East Coast Hospice Newsletter - December 2018
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<strong>Newsletter</strong> - <strong>2018</strong> Issue 13
As our charity continues to grow, our need for volunteers in our fundraising team and also our<br />
expanding chain of charity shops grows. Whether it is helping out at any of our events, running your<br />
own events or getting out and about talking to your friends and community about our appeal, doing<br />
your bit can be very rewarding. It is not only about rattling a tin - but this is just as important!.<br />
Please help us in any way you can to turn our vision of your <strong>Hospice</strong> into a Reality.<br />
For a chat about volunteering, please contact the office - we would love to hear from you.<br />
Become a Trustee<br />
Charity trustees play a very important role in<br />
making sure that the charity is run in the<br />
interests of the people it is there to support.<br />
They strategically oversee the management<br />
and administration of the organisation.<br />
Being a trustee can be very rewarding. As a<br />
trustee you have the chance to support and<br />
shape the work and strategic direction of an<br />
organisation, and you can make a significant<br />
difference to a cause that matters to you. As a<br />
trustee, you are part of a team and will have<br />
the opportunity to apply your unique skills and<br />
experience while learning from others. Working<br />
closely with a passionate team of people who<br />
have different perspectives is often one of the<br />
most enjoyable aspects of the role.<br />
If you would like to know more about becoming<br />
a trustee, please contact the office.<br />
Retail Volunteer<br />
Our shops are an important part of our<br />
infrastructure which we are building upon to<br />
enable us to run the hospice once it is built.<br />
The income from the shops along with<br />
donations, legacies and other funding avenues<br />
will enable Margaret Chadd House to offer its<br />
services free to all.<br />
If you like interacting with the general public<br />
and have time to give, why not pop in to one<br />
our shops and have a chat with the manager<br />
about volunteering. Any time you can spare,<br />
whether it is a few hours or a whole day, will<br />
help and most certainly be appreciated.<br />
Fundraising & Events Volunteer<br />
It’s not just about rattling tins at<br />
supermarkets! Being a fundraising and<br />
events volunteer means that you get to meet<br />
all sorts of people in all walks of life. You<br />
could be cheering on teams at events,<br />
having pies thrown in your face,<br />
manning stalls, organising your own<br />
fundraising events to name but a few.<br />
If you are an organised<br />
person and have a circle of<br />
like-minded friends, why<br />
not get together and create<br />
a fundraising group in your<br />
community? This could be<br />
anything from a weekly<br />
Bridge Club, Coffee Morning, Bake<br />
Sale...you could become an ambassador for<br />
<strong>East</strong> <strong>Coast</strong> <strong>Hospice</strong>.<br />
Our fundraising<br />
team are always<br />
happy to hear from<br />
you and chat about<br />
your ideas over a<br />
nice cuppa and a<br />
biscuit.
Chairman’s letter<br />
The year has been extremely hard with many challenges, but the charity and its staff have moved forward<br />
towards our goal of building Margaret Chadd House. We made a decision to expand our shops to enable us to<br />
get established as this takes some time.<br />
By the New Year we will have 17 shops. The charity has moved forward in many areas especially with IT, GDPR,<br />
website and social media development.<br />
This summer we were invaded by an encampment of travellers on our site. The experience was, to say the least, mind boggling.<br />
To stand in a field on a pair of crutches in order to issue a Trespass Notice is an experience I hope never to repeat. The verbal<br />
abuse that my staff and I endured from travellers was very distressing.<br />
I am delighted to hear that the Home Office are now looking at new measures so incidents like this are short-lived. The cost to the<br />
charity was unacceptable but onwards and upwards.<br />
In March this year the CCG and the James Paget University Hospital made it abundantly clear that no hospice/palliative care beds<br />
were going on the JPUH site. It is a shame that some members of the public still cannot accept and understand this situation.<br />
