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16 | September 27, 2018 | The frankfort station news frankfortstation.com School news FROM THE TINLEY JUNCTION Tinley Park mom jogging to raise awareness for daughter’s rare disease In 2006 there were only 200 known cases of congenital central hypoventilation syndrome worldwide. As of 2008, that number had increased to 1,000, according to the U.S. National Library of Medicine. A decade later, advocates still place that number around 1,200. Tinley Park native Laura Brown and her husband Jeff’s 18-month old daughter, Josie, is one of them. She was born with a mutated PHOX2B gene which medical researchers have discovered helps the body and brain regulate normal breathing at the molecular level. Effectively, Josie’s autonomic nervous system fails to connect signals that tell the lungs to pump oxygen. Simply going to sleep can be fatal. “There were unexplained periods of respiratory distress where she wasn’t breathing right,” Brown recalled. “It was really scary.” A “fighter” as described by Laura, Josie was born five weeks premature and spent close to five of her first six months of life in the Pediatric Intensive Care Unit at Hope Children’s Hospital. A forward-thinking doctor correctly predicted Josie’s respiratory issues, which at this point had required the use of a ventilation machine, could be CCHS. An intricate genetic testing process would later confirm. To bring awareness of CCHS Laura has organized “Jogging for Josie” in an effort to raise $12,000 for the nonprofit CCHS Network by partaking in the Chicago Marathon on Oct. 7. The number was doubled after reaching her initial goal of $6,000, or $5 for each of the 1,200 known cases. “She’s one tough cookie — my hero for sure,” Laura said. Reporting by Cody Mroczka, Editor. For more, visit TinleyJunction.com. FROM THE MOKENA MESSENGER ‘Control beyond the grave’ The old Boy Scout motto, “Be prepared,” can be applied to many things in life, and can especially be applied to death. Contemplating one’s own mortality can be an uncomfortable thing, but facing the questions about what would happen to those left behind is essential to ensure that those loved ones receive what one’s final wishes wanted them to receive. That’s why Skye Bergeson and Richard Rappold held an estate planning seminar at Mokena Community Public Library District Sept. 18. Bergeson is a financial advisor with Edward Jones in Mokena, and Rappold is an attorney who lives in Frankfort and practices out of Chicago. According to Bergeson, an estate plan should involve the services of a financial advisor to help manage assets, a tax professional to keep an eye on the tax laws to make sure those assets are protected under everchanging tax code, and an attorney to help keep assets from being bogged down in court and not fulfilling one’s wishes in a timely manner. Any estate plan should be specific to an individual, as everyone’s circumstances and goals will be different; however, the individual, along with the estate planning team of the financial advisor, tax professional and attorney, should monitor and re-evaluate the plan every six months to a year, Burgeson said. Reporting by T.J. Kremer III, Editor. For more, visit MokenaMessenger.com FROM THE ORLAND PARK PRAIRIE Friends, family rally around youth with rare blood disorder As a nurse, Orland Park resident Mandy Granat has devoted her professional life to mitigating the pain and discomfort of those in her care. Most difficult of all was being confronted by medical uncertainty regarding her 11-year-old son, Luke Granat. When he was 8, Luke started to exhibit symptoms like abdominal pain and nausea. “We spent about a year having him be misdiagnosed,” Mandy said. “They thought it was allergic reactions. As a nurse, it made sense at the time. When he had the abdominal pain, he spent five days at Hope Children’s Hospital and the tests came back normal.” The severity of the reactions intensified. After a series of complex blood tests, doctors discovered that Luke suffers from a rare genetic blood disorder called Hereditary Angioedema. “I never even heard of it,” Mandy said. On average, only about one in 10,000-50,000 people suffer from HAE. In May, Mandy and Luke traveled to Vienna, Austria, to attend a patient and doctor symposia. Luke also is a member of the Youth Leadership Council for the USA HAEA. In July, he appeared at Capitol Hill to advocate for increased federal funding for the disease. The family also has sought to raise awareness closer to home. In 2017, the family held a 5K run in Danada Forest Preserve in Wheaton. Nearly 30 people turned up. The family held another event this August. Mobilizing Facebook and other social media to shape word of mouth around Orland Park and Tinley Park, the number jumped up to 130 this year. “He needs the support of his friends more than anything at this stage,” Mandy said. “The event made him feel so good.” Reporting by Patrick Z. McGavin, Freelance Reporter. For more, visit OPPrairie.com. FROM THE NEW LENOX PATRIOT After Senior Night score, West boys golf