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Guardianship: Its Role in <str<strong>on</strong>g>the</str<strong>on</strong>g> Transiti<strong>on</strong> Process for Students<br />
with Developmental Disabilities<br />
Erin M. Payne-Christiansen <strong>and</strong> Patricia L. Sitlingt<strong>on</strong><br />
University of Nor<str<strong>on</strong>g>the</str<strong>on</strong>g>rn Iowa<br />
Abstract: The purpose of this qualitative study was to explore: (a) <str<strong>on</strong>g>the</str<strong>on</strong>g> underlying beliefs of those involved in<br />
determining <str<strong>on</strong>g>the</str<strong>on</strong>g> need for guardianship for young adults with developmental disabilities, (b) <str<strong>on</strong>g>the</str<strong>on</strong>g> overarching<br />
frameworks or <str<strong>on</strong>g>the</str<strong>on</strong>g>ories that might explain some of <str<strong>on</strong>g>the</str<strong>on</strong>g> more predominate beliefs, <strong>and</strong> (c) <str<strong>on</strong>g>the</str<strong>on</strong>g> relati<strong>on</strong>ship of<br />
transiti<strong>on</strong> assessment, transiti<strong>on</strong> planning, self-determinati<strong>on</strong>, <strong>and</strong> age of majority to <str<strong>on</strong>g>the</str<strong>on</strong>g> guardianship process.<br />
The authors found that planning for guardianship was separated from <str<strong>on</strong>g>the</str<strong>on</strong>g> transiti<strong>on</strong> planning process <strong>and</strong><br />
that full guardianship had become <str<strong>on</strong>g>the</str<strong>on</strong>g> set path for every student in <str<strong>on</strong>g>the</str<strong>on</strong>g> educati<strong>on</strong>al program. The authors made<br />
<str<strong>on</strong>g>the</str<strong>on</strong>g> following recommendati<strong>on</strong>s: (a) schools must begin with <str<strong>on</strong>g>the</str<strong>on</strong>g> assumpti<strong>on</strong> that each individual has <str<strong>on</strong>g>the</str<strong>on</strong>g><br />
potential to lead his/her own life--from <str<strong>on</strong>g>the</str<strong>on</strong>g>re supports in areas of need can be developed; (b) both <str<strong>on</strong>g>the</str<strong>on</strong>g> transiti<strong>on</strong><br />
planning <strong>and</strong> guardianship process should be based up<strong>on</strong> an <strong>on</strong>going assessment of <str<strong>on</strong>g>the</str<strong>on</strong>g> student’s strengths,<br />
needs, preferences, <strong>and</strong> interests; (c) schools must recognize students as emerging young adults, <strong>and</strong> prepare<br />
<str<strong>on</strong>g>the</str<strong>on</strong>g>m to assume a variety of adult roles by helping <str<strong>on</strong>g>the</str<strong>on</strong>g>m develop <strong>and</strong> practice self-determinati<strong>on</strong> skills; (d) <str<strong>on</strong>g>the</str<strong>on</strong>g><br />
transfer of rights at age of majority should be seen as a key point in <str<strong>on</strong>g>the</str<strong>on</strong>g> transiti<strong>on</strong> process; <strong>and</strong> (e) in working<br />
to prepare students for adult life, instructi<strong>on</strong>al <strong>and</strong> support staff need to be aware of <str<strong>on</strong>g>the</str<strong>on</strong>g> wide variety of<br />
alternatives to <strong>and</strong> opti<strong>on</strong>s within <str<strong>on</strong>g>the</str<strong>on</strong>g> guardianship process.<br />
Even though guardianship is a profound decisi<strong>on</strong><br />
with serious implicati<strong>on</strong>s both for <strong>and</strong><br />
about <str<strong>on</strong>g>the</str<strong>on</strong>g> pers<strong>on</strong> labeled as having a developmental<br />
disability, <str<strong>on</strong>g>the</str<strong>on</strong>g> c<strong>on</strong>cept of guardianship<br />
has received little emphasis in <str<strong>on</strong>g>the</str<strong>on</strong>g> literature of<br />
<str<strong>on</strong>g>the</str<strong>on</strong>g> special educati<strong>on</strong> field. It seems logical<br />
