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Living with and beyond cancer: The improvement story so far - NHS ...

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42 | <strong>Living</strong> <strong>with</strong> <strong>and</strong> <strong>beyond</strong> <strong>cancer</strong>: <strong>The</strong> <strong>improvement</strong> <strong>story</strong> <strong>so</strong> <strong>far</strong><br />

In addition to this, a training<br />

programme on SPARC HNA was<br />

provided for relevant staff. This<br />

included a two hour session for all staff<br />

undertaking the assessments for the<br />

project work, delivered by clinicians<br />

from North Trent Cancer network as<br />

part of local roll out of HNA across the<br />

network. Sessions al<strong>so</strong> included project<br />

staff <strong>and</strong> user representatives.<br />

What difference has the testing<br />

work made or identified<br />

• Increased numbers of users engaged<br />

<strong>and</strong> involved in clinical pathway<br />

development<br />

• Provided SPARC HNA training for<br />

relevant staff as part of local roll out<br />

of HNA across the network<br />

• Patient information <strong>and</strong> support<br />

needs in survivorship have been<br />

identified <strong>and</strong> prioritised <strong>and</strong> a future<br />

plan for testing developed e.g. breast<br />

<strong>cancer</strong> open day<br />

• Identified <strong>so</strong>me common differences<br />

in individual patient need between<br />

different tumour sites e.g. type of<br />

issues highlighted by prostate<br />

patients tend to be more physical,<br />

however, breast <strong>and</strong> haematology are<br />

more related to emotional health<br />

• Identified logistical issues of<br />

undertaking HNA e.g. length of time<br />

to undertake varied from five to<br />

30 minutes in prostate to 30 to 105<br />

minutes in breast.<br />

Learning <strong>so</strong> <strong>far</strong><br />

• SPARC HNA training well received by<br />

staff trained on the whole. Users<br />

attending training were impressed by<br />

the thoroughness of the assessment.<br />

Feedback will inform future sessions<br />

• Results from SPARC HNAs completed<br />

showed that the assessments were<br />

very well received by patients <strong>and</strong><br />

al<strong>so</strong> very useful to guide<br />

development of models to test<br />

• Patient information <strong>and</strong> support<br />

needs scoping <strong>and</strong> prioritisation<br />

exercise valued by all group members<br />

especially user representatives<br />

• Logistical issues of undertaking HNA<br />

assessments needs to be borne in<br />

mind e.g. variation in time taken<br />

(ranged from five to 105 minutes)<br />

<strong>and</strong> availability of appropriate venue<br />

in which to undertake e.g. patient<br />

taken to <strong>cancer</strong> information <strong>and</strong><br />

support centre to find a confidential<br />

space<br />

• Availability of staff from busy rotas to<br />

undertake training <strong>and</strong> complete<br />

assessments extended the<br />

implementation time, despite<br />

offering several different<br />

opportunities for training<br />

• SPARC training for the project has<br />

helped to further the HNA<br />

implementation throughout the<br />

<strong>cancer</strong> network.<br />

Next steps<br />

• Patients who have been through the<br />

SPARC HNAs will be invited to<br />

participate in phase 2 of the Picker<br />

Experience Survey<br />

• To test an open day for breast <strong>cancer</strong><br />

patients in partnership <strong>with</strong> Breast<br />

Cancer Care <strong>and</strong> evaluate the<br />

content, location etc (patients <strong>and</strong><br />

carers invited)<br />

• HNA training for healthcare<br />

professionals identified as one of our<br />

testing models in order to ascertain if<br />

it is feasible to implement in the<br />

pathway, the barriers to<br />

implementation, what supports<br />

implementation <strong>and</strong> when to do a<br />

SPARC assessment<br />

• To test a haematology post transplant<br />

rehabilitation programme to ascertain<br />

whether quality of life, fatigue <strong>and</strong><br />

exercise tolerance can be improved<br />

<strong>with</strong> a weekly exercise group for<br />

myeloma patients post autologous<br />

stem cell transplant.<br />

Contacts<br />

Denise Friend<br />

Project Manager <strong>and</strong> Service<br />

Improvement Facilitator, North Trent<br />

Cancer Network .<br />

denise.friend@ntcn.nhs.uk<br />

Profes<strong>so</strong>r Sam Ahmedzai<br />

Test Site Lead <strong>and</strong> Profes<strong>so</strong>r of<br />

Palliative Medicine, Academic Unit<br />

of Supportive Care, School of<br />

Medicine <strong>and</strong> Biomedical Sciences,<br />

University of Sheffield<br />

pallmed@sheffield.ac.uk

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