Celebrating 60 years of service - Cerebral Palsy League

Volume 32 Edition 2 Winter 2008Cerebral Palsy League of QueenslandQuarterlyCelebrating 60 yearsof serviceThe League launch its$5 million Anniversary AppealPictured: Cutting the cake - MP, GraceGrace with Board Member, Desmond Orr.empowering people with a disability for 60 yearsLeague News Volume 32 Edition 2, 2008 - Page

League celebrates 60th birthdayON Friday 20 June supporters of the League were in attendance whenthe League celebrated 60 years of service to Queenslanders with complexneeds.New Farm headquarters hosted the birthday celebration which also served asthe launch of the League’s 60th Anniversary Appeal.The 60th Appeal aims to raise $5 million and will focus on the growing needsof people with a disability in regional areas.The Anniversary Appeal has already raised $214,850 thanks to generouscash and in-kind donations.Guests in attendance on the night included Queensland business and mediaidentities, such as Channel 9’s Heather Foord, Grace Grace MP, DevineLimited’s Brent Hailey and Board members and executives of the League.If you would like to donate to the League’s 60th Anniversary Appealphone 1800 819 086 or visit www.cplq.org.au.Joan Williams and Netta Foy.Joan Leonard, Emily MacDonaldand Heather Foord.Robert Galea and Nigel Nimbus.CEO, Angela Tillmanns and Doug Thompson.Dereck Tan, Brent Haileyand Chris MackieIn this issue...RegularsCEO Foreword 3State CCC 4Parents and Guardians 4Community funding update 5CPLQ Library update 6Staff Recognition ofExcellence Awards 13Volunteer update 13Penny Atfield, Terry Donaldsonand Wendy Lavelle.FeaturesLeague celebrates 60thbirthday 2Picnic in the Park 5My son inspired a thriller 7Geoff says goodbye 8Art for Art’s Sake raises$45,000 9North Queensland childrengain greater mobility, thanksto new services 10Carolyn Mibus and Geoff Rowe.CCC tour gives regionalclients a greater voice 10In search of Miss Queensland 11Australian first for League 12Friendship Bank – A littlechange goes a long way 14Radio show makes disabilityconnections 15Jetski fundraiser rally empowerspeople with disabilities 16Editor - Douglas Pack, Communications Manager - 07 3358 8084Page - League News Volume 32 Edition 2, 2008

CEO ForewordIT has been a busy and excitingfirst few months as the CEO ofthe Cerebral Palsy League ofQueensland.In that time I have travelledstate-wide from the Gold Coastto Townsville and all stops inbetween.My tour of League centres hasenabled me to view servicesand meet with clients, staff andsupporters.From humble beginnings theLeague was born out of an unmetneed for services to help peoplewith cerebral palsy. Throughthe commitment and hard workof countless staff, volunteers,families, clients and supporters,the League has grown to becomethe largest non-governmentservice provider for people with adisability in Queensland. Today wesupport the needs of over 3,000clients with cerebral palsy andrelated disabilities.It is the achievements of theseindividuals past and presentthat we celebrate and look to forinspiration as we work towardscontinuing to improve our alreadyhigh standard of services.event in regional centres to raisemuch needed funds for regionalprojects.To date the appeal has raised$214,850. Most of the moneyraised through the appeal will gotowards updating our facilitiesensuring we have state of the artfacilities and equipment to serveour clients into the future.On Saturday, 9 August 2008 youare invited to attend the CCC‘Picnic in the Park’ in the RomaStreet Parklands where clients,staff, volunteers and supporterswill celebrate the League’s birthdaywith their family and friends.“It has been very encouraging to seethe level of support that Queenslandershave for the League.”It has been very encouragingto see the level of support thatQueenslanders have for theLeague.The recent Art for Art’s Sake: NewBeginnings auction and cocktailfunction is a prime example of thissupport. Over 150 guests attendedthe auction to bid on artworks,donated by over 30 artists,raising a record $45,000. I wouldpersonally like to thank Anthony DJRigby Insurance and InvestmentServices and the AMP Foundationfor sponsoring the event for thethird year running and contributinga generous $15,000 ensuring thesuccess of the event.Tuesday 24 June 2008 seesthe Cerebral Palsy League ofQueensland officially turn 60 and itis time to celebrate.During the League’s 60thanniversary year we aim toachieve:. Enhanced awareness of theLeague and its services withinyour local community andthroughout Queensland. An ambitious fundraising targetof $5 million for the upgradeand expansion of facilities andservices across all regions3. An ongoing high standard ofservice delivery to our clients4. Celebrate the League andclient achievements from overthe past 60 years.Birthday celebrations kicked off onFriday, 20 June with the launch ofour 60th Anniversary Appeal at amodest event at New Farm headoffice.The League plans to replicate thisAngela TillmannsChief Executive OfficerCerebral Palsy LeagueABN 27 009 942 26955 Oxlade Drive, New Farm Q 4005PO Box 386, Fortitude Valley Q 4006www.cplqld.org.auExecutive Management TeamAngela TillmannsChief Executive OfficerP: 07 3358 8003 F: 07 3254 1291E: atillmanns@cplqld.org.auGeoff RoweService Development and PolicyP: 07 3358 8014 F: 07 3254 1291E: growe@cplqld.org.auGreg CuffeOrganisational ServicesP: 07 3358 8064 F: 07 3254 1387E: gcuffe@cplqld.org.auStuart PiltonHuman ResourcesP: 07 3358 8078 F: 07 3358 8103E: spilton@cplqld.org.auRosalie CunninghamMarketing and FundraisingP: 07 3358 8090 F: 07 3358 2495E: rcunningham@cplqld.org.auLeague News Volume 32 Edition 2, 2008 - Page

