April 2011 - The ALS Association Greater Sacramento
April 2011 - The ALS Association Greater Sacramento
April 2011 - The ALS Association Greater Sacramento
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Page 11<br />
Helpful<br />
Web Sites<br />
Americans with Disabilities Act<br />
www.usdoj.gov<br />
<strong>The</strong> Joint Commissions on<br />
the Accreditation Healthcare<br />
Organizations<br />
www.jointcommission.org<br />
Paralyzed Veterans of<br />
America<br />
www.pva.org<br />
Medicare<br />
www.medicare.gov<br />
National <strong>Association</strong> of<br />
Area Agencies on Aging<br />
www.n4a.org<br />
U.S. House of Representatives<br />
www.house.gov<br />
U.S. Senate<br />
www.senate.gov<br />
Legislation Status<br />
thomas.loc.gov<br />
https://writerep.house.gov<br />
e/writerep/welcome.shtlm<br />
www.alssac.org<br />
www.alsa.org<br />
Debra’s Story<br />
Debra’s Story—Karen Boozel Boone (Debra’s sister) is holding a Walk for a cure<br />
in her honor in Reno/ Sparks at the Marina on September 18th. Debra wrote this piece<br />
about her sister for us.<br />
Being diagnosed 6 months ago with <strong>ALS</strong> was a huge blow to Debra TeCulver and<br />
her family. Debra had been extremely persistent in the previous 20 months seeking a diagnosis<br />
for her unexplained arm weakness and cramping. Many theories were eliminated,<br />
many physicians consulted and diagnostic tests preformed. <strong>ALS</strong> diagnosis tends to<br />
be more of elimination than anything else.<br />
Life after diagnosis of <strong>ALS</strong> will never be the same for everyone affected by this<br />
destructive disease.<br />
Debra married her high school sweetheart, Jeff, on June 7, 1980 and they have<br />
had the joy of successfully raising three fine children: Scott 30, Kelli 28, Taylor 18, and recently<br />
welcomed their newest member, Megan 26, this summer when Scott and Megan<br />
were wed.<br />
Debra is a graduate of Clymer High School, Class of<br />
1976, and until her diagnosis was employed by Maplevale<br />
Farms, Clymer, NY as a customer service specialist.<br />
Besides her family, Debra’s loves include camping, snowmobiling,<br />
swimming, and sewing. She is an amazing seamstress<br />
who has beautifully completed many prom and bridal<br />
ensembles. Enjoying these activitites isn’t as easy as it used<br />
to be, but her attitude has remained amazing and the family<br />
is adapting. Jeff surprised Debra at Christmas time with a<br />
snowmobile they could ride as a couple, since handling one<br />
alone has become difficult. Debra has been teaching Kelli to<br />
sew. <strong>The</strong> family has been attending an <strong>ALS</strong> support group.<br />
<strong>The</strong>y are making lemonade from lemons.<br />
Walk for a Cure<br />
and help us put an END to Lou<br />
Gehrig’s Disease.<br />
Sunday, September 18th, <strong>2011</strong><br />
Sparks Marina Park • Reno<br />
9 am—Registration • 11 am—Walk<br />
Raffle • Entertainment