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Bulletin Magazine Bunuru / Second Summer 24

Welcome to the Bunuru / Second Summer 2024 edition of Bulletin. On the cover: Client art shines at the MSWA art exhibition, with thousands of visitors from near and far appreciating the showcase at the Mega Home Lottery Grand Prize Home in Marmion. Inside: MSWA provides Tysabri access Pauline and John Campbell: Love conquers all NDIS review to bring major changes A different approach to happiness

Welcome to the Bunuru / Second Summer 2024 edition of Bulletin.

On the cover: Client art shines at the MSWA art exhibition, with thousands of visitors from near and far appreciating the showcase at the Mega
Home Lottery Grand Prize Home in Marmion.

Inside:

MSWA provides Tysabri access
Pauline and John Campbell: Love conquers all
NDIS review to bring major changes
A different approach to happiness

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Client art shines at the MSWA art exhibition,<br />

with thousands of visitors from near and<br />

far appreciating the showcase at the Mega<br />

Home Lottery Grand Prize Home in Marmion.<br />

<strong>Bulletin</strong><br />

Inside<br />

YOUR MSWA MAGAZINE<br />

BUNURU | SECOND SUMMER 20<strong>24</strong><br />

mswa.org.au


Welcome to the <strong>Bunuru</strong> 20<strong>24</strong><br />

edition of <strong>Bulletin</strong>.<br />

WILSON CENTRE<br />

29 Parkhill Way<br />

9365 4888<br />

Contact Us<br />

If you would like to comment on anything you read in<br />

this <strong>Bulletin</strong>, please email bulletin@mswa.org.au<br />

For general feedback or complaints, please contact<br />

feedback@mswa.org.au<br />

<strong>Bunuru</strong> is the hottest time of the year, with hot easterly winds<br />

and very little rain. Traditionally, this is a great time to spend by<br />

Perth’s many bodies of water – the coast, rivers and estuaries.<br />

During <strong>Bunuru</strong>, the white flowering gums are in full bloom –<br />

look out for the ghost gums, marri and jarrah trees.<br />

Editorial Working Group<br />

Nicola Washington, Tony Millar, Emily Ace and<br />

Nicolette Murphy.<br />

Contributors<br />

Geoff Hutchinson, Carol Chong, Dajana Tesevic,<br />

Vanishree Chetti, Denise Vogels, James Beckett,<br />

Tracey Hockey, Misty Reinkowsky and Crystal Chan.<br />

Client Engagement Department<br />

Our experienced teams will provide you with<br />

personalised support throughout your service journey<br />

with MSWA. From helping you to access funding, to<br />

working with you to get the most from your selected<br />

services, our trained staff are here to help.<br />

For more information, please contact 9365 4888.<br />

Our services include:<br />

• Counselling, Peer Support and Health Education<br />

• Community Support & In-home Care<br />

• Dietetics<br />

• Occupational Therapy<br />

• Outreach<br />

• Physiotherapy<br />

• Social Welfare<br />

• Speech Pathology<br />

• Nursing<br />

• Support Coordination<br />

Nursing Support<br />

Our Neurological Liaison Nurses are usually the first<br />

point of contact after the neurologist’s diagnosis.<br />

Community Nurse: 9365 4888<br />

Monday to Friday (8.00am - 4.00pm)<br />

Outreach at MSWA<br />

If you live in Perth, Rockingham, Bunbury or Albany and<br />

are interested in a trial to experience the Outreach<br />

community, get in touch via outreach@mswa.org.au<br />

Employment Support<br />

The MSWA Employment Support Service is the only<br />

specialist employment service for people living with<br />

multiple sclerosis and other neurological conditions in<br />

Western Australia. Our team can help you to stay<br />

in your current job or find employment in the open<br />

labour market.<br />

Please call: 1300 865 209<br />

See all our supports and services at mswa.org.au<br />

Switch to <strong>Bulletin</strong> online today!<br />

Help us reduce our environmental impact by going<br />

digital and connect with more engaging content.<br />

Email us at marketing@mswa.org.au to sign up.<br />

PHOTO: Dylan Alcock<br />

Acknowledgement of Country<br />

In the spirit of reconciliation, MSWA acknowledges the<br />

Traditional Custodians of the many lands and language<br />

groups of Western Australia, and their connections to<br />

land, sea and community. We pay our respect to their<br />

Elders past and present, and extend that respect to all<br />

Aboriginal and Torres Strait Islander peoples today.<br />

2 3


From our CEO<br />

It feels too late to say Happy New<br />

Year but given this is our First<br />

<strong>Bulletin</strong> of 20<strong>24</strong> it is appropriate.<br />

For those who celebrate Chinese<br />

New Year, wishing you Gong Xi Fa<br />

Cai also, as we welcome the Year<br />

of the Dragon.<br />

It is also the Noongar season of<br />

<strong>Bunuru</strong> which is the second summer<br />

and the season bringing heat<br />

and little rain. We have definitely<br />

experienced this with an unusual<br />

number of extremely hot days,<br />

all of which affect everyone, but<br />

particularly those with MS and other<br />

neurological conditions. Hopefully<br />

as we head into April, it will cool<br />

down and we will see more rain. I was<br />

looking at our Noongar calendar in<br />

the office and it says it’s a time for<br />

long days fishing by the river.<br />

Inherent in that is community.<br />

This is something we have been<br />

reflecting on and discussing with<br />

our Client and community co-design<br />

committee. How do we recapture<br />

that sense of community that<br />

defined the MS Society in those<br />

early years? This is something we<br />

look forward to discussing with you<br />

in this period, getting your views on<br />

and expanding our efforts.<br />

Aligned with this is our commitment<br />

to co-design. Our co-design<br />

committee is now well established,<br />

and whilst we have a way to go<br />

to truly capture the essence and<br />

benefits of co-design, we have made<br />

very good progress. Using that as<br />

a foundation, we hope to now move<br />

forward to working with this core<br />

group to leverage the ideas and<br />

input of our wider advisory group<br />

and our full community.<br />

Having recently spent a couple of<br />

hours with one of the breakfast<br />

groups our Clients have formed,<br />

I was humbled yet again by how<br />

much you can learn from people<br />

who live with neurological conditions<br />

day in and day out, if you just stop,<br />

listen and truly appreciate their<br />

perspective. Thank you to those<br />

of you who invited me and were so<br />

open, kind and constructive.<br />

Our goal with co-design is to truly<br />

leverage the impact in a way that<br />

addresses the needs of both our<br />

Clients and community. I look<br />

forward to seeing this progress in<br />

the next six months and welcome all<br />

and any ideas that come out of it.<br />

In this period, we are also looking<br />

forward to engaging closely with<br />

our peak body, MS Australia, and<br />

the State and Federal governments<br />

to enact the recommendations<br />

from the Royal Commission and<br />

the NDIS review. In essence, we do<br />

think the NDIS review heard the real<br />

problems and agree largely with the<br />

recommendations. However, as they<br />

say, the devil is always in the detail.<br />

It is this detail in timing and<br />

allocation of supports between<br />

State and Federal governments<br />

that we are most focused on. We<br />

agree with the sentiment of personcentred<br />

care and capacity-based<br />

funding, but how that is done and<br />

when is really critical.<br />

I know the respective governments<br />

are also very keen to do this on a<br />

co-design basis and that means if<br />

you want to have a say, you should<br />

be able to. We will keep you posted<br />

on the opportunity to do so as we<br />

hear more.<br />

It was also a privilege to start this<br />

year with MSWA's inaugural art<br />

exhibition, hosted at the Mega Home<br />

Lottery Grand Prize Home.<br />

The depth of talent within our Client<br />

community never ceases to amaze<br />

us, so we were extremely proud to<br />

share your art with thousands of<br />

members of the public, so they could<br />

appreciate your creativity, too.<br />

It was a great joy to meet some of<br />

the artists during the home opens -<br />

I even managed to match some of<br />

the work on display! I look forward<br />

to meeting even more of you when<br />

the exhibition continues at Wilson<br />

Outreach in April.<br />

In January, I was completely blown<br />

away by the generosity of one of<br />

our late Clients, Ross Kennedy, who<br />

made a substantial gift in his will for<br />

the benefit of MSWA and our Clients.<br />

It was a privilege to meet his<br />

brother, Bruce, who worked<br />

tirelessly to ensure his brothers<br />

wishes were fulfilled.<br />

As an organisation, it is our sole<br />

purpose to support people living<br />

with neurological conditions, and to<br />

learn our team made such a positive<br />

impact on Ross' life filled us with<br />

great pride. Thank you, from the<br />

bottom of our hearts.<br />

Melanie Kiely CEO, Bruce Kennedy and Senior Events & Partnership<br />

Officer Danna Guzman.<br />

On a last note, we are aware that you<br />

might want to know more about our<br />

teams, our people and our leaders.<br />

In this edition, we profile our<br />

Deputy Chair Liam Roche. Our team<br />

have interviewed Liam and I am sure<br />

you, like me, will enjoy reading<br />

his interview.<br />

Melanie Kiely<br />

MSWA CEO<br />

4 5


Member & Client Services<br />

Welcome to the <strong>Bunuru</strong> / <strong>Second</strong><br />

<strong>Summer</strong> edition of our Member &<br />

Client Services <strong>Bulletin</strong>.<br />

As featured on our front page,<br />

a number of our Clients had the<br />

opportunity to showcase their<br />

incredible creative skills at the<br />

MSWA art exhibition in March.<br />

Take a look at page 30 to see some<br />

of these incredible pieces and book<br />

your place at the People’s Choice<br />

Award festivities on 21 May.<br />

NDIS News<br />

The final report of the Independent<br />

Review into the NDIS was published<br />

in December, listing four key<br />

review areas.<br />

• A unified system of support for<br />

people with disability<br />

• Markets and support systems<br />

which empower people with<br />

disability<br />

• Stewardship of the unified<br />

ecosystem<br />

• A five-year transition<br />

A more detailed update is provided<br />

by Geoff Hutchinson on pages 12<br />

and 13, and the QR code below<br />

provides an easy read of the review.<br />

It is important to note that these are<br />

recommendations and are still to be<br />

accepted by government, along with<br />

clarity on what will form the five year<br />

transition plan and what will be the<br />

priority. We look forward to seeing<br />

the next steps and a clear action<br />

plan for what is agreed.<br />

What’s coming up<br />

Tysabri Subcutaneous Injection<br />

Our nursing team will now be<br />

accepting referrals to administer<br />

the Tysabri Subcutaneous Injection<br />

since it has been approved on the<br />

PBS. We will be initially using our<br />

Wilson service centre as the base<br />

site for Clients referred for their fourweekly<br />

injection. This will also give<br />

Clients the opportunity to engage<br />

and connect with others while<br />

visiting our Wilson Centre.<br />

If you would like more information,<br />

you can call our nurse support line<br />

to speak to one of our nurses on<br />

9365 4888 or 1300 097 989.<br />

You can also read more about<br />

this on page 8.<br />

Meet our nominees<br />

The finalists and winners will be announced on 18 May at the WA Disability Support Awards Gala Dinner, and we are<br />

