MSWA Bulletin Magazine Summer 2023

Recognising our Difference Makers | Let your voice be heard for a better NDIS | Stationary riders cycle to glory | Upgraded gym opens up options

Recognising our Difference Makers | Let your voice be heard for a better NDIS | Stationary riders cycle to glory | Upgraded gym opens up options


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THE OFFICIAL MAGAZINE OF <strong>MSWA</strong><br />

<strong>Summer</strong> <strong>2023</strong><br />

mswa.org.au<br />

INSIDE<br />

Albany physiotherapist Suzanne Rice and<br />

Metro Lower South Care Support Worker<br />

Joanne Ingham are our inaugural Difference<br />

Makers of the Year - as voted by you!


29 Parkhill Way 9365 4888<br />

Fax 9451 4453<br />

Freecall 1800 287 367<br />

See Health Team Dept contacts on this page<br />




Nicola Washington 9365 4840<br />


Carol Chong 9365 4873<br />

NDIS TEAM 9365 4824<br />


Wilson Outreach 9365 4830<br />

Beechboro Lodge 9377 7800<br />

Southside Outreach 9592 9202<br />

Albany Outreach 6154 5149<br />

Bunbury 6454 2800<br />


Vanishree Chetti 9365 4818<br />


Senior Coordinator,<br />

Nelly Higginson 9385 9574<br />


Manager, Danuta Figurska 9356 2747<br />


Manager, Jo Nouwland 9331 5780<br />



Manager, Linda Kidd 9725 9209<br />



Manager, Chris Rush 6154 5120<br />



Manager, Kate Jones 6154 5085<br />


If you would like to comment on anything<br />

you read in this <strong>Bulletin</strong> please email<br />

bulletin@mswa.org.au or write to<br />

<strong>MSWA</strong>, Locked Bag 2, Bentley DC WA 6983<br />

For general feedback or complaints please<br />

contact Davina Sawyer 6454 3173 or<br />

feedback@mswa.org.au<br />


Nicola Washington, Tony Millar,<br />

Emily Ace and Nicolette Murphy.<br />


Geoff Hutchinson, Carol Chong,<br />

Dajana Tesevic, Vanishree Chetti,<br />

Denise Vogels, James Beckett,<br />

Tracey Hockey, Misty Reinkowsky<br />

and Crystal Chan.<br />

The Editorial Working Group welcomes<br />

unsolicited submissions.<br />

All articles are subject to a reviewing<br />

process. The views expressed are those<br />

of the authors and do not necessarily<br />

reflect the view of <strong>MSWA</strong>’s staff, advisors,<br />

directors or officers.<br />


Our Neurological Liaison Nurses are usually the first point of contact after the<br />

neurologist’s diagnosis.<br />

COMMUNITY NURSE: 9365 4888<br />


Our team provides treatment interventions to develop and maintain mobility<br />

and function.<br />



Occupational Therapists enable Clients to continue their work and other interests<br />

for as long as possible through advice, aids and equipment.<br />

CRYSTAL CHAN, MANAGER: 9365 4804 OR OT DEPARTMENT: 9365 4888<br />


Our Speech Pathologists assess, diagnose and create individualised treatment<br />

programs for Clients who experience swallowing and/or communication difficulties.<br />

PAMELA WINDRAM, MANAGER: 6454 3140<br />


Dietitians are university-qualified nutrition experts who promote general health<br />

and disease prevention/management through dietary changes.<br />

PAMELA WINDRAM, MANAGER: 6454 3140<br />


Talking with a Counsellor creates a safe, respectful and confidential environment<br />

for you and those close to you to explore options, create change or gain<br />

understanding about your life.<br />

LISA PAPAS, MANAGER: 9365 4836<br />



Social Welfare Officers assist Clients and their families to access services<br />

and supports to remain living independently at home. They specialise in case<br />

management, advocacy and sourcing funding options.<br />

KATH KNIGHTS, MANAGER: 9365 4835<br />


We provide long-term and time limited in-home supports including assistance<br />

with personal care, to help people remain in their homes. Care and supports<br />

are provided through a combination of funding from the Department of<br />

Communities - Disability Services, and our own fundraising efforts.<br />

CUSTOMER SUPPORT TEAM: community.support@mswa.org.au<br />


Our experienced teams will provide you with personalised support right<br />

throughout your NDIS journey. From helping you to access the NDIS to working<br />

with you to get the most from your plan, our trained staff are here to help.<br />



<strong>MSWA</strong> provides separate recreation camps for Clients, carers, and families,<br />

primarily funded by Lotterywest, and for a nominal cost to participants.<br />

These camps provide a break from daily routines, and strengthen friendships<br />

and support networks.<br />



<strong>MSWA</strong> delivers all levels of Home Care Packages to eligible people with a neurological<br />

condition who are over 65. Services are delivered by staff specifically trained in home<br />

care for older Western Australians who are living with a neurological condition.<br />



The <strong>MSWA</strong> Employment Support Service is the only specialist employment service<br />

for people living with multiple sclerosis and other neurological conditions in<br />

Western Australia and can help you to stay in your current job or find employment<br />

in the open labour market.<br />



Welcome to the <strong>Summer</strong> <strong>2023</strong> edition of <strong>Bulletin</strong>. We hope you enjoy the news, stories and<br />

service information we have brought to you this quarter.<br />


2<br />




It is refreshing to write this<br />

In January, we called for<br />

Our third area of change is our<br />

Welcome to the <strong>Summer</strong> Edition<br />

We thank James Beckett and the<br />

I would like to extend my sincere<br />

message as we start the new<br />

expressions of interest for the<br />

Board. I'm delighted to welcome<br />

of our Member & Client Services<br />

Physiotherapy Team, as well as<br />

congratulations to our inaugural<br />

year with sunshine and hope. In<br />

Client Advisory and Co-Design<br />

three new directors.<br />

<strong>Bulletin</strong>. I hope you all had a lovely<br />

Brendan O'Leary and the Facilities<br />

Difference Maker Award winners,<br />

January last year we were still a<br />

state in total lockdown and closed<br />

borders! It's almost hard to believe.<br />

I sense we are all starting this year<br />

with a fresh perspective and a<br />

renewed approach. Tough times<br />

always change us, and hopefully<br />

we can use our learnings to review<br />

how we do things and find ways to<br />

serve you better.<br />

<strong>MSWA</strong> has many new initiatives<br />

starting this year linked to our<br />

purpose; Empowering People with<br />

Neurological conditions to live<br />

their best lives, which we are very<br />

excited about.<br />

The first is to step up our<br />

collaboration and co-design with<br />

Clients and people with direct<br />

lived experience of a neurological<br />

condition. Gone are the days when<br />

we do things ‘for and to’ the people<br />

we exist to support – we need to<br />

truly listen, engage and do things<br />

‘with’ our Clients and the broader<br />

‘ecosystem’ we work within.<br />

Committee and we have been<br />

overwhelmed by the response<br />

from Clients. Expressions of<br />

interest are now closed and we<br />

will announce our full committee<br />

shortly. I am so passionate about<br />

this project, its potential to<br />

make us see things differently<br />

and pave the way to make a<br />

greater impact.<br />

In line with our Client centred<br />

focus, we launched our inaugural<br />

Difference Maker of the Year award.<br />

We asked Clients to nominate<br />

staff members who truly make a<br />

difference to their lives and were so<br />

pleased to be inundated with 110<br />

nominations in the first year. Our<br />

winners (yes plural, we couldn’t<br />

choose between them!) were<br />

Physiotherapist Suzanne Rice from<br />

Albany and Care Support Worker<br />

Joanne Ingham from the Metro<br />

Lower South team. You can read<br />

all about these special women on<br />

pages 10 to 13.<br />

Our second area of renewal is to<br />

update and contemporise our<br />

Constitution to reflect the nature<br />

of what we do now, taking into<br />

account the size and complexity<br />

/ John Patmore joins us as a<br />

member living with MS, who<br />

brings incredible experience<br />

and skills in IT as we focus on<br />

new digital opportunities and<br />

address cyber risks in this era.<br />

/ Kathryn (Kate) Gatti joins<br />

with invaluable skills and<br />

experience in clinical<br />

governance and service quality.<br />

We have long needed this skill<br />

set on the Board.<br />

/ Benjamin Jardine brings<br />

extensive experience in<br />

the NDIS funding and<br />

management space, including<br />

accommodation support.<br />

Lastly, we look ahead to our Albany<br />

facility celebrating its first year of<br />

operation in April and hopefully<br />

the commencement of two new<br />

exciting developments in Shenton<br />

Park and Golden Bay. Another<br />

key focus of <strong>2023</strong> will be to set our<br />

strategy around where to expand<br />

our High-Support Accommodation,<br />

Respite and services support to<br />

better meet the needs of West<br />

Australians with neurological<br />

conditions.<br />

festive break and a wonderful<br />

start to <strong>2023</strong>.<br />

It was great to end last year<br />

with our wonderful Client and<br />

Volunteers Christmas Party – what<br />

a fabulous party with an impressive<br />

turnout. The delicious meal and<br />

marvellous entertainment from<br />

our very own talent pool at <strong>MSWA</strong><br />

was amazing, along with music<br />

played by Fenton Oldmeadow<br />

and the harmonious singing from<br />

the Bletchley Park Primary School<br />

Choir. A big thanks to everyone<br />

who worked in front and behind<br />

the scenes, including our friends<br />

at QBE who lent us a team of<br />

volunteers, you all made the day<br />

a success.<br />

The start to <strong>2023</strong> was highlighted<br />

by the official opening of our<br />

upgraded gym space at <strong>MSWA</strong><br />

Wilson. On 11 January we held<br />

a morning tea to open the gym<br />

following the wonderful work<br />

undertaken to accomplish more<br />

space and provide new gym<br />

equipment for our Clients to utilise.<br />

Team for delivering the project<br />

over the Christmas break. We are<br />

very grateful to our supporters who<br />

donated an incredible $27,000 at<br />

last year’s <strong>MSWA</strong> Dinner Auction,<br />

your generosity enabled us to<br />

make these changes which will<br />

expand our services. A big thank<br />

you for your incredible impact.<br />

See the pictures on<br />

We have now implemented our<br />

new Client Management System.<br />

We have been busy learning<br />

new processes and training our<br />

teams on the new technology. As<br />

such, you may have noticed a few<br />

changes, including our Support<br />

Workers using the new scheduling<br />

app. As with anything new, it<br />

takes a bit of time to get used to.<br />

As we settle the systems in, we<br />

can start to gain the benefits and<br />

improvements.<br />

As we start fresh for <strong>2023</strong>, we can<br />

commence our next projects.<br />

The focus on our horizon is to<br />

begin building our new service<br />

delivery model to further provide<br />

person-centred care. I am<br />

looking forward to building on<br />

the information and insights we<br />

Suzanne Rice and Joanne Ingham,<br />

two incredible professionals<br />

recognised by our Clients for<br />

their compassion, expertise and<br />

dedication. You are a credit to our<br />

organisation and <strong>MSWA</strong> is lucky to<br />

have you. It was heartening to see<br />

the outpour of gratitude for our<br />

staff and we look forward to seeing<br />

the awards grow bigger and better<br />

in <strong>2023</strong>.<br />

As we are now in the midst<br />

of summer, we have provided<br />

some useful tips on keeping<br />

cool during hot nights on<br />

and staying hydrated<br />

(and why it is so important)<br />

on<br />

As always, your feedback is<br />

important to us. If you have<br />

anything you would like to<br />

share, please contact us at<br />

feedback@mswa.org.au.<br />

Stay safe and enjoy the<br />

summertime.<br />




of our organisation. We will be<br />

sending out further information<br />

and invitations to discussion<br />

sessions on this topic in the<br />

next few months.<br />

All of these changes will help<br />

us to do what we exist to<br />

do – to truly make a positive<br />

difference in the lives of the<br />

people we support. I look<br />

forward to working with you<br />

and learning from you as we<br />

gathered towards the end of last<br />

year to inform our service model.<br />

We will be asking for your feedback<br />

and input as we pilot new ideas, to<br />

ensure we continue to provide the<br />

services and supports you need<br />

with added improvements.<br />

forge ahead to do an even<br />

better job this year.<br />



Smiles all around at the Client<br />

and Volunteer Christmas Party.<br />

4<br />




We thought we would start the New Year with a look at a few <strong>MSWA</strong><br />

funded projects across a variety of Western Australian institutions<br />

including Perron Institute, ECU, and Curtin University. Check out the<br />

four projects we are highlighting in this edition of <strong>Bulletin</strong>.<br />


