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East Coast Hospice Newsletter - December 2018

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<strong>Newsletter</strong> - <strong>2018</strong> Issue 13


As our charity continues to grow, our need for volunteers in our fundraising team and also our<br />

expanding chain of charity shops grows. Whether it is helping out at any of our events, running your<br />

own events or getting out and about talking to your friends and community about our appeal, doing<br />

your bit can be very rewarding. It is not only about rattling a tin - but this is just as important!.<br />

Please help us in any way you can to turn our vision of your <strong>Hospice</strong> into a Reality.<br />

For a chat about volunteering, please contact the office - we would love to hear from you.<br />

Become a Trustee<br />

Charity trustees play a very important role in<br />

making sure that the charity is run in the<br />

interests of the people it is there to support.<br />

They strategically oversee the management<br />

and administration of the organisation.<br />

Being a trustee can be very rewarding. As a<br />

trustee you have the chance to support and<br />

shape the work and strategic direction of an<br />

organisation, and you can make a significant<br />

difference to a cause that matters to you. As a<br />

trustee, you are part of a team and will have<br />

the opportunity to apply your unique skills and<br />

experience while learning from others. Working<br />

closely with a passionate team of people who<br />

have different perspectives is often one of the<br />

most enjoyable aspects of the role.<br />

If you would like to know more about becoming<br />

a trustee, please contact the office.<br />

Retail Volunteer<br />

Our shops are an important part of our<br />

infrastructure which we are building upon to<br />

enable us to run the hospice once it is built.<br />

The income from the shops along with<br />

donations, legacies and other funding avenues<br />

will enable Margaret Chadd House to offer its<br />

services free to all.<br />

If you like interacting with the general public<br />

and have time to give, why not pop in to one<br />

our shops and have a chat with the manager<br />

about volunteering. Any time you can spare,<br />

whether it is a few hours or a whole day, will<br />

help and most certainly be appreciated.<br />

Fundraising & Events Volunteer<br />

It’s not just about rattling tins at<br />

supermarkets! Being a fundraising and<br />

events volunteer means that you get to meet<br />

all sorts of people in all walks of life. You<br />

could be cheering on teams at events,<br />

having pies thrown in your face,<br />

manning stalls, organising your own<br />

fundraising events to name but a few.<br />

If you are an organised<br />

person and have a circle of<br />

like-minded friends, why<br />

not get together and create<br />

a fundraising group in your<br />

community? This could be<br />

anything from a weekly<br />

Bridge Club, Coffee Morning, Bake<br />

Sale...you could become an ambassador for<br />

<strong>East</strong> <strong>Coast</strong> <strong>Hospice</strong>.<br />

Our fundraising<br />

team are always<br />

happy to hear from<br />

you and chat about<br />

your ideas over a<br />

nice cuppa and a<br />

biscuit.


Chairman’s letter<br />

The year has been extremely hard with many challenges, but the charity and its staff have moved forward<br />

towards our goal of building Margaret Chadd House. We made a decision to expand our shops to enable us to<br />

get established as this takes some time.<br />

By the New Year we will have 17 shops. The charity has moved forward in many areas especially with IT, GDPR,<br />

website and social media development.<br />

This summer we were invaded by an encampment of travellers on our site. The experience was, to say the least, mind boggling.<br />

To stand in a field on a pair of crutches in order to issue a Trespass Notice is an experience I hope never to repeat. The verbal<br />

abuse that my staff and I endured from travellers was very distressing.<br />

I am delighted to hear that the Home Office are now looking at new measures so incidents like this are short-lived. The cost to the<br />

charity was unacceptable but onwards and upwards.<br />

In March this year the CCG and the James Paget University Hospital made it abundantly clear that no hospice/palliative care beds<br />

were going on the JPUH site. It is a shame that some members of the public still cannot accept and understand this situation.<br />

The James Paget Trust took over the ownership of the Louise Hamilton Centre in 2013 and to this day how many people know<br />

this? The deception to the public is unbelievable and perhaps, if ‘honesty’ and ‘integrity’ had been put first, the public could have<br />

had their hospice by now. The £1.5M of public money has gone into an NHS Trust which is unfair to the donors and the public at<br />

large.<br />

We own our land and will build Margaret Chadd House on our land. On July 14th <strong>2018</strong>, we lost Margaret Chadd and I am<br />

personally very angry that she did not see the hospice built because of people empire building and their own personal agendas.<br />

