Bulletin Magazine Bunuru / Second Summer 24

Welcome to the Bunuru / Second Summer 2024 edition of Bulletin. On the cover: Client art shines at the MSWA art exhibition, with thousands of visitors from near and far appreciating the showcase at the Mega Home Lottery Grand Prize Home in Marmion. Inside: MSWA provides Tysabri access Pauline and John Campbell: Love conquers all NDIS review to bring major changes A different approach to happiness

Welcome to the Bunuru / Second Summer 2024 edition of Bulletin.

On the cover: Client art shines at the MSWA art exhibition, with thousands of visitors from near and far appreciating the showcase at the Mega
Home Lottery Grand Prize Home in Marmion.


MSWA provides Tysabri access
Pauline and John Campbell: Love conquers all
NDIS review to bring major changes
A different approach to happiness


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Client art shines at the MSWA art exhibition,<br />

with thousands of visitors from near and<br />

far appreciating the showcase at the Mega<br />

Home Lottery Grand Prize Home in Marmion.<br />

<strong>Bulletin</strong><br />

Inside<br />


BUNURU | SECOND SUMMER 20<strong>24</strong><br />


Welcome to the <strong>Bunuru</strong> 20<strong>24</strong><br />

edition of <strong>Bulletin</strong>.<br />


29 Parkhill Way<br />

9365 4888<br />

Contact Us<br />

If you would like to comment on anything you read in<br />

this <strong>Bulletin</strong>, please email bulletin@mswa.org.au<br />

For general feedback or complaints, please contact<br />

feedback@mswa.org.au<br />

<strong>Bunuru</strong> is the hottest time of the year, with hot easterly winds<br />

and very little rain. Traditionally, this is a great time to spend by<br />

Perth’s many bodies of water – the coast, rivers and estuaries.<br />

During <strong>Bunuru</strong>, the white flowering gums are in full bloom –<br />

look out for the ghost gums, marri and jarrah trees.<br />

Editorial Working Group<br />

Nicola Washington, Tony Millar, Emily Ace and<br />

Nicolette Murphy.<br />

Contributors<br />

Geoff Hutchinson, Carol Chong, Dajana Tesevic,<br />

Vanishree Chetti, Denise Vogels, James Beckett,<br />

Tracey Hockey, Misty Reinkowsky and Crystal Chan.<br />

Client Engagement Department<br />

Our experienced teams will provide you with<br />

personalised support throughout your service journey<br />

with MSWA. From helping you to access funding, to<br />

working with you to get the most from your selected<br />

services, our trained staff are here to help.<br />

For more information, please contact 9365 4888.<br />

Our services include:<br />

• Counselling, Peer Support and Health Education<br />

• Community Support & In-home Care<br />

• Dietetics<br />

• Occupational Therapy<br />

• Outreach<br />

• Physiotherapy<br />

• Social Welfare<br />

• Speech Pathology<br />

• Nursing<br />

• Support Coordination<br />

Nursing Support<br />

Our Neurological Liaison Nurses are usually the first<br />

point of contact after the neurologist’s diagnosis.<br />

Community Nurse: 9365 4888<br />

Monday to Friday (8.00am - 4.00pm)<br />

Outreach at MSWA<br />

If you live in Perth, Rockingham, Bunbury or Albany and<br />

are interested in a trial to experience the Outreach<br />

community, get in touch via outreach@mswa.org.au<br />

Employment Support<br />

The MSWA Employment Support Service is the only<br />

specialist employment service for people living with<br />

multiple sclerosis and other neurological conditions in<br />

Western Australia. Our team can help you to stay<br />

in your current job or find employment in the open<br />

labour market.<br />

Please call: 1300 865 209<br />

See all our supports and services at mswa.org.au<br />

Switch to <strong>Bulletin</strong> online today!<br />

Help us reduce our environmental impact by going<br />

digital and connect with more engaging content.<br />

Email us at marketing@mswa.org.au to sign up.<br />

PHOTO: Dylan Alcock<br />

Acknowledgement of Country<br />

In the spirit of reconciliation, MSWA acknowledges the<br />

Traditional Custodians of the many lands and language<br />

groups of Western Australia, and their connections to<br />

land, sea and community. We pay our respect to their<br />

Elders past and present, and extend that respect to all<br />

Aboriginal and Torres Strait Islander peoples today.<br />

2 3

From our CEO<br />

It feels too late to say Happy New<br />

Year but given this is our First<br />

<strong>Bulletin</strong> of 20<strong>24</strong> it is appropriate.<br />

For those who celebrate Chinese<br />

New Year, wishing you Gong Xi Fa<br />

Cai also, as we welcome the Year<br />

of the Dragon.<br />

It is also the Noongar season of<br />

<strong>Bunuru</strong> which is the second summer<br />

and the season bringing heat<br />

and little rain. We have definitely<br />

experienced this with an unusual<br />

number of extremely hot days,<br />

all of which affect everyone, but<br />

particularly those with MS and other<br />

neurological conditions. Hopefully<br />

as we head into April, it will cool<br />

down and we will see more rain. I was<br />

looking at our Noongar calendar in<br />

the office and it says it’s a time for<br />

long days fishing by the river.<br />

Inherent in that is community.<br />

This is something we have been<br />

reflecting on and discussing with<br />

our Client and community co-design<br />

committee. How do we recapture<br />

that sense of community that<br />

defined the MS Society in those<br />

early years? This is something we<br />

look forward to discussing with you<br />

in this period, getting your views on<br />

and expanding our efforts.<br />

Aligned with this is our commitment<br />

to co-design. Our co-design<br />

committee is now well established,<br />

and whilst we have a way to go<br />

to truly capture the essence and<br />

benefits of co-design, we have made<br />

very good progress. Using that as<br />

a foundation, we hope to now move<br />

forward to working with this core<br />

group to leverage the ideas and<br />

input of our wider advisory group<br />

and our full community.<br />

Having recently spent a couple of<br />

hours with one of the breakfast<br />

groups our Clients have formed,<br />

I was humbled yet again by how<br />

much you can learn from people<br />

who live with neurological conditions<br />

day in and day out, if you just stop,<br />

listen and truly appreciate their<br />

perspective. Thank you to those<br />

of you who invited me and were so<br />

open, kind and constructive.<br />

Our goal with co-design is to truly<br />

leverage the impact in a way that<br />

addresses the needs of both our<br />

Clients and community. I look<br />

forward to seeing this progress in<br />

the next six months and welcome all<br />

and any ideas that come out of it.<br />

In this period, we are also looking<br />

forward to engaging closely with<br />

our peak body, MS Australia, and<br />

the State and Federal governments<br />

to enact the recommendations<br />

from the Royal Commission and<br />

the NDIS review. In essence, we do<br />

think the NDIS review heard the real<br />

problems and agree largely with the<br />

recommendations. However, as they<br />

say, the devil is always in the detail.<br />

It is this detail in timing and<br />

allocation of supports between<br />

State and Federal governments<br />

that we are most focused on. We<br />

agree with the sentiment of personcentred<br />

care and capacity-based<br />

funding, but how that is done and<br />

when is really critical.<br />

I know the respective governments<br />

are also very keen to do this on a<br />

co-design basis and that means if<br />

you want to have a say, you should<br />

be able to. We will keep you posted<br />

on the opportunity to do so as we<br />

hear more.<br />

It was also a privilege to start this<br />

year with MSWA's inaugural art<br />

exhibition, hosted at the Mega Home<br />

Lottery Grand Prize Home.<br />

The depth of talent within our Client<br />

community never ceases to amaze<br />

us, so we were extremely proud to<br />

share your art with thousands of<br />

members of the public, so they could<br />

appreciate your creativity, too.<br />

It was a great joy to meet some of<br />

the artists during the home opens -<br />

I even managed to match some of<br />

the work on display! I look forward<br />

to meeting even more of you when<br />

the exhibition continues at Wilson<br />

Outreach in April.<br />

In January, I was completely blown<br />

away by the generosity of one of<br />

our late Clients, Ross Kennedy, who<br />

made a substantial gift in his will for<br />

the benefit of MSWA and our Clients.<br />

It was a privilege to meet his<br />

brother, Bruce, who worked<br />

tirelessly to ensure his brothers<br />

wishes were fulfilled.<br />

As an organisation, it is our sole<br />

purpose to support people living<br />

with neurological conditions, and to<br />

learn our team made such a positive<br />

impact on Ross' life filled us with<br />

great pride. Thank you, from the<br />

bottom of our hearts.<br />

Melanie Kiely CEO, Bruce Kennedy and Senior Events & Partnership<br />

Officer Danna Guzman.<br />

On a last note, we are aware that you<br />

might want to know more about our<br />

teams, our people and our leaders.<br />

In this edition, we profile our<br />

Deputy Chair Liam Roche. Our team<br />

have interviewed Liam and I am sure<br />

you, like me, will enjoy reading<br />

his interview.<br />

Melanie Kiely<br />

MSWA CEO<br />

4 5

Member & Client Services<br />

Welcome to the <strong>Bunuru</strong> / <strong>Second</strong><br />

<strong>Summer</strong> edition of our Member &<br />

Client Services <strong>Bulletin</strong>.<br />

As featured on our front page,<br />

a number of our Clients had the<br />

opportunity to showcase their<br />

incredible creative skills at the<br />

MSWA art exhibition in March.<br />

Take a look at page 30 to see some<br />

of these incredible pieces and book<br />

your place at the People’s Choice<br />

Award festivities on 21 May.<br />

NDIS News<br />

The final report of the Independent<br />

Review into the NDIS was published<br />

in December, listing four key<br />

review areas.<br />

• A unified system of support for<br />

people with disability<br />

• Markets and support systems<br />

which empower people with<br />

disability<br />

• Stewardship of the unified<br />

ecosystem<br />

• A five-year transition<br />

A more detailed update is provided<br />

by Geoff Hutchinson on pages 12<br />

and 13, and the QR code below<br />

provides an easy read of the review.<br />

It is important to note that these are<br />

recommendations and are still to be<br />

accepted by government, along with<br />

clarity on what will form the five year<br />

transition plan and what will be the<br />

priority. We look forward to seeing<br />

the next steps and a clear action<br />

plan for what is agreed.<br />

What’s coming up<br />

Tysabri Subcutaneous Injection<br />

Our nursing team will now be<br />

accepting referrals to administer<br />

the Tysabri Subcutaneous Injection<br />

since it has been approved on the<br />

PBS. We will be initially using our<br />

Wilson service centre as the base<br />

site for Clients referred for their fourweekly<br />

injection. This will also give<br />

Clients the opportunity to engage<br />

and connect with others while<br />

visiting our Wilson Centre.<br />

If you would like more information,<br />

you can call our nurse support line<br />

to speak to one of our nurses on<br />

9365 4888 or 1300 097 989.<br />

You can also read more about<br />

this on page 8.<br />

Meet our nominees<br />

The finalists and winners will be announced on 18 May at the WA Disability Support Awards Gala Dinner, and we are<br />

