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Download the Journal (PDF) - Division on Autism and ...

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is very important to look at how <str<strong>on</strong>g>the</str<strong>on</strong>g> determinati<strong>on</strong><br />

of <str<strong>on</strong>g>the</str<strong>on</strong>g> need for guardianship, or a student’s<br />

competency, are made.<br />

Evan’s placement at a segregated school for<br />

students with disabilities <strong>and</strong> his status as an<br />

individual with a disability undoubtedly c<strong>on</strong>tributed<br />

to his being viewed as “incompetent”<br />

<strong>and</strong> <str<strong>on</strong>g>the</str<strong>on</strong>g>refore in need of guardianship. John<br />

Pitts <strong>and</strong> B<strong>on</strong>nie Potter felt that Evan’s attendance<br />

at Lakewood, a segregated school for<br />

individuals with disabilities, was indicative of<br />

his lack of or level of competence.<br />

If school staff, educated in working with<br />

students with disabilities, feel that placement<br />

in a certain school is enough to determine<br />

competence or need for guardianship, it is<br />

not surprising that o<str<strong>on</strong>g>the</str<strong>on</strong>g>r adults, with less training<br />

in working with students with disabilities,<br />

might draw similar c<strong>on</strong>clusi<strong>on</strong>s. Geoff Ryder,<br />

<str<strong>on</strong>g>the</str<strong>on</strong>g> Smiths’ lawyer, also c<strong>on</strong>cluded Evan was in<br />

need of guardianship. When asked how he<br />

had determined this, he resp<strong>on</strong>ded, “Now this<br />

is when we have a special needs child – I rely<br />

more up<strong>on</strong> <str<strong>on</strong>g>the</str<strong>on</strong>g> parents. That’s because normally<br />

<str<strong>on</strong>g>the</str<strong>on</strong>g>y aren’t going to go to <str<strong>on</strong>g>the</str<strong>on</strong>g> cost <strong>and</strong><br />

<str<strong>on</strong>g>the</str<strong>on</strong>g> expense of this unless necessary.” So, if a<br />

parent went to <str<strong>on</strong>g>the</str<strong>on</strong>g> time <strong>and</strong> expense to request<br />

guardianship for a “special needs” child,<br />

Ryder indicated that he would assume <str<strong>on</strong>g>the</str<strong>on</strong>g><br />

young adult was incompetent <strong>and</strong> proceed<br />

with <str<strong>on</strong>g>the</str<strong>on</strong>g> guardianship.<br />

Troublingly, Ryder also noted that in o<str<strong>on</strong>g>the</str<strong>on</strong>g>r<br />

guardianship cases, he may be called up<strong>on</strong> to<br />

act as a guardian ad litem for an alleged ward.<br />

In this case, he would determine competency<br />

<strong>and</strong> identify what acti<strong>on</strong>s he believed to be in<br />

<str<strong>on</strong>g>the</str<strong>on</strong>g> best interest of <str<strong>on</strong>g>the</str<strong>on</strong>g> alleged ward. In doing<br />

so, he stated that he would c<strong>on</strong>tact <str<strong>on</strong>g>the</str<strong>on</strong>g> alleged<br />

ward, meet <str<strong>on</strong>g>the</str<strong>on</strong>g>m, <strong>and</strong> have a c<strong>on</strong>versati<strong>on</strong>. “A<br />

lot of times,” he said, “<str<strong>on</strong>g>the</str<strong>on</strong>g>y aren’t able to<br />

communicate.” In this statement, he was referring<br />

to an alleged ward’s ability to communicate<br />

in a traditi<strong>on</strong>al sense, specifically, orally.<br />

He tied great importance to <str<strong>on</strong>g>the</str<strong>on</strong>g> ability to<br />

communicate orally. In referring to a particular<br />

case, he noted that, even though staff doctors<br />

at a state mental health instituti<strong>on</strong> had<br />

labeled a woman incompetent, he, from talking<br />

with her, knew that she “had a certain level<br />

of underst<strong>and</strong>ing” <strong>and</strong> judged her competent.<br />

These assumpti<strong>on</strong>s about <str<strong>on</strong>g>the</str<strong>on</strong>g> need for<br />

guardianship or incompetence appeared to<br />

be based <strong>on</strong> percepti<strong>on</strong>s of disability, <str<strong>on</strong>g>the</str<strong>on</strong>g><br />

