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Ontario Division Impact Report - Multiple Sclerosis Society of Canada

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mssociety.ca<br />

Fall 2007<br />

ONTARIO<br />

o n t a r i o d i v i s i o n 2 0 1 0<br />

impact report<br />

You above<br />

everything<br />

You above<br />

everything<br />

1


When you read a story, what gets your attention? For most<br />

<strong>of</strong> us, it is the people in the story that matter the most.<br />

The 2010 <strong>Ontario</strong> <strong>Division</strong> <strong>Impact</strong> <strong>Report</strong> – You above<br />

Everything – shares with you stories <strong>of</strong> people who have<br />

made a difference for people living with MS.<br />

People living with MS are at the centre <strong>of</strong> all that we do to<br />

end MS. In these pages, we present snapshots <strong>of</strong> activities<br />

from 2010 that demonstrate the need, action and impact<br />

<strong>of</strong> our work to support people living with MS.<br />

Be inspired by the demonstration <strong>of</strong> the positive impacts<br />

<strong>of</strong> our client services programs on those living with MS.<br />

These programs are made possible by the fundraising<br />

efforts <strong>of</strong> many individuals, corporations and sponsors.<br />

Highlighted in this report are A&W store owner Priya Dhanoa’s<br />

efforts to support MS and the generous donation <strong>of</strong><br />

the Co-operators Group to our leadership giving program.<br />

Read about our research and advocacy activities such<br />

as those in relation to CCSVI. Throughout 2010, the MS<br />

<strong>Society</strong> listened to the needs and hopes <strong>of</strong> people with MS<br />

and their interest in CCSVI, and took urgent action on a<br />

number <strong>of</strong> fronts to pursue answers on the relationship<br />

between CCSVI and MS.<br />

On the cover:<br />

Ralph Cochrane, the founder <strong>of</strong> the adventure hiking program MS<br />

Climb, has committed to raising $1 million dollars over five years<br />

through the program to support the MS <strong>Society</strong>. Now in its fourth<br />

year, MS Climb has already raised more than $720,000. This image<br />

features Cochrane in Nepal at Everest Base Camp.<br />

Our Mission: To be a leader in finding a cure<br />

for multiple sclerosis and enabling people<br />

affected by MS to enhance their quality <strong>of</strong> life.<br />

2 OntariO divisiOn <strong>Impact</strong> RepoRt 2010<br />

You above<br />

everything<br />

Discover what inspires Betty Davis, one <strong>of</strong> the founding<br />

members <strong>of</strong> WAMS (Women Against MS). Women are<br />

three times more likely to develop MS than men. Celebrating<br />

its fifth anniversary in 2010, WAMS was established<br />

as a networking and fundraising opportunity to support<br />

women living with MS. From its beginnings, WAMS has<br />

had a positive impact on women with MS.<br />

Our work in supporting people with MS is carried out by<br />

many dedicated volunteers, and we thank all <strong>of</strong> you who<br />

contribute your time and energy to the important work<br />

that we do, with a special thank you to Bill Ebel and Sean<br />

Foran who retired from the <strong>Ontario</strong> <strong>Division</strong> board <strong>of</strong> directors<br />

after serving their 2010 terms.<br />

Over the past year <strong>Ontario</strong> <strong>Division</strong> volunteers and staff<br />

have worked diligently to reflect the needs <strong>of</strong> all Ontarians<br />

living with MS. With our focus on people living with MS,<br />

our path to end MS is firmly set.<br />

John Clifford Yves Savoie<br />

Chair, Board <strong>of</strong> Directors President


CCSVI<br />

Supporting choice, ensuring care, pursuing answers<br />

Yassemin Cohanim with fellow MS <strong>Society</strong> volunteer Joan Gallagher-Bell work to advance positive political change for people with MS.<br />

Need<br />

In November 2009 Italian researcher Dr. Paolo Zamboni<br />

made headlines with his study <strong>of</strong> chronic cerebrospinal<br />

venous insufficiency (CCSVI) and its potential link to multiple<br />

sclerosis. Members <strong>of</strong> the MS community responded<br />

with great hope, excitement and a call for immediate action.<br />

“When news <strong>of</strong> CCSVI broke my immediate reaction was<br />

that there was a need for investigation and that we needed<br />

to move ,” said Yassemin Cohanim, who has lived with MS<br />

for 30 years and who is a volunteer with the MS <strong>Society</strong> <strong>of</strong><br />