That can never be said of dear Margaret. Her care for other people was her life’s work but we will fulfil her dream.<br />

Thank you.<br />

Jenny Beesley


Margaret Chadd 1922 - <strong>2018</strong><br />

MARGARET CHADD JP, MBE<br />

If you did not know Margaret, you have truly missed something special in your life. This<br />

exceptional lady had integrity, love and compassion and most of all, for Palliative Care.<br />

Her aims and passion to build a hospice in the area had been her goal for many years. I first<br />

met Margaret in 2002 on Palliative Care Committees. She was always very vocal and<br />

passionate. Margaret was adamant we needed an independent hospice on its own site. She<br />

never supported the James Paget Hospital idea and made that very clear.<br />

In 2013 when Margaret asked me to come back, I said I would but only if we followed the<br />

project through to the end. We worked closely on the ethos, feel and environment for both<br />

patient and family. She was very honoured when we decided to name the hospice Margaret<br />

Chadd House. This was after her dedication of over 30-40 years for the <strong>Hospice</strong> Movement,<br />

going back to the days with her friendship with Dame Cicely Saunders, the founder of the<br />

<strong>Hospice</strong> Movement.<br />

We owe her so much. Many of our Patrons are her friends who have helped us.<br />

She was always strict on the fundraising reliving her days of fundraising in her<br />

youth. Her wisdom down to the smallest detail astonished people. Margaret<br />

advocated that patient care must come first and her key word was CHOICE.<br />

Margaret was so delighted when the Bishop of Norwich blessed our land and her<br />

friend, the Countess of Euston was also present. The garden was very special to<br />

Margaret. She always said the outside was just as important as the inside. It was<br />

of great joy to her when we opened a shop in Southwold and she always kept her<br />

eye on this shop.<br />

We are on the final push and by the time we build, we will be cost neutral and will<br />

only have the build to pay for. Margaret’s legacy for Palliative Care will go on with<br />

Margaret Chadd House which we hope you can now, and in the future, support us<br />

to complete her dream for the generations to come. Margaret Chadd House is her<br />

legacy. Help us to fulfil her dream for the people of Gt Yarmouth & Waveney.<br />

Those we love don’t go away. They walk beside us every day.<br />

Unseen, unheard, but always near, Still loved, still missed and very dear


Margaret Chadd<br />

House<br />

C Compassion<br />

With feeling understanding of others<br />

before ones self<br />

H Holistic<br />

All encompassing approach to care as<br />

a whole<br />

O Openness<br />

To be truthful and transparent in all<br />

things<br />

I Independent<br />

To be free to choose for yourself<br />

C Care<br />

To give a patient love, understanding<br />

and whatever support they need<br />

E Empathy<br />

To have the ability to understand and<br />

share the feeling of another<br />

“ When my life is finally measured…<br />

... in months, weeks, days, hours.<br />

I want to live free of pain, free of indignity, free of fear,<br />

free of loneliness.<br />

Give me shelter, give me your hand.<br />

Give me your care, your understanding, give me your<br />

love.<br />

Then let me go peacefully, and help my family to<br />

understand."<br />

(Anonymous Prayer found at <strong>Hospice</strong> House, Williamsburg, VA, USA)<br />

Providing complementary therapy<br />

treatments in the comfort of your<br />

own home<br />

We are delighted to be able to offer complementary therapies in the community to patients who have<br />

been diagnosed with a life-threatening condition. This is thanks to a team of qualified complementary<br />

therapists who are donating some of their time for free and will visit patients in their own home.<br />

These therapists will be led by Mary Pretswell MFHT, who has 25 years’ experience in complementary<br />

therapies.<br />

Patients will be offered 4 free treatments, in order to experience the benefits that therapies can give.<br />

A full patient/therapist consultation will be held to decide on the most appropriate and beneficial<br />

treatment. The therapies available are:<br />

Aromatherapy. This uses aromatic plant<br />

extracts with therapeutic properties,<br />

applied through the skin to help relieve<br />

pain, swelling and other health problems<br />

creating a feeling of relaxation and calm.<br />

Reiki. A gentle, non-invasive treatment<br />

that balances the energy flow within the<br />

body to help the body’s systems work<br />

better to give a feeling of wellbeing and<br />

peace.<br />

Mary Pretswell MFHT<br />

Complementary Therapist<br />

Trustee, <strong>East</strong> <strong>Coast</strong> <strong>Hospice</strong><br />

