and 12:
The Immune System And Primary Immun
Page 13 and 14:
Page 15 and 16:
Page 17 and 18:
Page 19 and 20:
Common Variable Immune Deficiency c
Page 21 and 22:
Common Variable Immune Deficiency 1
Page 23 and 24:
X-Linked Agammaglobulinemia chapter
Page 25 and 26:
X-Linked Agammaglobulinemia 17 Clin
Page 27 and 28:
Selective IgA Deficiency chapter 4
Page 29 and 30:
Selective IgA Deficiency 21 Clinica
Page 31 and 32:
Severe Combined Immunodeficiency ch
Page 33 and 34:
Severe Combined Immunodeficiency 25
Page 35 and 36:
Page 37 and 38:
Page 39 and 40:
Chronic Granulomatous Disease 31 De
Page 41 and 42: Chronic Granulomatous Disease 33 Di
Page 43 and 44: Chronic Granulomatous Disease 35 Tr
Page 45 and 46: Wiskott-Aldrich Syndrome 37 Definit
Page 47 and 48: Wiskott-Aldrich Syndrome 39 Maligna
Page 49 and 50: Wiskott-Aldrich Syndrome 41 Treatme
Page 51 and 52: Hyper IgM Syndrome 43 Definition of
Page 53 and 54: Hyper IgM Syndrome 45 Treatment of
Page 55 and 56: DiGeorge Syndrome 47 Definition of
Page 57 and 58: DiGeorge Syndrome 49 Therapy for Di
Page 59 and 60: IgG Subclass Deficiency and Specifi
Page 61 and 62: IgG Subclass Deficiency and Specifi
Page 63 and 64: Ataxia Telangiectasia 55 Definition
Page 65 and 66: Ataxia Telangiectasia 57 General Tr
Page 67 and 68: Hyper IgE Syndrome 59 Definition of
Page 69 and 70: Hyper IgE Syndrome 61 Inheritance o
Page 71 and 72: Complement Deficiencies 63 Definiti
Page 73 and 74: Complement Deficiencies 65 Treatmen
Page 75 and 76: Other Important Primary Immunodefic
Page 77 and 78: Other Important Primary Immunodefic
Page 79 and 80: Inheritance chapter 15 Many disease
Page 81 and 82: Inheritance 73 Types of Inheritance
Page 83 and 84: Inheritance 75 Types of Inheritance
Page 85 and 86: Inheritance 77 Reproductive Options
Page 87 and 88: Laboratory Tests chapter 16 Laborat
Page 89 and 90: Laboratory Tests 81 Major Categorie
Page 91: Laboratory Tests 83 Summary Laborat
Page 95 and 96: General Care 87 Exercise Participat
Page 97 and 98: General Care 89 General Care During
Page 99 and 100: General Care 91 General Care During
Page 101 and 102: Specific Medical Therapy 93 Introdu
Page 103 and 104: Specific Medical Therapy 95 General
Page 105 and 106: Specific Medical Therapy 97 Hematop
Page 107 and 108: Specific Medical Therapy 99 Granulo
Page 109 and 110: Specific Medical Therapy 101 PEG-AD
Page 111 and 112: Specific Medical Therapy 103 Gene T
Page 113 and 114: Infants and Children with Primary I
Page 119 and 120: Adolescents with Primary Immunodefi
Page 127 and 128: Adults with Primary Immunodeficienc
Page 133 and 134: Health Insurance chapter 22 Having
Page 135 and 136: Health Insurance 127 Who Are the
Page 141 and 142: Health Insurance 133 LIFETIME MAXIM
Page 143 and 144:
Glossary 135 Gamma globulins: The p
Page 145 and 146:
Glossary 137 Sepsis: An infection o
Page 147 and 148:
Reference 139 NIH Clinical Trials w
Page 149 and 150:
Reference 141 International Patient
Page 151 and 152:
Reference 143 Manufacturing Compani
Page 153 and 154:
Reference 145 Books For Youth Balkw
Page 156:
This publication has been made poss
show all

IDF Patient & Family Handbook for Primary Immunodeficiency ... - IDFA

Create successful ePaper yourself

Delete template?

Save as template?