State Client Consultative CommitteeIN recent months the State ClientConsultative Committee (CCC) hasachieved a wide range of goalsthat it has been working towardsfor some time.The first of the regional CCCevents went very well in HerveyBay and Rockhampton.I am pleased to say that clientsin Central Queensland and WideBay, with the support of RegionalManager David Robinson, havenow formed a Regional CCC.We are thrilled with this outcomeand look forward to havingrepresentatives from these areasjoining us on the State CCC.Thank you to David for yourenthusiasm and support this year.The State CCC will now haverepresentatives from each adultregion and we aim to build onincreasing numbers and findingeffective ways to communicateacross the large distances thatseparate these committees.The next regional CCC event isplanned for the Gold Coast on 30September.The State CCC is in the processof submitting contributions to allservices for use in newsletters andnotice boards, so all members areaware of our activities.This is especially important withinthe transport portfolio where therehas been much activity.I have been liaising with QRLimited, and Mary Albury has beenbusy providing consultation inregard the mobility allowance, TaxiSubsidy Scheme, Smartcards andnew bus ways.Plans for our Picnic in the Parkon Sunday, 9 August in the RomaStreet Parklands are progressingwell. I look forward to seeing manyof you at this relaxed event.I am particularly excited that atthis year’s event we have planneda wide range for activities forchildren. I hope that young familieswill join us.Keep an eye out in this edition ofLeague News for your invitation.Finally, I would also like to take thisopportunity to thank the outgoingServices and Policy DevelopmentManager Geoff Rowe for hiscontribution to League servicesover the last 11 years. Geoff’scommitment to client issues hashelped give Queenslanders withdisabilities a voice. It has been apleasure working with you and theState CCC wishes you well in thefuture.I would like to encourage you tocontact the State CCC, in regard toissues that affect you, by phone on07 3358 8049 or by email atstateccc@cplqld.org.au.Terry DonaldsonChairpersonParents and Guardians AssociationI wish to advise that the Parentsand Guardians Association (PGA)now has a page on the Leaguewebsite at http://www.cplqld.org.au/clients/parentsandguardians.The aim of this page is to makeparents and guardians awareof the stakeholder consultationprocess.Our new brochure is nowcomplete and will be distributed tonew parents who use the service.As part of the early interventionprogram, therapy staff havescheduled evenings for newparents to the League with youngchildren. Margaret Geldard is theteam leader for these evenings.These evenings are informativeand will be of great value toyoung parents of children with adisability.Michael Pini, Chair of theDisability Services Committee,attended our last meeting tocollect information regardingperceived gaps in services.Issues raised were in relation totherapy, children’s services andadult accommodation.You are invited to attend thePicnic in the Park on Saturday,9 August at the Roma StreetParklands. The picnic will bejointly hosted by the PGA and theState CCC (Client ConsultativeCommittee). We would like toencourage parents of seniorclients as well as younger familiesto attend.A morning tea to be hosted bythe PGA at League head officein New Farm is in the process ofbeing planed. We will advise youof the details as they arise.Finally, Sevenoaks will be hostingits annual Melbourne Cupfunction this year. The PGA wouldlike to encourage you to attend.Joan WilliamsPresidentPage - League News Volume 32 Edition 2, 2008

Picnic inthe ParkTHE Cerebral Palsy League ofQueensland will be celebratingits 60th birthday with a Picnicin the Park at the Roma StreetParklands on Saturday, 9 Augustfrom 10:30am to 2:00pm.A fun day of celebration isplanned with a variety ofinclusive entertainment for allincluding music, face painting,rides, demonstrations, arts and craft and raffles.There are two raffle prizes on offer. First prize is return business classtravel for four people on the tilt train, bus transfers, and two nightsaccommodation in a two bedroom apartment at the Mantra Resort,Hervey Bay. Second prize is a three night package on the Gold Coastincluding accommodation in one of the League’s holiday units atLabrador and theme park tickets.You can bring your own packed lunch or for a gold coin donationchoose from a variety of picnic food including sandwiches, fairy flossand snow cones.All clients, families, volunteers, staff and supporters of the CerebralPalsy League are invited to attend the celebrations. Look inside thisedition of League News for your inserted invitation.Picnic in the Park will serve as the Brisbane based client gathering for2008 and will be hosted by the State Client Consultative Committeeand Parents and Guardians Association.These celebrations would not be possible without the support of majorsponsors Roma Street Parklands, QR Limited and Video Data Stagingand Hire.We rememberTHE Parents and GuardiansAssociation would like to pay tributeto the following stalwart ladies whohave made major contributions to theLeague family and will be missed.Miss Audrey Murrell - Audreywas the League’s first kindergartenteacher. Audrey served the Leaguefrom 1960 to 1972. She taught froma Scout Den and many of our clientswill remember the fancy dress ballsand the songs she taught them.Mrs Hazel Dagg – Barry pleaseaccept our sympathy with the loss ofyour mother. Hazel was one of themothers who worked on the schoolveranda and was always willing tohelp wherever needed. The supportof Hazel and mothers like her wasvital to the success of the League inits early days.Mrs Martha Reid – Alan pleaseaccept our sympathy with the lossof your mother. Martha was anoutstanding volunteer and verandamother. A great friend to the lateRuth Neil. Martha was always readyto assist clients in need.Mrs Joyce Wells - We send oursincere sympathy to Fred Wellsand his family on the passing of hismother Joyce on Thursday, 29 May.Community funding updateThe Cerebral Palsy League of Queensland relies heavily on community funding granted from trusts andfoundations. These funds help the League provide high quality services and opportunities for people withcerebral palsy and related disabilities.The Cerebral Palsy League would like to thank the following organisations for their generous funding:Gambling Community Benefit Fund• $21,329 was provided to Adept Gardening Service and used for the purchase of a Toro 27hp ride on lawnmower and transport trailer.• $12,706 has been provided for the purchase of technology and educational equipment for Child andFamily Support Services, Chermside.• $29,260 has been provided for the purchase of telerehabilitation units for Research and EthicsCommittee.Titan Foundation• Thanks to the generosity of the Gold Coast Titan Foundation. Reverse cycle air conditioning isnow available in each of the six self-contained Labrador Holiday Units. This donation is valued atapproximately $12,000.League News Volume 32 Edition 2, 2008 - Page