keeping our fingers crossed for our team.<br />

Randall Rooney<br />

Innovation in Service Delivery<br />

Melissa Coombs<br />

Emerging Leader<br />

Employment<br />

Services team<br />

Excellence in Rights Promotion<br />

NDS Disability awards<br />

I am proud to announce we have<br />

a number of our team members<br />

nominated for the WA Disability<br />

Support Awards 20<strong>24</strong>.<br />

As always, your feedback is important to us, so if you have anything you<br />

would like to share please contact us at feedback@mswa.org.au.<br />

Nicki Washington<br />

Chief Client Operations Officer<br />

6 7


Nursing<br />

MSWA plays key role in providing<br />

improved access to Tysabri®<br />

As of 1 February 20<strong>24</strong>, the<br />

federal government approved<br />

subcutaneous natalizumab<br />

(Tysabri®) for individuals with<br />

relapsing remitting MS (RRMS)<br />

under the Pharmaceutical Benefits<br />

Scheme (PBS).<br />

Before this, Tysabri® was only<br />

available as a monthly intravenous<br />

infusion administered in a hospital or<br />

infusion clinic.<br />

As part of the implementation of<br />

the Tysabri® subcutaneous<br />

injection, MSWA will play a key role<br />

in setting up access to this service,<br />

as other clinical settings such<br />

as hospitals and GP clinics put in<br />

place processes to receive<br />

patients ongoing.<br />

MSWA Research Coordinator Julia<br />

Tran sat down with MSWA Clinical<br />

and Residential Services Manager<br />

Vanishree Chetti and MSWA<br />

Neurological Liaison Nurse Rochelle<br />

Brown to chat about the new form<br />

of Tysabri®, the role MSWA will play<br />

in accessing this treatment option<br />

and what that means for improving<br />

access to people with RRMS.<br />

What does the new form of<br />

Tysabri® mean for people<br />

with MS?<br />

Vanishree Chetti: The main<br />

advantage is shorter service<br />

time. This announcement means<br />

individuals with RRMS will now have<br />

access to a nurse to administer the<br />

Tysabri® injection at our MSWA sites.<br />

The entire process is shortened<br />

from being a couple of hours long<br />

to just a one-hour service. We will<br />

be complete pre- and post-checks<br />

before and after the administration.<br />

Rochelle Brown: Clients are<br />

required to have two subcutaneous<br />

(under the skin) injections, each<br />

containing 150mg. This is because<br />

it would be uncomfortable for<br />

the Client to be administered 2ml<br />

subcutaneously as a single dose.<br />

(Tysabri infusion is 300mg).<br />

Where can a Client<br />

access Tysabri®?<br />

Vanishree Chetti: MSWA nurses<br />

have been trained and educated<br />

on the new administration of the<br />

injection. If we receive a referral,<br />

Clients will be requested to initially<br />

come to the MSWA Wilson services<br />

centre, but we will also have trained<br />

nurses at the Butler and Bunbury<br />

services centres.<br />

Where a Client goes for the<br />

administration of Tysabri depends<br />

on their neurologist’s referral – this<br />

could be the GP, hospital or MSWA<br />

service centre.<br />

What is the cost of accessing<br />

Tysabri® injections at MSWA<br />

Rochelle Brown: There will be no<br />

cost for administration of Tysabri®.<br />

MSWA provides help to individuals<br />

living with MS which includes<br />

assistance with the administrations<br />

of various immunotherapies.<br />

Vanishree Chetti: MSWA has always<br />

supported individuals living with<br />

MS, which includes assistance with<br />

the administration of the various<br />

Immunotherapies.<br />

What is the most important<br />

information someone should<br />

know about Tysabri®?<br />

Rochelle Brown: To guarantee the<br />

integrity of the medication, cold<br />

chain must be maintained from the<br />

point of manufacturing to the<br />

point of administration. This is why<br />

your MSWA nurse will ask you to<br />

collect your Tysabri® injections<br />

from the pharmacy on your<br />

way to your appointment at an<br />

MSWA service centre.<br />

Vanishree Chetti: It is important that<br />

individuals complete pre-checks<br />

(blood work) prior to coming in and<br />

know their results.<br />

As this is a new treatment form of<br />

Tysbari, MSWA has ensured the<br />

appropriate clinical governance is<br />

in place, including robust training of<br />

our nursing staff, to ensure the safe<br />

delivery of this treatment.<br />

If you are new to the drug, then<br />

the first few injections will be<br />

administered in the hospital to<br />

ensure there are no adverse<br />

reactions. Individuals can then<br />

be referred to an MSWA nurse<br />

for ongoing administration at<br />

an MSWA site.<br />

If after those couple of doses there<br />

are no adverse reactions, individuals<br />

will transition into the community<br />

where MSWA Nurses will then<br />

continue the administration of the<br />

injections at an MSWA site. We will<br />

be providing an interim solution<br />

until additional health services are<br />

on board too.<br />

It is a good initiative, and it is how<br />

MSWA can help the MS community.<br />

This interview has been edited<br />

for clarity. This transcript is<br />

for informational purposes<br />

only and is not a substitute for<br />

professional medical advice<br />

or treatment. Personalised<br />

consultations are essential for<br />

optimal care so it is important<br />

for individuals with MS to<br />

discuss with their medical<br />

team to identify the most<br />

suitable treatment for their<br />

specific situation.<br />

Register your<br />

interest in<br />

PLATYPUS<br />

In November 2023, MSWA in partnership with MS Australia announced<br />

the first-ever adaptive clinical trial seeking to reverse the neurological<br />

damage caused by primary progressive multiple sclerosis (PPMS).<br />

Known as PLATYPUS, the $4 million trial is due to commence in 20<strong>24</strong>.<br />

The multi-arm, multi-stage design will test two repurposed drugs<br />

simultaneously, providing timely results about whether the treatments<br />

are working.<br />

The clinical trial process requires significant applications to ethics,<br />

governance and regulatory authorities for approval. When these<br />

approvals are met, study sites in Australia may start recruiting people<br />

living with MS into the trial.<br />

If you are interested in participating, please register your interest<br />

via the MS Australia website (link below) to be notified when<br />

recruitment commences.<br />

www.msaustralia.org.au/platypus/<br />

8 9


Research<br />

MS Australia funds WA research<br />

Get involved in neuro research<br />

MS Australia announced funding for 17 cutting-edge projects as part of their latest $4.5m grant round, made possible<br />

through support from MSWA and MS Member Organisations across the nation.<br />

This includes three West Australian researchers and their projects to commence in 20<strong>24</strong>:<br />

Dr Stephanie Trend of The<br />

University of Western Australia,<br />

who aims to determine what is<br />

triggering immune reactions in<br />

people with MS. Robust evidence<br />

shows that a specific type of<br />

immune cell, known as B cells,<br />

are important to cause attacks<br />

of MS. This project involves using<br />

laboratory-made proteins that<br />

mimic natural antibodies, to identify<br />

and study the targets for B cells,<br />

including parts of Epstein-Barr<br />

Virus (EBV), which is known to be<br />

important in the development of<br />

MS. Identifying the specific targets<br />

recognised by B cells in MS may help<br />

to diagnose the disease, identify<br />

those at higher risk of MS, and<br />

develop targeted therapies to be<br />

used in the future.<br />

Dr Mark Hackett of Curtin<br />

University, who is investigating a<br />

compound called 'cuprizone' which<br />

has been found to induce damage to<br />

the brain that is similar to MS.<br />

This is due to its ability to bind<br />

strongly to copper, preventing it<br />

from reaching the brain where it is<br />

needed for energy production and<br />

healthy brain function.<br />

Congratulations<br />

to all the 20<strong>24</strong> funding<br />

recipients, we look<br />

forward to seeing<br />

your progress!<br />

You can view the full details<br />

of MS Australia's 20<strong>24</strong><br />

Research Grant<br />

Announcement<br />

through this<br />

QR code.<br />

Dr Belinda Kaskow of Murdoch<br />

University, for her work in<br />

unravelling underrepresented<br />

immune cell complexity in MS.<br />

This project will investigate killer<br />

immunoglobulin-like receptors (KIR),<br />

which are found on certain immune<br />

cells and help control immune<br />

responses. It will study which genes<br />

are present in an individual, when<br />

those genes are expressed, and<br />

what cell types express them. This<br />

project will compare this between<br />

people living with MS and people<br />

living without MS to understand the<br />

differences in the KIR repertoire<br />

in MS. Understanding how KIRs<br />

impacts the balance of the immune<br />

system in MS will lead to better, more<br />

targeted immunotherapies for MS in<br />

the future.<br />

MS Genetics Study<br />

The Menzies Institute for Medical<br />

Research needs your help to<br />

investigate the Epstein Barr virus<br />

(EBV) strain that may play a crucial<br />

role in developing multiple sclerosis<br />

(MS). Volunteers are needed for an<br />

Australia-wide study which aims<br />

to identify specific markers in the<br />

blood associated with onset and<br />

progression of MS.<br />

To volunteer, or find out more<br />

information, contact Postdoctoral<br />

Research Fellow Chhavi Asthana,<br />

on (03) 6226 4226 or via Chhavi.<br />

Asthana@utas.edu.au<br />

MS and food preparation<br />

Aged Care Survey<br />

The Perron institute is collaborating<br />

with the Department of Health<br />

to better understand people’s<br />

experiences, particularly those<br />

with neurological conditions, with<br />

palliative and end-of-life care in<br />

Residential Aged Care Facilities<br />

(RACFs) across WA.<br />

If you had a family member or friend<br />

die in an aged care facility in WA<br />

between 2021 – 20<strong>24</strong>, Perron would<br />

appreciate your perspective<br />

to help improve<br />

end-of-live services.<br />

Access the survey<br />

through the QR code.<br />

Be first to access InforMS online portal<br />

Do you have MS and someone who assists with your food preparation?<br />

Curtin University researchers would like to speak to people with MS, and those who assist<br />

with their food preparation, about their views on diet and what could help them eat well.<br />

Other than contributing to research which could improve the lives of people like you living<br />

with MS, you and your carer will receive a supermarket gift voucher in thanks for your time.<br />

For more information, contact Dr Rebecca Russell on<br />

9266 3160 or email MSDietProject@curtin.edu.au<br />

Finding Your Stride<br />

Do you have MS and regularly run<br />

or jog?<br />

A team of researchers at James<br />

Cook University are looking for<br />

volunteers to record their running<br />

habits over a four-week period.<br />

The team is interested to know if<br />

there is any relationship between<br />

your running habits and your MS<br />

signs and symptoms.<br />

If you have multiple sclerosis,<br />

and are interested in<br />

participating, please<br />

scan the QR code.<br />

A new online MS health portal called InforMS is being developed by MS Australia in collaboration with<br />

researchers from the Menzies Institute of Medical Research and Monash University, people living with MS,<br />

HealthCare Software, and other partners.<br />

InforMS is a ‘one stop shop’ to view and track your MS health information with your care team, record your own<br />

health outcomes over time, manage your health through setting goals, link evidence-based MS education and<br />

see options to participate in MS research and clinical trials.<br />

All Australian MS Longitudinal Study participants will be invited to try it as part of a research study in<br />

mid-20<strong>24</strong>, so get involved if you have not yet already at https://www.msaustralia.org.au/amsls<br />