SPIN Research Program – Savour<br />


Discoveries around diet in MS<br />


Demyelinating Diseases<br />

Many people with MS turn to the<br />

Led by Group Director, Clinical Professor Allan Kermode<br />

Professor Joanne Dickson<br />

Improving and maintaining quality<br />

of life is the main objective of Edith<br />

Cowan University’s <strong>MSWA</strong> funded SPIN<br />

(Systematic Profiling in Neurological<br />

Conditions) Research Program, with<br />

mental health being a major focus.<br />

Savour is a novel, imagery-based<br />

technique that uses positive<br />

memories to promote improvements<br />

in mental well-being. Individualised<br />

guided imagery encourages<br />

participants to revisit and savour a<br />

recent positive memory. Participants<br />

then project positive outlooks<br />

for events in the future and<br />

savour the anticipated positive<br />

emotions elicited.<br />

Professor Joanne Dickson at ECU says,<br />

“Affective savouring techniques like<br />

Savour have been shown to increase<br />

hope and happiness in people living<br />

with mental health conditions such<br />

as psychosis and post-traumatic<br />

stress disorder. Imagery-based<br />

interventions have been shown to<br />

improve mood and quality of life,<br />

and reduce fatigue in MS.”<br />

We are currently completing the final<br />

assessments of an initial trial and<br />

planning the next steps for the full<br />

trial, which will include people with<br />

all neurological conditions and their<br />

carers. To find out more contact<br />

spin@ecu.edu.au or keep an eye out for<br />

updates in <strong>MSWA</strong>’s Vitality Newsletter.<br />

internet for advice on diet, but<br />

navigating the information can<br />

be confusing and stressful. As<br />

Associate Professor Lucinda Black,<br />

team leader of the MS Nutrition<br />

Education Program at Curtin<br />

University, has identified “people<br />

with MS are so interested in diet<br />

and motivated to make healthy<br />

changes. Helping them make the<br />

right, evidence-based food choices<br />

is a privilege.”<br />

Their vision is to remove the<br />

confusion about diet and promote<br />

healthy eating among people with<br />

MS – something Lucinda loves<br />

doing and loves about her job.<br />

<strong>MSWA</strong>’s support of the MS<br />

Nutrition Education Program over<br />

the past seven years has enabled<br />

Associate Professor Lucinda Black<br />

and her team to build much<br />

needed research capacity for WA.<br />

Over the years, the team has<br />

been able to expand on four<br />

interconnected pillars of research:<br />

1. Lived experience (talking to<br />

people with MS and health<br />

professionals about food,<br />

nutrition and special diets);<br />

2. Epidemiology (testing whether<br />

diet is linked to MS onset and<br />

progression using studies from<br />

around the world);<br />

3. Nutrition education<br />

(co-designing nutrition<br />

resources and education<br />

programs with people with MS);<br />

4. Clinical trials (developing trials<br />

to help improve diet quality<br />

among people with MS).<br />

Associate Professor Lucinda Black<br />

The team has already shown<br />

links between diet and MS onset,<br />

including a beneficial effect of the<br />

Mediterranean diet, lower ultraprocessed<br />

food intake and higher<br />

fish consumption. They are now<br />

testing these dietary patterns and<br />

foods with disease progression to<br />

determine their potential benefits,<br />

a step that is hugely exciting. As<br />

one participant commented about<br />

the research, “what you're doing<br />

right now is vital to any MS person,<br />

and I’m just one person. I just<br />

feel really grateful that you cared<br />

enough to take me on”.<br />

The team recently developed a<br />

six-week online nutrition education<br />

program, co-designed with people<br />

with MS and tested with 70<br />

participants. Preliminary results<br />

show that the program helps to<br />

improve food choices and gives<br />

people a better understanding<br />

about food and nutrition. The<br />

feedback will help improve the<br />

program, which will run as a larger<br />

study in the future. “When people<br />

with MS tell us we are making a<br />

difference, I know we're on the<br />

right track,” Lucinda said.<br />

Anyone interested in finding out<br />

more about getting involved in the<br />

research program, please contact:<br />

MSDietProject@curtin.edu.au<br />

This research team including Dr<br />

Marzena Fabis-Pedrini, Dr. Belinda<br />

Kaskow and Dr. Stephanie Trend is<br />

involved in a number of research<br />

projects to investigate the clinical<br />

profile of different subgroups of<br />

Western Australian patients with MS,<br />

which is a demyelinating disease.<br />

Specifically, under their banner<br />

of MRI and genetic research, the<br />

team are:<br />

/ Examining antibodies in<br />

Relapsing-remitting multiple<br />

sclerosis (RRMS)<br />

/ Conducting brain and serum<br />

neurofilament light analysis<br />

in people with benign and<br />

non-benign MS<br />


Brain Plasticity<br />

Led by Associate Professor Jenny Rodger<br />

Neuroplasticity is the brain's ability<br />

to reorganise itself by forming new<br />

neural connections throughout life.<br />

Associate Professor Rodger and her<br />

research team aim to understand<br />

brain plasticity and how to harness<br />

it, thereby producing new and<br />

effective treatments for patients<br />

with a wide range of neurological<br />

and neuropsychiatric conditions<br />

including mental illness.<br />

A key focus of the team is<br />

research into the neuroplasticity<br />

mechanisms that are specific<br />

to brain development, with the<br />

goal of supporting healthy brain<br />

function throughout life.<br />

/ Collecting clinical samples<br />

over time<br />

/ Investigating biomarkers in MS<br />

/ Looking at genetic determinants<br />

through immunophenotyping<br />

/ Conducting quantitative MRI<br />

studies including building an<br />

MRI library, clinical comparisons,<br />

collaborative studies, walking<br />

rehabilitation through music,<br />

and the development of exercise<br />

guidelines for MS<br />

Additional research is being<br />

conducted in cellular immunology,<br />

B-cell regulation and T-cell interaction,<br />

post-mortem single-cell sequencing<br />

from brain tissues and antigen<br />

discovery to identify the cause of MS.<br />

As well as pursuing innovative<br />

and cutting-edge research into<br />

neuroplasticity, this team is<br />

also designing evidence-based<br />

treatment protocols for human<br />

clinical trials using transcranial<br />

magnetic stimulation for the<br />

rehabilitation of stroke, MS<br />

and more.<br />

Their research also explores the<br />

biological basis of neuropsychiatric<br />

conditions such as depression<br />

and anxiety, and investigates<br />

treatments such as non-invasive<br />

stimulation and novel therapeutics.<br />

Clinical Professor Allan Kermode<br />

Associate Professor Jenny Rodger<br />

The hope remains to confirm the<br />

benefit of treatments, including<br />

transcranial magnetic stimulation,<br />

that build new pathways and<br />

increase repair in the brain<br />

through non-invasive interventions<br />

which complement standard<br />

rehabilitation therapies and<br />

improve outcomes.<br />

6<br />








As covered in the Spring 2022<br />

Thankfully the NDIA has made it<br />

As Occupational Therapists,<br />

Edition of <strong>Bulletin</strong>, the National<br />

Disability Insurance Agency (NDIA)<br />

recently released their 2022 – 2026<br />

Corporate Plan outlining the<br />

direction the Scheme will head<br />

over the next period.<br />

One of the key takeaways from<br />

the document was a focus on<br />

participant engagement, stating<br />

very easy to share your experiences<br />

and ideas by providing online<br />

options to capture feedback.<br />

These include answering a standard<br />

online questionnaire or uploading a<br />

written, audio or video submission if<br />

you would prefer to speak at length.<br />

The NDIA is seeking answers or<br />

feedback on four key questions<br />

we are often on the lookout for<br />

up-to-date Assistive Technology<br />

that aims to make life a little easier<br />

for our Clients.<br />

Many of our Clients experience<br />

thermoregulatory dysfunction<br />

which means it is difficult for<br />

their bodies to regulate their<br />

temperature according to the<br />

Client and <strong>MSWA</strong> Wilson staff member<br />

Tracey Hockey has had an OOLER for<br />

about six months and provided the<br />

following review:<br />

“I received my OOLER during winter<br />

2022 after wanting to know what new<br />

tech was available to get me into<br />

continuous sleep without waking many<br />

times in the night overheated.<br />

“for the Scheme to succeed, it is<br />

critical that we listen and work with<br />

participants, their families and<br />

the disability community to make<br />

sure that each improvement is a<br />

step in the right direction.” Step<br />

one was for the NDIA to listen, so<br />

how will they do that?<br />

The answer became apparent in<br />

October, when National Disability<br />

Insurance Scheme (NDIS)<br />

Minister Bill Shorten announced<br />

an independent review of the<br />

NDIS, to improve the wellbeing of<br />

Australians with disability and the<br />

Scheme’s sustainability.<br />

The review will seek to examine<br />

the Scheme’s design, operations<br />

and sustainability. It will also look<br />

at ways to make the market and<br />

workforce more responsive and<br />

sustainable. Most importantly, it<br />

will seek to work with participants,<br />

their families and providers to put<br />

people with disability at the centre<br />

of the NDIS. These are significant<br />

and worthy goals, so we all must<br />

speak up and help achieve them.<br />

as a starting point for this review.<br />

These are;<br />

1. What are your three main<br />

problems or concerns with<br />

the NDIS?<br />

2. How do these three main<br />

problems affect you and/or<br />

others?<br />

3. What do you think are possible<br />

solutions to those problems?<br />

4. What parts of the NDIS are<br />

working well for you?<br />

These questions will inform the<br />

focus of the review to follow, so it is<br />

important as both the neurological<br />

and the Western Australian<br />

community that your experiences<br />

are included. If you would like to take<br />

part in this round of reviews, visit<br />

ndisreview.gov.au and click on the<br />

link ‘Have your say’. From there, look<br />

for the ‘Have your say online’ box<br />

about halfway down the page and<br />

choose your desired feedback option.<br />

One important note to remember is<br />

that while this is your first chance to<br />

have your say, the NDIA has assured<br />

us that it won't be your last, with<br />

more opportunities as the review<br />

progresses over the coming year.<br />

Also, while you are looking around<br />

the NDIS website, don’t forget<br />

A common theme in these articles<br />

is that the NDIA is most effective<br />

when participants push the agency<br />

to provide them with a plan that<br />

suits their needs. Plans are better<br />

when you tell your planner about<br />

your actual needs, support is better<br />

when you get to know your Local<br />

Area Coordinator, and providers<br />

like <strong>MSWA</strong> can provide further<br />

tailored services when you're<br />

engaged with us.<br />

This is an important<br />

opportunity to engage with<br />

the people who have the<br />

power to make the scheme<br />

into something wonderful<br />

or just another impersonal<br />

funding Scheme.<br />

Over the past couple of years, there<br />

have been real concerns about the<br />

