Chronisch Vermoeidheidssyndroom: diagnose, behandeling en ...

2 Chronic Fatigue Syndrome KCE reports 88
3.2.4 Population........................................................................................................................................59
3.2.5 Intervention / comparators..........................................................................................................59
3.2.6 Unit costs of the therapeutic strategies ....................................................................................60
3.3 RESULTS OF THE ECONOMIC EVALUATIONS ..............................................................................60
3.3.1 Incremental costs ...........................................................................................................................60
3.3.2 Incremental health outcomes ......................................................................................................62
3.3.3 Cost-effectiveness ratios ..............................................................................................................62
3.4 SENSITIVITY ANALYSES..........................................................................................................................64
3.5 CONCLUSION...........................................................................................................................................64
4 PROGNOSIS: A LITERATURE REVIEW.................................................................... 67
4.1 LITERATURE REVIEW ..............................................................................................................................67
4.2 RESULTS.......................................................................................................................................................67
5 PATIENT ISSUES.......................................................................................................... 70
5.1 METHODOLOGY......................................................................................................................................70
5.2 RESULTS.......................................................................................................................................................70
5.2.1 Patients’ feelings and symptoms..................................................................................................71
5.2.2 Patients relations with others......................................................................................................72
5.2.3 Coping strategies............................................................................................................................73
5.2.4 Propositions from patients to better management.................................................................75
5.3 PATIENTS ASSOCIATIONS....................................................................................................................75
5.3.1 Patients associations in Belgium ..................................................................................................75
6 BELGIAN DATA............................................................................................................ 77
6.1 INTRODUCTION......................................................................................................................................77
6.2 SUMMARY OF THE RIZIV/INAMI REPORT (2006) 155 .......................................................................77
6.2.1 Reference centres: tasks and financing ......................................................................................77
6.2.2 Reference centres: general organisation ...................................................................................78
6.2.3 Reference centres for adults: evaluation of results.................................................................79
6.2.4 Reference centre for children: evaluation of results ..............................................................80
6.2.5 Belgian CFS reference centres: conclusions and discussion..................................................81
6.3 OTHER BELGIAN DATA.........................................................................................................................82
6.3.1 Belgian CFS patients receiving a support under the Disability Scheme..............................82
6.3.2 RIZIV/INAMI expenses for the reference centres..................................................................82
6.3.3 Other Belgian data: conclusion....................................................................................................83
7 ORGANISATION AND FINANCING OF CFS CARE IN OTHER COUNTRIES . 84
7.1 A MODEL OF CARE ORGANISATION FOR CHRONIC CONDITIONS..................................84
7.1.1 Organisation of care for CFS: a Model for Chronic Conditions..........................................84
7.1.2 Systematic review of management strategies for CFS patients in secondary versus
primary care.................................................................................................................................................88
7.2 DEVELOPMENT OF A QUESTIONNAIRE AND SELECTION OF COUNTRIES......................88
7.3 UNITED KINGDOM: ENGLAND..........................................................................................................89
7.3.1 The CFS Service Investment Programme: Summary ..............................................................89
7.3.2 Services provided in regions in England not covered by the CFS Service Investment
Programme...................................................................................................................................................94
7.4 THE NETHERLANDS................................................................................................................................95
7.5 ITALY ............................................................................................................................................................97
7.6 NORWAY....................................................................................................................................................98
7.6.1 CSF/ME care for adults .................................................................................................................98
7.6.2 CFS care for children and adolescents ......................................................................................99