10<br />

11


Client Engagement<br />

New NDIS to bring major<br />

changes… potentially.<br />

One of the most frightening words<br />

in the English language<br />

is ‘potential’.<br />

‘Potential’ has the potential to be<br />

great, the potential to be special,<br />

the potential to be life-altering<br />

or regrettably, the potential to be<br />

terrible. Everything is on the table<br />

when people insert ‘potential’ into a<br />

sentence. But what makes this word<br />

so scary is that we often must wait<br />

to find out if something reaches its<br />

potential or not.<br />

Take the 329-page report that was<br />

the final deliverable of the recent<br />

National Disability Insurance<br />

Scheme (NDIS) Review. Potentially,<br />

the recommendations within the<br />

report provide a five-year roadmap<br />

for a scheme that gets back to<br />

basics and becomes client-centred,<br />

with costs under control to ensure a<br />

viable scheme into the future.<br />

While the recommendations have<br />

the potential, we still don’t know<br />

which ones will be accepted, what<br />

legislation will get through and<br />

what the final product will look like.<br />

Nevertheless, we now know more<br />

about the NDIS vision than we did<br />

previously, so what are the major<br />

outcomes potentially impacting<br />

your NDIS?<br />

The NDIS can’t do it<br />

alone.<br />

One of the biggest ideas to come<br />

out of the review was that the NDIS<br />

can’t do it alone and called on both<br />

State and Federal Governments<br />

to invest in ‘foundational supports’<br />

to assist people with disability<br />

outside the NDIS. This has been a<br />

critical concern for many years, with<br />

93 per cent of disability funding<br />

going into the NDIS, despite only a<br />

small proportion of the 4.4 million<br />

people in Australia with a disability<br />

supported by the scheme. As the<br />

report authors state “you can’t fix<br />

the NDIS without fixing everything<br />

around it”, so the introduction of<br />

foundational supports would see<br />

mainstream services (like health,<br />

mental health and education)<br />

become more accessible as part<br />

of a connected system. This would<br />

allow access to some services<br />

outside the NDIS structure more<br />

efficiently and sustainably. The<br />

'NDIS or bust' approach has been<br />

a pebble in the shoe of the scheme<br />

since its inception, slowing things<br />

down and making the journey quite<br />

painful. More support outside the<br />

scheme is a great thing.<br />

This ‘connected system’ concept<br />

leads to further recommendations<br />

around the way mainstream services<br />

interact with the NDIS. This includes<br />

allowing NDIS participants who<br />

turn 65 to receive funding support<br />

through Aged Care and the NDIS<br />

at the same time, and improved<br />

access to aids and equipment.<br />

MSWA has been an active advocate<br />

for the needs of those outside the<br />

scheme for some time, so ensuring<br />

everyone is supported would be<br />

a big outcome. Research by the<br />

Melbourne Disability Institute found<br />

that non-NDIS programs spend the<br />

equivalent of $33 a year on services<br />

for those with disability outside the<br />

Scheme. That must change.<br />

Scheme navigation<br />

Another significant change<br />

within the report is the<br />

proposed replacement of<br />

Support Coordination, Local<br />

Area Coordination (LAC) and<br />

Psychosocial Recovery Coaching<br />

(PRC) services with a concept<br />

called Navigators. Navigators<br />

would be responsible for assisting<br />

both NDIS participants and those<br />

outside the scheme to connect<br />

with mainstream services,<br />

navigate the NDIS application<br />

process, and connect to services.<br />

Unlike the existing system, where<br />

a set number of hours is provided,<br />

Navigators would support everyone<br />

from diagnosis onward, coming in<br />

and out of people's lives as their<br />

needs require, to allow for flexible<br />

support. Furthermore, Navigators<br />

would operate independently<br />

from service providers, ensuring<br />

nationally consistent governance,<br />

service information, monitoring,<br />

and training. Everyone is getting<br />

their own NDIS sherpas it seems.<br />

This is big, and I can see the<br />

potential, as having one person on<br />

hand to help you navigate your way<br />

around all the different elements as<br />

your needs change would be helpful.<br />

However, the Local Area Coordinator<br />

experience has not been great,<br />

and this is a significant role with<br />

significant scope for someone<br />

who may not understand individual<br />

conditions or situations, which<br />

may lead to uneven participant<br />

experiences.<br />

Overall, this is a good concept that will<br />

help improve access to support and<br />

lessen confusion for everyone. The<br />

report also signals the potential end of<br />

Plan Managers thanks to a new digital<br />

payments system, but this seems<br />

to be a long-term change – a relief<br />

for the 1000+ active plan manager<br />

companies across Australia.<br />

Budget management<br />

A recommendation I did enjoy was<br />

that plan allocations should be<br />

set at the whole plan level, rather<br />

than line-by-line. This means that<br />

budget-setting would focus on<br />

a person’s support needs and<br />

provide a flexible budget (based on<br />

assessments), allowing services<br />

to go where they provide the<br />

most benefit. This all leads to the<br />

recommendation that the NDIS<br />

adopt a trust-based approach to how<br />

people use their budgets. While this<br />

sounds excellent, a concern about<br />

this new flexible approach is the<br />

introduction of ‘Needs Assessors’<br />

who are responsible for setting these<br />

wonderful new budgets. Minister<br />

Shorten was quick to clarify Needs<br />

Assessors are completely different<br />

from the ‘Independent Assessors’<br />

floated a couple of years ago, but the<br />

job description sounds pretty similar<br />

to me. Still, more flexibility is a good<br />

thing no matter how you look at it.<br />

The report also suggests that the<br />

National Disability Insurance Agency<br />

(NDIA) delegate pricing oversight to<br />

the Department of Social Services<br />

and the Independent Health<br />

and Aged Care Pricing Authority<br />

(IHACPA). Furthermore, the Review<br />

recommended that a new pricing<br />

and payment structure moves<br />

away from a uniform approach to<br />

better account for varying costs,<br />

such as supporting individuals with<br />

higher levels of complexity, regional<br />

differences, staff training and other<br />

associated indirect labour expenses.<br />

This is significant as the current onesize-fits-all<br />

pricing approach fails to<br />

allow providers to adapt to individual<br />

needs as they change, bringing a lot<br />

of promise.<br />

Improved governance<br />

One change that may not impact<br />

your plan on a day-to-day basis, but<br />

will have an impact on the quality<br />

of services, is the introduction of<br />

risk-proportionate regulation. For<br />

a variety of reasons, many NDIS<br />

providers are choosing to remain<br />

unregistered, which means that<br />

they are not held to the same quality<br />

and safeguarding standards as<br />

registered providers, such as MSWA.<br />

For a scheme designed to provide<br />

funding and services to, at times,<br />

vulnerable individuals, having a<br />

significant portion of your providers<br />

operating without the same<br />

rules is cause for concern. The<br />

proposed approach would require<br />

all providers to be registered<br />

and would provide mandatory<br />

compliance across all services<br />

provided under the scheme.<br />

The report also recommends all<br />

providers comply with NDIS practice<br />

standards, which currently is not the<br />

case. This is a win, as compliance<br />

is a lot of work for an NDIS provider,<br />

but it's also the only way we can<br />

ensure the safety of all participants.<br />

There are many, many other<br />

suggestions across the novel-length<br />

report, including governmentcommissioned<br />

Specialist Disability<br />

Accommodation (SDA), increases<br />

in early support for children outside<br />

of the scheme and the creation of<br />

a new Disability Intergovernmental<br />

Agreement (IGA) aimed at getting<br />

governments to work together.<br />

Overall, the report has done a<br />

great job of looking at all aspects of<br />

the disability sector and providing<br />

clear suggestions that (in my<br />

opinion) would improve things<br />

for participants, their families,<br />

and providers.<br />

So, what does it<br />

all mean?<br />

Well, nothing for now. The<br />

recommendations outlined in the<br />

review are well thought out, have<br />

obviously considered feedback<br />

from participants and have the<br />

potential to improve the lives of<br />

millions of people. But for now,<br />

all we’ve got is ‘potential’. The<br />

next steps are equally important<br />

in getting the Federal, State and<br />

Territory Governments to agree to<br />

these recommendations, have the<br />

NDIA implement them unchanged,<br />

find qualified people to fill these<br />

important roles, and ensure client<br />

outcomes remain the goal while we<br />

do all the above. Potential can be a<br />

killer; however, potential can also<br />

be exciting. For the moment I am<br />

excited by this report and the vision<br />

of the NDIS it represents.<br />

Geoff Hutchinson<br />

Manager Client Engagement<br />

12<br />

13


MSWA News<br />

Counselling<br />

Susan shores up<br />

WA's voice<br />

A different approach<br />

to happiness<br />

Susan Hyde has stepped up to the plate for Western<br />

Australia, becoming the state representative in the MS<br />

Australia National Advocates Program.<br />

The program aims to lift the voices of people with lived<br />

experience and their carers, meaningfully contributing to<br />

the peak body’s advocacy agenda.<br />

This includes engagement with media, speaking<br />

opportunities at public events and discussions with<br />

members of parliament, relevant policy/decision makers<br />

and special interest groups.<br />

Susan’s passion for people motivated her to take up the<br />

mantle, with a strong background in advocacy through<br />

her work in the New Zealand Police and WA Justice<br />

system.<br />

“I’ve previously done this type of work for prisoners,<br />

where my job was around reintegration, and I also did a<br />

lot of victim support work with the police,” Susan said.<br />

“I like people, I like working with people and I like being<br />

able to help people – plus I’ve always had a bit of a knack<br />

for networking.”<br />

Diagnosed with remitting-relapsing MS in 1995, Susan<br />

was determined to keep up her active lifestyle, running<br />

and cycling whenever she had the opportunity.<br />

While working as a Prison Officer in early 2016, Susan’s<br />

symptoms worsened, and she was diagnosed with<br />

<strong>Second</strong>ary Progressive MS. This resulted in an early<br />

retirement in 2022, despite her best efforts to keep<br />

her role.<br />

Drawing on her experiences, Susan is determined to help<br />

others through advocacy and networking, with a focus on<br />

employment, inclusion, accessibility, and a prime goal of<br />

raising public awareness.<br />

“I have had MS for 30 years and I believe there is not a<br />

huge awareness of what MS is and what it stands for,”<br />

Susan said.<br />

“Accessibility is a big focus for me, and this role is a<br />

chance to get that out there, make the public aware and<br />

break down the barriers that exist to be more accepted.”<br />

Susan is particularly excited about the PLATYPUS trial<br />

announced in December 2023, and showing others living<br />

with the condition what can be achieved when you set<br />

your mind to it.<br />

“Many people who have silent diseases and illnesses<br />

think that because they have got it, they can’t do things,”<br />

she said.<br />

“I saw this as a role that I could strive to do, and make<br />

those people believe they can do those things, too.<br />

“It is an exciting prospect and hopefully I do WA proud.”<br />

Susan encouraged anyone wanting to know more about her<br />

advocacy work to contact her at susanhyde@xtra.co.nz<br />

or come along to the Rockingham Peer Support catch<br />

ups she runs monthly. If you have a query that she cannot<br />

answer, she will point you in the right direction.<br />

If you are interested in the Peer Support Group Susan<br />

runs, you can contact her on the above email, or join<br />

the Facebook group Mobile Socialites Rockingham.<br />

The group meets for lunch the last Saturday of each<br />

month. Full details can be found on the Facebook group.<br />

The start of the new year is always a good time<br />

for reflection and taking stock, setting goals and<br />

intentions; all of which can help maintain motivation<br />

levels and fill ourselves with a renewed sense of hope<br />

for what is to come. While this can have a positive<br />

impact on your wellbeing, it can also be problematic<br />

when met with a type of ‘if – then’ or ‘all or nothing’<br />

thinking. This is what psychologists refer to as the<br />

‘Arrival Fallacy’ – the idea that when you get to the<br />

‘finish line’ only then you will be ‘happy’.<br />

As easy as it is to say we shouldn’t think this way, reality<br />

is that we all get caught up thinking along these lines.<br />

Take a few moments and think about your own narratives<br />

around happiness, filling in the below blanks with the<br />

times when you have set a goal or intention for yourself<br />

and found yourself saying the following;<br />

I’ll be happy after I do__________________________________________.<br />

