19.11.2014 Views

Cancer Doesn't Care - Pelorous

Cancer Doesn't Care - Pelorous

Cancer Doesn't Care - Pelorous

SHOW MORE
SHOW LESS

Create successful ePaper yourself

Turn your PDF publications into a flip-book with our unique Google optimized e-Paper software.

<strong>Cancer</strong><br />

doesn’t care<br />

2010 Issue 5<br />

We do. And this is what we do.<br />

Advisory Services<br />

Advocacy and Information<br />

Citizens Advice Bureau<br />

Financial and Legal Guidance<br />

Jewish Perspectives on <strong>Cancer</strong><br />

Medical Connections<br />

Nutritional and Dietary Advice and<br />

Information<br />

Resources and Information<br />

Children and Family Service<br />

Group Activities<br />

Art Workshop<br />

Laughter Clinic<br />

Meditation<br />

Pilates<br />

Post Breast Surgery Exercise Group<br />

Wednesday Social Afternoons<br />

Yoga<br />

Support Groups<br />

BRCA Gene Carriers’ Group<br />

Breast Buddies<br />

Groups for <strong>Cancer</strong> Patients<br />

Groups for Parents of <strong>Cancer</strong> Patients<br />

Counselling<br />

Individuals, couples<br />

& families<br />

Genetic Issues<br />

Relationship Issues<br />

Telephone Counselling<br />

Therapies<br />

Manual Lymphatic Drainage<br />

Physiotherapy<br />

Complementary Therapies<br />

Acupuncture<br />

Aromatherapy<br />

Foot <strong>Care</strong> Service<br />

Healing<br />

Hot Stones<br />

Indian Head Massage<br />

Reflexology<br />

Reiki<br />

Shiatsu<br />

Therapeutic Massage<br />

Home Support Service<br />

Volunteer Services<br />

Chai’s services are available at sites within London,<br />

Essex, Manchester, Glasgow and in clients’ own homes.<br />

If you are not close to a Chai centre we can provide<br />

counselling, nutritional and advisory services by telephone.<br />

To find out more please call our freephone helpline<br />

on 0808 808 4567 or visit www.chaicancercare.org<br />

Chai Lifeline <strong>Cancer</strong> <strong>Care</strong> Registered Charity No.1078956.<br />

In this issue:<br />

Opening of the Wohl Wing<br />

Tracy-Ann Oberman at Chai<br />

<strong>Cancer</strong> Genetics – The Jewish Perspective<br />

20 years of Chai – Susan Shipman<br />

Q&As with Sir Ralph & Lady Zahava Kohn<br />

Growth of our Services<br />

Appealing to the Appetite<br />

20 years of cancer support in the community


Message from the Chairman<br />

Contents<br />

Louise Hager<br />

Welcome to a bumper issue of ‘Together’ in what is a very special<br />

year for Chai <strong>Cancer</strong> <strong>Care</strong>. Twenty years ago Chai was founded by<br />

two remarkable women, Susan Shipman and my dear mother<br />

Frances Winegarten z”l. Whilst they always knew of the need in the<br />

community, they could not have foreseen how Chai would develop in such a relatively short<br />

space of time. We continue to hold firm to our commitment to provide a high quality,<br />

accessible, confidential and professional service – always delivered with empathy and warmth.<br />

This year has been significant for Chai for so many reasons. We have opened four further<br />

satellite services (Glasgow, South Manchester, Hackney and Southend) to add to those<br />

successfully established in Redbridge, South London and North Manchester.<br />

Our Hendon Centre continues to be our largest service provider, as well as our Head Office.<br />

To enable us to meet our clients’ needs and to expand our services, we recently opened the<br />

purpose built Wohl Wing in early summer. Our Home Support Service is vital to our clients who<br />

cannot get to any of our centres. This service ensures that they can benefit from our one-to-one<br />

therapies, counselling and advice sessions in their own homes. On Pages 16 & 17 we<br />

demonstrate how much demand has grown in all areas of our work.<br />

I hope that you will enjoy the diversity of our articles and I am grateful to all contributors. We<br />

are, as always, indebted to our Medical Patrons who keep us up to date with the latest<br />

developments in the cancer world.<br />

Our heartfelt thanks go to our many loyal friends and supporters. As we do not receive any<br />

statutory funding, your generosity has enabled us to keep pace and meet the ever growing<br />

demand of all those who turn to us.<br />

From all of us at Chai we hope you enjoy reading ‘Together’.<br />

My Personal Relections over the past 20 years: Susan Shipman 4 - 8<br />

Major Milestones 9<br />

Immune Boosting Foods: Lana Pinshaw 10 - 11<br />

Breast <strong>Cancer</strong>: Prof. Michael Baum & Mr Michael Douek 12 - 13<br />

Spa Day 14 - 15<br />

Growth of our Services 16 - 17<br />

Group Activities 18<br />

One Family’s Story 19<br />

Colorectal <strong>Cancer</strong>: Mr Daren Francis 20 - 21<br />

Opening of the Wohl Wing 22 - 23<br />

Q&A with Sir Ralph Kohn FRS and Lady Zahava Kohn 24 - 26<br />

A Charity that’s my Cup of Chai: Tracy-Ann Oberman 27<br />

<strong>Cancer</strong> Genetics – The Jewish Perspective: Dr Ian Ellis 28 - 31<br />

Chai Promise 32 - 33<br />

Dina’s Story: Vicky Brown 34<br />

Lady Jakobovits z’l 35<br />

Lighten the Load – One Stress you can relieve! Vicky Brown 36 - 38<br />

Advice and Advocay at Chai 39<br />

President<br />

The Rt. Hon. Lord Young<br />

of Graffham<br />

Founder Presidents<br />

Susan Shipman<br />

Frances Winegarten z”l<br />

Chairman<br />

Louise Hager<br />

Trustees<br />

Louise Hager<br />

Lady Kalms MBE<br />

Simon Kanter<br />

Susan Shipman<br />

Philip Weinstein<br />

Lord Young<br />

Honorary Patrons<br />

Lord Janner of Braunstone QC<br />

Medical Patrons<br />

Prof Michael Baum<br />

Prof Michael Brada<br />

Mr Michael Douek<br />

Prof Andrew Eder<br />

Prof Rosalind Eeles<br />

Mr Daren Francis<br />

Mr Jerry Gilmore<br />

Prof Anthony Goldstone CBE<br />

Prof Daniel Hochhauser<br />

Mr Amir Kaisary<br />

Prof Jonathan Ledermann<br />

Prof Gordon McVie<br />

Dr Jeremy Nathan<br />

Dr Jane Neerkin<br />

Prof Gordon Rustin<br />

Prof Karol Sikora<br />

Prof Albert Singer<br />

Prof Stephen Spiro<br />

Prof Irving Taylor<br />

A Year in the Life of Chai 40 - 41<br />

The Effects of <strong>Cancer</strong> on Relationship & Intimacy 42<br />

The Natalie Shipman Memorial Lectures 43<br />

Appealing to the Appetite: Healthy Eating Recipes 44 - 45<br />

Year in Fundraising – 2010 46 - 47<br />

Maureen Lipman CBE<br />

Prof Ian Jacobs<br />

Dr Adrian Tookman<br />

Chief Executive<br />

Chief Rabbi Sir Jonathan Sacks<br />

Prof Gordon Jayson<br />

Elaine Kerr<br />

This edition of ogether is generously sponsored by The Dorset Foundation<br />

Cover image: Tracy-Ann Oberman in the Garden Room at Chai photographed by Jeremy Coleman.