Connect withLivewireMAKE new friends, banishboredom and have loads of fun onLivewire!New online community Livewire,www.livewire.org.au, is the placeto meet and interact with otherteens around Australia whounderstand what it’s like living withserious illness or disability.Members can catch all the latestnews, reviews and interviews,start a blog, have their say inthe forums and enter greatcompetitions! The live Chat Roomis where it’s at - a chance to makenew friends plus catch specialguests and events hosted by theLivewire Chat Hosts every day.Livewire is a safe and positiveenvironment, giving membersthe opportunity to break throughtimes of isolation to share theirexperiences, support each otherand realise their dreams andpotential.Membership is free and open toany 10 to 18 year old living withserious illness or disability.Just visit www.livewire.org.au tofind out more about the communityor register.SCREECH Theatre is warming up for another yearand they want you on stage and not on reality TV.Screech Theatre is calling for high school agedstudents with and without disabilities interested inCPLQ Library updateBy Deborah Cronan, Information andResource CoordinatorWhat is Web 2.0?WEB 2.0 is described by Wikipedia as “asecond generation of services available onthe web that lets people collaborate and shareinformation online”.Web 2.0 is about creating interesting user experiences through providinginteractive tools and services.There are a variety of Web 2.0 innovations. Among them are Yahoo’sbookmark-sharing and tagging Web site del.icio.us and photo-sharingapplications such as Fickr. MySpace, Facebook, YouTube and Bebo areseen as places to meet friends, share ideas, favourite music and videos.The three popular Web 2.0 technologies include:Blogs and BloggingShort for web log, it is a website which is commonly used to providechronological diary entries. For example blogs can be used for a varietyof purposes including reflective learning by students and researchers, orallow friends an insight into your experiences whilst travelling. You cancreate your own blog, visit Blogger.com or WordPress.com -https://www.blogger.com/start, http://wordpress.com/WikisWikis comes from the Hawaiian phrase “WikiWiki” meaning quick or fast.A Wiki is web page whereby every visitor could be either a reader or anauthor. Anyone with access can either edit or add to any page of a wiki.The best known example is WikiPedia, an online encyclopediahttp://en.wikipedia.org/wiki/Main_PageMashupsA mashup is a web application that combines more than one source,generally a combination of data from sources that are open to all webusers. An example of this is Google Maps http://maps.google.com/For more information about Web 2.0 phone theCPLQ Library on 07 3358 8096.Screech Theatre takes on reality TVwriting and acting in a new show based around thetheme “This is not reality TV”.“No performance experience is required as Screechis about using the skills young people already haveand developing new ones,” said Fay Carver, ScreechTheatre Coordinator.“This is a great opportunity to find out what ittakes to put a stage show together and learn fromprofessional artists.“Performers will be given the theme ‘This is NOTreality TV’ and then are given total control over theplot and story.”Weekly workshops begin on Saturday 19 July andconclude Saturday 13 September and run from 10amto 1pm.If you are interested in Screech Theatre call FayeCarver on 07 3347 7200. Places are limited!Page - League News Volume 32 Edition 2, 2008

