2010 review - Patient-Reported Outcomes Measurement - University ...

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undergoing ECP. However, it is (intentionally) narrow in scope, and does not appear to have been evaluated in UK patients undergoing ECP. There is little evidence to support the use with patients undergoing ECP of two other wellestablished PROMs for CAD, namely the Kansas City Cardiomyopathy Questionnaire and the MacNew. Amongst the large number of cardiovascular-specific, dimension-specific PROMs identified, some may be useful for narrowly-focused studies. However, most of these measures have limited evidence of psychometric properties and, given their limited scope, cannot be recommended for routine use in the NHS. Recommendations Based on this appraisal, the following instruments were recommended for consideration by a multidisciplinary panel (see Appendix D): 1. SF-36 2. EQ-5D 3. SAQ 4. CROQ According to the ratings and comments of the panel, the EQ-5D and the SF-36 scored equally well as generic measures of health status whilst the cardiovascular-specific measures, namely, the SAQ and the CROQ suite of questionnaires, were also rated as equivalent. The PROM Group concludes that the following measures have the strongest evidence for use with patients undergoing elective procedures for coronary revascularisation: a. Preference-based measure: EQ-5D b. Generic, multidimensional measure: SF-36 c. Cardiovascular-specific, multidimensional measure: SAQ In the third category, with further evidence, the CROQ would merit consideration in the future. 34
Table 2: Appraisal of PROMs included in the <strong>review</strong> (see Appendix B for a guide to these rating scales) PROM Reproducibility Internal Validity – Validity – Responsiveness Interpretability Precision Acceptability Feasibility consistency content construct Preference-based measures 15D 0 + + + + 0 0 + - EQ-5D 0 n/a 0 ++ + + 0 + 0 HUI 0 0 0 + + 0 - + - SF-6D Generic measures 0 0 + + + 0 - + 0 FSQ 0 + 0 + + 0 0 + 0 NHP 0 0 0 + + + 0 0 0 SF-36 0 ++ 0 +++ +++ 0 - ++ 0 SF-20 0 0 0 + + 0 0 0 0 SF-12 0 0 0 ++ + 0 0 + - SIP 0 + 0 ++ + 0 0 - 0 Condition-specific measures CSS + + + + + 0 0 0 0 CROQ + + + + + 0 0 + 0 DASI 0 0 ++ +++ ++ + + 0 ++ HSSI + + + + 0 0 0 0 0 KCCQ 0 0 0 0 + 0 0 + 0 MacNew 0 0 0 0 + 0 0 + 0 QLI-CV 0 + 0 + + 0 0 0 0 SAQ + + ++ +++ +++ ++ 0 ++ + SOIS 0 + + + 0 0 0 0 0 35
Page 1: PATIENT-REPORTED OUTCOME MEASUREMEN
Page 5: A STRUCTURED REVIEW OF PATIENT-REPO
Page 8 and 9: Fifteen cardiovascular-specific mea
Page 10 and 11: Heart disease in the UK Coronary he
Page 12 and 13: Hand-searching of titles of key jou
Page 14 and 15: 2. PREFERENCE-BASED MEASURES Four p
Page 16 and 17: Response rates of 93% and above wer
Page 18 and 19: 3. GENERIC PROMs Six generic measur
Page 20 and 21: Responsiveness of the NHP was suppo
Page 22 and 23: The PF subscale discriminated betwe
Page 24 and 25: neuropsychologic deficits, and mood
Page 26 and 27: (2009), with women having significa
Page 28 and 29: 4. CARDIOVASCULAR-SPECIFIC PROMs Ca
Page 30 and 31: larger than for the SF-36 SF and MH
Page 32 and 33: Responsiveness of the DASI was illu
Page 34 and 35: satisfaction with various aspects o
Page 36 and 37: the SAQ AF and QL scales showed sig
Page 38 and 39: Content of the SOIS was based on fa
Page 42 and 43: Table 3: Summary of instruments: he
Page 44 and 45: Table ii: Appraisal criteria Apprai
Page 46 and 47: SF-20: MOS 20-item Short Form Healt
Page 48 and 49: Duke Activity Status Index, DASI (1
Page 50 and 51: Appendix C Table v: Summary of card
Page 52 and 53: Control Attitudes Index* *Moser & D
Page 54 and 55: Appendix D Membership, methods of w
Page 56 and 57: CROQ This suite of instruments was
Page 58 and 59: Patient-reported Outcome Measure Ra
Page 60 and 61: Appendix E: Abbreviations and acron
Page 62 and 63: Barnason S, Zimmerman L, Nieveen J,
Page 64 and 65: Department of Health, London, March
Page 66 and 67: Höfer S, Lim L, Guyatt GH, Oldridg
Page 68 and 69: Lee GA. Patients reported health-re
Page 70 and 71: Penckofer S, Ferrans CE, Fink N, Ba
Page 72 and 73: Spertus JA, Winder JA, Fihn SD, Dew
Page 74: Zhang Z, Spertus JA, Mahoney EM, Bo

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