My Personal Reflections over the past 20 years:<br />

Susan Shipman – Founder President<br />

It’s hard to believe that it is twenty one years ago since I<br />

received the phone call from Frances Winegarten z’l<br />

that was to be the beginning of the cancer support<br />

organisation that is known today as Chai Lifeline<br />

<strong>Cancer</strong> <strong>Care</strong>.<br />

Frances at this time was in remission from two bouts of a<br />

rare type of cancer that had been very difficult to treat.<br />

She had endured high doses of radiotherapy and<br />

chemotherapy that was experimental to her problem,<br />

as there were no known proven drugs to treat her<br />

particular form of cancer.<br />

Susan Shipman & Frances Winegarten z’l<br />

Frances was a lady blessed with a strong character<br />

and positive attitude; she was determined to survive<br />

and so, in addition to the conventional treatments<br />

prescribed by her physicians, she took her health into<br />

her own hands by changing her diet and her lifestyle.<br />

Hearing of her recovery, many cancer patients sought<br />

Frances’s advice on diet and benefitted from her<br />

empathetic support.<br />

In contrast, I was the mother of a child who had been<br />

diagnosed with cancer when she was two years old. At<br />

this time Natalie z’l was six and a half and had had in<br />

the four years since diagnosis, three separate rare forms<br />

of cancer. She had survived three major operations<br />

and meningitis and endured gruelling radiotherapy<br />

and chemotherapy.<br />

At that time I was in the process of starting a support<br />

group at Great Ormond Street Hospital for the parents<br />

of children with cancer. On my many visits with Natalie<br />

over the years, I had been touched by the number of<br />

parents in the Oncology Department who were unable<br />

to cope emotionally.<br />

“Amelie... insisted that<br />

Frances meet me – and the<br />

rest is history!”<br />

It was fortuitous that Lady Amelie Jakobovits z’l was<br />

visiting Frances when she received a call from a friend<br />

of mine. Through this friend I had heard of the work<br />

Frances was doing with cancer patients. I had asked<br />

her to tell Frances that if ever she needed any help with<br />

children who had cancer she should call me. On<br />

hearing my name, Amelie who had been a close friend<br />

since 1986 when we had first met in GOSH when Natalie<br />

had her second operation, insisted that Frances meet<br />

me – and the rest is history!<br />

We first met in Frances’s flat on a very hot evening in<br />

June 1989. Despite the difference in our ages it was a<br />

meeting of two kindred spirits who had both been<br />

touched, albeit differently, by a terrible disease and<br />

who had recognised the importance of emotional<br />

support in the healing process. At this time the<br />

treatment for cancer was to cut it out, burn it, or poison<br />

it – the emotional effects of being diagnosed with a life<br />

threatening illness for both the patient and their family<br />

were not considered.<br />

That night Frances convinced me of the importance of<br />

starting a support group for Jewish cancer patients. She<br />

had felt completely isolated when attending a non-<br />

Jewish support group when she was ill, due to the many<br />

and diverse cultural difference between Jews and non-<br />

Jews. It is also well documented that in moments of<br />

crisis, regardless of levels of observance, people have a<br />

need to go back to their roots where they feel<br />

comfortable and secure. And so, our intention that<br />

night was to start a telephone support helpline. Neither<br />

of us could have imagined then that twenty years later,<br />

that helpline would have become one of the foremost<br />

<strong>Cancer</strong> Support Organisations in the United Kingdom.<br />

By December of 1989 we had formed a committee and<br />

in March 1990, Chai Lifeline was granted charitable<br />

status and Frances and I were able to set up a<br />

telephone helpline that was run from both our homes.<br />

The first thing we did was to write a letter to the Jewish<br />

Chronicle and the Jewish Tribune to advise the<br />

community of the service we were offering – but no one<br />

called! It wasn’t until May that year, when one of the<br />

members of the original committee managed to get<br />

the JC to print an article about us, that the phone<br />

started to ring - not with clients seeking support, but<br />

from recovered cancer patients and their family<br />

members, volunteering to help.<br />

Sadly, the same weekend that we were interviewed by<br />

the JC, Natalie relapsed and we were told by Great<br />

Ormond Street that although they couldn’t identify the<br />

problem, she probably only had three months to live. I<br />

vividly remember sitting in my garden the following<br />

week with Frances and her daughter Louise Hager,<br />

discussing Chai Lifeline’s future and why people were<br />

not phoning for help and what we could do about it.<br />

“At that time... the word<br />

cancer was rarely uttered<br />

in the Jewish community.”<br />

Natalie Shipman z’l March 1990<br />

At that time cancer was a taboo subject that was never<br />

discussed. Indeed the word cancer was rarely uttered in<br />

the Jewish community to describe the disease; instead<br />

expressions like “the big C”, “the illness”, “you know<br />

what” or “yenna machala – that disease” were used.<br />

We realised that if we were to be able to help the<br />

community’s cancer patients, we first had to take away<br />

their fear of cancer.<br />

Aaron & Frances Winegarten z’l &<br />

Susan Shipman, Philip Shipman z’l<br />

In 1990 there was very little information about cancer<br />

available to the general public. The subject was rarely<br />

in the media and there was no internet. Frances and I<br />

decided that the best way to take away the fear was<br />

through education and so we decided to hold a public<br />

lecture.<br />

At that time the charity had no money, and so my<br />

husband Philip z’l and I, together with Frances and her<br />

husband Aaron z’l, jointly gave £1000 pounds to pay for<br />

the advertisements for the lecture and hire of the hall –<br />

it was the best £500 we ever invested!<br />

We held our first public lecture on 11th September 1990<br />

in Norrice Lea Synagogue Hall. It was the first time that<br />

a lecture about cancer was to be given by eminent<br />

cancer specialists to a lay audience and Frances and I<br />

were petrified that nobody would turn up. The hall had<br />

room for 400 chairs theatre style and we didn’t want it<br />

to look empty. We were very tempted to hire “rent a<br />

crowd” but instead decided to put out 200 chairs with a<br />

further 200 stacked at the back just in case. To our<br />

amazement, 400 people crowded into the hall that<br />

night and a further 100 were turned away at the door!<br />

The lecture was a huge success and the feedback was<br />

very positive. At last we started to get phone calls from<br />

people wanting help as well as from those wanting to<br />

volunteer.<br />

That same week Natalie, who seemed to have<br />

recovered from her relapse in May, was diagnosed with<br />

the return of her brain tumour. Great Ormond Street’s<br />

prediction in May was sadly correct and Natalie lost her<br />

brave fight against cancer in October 1990, one month<br />

before her eighth birthday.<br />

I was bereft, but at the same time determined that<br />

Natalie’s short life was not to have been in vain. It was<br />

her wish during the last few months of her life to help me<br />

and “Aunty” Frances with Chai Lifeline when she got<br />

4 20 years of cancer support in the community<br />

20 years of cancer support in the community 5


It wasn’t long before we needed to have a proper base<br />

and so in 1992 we opened our first office in Heather<br />

House in Golders Green. We had for some time been<br />

providing trained volunteers all of whom had<br />

experienced cancer - either themselves or through<br />

a family member - as befrienders to support our clients.<br />

Now that we had an office, we were able to man the<br />

helpline with trained volunteers as well.<br />

Lifeline Centre for Health in Norwood House, later to<br />

become Shield House, in Hendon. The capital costs of the<br />

move were high and the increase in services meant<br />

employing more professional staff and higher running<br />

costs. We are indebted to the Trustees of the Kennedy<br />

Leigh Foundation, the first major trust to give us financial<br />

support, for recognising the potential in our fledgling<br />

organisation and for their continuous support for the past<br />

twenty years.<br />

Chai was steadily gaining a reputation for excellence<br />

and professionalism. Frances and I were invited to attend<br />

several Government Forums on cancer and we were also<br />

invited by the EU to Brussels as part of a British Delegation.<br />

People from throughout the UK who wanted to start<br />

cancer support groups contacted us for advice. In<br />

addition Chai was invited to take part in The North<br />

London <strong>Cancer</strong> Network, a network comprising the five<br />

major cancer hospitals in North West London.<br />

older – instead she has been the inspiration behind<br />

Chai for the past twenty years.<br />

We decided to organise three Natalie Shipman<br />

Memorial Lectures for the following year to be held in<br />

January, February and March. We booked the hall,<br />

arranged advertisements for the media and designed<br />

flyers to be circulated through kosher shops, Shuls etc.<br />

The problem was that we had no money to pay for it all!<br />

Lady J, who had continued to be of tremendous help<br />

and encouragement to Frances and I since being our<br />

‘Shadchan’, was adamant that we shouldn’t turn to the<br />

Community for financial help. This was because the first<br />

Gulf War had just begun and all available money was<br />

needed for Israel. Fortunately we were given the All<br />

Aboard Shop in Golders Green for two weeks to raise<br />

money. With the help of a fantastic team of volunteers,<br />

who managed to fill the shop with very saleable goods<br />

for us to sell, we raised over £2500, a staggering amount<br />

at that time for a charity shop!<br />

Frances Winegarten z’l, Susan Shipman & Louise Hager<br />

In July 1993 we held a Breast <strong>Cancer</strong> Awareness lecture<br />

in Stamford Hill aimed at providing the religious<br />

community in that area with vital information about<br />

breast cancer. Over 800 women attended and<br />

afterwards, through feedback from breast cancer<br />

specialists, we discovered that at least 7 women who<br />

had attended the lecture had found lumps and sought<br />

medical help.<br />

The Centre provided the space for us to introduce many<br />

new services. Professional counselling, well man and well<br />

woman screening, complementary therapies, laughter<br />

clinic (the first of its kind in the U.K.), genetic counselling,<br />

spiritual counselling, “Ask the Expert” lectures and many<br />

more. In addition we were able to bring our volunteer<br />

training and supervision in house. Most importantly,<br />

however, people in need of emotional support were able<br />

to access that help through “the back door”. They no<br />

longer needed to place a phone call to ask for support;<br />

instead they called to make an appointment for<br />

aromatherapy or reflexology and this was their<br />

comfortable way to start benefitting from Chai’s services,<br />

often leading to the use of counselling later.<br />

In November 1997, my husband Philip z’l was diagnosed<br />

with an inoperable brain tumour and died after only two<br />

months in January 1998. This was a bitter blow, especially<br />

coming only eight years after losing Natalie. I must admit<br />

that there were times when I found the responsibility of<br />

running Chai and being surrounded by cancer on a daily<br />

basis difficult to bear. But knowing that so many people<br />

were relying on Chai ‘s support gave me the strength to<br />

carry on.<br />

There is no doubt that the establishment of Chai Lifeline<br />

and its tremendous success was not achieved without<br />

personal cost to both Frances and me. Frances was<br />

involved with Chai on a daily basis at a time in her life<br />

“Other minority groups<br />

came to us for advice as<br />

to how to start cancer<br />

support groups in their<br />

own communities.”<br />

From then onwards we never looked back. We have<br />

always felt the Alm-ghty’s guiding hand and in<br />

response to the ever growing need Chai Lifeline grew at<br />

an amazing pace. For many years after, however, we<br />

continued to get criticism as to why, when cancer<br />

knows no boundaries, was there the need for a Jewish<br />

cancer support group. Amazingly this criticism came<br />

from the Jewish, not the wider community. The non-<br />

Jewish Community gave us their whole hearted support<br />

and other minority groups came to us for advice as to<br />

how to start cancer support groups in their own<br />

communities.<br />

The impact of this lecture was amazing. Eminent cancer<br />

specialists started to approach us asking to speak at<br />

our lectures! We continued to gain credibility in the<br />

medical profession and soon had an impressive list of<br />

Medical Patrons. We formed our Medical Advisory<br />

Panel, which meets regularly at Chai and continues to<br />

support and advise us to this day.<br />

Despite our continuing growth we were getting very<br />

few calls to the helpline. In fact most of the calls for help<br />

were being made to the office number. We reached<br />

the conclusion that people found it hard to ask for help<br />

especially over the telephone and needed another<br />

way to access our services. We decided the answer<br />

was to open a <strong>Cancer</strong> Support Centre, a physical<br />

place where people could just drop in, a place where<br />

we could offer a variety of additional services.<br />

In 1994 thanks to the invaluable help of our Trustee<br />

Ernest Weinstein z’l, who found the premises and<br />

supervised the construction, we opened the Chai<br />

Frances Winegarten z’l, Susan Shipman, Ben Shipman, Philip Shipman z’l,<br />

Mark Shipman, Jane Shipman, Stella Weinstein, Ernest Weinstein z’l<br />

6 20 years of cancer support in the community<br />

20 years of cancer support in the community 7


increasing demand. We also have satellite centres in<br />

Redbridge, Southend, South London, North and South<br />

Manchester, Glasgow and Hackney with plans to open<br />

on the South Coast in the near future.<br />

Major Milestones<br />

Aaron Winegarten z’l, HRH Duke of Kent & Philip Weinstein<br />

when her husband was retired and they should<br />

have been enjoying quality time together and with<br />

their family.<br />

As for me, my involvement was also given at great cost<br />

to my family, especially my children, who lost me to<br />

Chai at times when they needed me the most,<br />

especially after the death of their father.<br />

By 2002 we were running out of space in Norwood<br />

House and needed to move. I am delighted that I was<br />

able to facilitate the purchase of 142 – 146 Great North<br />

Way in Hendon, before making Aliyah to Israel on my<br />

remarriage in December 2002. Since then Chai <strong>Cancer</strong><br />

<strong>Care</strong> has gone from strength to strength in very<br />

capable hands.<br />

Finding it impossible to remain involved on a daily basis<br />

from so far away, I eventually resigned and handed<br />

over the reigns to my Co-Chairman Louise Hager. Louise<br />

continues to run the organisation with the same passion<br />

and dedication that her mother and I had, with the<br />

addition of her own tremendous flair and warmth. She is<br />

ably assisted by Chief Executive Elaine Kerr, whose<br />

professionalism and commitment has enabled our vision<br />

from so long ago to become a reality.<br />

In addition, Chai is fortunate to have the expert<br />

backing of its President Lord Young and my co-trustees<br />

Lady Pamela Kalms MBE, Philip Weinstein and Simon<br />

Kanter, who together bring to the organisation<br />

their years of communal knowledge and wide<br />

ranging experience.<br />

In June this year we opened the Wohl Wing which gives<br />

us much needed additional space to meet the steadily<br />

As I reflect upon Chai’s achievements over the<br />

past twenty years I am so very proud to have been<br />

part of the establishment and growth of such a<br />

wonderful organisation<br />

I am only sorry that Natalie, Frances, Philip, Aaron,<br />

Ernest and Lady J are no longer with us to celebrate<br />

this special milestone.<br />

“I am so very proud to have<br />

been a part of... such a<br />

wonderful organisation.”<br />

Hachnosas sefer torah in Bushey Shul on 16th Sept 1990<br />

I sincerely hope that the next twenty years will bring<br />

an increase in the cures for cancer and that eventually<br />

one day there will be no need for Chai <strong>Cancer</strong><br />

<strong>Care</strong>’s services.<br />

Susan Shipman<br />

Founder President and Trustee<br />

June 1989<br />

Susan Shipman and Frances Winegarten meet<br />

December 1989 First meeting of the newly formed Committee<br />

March 1990<br />

Charitable status granted to Chai Lifeline<br />

Start of support helpline in homes of SS & FW<br />

Letter advising the Community of the new service appears in the JC<br />

May 1990<br />

Article appears in the JC about Chai Lifeline & attracts calls<br />

from volunteers<br />

September 1990 First public lecture held in Norrice Lea Synagogue attracts 500<br />

people of whom 100 were unable to gain entry<br />

October 1990<br />

Susan Shipman’s daughter Natalie passes away from a brain tumour<br />

January 1991<br />

First Natalie Shipman Memorial Lecture<br />

February 1991<br />

Second Natalie Shipman Memorial Lecture<br />

March 1991<br />

Third Natalie Shipman Memorial Lecture<br />

June 1992<br />

Opening of office in Heather House, Golders Green<br />

July 1993<br />

Breast <strong>Cancer</strong> Awareness Lecture in Stamford Hill attracts 800 Women<br />

June 1994<br />

Opening of <strong>Cancer</strong> Support Centre in Norwood House, Hendon<br />

Start of counselling and complementary therapy clinics<br />

May 1996<br />

First fundraising dinner at the home of Sir Sydney and<br />

Lady Rosa Lipworth CBE<br />

January 1998<br />

Founder Trustee Philip Shipman passes away from brain tumour<br />

December 1998 Louise Hager becomes a Trustee<br />

June 2001<br />

10th Anniversary Dinner at Grosvenor House Hotel<br />

November 2001 Change of name from Chai Lifeline to Chai Lifeline <strong>Cancer</strong> <strong>Care</strong><br />

October 2002<br />

Frances Winegarten becomes Founder President<br />

October 2002<br />

Louise Hager becomes Co-Chairman<br />

October 2002<br />

Trustee Ernest Weinstein passes away<br />

November 2002 Purchase of 142-146 Great North Way<br />

October 2003<br />

Move to 142 Great North Way<br />

February 2004<br />

Official opening of The Chai <strong>Cancer</strong> <strong>Care</strong> Centre for Health by<br />

His Royal Highness The Duke of Kent<br />

July 2006<br />

Lord Young becomes President<br />

February 2006<br />

Founder President Frances Winegarten passes away at 84 years of<br />

a heart attack<br />

May 2007<br />

Opening of the first satellite service in Redbridge<br />

July 2008<br />

Opening of satellite service in South London<br />

October 2008<br />

Founder Trustee Aaron Winegarten passes away<br />

May 2009<br />

Opening of satellite service in North Manchester<br />

May 2010<br />

Opening of satellite service in Glasgow<br />

May 2010<br />

Honorary Patron Amelie Jakobovits passes away<br />

June 2010<br />

Opening of the Wohl Wing in Hendon<br />

July 2010<br />

Opening of satellite service in Hackney<br />

August 2010<br />

Opening of satellite service in South Manchester<br />

September 2010 Opening of satellite service in Southend<br />

8 20 years of cancer support in the community<br />

20 years of cancer support in the community 9


Immune Boosting Foods: Lana Pinshaw<br />

The immune system is critically important in fighting<br />

illness including cancer. Individual cancer cells can<br />

arise in all of us from time to time. If your immune<br />

system is vigilant, it recognises and destroys cancer<br />

cells before they can take hold, so strengthening your<br />

immune system can be helpful in cancer prevention<br />

and survival.<br />

Like soldiers anywhere, your immune cells fight more<br />

effectively when they are well nourished.<br />

Certain types of food stand out in the nutritional<br />

crowd because they have special properties that<br />

make them more beneficial to our health.<br />

The nutrients contained within these “superfoods”<br />

can assist with many of the body’s natural functions<br />

such as digestion, boosting the immune system,<br />

strengthening bones.<br />

Antioxidants is the term used to describe the group<br />

of vitamins, minerals and certain phytochemicals<br />

found in foods that help protect the body from the<br />

damaging effects of Free Radical damage.<br />

Free Radicals can be naturally created by the body<br />

or they can be produced by toxins like tobacco,<br />

pollution, radiation from sunlight and radioactive<br />

material. These toxins can be “carcinogenic”<br />

Immune Boosting Recipes<br />

Mango-Papaya Smoothie<br />

(serves 4)<br />

2 cups plain low fat yoghurt<br />

1 mango, peeled, pitted, and coarsely chopped<br />

1 papaya, peeled, seeded and coarsely chopped<br />

2 tablespoons fresh lime juice plus 4 lime slices<br />

for garnish<br />

3 tablespoons honey<br />

¼ teaspoon almond extract<br />

1 cup ice cubes<br />

Blend all ingredients in a blender or food processor<br />

until smooth. Blend in another ½ cup ice cubes if<br />

desired to thin the smoothie mixture to desired<br />

consistency. Divide the mixture among 4 chilled<br />

large glasses and garnish each smoothie with<br />

a lemon slice.<br />

meaning they can alter or damage cells in the body<br />

which could lead to cancer development.<br />

Antioxidants are able to protect cells and can help<br />

prevent free radicals from forming thereby helping to<br />

prevent cell damage.<br />

Among the list of the nutrients there are some main<br />

“superfoods” which are good to include in your diet,<br />

red and orange peppers, kiwi fruit, brazil nuts,<br />

tomatoes, broccoli, onions, sweet potatoes, carrots,<br />

mangoes, strawberries, cabbage, watercress, brussel<br />

sprouts, virgin olive oil, sunflower seeds, wholegrain<br />

bread, garlic and oranges.<br />

Including more of the superfoods into your diet instead<br />

of red meat, fatty and sugary foods will help to<br />

regulate and maintain a healthy weight which is<br />

another important factor in reducing your risk of<br />

getting cancer.<br />

By eating a balanced diet that includes a variety of<br />

plant foods we stand a much better chance of getting<br />

all the nutrients we need for optimum health.<br />

Roasted Sweet Potato Wedges<br />

(serves 4)<br />

2 medium sized sweet potatoes - cut into wedges<br />

1/8 tsp cinnamon<br />

¼ tsp season salt<br />

¼ tsp ground cumin<br />

1/8 tsp pepper<br />

¼ tsp garlic powder<br />

Preheat oven to 200ºC<br />

Combine all ingredients in a plastic bag. Seal<br />

and shake. Place sweet potato wedges on<br />

a baking sheet coated with cooking spray(do<br />

not overlap). Bake at 200ºC for 20 minutes or until<br />

very tender, flipping potatoes once during cooking.<br />

Antioxidant<br />

Vitamin C<br />

Vitamin E<br />

Selenium<br />

Beta Carotene<br />

Phytochemical<br />

Allium<br />

Apigenin<br />

Catechins<br />

Coumestans<br />

Soflavones<br />

Isothiocyanates<br />

Lignins<br />

Phytic acid<br />

Quercetin<br />

Resveratrol<br />

Good Food Sources<br />

Citrus fruits, berries, dark green vegetables, red and yellow peppers, tomatoes, pineapple,<br />

cantaloupe, mangos, papaya and guava<br />

Vegetable oils, nuts and nut butters, seeds, whole grains, wheat, wheat germ, brown rice,<br />

oatmeal, soybeans, sweet potatoes, legumes and dark leafy green vegetables<br />

Brazil nuts, brewer’s yeast, oatmeal, brown rice, chicken, eggs, dairy products, garlic,<br />

molasses, onions, salmon, seafood, tuna, wheat germ, whole grains, most vegetables<br />

Variety of dark orange, red, yellow and green vegetables and fruits such as broccoli,<br />

kale, spinach, sweet potatoes, carrots, red and yellow peppers, apricots, cantaloupe<br />

and mangoes<br />

Food Sources<br />

Garlic, leeks, chives, onions<br />

Chinese cabbage, bell<br />

pepper, garlic, French peas,<br />

guava, celery<br />

Green tea, black tea, wine,<br />

coffee, apples<br />

Clover, alfalfa sprouts<br />

Tofu, soybeans, tempeh,<br />

soymilk, textured<br />

vegetable protein<br />

Broccoli, cauliflower, kale,<br />

turnips, collards, brussel<br />

sprouts, cabbage, kohlrabi,<br />

rutabaga, Chinese<br />

cabbage, bok choy,<br />

horseradish, radish,<br />

watercress<br />

Flax seed<br />

Wheat bran<br />

Apples, onions, tea, berries,<br />

various seeds and nuts,<br />

some medicinal botanicals,<br />

including Ginkgo biloba<br />

and St. John’s Wort<br />

Grapes, berries, peanuts,<br />

red wine<br />

Lana Pinshaw BscDiet (sRD)<br />

Lana Pinshaw is a<br />

South African<br />

qualified dietician.<br />

She graduated in<br />

1998 from the<br />

University of Pretoria<br />

and soon left South<br />

Africa to further her career in<br />

London. She worked for the private<br />

hospital group HCA for 6 years after<br />

which she had her first child and<br />

became a freelance dietician<br />

working in both the NHS and private<br />

fields, starting her own practice. For<br />

the past 9 years, she has worked for<br />

Chai and has gone back to work for<br />

the HCA group.<br />

10 20 years of cancer support in the community<br />

20 years of cancer support in the community 11


Breast <strong>Cancer</strong>: Prof. Michael Baum & Mr Michael Douek<br />

Prof. Michael Baum MB, ChB, FRCS, ChM, MD(hon), FRCR(hon)<br />

Breast cancer is now the most common cancer in the<br />

UK. About 1 in 9 women are diagnosed with breast<br />

cancer at some point during their lifetime and it is very<br />

rare in men. This amounts to about 45,500 women and<br />

270 men (0.6%) diagnosed with breast cancer each<br />

year. Of these, about 35% (16,000) are diagnosed<br />

through the NHS Breast Screening Program and the<br />

rest present to breast clinics across the UK, with<br />

symptoms of breast disease. Symptoms include,<br />

a lump or lumpiness, a change in the shape of the<br />

breast or nipple, or a blood stained nipple discharge.<br />

Self-examination has not been shown to be effective,<br />

probably because women do not know what to look<br />

for and do not perform it on a regular basis. Breast<br />

awareness, or a basic knowledge of what can go<br />

wrong, is important in order to ensure that women<br />

seek help when a new symptom is first identified, and<br />

if it does not resolve after the next menstrual cycle.<br />

Thus a new lump or new symptoms should be brought<br />

to the attention of an experienced clinician who can<br />

then examine and or image the breast.<br />

Current position: Professor Emeritus of Surgery and<br />

visiting Prof. of Medical Humanities, University<br />

College London.<br />

Michael Baum qualified in medicine<br />

at Birmingham University medical school<br />

in 1960. He held chairs of surgery at Kings College<br />

London 1980 - 1990, the Institute of <strong>Cancer</strong><br />

Research 1990 - 1995 and University College London<br />

1995 -2001. In the past he has been President of the<br />

British Oncology Association, the European Breast<br />

cancer conference and chairman of the Psychosocial<br />

committee of the National <strong>Cancer</strong> Research<br />

Institute. He has been awarded the William<br />

McGuire prize at San Antonio Texas, the Charles Gross prize in France, the St Gallen prize<br />

in Switzerland and the gold medal of the International College of surgeons for his<br />

research into the treatment of breast cancer. He established the first clinical trials centres<br />

in the UK, was one of the first to challenge the doctrine of radical mastectomy, lead the<br />

first trial that demonstrated the potential of tamoxifen to prolong life amongst breast<br />