<strong>Canada</strong>, <strong>Ontario</strong> <strong>Division</strong>. “An important part <strong>of</strong> this was<br />

acknowledging and supporting every person with MS in<br />

choosing their own way. It was important to ensure that<br />

the necessary information to make informed decisions<br />

about individual care and well being was made available.”<br />

ACtION<br />

Supporting people with MS is at the heart <strong>of</strong> what we do,<br />

and we announced a special research competition in CCSVI<br />

and MS in December 2009. Recognizing the need for collaboration,<br />

we contributed $2.4 million in research funding in<br />

June 2010 with our US counterpart, the National MS <strong>Society</strong>,<br />

to help answer questions about the link between CCSVI<br />

and MS. We also called on governments to earmark funds<br />

for a pan-Canadian therapeutic trial on CCSVI, so that an<br />

immediate infusion <strong>of</strong> funding will be available if and when<br />

such a trial is warranted based on scientific evidence. We set<br />

the stage by being the first to earmark $1 million.<br />

Together with the government <strong>of</strong> <strong>Ontario</strong>, and other gov-<br />

ernments, we worked to better understand the level <strong>of</strong> evidence<br />

required to provide treatment in <strong>Canada</strong>, and to ensure<br />

that those who have travelled abroad for treatment receive<br />

much-needed follow-up care when they return home.<br />

IMpACt<br />

The tremendous outreach <strong>of</strong> the MS community as a<br />

result <strong>of</strong> CCSVI helped draw public attention to MS in<br />

unprecedented ways that will benefit not just those who<br />

undergo treatment for CCSVI but the MS community<br />

at large. In responding to requests from the MS <strong>Society</strong>,<br />

in 2011 the federal minister <strong>of</strong> health announced a new<br />

monitoring system for MS, which will capture information<br />

to help identify disease patterns and track treatments and<br />

long-term outcomes for people living with MS, including<br />

those who have undergone treatment for CCSVI.<br />

Several other governments acted, including the government<br />

<strong>of</strong> <strong>Ontario</strong>, which created an expert advisory group<br />

to provide advice on follow-up care and develop best practice<br />

guidelines on treatment for people with MS who return<br />

to <strong>Ontario</strong> after undergoing CCSVI treatment abroad.<br />

“When it comes to CCSVI and MS, there are still many<br />

questions to be answered and a need for ongoing research.<br />

I am very appreciative <strong>of</strong> the support and services provided<br />

by the MS <strong>Society</strong>. What matters to me is knowing that the<br />

MS <strong>Society</strong> will be there for me, to support me, regardless<br />

<strong>of</strong> my personal treatment choices,” said Yassemin. “What<br />

also matters is knowing that I played a part in making<br />

all <strong>of</strong> this happen. What may come <strong>of</strong> these actions will<br />

ultimately benefit me and others who are living with MS.”<br />

To find out more about CCSVI and MS visit<br />

www.ccsvi.ca<br />

3


A&W<br />

Breaking down boundaries<br />

2010 National MS/A&W Ambassador Amanda Piron, who lives with MS, shows her appreciation to A&W’s Great Root Bear.<br />

Need<br />

<strong>Ontario</strong> is home to between 21,000 – 29,000 people living<br />

with MS. With 38 chapters and units across the province,<br />

the MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>, <strong>Ontario</strong> <strong>Division</strong> aims to provide<br />

as many services as possible to those with multiple<br />

sclerosis and their families, but it is our volunteers, sponsors<br />

and partners who help us unite communities and<br />

spread awareness even further.<br />

"On this one day, there are<br />

only smiles and good will by<br />

our customers, our staff<br />

and the entire community.<br />

The event is a success but<br />

we are always looking for<br />

ways to be more involved<br />

and make it even better."<br />

Priya Dhanoa, A&W franchisee<br />

4 OntariO divisiOn <strong>Impact</strong> RepoRt 2010<br />

ACtION<br />

In <strong>Ontario</strong>, and across the country, A&W is one <strong>of</strong> these<br />