I’ll be happy when I achieve___________________________________.<br />

I’ll be happy when I accomplish______________________________.<br />

With the above thinking, what happens when you don’t<br />

achieve your goals? It is all too human to lose motivation<br />

for our goals, especially with the days becoming hotter<br />

and longer, many people struggle with heat related<br />

fatigue, and sleep disturbances or fall sick. The problem<br />

with the Arrival Fallacy is that when we don’t achieve our<br />

goals, we beat ourselves up and end up with feelings of<br />

unhappiness and low self-worth. We label ourselves as<br />

‘failures’ or ‘losers’.<br />

So how do we establish a more healthy and productive<br />

relationship to happiness?<br />

1. Shift your Focus<br />

One way is to shift your focus – rather than focusing on<br />

the end outcome/goal, we focus on the process along the<br />

way. When we allow ourselves to think about the journey<br />

towards our goals, it helps shift your attention away from<br />

linking achievement to how you feel about yourself, and<br />

instead encourages you to think about what else you<br />

gain on the way. Below are some questions to help you<br />

think about the journey, rather than just the outcome:<br />

- How is this process benefiting me?<br />

- What am I gaining?<br />

- What makes me happy right now?<br />

2. Focus on the Now<br />

Gratitude: it may sound crazy but cultivating gratitude<br />

for the things that bring us joy and improve our wellbeing<br />

can increase our overall levels of happiness and feelings<br />

of worthiness. Not only does it make us realise what we<br />

already have in our lives, but it also challenges the Arrival<br />

Fallacy that we must achieve X goal to be worthy and<br />

worthwhile human beings. At the end of the day, you are<br />

enough as you are.<br />

3. Set More Goals<br />

According to experts in the field, creating more goals that<br />

are linked to different areas in our lives can help us shift<br />

our energy, attention, and focus in a more balanced way.<br />

As per Tal Ben-Shahar in the New York Times, “if you're<br />

consistently stretching yourself, even with accessible<br />

micro-goals, you'll be less likely to succumb to that empty<br />

but-what-do-I-do-now feeling”. Having many goals can<br />

encourage people to not over focus on one area of their<br />

lives at the expense of others, creating feelings of stress<br />

and emptiness.<br />

When you view your levels of happiness through a more<br />

holistic lens, you get closer to living a more satisfying and<br />

values-connected life.<br />

You deserve to enjoy where you are right now.<br />

Sidrah Khan<br />

MSWA Counsellor<br />

14 15


Nursing<br />

Continence matters:<br />

Part one<br />

Following on from our Hydration series, let’s now talk about<br />

continence and how much it matters to your wellbeing.<br />

What is incontinence?<br />

Incontinence is defined as the accidental or involuntary<br />

loss of urine and faeces and can range in severity from a<br />

small leak to total loss of bladder or bowel control.<br />

Incontinence isn’t life threatening, but it can have a huge<br />

impact on a person’s physical and mental health. In some<br />

cases, this can lead to additional issues such as low<br />

self-esteem, social isolation, anxiety, and depression.<br />

Common forms of urinary<br />

incontinence:<br />

Urge<br />

incontinence<br />

Stress<br />

incontinence<br />

Mixed<br />

incontinence<br />

Functional<br />

incontinence<br />

Nocturia<br />

Post<br />

micturition<br />

incontinence<br />

An involuntary loss of urine<br />

associated with a sudden and strong<br />

urgency to urinate.<br />

Leaking of small amounts of urine<br />

during activities such as coughing,<br />

sneezing, laughing, walking and lifting.<br />

A combination of both urge and<br />

stress incontinence.<br />

Also known as disability associated<br />

incontinence, which occurs when<br />

the person’s bladder and/or bowel is<br />

working normally but they are unable<br />

to access the toilet. This may be due<br />

to a physical or cognitive condition.<br />

When you have to wake up during the<br />

night to pass urine. It is a common<br />

problem that becomes more<br />

common as we get older.<br />

Known as micro-dribble, this can<br />

occur when men lose a small amount<br />

of urine after emptying their bladder.<br />

Neurological conditions affecting<br />

Urinary Incontinence<br />

• Multiple Sclerosis.<br />

• Parkinson’s disease.<br />

• Dementia<br />

• Cerebral vascular accidents<br />

• Cerebral palsy<br />

• Multiple system Atrophy<br />

• Stroke<br />

• Spina bifida<br />

Neurogenic bladder:<br />

What does it mean?<br />

Neurogenic bladder is the term for what happens when<br />

neurological (nervous system) conditions affect the<br />

way your bladder works. There are two major types of<br />

bladder control problems linked to neurogenic bladder.<br />

Depending on the nerves involved and the nature of<br />

the damage, your bladder becomes either overactive<br />

(spastic or hyper-reflexive) or underactive (flaccid or<br />

hypotonic).<br />

What are the symptoms of a<br />

Neurogenic bladder?<br />

The most common symptom of neurogenic bladder<br />

is being unable to control urination. Other neurogenic<br />

bladder symptoms include, a weak or dribbling urinary<br />

stream. frequent urination (urinating eight or more times<br />

daily), urgency (a feeling or need to urinate immediately),<br />

painful urination (which may mean there is a urinary tract<br />

infection), and urinary leakage.<br />

Neurogenic Bladder<br />

management and treatment<br />

Your care will depend on what is causing<br />

your symptoms and how serious they are.<br />

There’s no cure for neurogenic bladder,<br />

but you can manage and control your symptoms.<br />

If you have an overactive bladder, you may need to:<br />

• Train your bladder. You can do this by squeezing<br />

your pelvic floor muscles during the day or<br />

when you need to pee (Kegel exercises).<br />

• Hold it, if you can. Delayed voiding is when you wait<br />

a few minutes to urinate after you feel the urge. The<br />

goal is to extend this time to a few hours.<br />

• Go to the toilet at scheduled times throughout the<br />

day. You might avoid accidents if you urinate at<br />

certain times of the day.<br />

• Take medicine. Some medications can relax bladder<br />

muscles and stop spasms.<br />

• Keep a healthy weight. Extra body mass can add<br />

pressure to your bladder.<br />

• Change your diet. Things like caffeine, alcohol, spicy<br />

foods, dairy, artificial sweeteners, chocolate, and<br />

citrus fruit can irritate your system.<br />

• Use electrical stimulation. A device under your skin<br />

sends electricity to the nerve that controls your<br />

bladder. These painless pulses help stop overactive<br />

signals that tell your brain to pee.<br />

• Get Botox if needed. Your doctor can inject this<br />

neurotoxin into your bladder to temporarily stop it<br />

from contracting too much. If you have problems<br />

emptying your bladder or have urinary tract infections<br />

often, this treatment isn't an option.<br />

If you have an under active bladder, you may need to:<br />

• Schedule your bathroom visits. You might need to<br />

pee/urinate every 3 to 4 hours, even if you don’t feel<br />

the urge. After you urinate, wait a few minutes and try<br />

again.<br />

• Use a catheter. This long, thin tube helps drain your<br />

bladder. You may need to use it a few times a day. In<br />

some cases, it may need to stay in all the time.<br />

• Have surgery if needed. If other treatments fail, you<br />

could need a procedure or device to help you urinate.<br />

Where to find more information:<br />

Continence Foundation of Australia provides<br />

free, confidential information and advice<br />

about incontinence and can also direct you<br />

to local services.<br />

1800 33 00 66 (Monday – Friday, 8am to 8pm AEST)<br />

www.continence.org.au<br />

Neetu Kainth & Dee Lucey<br />

Continence Nurse Specialists<br />

16 17


Social Welfare<br />

Decision-making capacity<br />

Advance Health Directive<br />

Enduring Guardian with authority<br />

People make countless decisions every day. They<br />

can be deeply personal and are often informed by<br />

your values, your experiences and people closest to<br />

you. If you have the ability to make reasoned decisions<br />

for yourself about your personal, financial and legal<br />

matters, you are considered to have ‘legal capacity’.<br />

This is a complex legal concept that varies in<br />

different circumstances and can change over time.<br />

Adults are presumed to have full capacity unless<br />

shown otherwise.<br />

It can be scary to think about losing capacity and being in<br />

a position where you are unable to make or communicate<br />

decisions for yourself. If you or a loved one have a<br />

neurological condition that causes cognitive decline,<br />

you may have already considered or experienced this<br />

possibility. However, it is something that can happen<br />

suddenly and unexpectedly to anyone, regardless<br />

of disability. Although these discussions can be<br />

understandably difficult, talking about it can help prepare<br />

you for a future whereby a trusted individual can help<br />

make decisions for you.<br />

Figure 1. Summary of EPG and EPA key aspects<br />

Who can make it/be appointed?<br />

EPG<br />

EPGs & EPAs<br />

While you have full capacity, you can appoint your<br />

preferred substitute decision-makers and prepare legal<br />

documents that record your preferences for personal,<br />

financial and legal matters. These documents are<br />

known as an Enduring Power of Guardianship (EPG) and<br />

an Enduring Power of Attorney (EPA). They specify the<br />

decisions your substitute decision-maker can make and<br />

the circumstances in which they can act.<br />

The State Administrative Tribunal (SAT) also plays an<br />

important part in this process. Its role is to bring the EPA<br />

into effect where necessary by making a declaration that<br />

the donor does not have legal capacity. The SAT can also<br />

make orders revoking or varying the terms of an EPA,<br />

or recognising a power of attorney created in another<br />

jurisdiction as an EPA in WA.<br />

Once someone has lost their capacity to make decisions<br />

and can no longer create an EPA, the SAT can also hear<br />

an application for an administration order.<br />

Anyone 18+ with full legal capacity<br />

EPA<br />

Advance Health Directives<br />

An Advance Health Directive (AHD) is a legal document that<br />

records the treatment and care you consent to in specific<br />

circumstances. It will only be used by health professionals<br />

if you are seriously unwell or injured and are unable to make<br />

or communicate decisions about your care.<br />

Your AHD sits at the top of what is known as the “hierarchy<br />

of treatment decision-makers”. If you lose capacity but don’t<br />

have an AHD, or a situation arises that isn’t covered by your<br />

AHD, health professionals will go down the hierarchy to find<br />

the first available adult who is willing to make the treatment<br />

decision. If your preferred substitute decision-maker is<br />

further down the hierarchy, you may want to consider<br />

making an EPG and appointing them as your enduring<br />

guardian to make them the next point of contact.<br />

What next?<br />

Guardian with authority<br />

Spouse or de facto partner<br />

Adult child<br />

Parent<br />

Sibling<br />

Primary unpaid caregiver<br />

Other person with close personal<br />

relationship<br />

Figure 2. Hierarchy of Treatment Decision-Makers<br />

We know this topic can feel rightfully overwhelming, but speaking with your trusted family, friends and/or health<br />

professionals can help you gather your thoughts on making an AHD, EPG or EPA to ensure you choose your decisionmaker.<br />

Given their importance in communicating your life choices and preferences if you are ever unable to do so<br />

yourself, they require time and careful consideration to prepare. Please see below for details on the free advisory<br />

services and resources (including step-by-step guides and the relevant forms) available for anyone ready to start the<br />

process or wanting more information.<br />

Candice Preston<br />

Support Coordinator<br />

What types of decisions can<br />

the substitute decision-maker<br />

make?<br />

Personal, lifestyle, medical, and/or<br />

legal proceedings<br />

Financial and<br />

property matters<br />

Figure 3. Resources for making an AHD, EPG or EPA<br />

Online Resources<br />

Advisory Services<br />

When does it come into effect?<br />

Only when you lose legal capacity<br />

– can be temporary or situation/<br />

decision-specific<br />

Immediately OR when SAT<br />

determines you have lost legal<br />

capacity<br />

AHD<br />

https://www.healthywa.wa.gov.au/AdvanceHealthDirectives<br />

DOH WA Advance Care<br />

Planning Information Line<br />

Ph: (08) 9222 2300<br />

ACP@health.wa.gov.au<br />

How is capacity determined?<br />

GP or medical specialist capacity<br />

assessment OR a SAT hearing (if<br />

uncertain)<br />

Only through<br />

a SAT hearing<br />

EPG<br />

EPA<br />

www.wa.gov.au/organisation/department-of-justice/office-of-thepublic-advocate/enduring-power-of-guardianship<br />

www.wa.gov.au/service/justice/civil-law/enduring-power-of-attorney<br />

Office of the Public<br />

Advocate<br />

Ph: 1300 858 455<br />

opa@justice.wa.gov.au<br />

18 19


Introducing…<br />

Life not limits<br />

You’ve more than likely seen our Thrill Seeker Chris, or remember our Social Butterfly<br />

Susan, but we know everyone has a story to tell, so we want to hear yours!<br />

Jump online or scan the QR code to submit your Life not limits story for your<br />

chance to be featured in <strong>Bulletin</strong>, on our website, or maybe in our next ad.<br />