14 / Educati<strong>on</strong> <strong>and</strong> Training in Developmental Disabilities-March 2008<br />

meaning of a school program placement, <strong>and</strong><br />

<str<strong>on</strong>g>the</str<strong>on</strong>g> label of “special needs.” No individual<br />

menti<strong>on</strong>ed specific capabilities of Evan or of<br />

o<str<strong>on</strong>g>the</str<strong>on</strong>g>r students. Related to <str<strong>on</strong>g>the</str<strong>on</strong>g>se assumpti<strong>on</strong>s<br />

of incompetence is <str<strong>on</strong>g>the</str<strong>on</strong>g> need to protect individuals<br />

viewed in this way.<br />

Paternalism <strong>and</strong> <str<strong>on</strong>g>the</str<strong>on</strong>g> Related Push for<br />

Guardianship<br />

The Smiths have c<strong>on</strong>cerns for Evan, as all<br />

parents might for <str<strong>on</strong>g>the</str<strong>on</strong>g>ir child. They w<strong>on</strong>der<br />

what he will do when he grows up, when he<br />

will leave <str<strong>on</strong>g>the</str<strong>on</strong>g> house, <strong>and</strong> if he will be able to<br />

maintain <strong>and</strong> prosper <strong>on</strong> his own. Additi<strong>on</strong>ally,<br />

<str<strong>on</strong>g>the</str<strong>on</strong>g>re are o<str<strong>on</strong>g>the</str<strong>on</strong>g>r c<strong>on</strong>cerns related to Evan’s<br />

perceived ability to care for himself. C<strong>on</strong>nie,<br />

his mom, admits, though, “it’s going to be, I<br />

think, a bigger leap for me” to adjust to his<br />

growing up <strong>and</strong> leaving <str<strong>on</strong>g>the</str<strong>on</strong>g> house. The<br />

school, though, seems to have used <str<strong>on</strong>g>the</str<strong>on</strong>g>se natural<br />

c<strong>on</strong>cerns of parents to str<strong>on</strong>gly encourage<br />

<str<strong>on</strong>g>the</str<strong>on</strong>g> Smiths to obtain guardianship.<br />

When asked why she had pursued guardianship,<br />

C<strong>on</strong>nie cited Lakewood’s emphasis <strong>on</strong><br />

acquiring it <strong>and</strong> <str<strong>on</strong>g>the</str<strong>on</strong>g> importance <str<strong>on</strong>g>the</str<strong>on</strong>g>y had<br />

placed <strong>on</strong> it. She added that she did have<br />

some fears for Evan. When asked to elaborate,<br />

she said she was c<strong>on</strong>cerned he might be<br />

“taken advantage of.” These vague suggesti<strong>on</strong>s<br />

of what might occur to a young adult with a<br />

disability, if left without a guardian, were<br />

noted in several o<str<strong>on</strong>g>the</str<strong>on</strong>g>r interviews. Laura Jens<strong>on</strong>,<br />

Evan’s teacher, stated <str<strong>on</strong>g>the</str<strong>on</strong>g> following in<br />

regards to what she might tell a parent during<br />

an IEP meeting:<br />

A lot of parents ask, “Why would I want to<br />

be my student’s or my child’s guardian?” We<br />

just make suggesti<strong>on</strong>s, “If you do want to be<br />

your s<strong>on</strong>’s guardian a good reas<strong>on</strong> would be<br />

so some<strong>on</strong>e couldn’t come al<strong>on</strong>g <strong>and</strong> take<br />

advantage of <str<strong>on</strong>g>the</str<strong>on</strong>g>ir m<strong>on</strong>ey,” which is a certain<br />

possibility. . .<br />

Al<strong>on</strong>g similar lines, Potter, <str<strong>on</strong>g>the</str<strong>on</strong>g> school social<br />

worker, provided some c<strong>on</strong>cerns regarding a<br />

student’s ability to protect or care for <str<strong>on</strong>g>the</str<strong>on</strong>g>mselves.<br />

Really, our kids are very gullible <strong>and</strong> can be<br />

taken advantage of easily <strong>and</strong> that’s where<br />

we come from with <str<strong>on</strong>g>the</str<strong>on</strong>g> parents. Our kids<br />

can be talked into something very easily.<br />

Unfortunately <str<strong>on</strong>g>the</str<strong>on</strong>g>re are people out <str<strong>on</strong>g>the</str<strong>on</strong>g>re

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