MSWA Bulletin Magazine Spring 17_WEB

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MSWA’S MAGAZINE FOR PEOPLE LIVING WITH MS NURSING Our MS nurses are usually the first point of contact after the neurologist’s diagnosis of MS. We’re committed to providing holistic supports; providing a greater understanding of what to expect. Lou Hatter, Manager: 9365 4888 or Community Nurse: 9365 4888 WILSON CENTRE 29 Parkhill Way (08) 9365 4888 Fax (08) 9451 4453 Freecall 1800 287 367 See Health Team Dept contacts on this page MEMBER SERVICES DIRECTORY GENERAL MANAGER – MEMBER SERVICES Sue Shapland: 9365 4840 INDIVIDUAL OPTIONS Manager Community Care Programs 9365 4851 NDIS TEAM 9365 4824 OUTREACH GROUPS Wilson Outreach (Mon-Thurs): 9365 4830 Beechboro Lodge (Mon, Fri): 9377 7800 Southside Outreach (Fri): 9592 9202 Albany Outreach (Fri): 9841 6657 BUNBURY (WED) HUB 1 Mason Street, Davenport 6454 2800 BUSSELTON OFFICE 1/21 Cammilleri Street 9754 2320 MARGARET DOODY RESPITE HOUSE Manager, Chris Rush: 9385 9574 FERN RIVER ACCOMMODATION Manager, Danuta Figurska: 9356 2747 HAMILTON HILL ACCOMMODATION Manager, Jayne O’Sullivan: 9331 5780 TREENDALE GARDENS RESPITE & ACCOMMODATION 50 The Boulevard, Australind Manager, Linda Kidd: 9725 9209 CONTACT US If you would like to comment on anything you read in this Bulletin please email bulletin@mswa.org.au or write to MSWA, Locked Bag 2, Bentley DC WA 6983 The Bulletin can also be viewed at mswa.org.au/bulletin EDITORIAL COMMITTEE Greg Brotherson (Editor), Marcus Stafford (CEO), Paul Cavanagh, Sue Shapland, Ros Harman, Libby Cassidy, Caitlin Skinner, Sandra Wallace, Narelle Taylor, Leonie Wellington, Sarah Lorrimar, and Dawn Burke. The Editor welcomes unsolicited submissions. All articles are subject to a reviewing process. The views expressed are those of the Authors and do not necessarily reflect the view of the Society’s staff, advisors, Directors or officers. PHYSIOTHERAPY Our team aims to provide treatment interventions to develop and maintain mobility and function. Our Physiotherapists are experts in movement and function, and work in partnership with you to attain the highest possible level of independence. Dave Hathorn, Manager: 9365 4837 or Physiotherapy Department: 9365 4834 OCCUPATIONAL THERAPY Occupational Therapists enable Members, and Clients, to continue their work and other interests for as long as possible through advice, aids and equipment. Rosemarie Dravnieks, Manager: 9365 4804 or OT Department: 9365 4888 SPEECH PATHOLOGY Our Speech Pathologists provide support by assessing, diagnosing and creating individualised treatment programs for Members who experience swallowing and/or communication difficulties. We equip Members with information and strategies to promote better communication and safe swallowing. Jamaica Grantis, Manager: 6454 3140 COUNSELLING, PEER SUPPORT & HEALTH EDUCATION Talking with a Counsellor creates a safe, respectful and confidential environment for you and those close to you to explore options, create change or gain understanding about your life. Attending counselling with our tertiary qualified practitioners enables opportunity for personal growth and exploration in a non-judgemental environment. We have a Peer Support & Health Education Coordinator who organises peer connection & events and supports health and wellness education services. She can be contacted on 9365 4858. To make an appointment please call: Lisa Papas, Manager: 9365 4836 or Main Counselling line: 9365 4811 SOCIAL WELFARE Social Welfare Officers assist people living with MS and their families to access services and supports to remain living independently at home. They specialise in case management, advocacy and sourcing funding options. They provide information on benefits and entitlements through