partners. On one day every August, more than 700 A&W<br />

stores from coast to coast donate $1 to the MS <strong>Society</strong><br />

from the sale <strong>of</strong> every Teen Burger sold through Cruisin’<br />

for a Cause. In addition, coin boxes are at every cash register<br />

and cut-outs are sold at every store throughout the<br />

summer. Priya Dhanoa, a Mississauga-based A&W franchisee,<br />

representative <strong>of</strong> Dhanoa Hospitality Group and<br />

an Inspirational Champion for the event, says, “On this<br />

one day, there are only smiles and good will by our customers,<br />

our staff and the entire community. The event is<br />

a success but we are always looking for ways to be more<br />

involved and make it even better.”<br />

Priya contacted her local chapter in Mississauga, and<br />

together they added several activities, such as selling<br />

paper carnations each May to promote MS Awareness<br />

Month. In addition, Priya and her employees at several<br />

store locations have also begun participating in the MS<br />

Walk each April; in their first year the group had over<br />

21 team members at the Mississauga/Streetsville Walk.<br />

“The MS Walk is such a great event for our staff to attend.<br />

They can attend with their entire families,” Priya commented.<br />

IMpACt<br />

Across <strong>Canada</strong>, Cruisin’ for a Cause raised over $720,000<br />

for the MS <strong>Society</strong>, including over $140,000 in <strong>Ontario</strong>,<br />

which helps provide much needed services and support<br />

to people in communities throughout the province. Priya<br />

and her family take great pride in giving back to their<br />

community. “Now that we are in a place to do so, we love<br />

seeing the impact we are making in our community.”<br />

For Priya giving back is a first priority.


Need<br />

Women are three times more likely than men to develop<br />

multiple sclerosis. The MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> recognizes<br />

the need for a platform dedicated to women whose lives<br />

have been touched by MS, or who want to learn about<br />

becoming better philanthropists for the MS <strong>Society</strong>.<br />

ACtION<br />

Celebrating its fifth anniversary in 2010, Women Against<br />

MS (WAMS) is a powerful collective <strong>of</strong> pr<strong>of</strong>essional<br />

women dedicated to raising funds to end MS. Initially<br />

sponsored by EMD Serono (which remains a key sponsor),<br />

sponsors now include Anne Klein and Collega Aveda.<br />

WAMS events engage women in the business community<br />

through networking receptions and its cornerstone gala<br />

luncheon. Each year, the sold-out luncheon honours a<br />

woman for her commitment to philanthropy. In 2010,<br />

over 600 women attended the luncheon in Toronto to<br />

honour Phyllis Yaffe, former CEO <strong>of</strong> Alliance Atlantis<br />

and chair <strong>of</strong> the WAMS committee, and express their<br />

dedication to finding a cure for MS.<br />

Women Against MS<br />

Strength in numbers<br />

Left to right: Phyllis Yaffe, Betty Davis, Helga Schnider, Susan Latter, Michelle Capobianco and Terri Garr<br />

Fact: Three out <strong>of</strong> four people with MS are women.<br />

IMpACt<br />

Since its inception, WAMS in <strong>Ontario</strong> has raised over $1.7<br />

million for the Transitional Career Development Award,<br />

an endMS Research and Training Network grant. This<br />

five-year research grant, worth $500,000, is awarded to an<br />

outstanding postdoctoral or clinical fellow to fund the last<br />

two years <strong>of</strong> their postdoctoral study, as well as their first<br />

independent MS or MS-related faculty position within a<br />

Canadian university or teaching hospital.<br />

WAMS events in <strong>Ontario</strong> have created a ripple effect across<br />

the country and throughout the MS community, spreading<br />

to Montreal, Vancouver and Victoria. Additionally, the<br />

initiative has inspired WAMS fundraising teams for the<br />

MS Walk and RONA MS Bike tours.<br />

WAMS also provides a safe space for women with MS to<br />

talk about their disease. Betty Davis, WAMS co-founder<br />

and Group Account Director at Klick Pharma says, “Increasingly<br />

more women have self-identified. I am happy<br />

and proud to know that WAMS has helped these women<br />

come forward to say ‘I have MS and this has given me the<br />

forum to tell you about it.’”<br />

How to Engage: Learn more about how to get involved with WAMS at<br />

womenagainstms.com<br />

5


Client Services<br />

A helping hand<br />

Catherine Calvert, like many others, has found help and support with the MS <strong>Society</strong>.<br />

Need<br />

MS is a complex and unpredictable disease. Each individual<br />

living with MS faces challenges that are unique and that<br />

change over time, including the need to access accurate<br />

information about the disease, finding a friendly ear and<br />

obtaining financial assistance for services and equipment<br />

that provide increased mobility and independence.<br />

ACtION<br />

Catherine Calvert, an independent woman living with<br />

MS since 1990, has seen her needs change over the years.<br />

Early in her diagnosis, Catherine made use <strong>of</strong> a walker to<br />

assist her mobility. Today, Catherine moves from place<br />

to place with the aid <strong>of</strong> a power wheelchair. Catherine,<br />

like many on the MS journey, faces these challenges with<br />

courage, determination and with support from family<br />

and friends and the MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>.<br />

