Annual Activity Report 2010 Romanian Prader Willi Association ...

Workshop on “Inclusive
Education Notions”
November 11, Zalau
The Romanian Prader Willi Association in
partnership with School “Corneliu Coposu” Zalau
organised on November 11, a Workshop on
“Inclusive Education Notions”. 36 teachers from
the school and their guests from “Dumbrava
Minunata” Kindergarten debated together with
our specialists Cosmina Băican, Emese Darkó,
Mihaiela Fazacaş and Darius Porumb topics
such as: rare diseases, school integration
of autistic children, work strategies in class
for ADHD children. Theoretical models were
presented, and experience and best practice
models were shared.
and development of the course for Prader Willi
patients and the teleconference on the same
topic with specialists involved in the disease
management.
On this occasion, participants were presented
the 5 training courses provided by RPWA (socioeducational
animator, art therapist, rehabilitation
therapist, professional competences evaluator,
personal assistant for people with severe
disabilities). This workshop will be followed next
year by other training activities for teachers in
Salaj County, on inclusive education.
Working visit to FRAMBU –
Norway
November 15-19, Oslo
PFour of the RPWA team attended in 15-19
November 2010 an experience exchange at the
FRAMBU Centre for Rare Diseases in Norway.
During the visit, they observed the organisation
They received information about the general
organisation of activities at FRAMBU, the
training courses, documentation and research
activities related to rare diseases and the
Rehabilitation Centre Nordre Aasen was visited
where a patient spend 7 weeks to develop skills
such as eating, communication and mobility.
We want to thank our partners for this
experience and for the very useful model
which greatly helps the development of our
services.
Melotherapy
November – December, Zalau
The preparation stages before melotherapy
(music therapy) implied a meeting with the
volunteers of the “Big Brother Big Sister”
project, taking place on November 4 at the
RPWA headquarters. The purpose of the
meeting was to explain the volunteers the
benefits of melotherapy and to bring examples
of specific activities, so that they can have
an idea about melotherapy. Volunteers
were receptive and showed interest both in
melotherapy and the children’s diagnosis, their
needs and difficulties.
Annual Activity Report 2010 | Romanian Prader Willi Association 25