NDIS and its direction. However,<br />

while there is still much to be done,<br />

there is now a renewed focus on<br />

getting it right.<br />

The NDIA has made the first step<br />

by offering up a listening ear,<br />

it’s now the responsibility of<br />

us all to take part and help design<br />

a better Scheme.<br />

weather around them.<br />

Particularly in these hot summer<br />

days, it can be very difficult to have<br />

a good night’s sleep. Our team<br />

has discovered a device that can<br />

help Clients with regulating their<br />

temperature when they sleep.<br />

The OOLER is a Smart Sleep<br />

System which uses advanced<br />

cooling technology to keep the<br />

bed at a perfect temperature<br />

for sleeping.<br />

It consists of a cool mesh pad that<br />

can be spread onto a mattress and<br />

is then temperature controlled by<br />

an app.<br />

If you would like more information<br />

about the OOLER, including funding<br />

options, or any other technology or<br />

strategies that could help you get<br />

a better night's sleep, contact your<br />

occupational therapist who can<br />

do an assessment and navigate<br />

options that would be best for you.<br />

The first night I set it at 18 degrees and<br />

slept through the night without waking<br />

once! This was a record since having a stroke in 2016.<br />

On the second night I organised the app to set up a Monday to<br />

Friday schedule and a weekend schedule, which was very easy to<br />

do. It worked a treat every night and I continued to sleep solidly,<br />

even with the ‘cool’ doona over the top of me as it was winter.<br />

I have had a brilliant outcome with the OOLER until we hit summer<br />

and my schedule had to change, as I needed the bed to come<br />

down in temperature to 14 degrees.<br />

I really recommend the OOLER to anyone who is having thermosregulatory<br />

issues (hot or cold) as once you set the OOLER at your<br />

desired temperature, it keeps you in that zone. If you wake in the<br />

night, you can change the setting on the unit itself or on the app.<br />

Positives:<br />

Negatives:<br />

/ Water efficient and doesn't<br />

need to be filled daily<br />

/ Set up can be challenging -<br />

you may need help to<br />

/ It doesn’t make a lot of<br />

lift mattress<br />

noise (it is quieter than the<br />

C-PAP machine)<br />

/ May need assistance to fill<br />

machine placed on the floor<br />

/ Keeps you at a comfortable<br />

temperature all night<br />

/ It can feel a little bumpy in<br />

bed the first few nights, but<br />

/ King-single size fits one<br />

you adjust to it quickly<br />

side of a queen bed<br />

/ Your partner will want to<br />

/ App is easy to use<br />

share it at certain times of<br />

the year!<br />

/ Machine washable<br />

Overall, I give this cooling technology 9/10<br />

to subscribe to the NDIS Review<br />

newsletter to keep updated with the<br />

latest outcomes from the review.<br />







8<br />





We held the inaugural Difference Maker Awards at the end of 2022 to celebrate the special people who live out<br />

<strong>MSWA</strong>’s purpose and vision in everything they do.<br />

Of the four categories, The Difference Maker Award was extra special as it was nominated by you – our Clients!<br />

We were overwhelmed with more than 100 responses sharing gratitude for our hard-working frontline teams,<br />

which resulted in nine deserving finalists:<br />

/ Dajana Tesevic, Counsellor & Health Education and Peer Support Coordinator<br />

/ Emma Chapman, Client Service Coordinator<br />

/ Oliver Guttinger, Accredited Exercise Physiologist<br />

/ Lisa Reardon, Social Welfare Officer<br />

/ (Elle) Niramon Kullasin, Community Support Worker<br />

/ Liesl Murdoch, Senior Counsellor<br />

/ Karen Brown, Counsellor<br />

Including our two worthy winners:<br />

/ Joanne Ingham, Community Support Worker (Metro Lower South Team)<br />

/ Suzanne Rice, Physiotherapist (Albany)<br />

With such tight competition, it was impossible to choose just one! We took some time to learn a little<br />

bit more about our award recipients and find out what this recognition means to them.<br />


It is Joanne’s mission in life to<br />

assist her Clients to maintain<br />

their independence for as long as<br />

possible through her Care Support<br />

role, in which she dedicates 100 per<br />

cent of herself to every Client in<br />

every session.<br />

Although a natural-born care<br />

giver, Care Support has not always<br />

been Joanne’s career, having<br />

pivoted from decades in business<br />

ownership and bookkeeping.<br />

The career transition was inspired<br />

by her experience caring for her<br />

mother post-operation, as well as a<br />

dear family friend.<br />

“[Mum] had her best friend from<br />

Spain living with her because she<br />

was terminal from cancer, so I<br />

was running upstairs downstairs<br />

between the two of them and I<br />

quite enjoyed it,” Joanne said.<br />

“There were a lot of laughs and of<br />

course a bit of sadness.”<br />

“To be able to help someone and<br />

make them happier, make them<br />

feel more valued and just to be of<br />

assistance is what I get out of it.”<br />

Inspired, Joanne completed<br />

her studies remotely during the<br />

COVID-19 lockdowns, selected<br />

<strong>MSWA</strong> from a number of job<br />

offers and hasn’t looked back.<br />

“I picked <strong>MSWA</strong> because it was<br />

more than just aged care,” she<br />

said, “my mum has since been<br />

diagnosed with dementia as well,<br />

so I picked <strong>MSWA</strong> because it was<br />

neurological.”<br />

“It’s a hard job, but it is a lovely<br />

job to think that you have<br />

helped someone.”<br />

“Sometimes I visit a Client and<br />

they may not have had a good<br />

couple of days, but the look on<br />

their face when they see you, it is<br />

just everything.”<br />

Joanne with her Client Sue Bryan, who nominated the care support<br />

worker for always going “above and beyond” in her duties to make a<br />

significantly positive impact on her life.<br />

Joanne said she was shocked<br />

and delighted to be named<br />

one of the Difference Makers<br />

Award for 2022.<br />

“I still have a big grin on my face. I<br />

have never won anything, so it was<br />

amazing,” she said.<br />

“I do work really hard, and I<br />

always give Clients my 100<br />

per cent attention – I think that is<br />

really important.”<br />

“[The award] made me feel<br />

thanked for that effort, I just feel<br />

appreciated.”<br />

The fact the award was Client<br />

nominated made it that much<br />

more special, “because they are<br />

the ones I am doing it for”<br />

according to Joanne.<br />

“But it is not just me, we are all<br />

a team, and we all get up every<br />

morning and do what we need to<br />

do to help these guys with their<br />

everyday lives,” she said.<br />

Joanne had a special message to<br />

share with her Clients, particularly<br />

the ones who nominated her.<br />

“Thank you all so much, you are all<br />

wonderful,” she said, “I love them<br />

all in their own little ways.”<br />

“It gives me pleasure to go to<br />

work to be with these people<br />

and I am sure I get just as<br />

much out of them as they do<br />

with me because I am forever<br />

laughing with them.”<br />

An excerpt of what our Clients had to say about Joanne:<br />

“Jo remembers my quirky behaviors due to my neuro conditions,<br />

which takes a lot of understanding and patience… Since day one of<br />

having Jo as my support worker, she has treated me as Jo would<br />

like her own mother treated under similar circumstances.”<br />

“She shows me the utmost respect and we laugh, and she makes a<br />

huge difference to my day. Jo is completely present in the moment<br />

and I value and look forward to our time together.”<br />

“Jo always goes the extra mile and doesn't treat it like a job as she<br />

is always 100 per cent present.”<br />

10<br />






A people-person through and<br />

through, Suzanne’s passion is to<br />

support her Clients to achieve their<br />

goals and celebrate these wins as if<br />

they are her own.<br />

Moving to Albany with her family<br />

in 2018, Suzanne has been our<br />

solo physiotherapist in the regional<br />

town and has worked hard to<br />

build the service across her<br />

five-year tenure.<br />

“We have had a lot of changes,<br />

we were in a little pocket<br />

studio office for a long time<br />

and with the opening of our new<br />

facility in 2022 it’s been all go,”<br />

Suzanne said.<br />

“The Clients are staying with us<br />

and finding improvements and<br />

living their best lives, which<br />

makes me think I am doing the<br />

right thing.”<br />

Suzanne sought out <strong>MSWA</strong> due<br />

to her interest in neurological<br />

physiotherapy, where each<br />

individual has their own<br />

unique complexity.<br />

“It’s like a puzzle, but it’s not one<br />

you are working on yourself,”<br />

she said.<br />

“It’s an interactive problem-solving<br />

challenge with the individual Client<br />

and then you get to celebrate their<br />

wins as well.”<br />

Working in the community<br />

for <strong>MSWA</strong> allows Suzanne to<br />

have a long journey with each<br />

Client, forging strong relationships<br />

unlike anything she had<br />

experienced previously.<br />

“When you see their smile and<br />

their confidence build up, you<br />

know you are doing a good job,”<br />

she said.<br />

“They come back and say, ‘I was<br />

able to wash the dishes standing<br />

up’ or ‘I managed those steps’ or ‘I<br />

managed to get down the beach<br />

to go for that swim’ – all those little<br />

wins are really rewarding.”<br />

“You are not only just a physio, you<br />

are their coach, their friend, their<br />

case manager – you have a whole<br />

heap of different hats on for them.”<br />

Suzanne strongly believes<br />

“information is power” and works<br />

to educate her Clients about their<br />

bodies to ensure positive outcomes.<br />

“Being able to teach people about<br />

their bodies so that they can make<br />

changes themselves, that is really<br />

powerful,” she said.<br />

“When they feel like they are losing<br />

function, to be able to change it<br />

around and see that they are actually<br />

gaining ability and they can manage it<br />

themselves and take control back, it’s<br />

a real privilege to be able to instil that.”<br />

“I care about making them feel<br />

good, helping them feel good<br />

and empowering themselves…<br />

it’s my passion.”<br />

On receiving the Difference Maker<br />

Award, Suzanne was touched to<br />

know Clients had made the effort<br />

to nominate her in the first place,<br />

let alone to have taken the title.<br />

“When I got the call telling me that<br />

I had won, it was a bit of a surprise,”<br />

she said.<br />

“It is always nice to have your<br />

efforts recognised and the reason I<br />

am here is for the Clients, so it was<br />

really surreal.”<br />

When asked what she would say to An excerpt of what our Clients had to say about Suzanne:<br />

the Clients who nominated her, her “Suzanne has never judged me when I give up on myself and she<br />

appreciation spilled over.<br />

gets me back to where I need to be with my exercise programs. She<br />

“They are all amazing – oh, I’m<br />

makes my life worth living again for which I am eternally grateful.”<br />

crying now,” she said.<br />

“I went to Suzanne for the first time two years ago. I was lost and<br />

confused… and I was scared. Suzanne helped me to make sense of<br />

“For them to have that level<br />

what my body was doing, she made me feel listened to and helped<br />

of trust in me and helping<br />

me to no longer be scared of the process.”<br />

them on their journey is a real “Suzanne is an incredibly dedicated, friendly and kind professional<br />