keeping our fingers crossed for our team.<br />

Randall Rooney<br />

Innovation in Service Delivery<br />

Melissa Coombs<br />

Emerging Leader<br />

Employment<br />

Services team<br />

Excellence in Rights Promotion<br />

NDS Disability awards<br />

I am proud to announce we have<br />

a number of our team members<br />

nominated for the WA Disability<br />

Support Awards 20<strong>24</strong>.<br />

As always, your feedback is important to us, so if you have anything you<br />

would like to share please contact us at feedback@mswa.org.au.<br />

Nicki Washington<br />

Chief Client Operations Officer<br />

6 7

Nursing<br />

MSWA plays key role in providing<br />

improved access to Tysabri®<br />

As of 1 February 20<strong>24</strong>, the<br />

federal government approved<br />

subcutaneous natalizumab<br />

(Tysabri®) for individuals with<br />

relapsing remitting MS (RRMS)<br />

under the Pharmaceutical Benefits<br />

Scheme (PBS).<br />

Before this, Tysabri® was only<br />

available as a monthly intravenous<br />

infusion administered in a hospital or<br />

infusion clinic.<br />

As part of the implementation of<br />

the Tysabri® subcutaneous<br />

injection, MSWA will play a key role<br />

in setting up access to this service,<br />

as other clinical settings such<br />

as hospitals and GP clinics put in<br />

place processes to receive<br />

patients ongoing.<br />

MSWA Research Coordinator Julia<br />

Tran sat down with MSWA Clinical<br />

and Residential Services Manager<br />

Vanishree Chetti and MSWA<br />

Neurological Liaison Nurse Rochelle<br />

Brown to chat about the new form<br />

of Tysabri®, the role MSWA will play<br />

in accessing this treatment option<br />

and what that means for improving<br />

access to people with RRMS.<br />

What does the new form of<br />

Tysabri® mean for people<br />

with MS?<br />

Vanishree Chetti: The main<br />

advantage is shorter service<br />

time. This announcement means<br />

individuals with RRMS will now have<br />

access to a nurse to administer the<br />

Tysabri® injection at our MSWA sites.<br />

The entire process is shortened<br />

from being a couple of hours long<br />

to just a one-hour service. We will<br />

be complete pre- and post-checks<br />

before and after the administration.<br />

Rochelle Brown: Clients are<br />

required to have two subcutaneous<br />

(under the skin) injections, each<br />

containing 150mg. This is because<br />

it would be uncomfortable for<br />

the Client to be administered 2ml<br />

subcutaneously as a single dose.<br />

(Tysabri infusion is 300mg).<br />

Where can a Client<br />

access Tysabri®?<br />

Vanishree Chetti: MSWA nurses<br />

have been trained and educated<br />

on the new administration of the<br />

injection. If we receive a referral,<br />

Clients will be requested to initially<br />

come to the MSWA Wilson services<br />

centre, but we will also have trained<br />

nurses at the Butler and Bunbury<br />

services centres.<br />

Where a Client goes for the<br />

administration of Tysabri depends<br />

on their neurologist’s referral – this<br />

could be the GP, hospital or MSWA<br />

service centre.<br />

What is the cost of accessing<br />

Tysabri® injections at MSWA<br />

Rochelle Brown: There will be no<br />

cost for administration of Tysabri®.<br />

MSWA provides help to individuals<br />

living with MS which includes<br />

assistance with the administrations<br />

of various immunotherapies.<br />

Vanishree Chetti: MSWA has always<br />

supported individuals living with<br />

MS, which includes assistance with<br />

the administration of the various<br />

Immunotherapies.<br />

What is the most important<br />

information someone should<br />

know about Tysabri®?<br />

Rochelle Brown: To guarantee the<br />

integrity of the medication, cold<br />

chain must be maintained from the<br />

point of manufacturing to the<br />

point of administration. This is why<br />

your MSWA nurse will ask you to<br />

collect your Tysabri® injections<br />

from the pharmacy on your<br />

way to your appointment at an<br />

MSWA service centre.<br />

Vanishree Chetti: It is important that<br />

individuals complete pre-checks<br />

(blood work) prior to coming in and<br />

know their results.<br />

As this is a new treatment form of<br />

Tysbari, MSWA has ensured the<br />

appropriate clinical governance is<br />

in place, including robust training of<br />

our nursing staff, to ensure the safe<br />

delivery of this treatment.<br />

If you are new to the drug, then<br />

the first few injections will be<br />

administered in the hospital to<br />

ensure there are no adverse<br />

reactions. Individuals can then<br />

be referred to an MSWA nurse<br />

for ongoing administration at<br />

an MSWA site.<br />

If after those couple of doses there<br />

are no adverse reactions, individuals<br />

will transition into the community<br />

where MSWA Nurses will then<br />

continue the administration of the<br />

injections at an MSWA site. We will<br />

be providing an interim solution<br />

until additional health services are<br />

on board too.<br />

It is a good initiative, and it is how<br />

MSWA can help the MS community.<br />

This interview has been edited<br />

for clarity. This transcript is<br />

for informational purposes<br />

only and is not a substitute for<br />

professional medical advice<br />

or treatment. Personalised<br />

consultations are essential for<br />

optimal care so it is important<br />

for individuals with MS to<br />

discuss with their medical<br />

team to identify the most<br />

suitable treatment for their<br />

specific situation.<br />

Register your<br />

interest in<br />


In November 2023, MSWA in partnership with MS Australia announced<br />

the first-ever adaptive clinical trial seeking to reverse the neurological<br />

damage caused by primary progressive multiple sclerosis (PPMS).<br />

Known as PLATYPUS, the $4 million trial is due to commence in 20<strong>24</strong>.<br />

The multi-arm, multi-stage design will test two repurposed drugs<br />

simultaneously, providing timely results about whether the treatments<br />

are working.<br />

The clinical trial process requires significant applications to ethics,<br />

governance and regulatory authorities for approval. When these<br />

approvals are met, study sites in Australia may start recruiting people<br />

living with MS into the trial.<br />

If you are interested in participating, please register your interest<br />

via the MS Australia website (link below) to be notified when<br />

recruitment commences.<br />

www.msaustralia.org.au/platypus/<br />

8 9

Research<br />

MS Australia funds WA research<br />

Get involved in neuro research<br />

MS Australia announced funding for 17 cutting-edge projects as part of their latest $4.5m grant round, made possible<br />

through support from MSWA and MS Member Organisations across the nation.<br />

This includes three West Australian researchers and their projects to commence in 20<strong>24</strong>:<br />

Dr Stephanie Trend of The<br />

University of Western Australia,<br />

who aims to determine what is<br />

triggering immune reactions in<br />

people with MS. Robust evidence<br />

shows that a specific type of<br />

immune cell, known as B cells,<br />

are important to cause attacks<br />

of MS. This project involves using<br />

laboratory-made proteins that<br />

mimic natural antibodies, to identify<br />

and study the targets for B cells,<br />

including parts of Epstein-Barr<br />

Virus (EBV), which is known to be<br />

important in the development of<br />

MS. Identifying the specific targets<br />

recognised by B cells in MS may help<br />

to diagnose the disease, identify<br />

those at higher risk of MS, and<br />

develop targeted therapies to be<br />

used in the future.<br />

Dr Mark Hackett of Curtin<br />

University, who is investigating a<br />

compound called 'cuprizone' which<br />

has been found to induce damage to<br />

the brain that is similar to MS.<br />

This is due to its ability to bind<br />

strongly to copper, preventing it<br />

from reaching the brain where it is<br />

needed for energy production and<br />

healthy brain function.<br />

Congratulations<br />

to all the 20<strong>24</strong> funding<br />

recipients, we look<br />

forward to seeing<br />

your progress!<br />

You can view the full details<br />

of MS Australia's 20<strong>24</strong><br />

Research Grant<br />

Announcement<br />

through this<br />

QR code.<br />

Dr Belinda Kaskow of Murdoch<br />

University, for her work in<br />

unravelling underrepresented<br />

immune cell complexity in MS.<br />

This project will investigate killer<br />

immunoglobulin-like receptors (KIR),<br />

which are found on certain immune<br />

cells and help control immune<br />

responses. It will study which genes<br />

are present in an individual, when<br />

those genes are expressed, and<br />

what cell types express them. This<br />

project will compare this between<br />

people living with MS and people<br />

living without MS to understand the<br />

differences in the KIR repertoire<br />

in MS. Understanding how KIRs<br />

impacts the balance of the immune<br />

system in MS will lead to better, more<br />

targeted immunotherapies for MS in<br />

the future.<br />

MS Genetics Study<br />

The Menzies Institute for Medical<br />

Research needs your help to<br />

investigate the Epstein Barr virus<br />

(EBV) strain that may play a crucial<br />

role in developing multiple sclerosis<br />

(MS). Volunteers are needed for an<br />

Australia-wide study which aims<br />

to identify specific markers in the<br />

blood associated with onset and<br />

progression of MS.<br />

To volunteer, or find out more<br />

information, contact Postdoctoral<br />

Research Fellow Chhavi Asthana,<br />

on (03) 6226 4226 or via Chhavi.<br />

Asthana@utas.edu.au<br />

MS and food preparation<br />

Aged Care Survey<br />

The Perron institute is collaborating<br />

with the Department of Health<br />

to better understand people’s<br />

experiences, particularly those<br />

with neurological conditions, with<br />

palliative and end-of-life care in<br />

Residential Aged Care Facilities<br />

(RACFs) across WA.<br />

If you had a family member or friend<br />

die in an aged care facility in WA<br />

between 2021 – 20<strong>24</strong>, Perron would<br />

appreciate your perspective<br />

to help improve<br />

end-of-live services.<br />

Access the survey<br />

through the QR code.<br />

Be first to access InforMS online portal<br />

Do you have MS and someone who assists with your food preparation?<br />

Curtin University researchers would like to speak to people with MS, and those who assist<br />

with their food preparation, about their views on diet and what could help them eat well.<br />

Other than contributing to research which could improve the lives of people like you living<br />

with MS, you and your carer will receive a supermarket gift voucher in thanks for your time.<br />

For more information, contact Dr Rebecca Russell on<br />

9266 3160 or email MSDietProject@curtin.edu.au<br />

Finding Your Stride<br />

Do you have MS and regularly run<br />

or jog?<br />

A team of researchers at James<br />

Cook University are looking for<br />

volunteers to record their running<br />

habits over a four-week period.<br />

The team is interested to know if<br />

there is any relationship between<br />

your running habits and your MS<br />

signs and symptoms.<br />

If you have multiple sclerosis,<br />

and are interested in<br />

participating, please<br />

scan the QR code.<br />

A new online MS health portal called InforMS is being developed by MS Australia in collaboration with<br />

researchers from the Menzies Institute of Medical Research and Monash University, people living with MS,<br />

HealthCare Software, and other partners.<br />

InforMS is a ‘one stop shop’ to view and track your MS health information with your care team, record your own<br />

health outcomes over time, manage your health through setting goals, link evidence-based MS education and<br />

see options to participate in MS research and clinical trials.<br />

All Australian MS Longitudinal Study participants will be invited to try it as part of a research study in<br />

mid-20<strong>24</strong>, so get involved if you have not yet already at https://www.msaustralia.org.au/amsls<br />