Reflexology. Works on the feet or the<br />

hands to stimulate the body’s reflexes in<br />

order to rebalance the body’s systems,<br />

enabling them to work better and improve<br />

general health bringing about a feeling of<br />

uplift and calmness.<br />

Massage. Improves the circulation and<br />

muscle tone, improving the lymphatic<br />

system and helps improve mobility.<br />

“My therapist is very good explains every thing to me. It is<br />

good I can have different treatments that are explained to me.<br />

If I could I would have Mary as my personal therapist.”<br />

- Hazel<br />

“Most professional but very friendly, put<br />

me at ease straight away.” - Tracy<br />

“Before Chris came round, I had a really bad<br />

back ache, and my feet were swollen. After<br />

having massages my feet are nearly back to<br />

normal and my back is OK. Having Chris<br />

round every fortnight to keep on top of the<br />

problem.” - Michael


We have never asked the CCG for money. When built, we will<br />

have to go down the procurement route like everyone else.<br />

(‘Independent <strong>Hospice</strong>’ means what it says, and we are trying to<br />

achieve this. We want to be as independent as we can.)<br />

We have nothing to hide.<br />

ECH is not doing anything<br />

different than any other<br />

charity.


REASONS TO BE INDEPENDENT<br />

Tapping House took 30 years to build –<br />

did they have this persecution?<br />

Tapping House built an 18-bed unit but only 7-9 beds are in<br />

use. The CCG promised funding in writing, then withdrew.<br />

Priscilla Bacon House (new (NHS?) hospice) wants<br />

to build a 24-bed unit.<br />

Priscilla Bacon Lodge is totally NHS funded and<br />

has 16 beds. Has the CCG promised continual<br />

funding, but do they know how much this is going<br />

to cost!<br />

St Nicholas <strong>Hospice</strong> – 12 bed-unit - had a large proportion<br />

(£330k) of their funding withdrawn by the CCG last year<br />

Margaret Chadd House will encompass a 10 bedded specialist palliative care unit with day care.<br />

Saved £2m+ on design<br />

Saved VAT on build<br />

Saved on Planning – did it ourselves<br />

Bought our own land – 7.54 acres<br />

3 archaeological digs – all completed and paid for<br />

Easement has been granted and is due to commence<br />

Proper build – NOT a design and build<br />

Fixed price contracts agreed with all professional services working on project<br />

Architect, Quantity Surveyor, Mechanical Engineers, Structural Engineers, Building Control etc.<br />

No hidden costs.<br />

ECH do not hide behind the NHS


Business & Community Support<br />

<strong>2018</strong> has been a fantastic year for the fundraising team and we have introduced lots of<br />

new events to our calendar as we push forward in our fundraising campaign to ‘Raise<br />

the Roof’ of Margaret Chadd House.<br />

We’ve had so much support this year and a few<br />

lines just isn’t enough space to include everything,<br />

so here’s just a few of our fundraising events. You<br />

can read about our inspirational fundraisers and<br />

their achievements on our website.<br />

We’ve had 8 ‘Brave and Bold’ recruits taking to the skies 13,000 ft up<br />

above Beccles in tandem skydives to raise over £5000. What an<br />

amazing achievement!<br />

Our ‘Light Up the Night’ Neon Walk set the Great Yarmouth Seafront<br />

all a ‘GLO’ in July when a small army of neon clad entrants joined<br />

together and walked in memory of loved ones.<br />

Any one for golf? Gorleston Golf Club was the venue of choice for our<br />

first ever Charity Golf Day in September with our main event sponsor<br />

Morgan Sindall. Local companies supported the day with teams of four<br />

to enjoy a day on the fairways trying to avoid the fun forfeits along the way. Additional<br />

support came from Robinsons VW Lowestoft when they offered a car as a fabulous<br />

‘Hole in One’ prize with holes on the course very kindly sponsored by local companies.<br />

A sumptuous carvery dinner was served followed by an auction and the day collectively<br />

raised £6700 for our appeal.<br />

Our festive calendar is ‘Full of Fun for Everyone’ - we have a<br />

Christmas Craft Market; Santa’s Grotto and our <strong>East</strong> <strong>Coast</strong><br />