Catherine first contacted the MS <strong>Society</strong>’s <strong>Ontario</strong> <strong>Division</strong><br />

<strong>of</strong>fice in 1996. Her initial inquiry into MS <strong>Society</strong> services<br />

and support was the beginning <strong>of</strong> a long and supportive<br />

relationship with our client services team. The MS <strong>Society</strong><br />

<strong>of</strong>fers Catherine and all Ontarians living with the daily<br />

challenges <strong>of</strong> MS a wide variety <strong>of</strong> programs and services<br />

that promote personal independence and contribute to an<br />

enhanced quality <strong>of</strong> life.<br />

The Equipment Program provides financial support<br />

for the purchase <strong>of</strong> safety equipment for the home and<br />

for mobility aids. It also provides long-term loans for<br />

a variety <strong>of</strong> medical equipment and covers the cost <strong>of</strong><br />

equipment repairs and servicing. The Special Assistance<br />

Program provides clients with financial assistance for<br />

services that may include housecleaning, yard care, snow<br />

removal, transportation, respite care and attendant care.<br />

6 OntariO divisiOn <strong>Impact</strong> RepoRt 2010<br />

These are two <strong>of</strong> the programs Catherine – and many<br />

others – has accessed. The MS <strong>Society</strong> also provides information<br />

and referral services, support groups and other<br />

programs that make a positive and significant impact<br />

on the lives <strong>of</strong> people living with MS, and their families,<br />

friends and caregivers.<br />

IMpACt<br />

“The MS <strong>Society</strong>’s financial assistance for my daily attendant<br />

care needs and towards the purchase <strong>of</strong> home<br />

safety aids means I have fewer financial barriers to face,”<br />

says Catherine Calvert. “You can always find help and<br />

support from the MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>. They are always<br />

there to extend a hand to help me through this battle.<br />

It takes stress <strong>of</strong>f my shoulders knowing that someone<br />

understands what I am going through and is there to<br />

make my journey easier.”<br />

The Equipment Program provides<br />

financial support for the purchase <strong>of</strong> safety<br />

equipment for the home and for mobility aids.<br />

The Special Assistance Program provides<br />

clients with financial assistance for services that may<br />

include housecleaning, yard care, snow removal,<br />

transportation, respite care and attendant care.


Community Capacity Builders<br />

The Co-operators<br />

Members <strong>of</strong> The Co-operators team Kathy Krammer, Leona Spruyt, and Michelle Chubak, from left to right.<br />

Need<br />

<strong>Canada</strong> has one <strong>of</strong> the highest rates <strong>of</strong> MS in the world.<br />

There are between 55,000 – 75,000 Canadians who have<br />

been diagnosed with MS; 21,000 – 29,000 <strong>of</strong> these individuals<br />

reside in <strong>Ontario</strong>. MS is most <strong>of</strong>ten diagnosed in<br />

young adults: individuals who are finishing school, starting<br />

careers and beginning families. During their lifetime,<br />

on average, each individual with MS will need an estimated<br />

$1.6 million in care and support to deal with their<br />

illness. A diagnosis <strong>of</strong> MS impacts the entire family, our<br />

communities and society as a whole.<br />

ACtION<br />

The Co-operators Group Limited is a Canadian-owned<br />

co-operative with more than $42 billion in assets under<br />

administration. Through its group <strong>of</strong> companies it <strong>of</strong>fers<br />

home, auto, life, group, travel, commercial and farm insurance,<br />

as well as investment products. The Co-operators is<br />

well known for its community involvement and its commitment<br />

to sustainability and is committed to making a<br />

meaningful difference in the communities where they live<br />

and work.<br />

“When we approached the MS <strong>Society</strong>, we wanted to have<br />

an impact on the lives <strong>of</strong> people living with MS in our communities,<br />

but we soon realized that we could help people<br />

now and in the future,” said Glenn Bohay, manager, community<br />

relations, Co-operators Life Insurance Company.<br />

Between 2002 and 2010, The Co-operators pledged over<br />

$8,000 to numerous event participants across the country<br />

and provided over $18,000 to help the MS <strong>Society</strong>, <strong>Ontario</strong><br />