10<br />


Client Engagement<br />

New NDIS to bring major<br />

changes… potentially.<br />

One of the most frightening words<br />

in the English language<br />

is ‘potential’.<br />

‘Potential’ has the potential to be<br />

great, the potential to be special,<br />

the potential to be life-altering<br />

or regrettably, the potential to be<br />

terrible. Everything is on the table<br />

when people insert ‘potential’ into a<br />

sentence. But what makes this word<br />

so scary is that we often must wait<br />

to find out if something reaches its<br />

potential or not.<br />

Take the 329-page report that was<br />

the final deliverable of the recent<br />

National Disability Insurance<br />

Scheme (NDIS) Review. Potentially,<br />

the recommendations within the<br />

report provide a five-year roadmap<br />

for a scheme that gets back to<br />

basics and becomes client-centred,<br />

with costs under control to ensure a<br />

viable scheme into the future.<br />

While the recommendations have<br />

the potential, we still don’t know<br />

which ones will be accepted, what<br />

legislation will get through and<br />

what the final product will look like.<br />

Nevertheless, we now know more<br />

about the NDIS vision than we did<br />

previously, so what are the major<br />

outcomes potentially impacting<br />

your NDIS?<br />

The NDIS can’t do it<br />

alone.<br />

One of the biggest ideas to come<br />

out of the review was that the NDIS<br />

can’t do it alone and called on both<br />

State and Federal Governments<br />

to invest in ‘foundational supports’<br />

to assist people with disability<br />

outside the NDIS. This has been a<br />

critical concern for many years, with<br />

93 per cent of disability funding<br />

going into the NDIS, despite only a<br />

small proportion of the 4.4 million<br />

people in Australia with a disability<br />

supported by the scheme. As the<br />

report authors state “you can’t fix<br />

the NDIS without fixing everything<br />

around it”, so the introduction of<br />

foundational supports would see<br />

mainstream services (like health,<br />

mental health and education)<br />

become more accessible as part<br />

of a connected system. This would<br />

allow access to some services<br />

outside the NDIS structure more<br />

efficiently and sustainably. The<br />

'NDIS or bust' approach has been<br />

a pebble in the shoe of the scheme<br />

since its inception, slowing things<br />

down and making the journey quite<br />

painful. More support outside the<br />

scheme is a great thing.<br />

This ‘connected system’ concept<br />

leads to further recommendations<br />

around the way mainstream services<br />

interact with the NDIS. This includes<br />

allowing NDIS participants who<br />

turn 65 to receive funding support<br />

through Aged Care and the NDIS<br />

at the same time, and improved<br />

access to aids and equipment.<br />

MSWA has been an active advocate<br />

for the needs of those outside the<br />

scheme for some time, so ensuring<br />

everyone is supported would be<br />

a big outcome. Research by the<br />

Melbourne Disability Institute found<br />

that non-NDIS programs spend the<br />

equivalent of $33 a year on services<br />

for those with disability outside the<br />

Scheme. That must change.<br />

Scheme navigation<br />

Another significant change<br />

within the report is the<br />

proposed replacement of<br />

Support Coordination, Local<br />

Area Coordination (LAC) and<br />

Psychosocial Recovery Coaching<br />

(PRC) services with a concept<br />

called Navigators. Navigators<br />

would be responsible for assisting<br />

both NDIS participants and those<br />

outside the scheme to connect<br />

with mainstream services,<br />

navigate the NDIS application<br />

process, and connect to services.<br />

Unlike the existing system, where<br />

a set number of hours is provided,<br />

Navigators would support everyone<br />

from diagnosis onward, coming in<br />

and out of people's lives as their<br />

needs require, to allow for flexible<br />

support. Furthermore, Navigators<br />

would operate independently<br />

from service providers, ensuring<br />

nationally consistent governance,<br />

service information, monitoring,<br />

and training. Everyone is getting<br />

their own NDIS sherpas it seems.<br />

This is big, and I can see the<br />

potential, as having one person on<br />

hand to help you navigate your way<br />

around all the different elements as<br />

your needs change would be helpful.<br />

However, the Local Area Coordinator<br />

experience has not been great,<br />

and this is a significant role with<br />

significant scope for someone<br />

who may not understand individual<br />

conditions or situations, which<br />

may lead to uneven participant<br />

experiences.<br />

Overall, this is a good concept that will<br />

help improve access to support and<br />

lessen confusion for everyone. The<br />

report also signals the potential end of<br />

Plan Managers thanks to a new digital<br />

payments system, but this seems<br />

to be a long-term change – a relief<br />

for the 1000+ active plan manager<br />

companies across Australia.<br />

Budget management<br />

A recommendation I did enjoy was<br />

that plan allocations should be<br />

set at the whole plan level, rather<br />

than line-by-line. This means that<br />

budget-setting would focus on<br />

a person’s support needs and<br />

provide a flexible budget (based on<br />

assessments), allowing services<br />

to go where they provide the<br />

most benefit. This all leads to the<br />

recommendation that the NDIS<br />

adopt a trust-based approach to how<br />

people use their budgets. While this<br />

sounds excellent, a concern about<br />

this new flexible approach is the<br />

introduction of ‘Needs Assessors’<br />

who are responsible for setting these<br />

wonderful new budgets. Minister<br />

Shorten was quick to clarify Needs<br />

Assessors are completely different<br />

from the ‘Independent Assessors’<br />

floated a couple of years ago, but the<br />

job description sounds pretty similar<br />

to me. Still, more flexibility is a good<br />

thing no matter how you look at it.<br />

The report also suggests that the<br />

National Disability Insurance Agency<br />

(NDIA) delegate pricing oversight to<br />

the Department of Social Services<br />

and the Independent Health<br />

and Aged Care Pricing Authority<br />

(IHACPA). Furthermore, the Review<br />

recommended that a new pricing<br />

and payment structure moves<br />

away from a uniform approach to<br />

better account for varying costs,<br />

such as supporting individuals with<br />

higher levels of complexity, regional<br />

differences, staff training and other<br />

associated indirect labour expenses.<br />

This is significant as the current onesize-fits-all<br />

pricing approach fails to<br />

allow providers to adapt to individual<br />

needs as they change, bringing a lot<br />

of promise.<br />

Improved governance<br />

One change that may not impact<br />

your plan on a day-to-day basis, but<br />

will have an impact on the quality<br />

of services, is the introduction of<br />

risk-proportionate regulation. For<br />

a variety of reasons, many NDIS<br />

providers are choosing to remain<br />

unregistered, which means that<br />

they are not held to the same quality<br />

and safeguarding standards as<br />

registered providers, such as MSWA.<br />

For a scheme designed to provide<br />

funding and services to, at times,<br />

vulnerable individuals, having a<br />

significant portion of your providers<br />

operating without the same<br />

rules is cause for concern. The<br />

proposed approach would require<br />

all providers to be registered<br />

and would provide mandatory<br />

compliance across all services<br />

provided under the scheme.<br />

The report also recommends all<br />

providers comply with NDIS practice<br />

standards, which currently is not the<br />

case. This is a win, as compliance<br />

is a lot of work for an NDIS provider,<br />

but it's also the only way we can<br />

ensure the safety of all participants.<br />

There are many, many other<br />

suggestions across the novel-length<br />

report, including governmentcommissioned<br />

Specialist Disability<br />

Accommodation (SDA), increases<br />

in early support for children outside<br />

of the scheme and the creation of<br />

a new Disability Intergovernmental<br />

Agreement (IGA) aimed at getting<br />

governments to work together.<br />

Overall, the report has done a<br />

great job of looking at all aspects of<br />

the disability sector and providing<br />

clear suggestions that (in my<br />

opinion) would improve things<br />

for participants, their families,<br />

and providers.<br />

So, what does it<br />

all mean?<br />

Well, nothing for now. The<br />

recommendations outlined in the<br />

review are well thought out, have<br />

obviously considered feedback<br />

from participants and have the<br />

potential to improve the lives of<br />

millions of people. But for now,<br />

all we’ve got is ‘potential’. The<br />

next steps are equally important<br />

in getting the Federal, State and<br />

Territory Governments to agree to<br />

these recommendations, have the<br />

NDIA implement them unchanged,<br />

find qualified people to fill these<br />

important roles, and ensure client<br />

outcomes remain the goal while we<br />

do all the above. Potential can be a<br />

killer; however, potential can also<br />

be exciting. For the moment I am<br />

excited by this report and the vision<br />

of the NDIS it represents.<br />

Geoff Hutchinson<br />

Manager Client Engagement<br />

12<br />


MSWA News<br />

Counselling<br />

Susan shores up<br />

WA's voice<br />

A different approach<br />

to happiness<br />

Susan Hyde has stepped up to the plate for Western<br />

Australia, becoming the state representative in the MS<br />

Australia National Advocates Program.<br />

The program aims to lift the voices of people with lived<br />

experience and their carers, meaningfully contributing to<br />

the peak body’s advocacy agenda.<br />

This includes engagement with media, speaking<br />

opportunities at public events and discussions with<br />

members of parliament, relevant policy/decision makers<br />

and special interest groups.<br />

Susan’s passion for people motivated her to take up the<br />

mantle, with a strong background in advocacy through<br />

her work in the New Zealand Police and WA Justice<br />

system.<br />

“I’ve previously done this type of work for prisoners,<br />

where my job was around reintegration, and I also did a<br />

lot of victim support work with the police,” Susan said.<br />

“I like people, I like working with people and I like being<br />

able to help people – plus I’ve always had a bit of a knack<br />

for networking.”<br />

Diagnosed with remitting-relapsing MS in 1995, Susan<br />

was determined to keep up her active lifestyle, running<br />

and cycling whenever she had the opportunity.<br />

While working as a Prison Officer in early 2016, Susan’s<br />

symptoms worsened, and she was diagnosed with<br />

<strong>Second</strong>ary Progressive MS. This resulted in an early<br />

retirement in 2022, despite her best efforts to keep<br />

her role.<br />

Drawing on her experiences, Susan is determined to help<br />

others through advocacy and networking, with a focus on<br />

employment, inclusion, accessibility, and a prime goal of<br />

raising public awareness.<br />

“I have had MS for 30 years and I believe there is not a<br />

huge awareness of what MS is and what it stands for,”<br />

Susan said.<br />

“Accessibility is a big focus for me, and this role is a<br />

chance to get that out there, make the public aware and<br />

break down the barriers that exist to be more accepted.”<br />

Susan is particularly excited about the PLATYPUS trial<br />

announced in December 2023, and showing others living<br />

with the condition what can be achieved when you set<br />

your mind to it.<br />

“Many people who have silent diseases and illnesses<br />

think that because they have got it, they can’t do things,”<br />

she said.<br />

“I saw this as a role that I could strive to do, and make<br />

those people believe they can do those things, too.<br />

“It is an exciting prospect and hopefully I do WA proud.”<br />

Susan encouraged anyone wanting to know more about her<br />

advocacy work to contact her at susanhyde@xtra.co.nz<br />

or come along to the Rockingham Peer Support catch<br />

ups she runs monthly. If you have a query that she cannot<br />

answer, she will point you in the right direction.<br />

If you are interested in the Peer Support Group Susan<br />

runs, you can contact her on the above email, or join<br />

the Facebook group Mobile Socialites Rockingham.<br />

The group meets for lunch the last Saturday of each<br />

month. Full details can be found on the Facebook group.<br />

The start of the new year is always a good time<br />

for reflection and taking stock, setting goals and<br />

intentions; all of which can help maintain motivation<br />

levels and fill ourselves with a renewed sense of hope<br />

for what is to come. While this can have a positive<br />

impact on your wellbeing, it can also be problematic<br />

when met with a type of ‘if – then’ or ‘all or nothing’<br />

thinking. This is what psychologists refer to as the<br />

‘Arrival Fallacy’ – the idea that when you get to the<br />

‘finish line’ only then you will be ‘happy’.<br />

As easy as it is to say we shouldn’t think this way, reality<br />

is that we all get caught up thinking along these lines.<br />

Take a few moments and think about your own narratives<br />

around happiness, filling in the below blanks with the<br />

times when you have set a goal or intention for yourself<br />

and found yourself saying the following;<br />

I’ll be happy after I do__________________________________________.<br />