The James Paget Trust took over the ownership of the Louise Hamilton Centre in 2013 and to this day how many people know<br />
this? The deception to the public is unbelievable and perhaps, if ‘honesty’ and ‘integrity’ had been put first, the public could have<br />
had their hospice by now. The £1.5M of public money has gone into an NHS Trust which is unfair to the donors and the public at<br />
large.<br />
We own our land and will build Margaret Chadd House on our land. On July 14th <strong>2018</strong>, we lost Margaret Chadd and I am<br />
personally very angry that she did not see the hospice built because of people empire building and their own personal agendas.<br />
That can never be said of dear Margaret. Her care for other people was her life’s work but we will fulfil her dream.<br />
Thank you.<br />
Jenny Beesley
Margaret Chadd 1922 - <strong>2018</strong><br />
MARGARET CHADD JP, MBE<br />
If you did not know Margaret, you have truly missed something special in your life. This<br />
exceptional lady had integrity, love and compassion and most of all, for Palliative Care.<br />
Her aims and passion to build a hospice in the area had been her goal for many years. I first<br />
met Margaret in 2002 on Palliative Care Committees. She was always very vocal and<br />
passionate. Margaret was adamant we needed an independent hospice on its own site. She<br />
never supported the James Paget Hospital idea and made that very clear.<br />
In 2013 when Margaret asked me to come back, I said I would but only if we followed the<br />
project through to the end. We worked closely on the ethos, feel and environment for both<br />
patient and family. She was very honoured when we decided to name the hospice Margaret<br />
Chadd House. This was after her dedication of over 30-40 years for the <strong>Hospice</strong> Movement,<br />
going back to the days with her friendship with Dame Cicely Saunders, the founder of the<br />
<strong>Hospice</strong> Movement.<br />
We owe her so much. Many of our Patrons are her friends who have helped us.<br />
She was always strict on the fundraising reliving her days of fundraising in her<br />
youth. Her wisdom down to the smallest detail astonished people. Margaret<br />
advocated that patient care must come first and her key word was CHOICE.<br />
Margaret was so delighted when the Bishop of Norwich blessed our land and her<br />
friend, the Countess of Euston was also present. The garden was very special to<br />
Margaret. She always said the outside was just as important as the inside. It was<br />
of great joy to her when we opened a shop in Southwold and she always kept her<br />
eye on this shop.<br />
We are on the final push and by the time we build, we will be cost neutral and will<br />
only have the build to pay for. Margaret’s legacy for Palliative Care will go on with<br />
Margaret Chadd House which we hope you can now, and in the future, support us<br />
to complete her dream for the generations to come. Margaret Chadd House is her<br />
legacy. Help us to fulfil her dream for the people of Gt Yarmouth & Waveney.<br />
Those we love don’t go away. They walk beside us every day.<br />
Unseen, unheard, but always near, Still loved, still missed and very dear
Margaret Chadd<br />
House<br />
C Compassion<br />
With feeling understanding of others<br />
before ones self<br />
H Holistic<br />
All encompassing approach to care as<br />
a whole<br />
O Openness<br />
To be truthful and transparent in all<br />
things<br />
I Independent<br />
To be free to choose for yourself<br />
C Care<br />
To give a patient love, understanding<br />
and whatever support they need<br />
E Empathy<br />
To have the ability to understand and<br />
share the feeling of another<br />
“ When my life is finally measured…<br />
... in months, weeks, days, hours.<br />
I want to live free of pain, free of indignity, free of fear,<br />
free of loneliness.<br />
Give me shelter, give me your hand.<br />
Give me your care, your understanding, give me your<br />
love.<br />
Then let me go peacefully, and help my family to<br />
understand."<br />
(Anonymous Prayer found at <strong>Hospice</strong> House, Williamsburg, VA, USA)<br />
Providing complementary therapy<br />
treatments in the comfort of your<br />
own home<br />
We are delighted to be able to offer complementary therapies in the community to patients who have<br />
been diagnosed with a life-threatening condition. This is thanks to a team of qualified complementary<br />
therapists who are donating some of their time for free and will visit patients in their own home.<br />