Author of The Ice-Cream Man Jenny Mounfield with son Daniel.My son inspired a thrillerIN his eighteen years Daniel hastaught me many things. But thelesson that shines most brightlyis: Disability is in the mind of thebeholder.Disability. What is it, really? Ifdisability is that which limits us,then surely we are all disabled inone way or another?When my first born came into theworld eleven weeks early, I fearedthe worst. As the months passed,on the floor, but it left him with aninfection that lasted months androbbed his muscles of strength.The boy who could once run ablock on his toes in less than aminute, now took the best part ofhalf an hour to navigate the samedistance with the aid of splints anda walker. Daniel, ever the trooper,persisted without improvement,always struggling to catch up tohis mates, always exhausted.“Daniel, ever the trooper, persisted without improvement,always struggling to catch up to his mates, alwaysexhausted. Then one day he announced he’d hadenough and he wanted a wheelchair.”have cerebral palsy. However,unlike the character Marty myson Daniel has always been atease in his own skin. Marty’sinsecurities and overdevelopedneed for acceptance stem frommy own mind. While I didn’t writeThe Ice-Cream Man specificallyto highlight cerebral palsy, I nowsee how crucial this character is.If just one kid reads this story andfinds his or her view of disability ischanged, I’ll be happy with what Ihave achieved.10 percent of the author’s royaltiesearned from sales of, The Ice-Cream Man will be donatedto Cerebral Palsy League ofQueensland.To purchase a copy ofThe Ice-Cream Man visitwww.fordstreetpublishing.comit became increasingly obvious tohis father and me that there wassomething wrong. The words,cerebral palsy, when they came,affected me in much the same waythe word cancer might. I saw it asa label that would for ever mark myson as different. But another thingDaniel has taught me is that alabel is only yours if you want it.Over the years Daniel wentthrough the usual rounds ofphysio, plastering and splintingwith mixed results. In 2000, atthe age of nine, he had his firstsurgery ‘to get him off his toes’.The surgery was successful in thatit enabled Daniel to place his heelsThen one day he announcedhe’d had enough and he wanteda wheelchair. So, we bought himthe flashiest chair we could findand rather than being an ending, itheralded a new beginning. Withina week Daniel was tearing throughschool, bunny hopping over guttersand waiting for his mates to catchup to him. For the first time in hislife, he was free.The Ice-Cream Man, a novel foryoung adults, is another thing Ihave to thank my son for. Theidea for the thriller evolved froman incident involving Daniel anda friend. It seemed natural forone of the main characters toIce-Cream MancompetitionTO win one of three copiesof The Ice-Cream Man, visitwww.cplqld.org.au, follow thecompetition links and tell us in25 words why you would likea copy of the Ice-Cream Man.Competition closes Friday July26 at 4pm. Winners details willbe posted in the next edition ofLeague News and notified byphone.League News Volume 32 Edition 2, 2008 - Page

A helpful companion toyour Will and your EnduringPower of Attorney...Please send me aPersonal Record BookTitle: .....................................Name: ...................................Address: ............................................................................................................................Phone: ..................................Email: ...................................Send slip to:Donor Relations ManagerCerebral Palsy LeagueReply Paid 386Fortitude Valley Q 4006Phone: 1800 819 086The residents of Orchid Housein Caloundra can now enjoy acomfortable 24 degrees all yearround thanks to the installation ofbrand new air conditioners.The air conditioners, along withceiling fans, were installed onSaturday 17 May by the GoodLife Baptist Church. They alsoorganised the items sponsorship.The air conditioners were installedin the bedrooms, with the ceilingfans in the living areas.Geoff says goodbyeAfter more than eleven yearsworking at the League, I havedecided that it is time for me tomove on. I have recently accepteda newly created position at theEndeavour Foundation.In leaving I wanted to take theopportunity to reflect on my timeat the League, as well as saying‘goodbye’ to the many people thatI have had the opportunity to workwith over this time.In April 1997 I commenced in therole of Regional Manager AdultsSouth, having moved from thestate government. Over the yearssince 1997 I have had the fortuneto undertake the role of RegionalManager Adults North, movinginto my current role of ManagerService Development and Policy inmid 2001.Like many of you I have seen hugechanges at the League during thistime. The Leagues’ budget hasincrease by almost400 percent; we have seenincreases in the range andnature of many League services;expanded into new geographicareas; met the new compliancerequirements of government,and truly become a leader inthe provision of quality disabilityservices in Queensland.Despite all of this, regrettably thereOrchid House just got cooler“It was a busy day with plenty oftime for laughter, jokes and a snagfrom the barbeque”, Orchid Houseresident Simon said.“I would like to thank the Good LifeChurch for all their hard work”, hesaid.The Good Life Church’s nextproject is to create a garden forthe residents of Orchid House.The Cerebral Palsy Leaguewould like to thank Peter Hannanfrom the Good Life Church foris still a very high level of unmetneed and services for childrenare yet to receive the priorityfrom government that they reallydeserve.I would like to thank those clients,families and staff of the Leaguewho have allowed me the privilegeof being part of their lives. I willmiss the ‘League Family’, as mytime at the League will always holda special memory for me.Geoff RoweManagerService Development and Policyorganising the sponsorshipof the air conditioners fromBuilders Renovations WarehouseBrendale, the ceiling fans fromHayman Electrical Maroochydore,and coordinating volunteers on theday.Orchid House is part ofthe Cerebral Palsy Leagueof Queensland’s AdultAccommodation Service at theSunshine Coast.Page - League News Volume 32 Edition 2, 2008