Name: Susan Finlay<br />

Identifier: Social Butterfly<br />

Living with Spinocerebellar Ataxia<br />

“I do Hydro on Mondays, I love the<br />

warm pool! I find it a bit easier than<br />

physio. I also do walking laps with my<br />

social support and my friends – we<br />

go to the local pool and do that too."<br />

Susan, known fondly as a<br />

social butterfly, finds her joy in<br />

connections, creativity and art.<br />

Visiting friends throughout the week,<br />

at the local pool, shopping centre or<br />

community programs.<br />

Name: Chris McEncroe<br />

Identifier: Thrill Seeker<br />

Living with Gullain-Barré Syndrome<br />

Chris, a self-proclaimed thrill seeker, found his passion<br />

for kart racing after being diagnosed with Guillain-Barré<br />

Syndrome, where nerve sheath loss overnight impacts<br />

the peripheral nervous system. He recalled waking up one<br />

morning, not being able to move.<br />

Chris modified his kart himself with some assistance from<br />

his carers to be hand controlled. "Funnily enough, karting<br />

has boosted my upper-body strength, serving as rehab and<br />

promoting mental wellbeing."<br />

20<br />

21


Client Contributions<br />

Letting my voice be heard<br />

MSWA Client Lyndal Hunt shares her personal framework which has helped<br />

her navigate a 28-year journey with MS.<br />

On a Stormy Sea<br />

When the waves of the sea became bigger<br />

And the wind started to blow at storm strength,<br />

The boat didn’t sail anymore<br />

And it rocked in the waves<br />

Bobbing up and down in the water….<br />

Gert Strydom, 2014<br />

At the age of 25, my diagnosis with multiple sclerosis (MS)<br />

in 1996 rocked me from my moorings. All that I had hoped<br />

for in my life had been dealt a cruel health blow. Since my<br />

diagnosis, I have experienced, and continue to experience,<br />

life in a way that I could not have imagined possible.<br />

V - Values and beliefs<br />

After receiving the diagnosis, I was confronted with<br />

not only my world having changed, but the image I had<br />

of myself had also been altered. I have learnt to take<br />

the time to reflect on who I am at my core, as reflection<br />

provides the opportunity to be mindful of my values. I<br />

believe values are simply a set of individual beliefs that<br />

motivate a person to act one way or another, guiding<br />

behaviour like an inner compass.<br />

Personally, I believe that MS is a disease of the body,<br />

that over the spirit it has neither jurisdiction nor rite of<br />

passage. I also believe that, just as it takes a crew to sail<br />

and maintain a vessel, it is important to have a circle of<br />

trusted carers and medical professionals and to know<br />

the different roles they each play. For me, travelling<br />

through life with a neurological condition has naturally<br />

meant my neurologist is a necessary part of my crew.<br />

Equally, I believe it is important to be prepared to let go of<br />

beliefs that no longer hold true and change my crew to<br />

meet my need accordingly.<br />

• What are my core values and beliefs?<br />

• How have/are my needs changed/changing?<br />

• What are the different services medical<br />

professionals provide?<br />

• Who do I need on my crew?<br />

Navigating my way through unchartered waters, as<br />

the captain of a questionable vessel travelling towards<br />

an unknown destination, my world had undeniably and<br />

irrevocably changed.<br />

My experiences have helped generate a simple<br />

framework, to help me hear the sound of my own voice<br />

when navigating through the systems and institutions that<br />

have become a part of my world. The V.O.I.C.E framework<br />

is a simple tool that continues to help me keep my journey<br />

with MS in perspective, while living a more present,<br />

integrated and satisfying life.<br />

O - Open minded. Observant. Objective.<br />

I have found it important to live in the present and be open<br />

minded and objective when it comes to my physical care.<br />

From personal experience, symptoms of neurological<br />

conditions can mirror other things, especially when being<br />

viewed from an "able bodied" perspective. It is important<br />

therefore to be open-minded, observant and objective<br />

(rather than close-minded, blinkered and subjective),<br />

asking questions both to reach and to understand any<br />

information received (neurological sensations, physical<br />

symptoms, diagnoses) and guidance given.<br />

It was through this mindset that I became aware<br />

of the specifics of my changing needs and change<br />

my crew accordingly. Members of my current crew<br />

include my primary carer (daily ongoing care and<br />

support), GP (scripts and referrals), medical specialists<br />

(neurologist, PMC – Baclofen pump maintenance); MSWA<br />

(physiotherapy, nurses – SPC changes, counselling),<br />

and government (TUSS, pension, NDIS). Once again,<br />

by remaining open minded, observant, and objective,<br />

I was able to make pragmatic decisions when<br />

outsourcing different activities to compensate for<br />

your physical limitations.<br />

• Am I being realistic or am I seeing things from an<br />

"able-bodied" perspective?<br />

• Am I willing to listen to and to hear other people,<br />

consider new ideas, suggestions, and opinions?<br />

• Am I speaking with and listening to the right people?<br />

I – Integration<br />

From personal experience, this has been both the most<br />

important and challenging stage to accommodate.<br />

Multiple sclerosis is an intensely private disease. The<br />

precise impact it will have on your life journey is as<br />

unique as you are. Integration is therefore an important<br />

port to dock at for reflection.<br />

Reviewing my journey so far, paying particular attention<br />

to any changes to my sense of self, my motivations and<br />

decisions brought about through being open minded,<br />

observant and objective. I reflect on my experiences and<br />

learn from any lessons. Giving myself permission to be<br />

sick, to have special needs, to require, request, receive,<br />

and accept help. Integration is about living in the present,<br />

enjoying the treasure in the journey over simply reaching<br />

any destination. It is forever a dynamic process, changing<br />

and evolving over time.<br />

• I am mindful of what informs my inner narrative<br />

(as this is the inner compass).<br />

• The core of who I am and how I see the world and<br />

my place in it may need recalibrating. For example,<br />

what no longer fits? Which beliefs no longer hold<br />

true to me?<br />

C – Context<br />

Over time, I have discovered it is important to know<br />

and understand where I am in the expanse of services.<br />

Take a proactive interest in what a specific service<br />

has established and can provide. Multiple sclerosis is<br />

a multifaceted disease which requires support across<br />

many disciplines. When the only tool you have is a<br />

hammer, every problem can look like a nail. For me it<br />

was important that I seek information from more than<br />

one source and to be curious. A good starting point for<br />

neurological conditions can be MSWA.<br />

• Do I know who is on my support radar and why?<br />

• Do I know exactly what specific services are<br />

available and what they offer?<br />

• Be prepared to ask questions to understand how<br />

the services best fit my needs.<br />

E – Encounter<br />

The great thing about any relationship is that it is only<br />

actually alive in the encounter. This is no different when<br />

travelling with MS, through the systems and institutions<br />

that are now a part of your world. I have personally<br />

found some of these encounters to be quite confronting,<br />

especially when receiving information from different<br />

professionals and service providers. I have found that<br />

whatever part is played in the relationship, it’s important<br />

that both parties are speaking the same language and<br />

that you both feel understood. For me it was important to<br />

assess that we were both navigating towards the same<br />

destination, so find a crew that is, then set sail. It’s okay to<br />

take time, look around and find the right people.<br />

• What institutions exist and want to support me?<br />

• Who do/don't I trust and why?<br />

• Who can I comfortably work with?<br />

• Be prepared to engage<br />

As my MS journey progressed, the validity of my personal<br />

reality within the systems and institutions that are now<br />

part of my world were tested due to various reasons.<br />

The V.O.I.C.E framework helps guide me to keep my<br />

journey with MS in perspective, so I don’t lose sight of<br />

myself in the process. I developed the framework to<br />

empower myself, as a unique individual, to serve as a<br />

reminder that I do indeed have a voice.<br />

It is important not to think about myself in terms of what I<br />

have lost, rather – I am the person I am today because of<br />

the journey I am travelling. In finding my VOICE, it brought<br />

me peace and strength. The winds will always blow, and<br />

the waves crash but there will always be a way forward in<br />

the present, living an integrated and satisfying life.<br />

I let my V.O.I.C.E be heard.<br />

Lyndal Hunt<br />

MSWA Client<br />

22 23


Client Contributions<br />

The Survivors’ Coffee Group<br />

“You are just allowed<br />

to be in your moment,<br />

for as long as you need<br />

and know that you are<br />

supported.”<br />

We catch up regularly in our<br />

favourite café in Joondalup. Well,<br />

not regularly as in weekly but, you<br />

know, every few months or so<br />

when we felt we had something to<br />

talk about. There are four of us: we<br />

call ourselves survivors, because<br />

each one of us had battled several<br />

illnesses but what we have in<br />

common is multiple sclerosis (MS).<br />

We initially met at an MS exercise<br />

group which eventually folded but<br />

we had so much in common by that<br />

time and knew so much about what<br />

each other was going through, that<br />

we wanted to keep meeting.<br />

I’m one of the four, Rosy – and<br />

there’s Hillary, Jane, and Lynette.<br />

We’re all a similar age, in our sixties,<br />

and we swap stories of what we’ve<br />

been through and what we’re going<br />

through. Nothing very exciting really<br />

because we’re not ageing all that<br />

well, so no fun stuff for us, but we all<br />

have our memories of things that<br />

we’ve done, and love to share them<br />

(sometimes repeatedly) and all have<br />

a good laugh.<br />

I think the best thing about this<br />

group is the way we cling to each<br />

other when we meet and when we<br />

say our goodbyes.<br />

These hugs are just amazing and so<br />

affirming. They make you feel like you<br />

really belong, which is something<br />

MS does not normally do. People are<br />

frightened when they hear you have<br />

it and they don’t know what to say or<br />

what to ask, especially families, so<br />

there’s not much discussion when<br />

others are trying to brush it away.<br />

But this group is amazing. No one<br />

fears asking the tough questions or<br />

to see you cry when you are at your<br />

lowest. We’ve all been there and its<br />

comforting to know that no one is<br />

going to try to step in and solve it for<br />

you as some family members might<br />

try to do. You are just allowed to be<br />

in your moment, for as long as you<br />

need and know that you<br />

are supported.<br />

Our conversations are varied and<br />

many, and always include lots of<br />

laughter. We talk about which movies<br />

we’ve seen, where we’ve been and<br />

how we are.<br />

Conversations about movies are<br />

hilarious and often can go like this -<br />

“You know that movie? With that<br />

gorgeous blond guy and with that<br />

girl – you know, the funny one!”<br />

So, we check Google, and we say –<br />

“Where did you go to see it? What<br />

day was it on? Was it this? Was it<br />

that? Ahh yes THAT movie!”<br />

This sort of conversation, which<br />

might seem crazy to anyone else, is<br />

normal for us and has us in stitches<br />

because we all do it!<br />

Many of us have battled for years<br />

with unknown and undiagnosed<br />

symptoms. Take me for example.<br />

I was in and out of hospital for<br />

nearly twenty years with a variety of<br />

illnesses such as a perceived stroke,<br />

labyrinthitis, muscle spasms, etc.<br />

In 2010 I was told I had had a minor<br />

stroke. At that time my kids were<br />

concerned they did not know enough<br />

about my doctors, my illnesses, my<br />

scripts etc. that they asked me to<br />

note it all down so they would be able<br />

to provide information to doctors<br />

when I couldn’t. In 2018 I had optic<br />

neuritis and on examination, MRIs<br />

etc, I was told that I had MS and,<br />

because I had noted down all that I<br />

had gone through (thanks kids), the<br />

neurologist was able to say I had had<br />

it for years.<br />

MS is such a misunderstood<br />

disease and often comes with<br />

other autoimmune diseases. I have<br />

several other autoimmune issues,<br />

and so do my friends. It’s so hard<br />

trying to determine which disease is<br />

causing what. And it’s startling that<br />

several of my MS friends have had<br />

breast cancer. Not saying that it’s<br />

caused by MS or has anything to do<br />

with it, but how unlucky is that?<br />

Back to our survivors’ coffee group<br />

– we all treat ourselves to a muffin or<br />

a slice, and, no, we don’t feel guilty.<br />

Where once upon a time we would<br />

be watching our weight, we now<br />

acknowledge that life is for living and<br />

enjoying, though we do (sometimes)<br />

admit to extra exercise during the<br />

week…when we can.<br />

Exercise is such a strange thing<br />

when you have MS. You know that<br />

it will help ease the stress on your<br />

muscles, but you get so utterly<br />

tired. It is called fatigue, and oh my<br />

gosh, is it debilitating. I don’t think I<br />

ever really understood what fatigue<br />

