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Risk and Resilience: Obstetric Fistula in Tanzania - EngenderHealth

Risk and Resilience: Obstetric Fistula in Tanzania - EngenderHealth

Risk and Resilience: Obstetric Fistula in Tanzania - EngenderHealth

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One woman expressed her desire to receive<br />

treatment but was unable to f<strong>in</strong>d services. She<br />

stated: “I really wanted to get treatment for the<br />

ur<strong>in</strong>e problem, but I didn’t know where to go. I<br />

even went to the district hospital but was not<br />

treated. I wasted my fare <strong>and</strong> I was tired.” (Woman<br />

from Songea, age 20)<br />

Of the women who sought fistula repair, fewer<br />

than half went to only one facility. In addition,<br />

fewer than half went either to multiple places,<br />

<strong>in</strong>clud<strong>in</strong>g traditional healers, or to the same facility<br />

multiple times seek<strong>in</strong>g repair. Of these women,<br />

about half had a successful repair, while the rest<br />

had failed repairs. One woman recalled her<br />

<strong>in</strong>ability to receive successful treatment: In 1990,<br />

she underwent repair for fistula, stay<strong>in</strong>g at a<br />

hospital for 21 days. The repair was not successful.<br />

She underwent a second repair, but aga<strong>in</strong> it was<br />

not successful. She returned home, <strong>and</strong> the<br />

problem was not solved.<br />

About half of the women specified reasons for not<br />

gett<strong>in</strong>g repair. The primary reason was because<br />

they did not have the money to seek treatment, as<br />

this woman’s story illustrates: “I went to the<br />

regional hospital, but they said they couldn’t do it.<br />

They told me to go to Bug<strong>and</strong>o. They said I should<br />

look for money. My father has no money, <strong>and</strong> I<br />

just stayed there feel<strong>in</strong>g bad.” (Woman from<br />

S<strong>in</strong>gida, age 22) One woman recalled, “At our<br />

place, treatment is a problem. We have to spend a<br />

lot of money to travel <strong>in</strong> order to get treatment.”<br />

(Patient at Bug<strong>and</strong>o, age 24)<br />

Time Liv<strong>in</strong>g with <strong>Fistula</strong><br />

The majority of the women had lived with fistula<br />

for two or more years. For some, this was because<br />

they lacked knowledge about the availability of<br />

treatment. Others knew treatment was available<br />

but could not afford to get to the hospitals that<br />

provide repair. A few women mentioned not<br />

receiv<strong>in</strong>g repair because they were <strong>in</strong> poor health<br />

after delivery. One woman, for example, recalled<br />

that, after delivery, the doctor told her to go to a<br />

particular hospital for treatment. When she<br />

arrived, she was told that she did not have enough<br />

blood. They then sent her back home so she could<br />

eat well <strong>and</strong> <strong>in</strong>crease her hemoglob<strong>in</strong> count.<br />

M. Life After <strong>Fistula</strong> Repair<br />

“Now, I can do<br />

anyth<strong>in</strong>g, I can<br />

even run.”<br />

(Woman from Songea, age 60)<br />

Life improved dramatically for the majority of<br />

women <strong>in</strong> the study after their fistula repair. All but<br />

two girls <strong>and</strong> women had a successful fistula repair<br />

<strong>and</strong> were able to return to their normal lives,<br />

<strong>in</strong>teract freely with family, friends, <strong>and</strong> community,<br />

<strong>and</strong> take an active role <strong>in</strong> economic activities.<br />

A New Beg<strong>in</strong>n<strong>in</strong>g<br />

One woman discussed how, after gett<strong>in</strong>g treatment <strong>in</strong> 2002, her life<br />

changed for the better. She was able to get married <strong>and</strong> perform<br />

chores as normal. She works <strong>in</strong> the shamba (farm) <strong>and</strong> does th<strong>in</strong>gs<br />

she could not do before her repair. She is able to fend for herself now<br />

that she does not have the fistula. Her family also is happy s<strong>in</strong>ce she<br />

had treatment. Even the community treats her as a normal human<br />

be<strong>in</strong>g, unlike <strong>in</strong> the past. She now can go out <strong>and</strong> visit community<br />

members <strong>and</strong> go to church without fac<strong>in</strong>g any problems. (Woman<br />

from Ukerewe, age 22)<br />

The women who were re-<strong>in</strong>terviewed after their<br />

successful repair spoke of numerous positive<br />

changes <strong>in</strong> their life. 22 Almost all mentioned that<br />

their relationship with the community had<br />

improved. They reported no longer be<strong>in</strong>g isolated<br />

<strong>and</strong> be<strong>in</strong>g able to visit other community members<br />

<strong>and</strong> friends <strong>and</strong> go to church. Many expla<strong>in</strong>ed that<br />

the “community treats [them] like normal.” A<br />

woman said, “I can stay with people <strong>and</strong> eat with<br />

no problem.” (Woman from Ukerewe, age 29).<br />

Similarly, another woman reported that the<br />

community now viewed her as a human be<strong>in</strong>g,<br />

<strong>and</strong> she could share meals with others. Another<br />

woman said, “Now, I can do anyth<strong>in</strong>g, I can even<br />

run.” (Woman from Songea, age 60). A woman<br />

poignantly said, “I didn’t know that one day, I will<br />

be like other women, because the problem was<br />

big.” (Woman from Ukerewe, age 48)<br />

22 The women <strong>in</strong>terviewed at Bug<strong>and</strong>o Medical Centre were only <strong>in</strong>terviewed while await<strong>in</strong>g repairs.<br />

35

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