<strong>Division</strong> provide help and hope to people living with MS.<br />

IMpACt<br />

Through dedicated, ongoing support, The Co-operators<br />

has built a strong relationship with the MS community and<br />

has helped them benefit from the services and support the<br />

MS <strong>Society</strong> provides.<br />

Realizing the impact <strong>of</strong> their contributions, The Co-operators<br />

team was motivated to do more and in 2010 announced<br />

at $60,000 gift to support the MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>’s<br />

research program. The Co-operators MS <strong>Society</strong> <strong>of</strong><br />

<strong>Canada</strong> PhD Studentship will support one PhD studentship<br />

award annually from 2011-2014.<br />

As Barbara Turley-McIntyre, director, sustainability and<br />

corporate citizenship, Co-operators Life Insurance Company<br />

noted, “Through this award, we can make a real difference<br />

in a young researcher’s life, who can potentially make<br />

all the difference in the lives <strong>of</strong> those who live with MS.”<br />

"When we approached the<br />

MS <strong>Society</strong>, we wanted to<br />

have an impact on the lives<br />

<strong>of</strong> people living with MS<br />

in our communities..."<br />

Glenn Bohay, manager, community relations<br />

Co-operators Life Insurance Company<br />

7


donor Recognition<br />

<strong>Ontario</strong> leadership giving donors<br />

The MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>, <strong>Ontario</strong> <strong>Division</strong> is proud to celebrate the following<br />

individuals, corporations and foundations that provided generous gifts to the<br />

MS <strong>Society</strong>’s Leadership Giving program to support research and client services.<br />