that <str<strong>on</strong>g>the</str<strong>on</strong>g> determinati<strong>on</strong> of <str<strong>on</strong>g>the</str<strong>on</strong>g> need for guardianship<br />
should be made based up<strong>on</strong> an <strong>on</strong>going<br />
assessment of <str<strong>on</strong>g>the</str<strong>on</strong>g> student’s strengths,<br />
needs, preferences, <strong>and</strong> interests, as part of<br />
<str<strong>on</strong>g>the</str<strong>on</strong>g> transiti<strong>on</strong> planning process. Identifying<br />
<str<strong>on</strong>g>the</str<strong>on</strong>g> supports needed by <str<strong>on</strong>g>the</str<strong>on</strong>g> student as he/she<br />
makes <str<strong>on</strong>g>the</str<strong>on</strong>g> transiti<strong>on</strong> to adulthood should be<br />
incorporated into <str<strong>on</strong>g>the</str<strong>on</strong>g> transiti<strong>on</strong> planning process,<br />
so that less intrusive alternatives to guardianship<br />
may be possible. Training in self-<br />
The authors express <str<strong>on</strong>g>the</str<strong>on</strong>g>ir appreciati<strong>on</strong> to Dr.<br />
Deborah J. Gallagher for her active role in <str<strong>on</strong>g>the</str<strong>on</strong>g><br />
design <strong>and</strong> implementati<strong>on</strong> of this study <strong>and</strong> to<br />
Crystal Stokes for her editorial assistance during <str<strong>on</strong>g>the</str<strong>on</strong>g><br />
final stages of manuscript preparati<strong>on</strong>. Corresp<strong>on</strong>dence<br />
c<strong>on</strong>cerning this manuscript should be addressed<br />
to: Patricia L. Sitlingt<strong>on</strong>, Department of<br />
Special Educati<strong>on</strong>, Schindler Educati<strong>on</strong> Center 154,<br />
University of Nor<str<strong>on</strong>g>the</str<strong>on</strong>g>rn Iowa, Cedar Falls, IA 50614-<br />
0601. Email: Patricia.Sitlingt<strong>on</strong>@uni.edu<br />
Educati<strong>on</strong> <strong>and</strong> Training in Developmental Disabilities, 2008, 43(1), 3–19<br />
© <str<strong>on</strong>g>Divisi<strong>on</strong></str<strong>on</strong>g> <strong>on</strong> Developmental Disabilities<br />
determinati<strong>on</strong> should also provide skills that<br />
will assist <str<strong>on</strong>g>the</str<strong>on</strong>g> individual in taking c<strong>on</strong>trol of<br />
his/her adult life, <strong>and</strong> advocate for <str<strong>on</strong>g>the</str<strong>on</strong>g>se supports.<br />
The transfer of rights at age of majority<br />
is an ideal time for decisi<strong>on</strong>s regarding guardianship<br />
to be made.<br />
Studies <strong>on</strong> Guardianship<br />
The majority of research <strong>on</strong> guardianship has<br />
focused <strong>on</strong> <str<strong>on</strong>g>the</str<strong>on</strong>g> c<strong>on</strong>cerns of elderly people<br />
(Bulcroft, Kielkopf, & Tripp, 1991; Iris, 1988;<br />
O’Sullivan & Hoffman, 1995; Peters, Schmidt,<br />
& Miller, 1985). In particular, <str<strong>on</strong>g>the</str<strong>on</strong>g>se studies<br />
have focused mainly <strong>on</strong> <str<strong>on</strong>g>the</str<strong>on</strong>g> abuses of <strong>and</strong><br />
difficulties in m<strong>on</strong>itoring guardianship (e.g.,<br />
Bulcroft et al.; Kritzer, Dicks, & Abrahms<strong>on</strong>,<br />
1993; O’Sullivan & Hoffman; Peters et al.). A<br />
number of authors have undertaken an analysis<br />
of court records of guardianship hearings<br />
for elderly pers<strong>on</strong>s. Analyses of court records<br />
in Florida (Peters et al.), Ohio <strong>and</strong> Washingt<strong>on</strong><br />
(Bulcroft et al.), Wisc<strong>on</strong>sin (Kritzer et al.),<br />
<strong>and</strong> Maryl<strong>and</strong> (O’Sullivan & Hoffman) identified<br />
several similar c<strong>on</strong>cerns. These c<strong>on</strong>cerns<br />
included: (a) <str<strong>on</strong>g>the</str<strong>on</strong>g> questi<strong>on</strong>able validity<br />
Guardianship / 3