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MSWA Bulletin Magazine Summer 2018

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QUENCHING<br />

YOUR THIRST<br />

JAMAICA GRANTIS, <strong>MSWA</strong> SPEECH PATHOLOGIST<br />

VOICE BANKING<br />

LAURA RYAN, <strong>MSWA</strong> SPEECH THERAPY ASSISTANT<br />

As we move into the warmer weather of summer, it is<br />

increasingly important we are all mindful of staying well<br />

hydrated. Maintaining adequate hydration can be challenging<br />

if you are a person living with dysphagia (swallowing<br />

difficulties), especially if your swallowing difficulties require<br />

you to drink thickened drinks.<br />

What are thickened drinks?<br />

There are two kinds of thickened drinks; those considered<br />

‘naturally thick’ (eg a milk shake or smoothie), and those we<br />

prepare by mixing a thickening agent to a regular or thin drink,<br />

so that it thickens artificially. Thickened drinks are usually<br />

recommended by a Speech Pathologist if a person is shown<br />

to be aspirating thin drinks; that is, thin fluid is entering the<br />

lungs while drinking.<br />

Aspiration can potentially lead to aspiration pneumonia.<br />

Thickened fluids may help to reduce a person’s aspiration<br />

risk by slowing down the flow of liquid, allowing a person<br />

more time to organise and coordinate a safe swallow. There<br />

are different levels of thickened fluids, ranging from slightly<br />

and mildly thick, to moderate and extremely thick. Each level<br />

can be tested to ensure it meets the right consistency, or<br />

viscosity, for safe swallowing.<br />

Did you know?<br />

If you have been recommended to drink thickened drinks,<br />

this usually means that all liquid you consume should be<br />

thickened, including the broth in your soup, or the milk in your<br />

cereal. It might also mean that you find it difficult to eat juicy<br />

foods such as watermelon or oranges.<br />

People who drink thickened drinks are at higher risk<br />

of dehydration<br />

Dehydration can lead to side effects such as headaches,<br />

dizziness, dry skin, fatigue, cognitive difficulties, and other<br />

more serious health concerns. There are many reasons why<br />

it might be harder for someone who drinks thickened drinks<br />

to meet their recommended daily fluid intake.<br />

For example, thickened drinks:<br />

• are ‘heavier’ and can leave you feeling fuller quicker, so you<br />

tend to drink less<br />

• take longer to flow through the mouth and throat before<br />

being swallowed; they can also be harder to suck through a<br />

straw and may need to be ‘drunk’ from a spoon – so it often<br />

takes longer to finish a thickened drink<br />

• may taste or feel different in the mouth – some thickened<br />

drinks leave behind a mild coating in the mouth, and if not<br />

prepared properly, could be a little lumpy, so some people<br />

might find them unsatisfying to drink so they tend to drink less<br />

• can sometimes be more expensive, leading some people to<br />

only drink what they can afford<br />

Thickened fluids aren’t always safer<br />

Thickened fluids tend to leave behind some residue in the<br />

mouth and throat after swallowing, and this residue can<br />

sometimes be aspirated into the lungs after swallowing. It is<br />

usually safer to aspirate thin/regular water than to aspirate a<br />

drink mixed with a thickening agent.<br />

The <strong>MSWA</strong> Speech Pathology team considers thickened<br />

drinks a last resort<br />

Our goal is to help <strong>MSWA</strong> Members swallow as safely,<br />

efficiently and comfortably as possible, without modifying<br />

or restricting usual eating and drinking habits. To do this we<br />

explore all other options first, before going down the path<br />

of trying thickened drinks. For example, do changes to a<br />

person’s drinking posture help them to swallow with more<br />

ease? Does the use of mindful swallowing strategies help<br />

a person to swallow with more control? Are there adaptive<br />

cups or straws we could try that help to better control the<br />

delivery of fluid into the mouth, allowing a person to swallow<br />

with greater safety? These and many other options should be<br />

explored before recommending thickened fluids.<br />

Thickened fluids aren’t always forever<br />

Sometimes a Speech Pathologist might recommend a person<br />

drink thickened drinks following a serious hospital procedure,<br />

dental surgery, or a short-term exacerbation of MS symptoms.<br />