Peter, Sara and Denise Wyatt at Art for Art’s Sake.Art for Art’s Sakeraises $45,000THE Cerebral Palsy League’s annual art exhibition and charityauction has raised approximately $45,000 to help improve the lives ofQueenslanders with a physical disability.The Art for Art’s Sake: New Beginnings exhibition and auctionincluded donated artworks from 30 well known Queensland artists,including David Hinchliffe, Kit Campbell, Sara Wyatt, Robert Coleby,Banx, and Kendall.Over 150 of Queensland’s “who’s who” gathered at Brisbane’sWaterfront Place on Wednesday 28 May for the art auction, with allproceeds going to the Cerebral Palsy League of Queensland.This year’s exhibition raised a record $45,000, according to the CEOof the League, Ms Angela Tillmanns.“We’re thrilled by the support and generosity at this year’s event,” saidMs Tillmanns.“Fundraisers like Art for Art’s Sake mean the League can continueto provide a new beginning for people with a disability through vitalequipment, facilities and services.“A huge thank you must go out to all guests who attended the auctionand dug deep, as well as the very generous artists who dedicatedsignificant time, effort and resources into producing their amazingartworks,” she said.Anthony DJ Rigby Insurance and Investment Services and theAMP Foundation sponsored the event for the third year running,contributing a generous $15,000 which ensured the success of theevent.Cascade Textilesartistic designsAn exciting new range of interiorand fashion textile products haveemerged under the banner ofCascade Textiles.The textile products have evolvedfrom the artistic program, atCascade Services in Redcliffe,where they were designed andprinted by clients (artists) with thesupport of staff and volunteers.Clients were given professionaltutelage by professional interiorand fashion designers IanWrightson, Steven Stewart andMaria Nelson.Products on offer includeprinted cushions, skirts and wallcanvases, ranging in price from $5to $25.“The beauty of the products isthat they are unique with notwo the same,” said CascadeServices Program Manager, DillionCarlsson.“They make great gifts. That is ifyou can bear to part with them,” hesaid.For more information onCascade Services phone07 3284 6787.League News Volume 32 Edition 2, 2008 - Page

North Queensland children gain greatermobility, thanks to new servicesCEO, Angela Tillmanns at theopening of Townsville’s Childand Family Support Service.YOUNG North Queenslandchildren with a disability have beengiven the opportunity to walk andtalk for the very first time in theirlives, thanks to two new earlychildhood services in Townsville.This includes two-year oldTownsville resident Tahlea Russell,who in just eight short weeks,has learnt to walk for the veryfirst time using a walking deviceand has recently improved hercommunication skills.Tahlea’s two momentousachievements have been madepossible through the CerebralPalsy League’s Child and FamilySupport Services in Townsville,which have been funded byDisability Services Queenslandand local community support.Prior to the services beingavailable, Tahlea, who hascerebral palsy, was unable to walkor communicate clearly.The new service was officiallylaunched in Townsville onThursday, 20 March by Minister forDisability Services Lindy Nelson-Carr.Tahlea’s mum Rochelle Russellsays the services have providedwelcome support to fast-track herdaughter’s development.“Tahlea was diagnosed withcerebral palsy at ten months oldand since then her developmenthas been frustratingly slow,” saidRochelle.“Since the League’s full-timeservice opened, it has ignited afire in me and provided a light atthe end of the tunnel for Tahlea’sdevelopment,” she said.The League’s Child and FamilySupport Services will offer fiveday-a-weeksupport to some 130families who have a child withcerebral palsy within a 150kmradius of Townsville, with outreachservices to Mt Isa and Cairns.Services take a collaborativeapproach with families and workwith children as early as possibleafter diagnosis to maximisetheir development and learningopportunities so they can reachtheir fullest potential.Services provided include aphysiotherapist, occupationaltherapist, social workers, speechand language pathologists,an information service and anequipment library with wheelchairsand other specialist devices.CCC tour gives regional clients a greater voiceIn April, then newly appointed CEO of the CerebralPalsy League Angela Tillmanns visited services in theWide Bay and Central Queensland region.The tour coincided with the first ever regional ClientConsultative Conventions (CCC) for people with adisability, held in Hervey Bay (Tuesday, 8 April) andRockhampton (Thursday, 10 April).The conventions covered issues to help improve thequality of lives for over 200 local residents with adisability, including transport and mobility.“It has been great to meet clients face to faceand discuss issues that are relevant to them”, MsTillmanns said.“By establishing Client Consultative Committees inthese regions we hope to give clients of the Leaguea greater voice in the way in which services aredelivered to them.”The Cerebral Palsy League provides servicesand support in these regions, including adultaccommodation, day services, in home support,therapy and social work.CEO Angela Tillmanns, CCC Chair TerryDonaldson, Regional Manager David Robinsonand League client Mark Farrell.Page 10 - League News Volume 32 Edition 2, 2008