was before, but I do now. It grabs<br />

your muscles and your brain and<br />

turns everything inside out and still<br />

expects you to perform your normal<br />

duties – but you can’t. Brain fog takes<br />

over and if you thought you knew<br />

what you were doing you are proved<br />

wrong, in many (often embarrassing)<br />

ways and on many occasions.<br />

But you need to provide a normal<br />

presentation. After all, you don’t want<br />

people to pity you or to ask you too<br />

many questions. Why should you<br />

have to continually validate yourself<br />

to others? I was once told to ‘mix<br />

more water with it’ because I tripped.<br />

And yes, I had a drink in my hand<br />

but I hadn’t touched it yet, so I was a<br />

tad offended, especially as it was a<br />

friend of my daughter who I thought<br />

knew what I was going through. But I<br />

think many MS people face that kind<br />

of criticism. Apparently, we have a<br />

walk which from behind looks like we<br />

are drunk (I’ll drink to that!).<br />

I often hold onto walls and sway<br />

around because my balance is out<br />

or because I am feeling unsteady on<br />

my feet. But why do people have to<br />

judge,<br />

and why do you feel you have to<br />

explain yourself?<br />

Our survivors’ coffee group allows<br />

us to be normal. It enables us to<br />

be strong and to assert ourselves<br />

when necessary because, together,<br />

we are a force to behold. We love<br />

life, we love each other, and we love<br />

surviving in our own individual ways.<br />

Rhonda Adamsam<br />

MSWA Client<br />

(Names of people have been<br />

changed in this story)<br />

<strong>24</strong> 25


Our People<br />

A multifaceted experience<br />

of multiple sclerosis<br />

MSWA Client Kim Koeman recently sat down with us to<br />

share her diagnosis journey, unfortunate predicaments<br />

she has experienced and her inspiring outlook on life.<br />

Read on to find out how the right employment support<br />

and a zest for life continues to make this incredible<br />

woman excited for the future against all the odds.<br />

“Leigh was just an absolute wealth of knowledge and<br />

took the time to explain the NDIS process and organise<br />

appropriate work support through them for me,” she said.<br />

“Following my diagnosis, my brain was not in a good<br />

space, and I didn’t understand any of it.<br />

For a prolonged period of time, Kim had several<br />

symptoms that appeared in her daily life. She was<br />

affected by narcolepsy where she would just suddenly<br />

fall asleep, had irritable pins and needles, and couldn’t<br />

stand the heat. She would fall and trip over nothing, had<br />

terrible memory and sadly, constant pain.<br />

“I was so lost; Leigh just dove in, saw right through me,<br />

patiently took a bit of control for me and helped me<br />

navigate everything top to bottom.”<br />

Kim’s major symptoms saw her strength and balance<br />

plummet, her eyesight deteriorate and a strong aversion<br />

to heat was developed.<br />

Multiple doctors brushed it off and explained it away as<br />

mental health issues, laziness or some sort of ploy she<br />

was pulling to attempt ceasing work. Ironically, work has<br />

always been a major motivator for Kim.<br />

“Unfortunately, getting this kind of response from<br />

medical professionals is a normal experience for a lot of<br />

us,” she said.<br />

“I was working for quite a while through all these<br />

symptoms, not knowing what was really happening to me<br />

and not getting the right support I needed.<br />

“Suddenly, major symptoms occurred over a week, and I<br />

had to undergo an MRI which led to my multiple sclerosis<br />

diagnosis in 2019.<br />

“I felt quite vindicated when I was finally diagnosed. Along<br />

with the MS diagnosis, I was also diagnosed with ADHD<br />

and functional neurological disorder (FND).”<br />

After her long-awaited diagnosis, Kim joined MS support<br />

groups on Facebook where one of the members<br />

mentioned and recommended MSWA’s Employment<br />

Support Services (ESS) Manager Leigh McCaffrey and<br />

how his team could offer great support integrated with<br />

work.<br />

Kim decided to heed this advice and proceeded to<br />

contact Leigh which subsequently opened up multiple<br />

support avenues for her.<br />

“Suddenly, it felt like everything was collapsing. I wanted<br />

to continue working for Chorus, but I couldn’t be out on<br />

the road or in people’s homes anymore with the heat<br />

and I couldn’t do personal care anymore with the loss of<br />

strength,” she said.<br />

Fortunately for Kim, both community service provider<br />

Chorus and MSWA’s ESS team jumped in to help her<br />

transition to an office-based role.<br />

Describing her employer’s and Leigh’s support as<br />

hugely compassionate, Kim leaned into the new role<br />

and became an active participant in the office. She was<br />

also soon able to partly work from home with the right<br />

supports provided by the ESS team through the NDIS.<br />

“Honestly, if I hadn’t met Leigh and received the support<br />

from the ESS team, I don’t know what I would have done.<br />

They have been integral in ensuring I can continue<br />

to do what I enjoy while appropriately managing my<br />

conditions,” Kim said.<br />

While she received effective support from MSWA and<br />

her employer, Kim unfortunately experienced challenging<br />

predicaments while going about her daily life.<br />

In one instance while at a major Perth event, she went past<br />

a long line-up in the restroom to use the disabled facility. A<br />

young staff member then proceeded to call her out publicly<br />

as someone who did not need to use the accessible toilet.<br />

Understandably frustrated but still patient, Kim responded<br />

to the staff member that disability was multifaceted and<br />

did not only look like a person in a wheelchair.<br />

“Strangers that barely know me are the ones who’ll come<br />

up and question me about why I’m there or what I’m doing<br />

as if I need to justify myself to them,” Kim said.<br />

“My only message to these people is – you don’t always<br />

know what someone’s going through.<br />

“Disability doesn’t always show itself. It’s not always<br />

presented with someone in a wheelchair. It could<br />

look like a smile on someone’s face. It could look like<br />

a well-dressed human being, someone going to work<br />

or looking after their children or going to school.<br />

It could be hidden, and you’d have no idea.”<br />

With a strong belief that people should assume the best<br />

about others not the worst, Kim also had some words of<br />

wisdom to share about keeping spirits up while managing<br />

a disability.<br />

“After I was diagnosed, I started reading theories –<br />

people say go on this diet, read this book, do this, don’t do<br />

that,” she said.<br />

“But honestly, the best thing is to keep active and<br />

continue to have a purpose in your life and a sense of<br />

self-worth, whether it’s through work or volunteering.<br />

“Having a connection with other people in the community<br />

gives you a profound sense of purpose, and when you’re<br />

focused on giving back to someone else, you have less<br />

anger and negative energy to spend on yourself and your<br />

condition.<br />

“Of course, I understand the fatigue that comes with<br />

keeping busy, but when you’re doing something for<br />

someone, it takes that self-ruination and transforms it<br />

into the joy of giving to others. That's how I feel about<br />

working.<br />

“Whatever it is, I still have gratitude. It could have been so<br />

much worse. I don’t sit around and be miserable, I grasp<br />

life. I still want to work and travel and have many plans for<br />

my future.”<br />

Thank you for sharing your story with us, Kim.<br />

You are an inspiration!<br />

26 27


Client Our People Contributions<br />

“Love conquers all”<br />

The remarkable<br />

story of John and<br />

Pauline Campbell.<br />

For most, one diagnosis in a lifetime can,<br />

understandably, be more than enough for a<br />

person to handle.<br />

But for the remarkable 84-year-old Pauline, two powerful<br />

forces have helped her to take on multiple sclerosis, a<br />

stroke and breast cancer in her stride: faith and love.<br />

It was 1985 when Pauline first noticed symptoms, working<br />

as a sister across surgeries in Applecross and Yangebup.<br />

“I didn’t realise what was wrong, because I wasn’t walking<br />

straight,” Pauline said.<br />

Multiple tests and five years on, Pauline originally<br />

received an incorrect diagnosis of motor neurone<br />

disease. After a second opinion, it was determined<br />

Pauline had MS.<br />

“Now I’m left with weakness in my right leg, and I don’t feel<br />

that good in my right arm. Nothing terrible, I can stand up,<br />

but I don’t have any balance whatsoever,” Pauline said.<br />

“It hasn’t affected me terribly; I can do most things. I<br />

can empty the washing machine and put it in the dryer. I<br />

shouldn’t, but I can – you find ways around to do things.<br />

“But I have strong faith, and it’s been very helpful for me<br />

on my journey.”<br />

Her husband of 32 years, John, is also a huge pillar of<br />

support in her life. He credits his 20-year career as a<br />

chef in the Navy as the perfect training to take good care<br />

of Pauline.<br />

“He’s a wonderful man, he does everything I can’t do,”<br />

Pauline said. “When we got married, he knew I had MS<br />

but despite that, he married me.”<br />

“Love conquers all,” John professed.<br />

Their love story is quite the tale, with John having<br />

answered Pauline’s personal ad in the local newspaper<br />

in 1985.<br />

“Pauline had written ‘lonely nurse seeking tall, dark<br />

handsome guy’ so I wrote back and was one of 70 other<br />

replies,” John remembers. “I thankfully made it into a little<br />

group of positives in Pauline’s list.”<br />

Pauline took the opportunity of her youngest of three<br />

daughters being away on school camp to meet her top<br />

four bachelors.<br />

“I met a guy on Saturday afternoon, but I didn’t like him at<br />

all. All he talked about was himself!” Pauline recalls.<br />

“On Saturday night, I arranged to meet a gentleman and<br />

he had a carnation in his lapel. We were supposed to<br />

meet in Hay St mall, and when I got there, I saw this little<br />

old grey headed man and I thought ‘oh he’s too old for<br />

me!’ So, I turned around and went home. I felt awful, but I<br />

did it anyway.<br />

“On Sunday, I met this other man. He was a nice man<br />

actually; he was a saxophonist.<br />

“But on Sunday night, I met John and I liked him. We<br />

walked all around Fremantle looking for a coffee shop<br />

and nothing was open! I had mentioned that I went<br />

dancing, and where I used to go to dance, and he picked<br />

up on it and was waiting for me there when I got there!<br />

“And from then on... the rest is history.”<br />

“Now we’ve been married 32 years,” John said proudly.<br />

A survivor in every sense of the word, Pauline hasn’t let<br />

her health battles stop her from travelling the world with<br />

John by her side.<br />

“Three years ago, Pauline was 80 and she had never seen<br />

the Great Barrier Reef,” John explained.<br />

“It was fantastic how people helped Pauline in the<br />

wheelchair while we were there. This young man took<br />

charge of Pauline and said ‘leave it all up to me’.<br />

“We’ve actually been in a couple cruises, all in the<br />

wheelchair, they are very good and accessible.”<br />

As well as far north Queensland, the couple have<br />

travelled to Penang and New Zealand – where a threeweek<br />

holiday doubled to six thanks to a lucky windfall.<br />

“Typical Pauline said ‘I think I’ll go get some AMP shares’,”<br />

John said.<br />

“She ended up with about a thousand, from a<br />

hundred in, so we decided to extend our holiday to<br />

six weeks!”<br />

While they have been doing less travel recently as<br />

Pauline’s specialist “five-star” equipment is more<br />

difficult to bring with them, the couple enjoy their<br />

quiet life in the beautiful coastal town of Busselton<br />

and have even picked up some new hobbies.<br />

“We go twice a week for art classes. I never knew I<br />

could draw,” Pauline said.<br />

“She only started that at 80, but you never know your<br />

hidden talents!” John chimed in proudly. “I started playing<br />

the ukulele at 80.”<br />

When we met with Pauline and John, the couple were<br />

excited to be receiving a new electric wheelchair through<br />

Pauline’s HCP plan. By complete coincidence, the couple<br />

received the exciting news that it was on-board for delivery –<br />

after months of waiting – just as our interview wrapped up.<br />

“She’s resisted getting into a wheelchair all this time, because<br />

she wanted to get exercise,” John explained.<br />

“But now she’s 83, let’s face it she needs it. But she will still do<br />

her upper body exercises and we are really looking forward to it.<br />

“The MSWA Occupational Therapist came in to help teach us<br />

how to transition from a wheelchair to the shower or the bed<br />

and she did all that fantastically.”<br />

Having been put through so many challenges throughout her<br />

life, we asked Pauline what her advice would be for others to<br />

remain as positive and active as she is.<br />

“My advice to others with MS – keep up a good diet. Don’t eat<br />

anything you don’t need,” she said wisely. “I don’t each much sugar,<br />

and I eat all the right foods. Fruit and vegetables. Not much meat.”<br />

“But I also have a strong will and determination.”<br />

Of course, John backs her up in this self-assessment; “yes, she has a<br />

very strong, dogged personality,” he beams.<br />

28 29


Dietetics<br />

Social Connections<br />

Egg-cellent choices for a<br />

healthier Easter<br />

Everything Outreach!<br />

With Easter upon us, it's time to embrace the festivities while keeping our wellbeing in mind.<br />

Here are some evidence-based tips from a Dietitian for a healthful and joyful Easter:<br />