These therapists will be led by Mary Pretswell MFHT, who has 25 years’ experience in complementary<br />
therapies.<br />
Patients will be offered 4 free treatments, in order to experience the benefits that therapies can give.<br />
A full patient/therapist consultation will be held to decide on the most appropriate and beneficial<br />
treatment. The therapies available are:<br />
Aromatherapy. This uses aromatic plant<br />
extracts with therapeutic properties,<br />
applied through the skin to help relieve<br />
pain, swelling and other health problems<br />
creating a feeling of relaxation and calm.<br />
Reiki. A gentle, non-invasive treatment<br />
that balances the energy flow within the<br />
body to help the body’s systems work<br />
better to give a feeling of wellbeing and<br />
peace.<br />
Mary Pretswell MFHT<br />
Complementary Therapist<br />
Trustee, <strong>East</strong> <strong>Coast</strong> <strong>Hospice</strong><br />
Reflexology. Works on the feet or the<br />
hands to stimulate the body’s reflexes in<br />
order to rebalance the body’s systems,<br />
enabling them to work better and improve<br />
general health bringing about a feeling of<br />
uplift and calmness.<br />
Massage. Improves the circulation and<br />
muscle tone, improving the lymphatic<br />
system and helps improve mobility.<br />
“My therapist is very good explains every thing to me. It is<br />
good I can have different treatments that are explained to me.<br />
If I could I would have Mary as my personal therapist.”<br />
- Hazel<br />
“Most professional but very friendly, put<br />
me at ease straight away.” - Tracy<br />
“Before Chris came round, I had a really bad<br />
back ache, and my feet were swollen. After<br />
having massages my feet are nearly back to<br />
normal and my back is OK. Having Chris<br />
round every fortnight to keep on top of the<br />
problem.” - Michael
We have never asked the CCG for money. When built, we will<br />
have to go down the procurement route like everyone else.<br />
(‘Independent <strong>Hospice</strong>’ means what it says, and we are trying to<br />
achieve this. We want to be as independent as we can.)<br />
We have nothing to hide.<br />
ECH is not doing anything<br />
different than any other<br />
charity.
REASONS TO BE INDEPENDENT<br />
Tapping House took 30 years to build –<br />
did they have this persecution?<br />
Tapping House built an 18-bed unit but only 7-9 beds are in<br />
use. The CCG promised funding in writing, then withdrew.<br />
Priscilla Bacon House (new (NHS?) hospice) wants<br />
to build a 24-bed unit.<br />
Priscilla Bacon Lodge is totally NHS funded and<br />
has 16 beds. Has the CCG promised continual<br />
funding, but do they know how much this is going<br />
to cost!<br />
St Nicholas <strong>Hospice</strong> – 12 bed-unit - had a large proportion<br />
(£330k) of their funding withdrawn by the CCG last year<br />
Margaret Chadd House will encompass a 10 bedded specialist palliative care unit with day care.<br />
Saved £2m+ on design<br />
Saved VAT on build<br />
Saved on Planning – did it ourselves<br />
Bought our own land – 7.54 acres<br />
3 archaeological digs – all completed and paid for<br />
Easement has been granted and is due to commence<br />
Proper build – NOT a design and build<br />
Fixed price contracts agreed with all professional services working on project<br />
Architect, Quantity Surveyor, Mechanical Engineers, Structural Engineers, Building Control etc.<br />
No hidden costs.<br />
ECH do not hide behind the NHS
Business & Community Support<br />
<strong>2018</strong> has been a fantastic year for the fundraising team and we have introduced lots of<br />
new events to our calendar as we push forward in our fundraising campaign to ‘Raise<br />
the Roof’ of Margaret Chadd House.<br />
We’ve had so much support this year and a few<br />
lines just isn’t enough space to include everything,<br />
so here’s just a few of our fundraising events. You<br />
can read about our inspirational fundraisers and<br />
their achievements on our website.<br />
We’ve had 8 ‘Brave and Bold’ recruits taking to the skies 13,000 ft up<br />
above Beccles in tandem skydives to raise over £5000. What an<br />
amazing achievement!<br />
Our ‘Light Up the Night’ Neon Walk set the Great Yarmouth Seafront<br />
all a ‘GLO’ in July when a small army of neon clad entrants joined<br />
together and walked in memory of loved ones.<br />
Any one for golf? Gorleston Golf Club was the venue of choice for our<br />
first ever Charity Golf Day in September with our main event sponsor<br />