Santa Dash is back after a very successful first year. Entries are<br />

‘Snowballing’ in for our 2K family fun run and 5K chip-timed<br />

race. Whether you choose to walk, skip or run there’s something<br />

for everyone so it’s time to get ‘Santa Suited and Booted’ and<br />

register your place at this year’s event.<br />

The ‘Lights of Love’ appeal returns for the month of <strong>December</strong>.<br />

We invite the community to join with us and remember loved<br />

ones during the festive period by dedicating a light on our<br />

Christmas tree at the hospice site with a donation. A service to support the appeal will<br />

be held on 7 th <strong>December</strong> from 5.30 - 6.15pm, at the Great Yarmouth Minster. We<br />

cordially invite you to join us with the Northgate Infant School Choir who will be singing.<br />

There is so much more planned for 2019 - do please keep a look out on our website<br />

and social media pages for more information so you can pop the dates in your diary.<br />

We are always very grateful for volunteer support and it would be great if you could<br />

give spare some time to join us at our FUN-draising events.<br />

There are many ways you can help with the build and specialist equipment for<br />

the <strong>Hospice</strong>. Your support could help fund a syringe driver, to assist with pain<br />

control, to the build itself.<br />

£1,000<br />

£5,000<br />

£20,000<br />

£50,000<br />

Over bed table;<br />

Syringe driver<br />

Hoist Chair;<br />

Bed Settee<br />

Bath; Shower Trolley;<br />

Neurological couch<br />

Garden - planting,<br />

furniture, landscaping<br />

£100,000<br />

£250,000<br />

£500,000<br />

Equip a bedroom,<br />

Physio or Occupational Therapy<br />

room<br />

Equip the<br />

Day Care Unit<br />

Medical diagnostic equipment<br />

for the hospice<br />

£1 million Build a wing of the hospice!<br />

When people have passed way, we forget how they died as there is nothing to<br />

remind us because our loved one or friend has gone.<br />

With your support, we can move closer to building the hospice to provide<br />

specialist care for patients and their families living with a life-limiting illness.<br />

Your school, college, office or business can help by raising funds to purchase<br />

the equipment needed for the hospice. Our fundraising team can meet you<br />

and discuss ways in which you can help us.<br />

We aim to ensure that every moment counts, however short.<br />

Over bed hoist<br />

£6,250<br />

These are just examples of some of the items you could help us with.<br />

We are happy to discuss other items with you.


Retail Update<br />

Wow what an amazing year the retail shops have had.<br />

Four new shops opening this year alone in Beccles, Leiston,<br />

Norwich and Watton with 2 more still to come in Holt and<br />

Saxmundham. Also coming soon our new eBay shop so<br />

watch this space.<br />

I am thrilled that we were able to relocate in Beccles and<br />

the shop has been well received. When our Saxmundham<br />

shop opens, we will be able to sell more furniture.<br />

The charity has come on in leaps and bounds since I started<br />

over four years ago. We only had 7 shops and now we have<br />

14 soon to become 17. We are well on our way to achieving<br />

our goal of having 30 shops.<br />

The shops are the face of the charity and are vital for<br />

getting us known in and around Norfolk and Suffolk. They<br />

are also the ideal place to come and find out more about us.<br />

We pride ourselves on the fact we only sell donated items<br />

given to us by you the general public and not buy new<br />

goods like so many other charities. Please do continue to<br />

support us and donate your pre-loved items.<br />

Lastly I would like to say that the shops can not run without<br />

the help of volunteers, so if you can spare a few hours then<br />

why not pop along to your local ECH shop and speak to the<br />

manager about how you can help us.<br />

Jane<br />

Retail Director<br />

Acle<br />

NR13 3DY<br />

01493 751444<br />

Aldeburgh<br />

IP15 5AB<br />

01728 454466<br />

Attleborough<br />

NR17 2AB<br />

01593 451565<br />

Beccles<br />

NR34 9HD<br />

01502 471640<br />

Bungay<br />

NR35 1AB<br />

01986 892488<br />

Caister<br />

NR30 5BU<br />

01493 728321<br />

Gorleston<br />

NR31 6RG<br />

01493 665554<br />

Gt Yarmouth<br />

NR30 1PB<br />

01493 856690<br />

Leiston<br />

IP16 4EL<br />

01728 832167<br />

Lowestoft<br />

NR33 0BB<br />

01502 531769<br />

North Walsham<br />

NR28 9BS<br />

01692 403781<br />

Norwich<br />

NR3 1JD<br />

01603 626593<br />

Southwold<br />

IP18 6AB<br />

01502 724250<br />

Watton<br />

IP25 6AH<br />

01953 885016


Business Supporters<br />

As we embark on our big push, we are seeking the support of businesses to commit<br />