Balancing Easter treats.<br />

Let's be real – Easter without a bit of<br />

chocolate or treats is like a beach<br />

day without sunshine, it's a bit dull. It's<br />

absolutely fine to embrace the joy of<br />

Easter treats in moderation, especially<br />

when opting for quality dark chocolate. Dark chocolate<br />

not only satisfies your sweet tooth but also brings<br />

along antioxidants with potential heart-healthy benefits.<br />

Consider individually wrapped chocolates for better<br />

portion control and designate a specific time of day for<br />

your chocolate fix, like in the afternoon or after dinner.<br />

Protein power.<br />

Foods rich in protein help us feel satisfied<br />

and fuller for longer, while also supporting<br />

our muscle, nerve & immune function.<br />

Take eggs, for instance – they are a<br />

nutrition powerhouse and a fantastic<br />

protein source, while being versatile and easy to prepare.<br />

Whether you choose boiled eggs, frittatas, or tasty<br />

omelettes, you're not only treating your taste buds<br />

but also providing your body with essential nutrients.<br />

Additionally, diversifying your protein sources can be<br />

beneficial. Including meat-free options like seafood, eggs,<br />

nuts, seeds, and plant-based proteins such as legumes<br />

(chickpeas, beans, and lentils) ensures a well-rounded<br />

diet, promoting overall health and wellbeing.<br />

Nutrient-rich Easter meals.<br />

Our Aussie autumn offers a vibrant array<br />

of fresh produce. Load up on colourful<br />

fruits and veggies – these nutrient-dense<br />

foods not only contribute to overall health,<br />

supporting muscle and nerve function,<br />

but also add a burst of flavour to your<br />

Easter spread.<br />

Stay hydrated.<br />

With the warm autumn weather in<br />

Australia, staying hydrated is crucial and<br />

can help with managing fatigue. Opt for<br />

water as your primary beverage and<br />

limit sugary drinks and alcohol. If you're<br />

feeling fancy, herbal teas are a delightful and hydrating<br />

choice too. Try carrying a reusable water bottle with you<br />

throughout the day to make it easy to stay hydrated; add<br />

lemon, cucumber, or mint to your water for a refreshing<br />

twist or set reminders on your phone to take regular sips.<br />

Mindful eating magic.<br />

Practice mindfulness during meals by<br />

savouring each bite, paying attention<br />

to hunger and fullness cues. Avoid<br />

distractions such as screens and engage<br />

in meaningful conversations with loved ones.<br />

Mindful eating fosters a better connection<br />

with your body and promotes satisfaction.<br />

Active Easter celebrations.<br />

Include physical activity in your Easter<br />

celebrations. Plan activities that suit your<br />

abilities and preferences, whether it's a<br />

gentle walk, seated exercises, or enjoying<br />

some outdoor games – staying active is a<br />

fun way to bond and support your wellbeing.<br />

As you gear up for Easter, remember it's about<br />

relishing good food, good company, and good vibes.<br />

Treat yourself, stay active, and make choices that<br />

make you feel your best.<br />

Mineh Burn<br />

MSWA Dietitian<br />

Wheelchair Day at Beechboro<br />

Wheelchair Day at Beechboro was a blast! We honored International<br />

Wheelchair Day with some seriously competitive (yet super friendly)<br />

seated sport tournaments at Outreach Beechboro. Stuart nailed our<br />

version of Beer Pong (minus the beer, of course!) after a few practice<br />

shots, taking the lead. Meanwhile, Tyrone and Miles were in a tight race<br />

playing knock-the-bucket-off-its-perch, and Andrew and John showed off<br />

their bean bag splash game skills! Round two next month? Bring it on!<br />

Wilson Valentine’s Day<br />

sweeter than chocolate<br />

Our Outreach attendees had a<br />

blast making Valentine's sweets,<br />

but let's be real, most of them<br />

didn't make it to their intended<br />

recipients. Who can resist a<br />

delicious treat made with love?<br />

DIY Skills<br />

Sugar and spice and all things<br />

nice! Outreach Rockingham were<br />

treated to a wonderful incursion<br />

by Bunnings Rockingham, where<br />

Clients used their DIY skills to<br />

make spice racks. Next week<br />

we are going to enjoy using our<br />

creative skills to decorate them!<br />

Wilson OpShop Café<br />

Wilson OpShop Café kicked off the year with<br />

a bang! Huge thanks to the kitchen dynamos<br />

Justine Webb and Swee-Chin Chu, who whipped<br />

up a storm (and cream) to go with some yummy<br />

scones. Come hang out with us and taste the<br />

magic yourself!<br />

Drop us an email at outreach@mswa.org.au to<br />

find out when our café is open for business.<br />

Happy 70th Sally!<br />

For the past 16 amazing years,<br />

Sally and her husband Bryan have<br />

graced our doors, and Sally's<br />

positive spirit, warm smile, and<br />

kind heart have touched the<br />

Rockingham Outreach team.<br />

Sending warmest wishes to Sally<br />

for a wonderful birthday!<br />

30 31


Social Connections<br />

Accommodation adventures<br />

Farewell, Bruce!<br />

After 10 dedicated years, Care Support Worker Bruce<br />

Hale is headed for retirement and will be truly missed by<br />

the residents of Hamilton Hill.<br />

In 2023, Bruce was nominated by staff and Clients at the<br />

National Disability Services Awards for Excellence in<br />

Disability Support Work. You can read all about it on page<br />

20 of our last edition of <strong>Bulletin</strong>.<br />

Thank you for your amazing work Bruce, you will be truly<br />

missed.<br />

Sunshine and smiles<br />

Fern River Postie<br />

“Fantastic, I have always wanted to be a postie!” Jenny exclaimed when asked<br />

about becoming the Fern River postie.<br />

Jenny is a Fern River resident who loves spending time with people, doing<br />

something that has meaning and sharing her infectious smile. Daily, Jenny<br />

with the assistance from staff, collects her postie basket and name tag,<br />

collects the mail from the mailboxes and cheerfully delivers it to every unit.<br />

Residents enjoy their daily catch ups with Jenny and are thankful for the visitor.<br />

By creating purpose, Jenny now wakes up knowing she has a responsibility to<br />

do every day and feels that she is contributing to the Fern River community.<br />

We love your work Jenny!<br />

Margaret Doody’s brand-new look!<br />

Clients have been amazed by the summer<br />

transformation of Margaret Doody House, which now<br />

boasts a modern kitchen and refreshed landscaping<br />

throughout.<br />

Respite Manager Nelly Higginson said the changes<br />

made it so much easier for staff and Clients to access<br />

and enjoy – and was good to look at too!<br />

“It all looks so much more modern and every Client who<br />

has visited since we re-opened has loved it – there have<br />

been so many positive comments,” she said.<br />

“The Facilities Team has done a great job as usual; they<br />

even picked the most amazing splash back which we all<br />

love!<br />

“But not only have we had the kitchen done, we’ve also<br />

been working on the courtyard with some replanting, with<br />

the aim of creating a nicer environment for Clients to go<br />

out and enjoy – somewhere that looks lovely and relaxing,<br />

but also smells wonderful.”<br />

The entrance wasn’t forgotten in the upgrades, sowing<br />

the seeds for big future plans.<br />

“The idea is that when you come in in a year or so, visitors<br />

will come in through a hedged driveway to provide a<br />

grand entrance for our visitors,” she said.<br />

These are the latest in a string of refurbishments, which<br />

started with a flooring upgrade two years ago and<br />

continued with a laundry and bathroom refresh last year.<br />

“We had a lady who hadn’t visited in 12 months, and she<br />

was just blown away when she came in,” Nelly said.<br />

“Everything we do is to ensure the Client experience at<br />

respite leaves them feeling really good about their stay<br />

– it is so important to all of us and is what we strive to<br />

achieve.<br />

“It’s an amazing energy in the house, with everyone<br />

making connections and new friends. Every day there is<br />

laughing and joking, and when they leave they exchange<br />

numbers to stay in touch.<br />

“For me, this is why I do what I do.”<br />

Fern River residents are now embracing the opportunity to get some<br />

sunshine on their skin and socialise with other residents. With the support<br />

of some occasionally loud music and a whole lot of singing and dancing, the<br />

once quiet afternoons are now filled with laughter and engagement. At Fern<br />

River we are lucky enough to have easy access to the walking paths along the<br />

Canning River giving beautiful scenery and access to nature and wildlife. If<br />

this sounds like a lifestyle you would enjoy, we have room for one more! Get in<br />

touch with your Client Liaison Coordinator or email fernriver@mswa.org.au to<br />

enquire about our Fern River High-Support Accommodation.<br />

Jacqui Sheveleff<br />

Supported Accommodation Coordinator<br />

Are you interested in MSWA’s Accommodation or Respite services?<br />

We would love to hear from you!<br />

We regularly host tours of our facilities and would love to show you the amazing amenities we have to offer.<br />

Please get in touch with our teams through the details below:<br />

Accommodation: customerservice@mswa.org.au<br />

Treendale Respite: treendale@mswa.org.au<br />

Margaret Doody House (City Beach): nelly.higginson@mswa.org.au<br />

Call us on 9365 4888 and book a pre-visit to look around and ask any questions you may have.<br />

From there, a booking can be made, and funding secured. If you are a current MSWA Client and have<br />

a Client Liaison Coordinator, ask them about accessing respite.<br />

32 33


Events<br />

Our People<br />

Creating a connection point<br />

MSWA art exhibition 20<strong>24</strong><br />

Celebrating our<br />

Difference Makers<br />

West Australian artists living with neurological<br />

conditions showcased their talents to thousands of<br />

admirers as part of MSWA’s inaugural art exhibition.<br />

Hosted in the Mega Home Lottery Grand Prize Home<br />

located in Marmion, the exhibition featured 25 pieces<br />

produced by 22 artists in February and March, with<br />

visitors in awe of the quality and diversity of the work.<br />

Mixed media artist Hank Gidney, whose career has<br />

spanned 35 years as a commercial artist, designer and<br />

art director, is showing his work We got here, where is<br />

here? as part of the exhibition, a piece which tells the<br />

tales of two unique journeys.<br />

“The subject is a friend of mine, who is an indigenous<br />

artist in his own right. I came to this idea because I had<br />

also been relatively recently diagnosed with MS, and he<br />

had his own journey at that same time,” Hank said.<br />

“So, I combined both elements into one narrative. It’s mixed<br />

media because it’s a piece of photography, but it’s also<br />

about art – illustration and painting – that was created as a<br />

separate element and printed, so the two became synced.”<br />

Hank was “humbled” to know his art would be seen by so<br />

many people, and that featuring the artworks in the Mega<br />

Home Lottery house were a great way to “connect the dots”.<br />

“Sometimes we are defined or bookended by our<br />

condition, sometimes that’s a visible thing and<br />

sometimes not so," he said.<br />

“But actually, this exhibition says something very<br />

different. It says ‘actually, we are not’ we have these<br />

avenues to express ourselves away from our condition,<br />

even though it may describe our journey. I think it is really<br />

valid and special.”<br />

Malcolm Hicks travelled all the way from Bunbury for the<br />

exhibition opening which features his work Combination<br />

of Dreams which depicts a fictitious northwest WA scene,<br />

borne of his own vivid imaginings.<br />

Unlike Hank, Malcolm is a relative newcomer to the art<br />

scene, who began honing his skills after his motor neurone<br />

disease diagnosis in 2012.<br />

Hank Gidney with his artwork.<br />

“I found myself at home a bit more and took up painting<br />

then,” he explained.<br />

“When I first started, my brother gave me a picture and<br />

said, ‘I don’t want a copy of a picture, I’ve already got the<br />

photo, I want your impression of it’.<br />

“So, you can’t go wrong when it’s your impression!”<br />

Malcolm welcomed the opportunity to publicly show<br />

his work, but also to have the chance to see the huge<br />

variation in work on display from other artists.<br />

Following rave reviews from visitors, the exhibition will<br />

travel to MSWA Wilson Outreach where it can be viewed<br />

from May 6 – 21, 8.30am – 5pm.<br />

Votes have been flooding in for the People’s Choice<br />

Award, which is set to close at 11.59pm on Friday 17 May –<br />

so make sure your vote counts!<br />

The winner will be announced at the People’s Choice<br />

Award ceremony on Tuesday, 21 May at Wilson Outreach,<br />

where the exhibition closing will be<br />

celebrated with a morning tea.<br />

To secure your place, scan the<br />

QR code.<br />

We were again blown away by the<br />

outpouring of support from Clients in<br />

nominating their MSWA Difference<br />

Maker of the Year for 2023!<br />

It was another difficult decision,<br />

with Support Coordinator Talisha<br />

Gismondi and Occupational Therapist<br />

Sam Warne named as deserving<br />

finalists in this important category,<br />

with Exercise Physiologist Oliver<br />

Guttinger announced as our winner.<br />

Oliver said receiving the recognition<br />

had left him in disbelief.<br />

“Especially because it was from<br />

the Clients, it’s very humbling to be<br />

recognised by them and to receive<br />

such an honour as this,” Oliver said.<br />

Oliver credits his 13 years working<br />

for MSWA to his amazing team, and<br />

of course the Clients he works with.<br />

“The Clients are an inspiration to<br />

me,” he said.<br />

“It's nice to be able to spend that time<br />

week after week with people, develop<br />

a deeper connection and see them<br />

progressing through their lives and<br />

sharing that journey with them.<br />

“But I've also got to say that we've<br />

got such an excellent team, both<br />

in the in the Beechboro facility and<br />

at Butler.<br />

“Everyone's well respected, we learn<br />

from and are supportive of one<br />

another – that really, really makes a<br />

difference when you can come into<br />

work to know that everyone's got<br />

your back and pitch in when you need<br />

it. It makes a massive difference.”<br />

He extended his thanks to the<br />

Clients who nominated him and<br />

looked forward to “continuing to<br />

move onwards and upwards with<br />

smiles on our faces”.<br />

Congrats Oliver!<br />

Here is what our Clients had to say:<br />

“Ollie is brilliant in what he does, I always feel better after my sessions<br />

