Alopecia: My Story - HeadzUp

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✿ ia ✿ ✿ ✿h ✿er little brother, r Alfie. Imelia is 4½. She has short, fine, flufff fy hair, just like baby hair. Imelia never lost her hair. It’s just that her hair hasn’t really developed since she was a baby. So she has never known it any other way – and she doesn’t see it as a problem. She simply says,‘I’ve got short hair. r’ She like s wearing pretty hair grips and ✿ You’ve just got to be yourself alice bands. ‘There are hundreds of them around the house!’ says Leanne, Imelia’s mum. ‘She’s got more hair than I had at her age.’ Alfie’s hair is very short and fine, too. Imelia and Alfie are fo llowing in a fa mily tradition. Their mum and their uncles have the same condition, and so do their grandmother and other relatives. Only the hair on their heads is aff fected.Their hair fo llicles are present, but don’t grow strongly. ‘They don’t know what causes it,’ says mum, Leanne. ‘We all have long eyelashes and strong nails. And body hair. r..’ ✿ ✿ ✿ ✿ ✿ ✿ ✿
✿ ready, they’ll go and choose one.Then Imelia can decide whether ‘If I’m honest, I’d rather both of them were aff fected, rather than just Imelia,’ Leanne continues. ‘But I do think it’s easier fo r boys. <strong>My</strong> brothers used to shave their heads from the age of 14 or so.’ Imelia has a prescription fo r a wig. Leanne says when Imelia is or not she wants to wear it.‘Maybe fo r fa mily parties and celebrations,’ says Leanne. As a child, Leanne says,‘I had a nightmare of a time. I had so many tests, but they never fo und out what was wrong. Wigs weren’t available when I was little, so everyone knew that I didn’t have hair. Then I got one, at the age of about 6 or 7, so everyone knew it was a wig. I had a lot of bullying, and not much was done about it. <strong>My</strong> mum just told me to get on with it.’ Imelia’s school has been much more supportive than Leanne’s was. ‘There’s a child with Down’s Syndrome in the class, and a child who’s partially deaf,’ says Leanne,‘and the children themselves are very ✿ mixed.There are more diff ferences within a class than when I was a kid.’ Leanne wears a wig all the time. Her partner, r Steve, has never seen her without it. ‘It’s my security. I fe el nake d without it,’ she laughs. ✿ ✿ ✿ ✿
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Page 5 and 6: Anna's mum continues: Anna’s scho
Page 7: Usayd saw various doctors who offer
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Page 15 and 16: Sumaya’s alopecia is probably cau
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Alopecia: My Story - HeadzUp

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