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10 | October 11, 2018 | 22nd century media <strong>Active</strong> aging<br />
22ndCenturyMedia.com<br />
4 surprising insights into life with Parkinson’s Disease<br />
StatePoint Media<br />
Over 1 million Americans<br />
live with Parkinson’s<br />
disease, and while some<br />
symptoms are easier to see,<br />
there are a range of harderto-detect<br />
non-movement<br />
symptoms that can have an<br />
impact on daily life.<br />
Recently, the Parkinson<br />
& Movement Disorder<br />
Alliance, a non-profit organization<br />
offering programming<br />
for those in the<br />
Parkinson’s disease community,<br />
surveyed over 650<br />
people with Parkinson’s<br />
and care partners to understand<br />
how non-movement<br />
symptoms impact their<br />
lives and quality of life.<br />
The results:<br />
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1. Parkinson’s disease affects<br />
more than motor<br />
function. Patients with<br />
Parkinson’s disease may<br />
experience different<br />
symptoms, both motor<br />
and non-movement related.<br />
Nearly all (90 percent)<br />
of survey respondents<br />
experienced nonmovement<br />
symptoms,<br />
such as:<br />
• Sleep problems (84 percent)<br />
• Cognitive challenges (75<br />
percent)<br />
• Anxiety (65 percent)<br />
• Depression (55 percent)<br />
• Hallucinations (41 percent)<br />
• Delusions (24 percent)<br />
2. Non-movement symptoms<br />
can be more challenging<br />
than motor<br />
symptoms. Of those<br />
who experienced or reported,<br />
non-movement<br />
symptoms, 84 percent<br />
felt that they have a<br />
negative impact on quality<br />
of life, and about half<br />
rated them as more challenging<br />
to live with than<br />
movement symptoms.<br />
3. Daily living is impacted<br />
by hard-to-see<br />
symptoms. Parkinson’s<br />
disease changes how<br />
patients and their care<br />
partners think about the<br />
future and cope with<br />
day-to-day living.<br />
Non-movement<br />
symptoms negatively<br />
impacted the ability to:<br />
• Sleep (84 percent)<br />
• Plan for future events<br />
(76 percent)<br />
• Socialize (71 percent)<br />
• Make plans with family<br />
and friends (70 percent)<br />
• Be intimate with their<br />
partner (68 percent)<br />
• Complete household<br />
chores (68 percent)<br />
• Run errands (67 percent)<br />
When people with<br />
Parkinson’s experience<br />
non-movement symptoms,<br />
care partners are<br />
impacted, too. In fact,<br />
psychosis symptoms in<br />
patients with Parkinson’s<br />
are a strong predictor of<br />
increased care partner<br />
burden, and those with<br />
hallucinations have a<br />
2.5-fold greater risk for<br />
nursing home admission.<br />
4. Reporting symptoms<br />
is crucial. Even though<br />
non-movement symptoms<br />
are common, they<br />
are rarely reported.<br />
It’s important to report<br />
all symptoms to a doctor<br />
(usually a neurologist),<br />
as there are many different<br />
treatment options to<br />
address both motor and<br />
non-movement symptoms.<br />
New educational resources<br />
about the onset<br />
and impact of nonmovement<br />
symptoms<br />
of Parkinson’s can be<br />
found by visiting Pmdalliance.org<br />
and MoretoParkinsons.com.<br />
The survey was sponsored<br />
by ACADIA Pharmaceuticals<br />
Inc.<br />
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