MSSANT Network Winter 15 WEB NEW 220615

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From the desk of the CEO Marcus Stafford On 27 May, we celebrated World MS Day. It’s a big day, with the dominant objective focused on reminding the general population that people with MS are part of our community. Sometimes their disabilities are clear to see; sometimes people are fighting their own hidden battles. Everyone has a unique and personal journey. On this day, the MS community comes together to share stories, raise awareness and crusade with, and for everyone affected by MS. As a consequence we have adopted the theme ‘Stand Up to MS’. It is a theme that champions empowerment and creates a spirit that is relevant for all. The message is simple. Perhaps you are a nineteen year old young woman, diagnosed yesterday. Or perhaps you were diagnosed forty years ago and now find yourself in a wheelchair. Or perhaps you are a busy able-bodied worker doing the Adelaide commute every day. Without boundaries and without temerity, let’s Stand Up to MS. The action comes in many forms and is spread evenly between the provision of healthcare services to build today’s quality of life and the commitment to research to create a future world free from MS. We are very proud to say that the MS community in South Australia rallied behind us and we were able to pull off a successful campaign. You may have seen us out and about during the week of World MS Day. We held a street appeal at Adelaide Central Market and on Rundle Street, shaking tins, handing out Stand Up to MS stickers, and chatting to anyone who wanted to listen! The Multiple Solutions team also joined in on fundraising efforts with their own street appeal. It was lovely to see the team get behind our campaign and we thank them for their continuous support. It was a great day for all and the positive feedback we received made it all worthwhile. All money raised through the campaign will support people living with MS in SA and NT. We are working hard to rebuild and expand our services to our Clients. Already we have been able to re-establish a number of services through our events and crowdfunding campaigns. But this can’t be done without ongoing support. Next year, we hope to expand our activities around SA and NT and make World MS Day a stand-out event. So – don’t be shy! If you’d like to get involved, please let us know. The more the merrier; the bigger the better! Let’s Stand Up to MS. 4 Winter 2015 The MS Society of South Australia & Northern Territory
A message from the General Manager – Client Services Sue Shapland “Those who can adapt to change are those who will continue to grow,” Justin Ramalho Well never a truer word spoken and very pertinent at this time! Change is the one constant and we are experiencing ongoing change across the board currently. In the MS world there are three new therapies available and additional international research efforts focusing on progressive MS. Of course the biggest and most significant changes that will come about will relate to the evaluation of the various NDIS trial sites and how the model will look and be rolled out. However the scheme ultimately looks, the outcomes for people who do, or may need a wide range of supports or equipment will be so much better under these changes. Already in WA we are seeing some of our Members within both of the trial sites accessing their new individual funding plans to their benefit. We are looking forward to plotting our new directions for MSSANT; expanding our capacity to support people living with MS. We will keep you posted with information and updates as they come to hand. I would like to thank everyone who took the time to provide us with their feedback through our first annual Client Services Survey. We are currently finalising the results and will be happy to share these with you in the next Network. Don’t forget flu season is on the way. Have you had your flu jab? We have added some tips on trying to avoid the flu in this edition. Please remember the Client Services team, including Amy on our MS Assist line, are here to provide you with quality information about all aspects of MS, treatments, research and support. Secondary Progressive MS Study • Are you aged 18 – 65 years? • Have you been diagnosed with Secondary Progressive Multiple Sclerosis (SPMS)? • Are you interested in a study investigating the efficacy of a new medication for SPMS? If you’ve said yes to any of the above, then you may be eligible to participate. For further information please call PARC on 8222 2712 This study has been approved by the Royal Adelaide Hospital Human Research Ethics Committee The MS Society of South Australia & Northern Territory Winter 2015 5
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MSSANT Network Winter 15 WEB NEW 220615

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