MDF Magazine Issue 67 April 2022

More documents

Recommendations

Info

POWERbreathe Better Breathing NEW KHP2-Model for Patients NEW LOAD RANGE 1-78 cmH 2 O NEW NHS APPROVED FOR PRESCRIPTION IN THE UK
CONTENTS MDF MAGAZINE MD Information 10 Products for reduced hand function 12 Cellular Therapy Treats Muscular Dystrophy Effectively 14 New Long-term Approach for Limb-girdle Muscular Dystrophy 16 Investing in Genetic Testing » p.10 People 17 Kevin’s Story 18 Life at the Intersection of Disability and LGBTQ 20 "Nothing I wouldn't do": This dad is climbing Mount Everest to raise awareness and money for his son's condition 22 Life-Saving PJ’s Protocol Was Inspired by a Person With DMD » p.15 » p.20 TRAVEL 26 SAFARI TENT LIVING ... Part 2 Regular Features 25 Doctor’s column 28 The view from down here 30 Random gravity checks Research 32 Fulcrum Plans Phase 3 Trial of Potential 1st Oral Therapy for FSHD 34 Genetic treatment plus exercise reverses fatigue in mice with muscle wasting disease Healthy Living 36 Speech Therapy 38 Eye problems in different types of muscular dystrophies » p.34 Published by: Muscular Dystrophy Foundation of SA Tel: 011 472-9703 Fax: 086 646 9117 E-mail: national@mdsa.org.za Website: www.mdsa.org.za Publishing Team: Managing Editor: Gerda Brown Copy Editor: Keith Richmond Publishing Manager: Gerda Brown Design and Layout: Divan Joubert Cover photo by Strike a Pose Future Issues: August 2022 (Deadline: 1 July 2022) The Muscular Dystrophy Foundation of South Africa We are a non-profit organisation that supports people affected by muscular dystrophy and neuromuscular disorders and that endeavours to improve the quality of life of its members.
Page 1: MAGAZINE Autumn Issue 67 April 2022
Page 5 and 6: MDF Notice Board Subscription and c
Page 7 and 8: National News We are stronger toget
Page 9 and 10: MDF merchandise Please email your o
Page 11 and 12: MD Information Active Hands can giv
Page 13 and 14: MD Information The cardiac MRI also
Page 15 and 16: MD Information Increased muscle deg
Page 17 and 18: PEOPLE KEVIN’S STORY By Centers f
Page 19 and 20: PEOPLE 33-year-old Emily Lund, PhD,
Page 21 and 22: PEOPLE "I am so grateful another da
Page 23 and 24: PEOPLE In 2013, while the family wa
Page 25 and 26: Doctor’s Column Prof Amanda Kraus
Page 27 and 28: TRAVEL visited by four black-backed
Page 29 and 30: not quite sure why that is. A singl
Page 31 and 32: this happen to me before but normal
Page 33 and 34: RESEARCH “We learned from our Pha
Page 35 and 36: RESEARCH repeat. The researchers us
Page 37 and 38: Healthy Living • Exercises to str
Page 39 and 40: Healthy Living Eye problems are com
Page 41 and 42: Gauteng Branch News Muscle Riders 2
Page 43: It is often said that the two most

MDF Magazine Issue 67 April 2022

You also want an ePaper? Increase the reach of your titles

Delete template?

Save as template?