privilege and I thank them.”<br />

who truly helps and enriches the life of every Client she works with.”<br />


The Trailblazer Award<br />

A peer-nominated award<br />

for new team members<br />

who have shown leadership,<br />

initiative and huge potential,<br />

Leading with Purpose Award<br />

This award is for team<br />

members who live the <strong>MSWA</strong><br />

‘values and behaviours’ in<br />

everything they do.<br />

Change Maker Award<br />

This award is for team members<br />

who are a centre of influence<br />

within a team or <strong>MSWA</strong> facility.<br />

It is someone who goes above<br />

within their first 12 months.<br />

and beyond to ensure the people<br />

Finalists:<br />

we support are at the heart of<br />

Finalists:<br />

Vanishree Chetti,<br />

everything they do.<br />

Sophie Davies,<br />

Manager Clinical &<br />

Neurological Liaison Nurse<br />

Jamie Puls,<br />

COVID-19 Response<br />

Coordinator<br />

Award recipient:<br />

Tracey Hockey,<br />

Receptionist (Wilson)<br />

Residential Services<br />

Sophie Brandsma +<br />

Laura Radicevic,<br />

Senior Marketing Officers –<br />

Lotteries<br />

Award recipient:<br />

Georgina Hett,<br />

Senior Speech Pathologist<br />

Finalists:<br />

Carol Chong,<br />

Manager Allied Health Services<br />

Luke Everett,<br />

Accredited Exercise Physiologist<br />

Award recipient:<br />

Elizabeth Stewart,<br />

Member and Client Services<br />

Regional Manager<br />

12<br />






Pharmacy 777 is delivering on<br />

their pledge to make a difference<br />

by generously donating a $25,000<br />

pressure mapping system to<br />

prevent painful pressure injuries.<br />

One of our longest-standing<br />

community partners, Pharmacy<br />

777’s philanthropic donations have<br />

topped $250,000 since 2011, an<br />

incredible commitment which has<br />

made a significant positive impact<br />

for the people we exist to support.<br />

The pressure mapping system<br />

is brand new technology for<br />

<strong>MSWA</strong>, which takes the<br />

guesswork out of pressure injury<br />

prevention according to <strong>MSWA</strong><br />

Senior Occupational Therapist<br />

Anna Jessop.<br />

Portable and versatile, the<br />

equipment can be used on any<br />

seating surface – such as an electric<br />

wheelchair, favourite recliner or<br />

even a mattress – to determine<br />

areas of high pressure.<br />

“We want all the information we<br />

can get to show us those areas<br />

and put interventions (such as<br />

modified cushions) in place so<br />

Clients do not develop pressure<br />

injuries,” Anna said.<br />

“Even the most highly trained OTs<br />

can’t pick up those really niche highrisk<br />

areas without this technology.”<br />

“It is such a lifesaver to be able to<br />

check what is going on - it takes all<br />

the guesswork out of it.”<br />

“It is the kind of thing you really<br />

want to avoid because pressure<br />

injuries can be hard to heal and can<br />

impair skin integrity.”<br />

Anna said pressure sensors of this<br />

grade were once limited to hospitals,<br />

so having a portable system available<br />

in Perth and the South West region<br />

meant greater accessibility for Clients.<br />

“We can take it out to Clients, we<br />

can bring it to Outreach and it is<br />

that much more accessible than it<br />

used to be,” Anna said.<br />

“It is going to make a massive<br />

difference to our Clients in<br />

preventing an injury and really<br />

improving quality of life.<br />

“On behalf of the OT department<br />

and our Clients, I want to say a<br />

huge ‘thank you’ to Pharmacy 777.”<br />

Kristian Ray, Pharmacy<br />

Development Manager, said<br />

Pharmacy 777 was pleased to<br />

provide access to this new system<br />

which enabled “improved patient<br />

comfort, care and support from the<br />

<strong>MSWA</strong> Occupational Therapy team”.<br />

Senior Occupational Therapist Anna Jessop assesses<br />

Client Kim Flanagan with the new system.<br />

“The Pharmacy 777 Group's vision<br />

is to enhance the quality of life<br />

within our community – supporting<br />

community organisations and<br />

initiatives is a core part of our<br />

commitment to make a difference<br />

– including for people living<br />

with MS and other neurological<br />

conditions, together with their<br />

support team,” Kristian said.<br />

“Allocating our donation towards the<br />

pressure mapping system, we know<br />

first-hand how our contribution is<br />

making this difference.”<br />

Kristian said Pharmacy 777 had<br />

supported <strong>MSWA</strong> across a number<br />

of initiatives during the twelve-year<br />

partnership.<br />

“From supporting wellness<br />

retreats, facilities and research, to<br />

in recent years - purchasing key<br />

patient equipment such as beds at<br />

Margaret Doody Respite House, the<br />

NeuroNode communication device<br />

and now the pressure mapping<br />

system,” he said.<br />

“For any organisation looking<br />

to see direct impact of<br />

donations to the community,<br />

we encourage them to get in<br />

touch with <strong>MSWA</strong> to find out<br />

about projects and equipment<br />

that can be funded to provide<br />

much needed support.”<br />

A PERFECT DAY FOR <strong>MSWA</strong><br />

<strong>MSWA</strong> gratefully accepted a<br />

David hails from the Shetland Isles<br />

generous $22,500 donation from in the north of Scotland, which has<br />

INPEX-led Ichthys LNG Joint<br />

one of the highest rates of MS in<br />

Venture, after two employees<br />

the world per head of population.<br />

nominated our cause – one<br />

Remarkably, David has two<br />

they hold close to their hearts<br />

brothers and one sister who live<br />

– supported under a recent<br />

with MS.<br />

health, safety and environmental<br />

“My two brothers have not been<br />

performance initiative.<br />

affected too greatly physically,<br />

When the opportunity arose to<br />

with only minor weakness in their<br />

nominate a beneficiary for INPEX’s<br />

limbs from time to time,” David<br />

‘Perfect Day’ campaign, Shutdown<br />

explained.<br />

Engineer Peter Rautenbach and<br />

“However, my sister has the<br />

Senior Inspector Operations David<br />

more aggressive form of MS<br />

Graham cast <strong>MSWA</strong>’s name into<br />

and her health and mobility has<br />

the ring.<br />

deteriorated quite rapidly over the<br />

It was Christmas Day 2020 when<br />

last few years.”<br />

Peter’s wife Carissa ended up in<br />

Naturally, both David and Peter<br />

the emergency department, after<br />

jumped on the opportunity to<br />

losing sight in her right eye and<br />

make a difference.<br />

experiencing sensations down her<br />

right side. Several admissions and “I was extremely proud to have<br />

a week later, Carissa was diagnosed <strong>MSWA</strong> nominated, as all through<br />

with MS.<br />

my life back home I have witnessed<br />

several people whom I know, not<br />

Peter said the diagnosis took<br />

just my family, who have suffered<br />

time and many questions to make<br />

this condition and I am very<br />

sense of.<br />

passionate about supporting the<br />

“There was an enormous amount<br />

cause,” David said.<br />

of doubt as to what her treatment<br />

The ‘Perfect Day’ campaign took<br />

options were, what it meant for our<br />

place during a 45-day maintenance<br />

small family and what our future<br />

turnaround activity across Ichthys<br />

looked like.”<br />

LNG’s two offshore floating facilities,<br />

“It took a few months for the<br />

located 220 kilometres offshore<br />

majority of her symptoms to<br />

from Western Australia, and the<br />

pass and then she got onto a<br />

onshore processing plant in Darwin.<br />

treatment plan.”<br />

To ensure all employees returned<br />

“Carissa is someone who I look up<br />

home safely each day, the Ichthys<br />

to and I am incredibly proud of as<br />

Joint Venture pledged to donate<br />

she doesn’t let MS dictate how she<br />

five hundred dollars to six charities<br />

lives her life even though she lives<br />

(two per facility) for every ‘perfect<br />

with it day to day.”<br />

day’ the workforce achieved.<br />

Peter Rautenbach, wife Carissa<br />

and daughter.<br />

<strong>MSWA</strong> representatives joined INPEX<br />

at an event to acknowledge the<br />

Perfect Day fundraiser donations<br />

Astonishingly, the respective<br />

offshore facilities Peter and David<br />

work on each achieved nothing but<br />

perfect days over the campaign,<br />

and ultimately $22,500 was raised<br />

for <strong>MSWA</strong>.<br />

“The work <strong>MSWA</strong> and MS<br />

Australia continue to do<br />

every day providing support<br />

and conducting valuable<br />

research into the disease and<br />

other neurological conditions<br />

provided us with hope about<br />

the future,” Peter said.<br />

“Our hope is that <strong>MSWA</strong> and MS<br />

Australia will continue to find<br />

improved treatment options for<br />

those with the condition and even<br />

one day find a cure.”<br />

14<br />








For the second instalment of this series, we take a deep dive into the<br />

critical daily functions of the body and the vital role water plays in each.<br />

Simply put, water helps to keep our body hydrated and in good working order.<br />

But why is hydration so important?<br />

It keeps your body temperature regulated<br />

If you are exercising or simply in a hot climate, your body is producing sweat<br />

to stay cool.<br />

If you don’t replace the water you are losing, your body temperature will<br />

quickly rise back up and you will lose important electrolytes.<br />

Water prevents constipation<br />

Many people assume that to prevent constipation you must consume foods<br />

rich in fibre regularly. While this can certainly help prevent constipation, it is<br />

not the only way. You must also stay hydrated as this will ensure your bowel<br />

movements contain sufficient water to keep things moving.<br />

If you do not drink enough water, you will likely find that you become or<br />

remain constipated.<br />

Water can help you make up for the fluid loss from certain medications<br />

Medicines that can increase the risk of dehydration are diuretics, laxatives,<br />

antacids and blood pressure tablets.<br />

80%<br />

Making hormones and Neurotransmitter<br />

Water helps you to produce saliva<br />

Saliva might be a rather unpleasant subject, but it is necessary to<br />

help you to swallow and break down your food. Its main component<br />

is water, along with mucus, enzymes and electrolytes.<br />

Protects organs and tissue<br />

Food to move easily through the digestive tract<br />

Our digestive tract, in simple terms, is a 9m long tube. Water acts<br />

like a lubricate to ease food through. Without enough water, food<br />

moves slower and issues such as bloating and constipation can arise.<br />

Drinking a glass of water with your meals and snacks can be a great<br />

trick if you struggle to drink enough fluid to support digestion.<br />

It helps you get rid of waste products<br />

You lose a lot of nasties through your perspiration, urination and<br />

defecation, and therefore need an adequate amount of water in your<br />

system to sweat, urinate and defecate! If you become dehydrated, you<br />

will have problems getting rid of waste products from your body.<br />

Transporting oxygen to all parts of the body<br />

Water protects your tissues and joints<br />

To help maintain a full range of motion, you need to keep your joints, muscles<br />

and spinal cord well lubricated. Water helps cushion your joints and helps you<br />

stay in good physical shape.<br />

Supporting cell growth and reproduction<br />

Between 50% and 80% of the<br />

human body is made of water<br />

In part three of this series, we will focus on water’s role in:<br />

/ Helping to regulate your appetite<br />

/ Improving blood oxygen levels<br />

/ Boosting your metabolism and your energy<br />

/ Keeping your brain in good working order<br />

/ Improving mood<br />

16<br />





Are you finding it hard to<br />

concentrate, feeling fatigued,<br />

foggy, bloated, or moody?<br />

Did you know that these can also be<br />

signs you are not drinking enough<br />

fluids and not just symptoms of<br />

your neurological condition?<br />

As Rochelle discussed in her article<br />

What Role Does Water Play in the<br />

Body? our body uses water for so<br />

many functions. From transporting<br />

oxygen and energy around<br />

our bodies, to regulating body<br />

temperature, aiding digestion and<br />

supporting muscle contractions –<br />

the list can go on and on.<br />

Studies have indicated that even<br />

just one to two per cent body water<br />

loss can impair how well your brain<br />

is functioning. Making sure you<br />

are well hydrated can be a game<br />

changer for managing MS and<br />

symptoms of other neurological<br />

conditions.<br />

How do you know if you are<br />

well hydrated?<br />

The common recommendation of<br />

eight cups or two litres per day is<br />

not necessarily true when it comes<br />

to knowing if you are maintaining<br />

your hydration status or not, but<br />

this guide can be a good place to<br />

start. The amount of fluid you need<br />

to drink each day is variable and<br />

depends on many factors, some<br />

including body size, heat, activity<br />

levels, amount of salty food eaten,<br />

so it can be likely that on particular<br />

days or with certain people this<br />

amount may not be enough.<br />

The simplest, most effective way to<br />

assess your hydration status is the<br />

colour of your urine*, with a goal:<br />

for your urine to be coloured<br />

straw-yellow or lighter across the<br />

whole day. Drinking regularly<br />

across the day will be the best way<br />

to achieve this.<br />

But won’t I be heading to the<br />

toilet more?<br />

This is likely, especially if you are<br />

experiencing MS or neurological<br />

related continence issues. However,<br />

don’t let this deter you. Maintaining<br />

a better hydration status can<br />

support you to avoid complications<br />

such as urinary tract infections,<br />

constipation and kidney stones.<br />

If incontinence is an issue for you,<br />

front loading your fluids at the<br />

start of the day and avoiding fluids<br />

1-2 hours before going to bed is<br />

a useful strategy, so is keeping a<br />

journal of times you drink and go<br />

to the toilet, along with volumes<br />

drunk and the colour of your<br />

urine. This can provide insight into<br />

spacing water evenly and regularly<br />

over the rest of the day. If you<br />

have not done so already, be sure<br />

to have a chat to your GP and/or<br />

neurologist for more support.<br />

Increasing fluids is challenging, so here are some tips we often share with our Clients:<br />