In search of Miss QueenslandThe Cerebral Palsy League of Queensland is calling on “long lost” MissAustralia winners to step forward to help celebrate our 60th anniversary.Celebrating its 60th birthday this year, the Cerebral Palsy League is onthe hunt for former Miss Australia winners, particularly those living inQueensland, to help join in the anniversary activities.The Miss Australia Quest began in 1954 to celebrate the successof young Australian women and went on to become one of the mostsuccessful fundraising events in Australian history.The Quest was conducted throughout the country to raise funds for thecare and welfare of children and adults with cerebral palsy.To date, the Miss Australia Quest has raised close to $90 million for thecause Australia wide.CEO of the Cerebral Palsy League, Ms Angela Tillmanns, says she ishopeful to locate these significant contributors in time for the charity’sbirthday celebrations.“Miss Australia is a key part of the Cerebral Palsy League’s history andan imperative part of the success we have enjoyed to date,” said MsTillmanns.“Many of our former Miss Australia’s have married, changed their nameand address and it’s hard for us to keep in touch to communicate ourvote of thanks.“The Quest had a spirit of friendship, camaraderie, generosity andcompassion and we’d love to have those contributors present at our 60thcelebrations this year,” she said.The Cerebral Palsy League kicked off its 60th celebrations with abirthday party in late June to launch a state wide appeal focusing on thegrowing needs of people with a disability in regional centres throughoutQueensland.If you are – or are in regular contact with – a former Miss Queensland orMiss Australia, please contact the Cerebral Palsy League of Queenslandon 1800 819 086 or register your details on www.cplqld.org.auPower to the people – Integrated wheelchair controlsBy John Pashen and Vicki Robinson, Technology Support ServiceIntegrated power wheelchair controls offer an individual the flexibility and ability to operate multiple devicesfrom the comfort of their power wheelchair.Such applications include speech generating devices, computers and environmental control options, such as atelevision, DVD, stereo and lights.The flexibility of current integrated powered wheelchair controls is such that an individual can operate morethan one device from a single control point at any given time. This allows the person operating the wheelchairto perform multiple tasks such as operate a communication device, turn on a television, switch the lights on oroff, or even emailing a friend, all from a power wheelchair joystick or switch.Integrated power wheelchair control systems available include:•••Q-Logic with enhanced display which is available on some Quantum power wheelchairs.Delphi Electronics with enhanced display which is available on some Sunrise Medical power wheelchairs.Click-to-Go and Genie Joystick master remotes which is available for use on power wheelchairs using aDynamic operating system.For more information on Integrated Power Wheelchair Control Systems please contact your localtherapy team or Technology Support Services on 07 3637 6376.League News Volume 32 Edition 2, 2008 - Page 11

Australian firstfor LeagueBy Dr Leanne Johnston, ClinicalResearch ManagerCongratulations toKaty Caynes, Senior SpeechPathologist, who has recentlycompleted training earning theprestigious and internationallyrecognised title of a Bobath NeuroDevelopmental Therapy (NDT)Speech Pathologist Instructor.Bobath Therapy is an approachused to treat cerebral palsy andother neurological disorders.It incorporates elementsphysiotherapy, occupationaltherapy and speech pathologyand requires parents or carers toimplement therapeutic routinesinto daily routines.The ultimate goal of the therapyis to maximise muscle controland give the individual bettermovement.This achievement makes Katy theonly currently practising BobathNDT Speech Pathology Instructorin Australia.Now that Katy has gained herinstructor qualifications she will beinvited to teach on future Bobathcourses held within Australia andNew Zealand.Katy is available to offer individualBobath NDT intervention for clientsand families through the League’sCapability Queensland privatetherapy service.For more information onTherapy and CapabilityQueensland Private TherapyService phone 07 3358 8011Your League, your storiesAS part of the 60th celebrationsthe State Client ConsultativeCommittee would like you toshare your thoughts, stories andexperiences from your time at theLeague.You could share the experience ofcommunicating for the first time,CPLQ establishes Ethics CommitteeBy Dr Gabrielle Rose, Policy and Research OfficerAn ethics committee has been established to promote and safeguardthe dignity, rights and well being of the League and its clients. It willachieve this by providing a research governance framework, ethicalguidelines, education in ethical principles, and the necessary resourcesto monitor and implement ethical decisions.Members of the Ethics Committee have scientific and legal expertisewith diverse backgrounds, a balance of age, gender and ethnicity.Clients and laypersons are also represented in the committee.The Ethics Committee is registered with the peak national bodyoverseeing ethics, The National Health and Medical ResearchCommittee (NHMRC).The Ethics Committee aims to:..3.4.5.Rev Illtard Loveluck (back row left), Michael Klatt, Professor JillWilson, Associate Professor Marie Knox, Dr Leanne Johnstone(front row left), CEO Angela Tillmanns, Dr Gabrielle Rose (chair).Absent: Simone Doghue, Dr Gary Allen.Operate in line with ethical guidelines set out by the National Healthand Medical Research Council (NHMRC).Ensure that guidelines are understood and accepted by CerebralPalsy League of Queensland staff, and the wider community.Provide a mechanism for arranging consultation on ethical problems.Periodic review of ethical decisions taken to ensure they fall withinthe guidelines provided.Review research protocols and the conduct of research withinCerebral Palsy League of Queensland.All research conducted at the League will be considered by the EthicsCommittee and as such will have undergone ethics scrutiny before beingcarried out. This will ensure the research carried out is of the highestquality standard for staff and clients.interesting characters you havemet or simply express what theLeague means to you.Your thoughts may then be sharedon the 60th Birthday facebookpage (http://www.facebook.com/group.php?gid=10465539965)with some stories used in thecommemorative edition ofLeague News and during 60thcelebrations.To share your story email theChair of the State CCC,Terry Donaldson onstateccc@cplqld.org.auPage 12 - League News Volume 32 Edition 2, 2008

