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LGMD manual

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Lumbar corset<br />

Lumbosacral orthosis<br />

Hip knee ankle foot orthosis (HKAFO)<br />

Knee ankle foot orthosis (KAFO)<br />

Spinal brace<br />

Wheelchair – non-powered or powered<br />

3.8. Gene therapy<br />

Physiopedia 6 states: “Gene therapy and stem cell therapy can introduce genetic material in cells helping<br />

them to function in a normal manner. Stem cell therapy shows promising results and with exercises, a<br />

definite improvement can be seen.”<br />

3.9. Exercise<br />

The <strong>LGMD</strong> Awareness Foundation 7 notes as follows:<br />

Clinical studies in some <strong>LGMD</strong>s showed that moderate exercise, contrary to extreme exercise or<br />

no exercise, helps maintain muscle strength and therefore quality of life. This conclusion is in line<br />

with the feedback from people with <strong>LGMD</strong>. The challenge has been to define what represents<br />

moderate exercise for people with <strong>LGMD</strong>.<br />

Some experts recommend swimming and water exercises as a good way to keep muscles as<br />

toned as possible without causing undue stress on the muscles and joints. Some physical therapy<br />

clinics offer special aquatic therapy. The buoyancy of the water helps protect against certain<br />

kinds of muscle strain and injury. Before undertaking any exercise program, make sure you<br />

contact your doctor. (And don’t swim alone.)<br />

3.10. Diet and nutrition<br />

Muscular Dystrophy News 10 explains that a balanced diet is important to the health of people with<br />

muscular dystrophy. The following helpful guidelines are provided 10 :<br />

Choosing the right diet<br />

Getting sufficient nutrition can be a challenge for people with muscular dystrophy. Many have<br />

difficulty chewing and swallowing, or feel fatigue at levels that reduce appetite and make eating<br />

a chore. Limited caloric intake can break down muscles faster, possibly speeding disease<br />

progression.<br />

A registered dietitian should be part of patients’ care team. The dietitian can help in constructing<br />

an appropriate meal plan so patients get the nutrition they need in ways easy to eat and<br />

swallow. This might mean substituting a meal-replacement shake for solid foods, or turning to<br />

softer foods. Many patients can also benefit from taking vitamin supplements, but this should be<br />

in consultation with a healthcare professional. Dietitians can also recommend recipes and meal<br />

preparation strategies.<br />

A well-balanced diet that is high in protein, and rich in leaner meat like fish or poultry, is<br />

important. Because many patients struggle with constipation due to weak stomach muscles and<br />

limited mobility, many dietitians recommend a diet high in fiber as well.<br />

Mealtime strategies<br />

Several strategies can help make mealtimes easier for people with muscular dystrophy:<br />

9

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