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April 2011 - The ALS Association Greater Sacramento

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Page 11<br />

Helpful<br />

Web Sites<br />

Americans with Disabilities Act<br />

www.usdoj.gov<br />

<strong>The</strong> Joint Commissions on<br />

the Accreditation Healthcare<br />

Organizations<br />

www.jointcommission.org<br />

Paralyzed Veterans of<br />

America<br />

www.pva.org<br />

Medicare<br />

www.medicare.gov<br />

National <strong>Association</strong> of<br />

Area Agencies on Aging<br />

www.n4a.org<br />

U.S. House of Representatives<br />

www.house.gov<br />

U.S. Senate<br />

www.senate.gov<br />

Legislation Status<br />

thomas.loc.gov<br />

https://writerep.house.gov<br />

e/writerep/welcome.shtlm<br />

www.alssac.org<br />

www.alsa.org<br />

Debra’s Story<br />

Debra’s Story—Karen Boozel Boone (Debra’s sister) is holding a Walk for a cure<br />

in her honor in Reno/ Sparks at the Marina on September 18th. Debra wrote this piece<br />

about her sister for us.<br />

Being diagnosed 6 months ago with <strong>ALS</strong> was a huge blow to Debra TeCulver and<br />

her family. Debra had been extremely persistent in the previous 20 months seeking a diagnosis<br />

for her unexplained arm weakness and cramping. Many theories were eliminated,<br />

many physicians consulted and diagnostic tests preformed. <strong>ALS</strong> diagnosis tends to<br />

be more of elimination than anything else.<br />

Life after diagnosis of <strong>ALS</strong> will never be the same for everyone affected by this<br />

destructive disease.<br />

Debra married her high school sweetheart, Jeff, on June 7, 1980 and they have<br />

had the joy of successfully raising three fine children: Scott 30, Kelli 28, Taylor 18, and recently<br />

welcomed their newest member, Megan 26, this summer when Scott and Megan<br />

were wed.<br />

Debra is a graduate of Clymer High School, Class of<br />

1976, and until her diagnosis was employed by Maplevale<br />

Farms, Clymer, NY as a customer service specialist.<br />

Besides her family, Debra’s loves include camping, snowmobiling,<br />

swimming, and sewing. She is an amazing seamstress<br />

who has beautifully completed many prom and bridal<br />

ensembles. Enjoying these activitites isn’t as easy as it used<br />

to be, but her attitude has remained amazing and the family<br />

is adapting. Jeff surprised Debra at Christmas time with a<br />

snowmobile they could ride as a couple, since handling one<br />

alone has become difficult. Debra has been teaching Kelli to<br />

sew. <strong>The</strong> family has been attending an <strong>ALS</strong> support group.<br />

<strong>The</strong>y are making lemonade from lemons.<br />

Walk for a Cure<br />

and help us put an END to Lou<br />

Gehrig’s Disease.<br />

Sunday, September 18th, <strong>2011</strong><br />

Sparks Marina Park • Reno<br />

9 am—Registration • 11 am—Walk<br />

Raffle • Entertainment

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