to raising funds over the duration of our appeal. Whether you are a small, medium or<br />

large business, we would like you to join other companies to create a Norfolk &<br />

Suffolk network to help open a hospice providing care, peace and dignity for those<br />

with incurable illnesses, with support for their families, in your community.<br />

We are very grateful to the businesses<br />

who have supported us this year and all<br />

those who have continued to support our<br />

appeal. Your business could be part of the<br />

network of businesses who are helping to<br />

raise funds to build and equip Margaret<br />

Chadd House. Whether you choose to take<br />

part in our events and challenges, or take<br />

up your own fundraising goals, your<br />

company and staff team could help us<br />

open a hospice.<br />

Your chance to win up to £25,000<br />

and support a cause you care<br />

about...<br />

Sign up and join the ECH lottery.<br />

Every week you have the chance to win our<br />

£25,000 jackpot plus many other fantastic<br />

cash prizes, and at the same time you are<br />

helping us raise funds to support our appeal.<br />

The more people play, the more money we receive, so we need<br />

your support.<br />

<strong>2018</strong> saw the launch of our corporate brochure<br />

focussing on our business supporters, both existing<br />

and potential.<br />

For every £1 entry, we receive 50p towards our appeal.<br />

Register to play today at<br />

http://www.unitylottery.co.uk/charity/display/east-coast-hospice<br />

Packed full of information, this is a vital tool for our<br />

appeal and is currently being distributed to our<br />

business supporters. Our fundraisers will be more<br />

than happy to answer any questions you may have<br />

about this.<br />

To discuss ways in which you can help our appeal, or to request a copy of the<br />

brochure, please contact our fundraisers<br />

Andrea King - andrea.king@eastcoasthospice.org.uk<br />

Darren Lane - darren.lane@eastcoasthospice.org.uk


Fundraising<br />

To dedicate a light on the Christmas Tree growing at our hospice site to the memory of a<br />

loved one, call 01493 718707.<br />

On <strong>December</strong> 7th, a service to support the appeal will be held at the Minster, Great<br />

Yarmouth, from 5.30pm - 6.15pm. We will be joined by the choir of Northgate Infant<br />

School, who will be singing some reflective and joyous festive songs, to remember loved<br />

ones sadly missed at this time of year.


NOVEMBER <strong>2018</strong><br />

25th<br />

Dates for your Diary…<br />

Christmas Craft Market - Carlton Colville<br />

Santa’s Grotto - Gorleston<br />

DECEMBER <strong>2018</strong><br />

1st, 2nd, 8th & 9th Santa Sky Dive Challenge<br />

7th<br />

Lights of Love dedication at Gt Yarmouth Minster<br />

10th - 16th Christmas Jumper Day<br />

16th<br />

Santa Dash - Gorleston<br />

2019 - A taste of some of the events we have planned...<br />

April<br />

May<br />

May<br />

June<br />

July<br />

August<br />

Charity Golf Day - Gorleston Golf Club<br />

Sky Dive Challenge<br />

<strong>East</strong> <strong>Coast</strong> College Dinner<br />

Bubble Rush, Fun for everyone - Lowestoft<br />

Neon Walk - Great Yarmouth Promenade<br />

Brew & Bake<br />

Contact Us<br />

<strong>East</strong> <strong>Coast</strong> <strong>Hospice</strong> Ltd<br />

Sussex Road Business Centre<br />

Sussex Road<br />

Gorleston-on-Sea<br />

Great Yarmouth<br />

NR31 6PF<br />

01493 718707<br />

www.eastcoasthospice.org.uk<br />

Charity No: 1129631<br />

<strong>East</strong><strong>Coast</strong><strong>Hospice</strong><br />

E<strong>Coast</strong><strong>Hospice</strong>

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