$25,000+<br />

The <strong>Ontario</strong> Trillium Foundation<br />

Alanne O'Gallagher<br />

Airoute Cargo Express<br />

The Catherine & Maxwell Meighen Foundation<br />

$10,000-$24,999<br />

Pfizer <strong>Canada</strong> Inc.<br />

Jason Mann<br />

Mary Gendron<br />

J.P. Bickell Foundation<br />

Jason Park<br />

R. Mackenzie Barford<br />

Medtronic <strong>of</strong> <strong>Canada</strong> Ltd.<br />

RBC Financial Group, through the RBC Foundation<br />

The Lawrason Foundation<br />

Scotia Capital<br />

Novartis Pharmaceuticals <strong>Canada</strong> Inc<br />

$5,000-$9,999<br />

The Alice & Murray Maitland Foundation<br />

Paloma Foundation<br />

Patrice Walch-Watson<br />

The Cadillac Fairview Corporation Limited<br />

Leon's Furniture Limited<br />

The Arthur and Audrey Cutten Foundation<br />

The Lloyd Carr-Harris Foundation<br />

John Clifford<br />

Gale Kelly<br />

8 OntariO divisiOn <strong>Impact</strong> RepoRt 2010<br />

$1,000-$4,999<br />

Anonymous (2)<br />

Ken Kavanagh<br />

Bill Needles Memorial Golf Tournament<br />

CN Employees’ and Pensioners’ Community Fund<br />

In memory <strong>of</strong> Graham Hill<br />

Four Seasons Hotels Limited<br />

Kreiner Family Fund at the Strategic Charitable Giving Foundation<br />

John & Patricia McGugan<br />

EMD Serono<br />

OPG Employees' & Pensioners' Charity Trust<br />

Audrey Jackson Charitable Gift Fund at the<br />

Strategic Charitable Giving Foundation<br />

Gene Kosmyna<br />

DUCA Financial Services Credit Union Ltd.<br />

Collombin Family Flow Through Fund at the Toronto<br />

Community Foundation<br />

The BLG Foundation<br />

Macquarie Private Wealth<br />

Harvey & Leah Fruitman<br />

Hutchinson Charitable Fund at the Strategic Charitable<br />

Giving Foundation<br />

Joe & Joan Koole<br />

Gor-Fay Realty Co. Ltd.<br />

Mark Whitmore<br />

Mary Jane Ferguson<br />

Stoute-Hill Family Fund<br />

Joan Lowden<br />

BMO Employee Charitable Foundation<br />

David Chernos<br />

Sybrand Koole<br />

Jackman Foundation<br />

Paul Faynwachs In Trust<br />

The Powis Family Foundation<br />

Paediatric Associates - Women's College Hospital<br />

McLeish Containers<br />

Isberg Family Foundation at the Charitable Gift Funds<br />

<strong>Canada</strong> Foundation<br />

Jim Ruyter


endMS Circle ($1,000,000 +)<br />

The Waugh Family Foundation<br />

Breakthrough Circle ($500,000 - $999,999)<br />

Anonymous<br />

CIBC<br />

EMD Serono<br />

Garrett Herman<br />

Louis J. Maroun<br />

Scotiabank<br />

Women Against MS (WAMS)<br />

discovery Circle ($250,000 - $499,999)<br />

Anonymous<br />

The Rudolph P. Bratty Family Foundation<br />

Bob Decker<br />

The Goodman Family and the Dundee Group <strong>of</strong> Companies<br />

Rogers Communications<br />

Knowledge Circle ($100,000 - $249,999)<br />

Sandy & Margot Aird<br />

Biogen Idec <strong>Canada</strong> Inc.<br />

Ian & Kiki Delaney<br />

Deloitte & Touche Foundation <strong>Canada</strong><br />

endMS Gala Corporate Challenge<br />

Ernst & Young LLP<br />

Susan A. Murray<br />

Robert H. Pitfield<br />

PricewaterhouseCoopers LLP<br />

Research In Motion Limited<br />

Kevin & Sandra Sullivan<br />

Richard & Heather Thomson<br />

donor Recognition<br />

endMS donors<br />

We are proud to recognize the following donors who made<br />

pledges and gifts to the endMS campaign in 2010.<br />

patron ($50,000 - $99,999)<br />

Anonymous<br />

The Co-operators<br />

Costco Wholesale <strong>Canada</strong> Ltd.<br />

Purdy & Bea Crawford<br />

John Feld & Phyllis Yaffe<br />

Alistair M. Fraser<br />

IBM <strong>Canada</strong><br />

Peter & Allison Jelley<br />

Kenneth Macgowan<br />

Osler, Hoskin & Harcourt LLP<br />

Bruce & Sylvia Richmond<br />

Mark & Sarah Wellings<br />

Benefactor ($25,000 - $49,999)<br />

Anonymous<br />

Stewart Busbridge<br />

John F. Clifford<br />

Cuddy Farms Corporation, in memory <strong>of</strong> A.M. Cuddy<br />

Rueben & Rhonda Devlin<br />

George Fine<br />

David & Beverly Garton<br />

Helen Kearns<br />

David L. Knight<br />

John & Gail MacNaughton<br />

McMillan LLP<br />

Kathleen Murphy & Harry Joosten<br />

J.E. Panneton Family Foundation<br />

Honourable Madam Justice Sarah Pepall<br />

Phillips, Hager & North Investment Management Ltd.<br />

Sun Life Financial<br />

William D. Swisher<br />

Trudell Medical International, in memory <strong>of</strong> A.M. Cuddy<br />

Gabriel Tsampalieros<br />

9


donor Recognition<br />

endMS donors<br />

We are proud to recognize the following donors who made<br />

pledges and gifts to the endMS campaign in 2010.<br />

Leader ($10,000 - $24,999)<br />

Anonymous<br />

Paul Atkinson<br />

Rob Barbara<br />

Michael Bernstein & Nandini DasGupta<br />

Frances Carmichael & Jack Cashman<br />

Elan Pharmaceuticals<br />

Stanley H. Hartt<br />

Highland Farms Inc.<br />

Ramsay Holmes<br />

In honour <strong>of</strong> Susan Huycke & Sylvia Bosworth<br />

Andy Kent<br />

Macquarie Group Foundation<br />

Ken & Suzanne Mayhew<br />

Nixon Charitable Foundation<br />

Leslie Noble<br />

Daniel Nowlan<br />

Yves Savoie<br />

Scotia Capital<br />

Michael Shuh & Michelle Fiebig<br />

Investor ($5,000 - $9,999)<br />

Yolanda Bronstein<br />

Mike den Haan & Family<br />

Dominique Hansen<br />

Douglas C. & Ann Mackay<br />

Mike McClintock<br />

Sassafraz<br />

We apologize for any errors or omissions.<br />

10 OntariO divisiOn <strong>Impact</strong> RepoRt 2010<br />

Supporter ($1,000 - $4,999)<br />

Anonymous (3)<br />

Joshua Arbuckle<br />

Chris Breen<br />

Burgundy Asset Management Ltd.<br />

Jonathan Ehrlich<br />

Ian Fraser<br />

Jeff & Sandra Goldstein<br />

Rohit & Aimee Gupta<br />

Kevin Li & Lori Sugarman<br />

Fred & Gail Pamenter<br />

Paul Pathak<br />

Jeremy Rakusin<br />

Allen Stern<br />

John Walsh<br />

Waterloo Chapter, MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> -<br />

