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One in every 1,000 kids is diagnosed with this rare illness.<br />

“We were told by a kidney specialist that, at some point,<br />

he would have kidney failure, and that’s with taking<br />

medication to prevent it. They said he would be 25 or 30<br />

years old,” explained Jennifer. “But on April 12, 2016, he had<br />

complete kidney failure. He was 11.”<br />

Matthew’s kidneys were removed later that August.<br />

But by the following May, he began to experience heart<br />

failure as well. That’s when he was transported by<br />

helicopter from Jackson to Children’s Hospital in Birmingham<br />

where he could get the best treatment and care for<br />

all of the different issues he is facing.<br />

Matthew started out on dialysis seven days a week<br />

for seven hours a day. Soon, doctors decided to drop him<br />

down to six days a week for only five hours. “We go to the<br />

hospital and then we come home because he is completely<br />

wiped out from treatment. Doing dialysis is like running a<br />

marathon,” said Jennifer. Matthew is now on the kidney<br />

transplant list, waiting for a matching donor to become<br />

available. “It had already been decided that he would have<br />

a transplant at Children’s of Alabama because the success<br />

rate is high there. He needs kidneys and a liver, not just<br />

kidneys. It makes it a little more intense.”<br />

Being separated from each other has been hard for<br />

the Bargender family, but David has had to stay living in<br />

Brandon to be close to his work in Forest and to keep the<br />

kids in their school district. Jennifer and Matthew have<br />

been staying in an apartment in Hoover just outside of<br />

Birmingham so that the hospital is never far away. The<br />

family makes a point to visit Jennifer and Matthew in<br />

Alabama as much as possible, because every minute<br />

they have together is a treasured gift. “Honestly, it’s day to<br />

day with him,” said Jennifer in a hushed tone. “I thank God<br />

every day when we wake up and he’s alive and that we<br />

can see him for one more day.”<br />

While Matthew continues his education through<br />

homebound services with the Rankin County School<br />

District and does what he can to maintain a semblance<br />

of an average childhood, he still has a tough road ahead<br />

of him. He misses his friends, his school, and tries to<br />

distract himself with an interest in history and obsession<br />

with the music of Broadway’s hit musical Hamilton. With<br />

the unconditional love and supportive prayers of his big<br />

family and all those who know and love him in his school,<br />

community, and beyond, he keeps fighting to overcome<br />

every obstacle he encounters. ●<br />

Hometown Brandon • 37

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