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breastscreen aotearoa an independent review - Ministry of Health

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14. RELEVANCE OF THE GISBORNE INQUIRY RECOMMENDATIONSTO BSA14.1 The Terms <strong>of</strong> Reference <strong>of</strong> this Review specifically asked for <strong>an</strong> opinion onwhether <strong>an</strong>y <strong>of</strong> the Gisborne Inquiry recommendations, (See 2. Above), were relev<strong>an</strong>tto BreastScreen Aotearoa. The Gisborne Inquiry made a total <strong>of</strong> 46recommendations, most <strong>of</strong> them specific to the National Cervical ScreeningProgramme <strong>an</strong>d the possible failure <strong>of</strong> cervical smear reading in New Zeal<strong>an</strong>d, butsome relev<strong>an</strong>t to <strong>an</strong>y screening programme including BSA. The latter group aresummarised below.Gisborne Recommendation 11.7. An <strong>an</strong>nual statistical Report should be produced.The IMG Reports, which have been produced 3-monthly, are statistical reports onBSA. A more formal report covering the first full round <strong>of</strong> screening (i.e. 2 years) isin draft form. Subject to the minor revisions suggested in Section 8 above, thestatistical monitoring <strong>of</strong> BSA is satisfactory.Gisborne Recommendation 11.9. BSA has already set a minimum number <strong>of</strong> womento be screened by each participating radiologist each year.Gisborne Recommendations 11.11 to 11.13. The National Screening Unit now meetsthese requirements, with the exception that the m<strong>an</strong>ager does not hold specialistmedical qualifications in public health or epidemiology. Given the complexity <strong>of</strong> theM<strong>an</strong>ager's role, in m<strong>an</strong>aging the funding <strong>of</strong> providers <strong>of</strong> screening, developinginformation systems, ensuring quality st<strong>an</strong>dards are met, m<strong>an</strong>aging improvements<strong>an</strong>d ch<strong>an</strong>ges to both programmes, responding to political <strong>an</strong>d media questions, <strong>an</strong>dmore, I do not consider that this role is exclusively the province <strong>of</strong> a public healthspecialist. Public health advice is certainly needed, but the person in charge must first<strong>an</strong>d foremost be a competent m<strong>an</strong>ager with ability to communicate effectively <strong>an</strong>dstrongly, not only with the National Screening Unit staff, but also with the providers<strong>of</strong> screening, the Groups who audit <strong>an</strong>d monitor, <strong>an</strong>d. others with <strong>an</strong> interest in bothprogrammes. I consider that the present m<strong>an</strong>ager has all the desired qualities.Gisborne Recommendation 11.16. Although the BSA Independent Monitoring Grouphas obtained approval to link the records <strong>of</strong> women screened in BSA with the C<strong>an</strong>cerRegistry, this was done under the guise <strong>of</strong> a research project, which it is not - it is avalid <strong>an</strong>d necessary part <strong>of</strong> auditing the programme. (See 8.5 Above) The legalrights <strong>of</strong> access to information held on the c<strong>an</strong>cer registry, by appropriatelyqualified people engaged by the <strong>Ministry</strong> <strong>of</strong> <strong>Health</strong> to evaluate screeningprogrammes still need to be clarified.Gisborne Recommendation 11.20 Ethics committees require guid<strong>an</strong>ce on theapplication <strong>of</strong> the Privacy Act <strong>an</strong>d the Privacy <strong>Health</strong> Information Code. In additionto this recommendation they also need to develop a policy on the bal<strong>an</strong>cebetween protection <strong>of</strong> the health <strong>of</strong> the public <strong>an</strong>d the privacy <strong>of</strong> the individual.Gisborne Recommendations 11.26 to 11.27. Interim Quality St<strong>an</strong>dards were in placefrom the start <strong>of</strong> BSA, <strong>an</strong>d these are now about to be replaced by a revised set. Theneed for Quality st<strong>an</strong>dards to be updated at intervals is recognised.37

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