Respite - Aged & Community Services SA & NT
Respite - Aged & Community Services SA & NT
Respite - Aged & Community Services SA & NT
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<strong>Respite</strong><br />
What do Carers really really want<br />
Presentation by Rosemary Warmington CEO, Carers <strong>SA</strong><br />
ACS Transforming <strong>Respite</strong> now to 2015 Summit<br />
6 May 2011
<strong>Respite</strong> Care - What do Carers Really Really Want<br />
Presentation will Cover<br />
• Findings statewide consultations 2009 - 2010<br />
• Carers views on <strong>Respite</strong> 2010 - 2011<br />
• Implication for Service Delivery
Carers <strong>SA</strong> Report of Have Your Say Forums 2009 - 2010<br />
• Consultations of the HACC target Group -<br />
HACC Funded<br />
• Mix of Carers<br />
– Older Carers of people with a disability<br />
– Carers of the frail and elderly<br />
• Views of Carers similar across disability and<br />
ageing
Carers <strong>SA</strong> Report of Have Your Say Forums 2009 - 2010<br />
Formal Carer Support (HACC Funded)<br />
• Refers to carer specific programs that provide<br />
counseling , emotional support, information and<br />
advocacy information.<br />
• Such things as retreats, day outs, social activities, peer<br />
group and information sessions and workshops.
Carers <strong>SA</strong> Report of Have Your Say Forums 2009 - 2010
Carers <strong>SA</strong> Report of Have Your Say Forums 2009 - 2010
Carers <strong>SA</strong> Report of Have Your Say Forums 2009 - 2010
<strong>Respite</strong> Care - What do Carers Really Really Want<br />
Combined Top Key Themes<br />
• <strong>Services</strong> for the care recipient<br />
• R espite<br />
• Carer Support<br />
• Information and referral<br />
• Transport
<strong>Respite</strong> Care - What do Carers Really Really Want<br />
Combined Top Key Themes<br />
• Consistent feedback – emphasis different –<br />
depending on whether country or<br />
metropolitan<br />
• Together all categories are of equal<br />
importance in delivering services
<strong>Respite</strong> Questionnaire (Have Your Say forums)<br />
What does <strong>Respite</strong> really really mean to Carers<br />
• Mixed group of Carers >65 and 65<br />
– Views two groups fundamentally the same with some minor<br />
variation
Carer <strong>Respite</strong> Questionnaire (Have Your Say forums)<br />
Importance %<br />
ten 46<br />
nine 7<br />
eight 20<br />
seven 7<br />
six 20<br />
five 0<br />
four 0<br />
three 0<br />
two 0<br />
one 0<br />
“<strong>Respite</strong> is the thing that will get Carers going on an ongoing basis”
Carer <strong>Respite</strong> Questionnaire (Have Your Say forums)<br />
Meaning %<br />
Self care for carer 49<br />
Meets needs of caree 20<br />
Break from daily routine 9<br />
In home help 6<br />
Availability 9<br />
Other 7<br />
“We need more respite: Carers wear out emotionally as well as physically.”
<strong>Respite</strong> Questionnaire (Have Your Say forums)<br />
Quality %<br />
ten 46<br />
nine 31<br />
eight 8<br />
seven 8<br />
six 0<br />
five 0<br />
four 8<br />
three 0<br />
two 0<br />
one 0<br />
“You’d pay double to get the right personal support worker.”<br />
“We end up being the trainers of the care support workers and never<br />
see them again.”
Carer <strong>Respite</strong> Questionnaire (Have Your Say forums)<br />
When %<br />
Never 7<br />
Rarely 29<br />
Sometimes 36<br />
Often 14<br />
All the time 7<br />
Don’t know 7<br />
Often<br />
14%<br />
“Family members can be found in a crisis; ie you ring around<br />
and ask, “can you help”
Carer <strong>Respite</strong> Questionnaire (Have Your Say forums)<br />
Plan %<br />
Never 20<br />
Rarely 27<br />
Sometimes 27<br />
Often 20<br />
All the time 6<br />
Often<br />
20%<br />
“If you have a long respite you need 3 weeks<br />
– 1 hardly recover, 2 recover, 3 enjoy.”
Carer <strong>Respite</strong> Questionnaire (Have Your Say forums)<br />
What %<br />
Free time 27<br />
Experiences for caree 16<br />
Going out 12<br />
Time with friends 16<br />
Carer Support activity 2<br />
Housework 10<br />
Time with family 4<br />
Going away 6<br />
healthy activity 2<br />
Other 5<br />
Time with<br />
friends<br />
16%<br />
“We can appreciate respite on a day out: if that funding stopped<br />
we’d all be in trouble.”
Carer <strong>Respite</strong> Questionnaire (Have Your Say forums)<br />
Biggest Things %<br />
Availability 28<br />
Costs 28<br />
Carer needs 19<br />
Care recipient needs 19<br />
Other 6<br />
“I need a trained conversationalist where the care worker is<br />
engaged with the care recipient to treat him as whole human being,<br />
not just as physical demands.”
Conclusion<br />
What do Carers really really want<br />
• Easy respite system<br />
• Greater flexibility<br />
• Additional respite : ongoing and emergency<br />
• Sustainable quality workforce<br />
• Need the range of services<br />
• Formal Carer Support programs/services are very<br />
important services to Carers and service providers
What do Carers really really want<br />
<strong>Respite</strong> care for people living with dementia : Its more<br />
than just a short break’ (Bruen W and Howe A, 2009)<br />
• People with dementia and their carers need a range of<br />
services to meet complex needs including, amongst<br />
other things, respite and formal support services for<br />
carers.
“It is for the Carer but the care<br />
recipient is getting the services.<br />
Who is it really for It is under the<br />
care recipient’s name allowing<br />
quality time with the care recipient.”
Carers <strong>SA</strong><br />
1800 815 549<br />
www.carers-sa.asn.au
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