MDF Magazine Issue 62 7 August 2020 (7)

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From TheIn March 2020, the World Health Organization (WHO) declared Coronavirusdisease (COVID-19) a pandemic. Infectious disease outbreaks such asCOVID-19 can cause emotional distress and anxiety. While the main threat posed byCOVID-19 is to people’s physical health, the pandemic is also taking its toll oneconomies, social and cultural activities, and people’s mental health. Thesefeelings of distress and anxiety can occur even in people not at high risk of gettingsick.As a social worker, I think there’s going to be intense feelings of depression andstress due to the lockdown and even after as we deal with the aftereffects of theeconomic meltdown. People’s feelings are intensifi ed to the extremes at themoment, especially because of the uncertainty of what’s going to happen. Thesefeelings are “normal” given our current situation but it is so important not to dwelltoo long in this state. Read our articles about “When life gives you lemons makelemonade”, “The power of resilience” and “7 Low Moments we’ll Experienceduring COVID-19 (& How to Deal with Them)” for some helpful tips to get youthrough this difficult time.In this issue you can also read about how to properly care for your disability equipment, breaking news in researchand stories from people around the world about how they deal with their diagnosis of muscular dystrophy.As always, you will also fi nd inspirational articles in our regular features as well as what the Foundation has beenup to in the last couple of months.In order to keep you, our readers, interested and updated, we will continue to share information and stories ofinterest with you. I would like to invite you to share your stories and let us know what you would like to read aboutin the magazine.jusqu'à la prochaine fois… (until next time)RegardsGerda BrownDATABASE UPDATEAn appeal is made to all members to update their contact details, i.e. telephone number, residentialaddress and email address.Please send your updates to:• National offi ce: gmnational@mdsa.org.za• Gauteng branch: rabie@mdsa.org.za• Cape branch: capemanager@mdsa.org.za• KZN branch: accountskzn@mdsa.org.za.4
Subscription and contributions tothe magazineWe publish three issues of MDFMagazine a year and you can subscribeonline to the magazine or by callingyour nearest branch.If you have any feedback on ourpublications, please contact theNational Office by e-mail atgmnational@mdsa.org.za orcall 011 472-9703.Get all the latest news on the fightagainst muscle-wasting conditions andthe latest research updates. It is oureditorial policy to report ondevelopments regarding the differenttypes of dystrophy but we do notthereby endorse any of the drugs,procedures or treatments discussed.Please consult with your own physicianabout any medical interventions.If you are interested in sharing yourinspirational stories, please let us knowand we'll be in touch to discuss thiswith you. The Foundation would loveto hear from affected members, friends,family, doctors, researchers or anyoneinterested in contributing to themagazine. Articles may be edited forspace and clarity.MDF SA databaseIf you know people affected bymuscular dystrophy or neuromusculardisorders who are not members, pleaseask them to contact us so that we canregister them on our database. If we donot have your current e-mail and postaladdress, please contact your branch sothat we can update your details on ourdatabase.How can you help?Contact the National Office or yournearest branch of the MuscularDystrophy Foundation of SouthAfrica to find out how you can helpwith fundraising events for thoseaffected with muscular dystrophy.FundraisingCrossbow Marketing Consultants (Pty)Ltd are doing invaluable work throughthe selling of annual forward planners.These products can be ordered