You also want an ePaper? Increase the reach of your titles
YUMPU automatically turns print PDFs into web optimized ePapers that Google loves.
PEOPLE<br />
Advocacy makes a difference<br />
While MDA and many other organizations publicize<br />
the protocol and champion patient advocacy,<br />
medical advances in neuromuscular disease<br />
continue to charge ahead.<br />
Dr. Markham has noticed that more patients and<br />
families are becoming involved with foundations<br />
and organizations to drive clinical care and<br />
research forward. “Patient advocacy has led to<br />
increased focus on proactive care for all DMD<br />
patients,” he says.<br />
In addition, patients and their families are<br />
supporting research through funding or advocating<br />
for new areas of scientific inquiry. “Collectively,<br />
they’re making the case to industry, saying, ‘You<br />
can make progress here,’” he says. “There are any<br />
number of clinical trials of DMD drugs up for FDA<br />
approval, the biggest area of Duchenne research<br />
being gene therapy. That’s the result of advocacy.”<br />
This gives the Nicholoff family hope in the face of<br />
their hurt. “When you lose your child so young, you<br />
never really bury them, but you learn to live with<br />
it.” Brian says. “Not a day passes that I don’t think<br />
of or do something about PJ’s Protocol, because I<br />
know it’s helping people. And PJ lives on because<br />
of that. That’s what makes me smile when I think<br />
of my son.”<br />
Article available at: https://strongly.mda.org/life-saving-pjs-protocol-was-inspiredby-a-person-with-dmd/<br />
Finally, a Compact Life-Support Ventilator<br />
To meet the needs connected to a wide range of respiratory<br />
conditions, a ventilator must offer outstanding clinical<br />
versatility and performance. However, just as importantly,<br />
it must be designed around the patient’s life, activities and<br />
home environment. That’s why we’ve created Vivo 45 LS<br />
– a life support ventilator for adult and paediatric patients<br />
from 5 kg.<br />
The Vivo 45 LS is designed to maximize independence<br />
and mobility. That’s what we mean by “Designed For EveryDay<br />
Life”. Same ventilator through life The Vivo 45 LS<br />
is adjustable for the patient’s needs, and can adapt as<br />
those needs change. This means that a patient can stay<br />
with one device throughout any disease progression, for<br />
non-invasive or invasive treatment, and up to the point of<br />
ventilator dependency.<br />
Find more on Respiratory &<br />
Ventilation Channels Medical<br />
Group<br />
24<br />
Or call us on 086 111 4028
Change language