Centrelink and other government departments. Monitor NDIS/WANDIS Services. Irene Gallagher, Manager, Social Work: 9365 4835 INDIVIDUAL OPTIONS We provide long-term and time limited in-home supports including assistance with personal care for people with MS, to help them remain in their homes. Care and supports are provided through a combination of funding from the Disability Services, Department of Communities and our own fundraising efforts. We manage both DSC and NDIS individually funded care packages. Contact Aileen Ward, Manager on 9365 4851 for more information. THE NDIS TEAM We can help answer all NDIS questions. Our experienced team can help determine whether you may be eligible for NDIS support and assist you with your application. This includes developing an individual plan that best suits your needs. We support people with all neurological conditions including MS, Stroke, Parkinson’s Disease, Huntington’s Disease, acquired Brain Injury and Motor Neurone Disease, to name a few Contact Mark Douglas, NDIS Operations Manager: 9365 4824 CAMPS & RECREATION MSWA provides separate recreation camps for Members, carers, and families, primarily funded by Lotterywest, and for a nominal cost to participants. These camps provide a break from daily routines, and strengthen friendships and support networks. Coordinator for Camps & Recreation: 9365 4843 2 | MSWA BULLETIN SPRING 2017
Letter from the MSWA President GEORGE PAMPACOS I was recently delighted to announce that our CEO, Marcus Stafford, will be staying on at MSWA. After an initial recruitment process to appoint a new CEO after Marcus’s resignation in June, we have found the task of finding a new CEO, with the right skills, background and attributes more difficult than perhaps anticipated. There has been a lot of work done by Marcus, the Board and the leadership team to develop our ambitious strategic plan and Marcus is invested in this work. After some discussions, Marcus made the decision to remain in his position at the helm and continue as CEO. From the conversations I have had with several of you, I know you will be as pleased as I am about this news. Regards, George Pampacos MSWA President Inside | Spring 2017 Letter from the MSWA President 3 From the desk of the CEO 4 Letter from the Editor 5 Vale Betty Cuthbert AM, MBE (1938 – 2017) 6 A message from the General Manager – Member Services 7 Round-up of research and other items of interest 8-9 MSWA Funding Research Projects for MS and other neurological conditions 10 OCREVUS (ocrelizumab) Latest medication added to PBS listing 11 Discover our new MSWA resources! 12 Welcoming our new Occupational Therapists 13 Walking Aids: The Good, the Bad, and the Wobbly 14 Counselling & Coffee – what’s the difference? 15 NDIS Update 16 Your Superannuation Insurance benefits – know your rights 17 MSWA Maurice Blackburn Employment Forum 17 The Reformation 18 That’s Life with Narelle 19 Annual MSWA Dinner Auction 20 MSWA Volunteer Update 21 The Sanctuary 22 Fifth anniversary of Treendale Gardens 22 News from the Great Southern Outreach Group (Albany) 23 MSWA Southside Outreach News 23 MSWA BULLETIN SPRING 2017 | 3
Page 1: BULLETIN THE OFFICIAL MAGAZINE OF M
Page 5 and 6: Letter from the Editor DR GREG BROT
Page 7 and 8: A message from the General Manager
Page 9 and 10: Read more at: mswa.org.au/researchu
Page 11 and 12: OCREVUS (OCRELIZUMAB) LATEST MEDICA
Page 13 and 14: WELCOMING OUR NEW OCCUPATIONAL THER
Page 15 and 16: COUNSELLING & COFFEE - WHAT’S THE
Page 17 and 18: YOUR SUPERANNUATION INSURANCE BENEF
Page 19 and 20: THAT’S LIFE WITH NARELLE NARELLE
Page 21 and 22: MSWA VOLUNTEER UPDATE DAWN BURKE, M
Page 23 and 24: NEWS FROM THE GREAT SOUTHERN OUTREA

MSWA Bulletin Magazine Spring 17_WEB

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