with him, he really understands neuro conditions, and has patience,<br />

empathy and respect, he is a huge asset to MSWA.”<br />

“Ollie's patience and guidance in delivering both group and<br />

personalised exercise programs ... has given me confidence in<br />

understanding how to work through the challenges that MS presents<br />

and achieve the best results possible from my mind and body.”<br />

“Each week Ollie takes great care to ensure our comfort and<br />

wellbeing as we progress through his exercise routine, with laughter,<br />

endless encouragement and ending always with a sense of physical<br />

accomplishment and well-being.”<br />

You can check out all<br />

of our winners for 2023 below:<br />

Difference Maker Award<br />

Oliver Guttinger,<br />

Exercise Physiologist<br />

Change Maker Award<br />

Melissa Coombs,<br />

Outreach Coordinator<br />

Leading with Purpose Award (Team)<br />

Rostering Team<br />

Leading with Purpose Award<br />

(Individual)<br />

Chanel Rikihana,<br />

Community Support Worker<br />

The Chair’s Impact Award<br />

James Beckett,<br />

Physiotherapy Manager<br />

Trailblazer Award<br />

Sandra Barton,<br />

Community Support Worker<br />

Values Award – Accountability<br />

Robin Braccia,<br />

Quality, Safeguarding and Risk<br />

Values Award – Difference<br />

Abi Farrah,<br />

Care Support Worker<br />

Values Award – Listen<br />

Donna Hogan,<br />

Community Support Worker<br />

Values Award – Respect<br />

Joseph Jangi,<br />

Maintenance/Handyman<br />

34 35


Our People<br />

Get to know:<br />

Liam Roche<br />

A final act of kindness<br />

This brand new series will help you<br />

get to know the MSWA team a little<br />

better! To kick us off, we spoke with<br />

Board Director Liam Roche.<br />

Liam is currently our Deputy Chair,<br />

Chair of People and Governance<br />

and a Committee Member of<br />

Audit, Risk and Finance. He is an<br />

accomplished business leader with<br />

a 40-year career in the media and<br />

manufacturing industry.<br />

Throughout his career, Liam has<br />

not only left an indelible mark<br />

on the corporate landscape but<br />

has also become an inspiration<br />

for his commitment to<br />

community service.<br />

What motivated you to join the<br />

MSWA board?<br />

When I retired at 58 years of age, I<br />

wasn’t completely ready to hang up<br />

the boots so I looked at how I could<br />

contribute to the community. A good<br />

friend of mine knew Bill Hassell,<br />

MSWA Senior Vice President at the<br />

time and he was aware that MSWA<br />

were looking for a new director, so he<br />

suggested they talk to me.<br />

I also had friends and family<br />

members living with multiple<br />

sclerosis, MSWA had a good<br />

reputation and was doing amazing<br />

work in supporting people living with<br />

MS, so I was proud to become a part<br />

of the team and have worked hard<br />

ever since trying to make a positive<br />

impact in my capacity.<br />

What is your favourite<br />

memory / achievement as part<br />

of the MSWA Board?<br />

Helping to build sustainable growth<br />

in service delivery, building new<br />

state-of-the-art facilities, and<br />

our significant contributions to<br />

research over the years. Back in<br />

2016 when I joined the Board, we<br />

delivered 460,000 hours of service,<br />

contributed $2.2m to research,<br />

our Net Assets were $26.7m,<br />

total income was $48.6m and we<br />

achieved a surplus of $4.3m.<br />

By 2023 we nearly doubled the<br />

hours of service delivered to<br />

856,050 hours, we have tripled our<br />

contribution to research to $6m, our<br />

Net Assets have grown to $102m,<br />

total income has more than doubled<br />

to $114m and our surplus was a<br />

staggering $11m, which we will use<br />

to empower the lives of people living<br />

with neurological conditions. This is<br />

sustainable growth that we can all<br />

be enormously proud of.<br />

When you have time off, what<br />

would we find you doing?<br />

When I first retired, I didn’t have any<br />

grandkids and in the next four years<br />

we had four under 4 years of age!<br />

As my daughters like to say “it takes<br />

a village to raise a child” which is<br />

code for Grandparents helping, so<br />

Karen and I spend lots of time with<br />

our grandchildren, which has been<br />

both a pleasure and a privilege.<br />

We also love travelling and enjoy a<br />

trip to either Europe or the United<br />

States every year along with regular<br />

trips to Bali and the Eastern States.<br />

We’ve been lucky to see a lot of the<br />

world and love exploring new places.<br />

What is an interesting fact about<br />

yourself people may not know?<br />

I am a keen Bridge player and play a<br />

couple of times a week. I’m a member<br />

of the West Australian Bridge Club<br />

and the Melville Bridge Club. I enjoy<br />

the intellectual and social stimulation<br />

and appreciate the logic, reasoning,<br />

concentration, and partnership skills<br />

Bridge develops.<br />

If you could imagine one thing<br />

for MSWA in 10 years, what<br />

would it be?<br />

There is currently no cure for MS,<br />

but there has been tremendous<br />

progress in the development of<br />

drugs to treat the disease. I would<br />

like to imagine a future where anyone<br />

diagnosed with a neurological<br />

condition could live a “life without<br />

limits” and not worry about their<br />

condition getting worse, thanks to<br />

groundbreaking research and the<br />

development of new treatments.<br />

Liam and his wife Karen spending<br />

time with their grandchildren.<br />

MSWA CEO Melanie Kiely graciously accepted an<br />

extremely generous donation at the bequest of the late<br />

Ross Howard Kennedy in January, who sadly passed<br />

away in March 2022.<br />

Despite the solemn circumstances, we were heartened<br />

to learn this decision was made by Ross in recognition of<br />

the significant support he received from MSWA over the<br />

several decades in which he lived with multiple sclerosis.<br />

“He wanted to recognise that generous and sustained<br />

support in his will,” said Ross’ brother, Bruce.<br />

Ross Kennedy: “A delightful gentleman”<br />

The middle child of three siblings, Ross grew up in Tuart<br />

Hill in the 50s – then the northern edges of Perth – where<br />

there was plenty of bushland to play around in with his<br />

friends from the street.<br />

Attending the local school, Ross was able to come<br />

home for lunch every day, except for when their mum<br />

volunteered at the school canteen and the trio were able<br />

to enjoy special treats.<br />

On the weekends and school holidays, Ross would spend<br />

time swimming, crabbing and fishing at the family’s<br />

holiday home in Mandurah.<br />

Ross was also a talented hockey player, a gifted artist<br />

and photographer, with a particular interest in flowers.<br />

He was also a keen collector of model trains, cars and<br />

trucks.<br />

A great lover of all things English – including his wife<br />

Shirley, The Beatles and James Bond (his car number<br />

plate was moonraker!), Ross was a quiet man with a wry<br />

sense of humour.<br />

According to his family, Ross was determined to live life<br />

and go forward in his own way. He even ordered a new<br />

stereo system to accompany him to palliative care so he<br />

could “go out in style”.<br />

“MSWA is an organisation that does a lot of good, and it<br />

is important given that they support the community, that<br />

the community supports them.”<br />

As well as donating an astounding $270,000, Ross’ estate<br />

also donated equipment, including a specialist bed,<br />

two hoists, four wheelchairs and a care alert system to<br />

benefit other MSWA Clients.<br />

In recognition of this generosity, we would like<br />

to pay tribute to Ross, by sharing a small part of<br />

his story.<br />

Ross started a cadetship at the Land and Surveys<br />

Department, where he worked until his retirement in 1996.<br />

He was universally respected for his personal qualities<br />

and his technical talents in photogrammetry and IT.<br />

Diagnosed with MS the mid-1980s, Ross received<br />

support from MSWA over several decades where he was<br />

well-regarded by the staff who cared for him.<br />

We extend our condolences to Ross’ family and cannot<br />

understate our appreciation for his selfless gift, and to<br />

Bruce for his substantial efforts as executor to make<br />

this donation possible.<br />

It is because of generosity such as this that MSWA<br />

can continue to support West Australians living with<br />

neurological conditions to live the life they choose.<br />

Interested in leaving a gift in your will?<br />

For more information, visit our website<br />

mswa.org.au/get-involved/a-gift-in-will<br />

36 37


News in brief<br />

Save the date<br />

UPCOMING EVENTS<br />

Thursday 30 May<br />

World MS Day<br />

Sunday 23 June<br />

Step Up for MSWA<br />

WA-developed drug to protect brain after stroke<br />

A groundbreaking WA-developed drug which aims to<br />

reduce brain tissue damage following stroke is now being<br />

trialed in hospitals across Australia, including Sir Charles<br />

Gairdner and Fiona Stanley hospitals in Perth.<br />

MSWA proudly contributed funding to Phase 1 of the drug<br />

trial of ARG-007, which confirmed the novel drug is safe<br />

and well tolerated in healthy volunteers.<br />

The drug was developed through research led by<br />

Professors Bruno Meloni and Neville Knuckey (Perron<br />

Institute and The University of Western Australia) at<br />

WA-based biotech company Argenica Therapeutics<br />

and will be administered by early responders in the<br />

Phase 2 trial.<br />

Read more here: https://bit.ly/3Pk49hX<br />

Portraits in time<br />

The May 50k<br />

Albany Swim<br />

Ripping up the book<br />

of life<br />

Can art change the world? This is<br />

the question explored in a recently<br />

filmed short documentary featuring<br />

Tasmanian artist and activist<br />

Lucienne Rickard, who also bravely<br />

shares her personal story of being<br />

diagnosed with multiple sclerosis.<br />

Lucienne inspires everyone she<br />

meets and is carving out an<br />

international profile as a devoted<br />

advocate for protecting endangered<br />

species.<br />

Search ‘Ripping up the book of life’<br />

by LOWCO Au on YouTube to watch<br />

the inspirational film.<br />

(Image credit: ABC News)<br />

MSWA Volunteer takes<br />

Australian Idol by storm!<br />

Andrea Omanade (or Drea) is<br />

well-known in the MSWA community<br />

by Clients and staff as a beloved<br />

and regular volunteer singer for<br />

our events.<br />

We are very proud to share that Drea<br />

made it to the top 8 of this year’s<br />

Australian Idol! What an incredible<br />

achievement. Congratulations, Drea!<br />

– we look forward to hearing all about<br />

your journey in our next <strong>Bulletin</strong>.<br />

In case you missed it, you can catch<br />

Drea's incredible performances on<br />

catch up TV via 7Plus.<br />

She also keeps her fans updated<br />

on Facebook (Search Drea) and<br />

Instagram (@dreaomusic).<br />

(Image credit: Channel 7)<br />

‘Every time it’s hot, my<br />

world goes blurry’<br />

MSWA Client Wildaliz De Jesus<br />

recently wrote two insightful articles<br />

published on the ABC News’ website<br />

outlining the impact of heatwaves on<br />

people with a disability.<br />

In the first article, Wildaliz writes<br />

from her own perspective as a<br />

woman living with multiple sclerosis<br />

and how heat has snatched<br />

moments from her.<br />

In the second article, she<br />

spoke to experts like MSWA<br />

Occupational Therapist Sarah<br />

Coutinho to understand why heat<br />

disproportionately affects people<br />

with disability and measures for<br />

more inclusive communities.<br />

To read the articles visit:<br />

https://ab.co/3vjymXk (article 1) and<br />

https://ab.co/3vjbQ0N (article 2)<br />

27 March - 30 April 20<strong>24</strong><br />

10am - 2pm<br />

Bond Store Gallery,<br />

Old Courthouse Complex on<br />

Queen Street, Busselton<br />

Did you know that MSWA Client<br />

Liaison Coordinator Kirsty Wyatt is<br />

a talented illustrator? In fact, Kirsty<br />

has an entire exhibition of her own<br />

over the Easter holidays!<br />

The exhibition consists of 12<br />

paintings and sketches celebrating<br />

the lives and contributions of the<br />

older generation of Busselton.<br />

This exhibition will not only<br />

showcase their visual portraits,<br />

but will also share the rich tapestry<br />

of their life experiences, fostering<br />

intergenerational understanding and<br />

respect within the community.<br />

Submit your article to us<br />

Wednesday 1 – Friday 31 May 20<strong>24</strong><br />

Australia-wide<br />

This May, smash your fitness goals<br />

as you help raise funds to support<br />

life-changing research into the<br />

prevention, treatment and finding a<br />

cure for multiple sclerosis.<br />

Challenge yourself to move 50 KM<br />

(The OG), 100 KM (Double Up) or 150<br />

KM (Triple Threat), in your own time<br />

and at your own pace.<br />

Take part on your own, as a team, or<br />

get your whole workplace involved!<br />

This is an opportunity to come<br />

together, to leave MS where it<br />

belongs. Behind us.<br />

https://www.themay50k.org<br />

Do you have a story about living with a neurological condition in WA that other MSWA Clients might like to read?<br />

We invite you to share your experiences with us.<br />

Email your submission to bulletin@mswa.org.au for consideration.<br />

Suggestions, complaints and compliments<br />

We want to hear from you. Your feedback helps us to understand what is working well and where we can improve.<br />

You can raise a concern or acknowledge the support an MSWA staff member has provided by telephoning 6454 3146,<br />

via feedback@mswa.org.au or writing to Quality and Compliance; Locked Bag 2, BENTLEY DC 6983.<br />

For more information, visit mswa.org.au/about-mswa/contact-us.<br />

Saturday 20 April 20<strong>24</strong><br />

8am – 5pm<br />

Albany Leisure and Aquatic Centre<br />

The MSWA Albany Swim has<br />

evolved into a highly anticipated and<br />

cherished annual community event<br />

for the Great Southern region.<br />

Now in its 12th year, the event<br />

welcomes all who live in the region<br />

and those keen for a road trip to<br />

participate in the energetic and<br />

meaningful fundraiser helping to<br />

provide vital support, services and<br />

research to Western Australians<br />

living with a neurological condition.<br />

Sign your team up today at<br />

www.mswaswim.org.au and push your<br />

limits in an exhilarating 8-hour relay.<br />

Get ready to make a splash and<br />

celebrate the joy of swimming<br />

together while making a difference.<br />

38 39


To find out more about our services,<br />

create connections or show support<br />

for cause, visit mswa.org.au.

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