Start your day with a glass of water.<br />

You don’t just have to just drink water!<br />

1 4<br />

While you are sleeping your body doesn’t get<br />

All sorts of fluids count toward getting enough<br />

2<br />

3<br />

any fluids therefore drinking a glass at the start<br />

of the day can help to flush your system of toxins,<br />

which can result in benefits such as increased<br />

energy and immunity, increasing metabolism<br />

and preventing headaches. It will also help you to<br />

develop and maintain the habit of increasing your<br />

daily water intake.<br />

Carry a drink a bottle around with you so you<br />

always have access to water.<br />

If you are at home most of the time, strategically<br />

place bottles/jugs/glasses of water in areas of your<br />

house you frequently visit. When you see the<br />

bottle, take a drink.<br />

Doing the above, but find you are still forgetting<br />

to drink over the day?<br />

Set reminders on your phone or computer that<br />

remind you to drink. Another option is to link<br />

drinking to an activity that you do frequently<br />

over the day. For example, when you eat make it<br />

a habit to also have a drink of water, or whenever<br />

you use the bathroom use that opportunity to<br />

also get a glass of water.<br />


Start with:<br />

/ 1L water<br />

/ 1 cup of ice (If you like your drinks cold)<br />

Then add one of the following options,<br />

or make up your own combo!<br />

Strawberry, basil and lemon:<br />

/ 1/2 cup strawberries stemmed<br />

and sliced, fresh or frozen<br />

/ 5 large basil leaves torn<br />

/ 1 lemon thinly sliced<br />

Honeydew, cucumber, and mint:<br />

/ 1/2 cup honeydew cubes<br />

/ 1 cucumber thinly sliced<br />

/ 10 fresh mint leaves torn<br />

Blueberry, lemon, and rosemary:<br />

/ 1 cup blueberries, fresh or frozen<br />

/ 1 lemon thinly sliced<br />

/ 4 sprigs fresh rosemary<br />

water. Here are my favourite healthy alternatives<br />

to plain water:<br />

- Cold tea infusions<br />

- Flavour your water - see our yummy flavour<br />

combinations below!<br />

- Adding water rich foods to your meals and<br />

snacks such as lettuce, tomatoes, capsicum,<br />

asparagus, strawberries and watermelon.<br />

- Change the temperature of the water to what<br />

you like: ice blocks, warm water, tea!<br />

- Still not sold? Sugar free or diet cordials and<br />

soft drink also count!<br />

If you are having difficulty hydrating your body,<br />

you can always talk to one of our dietitian’s at <strong>MSWA</strong><br />

for assistance.<br />


<strong>MSWA</strong> DIETITIAN<br />

Watermelon, kiwi, and lime:<br />

/ 1 cup watermelon cubes<br />

/ 1 kiwi fruit diced or cut into circles<br />

/ 1 lime sliced into circles<br />

Storage: Leave the fruit and herbs in the water<br />

for up to 24 hours then remove from the water.<br />

Store the infused water in the refrigerator for<br />

up to three days (four days total).<br />

Recipes and photo from:<br />

www.culinaryhill.com/8-infused-water-recipes/<br />

*Please note some medications and certain foods can change the colour of urine<br />

which makes this method difficult. If you are concerned, ask to speak to a dietitian.<br />

18<br />




The mind-body connection is<br />

Research has shown that emotional repression has been linked with<br />

a familiar concept to all of us.<br />

decreased immune function (Patel & Patel 2019). Unexpressed emotion<br />

When we are anxious, we can<br />

can leave you feeling exhausted and result in a low mood.<br />

‘feel it in our gut’, when angry we<br />

may become ‘hot-headed’, when<br />

stressed we may ‘carry the weight<br />

of the world on our shoulders’.<br />

Therefore, the work of releasing emotions is an important one that<br />

contributes to a strong immune system and improves our energy levels.<br />

Physical exercise can help with managing and processing our emotions,<br />

but what if this is not possible because of disability? Or is more difficult in<br />



“Any change, even a change for<br />

the better, is always accompanied<br />

by drawbacks and discomforts”<br />

Arnold Bennett<br />

We are well into <strong>2023</strong> now and,<br />

like most people, you might have<br />

been thinking about resolutions<br />

for change. Maybe you have been<br />

stuck in the same routine for<br />

some time, or maybe you want<br />

to improve your life in some way.<br />

More often than not, it can be<br />

easier to continue with the status<br />

quo and do nothing. Perhaps just<br />

the thought of change is too scary<br />

and causes an uneasy feeling. How<br />

can you get past the barriers and<br />

discomfort to take steps towards<br />

positive change?<br />

* In her book Feel the Fear<br />

and Do It Anyway, Susan<br />

Jeffers talks about how<br />

to overcome fear to move<br />

forward in your life.<br />

Think back to the changes in your<br />

life–changing careers, ending a<br />

relationship, returning to school,<br />

health issues or moving home.<br />

After such a change it can be<br />

difficult for a while until you arrive<br />

at a new normal. The next time<br />

you face a change, big or small, the<br />

uneasiness may return. There may<br />

be resistance, denial, distractions,<br />

procrastination or even fear.*<br />

The problem with doing nothing<br />

is that if nothing changes, nothing<br />

changes. Yes, you may be more<br />

comfortable being in the same<br />

story, but is this where you want<br />

to be? Most likely, if you feel stuck<br />

or unhappy, it is a sign that you do<br />

need a change.<br />

We can’t always avoid the<br />

discomfort of change, but we can<br />

learn how to navigate it. While each<br />

change journey is different, there<br />

are general steps that can help us<br />

on the way:<br />

/ Know yourself – be honest<br />

about what you need and want.<br />

/ Evaluate your goals – start<br />

with goals that are easy<br />

and attainable.<br />

/ Find support – look for people<br />

who can help; family, friends or<br />

professional.<br />

/ Take action – real change<br />

comes from doing, not just<br />

planning.<br />

/ Allow and assess – see what<br />

is happening, is this working<br />

for you?<br />

/ Revise – if it’s not working, make<br />

adjustments then start again.<br />

Any change that we attempt<br />

to make in life is going to be<br />

a process. We often have no<br />

choice about the changes we<br />

experience, but conscious<br />

change can be an opportunity<br />

to make us feel good about<br />

ourselves, as well as being<br />

an important part of our<br />

growth journey.<br />

If you need support to make strides<br />

towards positive change, get in<br />

touch with our Counselling Team<br />

on 9365 4811.<br />


<strong>MSWA</strong> COUNSELLOR<br />


<strong>MSWA</strong> COUNSELLOR<br />


Emotions have been<br />

described as like “animals<br />

hiding in the woods” (Sunim,<br />

2002). We may have grown up<br />

in a family where emotions<br />

were not validated. Many<br />

of us learnt to ‘soldier on’,<br />

so our natural tendency is<br />

to push feelings down or<br />

distract ourselves from them.<br />

Many addictive behaviours<br />

including workaholism are<br />

ways of distancing ourselves<br />

from difficult emotions.<br />


Writing and Art/Music therapy<br />

are also helpful in recognising<br />

and expressing emotions in a<br />

more organic way.<br />


Communicating how we feel<br />

and what we need to those that<br />

matter to us – this can be an<br />

important step in the process of<br />

releasing difficult feelings.<br />

the summer months due to heat intolerance?<br />

Physiotherapy, massage and bodywork such as yoga are highly recommended,<br />

however we have rounded up some other ways of releasing emotion that<br />

can be helpful. These techniques are supported by brain science research.<br />

NAMING & TAMING (Siegel, 2012)<br />

Once we recognise the emotion it is important<br />

to name it. A simple phrase, said softly, can help<br />

release emotions – ‘I feel angry’, ‘I am hurt’.<br />

“When you experience significant internal tension<br />

and anxiety, you can reduce stress by up to 50 per cent<br />

by simply noticing and naming your state” (Ablett, 2019).<br />


Self-Compassion is another mindfulness strategy<br />

that can help us befriend and embrace a difficult<br />

emotion, somewhat like a mother would nurture a<br />

baby (Sunim, 2018; Thich Nhat Hanh, 2002). Even if<br />

a mother doesn’t know why the child is crying, her<br />

kind attention already makes it feel better. With kindness,<br />

we can practise a similar nurturing attention towards ourselves.<br />


Mindfulness techniques increase our ability to stay present and<br />

feel anchored (particularly using our breath and senses) so we<br />

can recognise and stay with a difficult feeling. Emotions can<br />

be described as having the quality of a ‘wave’, and it has been<br />

suggested that when we are able to stay in the ‘wave of an emotion’<br />

with presence, it will last for 90 seconds (Taylor, 2008). However, if we<br />

keep pushing it away, it continues to call at our attention in different<br />

ways – unfortunately sometimes through physical symptoms.<br />

References:<br />

Taylor, Dr. Jill B (2008), My Stroke of Insight: A Brain Scientist’s Personal Journey.<br />