Staff Recognition of Excellence AwardsThe team from Ipswich Child and Family Support Services (CFSS) wereselected as the winner of the “Recognition of Excellence Award” for theJanuary to March 2008 quarter.CFSS Coordinator, Alyson Glare nominated the team from Ipswich fortheir hard work and commitment to the job.The Ipswich CFSS team includes Sonia Bowman-King (Social Workerand Team Co-ordinator), Tim McGowan (Physiotherapist), AliceJefcoate (Occupational Therapist), and Michelle Cooney (AdministrationAssistant).“They have managed a huge workload providing vital outreach servicesto the Mackay area with a vacancy for some time,” Alyson said.“They have all performed their work with great skill and dedication to thetasks at hand.”Other staff members nominated includes:Leann HolmsMoorooka Day ServiceHuong TranAdult Accommodation Service- SevenoaksBarbie KerleToowoomba RegionDeanne WhitelyToowoomba RegionPenny AtfieldService Development and PolicyWendy TullyHuman ResourcesCharles Standford and Associates are offering supporters of theCerebral Palsy League of Queensland excellent savings in preparingtheir 2008 income tax returns.The offer includes:••••Rachna ParekhLeague Adult AccommodationService - MoorookaHina SimziaLeague Adult AccommodationService - MoorookaSimon BakerSpringfield Community andDay ServiceSheridon ByrneAccess - NorthMary LangAccess - SouthTax time savings for League supportersFree 30 minute initial consultation to discuss your tax concernsIndividual tax returns priced from $80.Sole trader tax returns priced from $165.No need to leave the privacy of your home.Ongoing support with future tax queries.•The prices quoted above cover wages and salary income forindividuals and business income for sole traders only. Investmentincome and calculations for other government departments (Centrelink,etc) is excluded from these prices.In addition to the offer made to you, Charles Standford and Associateswill donate 20% of your accounting fee to the Cerebral Palsy League ofQueensland.With staff and associates being members of the National Institute ofAccountants and Registered Tax Agents you are assured of obtainingthe maximum refund possible in your individual situation.Please phone Ray on 0434 540 834 to make your confidentialappointment ensuring that you mention the Cerebral Palsy League ofQueensland to take advantage of this special offer.Volunteer updateBy Jessica Panter, VolunteerCoordinatorOne in a Million BreakfastNew Farm League Volunteers(below), Anne Low, PeterRutherford, Lorraine Christiansenand Julie Dore, got together tocelebrate National VolunteeringWeek, at the recent ‘One in aMillion’ breakfast.The breakfast was held at theBrisbane Broncos Leagues Club,with volunteer representativesfrom over 300 non-profitorganisations in the Brisbane areaattending.Carpentry skill used for a goodcauseDoug Lawrie is happy to put hisskills as a qualified builder to agood cause helping League clientsand staff.Initially assisting clients in theirhomes by installing key locks,Doug has been flat out meetingthe need for footstools and monitorstands around the League.Each footstool and monitor standis made with specific dimensionsat the special request of Leagueservices and clients.Since last September, Dougwith the assistance of his goodfriend Tom Macheroni, has madeover one hundred footstools andmonitor stands.The quality of the carpentrywas noted by League CEO,Angela Tillmanns saying thatthe footstools were “beautifullycrafted”.For information on how tobecome a volunteer pleasecontact Jessica Panter on07 3358 8008 or emailjpanter@cplqld.org.auLeague News Volume 32 Edition 2, 2008 - Page 13

Friendship Bank – A little change goes a long wayYour spare change and notescan go a long way to change thelives of people with a disability.The Friendship Bank program hasbeen part of the Cerebral Palsyfundraising landscape for the past48 years.As the years have passed theconcept has remained the samewith supporters of the Leagueputting out tins to help those withcerebral palsy.Today, the traditional methodsof gaining new friendship bankmembers, through door knockingand word of mouth, have beenreplaced by telemarketing.Telemarketing has the potential toreach thousands of new “friendshipbankers” on a daily basis.Friendship Bank is one of theeasiest ways to support a charity.A collection tin is left in thehome or business allowing youto fill it to your own level at yourconvenience.Tins are collected systematicallyevery four months. When amember of our Friendship Bankteam is in your area you arecontacted by telephone, with acollection then arranged for thefollowing day.The contents of the tin are emptiedby the collector and a receipt forthe tins contents is sent to you,normally within the week.All Friendship Bank collectors carryofficial identification for securitypurposes.If you are interested in becominga Friendship Banker contact theMarketing and Fundraising on1800 819 086 or visitwww.cplqld.org.auJust a simple daily actionIt is amazing how quickly the contents of your Friendship Banktin add up over a couple of months. With the simple daily actionof putting your loose change into the tin you can raise:•••20c a day over 4 months = $2450c a day over 4 months = $60$1 a day over 4 months = $120For every old mobile phonedonated through speciallymarked satchels and bins,the Cerebral Palsy Leaguereceives between $3.00 and$5.00 from the AussieRecycling Program.Phone 1800 819 086 or visitwww.cplqld.org.au/mfr/arpForeign coins can make a differenceNearly everyone has coins from another country put awaysomewhere in their house. They might be left over from a trip abroador just wrongly given as change at the shop and there is nothing youcan do with them.Foreign coins cannot be exchanged for Australian dollars throughthe regular banking methods. However, your loose foreign coins canmake a difference to the Cerebral Palsy League who can exchangethem for Australian dollars.It is easy to make your foreign coins count:. Separate your foreign coins from your Aussie coins.. Put them in a clip seal bag.3. Give them to a Friendship Bank collector or leave them with yourtin when it is ready for collection.For more information about the Foreign Coin Collection Drivecontact Marketing and Fundraising on 1800 819 086 or emailfriendshipbank@cplqld.org.auPage 14 - League News Volume 32 Edition 2, 2008