cancer victims and was also the first to describe psychometric instruments to measure<br />

quality of life in cancer sufferers. Most recently he has lead the first trial to demonstrate<br />

the equivalence of intra-operative single dose of radiotherapy with 6 weeks postoperative<br />

treatment.<br />

A number of factors have been found to be<br />

associated with an increased risk of breast cancer<br />

and are know as risk-factors. Many of these are not<br />

controllable and are therefore only of academic<br />

interest. These include, age, family history of breast<br />

cancer, living in the Western society, obesity, alcohol<br />

intake, lack of exercise, current use of oral<br />

contraceptives and use of hormone replacement<br />

therapy (HRT). After female gender, age is by far the<br />

most important risk-factor as a 60 year old is 10 times<br />

more likely to have breast cancer, compared to a 40<br />

year old lady. Of these risk-factors, family history is of<br />

particular interest to the Ashkenazi Jewish Community<br />

as the most important cancer syndrome, the<br />

hereditary breast and ovarian cancer syndrome, is<br />

more prevalent in this group. Three founder genetic<br />

mutations (two in the BRCA1 and one in the BRCA2<br />

genes) are specifically found in the Ashkenazi<br />

community. These genes are associated with a 35-<br />

85% lifetime risk of breast cancer and a 16-60% lifetime<br />

risk of ovarian cancer as well as an increased risk<br />

of other cancers including peritoneal, fallopian tube,<br />

prostate and pancreatic. Women who carry these<br />

genes should be managed by a specialist unit where<br />

a geneticist can undertake a formal risk-assessment.<br />

Women can then be considered for screening and<br />

surgical options aimed at reducing risk. However, it is<br />

important to note that although family history of<br />

breast cancer is common and up to 27% of women<br />

may have an inherited predisposition for breast<br />

cancer, only 5% of women with breast cancer carry<br />

one of the known abnormal genes. Thus the genetic<br />

aspects are interesting but rare.<br />

The modern treatment of breast cancer is delivered as<br />

part of a multidisciplinary team including surgeons,<br />

oncologists, radiotherapists, pathologists, radiologists,<br />

specialist nurses and many more. Over the last 30<br />

years incremental improvements in cancer treatment<br />

and also in screening have led to an improvement in<br />

breast cancer survival. Surgery is the most important<br />

treatment available for breast cancer and it can now<br />

be safely undertaken by breast conservation with<br />

radiotherapy in over 60% of women. Increasing<br />

emphasis is now placed on reducing morbidity and<br />

improving the quality of life of women with<br />

Mr Michael Douek MD, FRCS(Eng) FRCS(Gen)<br />

breast cancer. The introduction of sentinel lymph<br />

node biopsy (SLNB) as a part of breast cancer surgery,<br />

has further reduced the morbidity of surgery. The<br />

need for whole breast radiotherapy has been<br />

questioned. Several trials are now underway to assess<br />

partial-breast radiotherapy administered intraoperatively<br />

or after surgery. Most recently, a trial of a<br />

single dose of intra-operative radiotherapy (TARGIT)<br />

has shown very promising results, paving the way<br />

towards the delivery of breast cancer treatment at a<br />

single sitting. This would be followed by additional oral<br />

medication (e.g.: tamoxifen or aromatase inhibitors)<br />

for a selection of patients with lower risk tumours and<br />

chemotherapy for higher risk patients.<br />

Today 8 out of 10 women survive breast cancer and<br />

survivorship, focuses on improving the care and<br />

support to patients in the longer term. Organisations<br />

such as Chai provide the essential backup patients<br />

need in order to return to a normal and active life.<br />

With an increasing population of survivors, the focus<br />

should be shifted to enable patients and their family<br />

to return to a normal status quo and quality of life, as<br />

quickly as possible.<br />

Current position: Reader in Surgery & Consultant<br />

Surgeon, Breast Unit, Guy’s Hospital<br />

Michael Douek is a Reader in Surgery (King’s College<br />

London) and Consultant Surgeon at Guy’s & St<br />

Thomas’ NHS Trust. His main interest is in breast<br />

cancer surgery specifically, improving breast<br />

conserving surgery using techniques such as breast<br />

MRI, intra-operative radiotherapy and sentinel node<br />

biopsy.<br />

His translational research program evaluates novel<br />

imaging modalities to improve breast conserving<br />

surgery for cancer including clinical applications of<br />

nanotechnology for sentinel node biopsy. He is the chief investigator of the SentiMag trial<br />

of sentinel node biopsy and principal investigator for the international randomised<br />

controlled trial of intra-operative radiotherapy (TARGIT trial), at Guys Hospital. He is a<br />

regular speaker at national and international conferences, published several papers on<br />

breast cancer and made contributions in the health media.<br />

Michael graduated from the University of Dundee (Scotland) and trained in surgery in<br />

London, Oxford and Cambridge. He obtained his MD from the University of London in<br />

2000. In 2003, he was awarded a prestigious Health Foundation Clinician Scientist grant<br />

by the UK Academy of Medical Sciences, fully funding his joint Senior Lecturer and<br />

Consultant post in breast and general surgery at University College London. He was a<br />

Consultant Surgeon & Senior Lecturer at University College Hospital (UCH) for over 5 years.<br />

12 20 years of cancer support in the community<br />

20 years of cancer support in the community 13


Spa Day 2010<br />

The Chai Well Being Spa Day was held in the<br />

spectacular home of Cheryl and Stuart Lewis on<br />

a beautiful spring day.<br />

The event was Karen Goodkind’s “brainchild” and<br />

she was the driving force and inspiration ensuring<br />

the day’s success.<br />

The capacity was stretched to accommodate the<br />

90 ladies who attended. They enjoyed spa and<br />

beauty treatments as well as some of the holistic<br />

treatments that Chai offers such as shiatsu,<br />

reflexology, aromatherapy and reiki which can help<br />

people deal with the side effects of cancer treatment.<br />

Feeling refreshed and relaxed, the ladies then sat<br />

down to a delicious lunch and a talk by celebrity<br />

trainer Matt Roberts. Matt spoke about the<br />

importance of exercise and maintaining a healthy<br />

and balanced lifestyle.<br />

The event was the first of its kind as many well known<br />

companies generously donated their skills, products<br />

and services to the day. The companies who<br />

participated included; Aben Wines Limited, Balance<br />

Me, Bharti Vyas, Carole Sobell, Chiko Photography,<br />

Guinot, HOB Salons, Jason Milan, Kristal Florist, Liquid<br />

Chefs, Live Events, Marks & Spencer, Matt Roberts,<br />

Matt Roberts Gym, Michael Rose Banqueting, Minton<br />

Water, Perfect Nails and Tony Page.<br />

Karen Goodkind was absolutely thrilled with the<br />

success of the day and praised “the amazing<br />

services” that Chai provides, saying that she was<br />

“delighted<br />

to be able to help this wonderful and much needed<br />

organisation.”<br />

Photography by Chiko and Vicky Brown<br />

Louise Hager, Karen Goodkind & Cheryl Lewis<br />

Karen Goodkind & Matt Roberts<br />

Pamela Kalms & Daniela Pears<br />

Juliette Owide, Stephanie Harris, Linda Plant, Karen Goodkind, Lisa Tchenguiz, Lydia Attia, Renee Feinstein & Wendy Press<br />

Renee Feinstein, Naomi Press, Zea Lewis, Cheryl Lewis<br />

Sharon Green, Ruth Bray, Karen Haftel<br />

Morven Heller & Louise Hager<br />

Karen Lipinski, Lesley Burkeman, Charlene Unterhalter<br />

Tiffany and Anita Zablodowicz, Dayle Kantor<br />

& Vanessa Jossel<br />

Yvonne Delane, Samantha Stone, Karen Harris


Growth of our Services: Elaine Kerr, Chief Executive<br />

organisations providing support for cancer patients,<br />

such as Breast <strong>Cancer</strong> Haven, visit Chai to learn how<br />

we do what we do, so successfully.<br />

Use of our home support service for clients, who are<br />

either unable to come to a Chai site or prefer to benefit<br />

from our services in their own homes, has also<br />

dramatically increased and we now make thousands of<br />

home visits to our clients each year.<br />

Home Visits:<br />

Chai’s Garden Room<br />

In her Chairman’s message, Louise refers to this year<br />

being significant for Chai. Well I shall bold and underline<br />

that statement. In terms of our development and<br />

preparing for the future, this year provided the<br />

opportunities and we seized them. Below I note some<br />

major strategic plans that have come to fruition during<br />

the last year.<br />

The Need<br />

This pie-chart demonstrates the growth in the number of<br />

new clients turning to Chai for support. Over the last two<br />

years this 50% growth each year has been sustained and<br />

we have successfully responded, thereby maintaining<br />

both the fast access and high quality of our services.<br />

New Clients:<br />

Chai sees an average of 80 new clients each month. We<br />

currently support 1300 clients, of whom around half are<br />

cancer patients and half are family members or friends.<br />

Chai was recently judged, with two other organisations,<br />

to be providing the highest quality psychological support<br />

services for Level 3 patients by the commissioners of the<br />

North London <strong>Cancer</strong> Network. Other voluntary<br />

Our clients can use all of our services, with the exception<br />

of groups, in their own homes, hospitals and hospices.<br />

The Services and Access to them<br />

Chai currently provides therapies, complementary<br />

therapies, counselling for individuals, couples and<br />

families, advice and advocacy, support groups and<br />

volunteer services. Each client is offered all the services<br />

which will be of benefit to them, and this package of<br />

care will change over time. Clients may use Chai’s<br />

services for as long as they need to, which can<br />

sometimes be for years.<br />

Most clients self refer by calling our free helpline, some<br />

walk into our Hendon Centre or other sites, and many<br />

are recommended or referred by health and social care<br />

professionals or other voluntary and statutory agencies.<br />

We see distressed clients for their first appointment within<br />

24 hours and all new clients are seen within 2-3 days.<br />

We do not have a waiting list for services, which can<br />

be provided immediately after the initial appointment.<br />

New clients turn to Chai at any time from pre-diagnosis<br />

to late stage illness.<br />

Our Hendon Centre provides the greatest number and<br />

range of services for a population of around 170,000<br />

people surrounding NW and N London and Hertfordshire.<br />

Since the opening of the new Wohl Wing adjoining the<br />

Centre, we have been able to increase the number of<br />

counselling sessions held in Hendon by 40 per week, and<br />

increase individual therapy sessions by the same amount.<br />

Physical exercise groups and our physiotherapy clients<br />

are thoroughly enjoying our new gym, and many clients<br />

visiting the Centre are now spending time in the beautiful<br />

garden room taking part in a range of activities or just<br />

enjoying some quiet time.<br />

We provide services for the rest of London and Essex<br />

from our bases in South London, Redbridge, Southend<br />

and Hackney. The Southend and Hackney services were<br />

opened during 2010 and all services have seen client<br />

numbers steadily rising during the year.<br />

The immediate success of the North Manchester service<br />

which opened in May 2009 led to the development<br />

of a service in South Manchester that opened this<br />

summer. The advantage of having two bases in<br />

Manchester has resulted in Chai being able to provide<br />

services to a wider geographical area, and nearer to<br />

clients’ homes. We currently support clients in Liverpool,<br />

Leeds and Newcastle who are being served from our<br />

Manchester bases.<br />

We opened our Glasgow service earlier in the year and<br />

will be seeking a base on the south coast during the next<br />

year in order to provide truly national coverage.<br />

Each Chai location has the expert core services that are<br />

relevant to any cancer patient and family members. As<br />

each new service establishes itself we learn in detail what<br />

specific services are required to support each individual<br />

community. We ensure that we work in partnership with<br />

local voluntary and statutory services so that we do not<br />

replicate local provision, but fill gaps and enhance<br />

local care and support with our expert and specialist<br />

knowledge. The development of services in each<br />

location is therefore completely responsive to the<br />

community it serves.<br />

Consolidation and Further Expansion<br />

After two hectic years of geographical expansion Chai<br />

will continue to consolidate our 8 sites ensuring that we<br />

maintain our high quality professional services whilst<br />

responding sensitively to individual community needs.<br />

We have plans to establish a presence on the south coast<br />

so that we can reach the Jewish communities there.<br />

At the same time we shall be focusing on furthering our<br />

not inconsiderable support to those overseas who rely on<br />

Chai for telephone advice and/or counselling.<br />

Our partnership work continues to flourish and we are<br />

committed to finding joint projects and sharing expertise<br />

with a growing number of Jewish voluntary agencies – all<br />

of which result in benefits for our, often, joint clients. This<br />

year it has been a pleasure to develop robust and<br />

mutually beneficial working relationships with Jewish<br />

<strong>Care</strong> Scotland, Jewish Blind Society Scotland, Norwood<br />

and Bikkur Cholim d’Satmar. Of course we continue to<br />

work with Nightingale, the Federation of Jewish Services<br />

in Manchester and Jewish <strong>Care</strong> in Redbridge and<br />

Southend.<br />

It has been a real privilege to work with like minded<br />

colleagues to the benefit of our community.<br />

Finally, we shall be launching a national first with a new<br />

service at the Hendon Centre in October this year. This<br />

innovative partnership will be of enormous benefit to our<br />

clients and will provide a model which meets the<br />

Government’s strategy for the future of cancer care<br />

in the UK.<br />

16<br />

16 20 years of cancer support in the community<br />

20 years of cancer support in the community 17


Group Activities<br />

One Family’s Story<br />

Chai is experienced in establishing and running groups<br />

which meet the needs of our clients, and complement<br />

and enhance the one-to-one counselling and<br />

therapies we provide. As we are responsive to client<br />

suggestions new groups are often formed. All clients<br />

are welcome to attend a group – even if they just want<br />

to try it once or know that they cannot attend regularly.<br />

Art Workshop<br />

In the weekly group our clients are astonished at their<br />

own achievements, even if they have never attempted<br />

to paint or draw before. With guidance from<br />

professional artist Linda Sharpe and her volunteers,<br />

clients learn and release new talents, enjoy tea and<br />

cake, and often make new friends.<br />

For the last 3 years Chai’s Rosh Hashanah card has<br />

been designed by a group member, and last year<br />

a vibrant calendar was produced using their paintings<br />

– with their kind permission of course. They are already<br />

planning next year’s calendar!<br />

Bereavement Group*<br />

This group is run by professional counsellors for our<br />

clients who have sadly lost their partner. Within the<br />

group our clients are safe to express their feelings<br />

in a supportive and empathetic place.<br />

Breast Buddies*<br />

Breast Buddies, facilitated by our professional<br />

counsellors, is specifically for women with breast<br />

cancer. It meets on the first Thursday of each month<br />

and group members have an opportunity to get<br />

and give support, as well as gather information in<br />

a safe environment.<br />

Laughter Yoga<br />

Laughter Yoga is a combination of self-triggered<br />

laughter and yoga exercises which increases the<br />

amount of oxygen in your body. The resulting feelings<br />

of health and energy change the physiology of the<br />

body – so you start to feel happier. You don’t even<br />

need a sense of humour, just a willingness to laugh!<br />

Laughter Yoga is....<br />

that you start to feel happier.<br />

Meditation<br />

Our highly-experienced facilitator uses visualisation to<br />

promote positive feelings through deep relaxation.<br />

Many clients who have practised visualisation in the<br />

session frequently use it in their daily lives, and find it a<br />

very helpful aid to reducing stress and relieving anxiety.<br />

Pilates<br />

Pilates is a form of exercise which uses small, controlled<br />

movements with an emphasis on core stability to<br />

strengthen and tone the body. It is able to help reeducate<br />

the body, promoting flexibility, postural<br />

alignments and musculo-skeletal balance. Pilates assists<br />

in relieving stress and tension while providing physical<br />

fitness and a sense of wellbeing. Chai has pilates<br />

classes on Mondays and Thursdays, with classes for<br />

beginners and advanced beginners.<br />

Post Breast Surgery Exercise Group*<br />

Regular arm exercises performed soon after breast<br />

surgery will regain and maintain joint flexibility and<br />

muscle strength, and decrease scarring. Neck and<br />

shoulder discomfort due to muscle tensing to protect<br />

the wound can be alleviated with regular, planned<br />

exercise. Exercises are important during, as well as<br />

after, radiotherapy which can cause tightening of<br />

the shoulder.<br />

This group is led by one of our Chartered<br />

Physiotherapists who provides group and individual<br />

guidance and advice. The group is suitable at any<br />

time after discharge from the hospital.<br />

Wednesday Afternoons<br />

On alternate Wednesday afternoons, our clients and<br />

our enthusiastic team of volunteers, enjoy a range of<br />

activities from cards to games to quizzes. Some clients<br />

come regularly just to enjoy the company, conversation<br />

and refreshments. Four times a year our Wednesday<br />

afternoons welcome professional entertainers.<br />

Yoga<br />

Our expert yoga teacher has been practising for<br />

over 20 years. Her class is suitable for all levels –<br />

with individual attention given, and can help to<br />

reduce stress and assist the body to improve its health<br />

and wellbeing.<br />

Sandra<br />

“It was around Pesach a year ago that I first noticed the lump in my breast. Although I<br />

went for tests straight away, it wasn’t until the summer that it was decided that the<br />

lump should be removed. By this time I had Grade 3 breast cancer. This was a terribly<br />

confusing time for me, and for my husband Ian. I felt a huge pressure to be ‘brave’, to<br />

carry on as normal and most importantly to ensure my children did not notice any<br />

changes in my role as their mummy.<br />

My family and friends were marvellous, but Ian sensed that I needed specialised,<br />

expert support. He made the call to Chai. Since being in touch with Chai last<br />

