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ABOUT THE MUSCULAR DYSTROPHY FOUNDATION OF SOUTH AFRICA<br />
The Muscular Dystrophy Research Foundation of South Africa was founded in 1974 by Mr and Mrs<br />
Newton Walker of Potchefstroom, who, at the time, had a son affected with Duchenne muscular<br />
dystrophy. They felt there was a need to reach out to other parents and families in a similar situation.<br />
Today the Muscular Dystrophy Foundation of South Africa (MDFSA) is a registered non-profit<br />
organisation – Reg. No. 004-152 NPO – consisting of a national office and three branches, which operate<br />
in the nine provinces of South Africa.<br />
The mission of the Foundation is to support people affected by muscular dystrophy and to improve the<br />
quality of life of its members. We assist affected persons and their families by providing access to<br />
information regarding specific dystrophies, workshops, support groups, referral to genetic counselling<br />
and health facilities, and providing assistive devices when funding is available.<br />
National Office<br />
12 Botes Street, Florida Park<br />
Tel. 011 472-9703<br />
Gauteng Branch (Gauteng, Free State, Mpumalanga, Limpopo and North West)<br />
12 Botes Street, Florida Park<br />
Tel. 011 472-9824<br />
KZN Branch (KwaZulu-Natal and part of Eastern Cape)<br />
Office 7, 24 Somtseu Road, Durban<br />
Tel. 031 332-0211<br />
Cape Town Branch (Western Cape, Northern Cape and part of Eastern Cape)<br />
3 Wiener Street, Goodwood<br />
Tel. 021 592-7306<br />
The Executive Committee of the Muscular Dystrophy Foundation of South Africa thanks<br />
Sarepta Therapeutics for their generous grant to make this <strong>manual</strong> possible.<br />
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