Fall Fashion Fantasy Show<br />

Mark Whitmore<br />

The endMS campaign and the research it supports<br />

gives us great hope that we will one day end this<br />

disease that affects our friends and family.<br />

We would like to personally thank all <strong>of</strong> those<br />

who have contributed to the campaign.<br />

Your support will make a tremendous impact<br />

on the lives <strong>of</strong> people with MS and on<br />

future generations <strong>of</strong> MS researchers.<br />

Richard E. Waugh<br />

Honorary chair, endMS national campaign cabinet<br />

Alexander R. Aird<br />

National chair, endMS campaign cabinet<br />

David A. Garton<br />

<strong>Ontario</strong> chair, endMS campaign cabinet


Financial Statement<br />

<strong>Multiple</strong> <strong>Sclerosis</strong> <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>, <strong>Ontario</strong> <strong>Division</strong> Financial Summary (unaudited)<br />

Statement <strong>of</strong> Revenue and Expenditures for year ended December 31<br />

Please see the following page for explanatory notes to the Statement <strong>of</strong> Revenue and Expenditures presented below.<br />

<strong>Multiple</strong> <strong>Sclerosis</strong> <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> (<strong>Ontario</strong> <strong>Division</strong>)<br />

Statement <strong>of</strong> Revenue and Expenditures (Unaudited)<br />

Twelve Four Twelve<br />

months ended months ended months ended<br />

Dec. 31, 2010 Dec. 31, 2009 Aug. 31, 2009<br />

Revenue<br />

Leadership giving activity<br />

endMS Research & Training Network 1,349,742 692,013 419,023<br />

Individual giving 764,024 259,116 854,557<br />

Corporate giving and major donors 250,199 146,946 271,517<br />

Bequests 609,297 280,176 1,192,756<br />

Grants from pharmaceutical companies 52,100 16,000 35,508<br />

Government grants 154,308 24,391 207,247<br />

Other grants 211,086 90,011 207,983<br />

Total revenue from leadership giving 3,390,756 1,508,653 3,188,591<br />

Community based fundraising events 10,112,435<br />

Dinners, tournaments, and third party events 2,325,468<br />

Gaming 744,981<br />

Sale <strong>of</strong> goods 137,234<br />

Public awareness activities 448,275<br />

United Way and HealthPartners 660,382<br />

Investment income 275,937<br />

Memberships 48,265<br />

Miscellaneous 5,175<br />

Total revenue 18,148,908<br />

Direct fundraising expenditures<br />

Leadership giving 273,780<br />

Community based fundraising events 4,324,755<br />

Dinners, tournaments, and third party events 849,583<br />

Gaming 267,924<br />

Cost <strong>of</strong> goods sold 87,491<br />

Total direct fundraising expenditures 5,803,533<br />

Funds available for programs and support activities 12,345,375<br />

Expenditures<br />

Client services 3,319,466<br />

Research 1,465,405<br />

Research - endMS Research & Training Network 1,652,025<br />

Research - CCSVI 121,151<br />

Public education and awareness 1,832,424<br />

Chapter and volunteer support and development 1,524,625<br />

Government and community relations 316,882<br />

MS Clinics 686,404<br />

Administration 1,141,032<br />

Indirect fundraising 215,881<br />

Total expenditures 12,275,295<br />

Excess (deficiency) <strong>of</strong> revenue over expenditures for the period 70,080<br />

638,302<br />

703,301<br />

226,901<br />

130,277<br />

3,065<br />

156,970<br />

120,266<br />

21,143<br />

2,765<br />

3,511,643<br />

93,806<br />

1,241,093<br />

234,245<br />

81,989<br />

84,557<br />

1,735,690<br />

1,775,953<br />

1,102,171<br />

146,146<br />

808,463<br />

-<br />

414,965<br />

407,797<br />

60,103<br />

229,804<br />

299,583<br />

65,931<br />

3,534,963<br />

(1,759,010)<br />

10,208,251<br />

2,173,920<br />

862,728<br />

180,512<br />

516,768<br />

738,839<br />

25,657<br />

52,679<br />

2,495<br />

17,950,440<br />

287,683<br />

4,868,425<br />

890,740<br />

349,415<br />

124,511<br />

6,520,774<br />

11,429,666<br />

3,610,232<br />

2,318,914<br />

691,833<br />

-<br />

1,430,412<br />

1,332,413<br />

225,601<br />

673,093<br />

1,007,439<br />

166,224<br />

11,456,161<br />

(26,495)<br />

11


expLANAtORy NOteS<br />

to the Statement <strong>of</strong> Revenue and Expenditures<br />

The previous page presents the statement <strong>of</strong> revenue and expenditures for the <strong>Multiple</strong> <strong>Sclerosis</strong> <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>, <strong>Ontario</strong><br />