September, I have been receiving counselling, massage and reflexology at the<br />

centre in Hendon and also in my own home. Chai has been my haven, allowing me<br />

to show the side that I can’t show at home, and giving me the support and strength to continue my battle.<br />

Ian & Ruthie<br />

“It hasn’t been an easy year for us. Shortly after Pesach<br />

last year my mother passed away, and then Sandra<br />

was diagnosed with breast cancer.<br />

Our children have always been Sandra’s main concern.<br />

They are very sensitive to their surroundings – and can<br />

always tell when their mum needs a cuddle! They seem<br />

to be coping well, however Sandra’s cancer and the<br />

side effects of her treatment meant she hasn’t always<br />

been able to be there for them. Chai helped us think<br />

through how and what we told the children. My<br />

mother-in-law Ruthie has been so supportive and is<br />

amazing with Sandra and the kids. She finds it really<br />

hard to watch Sandra suffering, so she has also been going to Chai for regular counselling. And, I know Chai’s door<br />

is always open for me too. Chai’s services have made the world of difference to Sandra, and I am truly grateful<br />

that she has a space where she can focus on herself, without having to worry about the rest of us.”<br />

“My family and<br />

friends were<br />

marvellous, but<br />

Ian sensed that<br />

I needed specialised,<br />

expert support.<br />

He made the call<br />

to Chai.”<br />

*All groups are available to anyone affected by cancer,<br />

18 20 years of cancer support in the community<br />

be it patient or family, except where specifically indicated.<br />

20 years of cancer support in the community 19


Colorectal <strong>Cancer</strong>: Mr Daren Francis<br />

How common is bowel cancer?<br />

Bowel cancer is the third most common cancer in the UK.<br />

Each year 35,000 people in Britain are diagnosed with<br />

cancer of the colon or rectum.<br />

Unlike certain other cancers bowel cancer can often be<br />

cured. The mainstay of treatment is surgery however<br />

chemotherapy and radiotherapy are playing an ever<br />

more important role. New treatments are being<br />

introduced all of the time making survival even<br />

more likely.<br />

One thing we know for certain is that the earlier bowel<br />

cancer is diagnosed the greater the chance of cure.<br />

How does it all start?<br />

The colon and rectum is lined with millions of cells which<br />

over a person’s lifetime shed and are then replaced. The<br />

replacement of these cells is very strictly controlled and<br />

regulated by genes. If this process is faulty in any way<br />

then the growth of these cells becomes abnormal and<br />

leads to the formation of a polyp. This polyp is the first<br />

step towards cancer.<br />

Polyps<br />

Once the polyp has been formed it starts to grow. From<br />

a tiny bump on the lining of the bowel it increases in size.<br />

This can occur over many years and some polyps remain<br />

benign throughout life. However approximately one in<br />

ten polyps will turn into a cancer. As a rule of thumb the<br />

larger the polyp the more likely that it will be cancerous.<br />

We are less concerned about polyps less than 1cm in size.<br />

We know that the majority of all the cancers of the colon<br />

and rectum start as benign polyps and if removed early<br />

enough prevent cancer developing.<br />

Polyp to <strong>Cancer</strong> – the process<br />

In some polyps the growth pattern becomes so<br />

disordered and fast that the cells become<br />

unrecognisable as polyp cells and become cancer<br />

cells. This is the first part of the change from a benign<br />

polyp to a malignant or cancerous polyp. As the cancer<br />

advances it starts to grow into the wall of the bowel and<br />

can invade the blood stream, lymphatics and nearby<br />

structures. When this occurs it is referred to as an invasive<br />

cancer. Once this has happened, the cancer can<br />

potentially “metastasise”. This means it can spread to<br />

organs far away like the liver and lungs to form<br />

secondaries or metastases. The cancer does this via the<br />

blood stream or the lymphatics.<br />

The importance of early diagnosis and screening<br />

Put simply the earlier the cancer is detected the better<br />

the chance of cure. As the cancer gets larger it invades<br />

more deeply and the chances of it spreading increase.<br />

Not all people have symptoms of bowel cancer which is<br />

why the Government has introduced the national bowel<br />

cancer screening programme. Screening gives the<br />

opportunity of picking up polyps or cancers when they<br />

are still curable. This programme is offered to all people<br />

aged between 60 and 75. It involves a simple stool test<br />

which is carried out in the privacy of ones own home.<br />

The symptoms of bowel cancer<br />

The process of the polyp turning into a cancer can take<br />

between 5 and 10 years. Early on in this process there are<br />

very little in the way of symptoms. The symptoms which<br />

develop later such as bleeding, change in bowel habit,<br />

episodes of diarrhoea and constipation are also<br />

common to other bowel disorders such as piles and<br />

irritable bowel syndrome making the diagnosis in some<br />

circumstances quite difficult. When a bowel cancer gets<br />

bigger it can sometimes lead to severe abdominal pain<br />

and even block the bowel which requires emergency<br />

treatment. In some cases bleeding from the bowel can<br />

go unnoticed and after a period of time the patient will<br />

become anaemic.<br />

How is the diagnosis made?<br />

Sometimes the doctor will be able to make the diagnosis<br />

by examining the abdomen or performing a rectal<br />

examination. If there is any doubt tests are needed. The<br />

most commonly used tests are:<br />

Flexible Sigmoidoscopy – following an enema to clear<br />

the bottom part of the bowel a telescope is inserted to<br />

directly inspect the lower half of the bowel.<br />

Colonoscopy – this test requires the bowel to be cleaned<br />

the day before the test using powerful laxatives. Again it<br />

is a telescope but on this occasion the entire large bowel<br />

is examined to check for polyps and cancers. This test is<br />

normally carried out with sedation as it can be a little<br />

uncomfortable.<br />

CT pneumocolon scan – this is an X- ray test and again<br />

requires the bowel to be cleared with powerful laxatives<br />

the day before the examination. A tube is not passed<br />

through the bowel but air is inflated to allow the bowel to<br />

be examined. It is good at detecting problems but<br />

unable to treat any polyps.<br />

The advantage of the flexible sigmoidoscopy and<br />

colonoscopy is that if there is a polyp or a growth in the<br />

bowel it can either be completely removed at the same<br />

time or a biopsy taken.<br />

The best test for each individual patient is selected<br />

by the specialist as not all the tests are appropriate<br />

for everyone.<br />

What happens after the diagnosis is made?<br />

Once the diagnosis of bowel cancer is confirmed the<br />

decision making process regarding your care is made by<br />

a team of specialists known as a multidisciplinary team<br />

(MDT). Further tests are organised including blood tests<br />

and special scans. This enables a full assessment of the<br />

primary bowel cancer and in addition the extent of<br />

spread. This allows for the planning of the most<br />

appropriate treatment.<br />

Treatment does depend a lot on the location of the<br />

cancer as there is a difference in the initial treatment<br />

of colonic and rectal cancers.<br />

Rectal cancers<br />

The planning of the treatment of rectal cancer is slightly<br />

different from colonic cancer as radiotherapy aimed at<br />

the cancer can shrink the tumour before surgery and<br />

improve cure rates. Following radiotherapy, surgery can<br />

then remove all of the tissue surrounding the cancer and<br />

leave none behind. This is known as a total mesorectal<br />

excision or TME. After the tumour is removed it is cut up<br />

and looked at under the microscope to decide if any<br />

further treatment like chemotherapy is needed. This is<br />

dependant on how far into the bowel wall the tumour has<br />

invaded and if it has affected any of the lymph glands<br />

which have been removed at operation<br />

Colonic cancers<br />

After the tumour has been assessed most colonic<br />

cancers are treated by surgery in the first instance.<br />

The surgery allows removal of the tumour and the lymph<br />

glands surrounding it. The specimen which has been<br />

removed is then looked at under the microscope and<br />

again the level of invasion through the bowel wall is<br />

assessed along with the number of lymph glands that<br />

are affected. This allows the planning of any post<br />

operative chemotherapy. With early cancers sometimes<br />

surgical removal alone is all that is necessary.<br />

Consequences of surgery<br />

With most cancers of the colon, after removal of the<br />

affected section the ends of the bowel can be joined<br />

together again. However with some cancers of the<br />

rectum (which are very close to the anal canal) it is not<br />

possible to leave enough rectum so as to allow the bowel<br />

to be rejoined. In these cases a colostomy is formed.<br />

This is an opening of the bowel onto the abdominal<br />

wall to allow the passage of stool after the rectum has<br />

been removed.<br />

What happens after recovering from surgery?<br />

The key to planning the treatment after surgery is the<br />

final histology of the specimen which has been removed.<br />

This is looked at under the microscope and the need for<br />

any chemotherapy decided by the MDT on a number of<br />

factors specific to the individual case. The role of<br />

chemotherapy is to improve the chances of cure. The<br />

specialist team continues to follow up patients with<br />

regular blood tests and scans.<br />

Advanced bowel cancer<br />

In some cases the cancer has spread to other organs and<br />

cure is not possible. In these cases sometimes surgery is<br />

not appropriate. On these occasions chemotherapy and<br />

radiotherapy play a major role in the treatment. These<br />

modalities can be very effective in controlling symptoms<br />

and prolonging life but careful consideration has to be<br />

taken to select a treatment which balances the side<br />

affects and the benefits gained.<br />

Implications for the family<br />

When people are diagnosed with bowel cancer at a<br />

young age (40 – 50 years) or when bowel cancer is very<br />

common within a family it could be because there is an<br />

inherited genetic abnormality. The risk of other members<br />

developing bowel cancer is assessed and they can be<br />

advised to undergo regular colonoscopies starting at<br />

a young age.<br />

The future and research<br />

The treatment for colorectal cancer continues to improve<br />

all of the time. Screening has meant earlier detection<br />

and endoscopic removal. Laparoscopic or keyhole<br />

surgery is allowing much smaller incisions and quicker<br />

recovery following surgery. Larger tumours are being<br />

shrunk with specific chemotherapy and radiotherapy<br />

to allow surgical removal. Liver and lung surgery is now<br />

possible for selected patients who have developed<br />

metastases with a view to cure. People with inoperable<br />

cancer are living with the disease as less toxic and more<br />

effective chemotherapies are developed. We continue<br />

to make people aware to watch for potential signs<br />

through various methods to make it easier to identify<br />

cancer at an early stage.<br />

Mr Daren Francis MBBS, MD, FRCS<br />

Daren Francis is a consultant surgeon at Barnet and Chase Farm Hospitals<br />

NHS Trust where he provides a Colorectal, Laparoscopic and General<br />

surgical service. He also works privately from Spire Hospital Bushey, The<br />

Garden Hospital and The Kings Oak and Cavell Hospital. For more<br />

information please visit Daren’s website: www.darenfrancis.co.uk<br />

20 20 years of cancer support in the community<br />

20 years of cancer support in the community 21


Opening of the Wohl Wing<br />

There was an a air of celebration at the dedication<br />

capacity filled room when he said that he could not<br />

ceremony of the Wohl Wing at Chai’s flagship centre in<br />

remember a time when Chai did not exist. He praised<br />

Hendon. With drinks in hand, guests took guided tours<br />

Chai, and shared that at council meetings Chai was often<br />

of the new Wing and had the opportunity to admire<br />

held up as an example of how an organisation can grow<br />

the much needed four additional counselling rooms,<br />

and serve the needs of its community.<br />

garden room and physiotherapy suite.<br />

As part of the dedication ceremony supporters were<br />

Martin Paisner CBE<br />

Gerald & Benita Fogel, Lord Young<br />

In her welcome, Louise Hager highlighted that the<br />

invited to fix the mezuzot on all 21 doors.<br />

positive and uplifting atmosphere of the centre had<br />

been embodied in the Wing. This reflected Chai’s ethos<br />

of supporting people to enable them to live with their<br />

cancer. Maureen Lipman CBE paid a moving tribute to<br />

her dearest friend and fellow Honorary Patron Lady<br />

Jakobovitz z’l.<br />

Chairman of the trustees of the Wohl Foundation, and<br />

nephew of Maurice and Vivienne Wohl, Professor<br />

David Latchman CBE spoke of how delighted he and<br />

his co- trustees were to continue the support for Chai<br />

that had existed since its inception. Councillor Anthony<br />

Finn, Mayor of Barnet summed up the feeling in the<br />

Maureen Lipman CBE, Louise Hager<br />

John Julius, Betty Trompeter, Alex Faiman, Susan Mattes<br />

Gillian & Irving Carter, Freddy & Louise Hager<br />

& Lady Pamela Kalms MBE<br />

Kate Goldberg, Ella Latchman, Prof. David Latchman CBE,<br />

Martin Paisner CBE & Daniel Dover<br />

Davidson Family<br />

Suzanne & Michael Marks<br />

Daniel Leon, Sula Leon, Danielle Leon, Anthony Leon<br />

Elaine Kerr & Lady Pamela Kalms MBE<br />

Natalie, Clive & Roberta Gold<br />

Erna Angus, Dennis Jacobs, Betty Trompeter, Elaine Kerr<br />

Maurice Berman, Rochelle Wolfson, Frances Berman,<br />

Leo Wolfson, Max Wolfson<br />

Photos by Jeremy Coleman


Q&A with Sir Ralph Kohn FRS and Lady Zahava Kohn<br />

Q: Tell us about your early lives and how you both met?<br />

A: Zahava: “I was born in Palestine after my parents had<br />

moved there from Holland in 1935. When I was one and<br />

a half, my parents decided to leave Palestine as my<br />

mother was seriously unwell due to severe dehydration.<br />

My parents settled in Amsterdam as they were unable to<br />

immigrate to Switzerland, where my maternal<br />

grandparents lived.”<br />

“During the war my parents and I spent time in the<br />

concentration camps of Westerbork and Bergen-Belsen.<br />

The fact that I was born in Palestine was later an<br />

important factor that helped my family to be saved from<br />

transportation to Auschwitz.”<br />

“After the war my family and I moved back to<br />

Amsterdam, but the city bore little resemblance to the<br />

one that existed pre-war. With the help of some friends I<br />

chose to move to London and started working for Dr<br />

Schonfeld, a young Rabbi. I worked in the nursery<br />

schools of Hasmonean and Menorah Primary School and<br />

was taken in and made to feel very welcome by the<br />

Orthodox community in Golders Green.”<br />

A: Ralph: “I was born in Leipzig, Germany and shortly<br />

after Hitler came to power in 1933 my family left for<br />

Amsterdam, Holland. I attended elementary school<br />

from 1935 to 1940 when my family fled as refugees on<br />

the day the Nazis occupied Amsterdam on 14th May<br />

1940. After a seven-day sea journey my family was<br />

allowed to land in Liverpool. We had left all our<br />

belongings behind in Holland and arrived in England as<br />

penniless refugees. My family chose to settle in Salford,<br />

Manchester as my father had friends in the textile<br />

industry there.”<br />

A: Zahava: “I went to visit my parents on a short break to<br />

Holland in August 1962, when my father asked me to<br />

meet a young man, the son of some mutual<br />

acquaintances. I agreed and met Ralph Kohn with his<br />

parents in Scheveningen who were also on holiday as<br />

Ralph, like me, was living in London at the time. When we<br />

were both back in London we continued to see each<br />

other and in December 1962 were engaged. We were<br />

married on 12th March 1963 at the Jacob Obrecht<br />

Synagogue in Amsterdam. We now have three beautiful<br />

daughters; Hephzi, Michelle and Maxine and are proud<br />

grandparents.”<br />

Q: How and why did Ralph get into the pharmaceutical<br />

industry?<br />

A: Ralph: “My career started when I obtained a<br />

scholarship to university but was unable to gain a place<br />

to study medicine in 1947 due to returning ex-servicemen<br />

being allocated 90% of the available places. Although I<br />

wanted to study medicine, these restrictions resulted in<br />

my having to choose another course. I studied<br />

pharmacology at Manchester University and obtained a<br />

PhD in 1954 and went on to win the Wild prize in<br />

Pharmacology. I found myself studying and working in<br />

an era of innovation, with revolutionary drug discoveries<br />

such as penicillin, streptomycin, anti-hypertensive drugs<br />

and cortisone paving the way for new and effective<br />

treatments, which fascinated me.”<br />

“My work then took me to Rome and New York during<br />

the years of 1954 to 1958 as I pursued research<br />

experience. With various scholarships and fellowships I<br />

worked at renowned institutes in Europe and the US.<br />

Whilst in Rome I worked alongside the two Nobel Prize<br />

winners, Professor Daniel Bovet and Sir Ernst Chain FRS<br />

(who shared the Nobel Prize for Penicillin with Fleming<br />

and Florey). Bovet actually won the prize whilst I was<br />

working with him. In New York I studied at the Albert<br />

Einstein College of Medicine, which resulted in my being<br />

appointed Head of Pharmacology for an American<br />

company. I subsequently became Managing Director of<br />

a Swiss biological company, after which I set up my own<br />

company.”<br />

“After 12 years in the pharmaceutical industry I believed<br />

that there was a real need for an independent research<br />

company that had no bias or vested interest in the<br />