I’ll be happy when I achieve___________________________________.<br />

I’ll be happy when I accomplish______________________________.<br />

With the above thinking, what happens when you don’t<br />

achieve your goals? It is all too human to lose motivation<br />

for our goals, especially with the days becoming hotter<br />

and longer, many people struggle with heat related<br />

fatigue, and sleep disturbances or fall sick. The problem<br />

with the Arrival Fallacy is that when we don’t achieve our<br />

goals, we beat ourselves up and end up with feelings of<br />

unhappiness and low self-worth. We label ourselves as<br />

‘failures’ or ‘losers’.<br />

So how do we establish a more healthy and productive<br />

relationship to happiness?<br />

1. Shift your Focus<br />

One way is to shift your focus – rather than focusing on<br />

the end outcome/goal, we focus on the process along the<br />

way. When we allow ourselves to think about the journey<br />

towards our goals, it helps shift your attention away from<br />

linking achievement to how you feel about yourself, and<br />

instead encourages you to think about what else you<br />

gain on the way. Below are some questions to help you<br />

think about the journey, rather than just the outcome:<br />

- How is this process benefiting me?<br />

- What am I gaining?<br />

- What makes me happy right now?<br />

2. Focus on the Now<br />

Gratitude: it may sound crazy but cultivating gratitude<br />

for the things that bring us joy and improve our wellbeing<br />

can increase our overall levels of happiness and feelings<br />

of worthiness. Not only does it make us realise what we<br />

already have in our lives, but it also challenges the Arrival<br />

Fallacy that we must achieve X goal to be worthy and<br />

worthwhile human beings. At the end of the day, you are<br />

enough as you are.<br />

3. Set More Goals<br />

According to experts in the field, creating more goals that<br />

are linked to different areas in our lives can help us shift<br />

our energy, attention, and focus in a more balanced way.<br />

As per Tal Ben-Shahar in the New York Times, “if you're<br />

consistently stretching yourself, even with accessible<br />

micro-goals, you'll be less likely to succumb to that empty<br />

but-what-do-I-do-now feeling”. Having many goals can<br />

encourage people to not over focus on one area of their<br />

lives at the expense of others, creating feelings of stress<br />

and emptiness.<br />

When you view your levels of happiness through a more<br />

holistic lens, you get closer to living a more satisfying and<br />

values-connected life.<br />

You deserve to enjoy where you are right now.<br />

Sidrah Khan<br />

MSWA Counsellor<br />

14 15

Nursing<br />

Continence matters:<br />

Part one<br />

Following on from our Hydration series, let’s now talk about<br />

continence and how much it matters to your wellbeing.<br />

What is incontinence?<br />

Incontinence is defined as the accidental or involuntary<br />

loss of urine and faeces and can range in severity from a<br />

small leak to total loss of bladder or bowel control.<br />

Incontinence isn’t life threatening, but it can have a huge<br />

impact on a person’s physical and mental health. In some<br />

cases, this can lead to additional issues such as low<br />

self-esteem, social isolation, anxiety, and depression.<br />

Common forms of urinary<br />

incontinence:<br />

Urge<br />

incontinence<br />

Stress<br />

incontinence<br />

Mixed<br />

incontinence<br />

Functional<br />

incontinence<br />

Nocturia<br />

Post<br />

micturition<br />

incontinence<br />

An involuntary loss of urine<br />

associated with a sudden and strong<br />

urgency to urinate.<br />

Leaking of small amounts of urine<br />

during activities such as coughing,<br />

sneezing, laughing, walking and lifting.<br />

A combination of both urge and<br />

stress incontinence.<br />

Also known as disability associated<br />

incontinence, which occurs when<br />

the person’s bladder and/or bowel is<br />

working normally but they are unable<br />

to access the toilet. This may be due<br />

to a physical or cognitive condition.<br />

When you have to wake up during the<br />

night to pass urine. It is a common<br />

problem that becomes more<br />

common as we get older.<br />

Known as micro-dribble, this can<br />

occur when men lose a small amount<br />

of urine after emptying their bladder.<br />

Neurological conditions affecting<br />

Urinary Incontinence<br />

• Multiple Sclerosis.<br />

• Parkinson’s disease.<br />

• Dementia<br />

• Cerebral vascular accidents<br />

• Cerebral palsy<br />

• Multiple system Atrophy<br />

• Stroke<br />

• Spina bifida<br />

Neurogenic bladder:<br />

What does it mean?<br />

Neurogenic bladder is the term for what happens when<br />

neurological (nervous system) conditions affect the<br />

way your bladder works. There are two major types of<br />

bladder control problems linked to neurogenic bladder.<br />

Depending on the nerves involved and the nature of<br />

the damage, your bladder becomes either overactive<br />

(spastic or hyper-reflexive) or underactive (flaccid or<br />

hypotonic).<br />

What are the symptoms of a<br />

Neurogenic bladder?<br />

The most common symptom of neurogenic bladder<br />

is being unable to control urination. Other neurogenic<br />

bladder symptoms include, a weak or dribbling urinary<br />

stream. frequent urination (urinating eight or more times<br />

daily), urgency (a feeling or need to urinate immediately),<br />

painful urination (which may mean there is a urinary tract<br />

infection), and urinary leakage.<br />

Neurogenic Bladder<br />

management and treatment<br />

Your care will depend on what is causing<br />

your symptoms and how serious they are.<br />

There’s no cure for neurogenic bladder,<br />

but you can manage and control your symptoms.<br />

If you have an overactive bladder, you may need to:<br />

• Train your bladder. You can do this by squeezing<br />

your pelvic floor muscles during the day or<br />

when you need to pee (Kegel exercises).<br />

• Hold it, if you can. Delayed voiding is when you wait<br />

a few minutes to urinate after you feel the urge. The<br />

goal is to extend this time to a few hours.<br />

• Go to the toilet at scheduled times throughout the<br />

day. You might avoid accidents if you urinate at<br />

certain times of the day.<br />

• Take medicine. Some medications can relax bladder<br />

muscles and stop spasms.<br />

• Keep a healthy weight. Extra body mass can add<br />

pressure to your bladder.<br />

• Change your diet. Things like caffeine, alcohol, spicy<br />

foods, dairy, artificial sweeteners, chocolate, and<br />

citrus fruit can irritate your system.<br />

• Use electrical stimulation. A device under your skin<br />

sends electricity to the nerve that controls your<br />

bladder. These painless pulses help stop overactive<br />

signals that tell your brain to pee.<br />

• Get Botox if needed. Your doctor can inject this<br />

neurotoxin into your bladder to temporarily stop it<br />

from contracting too much. If you have problems<br />

emptying your bladder or have urinary tract infections<br />

often, this treatment isn't an option.<br />

If you have an under active bladder, you may need to:<br />

• Schedule your bathroom visits. You might need to<br />

pee/urinate every 3 to 4 hours, even if you don’t feel<br />

the urge. After you urinate, wait a few minutes and try<br />

again.<br />

• Use a catheter. This long, thin tube helps drain your<br />

bladder. You may need to use it a few times a day. In<br />

some cases, it may need to stay in all the time.<br />

• Have surgery if needed. If other treatments fail, you<br />

could need a procedure or device to help you urinate.<br />

Where to find more information:<br />

Continence Foundation of Australia provides<br />

free, confidential information and advice<br />

about incontinence and can also direct you<br />

to local services.<br />

1800 33 00 66 (Monday – Friday, 8am to 8pm AEST)<br />

www.continence.org.au<br />

Neetu Kainth & Dee Lucey<br />

Continence Nurse Specialists<br />

16 17

Social Welfare<br />

Decision-making capacity<br />

Advance Health Directive<br />

Enduring Guardian with authority<br />

People make countless decisions every day. They<br />

can be deeply personal and are often informed by<br />

your values, your experiences and people closest to<br />

you. If you have the ability to make reasoned decisions<br />

for yourself about your personal, financial and legal<br />

matters, you are considered to have ‘legal capacity’.<br />

This is a complex legal concept that varies in<br />

different circumstances and can change over time.<br />

Adults are presumed to have full capacity unless<br />

shown otherwise.<br />

It can be scary to think about losing capacity and being in<br />

a position where you are unable to make or communicate<br />

decisions for yourself. If you or a loved one have a<br />

neurological condition that causes cognitive decline,<br />

you may have already considered or experienced this<br />

possibility. However, it is something that can happen<br />

suddenly and unexpectedly to anyone, regardless<br />

of disability. Although these discussions can be<br />

understandably difficult, talking about it can help prepare<br />

you for a future whereby a trusted individual can help<br />

make decisions for you.<br />

Figure 1. Summary of EPG and EPA key aspects<br />

Who can make it/be appointed?<br />

EPG<br />

EPGs & EPAs<br />

While you have full capacity, you can appoint your<br />

preferred substitute decision-makers and prepare legal<br />

documents that record your preferences for personal,<br />

financial and legal matters. These documents are<br />

known as an Enduring Power of Guardianship (EPG) and<br />

an Enduring Power of Attorney (EPA). They specify the<br />

decisions your substitute decision-maker can make and<br />

the circumstances in which they can act.<br />

The State Administrative Tribunal (SAT) also plays an<br />

important part in this process. Its role is to bring the EPA<br />

into effect where necessary by making a declaration that<br />

the donor does not have legal capacity. The SAT can also<br />

make orders revoking or varying the terms of an EPA,<br />

or recognising a power of attorney created in another<br />

jurisdiction as an EPA in WA.<br />

Once someone has lost their capacity to make decisions<br />

and can no longer create an EPA, the SAT can also hear<br />

an application for an administration order.<br />

Anyone 18+ with full legal capacity<br />

EPA<br />

Advance Health Directives<br />

An Advance Health Directive (AHD) is a legal document that<br />

records the treatment and care you consent to in specific<br />

circumstances. It will only be used by health professionals<br />

if you are seriously unwell or injured and are unable to make<br />

or communicate decisions about your care.<br />

Your AHD sits at the top of what is known as the “hierarchy<br />

of treatment decision-makers”. If you lose capacity but don’t<br />

have an AHD, or a situation arises that isn’t covered by your<br />

AHD, health professionals will go down the hierarchy to find<br />

the first available adult who is willing to make the treatment<br />

decision. If your preferred substitute decision-maker is<br />

further down the hierarchy, you may want to consider<br />

making an EPG and appointing them as your enduring<br />

guardian to make them the next point of contact.<br />

What next?<br />

Guardian with authority<br />

Spouse or de facto partner<br />

Adult child<br />

Parent<br />

Sibling<br />

Primary unpaid caregiver<br />

Other person with close personal<br />

relationship<br />

Figure 2. Hierarchy of Treatment Decision-Makers<br />

We know this topic can feel rightfully overwhelming, but speaking with your trusted family, friends and/or health<br />

professionals can help you gather your thoughts on making an AHD, EPG or EPA to ensure you choose your decisionmaker.<br />

Given their importance in communicating your life choices and preferences if you are ever unable to do so<br />

yourself, they require time and careful consideration to prepare. Please see below for details on the free advisory<br />

services and resources (including step-by-step guides and the relevant forms) available for anyone ready to start the<br />

process or wanting more information.<br />

Candice Preston<br />

Support Coordinator<br />

What types of decisions can<br />

the substitute decision-maker<br />

make?<br />

Personal, lifestyle, medical, and/or<br />

legal proceedings<br />

Financial and<br />

property matters<br />

Figure 3. Resources for making an AHD, EPG or EPA<br />

Online Resources<br />

Advisory Services<br />

When does it come into effect?<br />

Only when you lose legal capacity<br />

– can be temporary or situation/<br />

decision-specific<br />

Immediately OR when SAT<br />

determines you have lost legal<br />

capacity<br />

AHD<br />

https://www.healthywa.wa.gov.au/AdvanceHealthDirectives<br />

DOH WA Advance Care<br />

Planning Information Line<br />

Ph: (08) 9222 2300<br />

ACP@health.wa.gov.au<br />

How is capacity determined?<br />

GP or medical specialist capacity<br />

assessment OR a SAT hearing (if<br />

uncertain)<br />

Only through<br />

a SAT hearing<br />

EPG<br />

EPA<br />

www.wa.gov.au/organisation/department-of-justice/office-of-thepublic-advocate/enduring-power-of-guardianship<br />

www.wa.gov.au/service/justice/civil-law/enduring-power-of-attorney<br />

Office of the Public<br />

Advocate<br />

Ph: 1300 858 455<br />

opa@justice.wa.gov.au<br />

18 19

Introducing…<br />

Life not limits<br />

You’ve more than likely seen our Thrill Seeker Chris, or remember our Social Butterfly<br />

Susan, but we know everyone has a story to tell, so we want to hear yours!<br />

Jump online or scan the QR code to submit your Life not limits story for your<br />

chance to be featured in <strong>Bulletin</strong>, on our website, or maybe in our next ad.<br />