fromCrossbow on 021 700-6500. Forenquiries contact the National Office bye-mail at gmnational@mdsa.org.za orcall 011 472-9703.MDF ::MDF support informationFor more information about the Muscular Dystrophy Foundation, the benefits ofbeing a member and details on how to become a member, call your nearest branch..NATIONAL OFFICEE-mail: gmnational@mdsa.org.zaWebsite: www.mdsa.org.zaTel: 011 472-9703Address: 12 Botes Street, Florida Park,1709Banking details: Nedbank, currentaccount no. 1958502049,branch code 198765CAPE BRANCH (Western Cape,Northern Cape & part of EasternCape)E-mail: cape@mdsa.org.zaTel: 021 592-7306Fax: 086 535 1387Address: 3 Wiener Street, Goodwood,7460Banking details: Nedbank, currentaccount no. 2011007631,branch code 101109GAUTENG BRANCH (Gauteng,Free State, Mpumalanga, Limpopo& North West)E-mail: gauteng@mdsa.org.zaWebsite: www.mdfgauteng.orgWebsite: www.muscleriders.co.zaTel: 011 472-9824Fax: 086 646 9118Address: 12 Botes Street, Florida Park,1709Banking details: Nedbank, currentaccount no. 1958323284,branch code 192841Pretoria OfficeE-mail: swpta@mdsa.org.zaTel: 012 323-4462Address: 8 Dr Savage Road, Prinshof,PretoriaKZN BRANCH (KZN & part ofEastern Cape)E-mail: kzn@mdsa.org.zaTel: 031 332-0211Address: Office 7, 24 Somtseu Road,Durban, 4000Banking details: Nedbank, currentaccount no. 1069431362, branchcode 198765General MD InformationCape TownLee LeithTel: 021 794-5737E-mail: leeleith@mweb.co.zaGautengRabie ModisaneTel: 011 472-9824E-mail: rabie@mdsa.org.zaDuchenne MDCapeWin van der Berg (Support Group)Tel: 021 557-1423GautengJan Ferreira (Support Group –Pretoria)Cell: 084 702 5290Estelle FichardtTel: 012 667-6806Christine WinslowCell: 082 608 4820Charcot Marie Tooth (CMT)Hettie WoehlerCell: 079 885 2512E-mail: hettie.woehler@gmail.comFacioscapulohumeral (FSHD)Francois HoniballTel: 012 664-3651Barry SnowCell: 083 66 66 270E-mail: barry.snow@worleyparsons.comFriedreich Ataxia (FA)Linda PrykeCell no: 084 405 1169Nemaline MyopathyAdri HaxtonTel: 011 802-7985Spinal Muscular Atrophy (SMA)Zeta StarogradTel: 011 640-1531Lucie SwanepoelTel: 017 683-0287Congenital Muscular DystrophyHanti van EykTel: 082 792 2054Doné van EykTel: 072 598 1163General Support Group GautengEast RandZigi KerstholtCell: 082 499 9384E-mail: z.kerstholt@gmail.com5
Page 1 and 2: Summer Issue 62August 2020MDF merch
Page 3: 05 MDF notice board06 National news
Page 8 and 9: MUSCULAR DYSTROPHY FOUNDATION OF SO
Page 10 and 11: MDor Power ChairBy Vantage Mobility
Page 12 and 13: How to Dress to Impress with Adapti
Page 15 and 16: MDIt is essential that you keepyour
Page 17 and 18: MDchair and make sure the seat rail
Page 19 and 20: MD4. Limb-GirdleBoth boys and girls
Page 21 and 22: MDMedical marijuana may help MD suf
Page 23 and 24: A STEPPING STONE INTOTHE WILDERNESS
Page 25 and 26: FUNDRAISINGThe COVID-19 pandemic ha
Page 27 and 28: FUNDRAISINGMDF merchandisePlease em
Page 29 and 30: Peoplenobody knows what it’s like
Page 31 and 32: PeopleTo that end, Hoffmann hopes t
Page 33 and 34: PeopleDespite the familiar activity
Page 35 and 36: Researchdetection of the disease ca
Page 37 and 38: ResearchBreaking news in researchBy
Page 39 and 40: lockdown meant hardship for a great
Page 41 and 42: Prof Amanda Krause, MBBCh, PhD MB B
Page 43 and 44: KIDDIES CORNERPlay is an important
Page 45 and 46: I know that not everyone is going t
Page 47 and 48: 4. Remain positiveRemember that you
Page 49 and 50: HealthyResearch has shown that aqua
Page 51 and 52: Breathing ProblemsHealthyBy Vijaya
Page 53 and 54: Healthyof emotional response. And t
Page 55 and 56:
HealthyCalcium is a nutrient that s
Page 57 and 58:
Gauteng BranchMaking a difference o
Page 59:
SOMEONE I LOVENeeds a CurePlease Su
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MDF Magazine Issue 62 7 August 2020 (7)

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