outcome of trials. In 1970 I set up my own organisation,<br />

the first independent medical research company in the<br />

UK mainly dealing with the clinical assessment of new<br />

drugs. This company became widely known for its work<br />

and within 20 years it had won the prestigious Queen’s<br />

award for Expert Achievement. Over the years my<br />

company has worked with many organisations<br />

worldwide and it has gained a reputation for scrupulous<br />

fairness, innovation and impartiality between the<br />

medical profession and the pharmaceutical industry. I<br />

believe that the British regulatory process has played a<br />

huge positive role in the development of new drugs.”<br />

“The development of the company could not have<br />

been achieved, or indeed been so successful, without<br />

Zahava’s continual support and encouragement and<br />

particularly considering the time she spent working for<br />

the company whilst simultaneously bringing up a young<br />

family.“<br />

A: Zahava: “This year we were delighted when Ralph<br />

received a KBE (Knights Bachelor). This citation is most<br />

unusual as it is for services to science, music and charity –<br />

all the things he loves doing. Previously he was the<br />

recipient of numerous awards and honours including<br />

election to the prestigious fellowship of the Royal Society<br />

(FRS).”<br />

Q: How and why was the Kohn Foundation set up?<br />

A: Zahava: “In 1991, we were in a fortunate position to<br />

have a successful company and found we wanted to<br />

give something back to society for the success that we<br />

had achieved. The first step we took in order to do this<br />

was to set up the Kohn Foundation. The Kohn Foundation<br />

makes contributions to support research and innovation<br />

Sir Ralph and Lady Zahava Kohn<br />

in science and medicine, as well as arts and education -<br />

interests closest to our hearts. Support of Jewish<br />

community and Israeli causes is of great importance to<br />

us. Our strong personal interests and commitment keep<br />

us at the forefront of the Foundation, choosing where to<br />

make contributions, and being actively involved in the<br />

projects that we support.”<br />

Q: How did Ralph start singing?<br />

A: Ralph: “Whilst in Holland, I studied the violin for 4 years<br />

until my family had to leave. A love of music ran in my<br />

family as my father was very musical and loved opera.<br />

He was also a very fine Baal Tefila. The years from 1954<br />

onwards renewed my passion for music and I began to<br />

study vocal music in Rome. I have carried on with this<br />

throughout my life and became sufficiently proficient to<br />

appear as vocal recitalist in many venues, e.g. Wigmore<br />

Hall, Queen Elizabeth Hall, Purcell Room and St. John’s<br />

Smith Square, as well as giving recitals in Israel.”<br />

A: Zahava: “Ralph has recorded a great deal, mainly<br />

from the Lieder repertoire and particularly with the worldrenowned<br />

pianist Graham Johnson. Ralph has also<br />

recorded with the English Chamber Orchestra and has<br />

made16 CDs so far, which are all marketed. Next month<br />

(August) he is due to make a further Beethoven/<br />

Schubert recording. His contributions to music in more<br />

24 20 years of cancer support in the community<br />

20 years of cancer support in the community 25


general terms have been recognised in his being<br />

elected a Fellow of the Royal Academy of Music and<br />

Doctor of Music.”<br />

Q: You have both lived such interesting lives; with all<br />

your experiences, what message would you pass on to<br />

younger generations?<br />

A Charity that’s my Cup of Chai: Tracy Ann Oberman<br />

Q: There are many Jewish Charities, why have you<br />

chosen to support Chai for 20 years?<br />

A: Ralph: “Having spent so many years in the<br />

pharmaceutical industry and tested a lot of anti-tumour<br />

drugs, I feel that though significant progress is being<br />

made cancer is still a dreaded disease. Both of us<br />

recognise that whilst physicians and surgeons provide<br />

the orthodox treatment, cancer patients are individuals<br />

who should also be supported holistically, thus fully taking<br />

account of psychological and spiritual needs.”<br />

Q: What are your hopes for Chai over the next 20 years?<br />

A: Ralph: “Over the next 20 years, our first wish would be<br />

that there is no need for Chai. At present, however, we<br />

see Chai as a vital part of our community and hope that<br />

Chai will continue to grow and support more people with<br />

increasing services.”<br />

Can Vicky celebrate<br />

your simcha too?<br />

Are you planning a special anniversary celebration?<br />

Or are you approaching a significant birthday?<br />

If you are arranging a simcha of any kind, you can<br />

help Vicky and others to cope with the effects of<br />

cancer, by asking your guests to donate to Chai.<br />

Add a worthwhile and meaningful touch to your<br />

celebration with the gift of care and support.<br />

To find out more about making your<br />

occasiona Chai occasion, please<br />

contact Chai on 020 8202 2211.<br />

Chai <strong>Cancer</strong> <strong>Care</strong><br />

144-146 Great North Way<br />

London NW4 1EH<br />

Tel: 020 8202 2211<br />

info@chaicancercare.org<br />

Registered Charity No.1078956 Identities have been changed to protect confidentiality.<br />

A: Zahava and Ralph: “We would pass on to future<br />

generations the importance of maintaining a positive<br />

attitude in life; everyone faces challenges and hardships<br />

but one must try and find a sense of purpose. Enthusiasm<br />

to create a better world has driven certain choices we<br />

have made in our lives and we have seen the impact<br />

that this has had. Perseverance has made us stronger<br />

and we would encourage people to always push<br />

forward and find the positive in any situation rather than<br />

dwell on the negative.”<br />

Interviewer’s notes: In 2009, Zahava’s biography<br />

‘Fragments of a Lost Childhood’ was published. Her story<br />

is a remarkable one as she recalls her journey from<br />

Palestine to Amsterdam and her time in the<br />

concentrations camps of Westerbork and Bergen-Belsen.<br />

In this book you can clearly see this message of<br />

perseverance and a drive for a better world as<br />

demonstrated by her and her family. From the very early<br />

days of Chai, Ralph and Zahava have provided much<br />

needed funds to enable Chai to provide the support<br />

and care that they wish to see in the community.<br />

I have always been a bit of a hypochondriac. It’s not<br />

just a cold it’s ‘FLU; I haven’t just put on a few pounds in<br />

weight, it’s a THYROID problem; its not just a headache,<br />

it’s a pulsating, hideous MIGRANE; no worse than that,<br />

it’s a BRAIN TUMOUR.<br />

Since having my daughter, I am worse than ever. I lie in<br />

bed at night in a cold sweat, panicking about what the<br />

first signs of CANCER of the leg/mouth/breast might be.<br />

Just writing the word cancer makes me nervous. It is<br />

one of those words like Auschwitz and Nazi that is<br />

visceral.<br />

It’s one of those words that brings on paralysis, dry<br />

mouth, makes the head pound whilst simultaneously<br />

provoking a strong desire to run away.<br />

This may sound a tad trite, like I’m trying to eke out<br />

some comedy, but I, like so many of you, have been<br />

touched by cancer, lost young and old, friends and<br />

family alike, and I know that it’s no laughing matter.<br />

I try not to think about it too much. But last week I was<br />

invited to an evening at Chai <strong>Cancer</strong> <strong>Care</strong> in Hendon<br />

to hear about how cancer has touched so many<br />

people and how Chai has helped them.<br />

Louise Hager spoke very movingly about how her<br />

mother co-founded Chai “When my mother was<br />

diagnosed with cancer, my father told us (typical<br />

Tracy Ann Oberman<br />

of the time) that we must keep it a secret within the<br />

family.” Chai never wants anyone to feel alone.<br />

The evening made me realise that firstly, cancer is<br />

indiscriminate. Secondly, no one likes to be a victim<br />

and Chai sees that often people who have the illness<br />

are the “strong ones” who cannot accept that they<br />

may now need help. No one wants the pity and the<br />

sighs. Thirdly, and it is something I have seen with my<br />

own eyes, that cancer sufferers are bombarded with<br />

the responsibility to be “positive and cheerful” in the<br />

face of a horrifying time. Chai beautifully tackles all of<br />

this head on. It’s a bright cheerful place.<br />

As one incredible, funny and intelligent woman, Bella,<br />

put it: “I was the capable one, I told people how to sort<br />

their lives out and here I was in need of help. I didn’t<br />

want it. Chai was the last place I thought I’d go. But I<br />

turned up one day and sobbed for an hour with a<br />

counsellor. Then I had a cup of tea.”<br />

Chai will never let anyone be alone. They are the friend<br />

that will take you to and from the treatments, they will<br />

be the shoulder to cry on, they will offer the quiet<br />

space to just “be” or a place to have a massage or if<br />

you are too sick to travel will bring it to your home. And<br />

I think that is incredible.<br />

If you or anyone you know has been touched by<br />

cancer, please call Chai. They are an incredible<br />

resource for our community.<br />

Tracy Ann Oberman is a television, theatre and radio actress. Her many TV<br />

credits include her instantaneously recognised role as Chrissie Watts in the BBC<br />

soap opera Eastenders. When she murdered her on screen husband, the episode<br />

was watched by 17 million viewers. She originated and co-authoured the<br />

critically acclaimed play Three Sisters on Hope Street. In 2010 she wrote the wellreceived<br />

radio play “Bette and Joan and Baby Jane” which was Pick of the<br />

Week on BBC Radio 4. She was a regular columnist for the Guardian newspaper.<br />

Tracy Ann trained at the Central School of Speech and Drama in London, and<br />

spent four years in the Royal Shakesphere Company, before going on to play at the National Theatre. Her<br />

extensive theatrical background includes turns opposite Kenneth Branagh in Edmond (2003) and a run in<br />

the West End revival of Boeing-Boeing (2007-2008). Tracy Ann can be seen in The Great Ghost Rescue<br />

opposite Kevin McKidd and Stephen McKintosh, a feature film that will be released next year.<br />

26 20 years of cancer support in the community<br />

20 years of cancer support in the community 27


<strong>Cancer</strong> Genetics – The Jewish Perspective: Dr Ian Ellis<br />

The Genetic Predisposition to <strong>Cancer</strong><br />

One in three of us will develop a cancer at some time.<br />

Hopefully later in life and now often curable, but it is<br />

always a shock when the diagnosis is made. After initial<br />

questions about treatment options and prognosis,<br />

people may go on to ask, ‘Why me? Why now? How did<br />

this happen?’ Answers are starting to come from studies<br />

of the genes that control cell growth and those genes<br />

that repair errors in other genes. This is particularly for<br />

breast, ovarian and bowel cancers that occur at a<br />

younger age and that cluster in some families. Some<br />

families particularly those of eastern European Ashkenazi<br />

origin are at greater risk of inheriting an alteration in one<br />

of these cancer predisposition genes.<br />

Important as genes are, they are not the whole story.<br />

Environmental factors - what we eat, our lifestyle and<br />

what we are exposed to, for example smoking can also<br />

cause cancers. It is the interplay between a genetic<br />

predisposition and these environmental triggers, nature<br />

and nurture that determines who may develop cancer,<br />

where in the body this might be and at what age. We all<br />

have a risk of cancer, but some of us are at greater risk<br />

than others.<br />

Figure 1 – The Structure of Genes Formed from DNA and<br />

Packaged into Chromosomes<br />

Genes and Mutations<br />

It is the sequence of the four genetic bases (Adenine,<br />

Guanine, Cytosine, Thymine) in the long double-stranded<br />

DNA molecule that determines what function that gene<br />

has. Genes fall into three groups:<br />

i. structural genes coding for a body protein such as<br />

muscle<br />

ii. regulatory genes (oncogenes or tumour suppressor<br />

genes) that control the cell or other genes in that cell<br />

iii. repair genes that correct mistakes in the DNA of cells<br />

Our complete set of 30,000 genes is carried on the 23<br />

pairs of chromosomes inside the nucleus of every cell. We<br />

inherit two copies of each gene, one in each pair from<br />

our parents in the egg and sperm cell that made us.<br />

Mistakes in the copying of our DNA are called mutations.<br />

They occur spontaneously and accumulate in our DNA<br />

as we age. Mutations can also be inherited and passed<br />

down through families. The random spelling change of A<br />

to C or G to T, or the loss of a run of letters C-G-A-T-T-C-T-<br />

G-A from a gene will lead to a change in the message or<br />

inactivate the function of that gene (see Figure 1).<br />

Regulatory and Repair Genes<br />

Apart from the structural genes that code for the proteins<br />

in the body; other genes have important roles as<br />

regulatory genes, controlling cells directly and by<br />

switching other genes on and off, like a co-ordinated<br />

orchestra. Genes also direct the differentiation of cells<br />

into the different organs and specialised tissues of the<br />

body. For example, primitive bone marrow cells will<br />

become the mature red blood cells and white blood<br />

cells that we need. As we reach adult life these<br />

regulatory genes shut down cell division unless<br />

replacement cells are needed.<br />

Errors can creep into the DNA sequence over time and a<br />

set of repair genes are essential to maintain our library of<br />

genes in good working order. These DNA repair genes<br />

(sometimes referred to as ‘caretaker genes’) can<br />

recognise mismatches between the two strands of our<br />

DNA. Normally they should correct the sequence by<br />

replacing the appropriate A, G, C or T genetic base, but<br />

the repair genes themselves can mutate. If our regulatory<br />

or the repair genes become mutated, cells become<br />

increasingly uncoordinated until an invasive cancer<br />

develops (see Figure 2). This explains why cancers tend to<br />

occur at an older age. There are now DNA based<br />

genetic tests that can identify these stepwise changes in<br />

specific genes (such as p53 and K-ras) as cells Figure 2 –<br />

Gene Mutations that Progress in the Development of a<br />

<strong>Cancer</strong><br />

change from normal through a hyperplastic (overgrowth)<br />

cells and then into an invasive cancer.<br />

<strong>Cancer</strong> Predisposition Genes and their Mutations<br />

Family members who have inherited a cancer gene<br />

mutation are already a step further along the pathway<br />

that leads to cancer. They have a higher risk of<br />

developing specific cancers at a younger than expected<br />

age. Tumour suppressor genes control cell division, acting<br />

like the brakes on cell growth. Mutations in tumour<br />

suppressor genes can occur spontaneously during your<br />

lifetime (acquired), or they may have been passed on<br />

(inherited), from one parent. Tumour suppressor genes<br />

come in pairs, one inherited from each parent in the egg<br />

and sperm cell that made you. If there is a change or a<br />

mutation in one copy of the tumour suppressor gene, this<br />

alone does not cause a problem as there is a second<br />

normal copy that acts like a back-up copy. The risk of<br />

cancer only occurs where there is a second mutation<br />

that inactivates the second of the pair of tumour<br />

suppressor genes. This is known as Knudson’s two-hit<br />

cancer hypothesis. A cancer will develop when the<br />

second copy has been affected. There is a higher risk<br />

of this occurring and at a younger age, if you have<br />

inherited the first mutation in one of the pair of tumour<br />

suppressor genes. It is really just a matter of time before<br />

a spontaneous mutation (second-hit) occurs in the<br />

second copy of that gene pair. When both copies<br />

of the pair of genes have mutated or become<br />

inactivated, that tumour suppressor gene or DNA repair<br />

gene can no longer function and a cascading process<br />

of abnormal genetic changes occurs, (see Figure 3).<br />

Your Family History<br />

Some families may have more than the expected<br />

number of relatives with cancer. There may have been<br />

a clustering of the same types of cancer occurring<br />

at a younger than usual age, or one person may have<br />

unfortunately developed several primary cancers.<br />

These are pointers that there could be an increased<br />

genetic risk in that family. About 5-10% of breast,<br />

ovarian, bowel and less so for prostate, uterus (womb),<br />

pancreas, bladder and kidney cancer may have an<br />

inherited tendency.<br />

A number of inherited genes including BRCA1, BRCA2,<br />

the DNA Mismatch Repair genes (MLH1, MSH2, MSH6,<br />

PMS2), and APC, p53, p16, PTEN are already known to<br />

predispose families to a higher cancer risk. There is ongoing<br />

research into finding familial prostate and<br />

pancreatic cancer genes. Some genes will be<br />

commoner than others, with variable effects on the risks<br />

of developing cancer. Lung, cervical and skin cancers<br />

have other risk factors (such as smoking, UV light and<br />

lifestyle) that are not inherited.<br />

Why Are There <strong>Cancer</strong> Genes in the Jewish Community?<br />

About 1 person in 50 (2%) in the Jewish community carries<br />

one of these cancer predisposition genes. These are<br />

particularly for breast and ovarian cancer (and less so for<br />

prostate and pancreatic cancer) linked to the gene<br />

mutations: BRCA1 5382insG; BRCA1 185delAG; BRCA2<br />

6174delT and the bowel cancer predisposition gene APC<br />

I1307K. There are several ideas of why these mutations<br />

may be more common in the Jewish community. This<br />

may be due to a selective advantage that in the past<br />

allowed someone carrying this gene mutation to be<br />

Figure 3 – Knudson’s Two-Hit Hypothesis for Mutations in<br />

Tumour Suppressor Genes <strong>Cancer</strong> Causing <strong>Cancer</strong><br />