Name: Susan Finlay<br />

Identifier: Social Butterfly<br />

Living with Spinocerebellar Ataxia<br />

“I do Hydro on Mondays, I love the<br />

warm pool! I find it a bit easier than<br />

physio. I also do walking laps with my<br />

social support and my friends – we<br />

go to the local pool and do that too."<br />

Susan, known fondly as a<br />

social butterfly, finds her joy in<br />

connections, creativity and art.<br />

Visiting friends throughout the week,<br />

at the local pool, shopping centre or<br />

community programs.<br />

Name: Chris McEncroe<br />

Identifier: Thrill Seeker<br />

Living with Gullain-Barré Syndrome<br />

Chris, a self-proclaimed thrill seeker, found his passion<br />

for kart racing after being diagnosed with Guillain-Barré<br />

Syndrome, where nerve sheath loss overnight impacts<br />

the peripheral nervous system. He recalled waking up one<br />

morning, not being able to move.<br />

Chris modified his kart himself with some assistance from<br />

his carers to be hand controlled. "Funnily enough, karting<br />

has boosted my upper-body strength, serving as rehab and<br />

promoting mental wellbeing."<br />

20<br />


Client Contributions<br />

Letting my voice be heard<br />

MSWA Client Lyndal Hunt shares her personal framework which has helped<br />

her navigate a 28-year journey with MS.<br />

On a Stormy Sea<br />

When the waves of the sea became bigger<br />

And the wind started to blow at storm strength,<br />

The boat didn’t sail anymore<br />

And it rocked in the waves<br />

Bobbing up and down in the water….<br />

Gert Strydom, 2014<br />

At the age of 25, my diagnosis with multiple sclerosis (MS)<br />

in 1996 rocked me from my moorings. All that I had hoped<br />

for in my life had been dealt a cruel health blow. Since my<br />

diagnosis, I have experienced, and continue to experience,<br />

life in a way that I could not have imagined possible.<br />

V - Values and beliefs<br />

After receiving the diagnosis, I was confronted with<br />

not only my world having changed, but the image I had<br />

of myself had also been altered. I have learnt to take<br />

the time to reflect on who I am at my core, as reflection<br />

provides the opportunity to be mindful of my values. I<br />

believe values are simply a set of individual beliefs that<br />

motivate a person to act one way or another, guiding<br />

behaviour like an inner compass.<br />

Personally, I believe that MS is a disease of the body,<br />

that over the spirit it has neither jurisdiction nor rite of<br />

passage. I also believe that, just as it takes a crew to sail<br />

and maintain a vessel, it is important to have a circle of<br />

trusted carers and medical professionals and to know<br />

the different roles they each play. For me, travelling<br />

through life with a neurological condition has naturally<br />

meant my neurologist is a necessary part of my crew.<br />

Equally, I believe it is important to be prepared to let go of<br />

beliefs that no longer hold true and change my crew to<br />

meet my need accordingly.<br />

• What are my core values and beliefs?<br />

• How have/are my needs changed/changing?<br />

• What are the different services medical<br />

professionals provide?<br />

• Who do I need on my crew?<br />

Navigating my way through unchartered waters, as<br />

the captain of a questionable vessel travelling towards<br />

an unknown destination, my world had undeniably and<br />

irrevocably changed.<br />

My experiences have helped generate a simple<br />

framework, to help me hear the sound of my own voice<br />

when navigating through the systems and institutions that<br />

have become a part of my world. The V.O.I.C.E framework<br />

is a simple tool that continues to help me keep my journey<br />

with MS in perspective, while living a more present,<br />

integrated and satisfying life.<br />

O - Open minded. Observant. Objective.<br />

I have found it important to live in the present and be open<br />

minded and objective when it comes to my physical care.<br />

From personal experience, symptoms of neurological<br />

conditions can mirror other things, especially when being<br />

viewed from an "able bodied" perspective. It is important<br />

therefore to be open-minded, observant and objective<br />

(rather than close-minded, blinkered and subjective),<br />

asking questions both to reach and to understand any<br />

information received (neurological sensations, physical<br />

symptoms, diagnoses) and guidance given.<br />

It was through this mindset that I became aware<br />

of the specifics of my changing needs and change<br />

my crew accordingly. Members of my current crew<br />

include my primary carer (daily ongoing care and<br />

support), GP (scripts and referrals), medical specialists<br />

(neurologist, PMC – Baclofen pump maintenance); MSWA<br />

(physiotherapy, nurses – SPC changes, counselling),<br />

and government (TUSS, pension, NDIS). Once again,<br />

by remaining open minded, observant, and objective,<br />

I was able to make pragmatic decisions when<br />

outsourcing different activities to compensate for<br />

your physical limitations.<br />

• Am I being realistic or am I seeing things from an<br />

"able-bodied" perspective?<br />

• Am I willing to listen to and to hear other people,<br />

consider new ideas, suggestions, and opinions?<br />

• Am I speaking with and listening to the right people?<br />

I – Integration<br />

From personal experience, this has been both the most<br />

important and challenging stage to accommodate.<br />

Multiple sclerosis is an intensely private disease. The<br />

precise impact it will have on your life journey is as<br />

unique as you are. Integration is therefore an important<br />

port to dock at for reflection.<br />

Reviewing my journey so far, paying particular attention<br />

to any changes to my sense of self, my motivations and<br />

decisions brought about through being open minded,<br />

observant and objective. I reflect on my experiences and<br />

learn from any lessons. Giving myself permission to be<br />

sick, to have special needs, to require, request, receive,<br />

and accept help. Integration is about living in the present,<br />

enjoying the treasure in the journey over simply reaching<br />

any destination. It is forever a dynamic process, changing<br />

and evolving over time.<br />

• I am mindful of what informs my inner narrative<br />

(as this is the inner compass).<br />

• The core of who I am and how I see the world and<br />

my place in it may need recalibrating. For example,<br />

what no longer fits? Which beliefs no longer hold<br />

true to me?<br />

C – Context<br />

Over time, I have discovered it is important to know<br />

and understand where I am in the expanse of services.<br />

Take a proactive interest in what a specific service<br />

has established and can provide. Multiple sclerosis is<br />

a multifaceted disease which requires support across<br />

many disciplines. When the only tool you have is a<br />

hammer, every problem can look like a nail. For me it<br />

was important that I seek information from more than<br />

one source and to be curious. A good starting point for<br />

neurological conditions can be MSWA.<br />

• Do I know who is on my support radar and why?<br />

• Do I know exactly what specific services are<br />

available and what they offer?<br />

• Be prepared to ask questions to understand how<br />

the services best fit my needs.<br />

E – Encounter<br />

The great thing about any relationship is that it is only<br />

actually alive in the encounter. This is no different when<br />

travelling with MS, through the systems and institutions<br />

that are now a part of your world. I have personally<br />

found some of these encounters to be quite confronting,<br />

especially when receiving information from different<br />

professionals and service providers. I have found that<br />

whatever part is played in the relationship, it’s important<br />

that both parties are speaking the same language and<br />

that you both feel understood. For me it was important to<br />

assess that we were both navigating towards the same<br />

destination, so find a crew that is, then set sail. It’s okay to<br />

take time, look around and find the right people.<br />

• What institutions exist and want to support me?<br />

• Who do/don't I trust and why?<br />

• Who can I comfortably work with?<br />

• Be prepared to engage<br />

As my MS journey progressed, the validity of my personal<br />

reality within the systems and institutions that are now<br />

part of my world were tested due to various reasons.<br />

The V.O.I.C.E framework helps guide me to keep my<br />

journey with MS in perspective, so I don’t lose sight of<br />

myself in the process. I developed the framework to<br />

empower myself, as a unique individual, to serve as a<br />

reminder that I do indeed have a voice.<br />

It is important not to think about myself in terms of what I<br />

have lost, rather – I am the person I am today because of<br />

the journey I am travelling. In finding my VOICE, it brought<br />

me peace and strength. The winds will always blow, and<br />

the waves crash but there will always be a way forward in<br />

the present, living an integrated and satisfying life.<br />

I let my V.O.I.C.E be heard.<br />

Lyndal Hunt<br />

MSWA Client<br />

22 23

Client Contributions<br />

The Survivors’ Coffee Group<br />

“You are just allowed<br />

to be in your moment,<br />

for as long as you need<br />

and know that you are<br />

supported.”<br />

We catch up regularly in our<br />

favourite café in Joondalup. Well,<br />

not regularly as in weekly but, you<br />

know, every few months or so<br />

when we felt we had something to<br />

talk about. There are four of us: we<br />

call ourselves survivors, because<br />

each one of us had battled several<br />

illnesses but what we have in<br />

common is multiple sclerosis (MS).<br />

We initially met at an MS exercise<br />

group which eventually folded but<br />

we had so much in common by that<br />

time and knew so much about what<br />

each other was going through, that<br />

we wanted to keep meeting.<br />

I’m one of the four, Rosy – and<br />

there’s Hillary, Jane, and Lynette.<br />

We’re all a similar age, in our sixties,<br />

and we swap stories of what we’ve<br />

been through and what we’re going<br />

through. Nothing very exciting really<br />

because we’re not ageing all that<br />

well, so no fun stuff for us, but we all<br />

have our memories of things that<br />

we’ve done, and love to share them<br />

(sometimes repeatedly) and all have<br />

a good laugh.<br />

I think the best thing about this<br />

group is the way we cling to each<br />

other when we meet and when we<br />

say our goodbyes.<br />

These hugs are just amazing and so<br />

affirming. They make you feel like you<br />

really belong, which is something<br />

MS does not normally do. People are<br />

frightened when they hear you have<br />

it and they don’t know what to say or<br />

what to ask, especially families, so<br />

there’s not much discussion when<br />

others are trying to brush it away.<br />

But this group is amazing. No one<br />

fears asking the tough questions or<br />

to see you cry when you are at your<br />

lowest. We’ve all been there and its<br />

comforting to know that no one is<br />

going to try to step in and solve it for<br />

you as some family members might<br />

try to do. You are just allowed to be<br />

in your moment, for as long as you<br />

need and know that you<br />

are supported.<br />

Our conversations are varied and<br />

many, and always include lots of<br />

laughter. We talk about which movies<br />

we’ve seen, where we’ve been and<br />

how we are.<br />

Conversations about movies are<br />

hilarious and often can go like this -<br />

“You know that movie? With that<br />

gorgeous blond guy and with that<br />

girl – you know, the funny one!”<br />

So, we check Google, and we say –<br />

“Where did you go to see it? What<br />

day was it on? Was it this? Was it<br />

that? Ahh yes THAT movie!”<br />

This sort of conversation, which<br />

might seem crazy to anyone else, is<br />

normal for us and has us in stitches<br />

because we all do it!<br />

Many of us have battled for years<br />

with unknown and undiagnosed<br />

symptoms. Take me for example.<br />

I was in and out of hospital for<br />

nearly twenty years with a variety of<br />

illnesses such as a perceived stroke,<br />

labyrinthitis, muscle spasms, etc.<br />

In 2010 I was told I had had a minor<br />

stroke. At that time my kids were<br />

concerned they did not know enough<br />

about my doctors, my illnesses, my<br />

scripts etc. that they asked me to<br />

note it all down so they would be able<br />

to provide information to doctors<br />

when I couldn’t. In 2018 I had optic<br />

neuritis and on examination, MRIs<br />

etc, I was told that I had MS and,<br />

because I had noted down all that I<br />

had gone through (thanks kids), the<br />

neurologist was able to say I had had<br />

it for years.<br />

MS is such a misunderstood<br />

disease and often comes with<br />

other autoimmune diseases. I have<br />

several other autoimmune issues,<br />

and so do my friends. It’s so hard<br />

trying to determine which disease is<br />

causing what. And it’s startling that<br />

several of my MS friends have had<br />

breast cancer. Not saying that it’s<br />

caused by MS or has anything to do<br />

with it, but how unlucky is that?<br />

Back to our survivors’ coffee group<br />

– we all treat ourselves to a muffin or<br />

a slice, and, no, we don’t feel guilty.<br />

Where once upon a time we would<br />

be watching our weight, we now<br />

acknowledge that life is for living and<br />

enjoying, though we do (sometimes)<br />

admit to extra exercise during the<br />

week…when we can.<br />

Exercise is such a strange thing<br />

when you have MS. You know that<br />

it will help ease the stress on your<br />

muscles, but you get so utterly<br />

tired. It is called fatigue, and oh my<br />

gosh, is it debilitating. I don’t think I<br />

ever really understood what fatigue<br />

