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Risk and Resilience: Obstetric Fistula in Tanzania - EngenderHealth

Risk and Resilience: Obstetric Fistula in Tanzania - EngenderHealth

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VII. F<strong>in</strong>d<strong>in</strong>gs <strong>and</strong> Recommendations<br />

<strong>Fistula</strong> provides a critical lens onto the health care<br />

<strong>and</strong> social systems that can promote - or limit - the<br />

capacity of girls <strong>and</strong> women to achieve well-be<strong>in</strong>g.<br />

Underly<strong>in</strong>g the medical presentation of fistula are<br />

its true determ<strong>in</strong>ants: poverty, which constra<strong>in</strong>s<br />

families from access<strong>in</strong>g basic health services;<br />

resource limitations, which underm<strong>in</strong>e the capacity<br />

of workers to deliver high-quality health care;<br />

<strong>in</strong>sufficient <strong>in</strong>vestment <strong>in</strong> <strong>in</strong>frastructure, which<br />

makes transport to a health care facility nearly<br />

impossible, particularly <strong>in</strong> an emergency;<br />

<strong>in</strong>sufficient access to <strong>in</strong>formation <strong>and</strong> knowledge<br />

about maternal health <strong>and</strong> pregnancy-related<br />

emergencies; <strong>in</strong>adequate education <strong>and</strong> decisionmak<strong>in</strong>g<br />

status for girls <strong>and</strong> women; <strong>and</strong> a<br />

cont<strong>in</strong>u<strong>in</strong>g acceptance of women’s dy<strong>in</strong>g <strong>in</strong><br />

childbirth or surviv<strong>in</strong>g with unspeakable<br />

consequences.<br />

at relatively younger ages (e.g., 15 <strong>and</strong> below), it<br />

is likely that a higher proportion of fistula patients<br />

are young <strong>and</strong> primigravida.<br />

This study br<strong>in</strong>gs to light a range of f<strong>in</strong>d<strong>in</strong>gs on<br />

fistula <strong>and</strong> social vulnerability. The f<strong>in</strong>d<strong>in</strong>gs are<br />

based on the experiences <strong>and</strong> perspectives of 61<br />

girls <strong>and</strong> women liv<strong>in</strong>g with fistula, their families,<br />

community members, <strong>and</strong> local health care<br />

providers. The study dispels some long-held views<br />

about those who live with fistula <strong>and</strong> provides<br />

evidence for build<strong>in</strong>g locally appropriate solutions<br />

to address fistula, <strong>and</strong> maternal mortality <strong>and</strong><br />

morbidity overall. F<strong>in</strong>ally, the study establishes a<br />

call to policymakers, health care workers, donors,<br />

<strong>and</strong> communities to take action on women’s<br />

health <strong>and</strong> women’s lives.<br />

Follow<strong>in</strong>g are six major f<strong>in</strong>d<strong>in</strong>gs of the study, with<br />

correspond<strong>in</strong>g recommendations:<br />

F<strong>in</strong>d<strong>in</strong>g 1: <strong>Fistula</strong> affects girls <strong>and</strong> women of<br />

all ages, both at first pregnancy <strong>and</strong> <strong>in</strong> later<br />

pregnancies.<br />

The median age at which girls <strong>and</strong> women <strong>in</strong> the<br />

study susta<strong>in</strong>ed a fistula was 23. Fewer than half<br />

were 19 or younger. In addition, about half were <strong>in</strong><br />

their second or higher pregnancy. These f<strong>in</strong>d<strong>in</strong>gs<br />

challenge the general portrayal of fistula as a<br />

condition affect<strong>in</strong>g largely adolescent girls <strong>in</strong> their<br />

first pregnancy. The reason for this may be<br />

differences <strong>in</strong> age at sexual debut: In countries <strong>in</strong><br />

which girls get married <strong>and</strong>/or become pregnant<br />

Recommendation 1: Policies <strong>and</strong> programs<br />

address<strong>in</strong>g fistula need to exp<strong>and</strong> beyond<br />

currently held views that fistula largely affects<br />

young girls. Public education <strong>and</strong> <strong>in</strong>terventions to<br />

mitigate the risks of fistula must address the full<br />

reproductive life cycle of girls <strong>and</strong> women.<br />

Conventional wisdom holds that very young girls<br />

<strong>and</strong> those hav<strong>in</strong>g their first delivery are most at<br />

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