28 20 years of cancer support in the community<br />

20 years of cancer support in the community 29


somehow fitter and survive adverse environments. Or it<br />

may the founder effect that groups in the population are<br />

descended from a common ancestor who carried that<br />

gene mutation gene. Their descendents will then be<br />

more likely to inherit and pass on that gene and a mutation<br />

if this has been present. This is the case for other genes in<br />

the Jewish community, for example Tay-Sachs and<br />

Gaucher’s disease. Gene mutations genes may become<br />

more common in a population by a random process<br />

known as genetic drift. This is simply the chance that over<br />

generations some genes become more frequent whilst<br />

other genes are lost from that population. The strong<br />

religious tradition of Jews to marry in and remain isolated<br />

from their neighbours will tend to preserve these genetic<br />

traits. This has favoured a number of gene mutations to<br />

appear more frequent, particularly for Ashkenazi Jews from<br />

the shtetl communities of eastern Europe. This is why it is<br />

important to have bone marrow donors from within the<br />

Jewish community that share a common genetic<br />

background and increase the chances of finding a<br />

compatible match , .<br />

<strong>Cancer</strong> in the Family - What Should I Do?<br />

All of us may know of someone in our family with cancer.<br />

But if you have more than the expected number of<br />

cancers, particularly breast, ovarian or bowel cancer you<br />

may want to look into this further. Ask your GP or contact<br />

CHAI , but the following may be pointers to an increased<br />

risk in your family history:<br />

• breast cancer at 40 or younger in a mother, sister or<br />

daughter<br />

• breast cancer at 50 or younger in two close relatives<br />

including mother, aunt, grandmother, sister, daughter<br />

or cousin<br />

• breast cancer at any age in three or more close<br />

relatives<br />

• ovarian cancer at any age<br />

• bowel cancer under the age of 45<br />

• bowel cancer at any age in two close relatives<br />

You cannot change your family!, but you can change your<br />

lifestyle and diet to reduce your risk. Stop smoking, avoid<br />

too much saturated fat, increase fibre in your diet, exercise<br />

and lose weight. If there is a moderate family history<br />

additional screening (mammography breast checks and<br />

colonoscopy to check the bowel for polyps), may be<br />

suggested. Inherited cancers include breast, ovarian,<br />

bowel and less so prostate, pancreas, uterus (womb) and<br />

renal (kidney) cancers.<br />

If you are concerned that your family may be at higher risk<br />

of cancer, your GP can refer you to one of a national<br />

network of cancer genetics clinics . A detailed family<br />

history will be taken and the types of cancers in your family<br />

confirmed from hospital records. You will be invited to<br />

discuss your family history and given information about<br />

your risk and the options open to you. A family member<br />

who has had a ‘genetic cancer’ maybe asked if they are<br />

prepared to give a blood sample to test their DNA for<br />

alterations in one of the cancer genes. There are many<br />

considerations to be made before considering genetic<br />

testing, particularly the implications for you and your family<br />

and for insurance. This will be discussed in a genetic<br />

counselling session before the test is taken. Full genetic<br />

analysis can take two to three months or longer if extra<br />

genes are tested.<br />

Testing For a <strong>Cancer</strong> Predisposition Gene<br />

Knowing that you carry a cancer predisposition gene<br />

makes the development of some forms of cancer more<br />

likely, but not inevitable. A woman who carries a BRCA1 or<br />

BRCA2 mutation may have up to a 70% risk of developing<br />

breast cancer and a 40% risk of ovarian cancer in their<br />

lifetime. At first this can be difficult to come to terms with.<br />

You may feel worried about your health, concerned for<br />

your family, or even feel responsible even though it’s no<br />

one’s fault. This is quite understandable. Genetic<br />

counselling and time spent discussing your options with<br />

experts together with the support of family and friends’<br />

helps people to come to terms with this and make<br />

decisions that are best for them . There are no right or<br />

wrong things to do. Everyone is different in how they react.<br />

You may be worried about your risk of cancer if a relative<br />

carries a cancer predisposition gene or just knowing that<br />

there is an increased risk in the Jewish community. If you<br />

have not had a cancer yourself, then a detailed discussion<br />

may be needed to discuss ‘predictive testing’. This is a<br />

blood test to see if you carry an inherited gene, putting<br />

you at increased risk of developing cancer. After careful<br />

discussion, weighing up the pros and cons you may be<br />

offered the genetic test. If your test shows that you have<br />

inherited the cancer predisposition gene mutation,<br />

additional screening will be suggested. Women carrying<br />

one of the BRCA1 or BRCA2 gene mutations may ask to<br />

have their ovaries removed if they have completed their<br />

family or may consider having a prophylactic mastectomy.<br />

Everyone is different and everyone needs an individual<br />

discussion with a genetic counsellor. Your test result can<br />

affect how you feel about your health in the future and it<br />

can affect health and life insurance.<br />

The Future<br />

It is a lot of information and a lot to think about, but there is<br />

also optimism that increasing understanding of the genetic<br />

basis of cancer will allow better advice about cancer<br />

prevention, the development of more effective drugs and BRCA2 gene mutations is being offered to selected families<br />

treatments . There are families who carry these genes, but before a cancer has shown in the family. This offers many<br />

who have never developed a cancer. Their lifestyle and opportunities, but also raises questions; ‘Do you want to<br />

studies on their other genes (known as modifier genes) may know?, What will you do if you find you are carrying a<br />

tell us how we can better advise people at risk in the cancer gene mutation? Will you tell your family?’ These<br />

population from ever developing cancer. We already have questions require a lot of discussion and careful thought.<br />

new drug treatments such as Herceptin and PARP<br />

Genetic screening across the Jewish community will<br />

inhibitors that target the genetic changes in cancer cells identify people who carry a cancer predisposition gene<br />

with increasing effectiveness and less toxicity.<br />

mutation, but who may never actually go on to develop<br />

a cancer. Chai, genetic counsellors and cancer experts<br />

Research programmes are under way to identify who are there to provide information, discuss your options and<br />

might be carrying such genes and what their levels of offer support.<br />

cancer risk are. Testing for the specific Jewish BRCA1 and<br />

Dr Ian Ellis MB BS FRCP BSc<br />

Born in Hendon (not far from Chai, but too many years<br />

before to mention!), educated in Hendon and then<br />

studied Medicine at the Middlesex Hospital, London.<br />

He developed his future career interest in Genetics<br />

whilst taking a First Class Honours BSc degree in<br />

Biochemistry & Genetics at University College London.<br />

Medical training London included the Hammersmith<br />

Hospital (renal medicine), Hospital for Nervous<br />

Diseases, Queen Square (neurology) and Northwick<br />

Park Hospital (paediatrics). Research and the Senior<br />

Registrar in Clinical Genetics at Guy’s Hospital, London. He established the UK National<br />

Tay-Sachs Screening Programme there and was awarded the Pentland Young<br />

Professional Award by Jewish <strong>Care</strong> in 1990 and the Dora Schuster Memorial Prize by the<br />

London Jewish Medical Society in recognition of this.<br />

Appointed Senior Lecturer in Clinical Genetics at Alder Hey Children’s Hospital,<br />

Liverpool in 1994. Research into hereditary pancreatitis and familial pancreatic cancer,<br />

Jewish genetics and ethico-legal aspects of storing DNA and the sharing of genetic<br />

information. He was Clinical Director for Medical Genetics 2000-2005 and is now a Year<br />

Director in the Liverpool University Medical School as well as running a busy genetics<br />

clinic for diagnosis and genetic counselling. He has been a past president<br />

of the Liverpool Jewish Medical Society and treasurer of the <strong>Cancer</strong> Genetics Group.<br />

Advisor to the UK Gauchers Association and invited steering member for the recently<br />

established Jewish Genetic Diseases UK group.<br />

His hobbies are finding spare time and when he does, enjoying his family and the<br />

Lake District. He is married with two teenage children and lives in South Manchester.<br />

30 20 years of cancer support in the community<br />

20 years of cancer support in the community 31


Chai Promise<br />

Chai Promise, launched at a reception in Chai’s<br />

new Wohl Wing on Thursday 24th June 2010 is an<br />

initiative created by Natalie Chester, Emma Myers<br />

& Laura Avigdori.<br />

Jane Conley, Julia Clarfield, Emma Myers, Claire Leek<br />

Richard Frank, Lewis Chester, Sharon Coppel & Toby Coppel<br />

Sharon Coppel, Gina Latner, Hanna Goldsmith<br />

Inspired by the work of Chai <strong>Cancer</strong> <strong>Care</strong>, they are<br />

aiming to raise £100,000 for Chai’s Children & Family<br />

Service by asking their friends to host events in aid<br />

of Chai. To attend the events, guests pay a donation<br />

to the Chai Promise project and promise to host their<br />

own event.<br />

Chai Promise events can be as simple or extravagant<br />

as the host chooses! From simple dinner parties<br />

to grand gala events, book clubs, BBQs, quiz nights<br />

or celebrations.<br />

The Chai Promise launch evening, attended by over<br />

40 people, has resulted in 20 subsequent events<br />

being planned in the community in the coming<br />

months. We anticipate that Chai Promise will<br />

become a community wide enterprise that will raise<br />

vital funds and awareness for Chai <strong>Cancer</strong> <strong>Care</strong> and<br />

specifically the work with Children & Families.<br />

To host a Chai Promise event please contact Nicola<br />

Nathan at nicolanathan@chaicancercare.org<br />

Katy Jay & Philip Goldsmith<br />

Sharona & Simone Leibovitch<br />

Vicki Silver, Amanda Kessler, Amanda Shelley<br />

Rakhee James, Francesca Frank & Mandy Chester<br />

Tamara Craig & Claudia Magid<br />

Francesca Frank, Yifat Joseph, Ilana Kustow,<br />

Lionel Kustow, Cathy Tarn, Yifat Joseph, Ilana Kustow<br />

Rakhee James & Mandy Chester<br />

Laura Avigdori, Natalie Chester & Emma Myers


Dina’s Story: Vicky Brown<br />

Lady Jakobovits z’l<br />

Dina Grunewald, Julie Cohn, Tami Grunewald & Ellie Grunwald<br />

Chai <strong>Cancer</strong> <strong>Care</strong> exists because Lady Jakobovits z’l<br />

had the inspiration to introduce our co-founders<br />

Frances Winegarten z’l to Susan Shipman 20 years ago.<br />

She instinctively knew that there would be a rapport<br />

between them and that they would be able share their<br />

experiences of living with cancer to help others in the<br />

community.<br />

As the “Shadchan” (matchmaker) she was personally<br />

involved - from the very early meetings, some of them<br />

in her Hamilton Terrace home together with her<br />

beloved husband Harav Lord Jakobovits z’l, to her very<br />

sudden and unexpected passing.<br />

difficult circumstances, felt the benefit of her positive<br />

outlook and belief. She had the gift of inspiring people<br />

to find their inner strength and realise their full potential.<br />

It is testament to her influence on our community that<br />

she is regarded by everyone who had the privilege of<br />

knowing her, with such deep affection and respect.<br />

All of us at Chai <strong>Cancer</strong> <strong>Care</strong> will strive to continue to<br />

make her proud of the organisation she was<br />

instrumental in founding.<br />

The recipes that are featured in Dina’s cookbook were<br />

originally collected to give to her best friend as a<br />

wedding present – as she wanted her to have<br />

something “that was meaningful and would last<br />

forever”. Dina asked her friends and family to share their<br />

much loved recipes. The response to her request was<br />

amazing and she managed to collect over 100<br />

delicious recipes!<br />

As the original cookbook was such a success, Dina and<br />

her friends decided to continue to gather new recipes<br />

to create another cookbook that she would produce<br />

and print. These would be sold to raise money for Chai,<br />

a “cause that is close to her heart” and dedicated to<br />

the memory of her dear mother.<br />

Having witnessed first hand the effect that cancer has<br />

on the patient as well as the family, Dina feels very<br />

strongly about the importance of having professional<br />

support available for the community through each<br />

stage of a cancer journey. Dina has experienced how<br />

Chai supports the community and wanted to be able to<br />

help this vital lifeline continue to offer its ever growing<br />

services to all those that<br />

need it.<br />

Dina approached Chai<br />

and met up with the team<br />

to discuss the idea of<br />

selling her cookbook.<br />

Dina’s determination and<br />

organisation shone<br />

through as she explained<br />

the concept of the<br />

cookbook, design ideas and how many she was<br />

planning to sell. Dina was even able to get the printing<br />

of the cookbooks sponsored by her close family and<br />

friends.<br />

Over the course of a year, Dina gradually explained to<br />

people her intentions for the cookbook and found that<br />

people were so moved by what she had embarked<br />

upon that they were incredibly supportive.<br />

After the cookbooks had been printed, Dina set to work<br />

on selling them. She found that once again, her<br />

amazing close circle of friends all came together and<br />

offered to either buy, or help her sell the books. With no<br />

real advertising of the cookbook, Dina was inundated<br />

with people asking to buy a copy. She puts the success<br />

of the cookbook sales down to “word of mouth” and<br />

her “unbelievable friends, without whom this would<br />

never have come to fruition.”<br />

Chai witnessed ‘dynamo’ Dina when she attended the<br />

Community Fun Run, turning up with boxes full of<br />

cookbooks. At the end of the day everyone was<br />

astounded that Dina and her sisters had sold the lot.<br />

Dina’s hard work has produced funds which will benefit<br />

many Chai clients and she is an inspiration to all who<br />

come into contact with her.<br />

To date Dina has sold 850 cookbooks and plans to<br />

continue to sell many more! Dina’s cookbooks are<br />

currently on sale at Chai. To find out more or to<br />

purchase a copy please call 0208 202 2211 and ask for<br />

Danielle Satter, or email info@chaicancercare.org.<br />

Lady J held the well deserved title of Honorary Patron<br />

of Chai, however, this does not fully reflect the very<br />

many roles she played within the organisation. A true<br />

friend and mentor, her years of communal experience<br />

and contacts were an invaluable source of support and<br />

guidance as Chai grew and developed.<br />

Her warmth and compassion knew no limits. All who<br />

came into contact with her, sometimes under very<br />

The Leora Kuhillow Courage Awards<br />

Chai <strong>Cancer</strong> <strong>Care</strong> is delighted to have been chosen as a charity partner<br />

for these inaugural awards in memory of Leora Kuhillow. The awards are<br />

generously supported by the Jewish Telegraph.<br />

The adult awards will be presented at a prestigious dinner<br />

in Manchester on Sunday 13th March 2011<br />

For more information please call Vicki Morris<br />

on 020 8202 2211or email at<br />

vickimorris@chaicancercare.org<br />

Lady Jakobovits z’l & Frances Winegarten z’l at the 2006 Chai Dinner<br />

34 20 years of cancer support in the community<br />

20 years of cancer support in the community 35


Lighten the load – One stress you can relieve!<br />

Vicky Brown<br />

Current fashion dictates their peculiar choices, many slightly insane stories<br />

that we must carry huge would come out the woodwork.<br />

handbags – and<br />

we all know that the<br />

If I may offer a logical reason that we women carry<br />

bigger the bag, the more such random objects in our bags, I would have to go<br />

we simply have to tote down the psychological route. Maybe we have all<br />

around with us! This is not had some terrible experience in the past that has left us<br />

science nor mathematics, with the thought “Oi vey, I’m never leaving the house<br />

but a female trait that again without …..!”.<br />

seems to be prevalent<br />

around the globe.<br />

So where is the line drawn, how do we know how much<br />

is too much to carry and when do we start lightening<br />

I find that although my the load?<br />

handbag is always huge,<br />

the habit I still have is that Research shows that some handbags fully loaded can<br />

I overfill it. This isn’t because Prada tells me to pack weigh up to 15lbs. My interpretation is that whilst looking<br />

everything in sight and then schlep it about the whole fabulous with my fashionably large bag I’m also having<br />

day, they just tell me to carry it and in doing so I will a good workout. If only eating too much nosh had the<br />

look elegant and fashionable. My problem seems to same effect!<br />

be that everything in my bag seems to fall into the<br />

essential categories of either the ‘must haves’ or the I found out, however that I couldn’t be more wrong<br />