Sometimes thickened fluids are recommended only during<br />

times of extreme fatigue. The Speech Pathologist’s role is<br />

to monitor and regularly review whether thickened fluids are<br />

required long-term.<br />

Thickened fluids aren’t all bad though<br />

For most, thickened fluids help to improve swallow safety and<br />

maintain hydration.<br />

If you are having difficulty drinking thin or thickened<br />

drinks, please contact the <strong>MSWA</strong> Speech Pathology<br />

team on 9365 4888 for advice and support.<br />

Similarly, if you would like to discuss whether thickened<br />

drinks are appropriate (or possibly no longer appropriate)<br />

for you, please contact the <strong>MSWA</strong> Speech Pathology team.<br />

I have donated my voice. Not a sentence I thought I would<br />

ever say.<br />

Being a therapy assistant in the <strong>MSWA</strong> Speech Pathology<br />

Department suits my personality perfectly. Every day I<br />

am helping people, by implementing a therapy program<br />

to help people with their communication devices. These<br />

communication devices enable people, that might otherwise<br />

be unable, to express their thoughts and emotions. They<br />

empower people to share their opinion, initiate conversations,<br />

tell jokes, instruct others and much, much more. Picture the<br />

late Steven Hawking if you don’t know anyone who used one.<br />

When setting up a communication device, you can often pick<br />

from several pre-recorded voices, male or female etc. This is<br />

great, however, they usually don’t sound anything like you. This<br />

is where ‘voice banking’ comes in, not to be confused with<br />

message banking, which is recording a sentence to be played<br />

back exactly as it was recorded eg. “I love you sweetie.”<br />

Voice banking is recording a sample of your voice to create<br />

a unique synthetic voice that can then be used with these<br />

communication devices. The quality of the finished synthetic<br />

voice depends on the number of sentences and the quality of<br />

the voice recorded. So, it’s crucial to complete the recordings<br />

early on even if you think you might not need it.<br />

Recording your voice can be a lengthy process, recording<br />

anywhere between 400 – 3,200 sentences, the more you<br />

record the more personal the synthetic voice will sound. It’s<br />

advisable to complete the recordings over several sittings,<br />

such as a few sentences at the same time each day so this<br />

can take several weeks or months to complete depending on<br />

your fatigue levels and other commitments. So, it’s strongly<br />

recommended that you begin voice banking as early as<br />

possible. Once you have completed the recordings you can<br />

listen to your synthetic voice before deciding if you would like<br />

to use it.<br />

What if it’s too late? If you’re unable to record the sentences<br />

but have a close relative who sounds like you, they might be<br />

willing to do the recordings and ‘donate their voice’ for your<br />

use. Because synthetic voices sound slightly robotic in nature<br />

you won’t sound exactly the same as each other.<br />

I recorded 3,155 sentences, which seemed never-ending<br />

whilst recording them, however, I was intrigued to hear what<br />

a synthetic me would sound like. I had a listen after 650<br />

sentences and I was really impressed, it definitely sounded<br />

like me. The more I recorded the better it got but I would have<br />

been very happy using it at that level had I needed to! So,<br />

my synthetic voice is now available for people to use on their<br />

device, who knows one day I might bump into someone using<br />

it, wouldn’t that be amazing! I might even need it myself or it<br />

will never be used by anyone, but I will have had the experience<br />

of recording it to assist others through the process.<br />

Interesting fact: Stephen Hawking’s voice, ‘Perfect Paul’,<br />

was derived from recordings of Dennis Klatt, an American<br />

researcher in speech science and the pioneer of computerised<br />

speech synthesis. Dennis recorded his own voice when<br />

developing the software and this became the voice you heard<br />

when listening to Stephen Hawking. Dennis Klatt later lost his<br />

voice to cancer prior to his death in 1988.<br />

26 | <strong>MSWA</strong> BULLETIN SUMMER <strong>2018</strong> <strong>MSWA</strong> BULLETIN SUMMER <strong>2018</strong> | 27

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