excited for upcoming regional A back injury kept senior Collin Phelps from playing golf for 10 days. Lincoln-Way West’s Senior Night on Sept. 18 was his first time swinging a club since suffering that injury. Against Plainfield East at The Sanctuary, he didn’t know what to expect. “My mentality for today was just to enjoy it and not care what I shoot because no one was expecting me to do good having been out a week and a half,” Phelps said. As some golfers may take a round or two to work back to normalcy on the golf course, it only took Phelps a few shots. The four-year varsity member carded a 38, which is under his scoring average of 38.5, to contribute to a winning score of 151-193 over the Bengals. “I kept my swing and didn’t really over swing because my back still hurts a little bit,” he said. “I just kept calm.” The team’s only other senior, Dylan Adair, fittingly was the medalist with a 36. Phelps’ younger brother, Zack, shot a 37, and a 40 was the fourth posted score by both Jason Lange and Ethan Healy. West will join a star-studded cast at the Joliet Central Regional Tuesday, Oct. 2, at Inwood Golf Course in Joliet. SWSC leader Lockport, Lincoln-Way Central, Lincoln-Way East and Providence are some of the teams in the nine-school field vying for the Top 3 spots to advance to sectionals. “If they keep up these scores, we’ll see,” West coach Donna Thompson said. “I’ll be happy if we go to sectionals as a team.” Reporting by James Sanchez, Editor. For more, visit NewLenoxPatriot.com. FROM THE LOCKPORT LEGEND Light pole falls on, injures three Butler School students A light pole fell and injured three fourth-grade students after striking them while they were at recess Sept. 17 outside Butler School in Lockport, according to Homer Community Consolidated School District 33C. The district posted a message on its Facebook page Monday afternoon stating that all three children were evaluated at a local hospital and were “okay.” Homer 33C Superintendent Craig Schoppe said the incident happened at approximately 11:40 a.m. in front of the school. “The district’s first concern is the safety and wellbeing of our students,” the district said in a statement, which was provided to The Horizon on Sept. 19. “Due to the fact that this involves individual students, and we are currently investigating the incident, the district has no further comment.” Jeff Scellato, of Lockport, is the stepfather of one of the children, Peyton Forrest, who was injured by the light pole. He said Forrest was coming out of a door to recess and observed three Please see NFYN, 17 Ball state university Frankfort native helps produce documentary Brooke Braun, a 2018 graduate of Ball State University, worked with a team of 41 students to produce the documentary “From Normal to Extraordinary: Ball State’s First Century,” which debuted Sept. 6 during the university’s Centennial kickoff event. The film includes interviews with historians, as well as past university presidents and notable alumni, and Braun had a hands-on role in the documentary’s production. Belmont university Frankfort student enrolls in largest class yet Kate Bruder enrolled at Belmont University this semester as part of the largest class yet. The university began the fall 2018 semester by welcoming a recordbreaking 8,318 students to the campus, representing a 65 percent enrollment increase in the past decade. northern illinois university Four Frankfort students graduate Eddie Carroll received a bachelor of science degree, Linda Fehrenbacher earned an educational specialist degree, Barbara Green received a master of science in education and Colin Holler earned a bachelor of general studies. The four students were among more than 650 students to earn degrees from the university in August. School news is compiled by Editor Nuria Mathog
frankfortstation.com sound off the frankfort station | September 27, 2018 | 17 Social snapshot Top Web Stories from FrankfortStation.com as of Monday, Sept. 24 1. White Street Market reopens under new ownership 2. Police reports: Multiple burglaries reported 3. Photos: Storytime 4. Interactive workshop explores future of downtown Frankfort 5. Frankfort artist's church murals guided by faith Become a member: FrankfortStation.com/plus “Thank you to everyone who came to the Senior Health Fair & Super Senior Day!” — Frankfort Park District from Sept. 19 Like The Frankfort Station: facebook.com/frankfortstation “Thank you to Mr. Decker & Ms. Shaughnessy for teaching our students methods to relax during Mindful Yoga!” — @LWEGriffins from Sept. 19 Follow The Frankfort Station: @FrankfrtStation From the Editor Library project a unique look at community Nuria Mathog nuria@frankfortstation.com If a picture tells a thousand words, a collection of artwork surely contains enough stories to fill a library. That's the concept behind the Frankfort Public Library District's Self-Portrait Project, which invites Frankfort residents to participate in workshops and create images of themselves using a variety of mediums, such as paintings, collages and digital photography. The