was before, but I do now. It grabs<br />

your muscles and your brain and<br />

turns everything inside out and still<br />

expects you to perform your normal<br />

duties – but you can’t. Brain fog takes<br />

over and if you thought you knew<br />

what you were doing you are proved<br />

wrong, in many (often embarrassing)<br />

ways and on many occasions.<br />

But you need to provide a normal<br />

presentation. After all, you don’t want<br />

people to pity you or to ask you too<br />

many questions. Why should you<br />

have to continually validate yourself<br />

to others? I was once told to ‘mix<br />

more water with it’ because I tripped.<br />

And yes, I had a drink in my hand<br />

but I hadn’t touched it yet, so I was a<br />

tad offended, especially as it was a<br />

friend of my daughter who I thought<br />

knew what I was going through. But I<br />

think many MS people face that kind<br />

of criticism. Apparently, we have a<br />

walk which from behind looks like we<br />

are drunk (I’ll drink to that!).<br />

I often hold onto walls and sway<br />

around because my balance is out<br />

or because I am feeling unsteady on<br />

my feet. But why do people have to<br />

judge,<br />

and why do you feel you have to<br />

explain yourself?<br />

Our survivors’ coffee group allows<br />

us to be normal. It enables us to<br />

be strong and to assert ourselves<br />

when necessary because, together,<br />

we are a force to behold. We love<br />

life, we love each other, and we love<br />

surviving in our own individual ways.<br />

Rhonda Adamsam<br />

MSWA Client<br />

(Names of people have been<br />

changed in this story)<br />

<strong>24</strong> 25

Our People<br />

A multifaceted experience<br />

of multiple sclerosis<br />

MSWA Client Kim Koeman recently sat down with us to<br />

share her diagnosis journey, unfortunate predicaments<br />

she has experienced and her inspiring outlook on life.<br />

Read on to find out how the right employment support<br />

and a zest for life continues to make this incredible<br />

woman excited for the future against all the odds.<br />

“Leigh was just an absolute wealth of knowledge and<br />

took the time to explain the NDIS process and organise<br />

appropriate work support through them for me,” she said.<br />

“Following my diagnosis, my brain was not in a good<br />

space, and I didn’t understand any of it.<br />

For a prolonged period of time, Kim had several<br />

symptoms that appeared in her daily life. She was<br />

affected by narcolepsy where she would just suddenly<br />

fall asleep, had irritable pins and needles, and couldn’t<br />

stand the heat. She would fall and trip over nothing, had<br />

terrible memory and sadly, constant pain.<br />

“I was so lost; Leigh just dove in, saw right through me,<br />

patiently took a bit of control for me and helped me<br />

navigate everything top to bottom.”<br />

Kim’s major symptoms saw her strength and balance<br />

plummet, her eyesight deteriorate and a strong aversion<br />

to heat was developed.<br />

Multiple doctors brushed it off and explained it away as<br />

mental health issues, laziness or some sort of ploy she<br />

was pulling to attempt ceasing work. Ironically, work has<br />

always been a major motivator for Kim.<br />

“Unfortunately, getting this kind of response from<br />

medical professionals is a normal experience for a lot of<br />

us,” she said.<br />

“I was working for quite a while through all these<br />

symptoms, not knowing what was really happening to me<br />

and not getting the right support I needed.<br />

“Suddenly, major symptoms occurred over a week, and I<br />

had to undergo an MRI which led to my multiple sclerosis<br />

diagnosis in 2019.<br />

“I felt quite vindicated when I was finally diagnosed. Along<br />

with the MS diagnosis, I was also diagnosed with ADHD<br />

and functional neurological disorder (FND).”<br />

After her long-awaited diagnosis, Kim joined MS support<br />

groups on Facebook where one of the members<br />

mentioned and recommended MSWA’s Employment<br />

Support Services (ESS) Manager Leigh McCaffrey and<br />

how his team could offer great support integrated with<br />

work.<br />

Kim decided to heed this advice and proceeded to<br />

contact Leigh which subsequently opened up multiple<br />

support avenues for her.<br />

“Suddenly, it felt like everything was collapsing. I wanted<br />

to continue working for Chorus, but I couldn’t be out on<br />

the road or in people’s homes anymore with the heat<br />

and I couldn’t do personal care anymore with the loss of<br />

strength,” she said.<br />

Fortunately for Kim, both community service provider<br />

Chorus and MSWA’s ESS team jumped in to help her<br />

transition to an office-based role.<br />

Describing her employer’s and Leigh’s support as<br />

hugely compassionate, Kim leaned into the new role<br />

and became an active participant in the office. She was<br />

also soon able to partly work from home with the right<br />

supports provided by the ESS team through the NDIS.<br />

“Honestly, if I hadn’t met Leigh and received the support<br />

from the ESS team, I don’t know what I would have done.<br />

They have been integral in ensuring I can continue<br />

to do what I enjoy while appropriately managing my<br />

conditions,” Kim said.<br />

While she received effective support from MSWA and<br />

her employer, Kim unfortunately experienced challenging<br />

predicaments while going about her daily life.<br />

In one instance while at a major Perth event, she went past<br />

a long line-up in the restroom to use the disabled facility. A<br />

young staff member then proceeded to call her out publicly<br />

as someone who did not need to use the accessible toilet.<br />

Understandably frustrated but still patient, Kim responded<br />

to the staff member that disability was multifaceted and<br />

did not only look like a person in a wheelchair.<br />

“Strangers that barely know me are the ones who’ll come<br />

up and question me about why I’m there or what I’m doing<br />

as if I need to justify myself to them,” Kim said.<br />

“My only message to these people is – you don’t always<br />

know what someone’s going through.<br />

“Disability doesn’t always show itself. It’s not always<br />

presented with someone in a wheelchair. It could<br />

look like a smile on someone’s face. It could look like<br />

a well-dressed human being, someone going to work<br />

or looking after their children or going to school.<br />

It could be hidden, and you’d have no idea.”<br />

With a strong belief that people should assume the best<br />

about others not the worst, Kim also had some words of<br />

wisdom to share about keeping spirits up while managing<br />

a disability.<br />

“After I was diagnosed, I started reading theories –<br />

people say go on this diet, read this book, do this, don’t do<br />

that,” she said.<br />

“But honestly, the best thing is to keep active and<br />

continue to have a purpose in your life and a sense of<br />

self-worth, whether it’s through work or volunteering.<br />

“Having a connection with other people in the community<br />

gives you a profound sense of purpose, and when you’re<br />

focused on giving back to someone else, you have less<br />

anger and negative energy to spend on yourself and your<br />

condition.<br />

“Of course, I understand the fatigue that comes with<br />

keeping busy, but when you’re doing something for<br />

someone, it takes that self-ruination and transforms it<br />

into the joy of giving to others. That's how I feel about<br />

working.<br />

“Whatever it is, I still have gratitude. It could have been so<br />

much worse. I don’t sit around and be miserable, I grasp<br />

life. I still want to work and travel and have many plans for<br />

my future.”<br />

Thank you for sharing your story with us, Kim.<br />

You are an inspiration!<br />

26 27

Client Our People Contributions<br />

“Love conquers all”<br />

The remarkable<br />

story of John and<br />

Pauline Campbell.<br />

For most, one diagnosis in a lifetime can,<br />

understandably, be more than enough for a<br />

person to handle.<br />

But for the remarkable 84-year-old Pauline, two powerful<br />

forces have helped her to take on multiple sclerosis, a<br />

stroke and breast cancer in her stride: faith and love.<br />

It was 1985 when Pauline first noticed symptoms, working<br />

as a sister across surgeries in Applecross and Yangebup.<br />

“I didn’t realise what was wrong, because I wasn’t walking<br />

straight,” Pauline said.<br />

Multiple tests and five years on, Pauline originally<br />

received an incorrect diagnosis of motor neurone<br />

disease. After a second opinion, it was determined<br />

Pauline had MS.<br />

“Now I’m left with weakness in my right leg, and I don’t feel<br />

that good in my right arm. Nothing terrible, I can stand up,<br />

but I don’t have any balance whatsoever,” Pauline said.<br />

“It hasn’t affected me terribly; I can do most things. I<br />

can empty the washing machine and put it in the dryer. I<br />

shouldn’t, but I can – you find ways around to do things.<br />

“But I have strong faith, and it’s been very helpful for me<br />

on my journey.”<br />

Her husband of 32 years, John, is also a huge pillar of<br />

support in her life. He credits his 20-year career as a<br />

chef in the Navy as the perfect training to take good care<br />

of Pauline.<br />

“He’s a wonderful man, he does everything I can’t do,”<br />

Pauline said. “When we got married, he knew I had MS<br />

but despite that, he married me.”<br />

“Love conquers all,” John professed.<br />

Their love story is quite the tale, with John having<br />

answered Pauline’s personal ad in the local newspaper<br />

in 1985.<br />

“Pauline had written ‘lonely nurse seeking tall, dark<br />

handsome guy’ so I wrote back and was one of 70 other<br />

replies,” John remembers. “I thankfully made it into a little<br />

group of positives in Pauline’s list.”<br />

Pauline took the opportunity of her youngest of three<br />

daughters being away on school camp to meet her top<br />

four bachelors.<br />

“I met a guy on Saturday afternoon, but I didn’t like him at<br />

all. All he talked about was himself!” Pauline recalls.<br />

“On Saturday night, I arranged to meet a gentleman and<br />

he had a carnation in his lapel. We were supposed to<br />

meet in Hay St mall, and when I got there, I saw this little<br />

old grey headed man and I thought ‘oh he’s too old for<br />

me!’ So, I turned around and went home. I felt awful, but I<br />

did it anyway.<br />

“On Sunday, I met this other man. He was a nice man<br />

actually; he was a saxophonist.<br />

“But on Sunday night, I met John and I liked him. We<br />

walked all around Fremantle looking for a coffee shop<br />

and nothing was open! I had mentioned that I went<br />

dancing, and where I used to go to dance, and he picked<br />

up on it and was waiting for me there when I got there!<br />

“And from then on... the rest is history.”<br />

“Now we’ve been married 32 years,” John said proudly.<br />

A survivor in every sense of the word, Pauline hasn’t let<br />

her health battles stop her from travelling the world with<br />

John by her side.<br />

“Three years ago, Pauline was 80 and she had never seen<br />

the Great Barrier Reef,” John explained.<br />

“It was fantastic how people helped Pauline in the<br />

wheelchair while we were there. This young man took<br />

charge of Pauline and said ‘leave it all up to me’.<br />

“We’ve actually been in a couple cruises, all in the<br />

wheelchair, they are very good and accessible.”<br />

As well as far north Queensland, the couple have<br />

travelled to Penang and New Zealand – where a threeweek<br />

holiday doubled to six thanks to a lucky windfall.<br />

“Typical Pauline said ‘I think I’ll go get some AMP shares’,”<br />

John said.<br />

“She ended up with about a thousand, from a<br />

hundred in, so we decided to extend our holiday to<br />

six weeks!”<br />

While they have been doing less travel recently as<br />

Pauline’s specialist “five-star” equipment is more<br />

difficult to bring with them, the couple enjoy their<br />

quiet life in the beautiful coastal town of Busselton<br />

and have even picked up some new hobbies.<br />

“We go twice a week for art classes. I never knew I<br />

could draw,” Pauline said.<br />

“She only started that at 80, but you never know your<br />

hidden talents!” John chimed in proudly. “I started playing<br />

the ukulele at 80.”<br />

When we met with Pauline and John, the couple were<br />

excited to be receiving a new electric wheelchair through<br />

Pauline’s HCP plan. By complete coincidence, the couple<br />

received the exciting news that it was on-board for delivery –<br />

after months of waiting – just as our interview wrapped up.<br />

“She’s resisted getting into a wheelchair all this time, because<br />

she wanted to get exercise,” John explained.<br />

“But now she’s 83, let’s face it she needs it. But she will still do<br />

her upper body exercises and we are really looking forward to it.<br />

“The MSWA Occupational Therapist came in to help teach us<br />

how to transition from a wheelchair to the shower or the bed<br />

and she did all that fantastically.”<br />

Having been put through so many challenges throughout her<br />

life, we asked Pauline what her advice would be for others to<br />

remain as positive and active as she is.<br />

“My advice to others with MS – keep up a good diet. Don’t eat<br />

anything you don’t need,” she said wisely. “I don’t each much sugar,<br />

and I eat all the right foods. Fruit and vegetables. Not much meat.”<br />

“But I also have a strong will and determination.”<br />

Of course, John backs her up in this self-assessment; “yes, she has a<br />

very strong, dogged personality,” he beams.<br />

28 29

Dietetics<br />

Social Connections<br />

Egg-cellent choices for a<br />

healthier Easter<br />

Everything Outreach!<br />

With Easter upon us, it's time to embrace the festivities while keeping our wellbeing in mind.<br />

Here are some evidence-based tips from a Dietitian for a healthful and joyful Easter:<br />

