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Conducting Surveys on Disability: A Comprehensive Toolkit

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Major Steps in the Design of the<br />

Questi<strong>on</strong>naire<br />

A certain number of principles must be c<strong>on</strong>sidered when<br />

designing a questi<strong>on</strong>naire. The quality of informati<strong>on</strong> gathered<br />

relies mainly <strong>on</strong> the efficient and easy use of this tool.<br />

Logical Order of Questi<strong>on</strong>s and Skip<br />

Patterns<br />

The quality of the informati<strong>on</strong> gathered depends largely up<strong>on</strong><br />

the way the questi<strong>on</strong>naire is designed (see box, p30).<br />

Single Meaning of Questi<strong>on</strong>s<br />

In a well-organised questi<strong>on</strong>naire, each questi<strong>on</strong> should have a<br />

unique meaning and a single possible interpretati<strong>on</strong>. This is<br />

the ideal goal to pursue. Multiple meanings inevitably lead to<br />

incorrect and useless informati<strong>on</strong>. This does not allow for any<br />

kind of valid results during the analysis phase.<br />

Possible Link between Questi<strong>on</strong>s<br />

A questi<strong>on</strong> can be linked to a previous <strong>on</strong>e. Usually, it is better<br />

to have a pattern inside the questi<strong>on</strong>naire itself which will<br />

explain the link (see box below).<br />

Keep Sensitive Questi<strong>on</strong>s for the End<br />

Since disability topics are sensitive in many cultures, particularly<br />

for certain types, the order in which questi<strong>on</strong>s are asked is<br />

extremely important for several reas<strong>on</strong>s:<br />

• It reduces n<strong>on</strong>-resp<strong>on</strong>se and even hostility in some<br />

places like south Afghanistan. The sensitive questi<strong>on</strong>s<br />

should be asked at the end of the interview;<br />

• It prevents the interviewee from becoming defensive or<br />

suspicious from the very beginning of the interview, thus<br />

jeopardising the collecti<strong>on</strong> of reliable informati<strong>on</strong>;<br />

• More generally, it avoids loss of interest and ensures a<br />

higher level of cooperati<strong>on</strong>.<br />

Sensitive questi<strong>on</strong>s are not <strong>on</strong>ly those about disability. These can<br />

be also questi<strong>on</strong>s about:<br />

• Income and loans;<br />

• Sexuality;<br />

• Ill-treatment;<br />

• Access to adequate food, the omnipresence of hunger.<br />

Different Resp<strong>on</strong>dents<br />

The design of the questi<strong>on</strong>naire must take into c<strong>on</strong>siderati<strong>on</strong><br />

that different people will answer the questi<strong>on</strong>naire. Usually,<br />

the pers<strong>on</strong> screened or chosen through random sampling (for<br />

c<strong>on</strong>trols) is the <strong>on</strong>e who is interviewed. In a household survey<br />

related to disability, the pers<strong>on</strong> with disability is generally the<br />

interviewee. There are some excepti<strong>on</strong>s to this rule:<br />

• The questi<strong>on</strong>naire is composed of a family module that<br />

c<strong>on</strong>sists of general questi<strong>on</strong>s about the household. In<br />

this case, the head of household can answer or any adult<br />

member of the household.<br />

• The questi<strong>on</strong>naire includes a screening tool used to<br />

identify a specific issue: in the case of the NDSA, the<br />

screening tool is a set of questi<strong>on</strong>s to identify pers<strong>on</strong>s with<br />

disability. Usually, the screening questi<strong>on</strong>s are asked to<br />

the head of household. There is a risk of underestimating<br />

Clarity of Meaning in a Questi<strong>on</strong>: the Example of the Screening<br />

Tool<br />

In secti<strong>on</strong> D of the screening questi<strong>on</strong>naire Q. 2.19 is worded as follows:<br />

“Does any member of your family make the same gesture over and over again (rocking, biting their arm, hitting<br />

their head…)”<br />

During the training, a discussi<strong>on</strong> arose am<strong>on</strong>g trainees about the noti<strong>on</strong> of gesture. The phenomen<strong>on</strong> of palsy was c<strong>on</strong>sidered<br />

by some of the trainees as a repetitive gesture. If we c<strong>on</strong>sider that a gesture is “the use of moti<strong>on</strong> of the limbs or body as<br />

a mean of expressi<strong>on</strong>”, (Merriam-Webster Online Dicti<strong>on</strong>ary), then it does exclude an unc<strong>on</strong>trolled tremble of the hand for<br />

instance.<br />

Link Between Questi<strong>on</strong>s<br />

In the Adult Questi<strong>on</strong>naire, health module, Q. 3.11 asks about the time required to reach the closest available health care<br />

facility.<br />

This questi<strong>on</strong> depends <strong>on</strong> the type of means of transportati<strong>on</strong> used to go to this health care facility, as asked in Q. 3.10.<br />

It also depends <strong>on</strong> the type of health care facility declared available in Q. 3.8.<br />

The goal of the training is to familiarise the surveyors with this kind of pattern.<br />

Elaborating Relevant Tools<br />

31

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