Morgan Sindall. Local companies supported the day with teams of four<br />
to enjoy a day on the fairways trying to avoid the fun forfeits along the way. Additional<br />
support came from Robinsons VW Lowestoft when they offered a car as a fabulous<br />
‘Hole in One’ prize with holes on the course very kindly sponsored by local companies.<br />
A sumptuous carvery dinner was served followed by an auction and the day collectively<br />
raised £6700 for our appeal.<br />
Our festive calendar is ‘Full of Fun for Everyone’ - we have a<br />
Christmas Craft Market; Santa’s Grotto and our <strong>East</strong> <strong>Coast</strong><br />
Santa Dash is back after a very successful first year. Entries are<br />
‘Snowballing’ in for our 2K family fun run and 5K chip-timed<br />
race. Whether you choose to walk, skip or run there’s something<br />
for everyone so it’s time to get ‘Santa Suited and Booted’ and<br />
register your place at this year’s event.<br />
The ‘Lights of Love’ appeal returns for the month of <strong>December</strong>.<br />
We invite the community to join with us and remember loved<br />
ones during the festive period by dedicating a light on our<br />
Christmas tree at the hospice site with a donation. A service to support the appeal will<br />
be held on 7 th <strong>December</strong> from 5.30 - 6.15pm, at the Great Yarmouth Minster. We<br />
cordially invite you to join us with the Northgate Infant School Choir who will be singing.<br />
There is so much more planned for 2019 - do please keep a look out on our website<br />
and social media pages for more information so you can pop the dates in your diary.<br />
We are always very grateful for volunteer support and it would be great if you could<br />
give spare some time to join us at our FUN-draising events.<br />
There are many ways you can help with the build and specialist equipment for<br />
the <strong>Hospice</strong>. Your support could help fund a syringe driver, to assist with pain<br />
control, to the build itself.<br />
£1,000<br />
£5,000<br />
£20,000<br />
£50,000<br />
Over bed table;<br />
Syringe driver<br />
Hoist Chair;<br />
Bed Settee<br />
Bath; Shower Trolley;<br />
Neurological couch<br />
Garden - planting,<br />
furniture, landscaping<br />
£100,000<br />
£250,000<br />
£500,000<br />
Equip a bedroom,<br />
Physio or Occupational Therapy<br />
room<br />
Equip the<br />
Day Care Unit<br />
Medical diagnostic equipment<br />
for the hospice<br />
£1 million Build a wing of the hospice!<br />
When people have passed way, we forget how they died as there is nothing to<br />
remind us because our loved one or friend has gone.<br />
With your support, we can move closer to building the hospice to provide<br />
specialist care for patients and their families living with a life-limiting illness.<br />
Your school, college, office or business can help by raising funds to purchase<br />
the equipment needed for the hospice. Our fundraising team can meet you<br />
and discuss ways in which you can help us.<br />
We aim to ensure that every moment counts, however short.<br />
Over bed hoist<br />
£6,250<br />
These are just examples of some of the items you could help us with.<br />
We are happy to discuss other items with you.
Retail Update<br />
Wow what an amazing year the retail shops have had.<br />
Four new shops opening this year alone in Beccles, Leiston,<br />
Norwich and Watton with 2 more still to come in Holt and<br />
Saxmundham. Also coming soon our new eBay shop so<br />
watch this space.<br />
I am thrilled that we were able to relocate in Beccles and<br />
the shop has been well received. When our Saxmundham<br />
shop opens, we will be able to sell more furniture.<br />
The charity has come on in leaps and bounds since I started<br />
over four years ago. We only had 7 shops and now we have<br />
14 soon to become 17. We are well on our way to achieving<br />
our goal of having 30 shops.<br />
The shops are the face of the charity and are vital for<br />
getting us known in and around Norfolk and Suffolk. They<br />
are also the ideal place to come and find out more about us.<br />
We pride ourselves on the fact we only sell donated items<br />
given to us by you the general public and not buy new<br />
goods like so many other charities. Please do continue to<br />
support us and donate your pre-loved items.<br />
Lastly I would like to say that the shops can not run without<br />
the help of volunteers, so if you can spare a few hours then<br />
