Cancer Reform Strategy - NHS Cancer Screening Programmes

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108 CANCER REFORM STRATEGYCoordinating information andusing it to improve outcomes8.19 The information described in this chapterwill only be effective if it is collected, analysedand published in a way which is useful topatients, commissioners and service providersand other interested parties. To co-ordinatethis, a National Cancer Intelligence Network(NCIN) will be developed, building,maintaining and quality assuring a newnational repository of cancer data. Access todata will be managed through strict governanceprotocols which already cover cancer registries.NCRI partners will help fund research onthe data collated by the NCIN, facilitating amore informed analysis of cancer servicesthan has ever been possible before.8.20 The NCIN will be tasked with ensuringoptimal use is made of all bodies of datacurrently collected and to identify and eliminateduplication of effort. In time, this will also meanidentifying and reducing the collection of datawhich are not being used effectively.8.21 The NCIN will bring together all therelevant stakeholders in cancer information.A steering group will oversee its development,drawing on the talents and expertise of peoplefrom a wide range of disciplines.8.22 The NCIN will manage the delivery andpublication of comparative national informationon diagnosis, treatment and outcomes for typesof cancers and types of patient. Working withothers, a new library of available informationwill be established and new analysescommissioned.Using data to improve servicequality8.23 In partnership with the NationalCancer Director, the NCIN will publish anannual report detailing the changes toclinical outcomes and patient experienceacross the country. Improvements will bemonitored and published as the NCINprogramme matures.Figure 14: How the National Cancer Intelligence Network will workStructure and accountabilitiesHealthDepartmentsRDsPH - EnglandNCRIBoardSteering GroupNCINCoordinatingCentreOther funders(e.g. CRUK)NCINCancerRegistriesOther stakeholders(includingconsumers)Otherepidemiologistsand health servicesresearchers
CHAPTER 8: USING INFORMATION TO IMPROVE QUALITY AND CHOICE 109Box 42: Early products expected from the National Cancer Intelligence Network●●●●●●An electronic toolkit, bringing together information on cancer in an accessible and usableway to enable the benchmarking of services and to inform commissioning;Collecting and analysing information on cancers in teenage and young adults;Evaluating services for secondary cancers in specific tumour areas;Making available to the public information on clinical outcomes through NHS Choices;Following up the progress of patients who have been involved in clinical trials over longerperiods; andAssessment of trends in one year survival rates for different cancers. These are a proxy forearly/late diagnosis.8.24 As mentioned in chapter 5, we will ensurethat patients will be able to access informationon the experience reported by other people withsimilar conditions, as well as clinical outcomesdata through NHS Choices (www.nhs.uk).Written information will be available for thosewithout internet access.8.25 As part of the process of incentivisingservice improvements, good commissioners willtake data into account when making decisionsabout service provision and agreeing prioritiesfor improvement with providers.Box 43: How commissioners could use information on clinical outcomes to improvecancer servicesIf clinical outcomes data reveals that a bowel cancer provider’s outcomes are lagging behindthose of comparable services, then patients may choose to be treated elsewhere. Equally acommissioner could work with the provider to agree actions to improve performance. This mightinclude better MDT working, recruiting additional staff or introducing new technologies.Box 44: How commissioners could use information on patient experience to improvecancer servicesIf a patient experience survey reveals that the experience reported by men with prostate canceris considerably worse than that of patients with other cancers in a particular area, then acommissioner could work with the service provider to address this disparity. Actions mightinclude recruiting an additional clinical nurse specialist, closer working with a patient supportgroup or introducing new decision aids to assist men when making a choice about treatment.Box 45: How commissioners could use information to reduce inequalitiesIf data on awareness of and attitudes to cancer signs and symptoms reveals a deficit in aparticular community, then commissioners can use this information to address the problems.Actions might include developing culturally-sensitive awareness and information programmesand evaluating their effect.
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Cancer Reform Strategy
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DH INFORMATION READER BOXPolicyHR/W
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3Forewordby the Prime MinisterAt on
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6 CANCER REFORM STRATEGY9. Your NHS
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8 CANCER REFORM STRATEGY9. Excessiv
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10 CANCER REFORM STRATEGYWe will al
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What the Cancer Reform Strategy mea
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14 CANCER REFORM STRATEGY●●●R
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17Chapter 1:The challenge of cancer
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CHAPTER 1: THE CHALLENGE OF CANCER
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33Chapter 2:Preventing cancerChapte
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CHAPTER 2: PREVENTING CANCER 352.15
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CHAPTER 2: PREVENTING CANCER 37Nico
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43Chapter 3:Diagnosing cancer earli
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CHAPTER 3: DIAGNOSING CANCER EARLIE
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Cancer Reform Strategy - NHS Cancer Screening Programmes

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