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OUR<br />

IMPACT<br />



HELL0<br />

Welcome to the annual review of our activity<br />

and the impact we have made.<br />

I am really proud of the achievements we have made in<br />

2018-19. It was great to see us pass the milestone of 100<br />

tinnitus support groups across the UK. When we embarked<br />

on the project in 2012 to build the numbers of support<br />

groups, there were only 34. Through a lot of hard work<br />

and dedication, we have been able to help so many more<br />

people access the support they need.<br />

It was also a year where we were able to engage<br />

far more collaboratively with research institutions<br />

to understand the challenges facing tinnitus research.<br />

The result of this collaboration will see an updated<br />

research strategy next year with more focus on how to move tinnitus research forward.<br />

This year, we launched our first ever Tinnitus Expo and it was a huge success!<br />

A sell-out event in Birmingham, the Expo had a mix of specialist talks by tinnitus<br />

experts, hands-on taster sessions, exhibitors, and support sessions.<br />

In other areas it was great to see our Information Management project launched to<br />

oversee our free tinnitus helpline and other support services. New services to respond<br />

to the changing needs of the tinnitus community will come online next year.<br />

A number of changes we initiated in previous years came to fruition. The development<br />

of our fundraising team allowed us to set the foundations for new projects and<br />

additional investment in tinnitus research.<br />

The positive steps forward this year would not have been possible without the dedication<br />

of our trustees, staff, partners, volunteers and supporters. The ongoing commitment of<br />

this team is integral to the success of the BTA, and for which we continue to be very<br />

grateful. Thank you.<br />

David Stockdale<br />

Chief Executive

2019<br />


<strong>Our</strong> year in numbers<br />

A total of<br />

720<br />

27,480<br />

social media followers – getting<br />

the tinnitus community talking<br />

people attended our Expo<br />

and Information Days –<br />

helping individuals<br />

and their families<br />

For the first time we exceeded<br />

1 MILLION<br />

unique visitors to our website -<br />

providing reliable information<br />

about tinnitus<br />

Sold<br />

3,437<br />

6,654<br />

helpline calls<br />

answered<br />

– providing<br />

empathy and<br />

understanding<br />

to people<br />

with tinnitus<br />

Total users of our online<br />

forum has increased by<br />

172%<br />

over the year<br />

products to help people<br />

manage their tinnitus better<br />

Increased the number of<br />

active support groups to<br />

105<br />

New research this year<br />

has identified that<br />

13% 78<br />

of UK adults have<br />

tinnitus (greater than<br />

the 10% we previously<br />

thought)<br />

giving people an<br />

opportunity to share<br />

experiences and<br />

knowledge<br />

78<br />

professionals attended<br />

our training courses



We want “a world where no one suffers from tinnitus.”<br />

We implemented the first year of our five-year operational plan, which<br />

integrates our five strategic priorities of Cure, Inform, Prevent, Manage<br />

and Deliver.<br />

Here are a few highlights of our progress throughout the year to achieving our<br />

goals<br />

CURE Lead progress towards a cure<br />

Through our research activities we have recognised<br />

that, in order to develop and progress research, a more<br />

collaborative and consistent approach across the research<br />

community and ourselves is needed.<br />

To illustrate the current postition regarding our knowledge of<br />

tinnitus and tinnitus research, we created the Tinnitus Cure<br />

Map. This highlights gaps in our knowledge, and<br />

opportunities for research.<br />

We also developed a closer working relationship with Action on Hearing Loss’<br />

Research Directorate, and made new connections with representatives of the<br />

pharmaceutical industry who have an interest in tinnitus.<br />

In addition to the work above a number of ongoing<br />

BTA research initiatives have also made the<br />

following progress during the year.<br />

The feasibility study into Eye Movement<br />

Desensitisation and Reprocessing (EMDR)<br />

is complete and the results have been published.

INFORM<br />

Everyone should know what<br />

tinnitus is and what to do about it<br />

New research this year has identified that 13% of UK adults have tinnitus which is<br />

greater than the 10% we previously thought. With this in mind it is more important<br />

than ever that people are better informed about the condition.<br />

65% of people who responded to our 2018<br />

survey told us they felt better informed about<br />

their tinnitus after contacting us.<br />

For the first time we exceeded 1 million unique<br />

visitors to our website and at least 86% of these<br />

were new to the site.<br />

This year we launched our new Communications Strategy to improve ways<br />

in which we reach and engage with the tinnitus community.<br />

<strong>Our</strong> prevention work has been led by our Plug’em<br />

campaign, which seeks to increase earplug use and<br />

increase awareness of loud music induced tinnitus.<br />


Empower people to<br />

make effective choices<br />

about noise exposure<br />

Over the year we have increased reach through<br />

dedicated Plug’em Facebook and Twitter accounts by<br />

14% and 17% respectively. We have substantially<br />

exceeded our target of engaging with 10 organisations<br />

to disseminate Plug’em campaign materials by<br />

reaching 71. We attended the TWSTD Wonderland Festival<br />

and distributed over 1,000 pairs of earplugs and attracted endorsement and promotion<br />

from a number of high profile DJs performing.