Ablett, Mitch (2019), Tame Reactive Emotions by Naming Them.<br />

Siegel, Daniel J (2012), Mindsight : Change your brain and your life.<br />

Sunim, Haemin (2018), The Things You Can See Only When You Slow Down.<br />

Thich Nhat Hanh (2002), Anger: Wisdom for Cooling the Flames.<br />

20<br />







An important injury prevention<br />

“People who also spend a lot of<br />

<strong>MSWA</strong> Wilson was a hive of<br />

service has landed at <strong>MSWA</strong><br />

time in wheelchairs or in bed are<br />

excitement in January, as Clients<br />

which will look to relieve and<br />

susceptible to pressure injuries, so<br />

and staff came together to witness<br />

manage swelling experienced by<br />

if the health of your skin isn’t great<br />

the opening of the expanded<br />

<strong>MSWA</strong> Clients.<br />

to begin with, you are more likely to<br />

gym space, complete with new<br />

Offered through the Physiotherapy<br />

Team, the new lymphoedema<br />

service has been in development<br />

for several months to refine an<br />

effective process and is now ready<br />

to accept interested Clients.<br />

develop pressure injuries and find<br />

it more difficult to recover from<br />

them, because the circulation isn’t<br />

as good as it could be.”<br />

Left untreated, swelling could<br />

result in lasting damage.<br />

equipment to suit the growing<br />

needs of our Client base.<br />

This $27,000 upgrade was<br />

made possible by generous<br />

supporters through <strong>MSWA</strong>’s<br />

Annual Dinner Auction and<br />

Senior Physiotherapist Randall<br />

Rooney explained that<br />

‘Lymphoedema’ is an umbrella<br />

term used for a range of swelling<br />

disorders and is a common<br />

problem experienced by people<br />

with reduced mobility usually in<br />

the lower limbs and less frequently<br />

in the arms or trunk of the body.<br />

Randall explained that early<br />

intervention is key to ensuring<br />

Clients do not develop painful<br />

injuries as a result of the swelling.<br />

“Swelling in tissues produces a<br />

barrier between the circulation<br />

and the cells, making the distance<br />

greater for the exchange of oxygen,<br />

nutrients and waste,” he said.<br />

“When we have swelling, the<br />

health of the cells is not as good<br />

as what it could be, which can<br />

eventually lead to changes in the<br />

skin and toenails.”<br />

“Ongoing swelling causes the<br />

cells to release a low-grade<br />

inflammatory response, which<br />

results in tissue scarring,” he said.<br />

“If we can manage it early, then<br />

we don’t get to that stage, as this<br />

becomes much harder to manage.”<br />

When engaging with the<br />

lymphoedema service, the<br />

physiotherapist will complete an<br />

initial assessment and medical<br />

background check to ascertain<br />

why the swelling is occurring.<br />

Measurements are then taken<br />

first thing in the morning when<br />

swelling is at it’s minimum to<br />

prescribe custom compression<br />

garments which can be worn<br />

throughout the day to stop the<br />

development of swelling.<br />

Considerations are also made<br />

around the Client’s ability to<br />

apply and remove the garment<br />

and a donning aid may also be<br />

prescribed to assist.<br />

The physiotherapist will also<br />

provide education around the<br />

management of the swelling,<br />

including the importance of<br />

hydration and how to elevate<br />

and ice.<br />

For more complex cases, there are<br />

other options such as bandaging<br />

to decongest the limb over a series<br />

of visits, before moving to custom<br />

garments.<br />

Other treatments include manual<br />

lymph drainage, a specific<br />

technique developed in Germany<br />

by Dr. Emil Vodder.<br />

“It is about stimulating the<br />

lymphatic system to drain the<br />

tissues more efficiently,”<br />

Randall said.<br />

“It is a very interesting concept.<br />

If you think of the lymphatic<br />

system as a vacuum cleaner<br />

which is constantly sucking<br />

back to the heart, it is about<br />

stimulating the system to help<br />

drain the fluid.”<br />

If you have noticed the<br />

development of swelling<br />

during the heat of<br />

summer or have ongoing<br />

swelling concerns contact<br />

lymph@mswa.org.au to find<br />

out how the lymphoedema<br />

service could help you.<br />

will allow our Physiotherapy<br />

Team to provide better<br />

support to current and newly<br />

diagnosed Clients.<br />

It also signalled the opening<br />

of a dedicated assessment<br />

space, a critical resource having<br />

added three new physiotherapy<br />

services over the past two years<br />

(Lymphodema, Respiratory and<br />

Continence).<br />

<strong>MSWA</strong> Physiotherapy manager<br />

James Beckett said the upgrade<br />

would provide improved options,<br />

space and privacy for Clients<br />

receiving services.<br />

“Previously we had not been able<br />

to offer Clients who are newly<br />

diagnosed, or in the very early<br />

stages of their neuro condition,<br />

with the level of support we would<br />

like,” James said.<br />

“These Clients need different<br />

equipment, which means more<br />

space and slightly different services.”<br />

“This is now possible thanks to the<br />

generosity of our supporters. We<br />

spent many a month poring over<br />

our equipment choices to make<br />

sure we spent all of that money as<br />

wisely as possible.”<br />

Manager Allied Health<br />

Services Carol Chong said this<br />

upgrade provided Clients with<br />

renewed options and access to<br />

improved technology.<br />

“It means we can better tailor our<br />

services to meet our Clients’ needs<br />

because it is not a one-size fits all<br />

service,” she said.<br />

“We need to be continually looking<br />

at improvement and what is the<br />

Thank you to our generous supporters<br />

for positively impacting the lives of<br />

our Clients through your donation.<br />

“Without our supporters it would<br />

have taken a lot longer to get<br />

where we are today.”<br />

Carol said this work was just<br />

the beginning, and the team<br />

would continue to look at<br />

options to broaden our offerings<br />

at each facility.<br />

“It ultimately provides a wider range<br />

of services for all of our Clients.”<br />

most suitable for our Clients as<br />

things advance.”<br />

22<br />




First prize awards:<br />

/ Jasmin Franklin<br />

Drawing - Pencil/Conte/<br />

Charcoal/Ink<br />

/ Jasmin Franklin<br />

Drawing - Mixed Media<br />

/ Susan Finlay<br />

Scrapbooking<br />

Bernie Abernethy<br />

Lyndee Aspey<br />

/ Shane King<br />

Drawing - Oil/Acrylic<br />

/ Jackie Edwards<br />

Textile - tapestry<br />



Yvette D’cruz<br />

Shane King<br />

/ Jackie Edwards<br />

Drawing - Pastel<br />

/ Lyndee Aspey<br />

Dry flower arrangement<br />

/ Bernie Abernethy<br />

Card making<br />

Christmas card<br />

/ Bernie Abernethy<br />

Paper tole picture<br />

/ Yvette D’cruz<br />

Decoupage<br />

<strong>MSWA</strong>’s Client artists had their<br />

Turning ‘trash’ into treasure,<br />

Second prize<br />

most successful year to date<br />

at the 2022 Canning Show, with<br />

19 winning works of art and both<br />

Susan Finlay and Jasmin Franklin<br />

named as show champions.<br />

This was no surprise with the level of<br />

talent on display, as 16 Client exhibitors<br />

submitted 47 pieces for judging.<br />

Jasmin earned the title of<br />

Champion People with Disability<br />

Painting and Drawing for her<br />

stunning anime rock painting and<br />

Susan was named Champion Scrap<br />

Booking for a second year running.<br />

Susan’s style of ‘junk journaling’ is<br />

quite unique, having finessed her<br />

abilities through hours of practice<br />

and a willingness to constantly<br />

extend herself.<br />

“I do junk journaling continuously,<br />

every day and every night,” she said.<br />

“It is a fairly new craft in the paper<br />

world – a lot of people don’t know<br />

about it – but it is just another<br />

form of journaling and you can use<br />

anything up, I love it.”<br />

Susan recycles everything in her<br />

journals, from old envelopes to<br />

porridge packets.<br />

“I use scraps of things and<br />

whatever I can use I put in there,<br />

each journal has tucks and pockets<br />

and everything hidden, flips and<br />

flaps all through it,” she said.<br />

“I save papers as well and do<br />

stamping, stenciling, put lace and<br />

material on it, do different forms of<br />

it. Whenever I can learn something<br />

new I add it in there.”<br />

Susan’s champion piece was a<br />

vintage captain logbook, which she<br />

made for a family member they call<br />

“Captain Dan”.<br />

It has been almost five years since<br />

Susan began attending <strong>MSWA</strong><br />

Wilson each Tuesday for art class,<br />

in which she progressed from<br />

card-making to scrapbooking and<br />

now her junk journals.<br />

“Our craft lady – we call her ‘Ma’<br />

but it is Lesley of course – she is a<br />

volunteer and would do anything<br />

to help you, she is just wonderful,”<br />

Susan said.<br />

“We would be lost without Zu<br />

because she does everything to<br />

help us, she is the one who puts it<br />

all into the Canning Show.”<br />

For beginners wanting to learn<br />

more about art and craft, Susan<br />

said YouTube was a great resource<br />

for techniques and new ideas.<br />

“You can learn everything on<br />

YouTube, you just need to have a<br />

go,” she said.<br />

“Or come and join us anyway, come<br />

have a conversation, come have a<br />

cuppa and we are always having<br />

fun, always.”<br />

All of our exhibiting artists<br />

were recognised for their<br />

talents with a presentation<br />

of certificates by <strong>MSWA</strong> CEO<br />

Melanie Kiely late last year and<br />

we again want to extend a<br />

huge congratulations to all.<br />

We can’t wait to see what you<br />

produce in <strong>2023</strong>!<br />

Barry Belt<br />

Jackie Edwards<br />

Janene Grant<br />

Lesley Pitt<br />

/ Jackie Edwards<br />

Textile – Wall hanging<br />

/ Jackie Edwards<br />

Toys & Dolls - Rag doll<br />

/ Jackie Edwards<br />

Drawing - Water colour<br />

/ Bernie Abernethy<br />

Card making<br />

Third prize<br />

/ Jackie Edwards<br />

Drawing - Pencil/Conte/<br />

Charcoal/Ink<br />

/ Jackie Edwards<br />

Handicraft - Garden ornament<br />

/ Yvette D’cruz<br />

Mosaic article<br />

/ Essie Clinton<br />

5D Diamond dot art<br />

/ Shane King<br />

Mixed media open<br />


/ Tony Villamagna<br />

/ Barry Belt<br />

/ Lesley Pitt<br />

/ Daniel Leary<br />

/ Janene Grant<br />

/ Chris Stephens<br />

/ Nauman Hamid<br />

/ Sheila Hayfield<br />

Susan's winning art<br />

Jasmin's winning art<br />

24<br />





Santa brings Christmas spirit to Outreach<br />

Festive activities filled the final days of Outreach for<br />

2022, with the month of December packed full of art and<br />

entertainment across our centres.<br />

Clients were busy making cards, gifts, gingerbread people<br />


cookies and wonderful decorations.<br />

The highlights were the visits from Mr and Mrs Claus, as<br />

It has been a busy few months at Outreach, with<br />

plenty of holiday season celebrations leading into the<br />

Outreach opening times<br />

they delivered Christmas gifts and spread joy at Wilson<br />

and Beechboro Outreach.<br />

Christmas break, then kicking off the new year strongly<br />

with some entertaining visitors!<br />

If you live in Perth, Rockingham, Bunbury or Albany<br />

and are interested in a trial to experience the Outreach<br />

community, get in touch with Senior Community<br />

Outreach Coordinator Melissa Coombs via<br />

outreach@mswa.org.au<br />

Wilson Mon, Tues, Wed + Thurs 8.30am -2pm<br />

Beechboro Mon + Fri 8.30am – 1pm<br />

Rockingham Tues, Wed + Fri 8.30am – 1pm<br />

Bunbury Wednesday 9am – 12pm<br />

Albany Friday 9am – 12pm<br />


We hope they will visit again next year!<br />

Pigeon racing!<br />

It appears <strong>MSWA</strong> Community Support Worker,<br />

Garry ‘The Pigeon Man’ Wilson, has a hidden talent!<br />

When he isn’t spending time with our Clients at<br />

Wilson Outreach, Garry raises, trains and races<br />

pigeons, donating any funds from this venture to<br />

veteran support charity Legacy WA.<br />

In January, Garry bought some of his baby<br />

pigeons to visit our Clients in Beechboro –<br />

just look at those smiles.<br />

Thank you very much for your kind<br />

donation<br />

Albany was also lucky enough to receive<br />

some thoughtful donations from the<br />