‘might needs’.<br />

when I asked Chai’s Physiotherapist Stephen Parkus for<br />

a clinical view.<br />

The ‘must haves’ are the essence of my being that I<br />

carry, always. Even if I take out a smaller bag I will The Health & Safety Executive report that back pain<br />

always find room for my purse (also fashionably<br />

is more common when lifting heavy items;<br />

oversized!), blackberry, diary, keys, make up, perfume “Carrying loads awkwardly or one handed; repetitive<br />

and business cards. If all of these items do not squash tasks; bending or crouching; lifting when tired.”<br />

into a smaller bag, rather than lightening the load I will<br />

upgrade the bag and go for a larger one.<br />

Although there is no such thing as a completely<br />

‘safe’ lift, for an average woman, the maximum<br />

The ‘might needs’ are those little things that I might recommended weight to lift from the floor is 3kg.<br />

need when I’m out, for example, an umbrella and hair This assumes that the bag is lifted correctly.<br />

spray. Time after time I have found myself caught in the<br />

rain in need of an umbrella, and hair spray to fix the If it is really necessary to carry a large handbag,<br />

frizzy bird’s nest that my hair had moulded into. This has try to reduce the weight of the handbag itself to no<br />

led to me carrying the two everywhere in order to more than 1 to 2 lbs. Then try to minimise how much<br />

prevent such embarrassment ever again.<br />

stuff you’re putting inside, and ditch anything you<br />

don’t need. If you must carry your bag on the shoulder,<br />

Compared to some, I would say that an umbrella and alternate from one shoulder to another, every<br />

hair spray are quite common for a woman to carry, 15 minutes.<br />

however I am well aware that some people’s ‘might<br />

needs’ can include everything from a spare pair of Ideally the weight should be distributed evenly across<br />

heels to the kitchen sink. If most women looked through your body, which means the best option is something<br />

their handbags and listed their ‘might needs’ and like a rucksack, or pulling a case on wheels for<br />

searched for a reason they carry them in order to justify heavier items.<br />

Here are a few tips to keep your handbag from being<br />

a burden:<br />

• Weigh your handbag. You might be amazed by how<br />

much it weighs!<br />

• Think through the day ahead and pack accordingly.<br />

• Pack a smaller make-up bag with a few essentials.<br />

You’ll only have to touch up your make-up during<br />

the day so leave the foundation and brushes<br />

at home.<br />

Stephen Parkus B.Sc (Hons) MCSP SRP<br />

Chartered Physiotherapist<br />

When to lighten<br />

the load?<br />

If you look at<br />

someone from<br />

the side, their<br />

spine should<br />

be a gentle<br />

S-shaped curve.<br />

From behind,<br />

their spine should be a straight line.<br />

Anything that pushes or pulls the spine<br />

away from this ideal shape can cause<br />

strain in the spine, and the more often<br />

it happens, the more the strain builds<br />

up. This can lead to headaches, pain<br />

in the neck, upper or lower back.<br />

Carrying handbags that are too heavy<br />

is one such cause of strain!<br />

The trend for oversized bags means<br />

there is more space to fill. The bigger<br />

the bag, the more tempting it is to fill it.<br />

The Daily Mail in 2007 quoted a study<br />

which found that women today carry<br />

• De-clutter your purse of small change - clear it out<br />

– use it up or better still donate it to Chai<br />

Exercising regularly is also advisable. If you have a<br />

strong core from exercise like pilates, you’re much less<br />

likely to hurt yourself.<br />

So ladies... when choosing a handbag, for the sake of<br />

your spine, less is always better!<br />

twice as much in their handbags as their<br />

mothers used to. Mum might have had<br />

a coin purse, a powder compact, a<br />

couple of tissues and a house key.<br />

Increasingly, women are carrying more<br />

gadgets such as iPods and mobile<br />

phones, which has created a demand<br />

for larger handbags. A survey in the<br />

Independent in 2008 showed that the<br />

average weight of a woman’s handbag<br />

has increased by 38% over five years to<br />

2.4 kg (5lbs). In some cases the weight<br />

of a full handbag can be up to 7kg (15<br />

lbs). As well as packing more inside, the<br />

handbags themselves are often heavy.<br />

Carrying a bag on one shoulder leads<br />

to improper weight distribution<br />

across the neck, shoulder and back,<br />

causing strain in the joints, muscles and<br />

ligaments of the spine, which can lead<br />

to pain.<br />

As a result, more and more women are<br />

requiring treatment for neck, shoulder<br />

and back pain.<br />

36 20 years of cancer support in the community<br />

20 years of cancer support in the community 37


Tracy-Ann Oberman<br />

“ I am convinced that the size of a<br />

womans handbag is a corellation to<br />

where she is at in her life and<br />

whether she has procreated or not.<br />

The bag becomes a metaphor as it<br />

were . Before having my daughter I<br />

could walk around with a tiny little<br />

clutch smaller than my hand<br />

containing: one lipstick, one stick of<br />

chewing gum, a chub key and a small mobile phone. Since<br />

having my daughter my bag of choice is now ENORMOUS. This<br />

summer I have a large Gerard Darel leather fringed one, large<br />

enough to carry: an iphone, a battery pack for an iphone, a<br />

script, a large make up bag ... (mainly containing concealer for<br />

under eye baggage), a filo-fax, a list of things I have forgotten<br />

to do, a notebook, and three sets of keys plus a minnie mouse<br />

set of crayons and pens, babywipes, a spare pair of my<br />

daughters knickers, a barbie doll and most importantly her<br />

“mummy- cloth comforter” for when it all gets too much.<br />

Although I’m not sure who needs the comforter most at times.<br />

Her or me!”<br />

Maureen Lipman<br />

“Over the years I have minimised<br />

what I carry. My bag is a flat, over<br />

the body one and in it I have my<br />

phone, keys, chequebook, purse with<br />

cards, freedom pass, the occasional<br />

lipstick and a poo bag (for the dog<br />

of course). I may also have a card<br />

from my secretary detailing where<br />

I should be!”<br />

Jan Shure<br />

Olivia Phillips<br />

Freelance<br />

Fashion Writer &<br />

Blogger:<br />

“My bag is the<br />

most physical<br />

extension of me<br />

possible - it holds<br />

the telltale signs<br />

of who I really<br />

am inside a<br />

glossy case of<br />

who I want to be.<br />

My Chloe Milton<br />

might look<br />

sophisticated,<br />

but in reality is crammed with month-old<br />

receipts, fluff and a dog-eared and rather<br />

embarrassing copy of Twilight....”<br />

www.newfavouritething.com<br />

Natalie-Anne Hasseck<br />

Freelance Fashion Stylist and Writer, has<br />

written for W Magazine, Grazia and Women’s<br />

Wear Daily www.layersandswathes.com<br />

“The truth is that the design of handbags<br />

stemming from the runway are getting smaller<br />

and boxier. However in terms of sales, the<br />

larger handbags and aptly titled ‘holdalls’ will<br />

always outsell the small bags because<br />

women simply cannot leave the house<br />

without their ‘survival kit’”<br />

Advice and Advocacy at Chai<br />

When a client comes to Chai their main reason is to systems that often seem impenetrable within the NHS.<br />

seek help in dealing with cancer – whether it be a new<br />

diagnosis, coping with treatment, dealing with a<br />

prognosis or rehabilitation. Whatever the reason there<br />

are often other areas within clients’ lives that require<br />

support and advice. Chai finds that in order to allow<br />

patients, their families and friends to focus on living with<br />

the cancer, these often intrusive other issues require<br />

attention. Chai has been building expertise for years so<br />

that we can either help with other areas of concern to<br />

clients, or source somebody who can.<br />

Chai has in-house expertise on statutory benefits from<br />

Anne Shine. Anne will advise on what benefits can be<br />

applied for – some of which are not means tested –<br />

and sits with clients if<br />

required, to fill out the<br />

lengthy and complex<br />

application forms. Anne is<br />

also very knowledgeable<br />

about nursing and<br />

palliative care homes and<br />

Expertise<br />

From its beginning Chai has been a source of<br />

information when clients need to find a medical<br />

Ann Shine<br />

can provide information<br />

and support to clients<br />

negotiating this provision.<br />

specialist, find out about a clinical trial or want advice<br />

on coping with treatment. Over the years we have also<br />

built up comprehensive lists of where to find wigs,<br />

providers of semi-permanent make-up to disguise loss<br />

of eyebrows and eyelashes, domiciliary opticians and<br />

hearing care, suppliers of underwear for after<br />

We are fortunate that we have professionals within the<br />

community that, through Chai, are able to provide pro<br />

bono financial advice on running household accounts,<br />

basic probate advice and confidence coaching for<br />

returning to work.<br />

mastectomies, insurers that will cover cancer patients<br />

for travel, local care agencies, nursing homes, dietary<br />

and nutritional advice and so the list goes on.<br />

Advocacy<br />

Elaine, Anne and our Client Services Managers provide<br />

advocacy for patients and families when dealing with<br />

Our Chief Executive Elaine Kerr advises clients - both<br />

patients and carers - on what services they are entitled<br />

to from the NHS and social services, and how to get the<br />

best from private medical care. Elaine ensures that<br />

clients understand and cope with the processes and<br />

agencies. For instance, Chai can support clients in<br />

Multidisciplinary Team Meetings at hospitals and<br />

hospices, when care packages are being decided,<br />

or negotiate with care homes and social services on<br />

clients’ behalf.<br />

JC Fashion Editor and co-founder of www.60andsensational.co.uk “I have been a handbag<br />

hoarder (in both senses, having squirreled away far more handbags than I can possibly use, and<br />

stowing far more in the one I am currently using than is healthy for my shoulders or arms) for most<br />

of my adult life.<br />

Currently, apart from the obvious contents (overstuffed Mulberry wallet, Blackberry, keys, lip salve,<br />

Tom Ford lipstick, Oyster card, emery board, sunnies, glasses, pens, hairbrush – that is all obvious,<br />

isn’t it?), there is a copy of today’s Times, a copy of this week’s JC, a teeny telescopic umbrella, dozens of business<br />

cards (for the JC and for my website 60&Sensational – www.60andsensational.co.uk), a shiny little hairslide belonging<br />

to my granddaughter Sadie, a small toy car belonging to my grandson Henry, notes from a talk I gave three weeks<br />

ago, invitations to press events that have taken place in the last few weeks, a map of Vancouver and a bottle of<br />

Chanel Particuliere. I do clear my bag out every few weeks, you have caught me at a moment when I haven’t had<br />

time for a clean-up.<br />

Which is why – at various times in my life – the people who have been the recipients of a large part of my disposable<br />

income have been physiotherapists, osteopaths and masseurs. But try to part me from the contents<br />

of my handbag and I will feel bereft: my bag is my on-the-road office, my security blanket and – naturally –<br />

a status symbol of sorts. So, my future is diary dates with masseurs and physios and, of course, the Smythson sale… “<br />

Lyn Tobin<br />

Lyn Tobin worked as<br />

an adviser at the<br />

Citizens Advice<br />

Bureau for five<br />

years, followed by<br />

15 years’<br />

experience at Employee Assistance<br />

Programmes using her counselling and<br />

advisory skills to assist clients with<br />

benefits, education, consumer,<br />

employment, divorce and<br />

discrimination.. She has a BA in social<br />

psychology and social policy.<br />

Chai is able to make referrals to a range of specialist<br />

providers for our clients, such as social services,<br />

palliative care teams, genetics services, voluntary<br />

and care agencies.<br />

New comprehensive advisory service<br />

We recently commenced a new advisory service run<br />

by Lyn Tobin – who we are extremely fortunate to have.<br />

Lyn advises clients on a wide range of issues such as<br />

debt, family issues, housing, benefits, employment,<br />

discrimination, children, consumer issues, travel and<br />

sourcing carers. Lyn has access to a multitude of<br />

external resources which are of great benefit to<br />

Chai’s clients.<br />

All the above services can be accessed by calling<br />

Chai on 0808 808 4567, or 020 8202 2211.<br />

38 20 years of cancer support in the community<br />

20 years of cancer support in the community 39


All proceeds to Chai <strong>Cancer</strong> <strong>Care</strong><br />

www.chaicancercare.org<br />

Registered Charity No. 1078956<br />

A Year in the Life of Chai...<br />

September 2009<br />

7th Annual Outlook<br />

10k Countryside Walk<br />

Over 60 people<br />

walked through<br />

Sarratt, Flaunden and<br />

Chenies and other<br />

picturesque villages<br />

raising a total of<br />

£10,000.<br />

October 2009<br />

The Deacon’s Charity<br />

Poker Night<br />

Natalie Shipman<br />

Memorial Lecture<br />

Chai’s first lecture<br />

held in Manchester<br />

was the annual<br />

Natalie Shipman<br />

Memorial Lecture<br />

February 2010<br />

From the Shtetl to La Scala<br />

Hendon Synagogue<br />

played host to a concert<br />

featuring Tsudik Grunwald<br />

for his first ever UK<br />

appearance. He was<br />

accompanied by Orad<br />

Katz, an 11 year old child<br />

prodigy. 400 people<br />

attended the concert<br />

organised my Melvyn<br />

Carter and Michael<br />

Kallenberg. £2,500<br />

was raised.<br />

May 2010<br />

From the Shtetl<br />

to La Scala<br />

An evening of popular Jewish music,<br />

and operatic arias<br />

Menachem Bristowski,<br />

world renowned pianist<br />

Performed by:<br />

Tsudik Greenwald, Israel’s rising star,<br />

making his UK debut<br />

Programme of music devised by Israeli producer, Levie Kanes (www.cantorscenter.com)<br />

Sunday 21st February 2010 at 7.30 pm<br />

Hendon Synagogue,<br />

Raleigh Close, London NW4 2TA<br />

Accompanied by child prodigy<br />

Orad Katz, 11<br />

March 2010<br />

Lady Captain’s Charity<br />

Day at Dryham Park<br />

Golf Club<br />

Ruth Goldsobel, Lady<br />

Captain at Dyrham Park<br />

hosted a ladies lunch<br />

in aid of Chai <strong>Cancer</strong><br />

<strong>Care</strong>. Journalist and ex<br />

editor of Cosmopolitan Linda Kelsey spoke to a packed out<br />

room. The lunch raised over £6,500.<br />

Night on Broadway<br />

Watersmeet theatre, Rickmansworth<br />

April 2010<br />

Golf Fore Chai 2009<br />

The Golf Fore Chai<br />

Committee held their first<br />

ever golf tournament at<br />

Hartsbourne Country Club.<br />

The day included a buffet<br />

breakfast, a round of golf<br />

with a Ferrari 360 as the<br />

Hole In One prize. Followed<br />

by a three-course lunch<br />

with a raffle and auction.<br />

The day raised over £32,000<br />

November 2009<br />

The 2nd Chai Table Tennis<br />

Competition<br />

Lindsay & Simon Davidson<br />

organised yet another<br />

successful Table Tennis<br />

Tournament held at<br />

Hampstead Garden Suburb<br />

Synagogue the event.<br />

Attended by over 100<br />

people, with 51 participating<br />

in the tournament it was an<br />

exciting and fun evening all<br />

round. The evening raised<br />

over £13,000.<br />

Paul Deacon organised a<br />

Charity Poker Night at the<br />

River Card Cub 50 players<br />

battled it out for the top 3<br />

cash prizes. The evening<br />

raised £1,500.<br />

December 2009<br />

Volunteer and<br />

staff Chanukah<br />

lunch at Chai<br />

January 2010<br />

Chai Bridge Lunch<br />

Due to its popularity<br />

Chai held two bridge<br />

lunches in one year.<br />

Over 70 people<br />

attended the one in<br />

December raising<br />

over £3,500<br />

Glasgow launch at the Walton<br />

CommunityCentre<br />

Chai launched its new service<br />

in Glasgow<br />

June 2010<br />

New Wohl Wing opening at Chai (See page 22)<br />

Chai Promise at Chai (See page 32)<br />

Community Fun Run<br />

Chai had 68 runners this<br />

year raising £10,000<br />

Staff and Volunteer<br />

party for the opening<br />

of the Wohl Wing<br />

Three peak challenge by<br />

“3 of the best”<br />

Climbing the 3 peaks in<br />

24 hours -Ben Nevis;<br />

Scotland, Scafell Pike;<br />

Lake District & Snowdon;<br />

Wales. Rasied £8350 for<br />

Chai <strong>Cancer</strong> <strong>Care</strong><br />

Virgin London Marathon<br />

Three of Chai’s five<br />

marathon runners, Benjamin<br />

Moss, David Rose & Glenda<br />

Aussenberg. Jeremy Carson<br />

and Brian Gordon also ran,<br />

and in total the runners<br />

raised over £12,500.<br />

Club 18 Reception<br />

A reception was held<br />

at Chai to celebrate<br />

five years of Club 18’s<br />

successful golf<br />

tournaments.<br />

Outlook Committee Theatre Night<br />

The Outlook Committee hired the New End Theatre for a private<br />

viewing of ‘Hetty Feinstein’s Wedding Anniversary. The theatre was<br />

packed full with over 80 people and the night raised over £1,000.<br />

Chai Life’s Winter<br />

Soiree in Soho<br />

Chai <strong>Cancer</strong> <strong>Care</strong>’s<br />

young business<br />

committee held its<br />

second sell-out event<br />

at Graphic Bar in<br />

Soho. Over 200<br />

guests enjoyed Chai<br />

cocktails, a guest<br />

DJ and Carmelli’s<br />

doughnuts. The<br />

event raised over<br />

£6,000.<br />

February 2010<br />

Marathon runner’s reception<br />

All of Chai’s 2009 Marathon<br />

Runners were invited to Chai<br />

so we could thank them in<br />

person and they could see<br />

how their sponsorship money<br />

is being spent. Training tips<br />

were exchanged.<br />

Outlook Committee<br />

Bridge Lunch<br />

The lunch was held at<br />

Badgers Croft, Totteridge<br />

for the first time. Over 80<br />

people attended and the<br />

day raised over £2,000.<br />

Chai Life presents<br />

‘Sax In the City’<br />

Chai Life committee<br />

held a night of blues,<br />

jazz and soul at<br />

Albannach bar in<br />

Trafalgar Square<br />

raising £2,000.<br />

Club 18 Annual Golf<br />

Tournament<br />

The Club 18 Golf<br />

Committee held its<br />

5th Annual golf<br />

tournament for over<br />

90 people raising<br />

over £25,000.<br />

Chai Five - ‘Test your<br />

Chai Q’ Quiz night<br />

Our Chai Five committee ran<br />

a school themed supper quiz<br />

at Hertsmere Jewish Primary<br />

School, over 70 people<br />

attended raising over £1,000<br />

Tea at the Ritz<br />

at Chai<br />

The All Out For Chai<br />

Committee held an<br />

afternoon tea at Chai<br />

with a speaker talking<br />

about fashion from the<br />

1920s. The afternoon<br />

raised £2,000.