MANAGE<br />

Provide the best support to the whole<br />

tinnitus community<br />

In the absence of a cure for tinnitus, management<br />

of the condition is key to having a good quality of<br />

life. The key achievements,across our services, that<br />

contribute to the effective management of tinnitus<br />

were:<br />

Helpline - with support from donors and funders<br />

we recruited our first ever Tinnitus Support Manager<br />

in November 2018. During the year, our staff and volunteers answered 6,654 calls from<br />

people needing emotional and practical support to better manage their tinnitus.<br />

Take on Tinnitus - our online self-help platform continues to be a valuable<br />

resource for people who have recently begun to experience tinnitus. Explore it<br />

yourself at www.takeontinnitus.co.uk<br />

Tinnitus Support Groups - we celebrated<br />

our 100th support group milestone in<br />

summer 2018, and ended the 2018-19 period<br />

with 105 active groups. <strong>Our</strong> support groups<br />

provide a valuable source of support, and<br />

can aid coping and resilience.<br />

Tinnitus Information Days - Events were held in Norwich, Cheltenham, Hull and<br />

Liverpool which supported 420 people in learning more about their tinnitus<br />

and how to reduce its negative impact.<br />

Tinnitus Expo - <strong>Our</strong> first national Tinnitus Expo in September 2018 provided over<br />

300 members of the public with an ‘under one roof’ opportunity to access<br />

seminars, lectures, tasters, our face-to-face helpline, and exhibition. We will<br />

repeat and grow the event for 2019.<br />

Guidelines - One of the leaders in the development of several formal guidelines for<br />

standardising practice for tinnitus patients in partnership with the British Society of<br />



Ensure we have the resources that<br />

can deliver the strategic priorities<br />

in line with our values and best practice<br />

In line with our five-year strategic, operational and staffing plans there has been<br />

further expansion this year which has extended our reach and ability to support<br />

more people with tinnitus and improve our impact in doing so.<br />

During the year we have sought to evaluate<br />

the impact of our strategic aims through<br />

measuring our social return on investment.<br />

Volunteers continue to play an integral<br />

part in our ability to help people with<br />

tinnitus, as well as bringing new and<br />

refreshing approaches and added value.<br />

During the year volunteer numbers<br />

totalled 43, made up of 18 administrators,<br />

11 befrienders, 5 helpline supporters,<br />

5 community outreach supporters, 1 blogger and 3 community speakers.<br />


To enable us to deliver long-term sustainability and growth of the organisation,<br />

we invested in expanding the fundraising team, with the recruitment of two new<br />

members of staff.<br />

The donations and support we receive continue<br />

to improve the lives of people with tinnitus.<br />

Without this support, for which we are very<br />

grateful, our ability to help the tinnitus<br />

community simply wouldn’t be possible.<br />

For more information about our fundraising<br />

activities and how to get involved, please<br />

visit: www.tinnitus.org.uk/fundraise-for-us<br />

For more information about our volunteering opportunities, please visit:<br />




Pat, retired solicitor<br />

“My tinnitus started quite some time ago, after I retired.<br />

My local GP and NHS services were as helpful as they<br />

could be, but after I’d ‘run out of road’ and been through<br />

all they could offer, I heard the dreaded words ‘you have<br />

to live with it’. The anxiety kicked in, which you really have<br />

to fight – you have to deal with this on a daily basis.<br />

I found my local tinnitus support group very, very useful. You realise that you’re not<br />

on your own. There’s lots of support and good quality information out there, and<br />

leading that is the BTA. They are a source of good, solid information which can be<br />

trusted. It’s outstanding. I can’t speak more highly of it.”<br />

Jessica, 16<br />

“I have had tinnitus since I was seven years old and at first,<br />

I didn’t realise it was tinnitus. My nan passed away around that<br />

age and I think that it was the trauma from her death that<br />

caused it.<br />

I told my parents that I could hear things, like a whooshing<br />

sound, and pain in my ears. It was very distressing, and I felt like I didn’t know<br />

what was going on; was there something wrong with me?<br />

My parents took me to see my GP and they arranged to have an MRI scan which<br />

luckily came back as fine. So, I was referred to the audiologist and had my ears<br />

tested and they suggested that I try relaxation techniques because it might be<br />

part of my inability to grieve because of my age.<br />

When I was 15 I was diagnosed with high functioning autism and given sleep<br />

programmes I could attend, relaxation methods and I found just talking about<br />

everything was very helpful. That’s when it was recommended I go back and<br />

see the audiologist because a lot of my anxiety was noise related.<br />

I went to the audiology team in Nottingham and got a pair of tinnitus aids.<br />

After six months I started to use the tinnitus aids less and less to the point<br />

where I didn’t need them anymore.<br />

Claire at the audiology department was so proud of my achievements, it made<br />

me so happy. This is when she suggested that I write an article for the BTA<br />

magazine, Quiet. Because I might inspire others, especially teenagers, to try<br />

some of the things I did.<br />

I want this story to show that it is possible to live with tinnitus.”