Balancing Easter treats.<br />

Let's be real – Easter without a bit of<br />

chocolate or treats is like a beach<br />

day without sunshine, it's a bit dull. It's<br />

absolutely fine to embrace the joy of<br />

Easter treats in moderation, especially<br />

when opting for quality dark chocolate. Dark chocolate<br />

not only satisfies your sweet tooth but also brings<br />

along antioxidants with potential heart-healthy benefits.<br />

Consider individually wrapped chocolates for better<br />

portion control and designate a specific time of day for<br />

your chocolate fix, like in the afternoon or after dinner.<br />

Protein power.<br />

Foods rich in protein help us feel satisfied<br />

and fuller for longer, while also supporting<br />

our muscle, nerve & immune function.<br />

Take eggs, for instance – they are a<br />

nutrition powerhouse and a fantastic<br />

protein source, while being versatile and easy to prepare.<br />

Whether you choose boiled eggs, frittatas, or tasty<br />

omelettes, you're not only treating your taste buds<br />

but also providing your body with essential nutrients.<br />

Additionally, diversifying your protein sources can be<br />

beneficial. Including meat-free options like seafood, eggs,<br />

nuts, seeds, and plant-based proteins such as legumes<br />

(chickpeas, beans, and lentils) ensures a well-rounded<br />

diet, promoting overall health and wellbeing.<br />

Nutrient-rich Easter meals.<br />

Our Aussie autumn offers a vibrant array<br />

of fresh produce. Load up on colourful<br />

fruits and veggies – these nutrient-dense<br />

foods not only contribute to overall health,<br />

supporting muscle and nerve function,<br />

but also add a burst of flavour to your<br />

Easter spread.<br />

Stay hydrated.<br />

With the warm autumn weather in<br />

Australia, staying hydrated is crucial and<br />

can help with managing fatigue. Opt for<br />

water as your primary beverage and<br />

limit sugary drinks and alcohol. If you're<br />

feeling fancy, herbal teas are a delightful and hydrating<br />

choice too. Try carrying a reusable water bottle with you<br />

throughout the day to make it easy to stay hydrated; add<br />

lemon, cucumber, or mint to your water for a refreshing<br />

twist or set reminders on your phone to take regular sips.<br />

Mindful eating magic.<br />

Practice mindfulness during meals by<br />

savouring each bite, paying attention<br />

to hunger and fullness cues. Avoid<br />

distractions such as screens and engage<br />

in meaningful conversations with loved ones.<br />

Mindful eating fosters a better connection<br />

with your body and promotes satisfaction.<br />

Active Easter celebrations.<br />

Include physical activity in your Easter<br />

celebrations. Plan activities that suit your<br />

abilities and preferences, whether it's a<br />

gentle walk, seated exercises, or enjoying<br />

some outdoor games – staying active is a<br />

fun way to bond and support your wellbeing.<br />

As you gear up for Easter, remember it's about<br />

relishing good food, good company, and good vibes.<br />

Treat yourself, stay active, and make choices that<br />

make you feel your best.<br />

Mineh Burn<br />

MSWA Dietitian<br />

Wheelchair Day at Beechboro<br />

Wheelchair Day at Beechboro was a blast! We honored International<br />

Wheelchair Day with some seriously competitive (yet super friendly)<br />

seated sport tournaments at Outreach Beechboro. Stuart nailed our<br />

version of Beer Pong (minus the beer, of course!) after a few practice<br />

shots, taking the lead. Meanwhile, Tyrone and Miles were in a tight race<br />

playing knock-the-bucket-off-its-perch, and Andrew and John showed off<br />

their bean bag splash game skills! Round two next month? Bring it on!<br />

Wilson Valentine’s Day<br />

sweeter than chocolate<br />

Our Outreach attendees had a<br />

blast making Valentine's sweets,<br />

but let's be real, most of them<br />

didn't make it to their intended<br />

recipients. Who can resist a<br />

delicious treat made with love?<br />

DIY Skills<br />

Sugar and spice and all things<br />

nice! Outreach Rockingham were<br />

treated to a wonderful incursion<br />

by Bunnings Rockingham, where<br />

Clients used their DIY skills to<br />

make spice racks. Next week<br />

we are going to enjoy using our<br />

creative skills to decorate them!<br />

Wilson OpShop Café<br />

Wilson OpShop Café kicked off the year with<br />

a bang! Huge thanks to the kitchen dynamos<br />

Justine Webb and Swee-Chin Chu, who whipped<br />

up a storm (and cream) to go with some yummy<br />

scones. Come hang out with us and taste the<br />

magic yourself!<br />

Drop us an email at outreach@mswa.org.au to<br />

find out when our café is open for business.<br />

Happy 70th Sally!<br />

For the past 16 amazing years,<br />

Sally and her husband Bryan have<br />

graced our doors, and Sally's<br />

positive spirit, warm smile, and<br />

kind heart have touched the<br />

Rockingham Outreach team.<br />

Sending warmest wishes to Sally<br />

for a wonderful birthday!<br />

30 31

Social Connections<br />

Accommodation adventures<br />

Farewell, Bruce!<br />

After 10 dedicated years, Care Support Worker Bruce<br />

Hale is headed for retirement and will be truly missed by<br />

the residents of Hamilton Hill.<br />

In 2023, Bruce was nominated by staff and Clients at the<br />

National Disability Services Awards for Excellence in<br />

Disability Support Work. You can read all about it on page<br />

20 of our last edition of <strong>Bulletin</strong>.<br />

Thank you for your amazing work Bruce, you will be truly<br />

missed.<br />

Sunshine and smiles<br />

Fern River Postie<br />

“Fantastic, I have always wanted to be a postie!” Jenny exclaimed when asked<br />

about becoming the Fern River postie.<br />

Jenny is a Fern River resident who loves spending time with people, doing<br />

something that has meaning and sharing her infectious smile. Daily, Jenny<br />

with the assistance from staff, collects her postie basket and name tag,<br />

collects the mail from the mailboxes and cheerfully delivers it to every unit.<br />

Residents enjoy their daily catch ups with Jenny and are thankful for the visitor.<br />

By creating purpose, Jenny now wakes up knowing she has a responsibility to<br />

do every day and feels that she is contributing to the Fern River community.<br />

We love your work Jenny!<br />

Margaret Doody’s brand-new look!<br />

Clients have been amazed by the summer<br />

transformation of Margaret Doody House, which now<br />

boasts a modern kitchen and refreshed landscaping<br />

throughout.<br />

Respite Manager Nelly Higginson said the changes<br />

made it so much easier for staff and Clients to access<br />

and enjoy – and was good to look at too!<br />

“It all looks so much more modern and every Client who<br />

has visited since we re-opened has loved it – there have<br />

been so many positive comments,” she said.<br />

“The Facilities Team has done a great job as usual; they<br />

even picked the most amazing splash back which we all<br />

love!<br />

“But not only have we had the kitchen done, we’ve also<br />

been working on the courtyard with some replanting, with<br />

the aim of creating a nicer environment for Clients to go<br />

out and enjoy – somewhere that looks lovely and relaxing,<br />

but also smells wonderful.”<br />

The entrance wasn’t forgotten in the upgrades, sowing<br />

the seeds for big future plans.<br />

“The idea is that when you come in in a year or so, visitors<br />

will come in through a hedged driveway to provide a<br />

grand entrance for our visitors,” she said.<br />

These are the latest in a string of refurbishments, which<br />

started with a flooring upgrade two years ago and<br />

continued with a laundry and bathroom refresh last year.<br />

“We had a lady who hadn’t visited in 12 months, and she<br />

was just blown away when she came in,” Nelly said.<br />

“Everything we do is to ensure the Client experience at<br />

respite leaves them feeling really good about their stay<br />

– it is so important to all of us and is what we strive to<br />

achieve.<br />

“It’s an amazing energy in the house, with everyone<br />

making connections and new friends. Every day there is<br />

laughing and joking, and when they leave they exchange<br />

numbers to stay in touch.<br />

“For me, this is why I do what I do.”<br />

Fern River residents are now embracing the opportunity to get some<br />

sunshine on their skin and socialise with other residents. With the support<br />

of some occasionally loud music and a whole lot of singing and dancing, the<br />

once quiet afternoons are now filled with laughter and engagement. At Fern<br />

River we are lucky enough to have easy access to the walking paths along the<br />

Canning River giving beautiful scenery and access to nature and wildlife. If<br />

this sounds like a lifestyle you would enjoy, we have room for one more! Get in<br />

touch with your Client Liaison Coordinator or email fernriver@mswa.org.au to<br />

enquire about our Fern River High-Support Accommodation.<br />

Jacqui Sheveleff<br />

Supported Accommodation Coordinator<br />

Are you interested in MSWA’s Accommodation or Respite services?<br />

We would love to hear from you!<br />

We regularly host tours of our facilities and would love to show you the amazing amenities we have to offer.<br />

Please get in touch with our teams through the details below:<br />

Accommodation: customerservice@mswa.org.au<br />

Treendale Respite: treendale@mswa.org.au<br />

Margaret Doody House (City Beach): nelly.higginson@mswa.org.au<br />

Call us on 9365 4888 and book a pre-visit to look around and ask any questions you may have.<br />

From there, a booking can be made, and funding secured. If you are a current MSWA Client and have<br />

a Client Liaison Coordinator, ask them about accessing respite.<br />

32 33

Events<br />

Our People<br />

Creating a connection point<br />

MSWA art exhibition 20<strong>24</strong><br />

Celebrating our<br />

Difference Makers<br />

West Australian artists living with neurological<br />

conditions showcased their talents to thousands of<br />

admirers as part of MSWA’s inaugural art exhibition.<br />

Hosted in the Mega Home Lottery Grand Prize Home<br />

located in Marmion, the exhibition featured 25 pieces<br />

produced by 22 artists in February and March, with<br />

visitors in awe of the quality and diversity of the work.<br />

Mixed media artist Hank Gidney, whose career has<br />

spanned 35 years as a commercial artist, designer and<br />

art director, is showing his work We got here, where is<br />

here? as part of the exhibition, a piece which tells the<br />

tales of two unique journeys.<br />

“The subject is a friend of mine, who is an indigenous<br />

artist in his own right. I came to this idea because I had<br />

also been relatively recently diagnosed with MS, and he<br />

had his own journey at that same time,” Hank said.<br />

“So, I combined both elements into one narrative. It’s mixed<br />

media because it’s a piece of photography, but it’s also<br />

about art – illustration and painting – that was created as a<br />

separate element and printed, so the two became synced.”<br />

Hank was “humbled” to know his art would be seen by so<br />

many people, and that featuring the artworks in the Mega<br />

Home Lottery house were a great way to “connect the dots”.<br />

“Sometimes we are defined or bookended by our<br />

condition, sometimes that’s a visible thing and<br />

sometimes not so," he said.<br />

“But actually, this exhibition says something very<br />

different. It says ‘actually, we are not’ we have these<br />

avenues to express ourselves away from our condition,<br />

even though it may describe our journey. I think it is really<br />

valid and special.”<br />

Malcolm Hicks travelled all the way from Bunbury for the<br />

exhibition opening which features his work Combination<br />

of Dreams which depicts a fictitious northwest WA scene,<br />

borne of his own vivid imaginings.<br />

Unlike Hank, Malcolm is a relative newcomer to the art<br />

scene, who began honing his skills after his motor neurone<br />

disease diagnosis in 2012.<br />

Hank Gidney with his artwork.<br />

“I found myself at home a bit more and took up painting<br />

then,” he explained.<br />

“When I first started, my brother gave me a picture and<br />

said, ‘I don’t want a copy of a picture, I’ve already got the<br />

photo, I want your impression of it’.<br />

“So, you can’t go wrong when it’s your impression!”<br />

Malcolm welcomed the opportunity to publicly show<br />

his work, but also to have the chance to see the huge<br />

variation in work on display from other artists.<br />

Following rave reviews from visitors, the exhibition will<br />

travel to MSWA Wilson Outreach where it can be viewed<br />

from May 6 – 21, 8.30am – 5pm.<br />

Votes have been flooding in for the People’s Choice<br />

Award, which is set to close at 11.59pm on Friday 17 May –<br />

so make sure your vote counts!<br />

The winner will be announced at the People’s Choice<br />

Award ceremony on Tuesday, 21 May at Wilson Outreach,<br />

where the exhibition closing will be<br />

celebrated with a morning tea.<br />

To secure your place, scan the<br />

QR code.<br />

We were again blown away by the<br />

outpouring of support from Clients in<br />

nominating their MSWA Difference<br />

Maker of the Year for 2023!<br />

It was another difficult decision,<br />

with Support Coordinator Talisha<br />

Gismondi and Occupational Therapist<br />

Sam Warne named as deserving<br />

finalists in this important category,<br />

with Exercise Physiologist Oliver<br />

Guttinger announced as our winner.<br />

Oliver said receiving the recognition<br />

had left him in disbelief.<br />

“Especially because it was from<br />

the Clients, it’s very humbling to be<br />

recognised by them and to receive<br />

such an honour as this,” Oliver said.<br />

Oliver credits his 13 years working<br />

for MSWA to his amazing team, and<br />

of course the Clients he works with.<br />

“The Clients are an inspiration to<br />

me,” he said.<br />

“It's nice to be able to spend that time<br />

week after week with people, develop<br />

a deeper connection and see them<br />

progressing through their lives and<br />

sharing that journey with them.<br />

“But I've also got to say that we've<br />

got such an excellent team, both<br />

in the in the Beechboro facility and<br />

at Butler.<br />

“Everyone's well respected, we learn<br />

from and are supportive of one<br />

another – that really, really makes a<br />

difference when you can come into<br />

work to know that everyone's got<br />

your back and pitch in when you need<br />

it. It makes a massive difference.”<br />

He extended his thanks to the<br />

Clients who nominated him and<br />

looked forward to “continuing to<br />

move onwards and upwards with<br />

smiles on our faces”.<br />

Congrats Oliver!<br />

Here is what our Clients had to say:<br />

“Ollie is brilliant in what he does, I always feel better after my sessions<br />