why not pop along to your local ECH shop and speak to the<br />
manager about how you can help us.<br />
Jane<br />
Retail Director<br />
Acle<br />
NR13 3DY<br />
01493 751444<br />
Aldeburgh<br />
IP15 5AB<br />
01728 454466<br />
Attleborough<br />
NR17 2AB<br />
01593 451565<br />
Beccles<br />
NR34 9HD<br />
01502 471640<br />
Bungay<br />
NR35 1AB<br />
01986 892488<br />
Caister<br />
NR30 5BU<br />
01493 728321<br />
Gorleston<br />
NR31 6RG<br />
01493 665554<br />
Gt Yarmouth<br />
NR30 1PB<br />
01493 856690<br />
Leiston<br />
IP16 4EL<br />
01728 832167<br />
Lowestoft<br />
NR33 0BB<br />
01502 531769<br />
North Walsham<br />
NR28 9BS<br />
01692 403781<br />
Norwich<br />
NR3 1JD<br />
01603 626593<br />
Southwold<br />
IP18 6AB<br />
01502 724250<br />
Watton<br />
IP25 6AH<br />
01953 885016
Business Supporters<br />
As we embark on our big push, we are seeking the support of businesses to commit<br />
to raising funds over the duration of our appeal. Whether you are a small, medium or<br />
large business, we would like you to join other companies to create a Norfolk &<br />
Suffolk network to help open a hospice providing care, peace and dignity for those<br />
with incurable illnesses, with support for their families, in your community.<br />
We are very grateful to the businesses<br />
who have supported us this year and all<br />
those who have continued to support our<br />
appeal. Your business could be part of the<br />
network of businesses who are helping to<br />
raise funds to build and equip Margaret<br />
Chadd House. Whether you choose to take<br />
part in our events and challenges, or take<br />
up your own fundraising goals, your<br />
company and staff team could help us<br />
open a hospice.<br />
Your chance to win up to £25,000<br />
and support a cause you care<br />
about...<br />
Sign up and join the ECH lottery.<br />
Every week you have the chance to win our<br />
£25,000 jackpot plus many other fantastic<br />
cash prizes, and at the same time you are<br />
helping us raise funds to support our appeal.<br />
The more people play, the more money we receive, so we need<br />
your support.<br />
<strong>2018</strong> saw the launch of our corporate brochure<br />
focussing on our business supporters, both existing<br />
and potential.<br />
For every £1 entry, we receive 50p towards our appeal.<br />
Register to play today at<br />
http://www.unitylottery.co.uk/charity/display/east-coast-hospice<br />
Packed full of information, this is a vital tool for our<br />
appeal and is currently being distributed to our<br />
business supporters. Our fundraisers will be more<br />
than happy to answer any questions you may have<br />
about this.<br />
To discuss ways in which you can help our appeal, or to request a copy of the<br />
brochure, please contact our fundraisers<br />
Andrea King - andrea.king@eastcoasthospice.org.uk<br />
Darren Lane - darren.lane@eastcoasthospice.org.uk
Fundraising<br />
To dedicate a light on the Christmas Tree growing at our hospice site to the memory of a<br />
loved one, call 01493 718707.<br />
On <strong>December</strong> 7th, a service to support the appeal will be held at the Minster, Great<br />
Yarmouth, from 5.30pm - 6.15pm. We will be joined by the choir of Northgate Infant<br />
School, who will be singing some reflective and joyous festive songs, to remember loved<br />
ones sadly missed at this time of year.
NOVEMBER <strong>2018</strong><br />
25th<br />
Dates for your Diary…<br />
Christmas Craft Market - Carlton Colville<br />
Santa’s Grotto - Gorleston<br />
DECEMBER <strong>2018</strong><br />
1st, 2nd, 8th & 9th Santa Sky Dive Challenge<br />
7th<br />
Lights of Love dedication at Gt Yarmouth Minster<br />
10th - 16th Christmas Jumper Day<br />
16th<br />
Santa Dash - Gorleston<br />
2019 - A taste of some of the events we have planned...<br />
April<br />
May<br />
May<br />
June<br />
July<br />
August<br />
Charity Golf Day - Gorleston Golf Club<br />
Sky Dive Challenge<br />
<strong>East</strong> <strong>Coast</strong> College Dinner<br />
Bubble Rush, Fun for everyone - Lowestoft<br />
Neon Walk - Great Yarmouth Promenade<br />
Brew & Bake<br />
Contact Us<br />
<strong>East</strong> <strong>Coast</strong> <strong>Hospice</strong> Ltd<br />
Sussex Road Business Centre<br />
Sussex Road<br />
Gorleston-on-Sea<br />
Great Yarmouth<br />
NR31 6PF<br />
01493 718707<br />
www.eastcoasthospice.org.uk<br />
Charity No: 1129631<br />
<strong>East</strong><strong>Coast</strong><strong>Hospice</strong><br />
E<strong>Coast</strong><strong>Hospice</strong>