completed artwork will be on display at the library throughout the month of November, and there is also a gala celebration scheduled from 2-4 p.m. Nov. 11. The library will accept submissions from Frankfort residents or library cardholders of all ages from Oct. 15-26, and submission instructions and guidelines can be found online at www.frankfortlibrary. org/spp. I think the project is a fantastic idea, and I look forward to seeing the variety of works of art Frankfort residents produce throughout the next few weeks. The exhibit provides a unique chance to see the community through the eyes of the people who inhabit it — a one-of-a-kind snapshot of Frankfort at a particular point in time. Art has both aesthetic and historical value, and the selfportraits created by Frankfort residents will leave a lasting impact, as the library plans to archive a copy of each piece of artwork in its collection. This is a very special opportunity to create a part of Frankfort history, and I highly encourage readers to submit portraits to the project in the medium of their choice. I was a very shy child growing up, and art has always played a very special role in my life. It has served as a way to channel my creativity, express moments of inspiration (and occasionally frustration), or simply pass the time on a rainy day. There is something profoundly wonderful about transforming one's thoughts and ideas into a physical, tangible depiction, an image that captures shades and nuances that words alone cannot always express, and I hope residents who participate in the project find that special joy as well. The library's self-portrait project highlights not just the artistic talents of Frankfort residents but also the diversity the community has to offer. I can't wait to head over to the library in November and check out the completed works for myself. VISIT US ONLINE AT FRANKFORTSTATION.COM NFYN From Page 16 children standing on the base of the pole, and Scellato said Forrest told him a teacher told those children to get off. Forrest was standing further away from the pole when it then came down and hit him in his back, according to what he told Scellato. The 9-year-old suffered a fractured rib as a result and was transported via ambulance to Silver Cross Hospital, as were the other two children, Scellato said. “Thank God no one was killed, a teacher or student or anybody,” Scellato said. Reporting by Thomas Czaja, Contributing Editor. For more, visit LockportLegend.com. FROM THE HOMER HORIZON Man charged for anti- Muslim vandalism in Homer Glen A man has been charged for vandalizing a sidewalk with Islamophobic graffiti Sept. 17 in front of a Muslim family’s Homer Glen home, according to a Sept. 20 release from the Will County Sheriff’s Office. Patrick J. Goshorn Jr., 26, of 13057 Finch Court in Homer Glen, was charged with one count of felony criminal damage to property and one count of felony criminal damage to statesupported property by the sheriff’s office. The case was turned over to the Will County State’s Attorney’s Office for review, and the office announced additional charges of a felony and misdemeanor count of criminal defacement to property and one count of a hate crime, bringing the total to five charges. One of the homeowners originally called police about 8 p.m. Sept. 17 after discovering the graffiti outside their home in the 13000 block of W. Sparrow Court, according to Will County Sheriff’s Office spokeswoman Kathy Hoffmeyer. In addition to the graffiti — which mocked the common Muslim phrase “peace be upon him” with an obscene variation — the taillights, trunk and bumper of the homeowners’ vehicle, a 2013 Toyota, were covered in brown spray paint, according to Hoffmeyer. After appearing in video court on Thursday, Sept. 20, Goshorn had his bond set at $100,000, with 10 percent to apply. A condition of his bond states that if he is able to bond out, he will be released with an electronic monitoring device and will not be allowed to be within 3,000 feet of the vandalized home. Goshorn’s next court date is set for Oct. 11 at the Will County Courthouse. Reporting by Thomas Czaja, Editor. For more, visit Homer Horizon.com. Sound Off Policy Editorials and columns are the opinions of the author. Pieces from 22nd Century Media are the thoughts of the company as a whole. The Frankfort Station encourages readers to write letters to Sound Off. All letters must be signed, and names and hometowns will be published. We also ask that writers include their address and phone number for verification, not publication. Letters should be limited to 400 words. The Frankfort Station reserves the right to edit letters. Letters become property of The Frankfort Station. Letters that are published do not reflect the thoughts and views of The Frankfort Station. Letters can be mailed to: The Frankfort Station, 11516 West 183rd Street, Unit SW Office Condo #3, Orland Park, Illinois, 60467. Fax letters to (708) 326-9179 or e-mail to nuria@ frankfortstation.com. www.frankfortstation.com.
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