with him, he really understands neuro conditions, and has patience,<br />

empathy and respect, he is a huge asset to MSWA.”<br />

“Ollie's patience and guidance in delivering both group and<br />

personalised exercise programs ... has given me confidence in<br />

understanding how to work through the challenges that MS presents<br />

and achieve the best results possible from my mind and body.”<br />

“Each week Ollie takes great care to ensure our comfort and<br />

wellbeing as we progress through his exercise routine, with laughter,<br />

endless encouragement and ending always with a sense of physical<br />

accomplishment and well-being.”<br />

You can check out all<br />

of our winners for 2023 below:<br />

Difference Maker Award<br />

Oliver Guttinger,<br />

Exercise Physiologist<br />

Change Maker Award<br />

Melissa Coombs,<br />

Outreach Coordinator<br />

Leading with Purpose Award (Team)<br />

Rostering Team<br />

Leading with Purpose Award<br />

(Individual)<br />

Chanel Rikihana,<br />

Community Support Worker<br />

The Chair’s Impact Award<br />

James Beckett,<br />

Physiotherapy Manager<br />

Trailblazer Award<br />

Sandra Barton,<br />

Community Support Worker<br />

Values Award – Accountability<br />

Robin Braccia,<br />

Quality, Safeguarding and Risk<br />

Values Award – Difference<br />

Abi Farrah,<br />

Care Support Worker<br />

Values Award – Listen<br />

Donna Hogan,<br />

Community Support Worker<br />

Values Award – Respect<br />

Joseph Jangi,<br />

Maintenance/Handyman<br />

34 35

Our People<br />

Get to know:<br />

Liam Roche<br />

A final act of kindness<br />

This brand new series will help you<br />

get to know the MSWA team a little<br />

better! To kick us off, we spoke with<br />

Board Director Liam Roche.<br />

Liam is currently our Deputy Chair,<br />

Chair of People and Governance<br />

and a Committee Member of<br />

Audit, Risk and Finance. He is an<br />

accomplished business leader with<br />

a 40-year career in the media and<br />

manufacturing industry.<br />

Throughout his career, Liam has<br />

not only left an indelible mark<br />

on the corporate landscape but<br />

has also become an inspiration<br />

for his commitment to<br />

community service.<br />

What motivated you to join the<br />

MSWA board?<br />

When I retired at 58 years of age, I<br />

wasn’t completely ready to hang up<br />

the boots so I looked at how I could<br />

contribute to the community. A good<br />

friend of mine knew Bill Hassell,<br />

MSWA Senior Vice President at the<br />

time and he was aware that MSWA<br />

were looking for a new director, so he<br />

suggested they talk to me.<br />

I also had friends and family<br />

members living with multiple<br />

sclerosis, MSWA had a good<br />

reputation and was doing amazing<br />

work in supporting people living with<br />

MS, so I was proud to become a part<br />

of the team and have worked hard<br />

ever since trying to make a positive<br />

impact in my capacity.<br />

What is your favourite<br />

memory / achievement as part<br />

of the MSWA Board?<br />

Helping to build sustainable growth<br />

in service delivery, building new<br />

state-of-the-art facilities, and<br />

our significant contributions to<br />

research over the years. Back in<br />

2016 when I joined the Board, we<br />

delivered 460,000 hours of service,<br />

contributed $2.2m to research,<br />

our Net Assets were $26.7m,<br />

total income was $48.6m and we<br />

achieved a surplus of $4.3m.<br />

By 2023 we nearly doubled the<br />

hours of service delivered to<br />

856,050 hours, we have tripled our<br />

contribution to research to $6m, our<br />

Net Assets have grown to $102m,<br />

total income has more than doubled<br />

to $114m and our surplus was a<br />

staggering $11m, which we will use<br />

to empower the lives of people living<br />

with neurological conditions. This is<br />

sustainable growth that we can all<br />

be enormously proud of.<br />

When you have time off, what<br />

would we find you doing?<br />

When I first retired, I didn’t have any<br />

grandkids and in the next four years<br />

we had four under 4 years of age!<br />

As my daughters like to say “it takes<br />

a village to raise a child” which is<br />

code for Grandparents helping, so<br />

Karen and I spend lots of time with<br />

our grandchildren, which has been<br />

both a pleasure and a privilege.<br />

We also love travelling and enjoy a<br />

trip to either Europe or the United<br />

States every year along with regular<br />

trips to Bali and the Eastern States.<br />

We’ve been lucky to see a lot of the<br />

world and love exploring new places.<br />

What is an interesting fact about<br />

yourself people may not know?<br />

I am a keen Bridge player and play a<br />

couple of times a week. I’m a member<br />

of the West Australian Bridge Club<br />

and the Melville Bridge Club. I enjoy<br />

the intellectual and social stimulation<br />

and appreciate the logic, reasoning,<br />

concentration, and partnership skills<br />

Bridge develops.<br />

If you could imagine one thing<br />

for MSWA in 10 years, what<br />

would it be?<br />

There is currently no cure for MS,<br />

but there has been tremendous<br />

progress in the development of<br />

drugs to treat the disease. I would<br />

like to imagine a future where anyone<br />

diagnosed with a neurological<br />

condition could live a “life without<br />

limits” and not worry about their<br />

condition getting worse, thanks to<br />

groundbreaking research and the<br />

development of new treatments.<br />

Liam and his wife Karen spending<br />

time with their grandchildren.<br />

MSWA CEO Melanie Kiely graciously accepted an<br />

extremely generous donation at the bequest of the late<br />

Ross Howard Kennedy in January, who sadly passed<br />

away in March 2022.<br />

Despite the solemn circumstances, we were heartened<br />

to learn this decision was made by Ross in recognition of<br />

the significant support he received from MSWA over the<br />

several decades in which he lived with multiple sclerosis.<br />

“He wanted to recognise that generous and sustained<br />

support in his will,” said Ross’ brother, Bruce.<br />

Ross Kennedy: “A delightful gentleman”<br />

The middle child of three siblings, Ross grew up in Tuart<br />

Hill in the 50s – then the northern edges of Perth – where<br />

there was plenty of bushland to play around in with his<br />

friends from the street.<br />

Attending the local school, Ross was able to come<br />

home for lunch every day, except for when their mum<br />

volunteered at the school canteen and the trio were able<br />

to enjoy special treats.<br />

On the weekends and school holidays, Ross would spend<br />

time swimming, crabbing and fishing at the family’s<br />

holiday home in Mandurah.<br />

Ross was also a talented hockey player, a gifted artist<br />

and photographer, with a particular interest in flowers.<br />

He was also a keen collector of model trains, cars and<br />

trucks.<br />

A great lover of all things English – including his wife<br />

Shirley, The Beatles and James Bond (his car number<br />

plate was moonraker!), Ross was a quiet man with a wry<br />

sense of humour.<br />

According to his family, Ross was determined to live life<br />

and go forward in his own way. He even ordered a new<br />

stereo system to accompany him to palliative care so he<br />

could “go out in style”.<br />

“MSWA is an organisation that does a lot of good, and it<br />

is important given that they support the community, that<br />

the community supports them.”<br />

As well as donating an astounding $270,000, Ross’ estate<br />

also donated equipment, including a specialist bed,<br />

two hoists, four wheelchairs and a care alert system to<br />

benefit other MSWA Clients.<br />

In recognition of this generosity, we would like<br />

to pay tribute to Ross, by sharing a small part of<br />

his story.<br />

Ross started a cadetship at the Land and Surveys<br />

Department, where he worked until his retirement in 1996.<br />

He was universally respected for his personal qualities<br />

and his technical talents in photogrammetry and IT.<br />

Diagnosed with MS the mid-1980s, Ross received<br />

support from MSWA over several decades where he was<br />

well-regarded by the staff who cared for him.<br />

We extend our condolences to Ross’ family and cannot<br />

understate our appreciation for his selfless gift, and to<br />

Bruce for his substantial efforts as executor to make<br />

this donation possible.<br />

It is because of generosity such as this that MSWA<br />

can continue to support West Australians living with<br />

neurological conditions to live the life they choose.<br />

Interested in leaving a gift in your will?<br />

For more information, visit our website<br />

mswa.org.au/get-involved/a-gift-in-will<br />

36 37

News in brief<br />

Save the date<br />


Thursday 30 May<br />

World MS Day<br />

Sunday 23 June<br />

Step Up for MSWA<br />

WA-developed drug to protect brain after stroke<br />

A groundbreaking WA-developed drug which aims to<br />

reduce brain tissue damage following stroke is now being<br />

trialed in hospitals across Australia, including Sir Charles<br />

Gairdner and Fiona Stanley hospitals in Perth.<br />

MSWA proudly contributed funding to Phase 1 of the drug<br />

trial of ARG-007, which confirmed the novel drug is safe<br />

and well tolerated in healthy volunteers.<br />

The drug was developed through research led by<br />

Professors Bruno Meloni and Neville Knuckey (Perron<br />

Institute and The University of Western Australia) at<br />

WA-based biotech company Argenica Therapeutics<br />

and will be administered by early responders in the<br />

Phase 2 trial.<br />

Read more here: https://bit.ly/3Pk49hX<br />

Portraits in time<br />

The May 50k<br />

Albany Swim<br />

Ripping up the book<br />

of life<br />

Can art change the world? This is<br />

the question explored in a recently<br />

filmed short documentary featuring<br />

Tasmanian artist and activist<br />

Lucienne Rickard, who also bravely<br />

shares her personal story of being<br />

diagnosed with multiple sclerosis.<br />

Lucienne inspires everyone she<br />

meets and is carving out an<br />

international profile as a devoted<br />

advocate for protecting endangered<br />

species.<br />

Search ‘Ripping up the book of life’<br />

by LOWCO Au on YouTube to watch<br />

the inspirational film.<br />

(Image credit: ABC News)<br />

MSWA Volunteer takes<br />

Australian Idol by storm!<br />

Andrea Omanade (or Drea) is<br />

well-known in the MSWA community<br />

by Clients and staff as a beloved<br />

and regular volunteer singer for<br />

our events.<br />

We are very proud to share that Drea<br />

made it to the top 8 of this year’s<br />

Australian Idol! What an incredible<br />

achievement. Congratulations, Drea!<br />

– we look forward to hearing all about<br />

your journey in our next <strong>Bulletin</strong>.<br />

In case you missed it, you can catch<br />

Drea's incredible performances on<br />

catch up TV via 7Plus.<br />

She also keeps her fans updated<br />

on Facebook (Search Drea) and<br />

Instagram (@dreaomusic).<br />

(Image credit: Channel 7)<br />

‘Every time it’s hot, my<br />

world goes blurry’<br />

MSWA Client Wildaliz De Jesus<br />

recently wrote two insightful articles<br />

published on the ABC News’ website<br />

outlining the impact of heatwaves on<br />

people with a disability.<br />

In the first article, Wildaliz writes<br />

from her own perspective as a<br />

woman living with multiple sclerosis<br />

and how heat has snatched<br />

moments from her.<br />

In the second article, she<br />

spoke to experts like MSWA<br />

Occupational Therapist Sarah<br />

Coutinho to understand why heat<br />

disproportionately affects people<br />

with disability and measures for<br />

more inclusive communities.<br />

To read the articles visit:<br />

https://ab.co/3vjymXk (article 1) and<br />

https://ab.co/3vjbQ0N (article 2)<br />

27 March - 30 April 20<strong>24</strong><br />

10am - 2pm<br />

Bond Store Gallery,<br />

Old Courthouse Complex on<br />

Queen Street, Busselton<br />

Did you know that MSWA Client<br />

Liaison Coordinator Kirsty Wyatt is<br />

a talented illustrator? In fact, Kirsty<br />

has an entire exhibition of her own<br />

over the Easter holidays!<br />

The exhibition consists of 12<br />

paintings and sketches celebrating<br />

the lives and contributions of the<br />

older generation of Busselton.<br />

This exhibition will not only<br />

showcase their visual portraits,<br />

but will also share the rich tapestry<br />

of their life experiences, fostering<br />

intergenerational understanding and<br />

respect within the community.<br />

Submit your article to us<br />

Wednesday 1 – Friday 31 May 20<strong>24</strong><br />

Australia-wide<br />

This May, smash your fitness goals<br />

as you help raise funds to support<br />

life-changing research into the<br />

prevention, treatment and finding a<br />

cure for multiple sclerosis.<br />

Challenge yourself to move 50 KM<br />

(The OG), 100 KM (Double Up) or 150<br />

KM (Triple Threat), in your own time<br />

and at your own pace.<br />

Take part on your own, as a team, or<br />

get your whole workplace involved!<br />

This is an opportunity to come<br />

together, to leave MS where it<br />

belongs. Behind us.<br />

https://www.themay50k.org<br />

Do you have a story about living with a neurological condition in WA that other MSWA Clients might like to read?<br />

We invite you to share your experiences with us.<br />

Email your submission to bulletin@mswa.org.au for consideration.<br />

Suggestions, complaints and compliments<br />

We want to hear from you. Your feedback helps us to understand what is working well and where we can improve.<br />

You can raise a concern or acknowledge the support an MSWA staff member has provided by telephoning 6454 3146,<br />

via feedback@mswa.org.au or writing to Quality and Compliance; Locked Bag 2, BENTLEY DC 6983.<br />

For more information, visit mswa.org.au/about-mswa/contact-us.<br />

Saturday 20 April 20<strong>24</strong><br />

8am – 5pm<br />

Albany Leisure and Aquatic Centre<br />

The MSWA Albany Swim has<br />

evolved into a highly anticipated and<br />

cherished annual community event<br />

for the Great Southern region.<br />

Now in its 12th year, the event<br />

welcomes all who live in the region<br />

and those keen for a road trip to<br />

participate in the energetic and<br />

meaningful fundraiser helping to<br />

provide vital support, services and<br />

research to Western Australians<br />

living with a neurological condition.<br />

Sign your team up today at<br />

www.mswaswim.org.au and push your<br />

limits in an exhilarating 8-hour relay.<br />

Get ready to make a splash and<br />

celebrate the joy of swimming<br />

together while making a difference.<br />

38 39

To find out more about our services,<br />

create connections or show support<br />

for cause, visit mswa.org.au.

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