<strong>Division</strong> for the fiscal year ended December 31, 2010. There are three columns <strong>of</strong> financial data this year because <strong>of</strong> the<br />

decision approved by the national board <strong>of</strong> directors to change the year-end <strong>of</strong> the <strong>Multiple</strong> <strong>Sclerosis</strong> <strong>Society</strong> <strong>of</strong> <strong>Canada</strong> from<br />

August 31 to December 31 to better match our business cycle and to match the taxation year for the majority <strong>of</strong> our donors.<br />

As a result <strong>of</strong> this change, a short fiscal year running from September to December 2009 was necessary as <strong>Canada</strong> Revenue<br />

Agency requires a reporting period that is no longer than 12 months. The four months <strong>of</strong> operating results are not a normal<br />

fiscal year because most fundraising events happen from the spring to the fall but this period was necessary to bridge from<br />

our year ending August 31, 2009 to our new fiscal year ending December 31, 2010. The deficit for this short fiscal year was<br />

anticipated and there was sufficient cash and net assets within the organization to absorb this shortfall. The most appropriate<br />

comparison <strong>of</strong> our financial performance is between the two 12 month fiscal years.<br />

ONtARIO BOARd OF dIReCtORS<br />

March 2010 – March 2011<br />

John Clifford, chair<br />

Linda Lumsden, past chair<br />

Valerie Hussey, vice-chair<br />

Niranjan Vivekanandan, vice-chair<br />

John Ellis, honorary legal counsel<br />

Karen Torrie-Racine, secretary<br />

Robert Blais, treasurer<br />

ONtARIO ChApteRS ANd uNItS<br />

Brampton and Caledon Chapter<br />

Brant County Chapter<br />

Bruce County Unit<br />

Cambridge Unit<br />

Chatham-Kent Chapter<br />

Cornwall and District Chapter<br />

Durham Regional Chapter<br />

Frontenac, Lennox and Addington Chapter<br />

Haldimand-Norfolk Unit<br />

Halton Regional Chapter<br />

Hamilton Chapter<br />

Hastings County Chapter<br />

Kapuskasing Unit<br />

Leeds Grenville Chapter<br />

London-Middlesex Chapter<br />

Markham/Stouffville Chapter<br />

Mississauga Chapter<br />

Niagara Peninsula Chapter <strong>of</strong> Hope<br />

North Bay and District Unit<br />

ONTARIO<br />

Fall 2007<br />

impact report<br />

<strong>Ontario</strong> <strong>Division</strong>, 2011<br />

Published by the MS <strong>Society</strong> <strong>of</strong> <strong>Canada</strong>, <strong>Ontario</strong> <strong>Division</strong><br />

175 Bloor St. E., Suite 700, Toronto ON M4W 3R8<br />

Tel: (416) 922-6065 Fax: (416) 922-7538<br />

Toll free: 1-866-922-6065<br />

Website: mssociety.ca/msontario<br />

Kathleen Carr, director<br />

Bill Ebel, director<br />

Scott Ewart, director<br />

Elizabeth Flavelle, director<br />

Sean Foran, director<br />

Harold Lenfesty, director<br />

Patricia McQuillan, director<br />

Marie Vaillant, director<br />

Asad Wali, director<br />

Northumberland County Chapter<br />

Ottawa Chapter<br />

Oxford County Chapter<br />

Peterborough Chapter<br />

Prince Edward County Unit<br />

Sarnia-Lambton Chapter<br />

Sault Ste. Marie-Algoma Chapter<br />

Scarborough Chapter<br />

Simcoe County Chapter<br />

Simcoe-Norfolk Unit<br />

Sudbury Chapter<br />

Thunder Bay Chapter<br />

Timmins Chapter<br />

Toronto Chapter<br />

Waterloo District Chapter<br />

Wellington County Chapter<br />

Windsor-Essex Chapter<br />

York North Chapter<br />

York South Chapter<br />

o n t a r i o d i v i s i o n 2 0 1 0<br />

Chair: John Clifford<br />

President: Yves Savoie<br />

Editor-in-chief: Kim Steele<br />

Managing editor: Tiffany Regaudie<br />

Charitable registration no. 10774 6174 RR0004

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