The Effects of <strong>Cancer</strong> on Relationship and Intimacy<br />

The Natalie Shipman Memorial Lectures<br />

Chai clients come to see us from diagnosis onwards<br />

and naturally their most important objective is to get<br />

the cancer into remission. However, once that has been<br />

achieved they may need help to learn how to carry on<br />

with their lives.<br />

<strong>Cancer</strong> and the treatment for cancer can have a<br />

devastating effect on peoples’ lives, both physically<br />

and mentally. The surgery and the chemotherapy drugs<br />

can have an adverse impact too. A patient’s<br />

perception of their own body image may change and<br />

this in itself can alter their relationship with their partner,<br />

and cause distress to both of them. Talking about<br />

intimacy in such circumstances can sometimes be<br />

embarrassing, or difficult, and make either or both of<br />

the partners feel awkward.<br />

Health professionals may not think to ask their patient<br />

whether their cancer treatment is impacting upon their<br />

relationship with their partner, and may be unaware<br />

that it is affecting the patient’s state of mind. Whilst the<br />

physical symptoms of the cancer and its treatment can<br />

be dealt with by those health professionals, the<br />

emotional symptoms need to be separately understood<br />

and addressed.<br />

It can often be hard for a couple to find the right words<br />

to use when starting to talk about their physical<br />

relationship. People then put off dealing with their<br />

feelings, and talking about intimacy with their partner,<br />

as it can feel like their privacy is being invaded.<br />

Communication is essential for any relationship to work,<br />

and Chai can help a patient and their partner to think<br />

about how best to keep it going. It is therefore<br />

important to be able to talk about this matter<br />

confidentially, with an independent, professional<br />

person, in order to help the patient and their partner<br />

avoid letting the cancer destroy the intimacy in their<br />

relationship.<br />

“Whilst the physical<br />

symptoms of the cancer<br />

and its treatment can<br />

be dealt with by health<br />

professionals, the emotional<br />

symptoms need to be<br />

separately understood<br />

and addressed”<br />

Chai has professional counsellors, trained specifically<br />

in relationship and intimacy issues, who support<br />

patients and their partners through the difficult period<br />

in complete confidence. One of our counsellors, who<br />

has a degree and diploma in psychology, specialises<br />

in issues relating to intimacy. She lectures internationally<br />

to both experienced professionals and post-graduate<br />

students on the issues that particularly impact on<br />

intimacy within relationships.<br />

We are fortunate to have additional counsellors who<br />

work with relationship issues and also specialise in issues<br />

relating to intimacy.<br />

Our counsellors have been able to utilise those skills in<br />

helping numerous clients and their partners through the<br />

difficulties brought on by cancer and its treatment.<br />

The Natalie Shipman Memorial Lectures are held in<br />

memory of Natalie Shipman z”l who passed away just<br />

before her 8th birthday. Natalie was the daughter of<br />

Chai’s co-founder Susan Shipman.<br />

2009<br />

The 20th lecture was for the first time held in<br />

Manchester at Christie NHS Foundation Trust. Professor<br />

Albert Singer, Consultant Gynaecologist travelled from<br />

London especially to again chair this annual event. The<br />

auditorium was full to hear Professor Gordon Jayson talk<br />

about The Latest Developments in the Treatment of<br />

Ovarian <strong>Cancer</strong>.<br />

Professor Jayson is a Professor of Medical Oncology at<br />

Christie, and has a particular interest in biological<br />

research, leading clinical trials for the Paterson Institute<br />

and <strong>Cancer</strong> Research UK. He highlighted the risk factors<br />

for women and spoke about awareness of signs that<br />

may lead to early detection. Professor Jayson went on<br />

to speak about new treatments and ongoing research,<br />

Prof. Albert Singer, Susan Shipman & Prof. Gordon Jayson<br />

and explained some of the challenges involved in<br />

treating ovarian cancer. The lecture culminated with a<br />

variety of questions from the audience, which were<br />

posed anonymously.<br />

2010<br />

Living With and Beyond <strong>Cancer</strong><br />

Keynote Speaker – Dr Adrian Tookman<br />

Consultant in Palliative <strong>Care</strong> Medicine, Medical<br />

Director of Royal Free NHS Foundation Trust and<br />

Director of Marie Curie Hospice Hampstead<br />

Monday 11th October 2010<br />

Chai <strong>Cancer</strong> <strong>Care</strong> Centre<br />

144-146 Great North Way, London NW4 1EH<br />

Admission free by ticket only.<br />

Please call Vicky Brown to book your place<br />

on 020 8202 2211.<br />

42 20 years of cancer support in the community<br />

20 years of cancer support in the community 43


Appealing to the Appetite: Healthy Eating Recipes<br />

“The occasion of the opening of the inspirational Wohl Wing and furthermore spending time in the Whole Foods Store<br />

in Kensington the following day, gave me inspiration to put together a few ideas to appeal to the appetite.”<br />

Sula Leon<br />

Sula has lived in Manchester all her life. Having qualified as a Home Economist from the<br />

famous Elizabeth Gaskell College she followed a wide ranging culinary career bringing<br />

pleasure to all generations. Her cookery school in partnership with Evelyn Rose, ‘Master<br />

Classes in Food and Wine’ was a sell out for 20 years out of which emanated 2 best selling<br />

books – Master Classes for Creative Cooks and Weekend Cook.<br />

Sula’s artistic skills were best exemplified when she prepared the food sets for TV<br />

blockbusters ‘Brideshead Revisited’ and ‘Jewel in the Crown’ alongside many other TV series.<br />

Artichoke/Hearts of Palm and Almond Soup<br />

The almond gives the flavour and works as a natural thickener<br />

to this delicious soup and adds protein too.<br />

Serve either hot or chilled.<br />

Serves 8<br />

Ingredients:<br />

2 cans of artichoke hearts or 2 cans of hearts of palm<br />

2ozs (50g) butter or 2tbsp oil<br />

3 shallots – sliced<br />

15floz (425 ml) vegetable stock<br />

1 pint (600 ml) milk<br />

2oz (50g) ground almonds<br />

salt and black pepper<br />

toasted flaked almonds and dill when serving.<br />

1. Drain artichokes/hearts of palm, reserve two and slice others. Put in a small pan with half the butter or oil. Cover<br />

and cook gently for 10 minutes.<br />

2. In a medium soup pan cook the shallots gently in the remaining butter or until golden. Then add stock and milk.<br />

Bring to the boil and simmer for 4 minutes before adding the ground almonds and cooked artichokes/hearts<br />

of palm.<br />

3. Puree in a blender until smooth. Return to the pan and leave for several hours.<br />

4. When ready to serve, add the reserved artichokes/hearts of palm, cut into thin slices and add to the soup.<br />

Serve hot or well chilled, garnished with the toasted flakes almonds and scissored dill.<br />

Ever willing to give her time to the voluntary sector Sula has raised considerable sums of<br />

money for charity by giving her ever-popular demonstrations. She has been involved in the<br />

setting up of the ‘Cocktail Crew’ at the Christie Hospital, working with the dietician<br />

preparing replacement food and drink for patients with swallowing and eating difficulties.<br />

Sula is a Magistrate, has 4 children and many grandchildren and is married to Anthony, a chartered accountant and<br />

Deputy Lieutenant.<br />

Two Smoothies designed for when you are not eating well or are trying to increase<br />

or maintain your weight<br />

1. Tropical Tingle<br />

1 carton chilled orange flavoured Ensure<br />

2 floz (50ml) lemonade<br />

top up with pineapple juice to taste<br />

Whisk ingredients together, pour into 2 glasses and serve.<br />

2. Chocolate Dream<br />

1 carton chocolate flavoured Ensure<br />

1 block vanilla ice cream<br />

Liquidise all ingredients together then pour into a glass and float extra cubes of ice<br />

cream on top.<br />

NB: keep cartons in the fridge and when prepared drink within 24 hours.<br />

Puy lentils and Celeriac with Rocket, Pine nuts and Mint<br />

A hearty combination of flavours, served on its own or as part of a buffet.<br />

1 packet puy lentils (ready to eat)<br />

1 celeriac<br />

3tbsp olive oil<br />

2 tbsp hazelnut oil<br />

1 ½ tbsp of each cider and balsamic vinegar<br />

1 small bunch mint<br />

1 bunch rocket<br />

50g (2oz) pine nuts<br />

seasoning<br />

1. Empty contents of packet of lentils into a pan and heat gently then mix<br />

hot lentils with the oils, vinegars and seasonings.<br />

2. Peel and cut the celeriac into thin chips and cook in boiling water for 6 – 8 minutes, drain.<br />

3. In a bowl mix the celeriac, lentils, half of the chopped mint and half of the pine nuts.<br />

In a large serving dish throw over the washed rocket and pile on the celeriac mix.<br />

4. Garnish with the rest of the mint and pine nuts.<br />

Spinach and Herb Frittata<br />

This is basically a quiche without the pie-crust. An ideal accompaniment would<br />

be a dollop of crème fraiche mixed with finely sliced cucumber and mint.<br />

Ingredients:<br />

1lb (500g) fresh spinach<br />

2 tbsp oil<br />

4 eggs<br />

a bunch of spring onions<br />

3 tbsp chopped parsley<br />

2 tbsp chopped mint<br />

salt<br />

black pepper<br />

nutmeg.<br />

1. Microwave washed spinach for 3 minutes. Remove and coarsely chop.<br />

2. In a bowl lightly beat the eggs, spinach, finely sliced spring onions, herbs and seasonings.<br />

3. Heat oil in a large fry pan, pour in spinach mixture and cook on a low heat for 5 minutes until bottom is set.<br />

4. Transfer the pan to under a hot grill and cook until puffed and golden.<br />

5. Turn out onto a serving plate and serve in slices – hot or cold.<br />

44 20 years of cancer support in the community<br />

20 years of cancer support in the community 45


We count ourselves as fortunate to have a number of fabulous<br />

Year in Fundraising – 2010<br />

committees who regularly coordinate fundraising events in aid of<br />

Chai. We look forward to working with you again in the coming year.<br />

However, if you are not the committee type – but would like to do<br />

something for Chai – please talk to us about Chai Promise (see page<br />

We want to take this opportunity to thank all of you<br />

who have chosen to support Chai <strong>Cancer</strong> <strong>Care</strong>’s<br />

fundraising campaign in 2010.<br />

As Chai receives no statutory funding we are entirely<br />

reliant on, and particularly grateful to, the continued<br />

generosity of the UK Jewish community. You ensure that<br />

Chai can continue to meet the growing demand for<br />

our expertise and specialised care, and develop<br />

innovative new cancer support services throughout<br />

the UK.<br />

We truly appreciate our loyal Benefactors & Patrons<br />

who play such a significant part in funding Chai’s many<br />

great accomplishments over the years.<br />

In an effort to make recognition for the community’s<br />

generosity more accessible, 2010 has seen the launch<br />

of our Friends campaign, enabling us to publically<br />

acknowledge donations of £2,500. Any donation can<br />

be spread over the course of a year as a standing<br />

order, making it more financially manageable to<br />

become our Friend should you wish!<br />

Legacy income is so vital to any charity. It provides<br />

crucial funding enabling forward planning and the<br />

innovation and development of new services. In 2010<br />

Chai has officially launched a Legacy Campaign<br />

encouraging our existing supporters to consider<br />

remembering Chai in their Will. What a wonderful way<br />

of helping to ensure that future generations of cancer<br />

patients and their families can continue access the<br />

very best advice and specialist support.<br />

Our heartfelt thanks goes out to the many gracious<br />

and generous people who this year have foregone<br />

their own gifts to nominate Chai as their recipient for<br />

Commemorative Giving. By marking special occasions<br />

in their lives or the lives of their loved ones this way they<br />

are able to have a lasting impact on the lives of those<br />

affected by a cancer diagnosis.<br />

If you would like further information about<br />

Commemorative Giving or making a donation please<br />

contact Sariet Pretz on 020 8457 2071 or sariet@<br />

chaicancercare.org<br />

The brave individuals who have undertaken heroic<br />

Sponsored Activities in efforts to raise money for Chai<br />

are a source of great inspiration to us all. From<br />

Marathon running (or walking), climbing 3 mountains in<br />

24 hours, to skydiving and dance-athons – we are truly<br />

grateful for all of your endeavours.<br />

32). Through Chai Promise, you will be raising vital funds for Chai’s<br />

Children & Family Support Service whilst participating in a community<br />

initiative.<br />

Check out Chai’s new website. By November you can post your own<br />

pictures of Chai events and activities and also can set up your own<br />

fundraising page. This will work much like Just Giving but Chai will not<br />

have to incur any 3rd party charges – meaning all your hard earned<br />

sponsorship will directly fund Chai’s services. Donating online has<br />

never been easier.<br />

Please contact either of us for all your fundraising enquiries<br />

on 020 8202 2211.<br />

Thank you for your ongoing support,<br />

Nicola and Danielle<br />

Name:<br />

Address:<br />

Tel:<br />

Email:<br />

Become a friend of Chai<br />

Learn more about leaving a Legacy<br />

Payment details<br />

Postcode:<br />

Nicola Nathan<br />

Danielle Satter<br />

I/We will pay by Standing Order £<br />

per month (Chai will contact you with the relevant information)<br />

ogether<br />

Chai <strong>Cancer</strong> <strong>Care</strong>, 144 -146 Great North Way, London NW4 1EH<br />

Telephone: 020 8202 2211<br />

Fax: 020 8202 2111<br />

Email: together@chaicancercare.org<br />

Web: www.chaicancercare.org<br />

Freephone helpline: 0808 808 4567<br />

Designed and produced by Creative & Commercial<br />

Edited by Vicky Brown<br />

Printed by Exco<br />

For editorial enquiries email together@chaicancercare.org<br />

No article or photo published in ogether can be reproduced in part or in full,<br />

electronically or by any other means, without prior permission of Chai <strong>Cancer</strong> <strong>Care</strong>.<br />

© Chai <strong>Cancer</strong> <strong>Care</strong> 2010<br />

Registered Charity No.1078956<br />

I/we enclose a cheque/charity voucher made payable to ‘Chai <strong>Cancer</strong> <strong>Care</strong>’<br />

Payment by Credit/Debit Card:<br />

Amex CAF Card Visa MasterCard Maestro<br />

Card number:<br />

Expiry date:<br />

Issue number: Security code: (last 3 digits on reverse of card, 4 digits for Amex)<br />

Please send me:<br />

A receipt by post/email Details on leaving a legacy Details about sponsoring one of our many services<br />

Gift Aid declaration<br />

Please treat this (future donations and all donations made in the six years prior to the date of declaration) as<br />

Gift Aid Donations. (You must pay an amount of income tax and/or Capital Gains Tax for this tax year at least equal to the tax that we will claim from HMRC.)<br />

Please notify Chai if you change your name or home address.<br />

Chai <strong>Cancer</strong> <strong>Care</strong> will not pass on any of your details to a third party (in accordance with the Data Protection Act 1998).<br />

Signature:<br />

Date:<br />

46 20 years of cancer support in the community<br />

20 years of cancer support in the community 47

Hooray! Your file is uploaded and ready to be published.

Saved successfully!

Ooh no, something went wrong!