community to help everyone feel more at<br />

home when attending the Services Centre.<br />

This included a donated bench seat from<br />

the Albany Men’s Shed and the private<br />

Albany sprouts green thumbs<br />

donation of a piano.<br />

<strong>MSWA</strong> Client, David, was delighted when team<br />

members from Bunnings arrived at the <strong>MSWA</strong><br />

Albany Accommodation and Services Centre to<br />

set up raised gardens for the patio area outside<br />

his unit in late 2022.<br />

They happily assisted him with planting flowers,<br />

herbs, fruit and vegetables, and gave him tips on<br />

how to fertilise and care for them.<br />

David organised the gardening day with the<br />

team at Bunnings Albany and said he felt it was<br />

the first time he was able to give back to the<br />

Fantastic Fringe show<br />

Beechboro Outreach were treated<br />

to an exclusive Fringe show in<br />

January, when Perth-based theatre<br />

company Company O performed<br />

Art (a play by Yasmina Reza).<br />

Picture perfect painting day<br />

Rockingham Outreach got their creative<br />

juices flowing in January, when Outreach<br />

Coordinator Peta arranged a canvas<br />

painting class.<br />

The theme for the day was ‘Australiana’.<br />

people at <strong>MSWA</strong> that supported him.<br />

He added that he's been given a whole sense<br />

of purpose as he wants to grow herbs and<br />

vegetables for use in the <strong>MSWA</strong> Albany kitchen<br />

so that all the Clients can enjoy them too.<br />

Great work David!<br />

Festive fun<br />

The Facilities Team worked hard to bring<br />

the seasonal spirit to our Accommodation<br />

Clients with larger than life Christmas<br />

displays. Their hard-work paid off, with<br />

both Clients and Staff reporting their joy!<br />

26<br />





<strong>MSWA</strong> is lucky to have amazing<br />

volunteers supporting us in a<br />

variety of roles across the<br />

organisation.<br />

Our volunteers make fundraising<br />

events such as the <strong>MSWA</strong> Ocean<br />

Ride and Step Up for <strong>MSWA</strong><br />

possible, while our niche group of<br />

peer support volunteers facilitate<br />

coffee groups to provide critical<br />

connections and support for our<br />

Clients. We also have volunteers<br />

based in our offices, Outreach<br />

Centres, facilities and Clients’<br />

homes, who commit anywhere from<br />

half an hour to 12 hours a week. We<br />

can’t thank our volunteers enough<br />

for their time, commitment and<br />

dedication to making a difference.<br />

2022 was anything but an easy year<br />

to navigate for most of us. The WA<br />

border opened after a two-year<br />

closure and the community had to<br />

adhere to changing restrictions and<br />

measures to minimise the spread of<br />

COVID-19 and its numerous strains.<br />

Plans and processes had to be<br />

reviewed to best address growing<br />

concerns and individuals had to<br />

keep pace with these changes as<br />

days went by.<br />

But despite the ever-changing<br />

COVID-19 landscape, our<br />

volunteers pressed on and<br />

contributed more than 3,300<br />

hours in 2022. On a positive<br />

note, we were glad to welcome<br />

10 new volunteers last year,<br />

with a third of our new recruits<br />

based in the Albany region.<br />

We start <strong>2023</strong> with seven positions<br />

to fill across Beechboro, Wilson,<br />

Hamilton Hill and City Beach and<br />

welcome all expressions of interest<br />

by those wanting to make a positive<br />

impact in their community. Our<br />

aim is always to place potential<br />

volunteers in positions suited to<br />

their skills, goals and interests, in<br />

locations most convenient to them.<br />

To boost the growth of the <strong>MSWA</strong><br />

Volunteers Team, we have listened<br />

to feedback and will be reviewing<br />

and refining our program to<br />

encourage greater community<br />

participation. Engaging volunteers<br />

in our organisation not only provides<br />

valuable support for staff, but it<br />

also builds a greater awareness,<br />

understanding and acceptance of<br />

people with neurological conditions<br />

in the larger community.<br />

WE WANT YOU!<br />

Current Volunteer Positions:<br />

Kitchen<br />

Assistant<br />

(2 positions)<br />

Wilson,<br />

Beechboro<br />


We are on the search for<br />

volunteers to help out with our<br />

flagship Step Up for <strong>MSWA</strong><br />

event on Sunday, June 25, <strong>2023</strong>.<br />

Join in the fun by registering<br />

your interest here:<br />

https://bit.ly/3JgjM7N.<br />

Alternatively, you can contact the<br />

team at events@mswa.org.au.<br />

So, if you or someone you know<br />

would like to be a part of the <strong>MSWA</strong><br />

Volunteers Team, contact Mala<br />

Padmanathan, Volunteer and Camp<br />

Coordinator on 6454 3184 or via email<br />

at Mala.Padmanathan@mswa.org.au.<br />




Activity<br />

Assistant<br />

(2 positions)<br />

City Beach,<br />

Rockingham<br />

Gardener<br />

(3 positions)<br />

Beechboro,<br />

Hamilton Hill,<br />

Wilson<br />

28<br />


EVENTS<br />

GOING THE DISTANCE FOR <strong>MSWA</strong><br />

2022 <strong>MSWA</strong> OCEAN RIDE<br />

An incredible 2,100 cyclists came together to<br />

It was also great to see <strong>MSWA</strong> staff members, like our<br />

fundraise more than $400,000 for people living with Chief Executive Officer Melanie Kiely, Chief Marketing<br />

neurological conditions as part of the 2022 <strong>MSWA</strong> Officer Tony Millar and <strong>MSWA</strong> Board President Horst<br />

Ocean Ride - Powered by RetraVision, in November. Bemmerl participating in the ride, and bringing their<br />

family and friends along for the fun too.<br />

As our riders can attest, the weather was glorious and<br />

the head winds weren't too strong - a welcome relief We extend our immense gratitude to our<br />

for those brave participants undertaking the longer<br />

volunteers fulfilling an array of roles – from finish<br />

ride distances.<br />

line cheerleaders to our critical road marshal<br />

positions, without which the event would not<br />

From seasoned cyclists taking on the 140km EPIC<br />

have been the success it was.<br />

Challenge, joy riders spending a day out with family<br />

and right through to beginners trying something new, A great day was had by a community coming together<br />

all were united in supporting the <strong>MSWA</strong> cause.<br />

for something bigger than themselves – to raise funds<br />

and awareness to make a tangible difference in the<br />

Once again we had a strong show of support from<br />

lives of those living with neurological conditions.<br />

long-time corporate supporters, including Retravision,<br />

APA, Wood, GR Engineering and Radlink, who were all Our event photographers Nina Otranto and Adam Kenna<br />

represented during their rides.<br />

captured all the action and we have selected some of our<br />

We also acknowledge our 2022 sponsors RetraVision, favourite photos to share with you in <strong>Bulletin</strong>.<br />

Road Safety Commission, City of Joondalup and<br />

If you would like to view to whole gallery to see<br />

Harcourts Foundation for making this event possible.<br />

if you were snapped, head online to<br />

mswaevents.smugmug.com/2022-<strong>MSWA</strong>-Ocean-Ride<br />

But don't just take our word for it! See<br />

what our participants had to say:<br />

“My favourite part of the day was being<br />

out on the road with other people who<br />

are riding for the same cause.”<br />

“It felt good to support, ride and be a<br />

part of something.”<br />

“The weather was amazing and<br />

everyone embraced the event towards<br />

a great cause.”<br />

“Great to take part in the personal<br />

challenge shared with other<br />

like-minded people.”<br />

“I felt like a star at the finishing line.”<br />



ONLINE?<br />

Help us to reduce our environmental impact by going<br />

digital! Not only does this save trees and minimise<br />

our contribution to landfill, but it also allows you<br />

to better engage with our <strong>Bulletin</strong> content.<br />

Get in touch via communications@mswa.org.au<br />

to sign up to our e-magazine.<br />

30<br />





Winners are grinners<br />

in Rockingham.<br />

Tania Barclay played a significant<br />

role in <strong>MSWA</strong> Albany’s total, with<br />

an individual effort of 520.97kms,<br />

the highest out of all 219<br />

participants.<br />

Physiotherapy Assistant Celeste<br />

McMahon had a special strategy to<br />

keep everyone in Albany pedalling,<br />

which was to put up images and<br />

facts about oceans in the gym.<br />

“This year, as it is the Ocean<br />

Ride, I featured the five oceans<br />

of the planet, ocean animals<br />

and mysteries of the oceans<br />

– something that brings back<br />

memories for people as well as<br />

being a talking point," she said.<br />

“I also put a lot of jokes on there –<br />

we try to make it fun instead of so<br />

serious and they feel like they are<br />

achieving as well.”<br />

Healthy competition between<br />

<strong>MSWA</strong> Service Centres saw<br />

Clients ride a combined total of<br />

8935kms in the Stationary Cycle<br />

Challenge – the equivalent<br />

of travelling from Perth to<br />

Sydney… and back!<br />

The challenge is led by our<br />

Physiotherapy Team, who track<br />

the kilometres Clients travel on<br />

stationary bikes to add toward each<br />

teams’ total.<br />

Individuals and teams also had the<br />

chance to fundraise over the course<br />

of the challenge, which led into the<br />

<strong>MSWA</strong> Ocean Ride event.<br />

Rockingham were thrilled to be<br />

crowned in first place for 2022,<br />

taking home the coveted shield<br />

with 1976kms across their 39 riders.<br />

Rockingham Physiotherapy<br />

Assistant Kirsten Rutherford said<br />

she was so proud of her team for<br />

taking out the win.<br />

“I feel so happy for them that they<br />

have done it and we put it together<br />

as a team,” Kirsten said.<br />

“It’s good individually<br />

because they have all set their<br />

individual goals and have<br />

smashed it, but working as a<br />

team and actually getting our<br />

goal of making Rockingham<br />

number one again was good<br />

for all of us.”<br />

Kirsten said there had been plenty<br />

of healthy competition between<br />

Clients over the eight weeks.<br />

“A lot of people tried to really<br />

push past their goals. Seeing that<br />

other people could do it really<br />

motivated them, and they went<br />

for it," she said.<br />

Client Joan Johnston said she was<br />

excited to take the win with the<br />

“lovely bunch” at Rockingham.<br />

“How exciting is it!” she said,<br />

“[the Stationary Cycle] gives you<br />

something to head for, but we all<br />

“Everyone is always happy and<br />

smiling, so it is always uplifting<br />

coming in here.”<br />

<strong>MSWA</strong> Rockingham just pipped<br />

<strong>MSWA</strong> Wilson at the post, who<br />

notched up an impressive 1528kms<br />

with 38 participants and defending<br />

champions <strong>MSWA</strong> Albany in third,<br />

who recorded a mammoth<br />

1479kms despite only fielding a<br />

16-person team.<br />

Albany Physiotherapy Assistant<br />

Celeste motivating team members<br />

Caroline and Graham to defend their<br />

2021 title during the challenge.<br />

Celeste said the challenge was<br />

a good “social booster” and<br />

individual motivator for Clients.<br />

“Having people with different<br />

neurological conditions<br />

participating in the challenge<br />

made them feel connected – it’s<br />

not just for people with MS – it<br />

makes them feel part of a team<br />

and included, and inclusivity is<br />

everything,” she said.<br />

<strong>MSWA</strong> Albany Client Graham<br />

Smithson said the team had given<br />

it “a good go, as we always do”<br />

and said the challenge was about<br />

“enjoying what you are doing”.<br />

The highest individual fundraiser<br />

was Ehsan Karaji from <strong>MSWA</strong><br />

Wilson, who raised $520 for the<br />

organisation.<br />

We look forward to seeing this<br />

event continue to grow in the<br />

future and would like to thank<br />

each and every participant for<br />

their support.<br />

aim at something in here.”<br />

32<br />




Ian is usually pretty confident of a win in the <strong>MSWA</strong> Lottery but this year<br />

was different – he thought he had missed out on a ticket entirely.<br />

You can imagine his surprise when <strong>MSWA</strong> CEO Melanie Kiely, Client Nicolette<br />