Upcoming eventsSuzanne McGreevy (left), Niki Portland and Mary Alburypresenting their first radio show.Radio show makes disability connectionsA revolutionary radio program hosted by Queenslanders with a physicaldisability will shed new light on the challenges faced by people withspecial needs.The specialised radio program was launched in Springfield onThursday 5 June by presenters Niki Portland, Suzanne McGreevy andMary Albury, who all have cerebral palsy.Issues such as employment opportunities for people with a disability,the services available to people with a disability, and communicatingthrough the stigma of a disability will all be up for discussion.The program will be broadcast via Springfield’s University of SouthernQueensland’s (USQ) internet radio station Phoenix Radio.USQ lecturer Ashley Jones initiated the community project to givepeople with disabilities a voice, working in conjunction with the CerebralPalsy League of Queensland’s Springfield Day and Community AccessService.“Living with a physical disability throws up a multitude of uniquechallenges for thousands of Queenslanders,” said Mr Pedro Guillen-Cordon, Manager of Springfield Day and Community Access Service.“This new radio program gives a voice and an ear to those facing andovercoming these challenges on a daily basis.“It also highlights that people with a disability have a wide range ofuseful skills and abilities to offer the community.“We applaud USQ for this great community initiative that will alsopromote a greater appreciation of people with special needs,” he said.USQ Lecturer Ashley Jones said USQ is delighted to partner with theCerebral Palsy League to provide a much needed resource for alldisabilities to support the Ipswich community.“The uniqueness of a community station is that it provides opportunitiesfor programs such as this, that would not likely occur in more a moretraditional radio setting,” said Mr Jones.The program will run weekly on Fridays from 1:00 pm and can beaccessed via USQ’s fully digital radio station at www.usq.edu.au/phoenixradioArtel Arts Studio and MercuryCentre album launchArtel Building – Cascade Services,16-18 Silvyn Street, RedcliffeThursday 17 July11:00am to 3:00pmContact: 07 328 46787Luxfield CommunicationsCharity Golf DayBundaberg Golf ClubFriday 18 July 200811:00am to 10:30pmContact: 0437 186 655Art from the margins exhibitionAlbert St Uniting Church, Cnr Annand Albert Sts BrisbaneFriday 25 July to Friday 28 JulyContact: 07 3284 6787Cerebral Palsy Awareness WeekSunday 3 August toSaturday 9 AugustContact: 1800 819 086 orwww.cplq.org.auPicnic in the Park9 August 200810:30am to 2:00pmRoma Street ParklandsContact: 07 3358 8049League News Volume 32 Edition 2, 2008 - Page 15

Please help the CerebralPalsy League empowerpeople with a disabilityCerebral palsy is the most commonphysical disability in childhood. Causedby damage to the developing brain,it can impair walking, cause a lackof muscle coordination, spasms andspeech difficulty.Providing services to families affectedby cerebral palsy costs the Leaguemore than $45 million yearly andwhile it receives government funding,community support is vital to makingup the difference.Donate Onlinewww.cplqld.org.auGetting ready to hit the water: Julie Evans (left), Paul Evans,James Tod, Rob Storer and Annika Storer.Cheque or Money OrderPlease accept my donation of:¨$125 ¨$75 ¨$300 ¨$Other¨Please find enclosed my cheque/money order made payable to:Cerebral Palsy League of QueenslandCredit CardPlease debit my credit card:¨Master ¨Visa ¨Amex ¨DinersCard number:_ _ _ _ / _ _ _ _ / _ _ _ _ / _ _ _ _Cardholder’s name:_____________________________Cardholder’s signature:_____________________________Expiry date:____/____Name:________________________Company: _____________________Address:______________________Suburb: _______________________State:__________Postcode:_______Phone: (___) ___________________Email:________________________I would like further information on:¨Leaving a gift in my will¨Volunteering¨Queensland Cerebral Palsy Register1800 819 086www.cplqld.org.auPage 16 - League News Volume 32 Edition 2, 2008Jetski fundraiser rally empowerspeople with disabilitiesSome of Queensland’s leading watersports athletes took to the water onSunday, 4 May for the inaugural Honda Jetski Shop.com “nudieRun” onthe Gold Coast.Launching from the Gold Coast Spit, the “nudieRun” jetski rally raisedalmost $3,000 for the Cerebral Palsy League of Queensland.Over 50 riders participated in the rally which included a treasure huntfor prizes, including fuel vouchers and nudie drinks, donated by majorsponsor nudie.It was also a special day for Gold Coast residents Annika Storer(five years) and Julie Evans (16 years) - who both have cerebral palsy- as they enjoyed the freedom and excitement of riding on a jetski on thefirst leg of the rally.The fundraiser was an initiative of Jetski Shop.com owner James Tod,who supports an ongoing fundraiser for the Cerebral Palsy League.“James has shown outstanding support for the League. He’s spent manylong hours organising this event and drumming up local support,” saidthe Cerebral Palsy League’s Brett Lucas.“This type of generous support helps us continue to offer services thataim to improve the lives of Queenslanders with cerebral palsy.“This includes 200 Gold Coast residents with a disability,” he said.All funds raised by the rally benefit clients of the League, which providesservices and support to over 3,000 Queenslanders with cerebral palsyand related disabilities.