Cameron<br />

In September Cameron took on the Baxters Loch<br />

Ness Marathon and chose to support the BTA<br />

as tinnitus affects him personally. Huge<br />

congratulations as this was his first marathon,<br />

finishing in 3 hrs 57 mins and raising £675.<br />

Peter<br />

Peter challenged himself to swim 100 miles<br />

over the year of 2018. He wanted to get<br />

people talking about tinnitus as well as<br />

raising funds for the BTA. He raised over<br />

£1900 and completed his swim by mid-December.<br />

Rachel<br />

Running has helped to provide Rachel with a<br />

a distraction from her tinnitus, which started<br />

following a virus. She decided to run the<br />

Brighton Marathon in aid of the BTA and raised<br />

an amazing £500.



Gifts in Wills pay for around half of our work to help people with tinnitus<br />

The majority of the research projects we have supported would not be possible<br />

without kind donations made in Wills.<br />

When you are writing your Will, it is of course important to consider your family and friends first.<br />

Once you have made provision for your family and feel able to leave something to the British<br />

Tinnitus Association, you can be assured that you will be leaving a long-term legacy to offer hope<br />

and support to people with tinnitus now and in the future.<br />

Types of gifts<br />

You can choose to leave the following types of gifts in<br />

your Will:<br />

1<br />

Share of your estate<br />

You can leave anything from 1% to 100% of your<br />

estate. This is also known as a residual gift.<br />

2Cash gift<br />

A fixed sum of money known as a pecuniary gift.<br />

3<br />

Specific gift<br />

You may choose to leave a specific item in your Will,<br />

such as jewellery, a car, or shares.<br />

Did you know?<br />

Currently, 40% of people<br />

will die without a Will.<br />

This could lead to<br />

significant legal costs, and<br />

a lot of stress for the<br />

family left behind.<br />

If you are interested in leaving a gift to the<br />

British Tinnitus Association, and need more<br />

information, please contact David on<br />

0114 250 9933 or <strong>email</strong> davidsteele@tinnitus.org.uk<br />

We strongly recommend you use a solicitor to<br />

help you make your Will, to ensure that it is legally<br />

valid and that your wishes will be carried out exactly<br />

as you want.



2019-20 will be an exciting year...<br />

As we continue to pursue a world where no one suffers from tinnitus we have outlined<br />

our strategic priorities to shape the future of the charity.<br />

CURE - We plan to:<br />

• Develop the concept of a Tinnitus Biobank<br />

(a database of health information) for a<br />

long-term study into genetic and<br />

environmental factors associated<br />

with tinnitus.<br />

• Publish the electronic Tinnitus Cure Map.<br />

• Make funds available to commission<br />

large and small scale research that uses<br />

existing data or new concepts to help<br />

cure-focused research.<br />

INFORM & PREVENT - We plan to:<br />

• Merge the priority themes of ‘inform’<br />

and ‘prevent’ to focus our preventative<br />

work around campaigns and<br />

effective messaging.<br />

• Across the inform theme we will seek<br />

to continue to increase awareness<br />

of tinnitus and prevention, and how to<br />

get help.<br />

MANAGE - We plan to:<br />

• Continue to deliver, expand, evaluate<br />

and improve our range of services with<br />

an aim to increase the number of<br />

people reporting they are better<br />

able to manage their tinnitus.<br />

• Measure the improvements in the social<br />

value these services achieve.<br />

• Work with professionals to ensure<br />

improved quality of tinnitus services<br />

are available across NHS and private<br />

practice.<br />

DELIVER - We plan to:<br />

• Improve our key resources and<br />

infrastructure, which will include an<br />

office move to accommodate our<br />

growing staff team and improve<br />

support for the existing team of staff<br />

and volunteers.<br />

• Ensure that the organisation continues<br />

to be operationally and financially sound<br />

to deliver our key priorities, values and<br />

best practice.


The BTA receives no direct government funding. We can<br />

only continue our work through the generous support of our<br />

members, donors, fundraisers & grant-making organisations.<br />

Income sources 2018-19<br />

Overall income: £1,010,003<br />

16%<br />

Cost of services 2018-19<br />

Overall spend: £975,201<br />

14%<br />

20%<br />

7%<br />

47%<br />

11%<br />

4%<br />

1%<br />

7%<br />

4%<br />

29%<br />

7%<br />

1%<br />

11%<br />

20%<br />

Trusts & foundations<br />

Sale of services<br />

Tinnitus research<br />

Governance/legal<br />

Personal donations<br />

Sales of goods<br />

Bank interest<br />

Gifts in Wills<br />

Training events/conference<br />

Other charitable activities<br />

Admin/premises<br />

Fundraising<br />

Membership<br />

Cost of goods<br />

Staff costs<br />

Thank you to all our supporters.<br />

British Tinnitus Association<br />

Ground Floor, Unit 5<br />

Acorn Business Park<br />

Woodseats Close<br />

Sheffield S8 0TB<br />

0114 250 9933<br />

info@tinnitus.org.uk<br />

www.tinnitus.org.uk<br />

Helpline: 0800 018 0527<br />

Reg Charity No: 1011145

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