Murphy and Care Support Worker Natasha Bishop called to congratulate him<br />

on winning the life changing $3.8 million Applecross Grand Prize Package.<br />

A member of the Platinum Club, which reserve tickets in future <strong>MSWA</strong> Mega<br />

Home Lotteries, Luxury Lotteries or Multi-Choice Raffle campaigns, Ian’s ticket<br />

had somehow found its way into his junk folder.<br />

“I thought ‘I really must contact <strong>MSWA</strong> and give them my updated details’<br />

because it looks like my Platinum tickets haven’t come through,” Ian said.<br />

“I had been a bit disappointed because I thought I had missed out on a ticket<br />

this time, so it came really out of the blue!”<br />

“I really didn’t believe it, I just thought, ‘it can’t be true’.”<br />

Ian won <strong>MSWA</strong>’s biggest ever grand prize; an idyllic home located in<br />

Applecross, a luxe Range Rover Velar and a cool $300,000 in cash, allowing<br />

him to put in his notice at work the very next day.<br />

“It was getting to that stage in life where retirement was getting closer, but<br />

you never know what is going to happen with markets, how much money<br />

you need, you never know what is round the corner,” Ian said.<br />

“It’s that kind of pipedream; ‘if I win the house, I will actually be able to retire<br />

and it will change my life’, but you never actually expect it to happen.”<br />

“Now I am living that dream.”<br />

Ian and his wife purchased tickets for the very first <strong>MSWA</strong> lottery, motivated by<br />

a friend from his school days who lives with MS. He has been buying them ever<br />

since to continue his support of people living with neurological conditions.<br />

“We are still in the Platinum Club so I look forward to winning another house<br />

next year,” he laughed.<br />

“No, I have no expectations to win anything else, but I will stay in the<br />

Platinum Club so I can give back and keep supporting <strong>MSWA</strong>.”<br />



“It is something that needs to be supported and the lottery is a great vehicle<br />

to be able to support <strong>MSWA</strong> and give a bit of money to help.”<br />

For those thinking of buying a ticket, Ian’s advice was to “go for it”.<br />

“All the people at work are looking into the house lottery now, because you<br />

don’t believe anybody wins until you find out the person sitting next to you in<br />

the office has won it,” he said.<br />

“You realise the winners are all real, and it is possible.”<br />

Three special guests took part in one of last year's<br />

Mega Home Lottery prize draws, responsible for<br />

the most important role – pressing the button to<br />

reveal the winner!<br />

<strong>MSWA</strong> Clients Julia Hewson, Neil Cumming and<br />

Nicolette Murphy handled the pressure with ease,<br />

turning Super Early Bird winner Anouska, Early<br />

Bird Prize winners Daryl and Kylie, and Grand Prize<br />

winner Ian into millionaires with just a click.<br />

Care Support Workers Natasha Bishop and Laila<br />

Bjorklund also joined in to call the winners and hear<br />

their reaction to incredible news.<br />

“It was a very special moment for sure, something<br />

Neil will cherish a long time,” said Laila.<br />

“It really was the best day of ‘work’ ever –<br />

one I won’t ever forget!” said Natasha.<br />


The <strong>MSWA</strong> Mega Home Lottery is back, and<br />

this time there are three incredible homes to be won,<br />

including our biggest Grand Prize yet!<br />

Tickets go on sale Monday, 27 February, visit us at<br />

mswalottery.com.au to secure your tickets and go in the<br />

draw to win.<br />

Every ticket sold supports Western Australians living with<br />

a neurological condition.<br />

34<br />




11 MARCH, <strong>2023</strong> 25 JUNE, <strong>2023</strong><br />

Take your marks, get set... GO!<br />

Albany Swim is a unique community swimming event to raise funds for<br />

people living with neurological conditions, including those living in the<br />

Great Southern region.<br />

Join swimmers of all ages as they challenge themselves to out-swim the clock.<br />

Teams of 10 will work together to continuously relay over an eight-hour<br />

marathon in the swimming style of their choice (even doggy paddle!).<br />

Ready to dive right in?<br />

Find out more and register now at www.mswaswim.org.au.<br />

Set yourself a special challenge in <strong>2023</strong> by getting involved in our<br />

unique stair-climbing event.<br />

Step Up for <strong>MSWA</strong> challenges you to climb 1,103 steps up Perth’s tallest building<br />

– once, twice or even multiple times for the super steppers!<br />

Registration will be opening very soon and we'd love to have you join us.<br />

Visit join.stepupformswa.org.au/early to be first to know when registration opens.<br />

Interested in volunteering? Sign up now: https://bit.ly/3JgjM7N.<br />

<strong>MSWA</strong> ALBANY'S FIRST BIRTHDAY<br />

13 APRIL, <strong>2023</strong><br />

That’s right, one whole year has flown by!<br />

It is only right to celebrate <strong>MSWA</strong>’s amazing Services Centre and Accommodation<br />

Facility in Albany as we approach this milestone with a community event, seeing<br />

as the development was made possible by our generous supporters in the region.<br />

Further details will be shared in our Vitality newsletter as they<br />

become available, so keep your eyes on your inbox or check in at<br />

mswa.org.au/news-research/publications.<br />

MAY, <strong>2023</strong><br />

Organised by our friends over at MS Plus, The May 50k aims to raise<br />

funds to leave MS where it belongs – behind us.<br />

Sign up for free to run, walk or move 50kms during the month of May<br />

and track your progress to achieve your fitness goals.<br />

Share your commitment to the challenge and raise funds to support<br />

MS research.<br />

Register your interest as an individual, team or workplace at<br />

www.themay50k.org.<br />

6 MAY, <strong>2023</strong><br />

With four ride distances to choose from, there is something to suit all ages,<br />

abilities and fitness levels.<br />

The various routes take riders through scenic Albany, past some of the city's<br />

most iconic spots, like the National ANZAC Centre, the Historic Whaling Station<br />

and Middleton Beach!<br />

There was more to see in 2022, with the route extended to explore Tornidirrup<br />

National Park, taking cyclists out to nature's marvels Uredale Point, the Natural<br />

Bridge and the Gap.<br />

This year’s date has been set, with further information to come.<br />

AUGUST, <strong>2023</strong><br />

MS Readathon challenges kids to read as much as they can in<br />

August, where they have the chance to earn prizes, collect badges<br />

and complete challenges.<br />

It makes reading fun and exciting!<br />

Register your interest for the <strong>2023</strong> readathon at msreadathon.org.au.<br />

8 MARCH<br />

13 - 19 MARCH<br />

16 MARCH<br />

17 MARCH<br />

20 - 26 MARCH<br />

7 APRIL<br />

11 APRIL<br />

International Women's Day<br />

Brain Awareness Week<br />

Swallowing Awareness Day<br />

World Sleep Day<br />

Dietitians Week<br />

World Health Day<br />

World Parkinson's Day<br />

36<br />



ALL SWEET FOR <strong>MSWA</strong><br />



It was a full circle moment for<br />

Perth tattoo artist Rory Armstrong<br />

when he utilised the same<br />

creative skills which introduced<br />

him to his girlfriend, Dana, to raise<br />

more than $6,000 for <strong>MSWA</strong> in<br />

her honour.<br />

Dana was diagnosed with<br />

relapsing-remitting MS at just 22<br />

years of age, but Rory said her<br />

condition did not stop her from<br />

helping others in her full-time<br />

nursing career.<br />

Do you have a story about living<br />

with a neurological condition in<br />

WA that other <strong>MSWA</strong><br />

Clients might like to read?<br />

We invite you to share your<br />

experiences with our many<br />

<strong>Bulletin</strong> readers.<br />

Email your submission to<br />

bulletin@mswa.org.au<br />

for consideration by the<br />

Editorial Working Group.<br />

“Dana is one of those people who<br />

gets a little bit embarrassed when<br />

people do things for her, she is so<br />

used to doing things for everyone<br />

else,” said Rory.<br />

The pair first met when Dana<br />

came to Rory for a tattoo, and the<br />

“rest is history”.<br />

“Through her, I found out how<br />

hard MS really can be on people,<br />

both the families and the patient,”<br />

Rory said.<br />

“I thought, ‘I make pretty good<br />

money tattooing, so if I can donate<br />

one day of my year to anyone else<br />

living with a neurological condition,<br />

why not?’ It was a pretty easy<br />

decision.”<br />

To raise the funds, the Bittersweet<br />

Tattoo Studio in Subiaco hosted<br />

a ‘Flash Day’ in December, with<br />

Rory donating 100% of his profits<br />

to benefit people living with<br />

neurological conditions.<br />

Rory said the response on the day<br />

was overwhelmingly positive.<br />

“We had a line about 200m long<br />

before the doors opened at 10am,”<br />

Rory said.<br />

“We walked down the line and the<br />

first 40 to 50 people were there to<br />

see me, or my co-worker who was<br />

also donating a portion of their<br />

profits, to support the charity. It<br />

was awesome to see.”<br />

Rory also ran a raffle in the two<br />

weeks leading up to the event,<br />

receiving an upswell of support<br />

that saw him sell 300 tickets for<br />

the cause.<br />

“As soon as I mentioned the raffle<br />

and I put it up on my socials the<br />

response was absolutely insane,”<br />

he said.<br />

Combined with his takings and<br />

donations from other artists’ profits<br />

on the day, the total raised came to<br />

an incredible $6,214.<br />

“I know Dana was absolutely<br />

overwhelmed by all of it, but she<br />

was very grateful,” said Rory.<br />

“The team at <strong>MSWA</strong> does the most<br />

amazing job, I am so thankful for all<br />

of you and the work you do, so I am<br />

glad I could contribute.”<br />

This is just the start of a new<br />

tradition for Rory, who plans<br />

on making the fundraiser an<br />

annual event.<br />

“Next year I am setting myself the<br />

goal of raising $10,000” Rory said.<br />

<strong>MSWA</strong> would like to extend a<br />

huge thank you to Rory and<br />

the team at Bittersweet Tattoo<br />



We want to hear from you. Your<br />

feedback helps us to understand<br />

what is working well and where<br />

we can improve.<br />

You can raise a concern or<br />

acknowledge the support<br />

an <strong>MSWA</strong> staff member has<br />

provided by:<br />

/ Talking to the coordinator of<br />

your services<br />

/ Telephoning the Complaints<br />

Liaison and Compliance<br />

Coordinator, Davina Sawyer,<br />

on 6454 3146<br />

/ Emailing<br />

feedback@mswa.org.au<br />

Please tell us:<br />

/ What happened<br />

/ When it happened<br />

/ Who was involved<br />

/ What you would like to see<br />

occur as a result of sharing your<br />

feedback<br />

All feedback is reviewed, and<br />

complaints investigated in a timely<br />

manner with the team responsible<br />

for the service.<br />

Our goal is to achieve a positive<br />

outcome for all people involved<br />

and improve the quality of the care<br />

and services provided. You will be<br />

included in the process and the<br />

outcomes shared with you.<br />

Please note, you have the<br />

right to have support from<br />

an advocate at any point in<br />

a complaint process. The<br />

Complaints Liaison and<br />

Compliance Coordinator can<br />

help you to access an advocacy<br />

service if you wish.<br />

“I didn’t know what I had got<br />

myself into. I was constantly writing<br />

raffle tickets down every night and<br />

day, but it was so worth it.”<br />

Studio for their support and<br />

commitment to improving<br />

the lives of people living with<br />

neurological conditions.<br />

/ Writing to Quality and<br />

Compliance; Locked Bag 2,<br />

BENTLEY DC 6983<br />

38<br />





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