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Annual Activity Report 2010 Romanian Prader Willi Association ...

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was an exceptional year and we had exceptional<br />

collaborators.<br />

Darko Emese: This has been a special experience<br />

for me, I gained new knowledge, I met<br />

wonderful people and I discovered the path I<br />

wish to follow together with the RPWA team.<br />

Dombi Istvan: After a deep scan I can say<br />

we have an exceptional 1.0 Alpha team, functioning<br />

perfectly, without any errors and on<br />

any type of system. Although we have often<br />

been threatened by viruses, Trojans and other<br />

spam ware, we never gave up and continued<br />

to run our programmes successfully. If possible,<br />

I would copy and paste year <strong>2010</strong> directly<br />

onto year 2011.<br />

Fazacaş Mihaiela: <strong>2010</strong> has been an intense<br />

year. Now, when the time has come to draw<br />

the line, I am glad to be part of a simulative<br />

and dynamic team, I am happy that through<br />

my work I was able to contribute towards<br />

bringing a ray of hope in the life of patients<br />

with rare diseases.<br />

Gafencu Mihai: As a doctor in a university centre,<br />

I always knew that Transylvania schools<br />

produced hardworking people, but I have never<br />

even passed through Zalau by train until 2005.<br />

Constructive envy is what I feel when I see<br />

the achievements in Salaj County. My absence<br />

in the Northern Transylvania area has been<br />

solved by the RPWA team, who made me regularly<br />

visit their oasis of normality in the harsh<br />

world of medicine and social issues of our<br />

country, maybe because the initiative started<br />

from within a family. Being a smiling person<br />

by nature, I have felt nothing but happiness<br />

working with you, and I hope our collaboration<br />

is a model to be replicated in the same smiley<br />

way.<br />

Lazar Zsuzsa: The energy given by colleagues<br />

is one of the most important elements for<br />

professional success. This team taught me to<br />

never give up and continue with a smile on<br />

my face.<br />

Marincaş Nelu: Until now I was only used with<br />

the more dry language of numbers, but along<br />

with my entry in the RPWA team I have discovered<br />

a new valence of daily activity, which<br />

is working within a team. The main strength<br />

is the enthusiasm of youth, and for that the<br />

<strong>Annual</strong> <strong>Activity</strong> <strong>Report</strong> <strong>2010</strong> | <strong>Romanian</strong> <strong>Prader</strong> <strong>Willi</strong> <strong>Association</strong><br />

team has my appreciation and respect.<br />

Porumb Darius: A Chinese saying mentions:<br />

“Behind a capable person there are always<br />

other capable persons” – this is the truth which<br />

lies behind the RPWA great achievements.<br />

Rotaru Ioana: My collaboration with the RPWA<br />

team meant reintroducing in my human and<br />

professional experience dictionary words like:<br />

collaborations, support, team spirit, generosity.<br />

Sabău Amalia: Year 2020 spent as part of the<br />

RPWA team represented for me an ongoing<br />

challenge. The numerous and diverse activities<br />

developed, the large volume of work, deadlines<br />

– all these marked by my wish to do everything<br />

as well as possible, sometimes caused a<br />

lot of headache for me. But the courage of the<br />

patients who shared with me their experience<br />

of having a rare disease and their hope gave<br />

me strength to persevere and keep fighting,<br />

together with my colleagues, in order to turn<br />

our dream into reality – the dream to increase<br />

the quality of life for rare disease patients and<br />

their integration in the community!<br />

Skrypnyk Cristina: An extraordinary opportunity<br />

to come close to rare disease patients<br />

and their families, to understand them and to<br />

understand each other. A special lesson about<br />

the meaning of team spirit, patience, cooperation,<br />

serious work done with pleasure. Thank<br />

you all for the honour to work together to<br />

build something sustainable!<br />

Szekely Aurelia: I believe one of the greatest<br />

achievements of RPWA in <strong>2010</strong> was the<br />

close collaboration and the strengthening of<br />

the team, which expanded and colleagues got<br />

to know each other better and to collaborate<br />

efficiently on the ongoing projects.<br />

The volunteering activities this year had a significant<br />

contribution to the expansions and diversification<br />

of our services, especially those<br />

related to the integration in the community<br />

of disabled children and youth. The volunteers<br />

were involved in socialisation programmes,<br />

such as “Big Brother Big Sister” (BBBS), the<br />

Special Olympics, the Summer Camp in Bobald<br />

and other events.<br />

For sharing their spare time with us with a<br />

warm heart and passion, we wish to thank all<br />

BBBS volunteers!

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