LeagueNews - Cerebral Palsy League
LeagueNews - Cerebral Palsy League
LeagueNews - Cerebral Palsy League
You also want an ePaper? Increase the reach of your titles
YUMPU automatically turns print PDFs into web optimized ePapers that Google loves.
National trial results<br />
THE Queensland Health Minister<br />
launched the Australian <strong>Cerebral</strong> <strong>Palsy</strong><br />
Register Conference, which presented<br />
the analysed results of a national trial<br />
classification of cerebral palsy system<br />
in Brisbane during October at the Royal<br />
Children’s Hospital.<br />
The Queensland <strong>Cerebral</strong> <strong>Palsy</strong> Register<br />
participated in the trials, which<br />
represented a potential international<br />
breakthrough in recording and analysing<br />
clinical symptoms of people with<br />
cerebral palsy.<br />
The next step in implementing the<br />
classification system will be testing its<br />
effectiveness with university students and<br />
other clinicians across the country to<br />
use.<br />
Following the results of this trial, further<br />
changes may be made before the<br />
system can be promoted for use<br />
throughout Australia and offered<br />
internationally.<br />
Manager of the Queensland <strong>Cerebral</strong><br />
<strong>Palsy</strong> Register, Michael deLacy, said<br />
Witness: Minister for Health Hon Stephen<br />
Robertson witnessed the application of<br />
the 1200th participant in the Queensland<br />
<strong>Cerebral</strong> <strong>Palsy</strong> Register: James FitzGerald,<br />
2, pictured with his mum Leone at the<br />
Australian <strong>Cerebral</strong> <strong>Palsy</strong> Register<br />
Conference.<br />
Results of a national trial classification<br />
system of cerebral palsy were announced<br />
at the conference, which was held in<br />
October, in Brisbane.<br />
more consistent and transferable data<br />
within registers, achieved by a universal<br />
classification system, will fast track<br />
research into causes and preventions<br />
of cerebral palsy.<br />
“With a greater resource of information<br />
to use for research, identifying potential<br />
causes will speed up exponentially and<br />
this will lead us to preventions,” Mr<br />
deLacy said.<br />
Parents of eighteen-month old<br />
Brisbane resident, James FitzGerald,<br />
signed James onto the Queensland<br />
<strong>Cerebral</strong> <strong>Palsy</strong> Register, which now<br />
includes some 1,200 Queenslanders<br />
with cerebral palsy, during the<br />
conference.<br />
James was recently diagnosed with<br />
cerebral palsy, which affects the<br />
mobility in his legs and means he is<br />
not yet walking, crawling or sitting up<br />
unassisted.<br />
It is not possible to confirm the cause<br />
of James’ disability.<br />
James’ parents said they supported the<br />
Register to contribute to better<br />
research into cerebral palsy that will<br />
lead to better treatment and possible<br />
prevention.<br />
For information on the Queensland<br />
<strong>Cerebral</strong> <strong>Palsy</strong> Register:<br />
www.qcpr.org.au<br />
Film and Fanfare<br />
TEN young actors found new<br />
talents when producing<br />
Inside-Outside, a DVD<br />
documentary exploring the<br />
experience of discrimination<br />
for young people with<br />
disabilities, through Screech<br />
Theatre Company, a troupe of<br />
young actors with mixed<br />
abilities.<br />
The actors reached another<br />
milestone in their remarkable<br />
journey which has spanned<br />
more than three years when<br />
Brisbane film-maker, Luke<br />
Mansour, joined Screech to<br />
help the troupe plan, film and<br />
produce the documentary.<br />
Facilitator Chris Pye of<br />
Interaction Drama and<br />
<strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong><br />
occupational therapist, Margo<br />
Wratten said they saw the<br />
project as a way for children<br />
who attended Screech to learn<br />
and grow from their traditional<br />
experiences of performing on<br />
stage.<br />
“Each year Screech facilitates<br />
a series of skills development<br />
workshops through which<br />
young actors develop a<br />
performance to showcase<br />
their hard work and talent as a<br />
final project,” Ms Wratten said.<br />
Both Chris and Margo also<br />
worked to secure funding to<br />
enable Screech to continue<br />
each year and set the<br />
groundwork for another year of<br />
operation in 2007.<br />
Continuing in their stead will be<br />
Alex McCullum as Creative<br />
Director and Faye Carver as<br />
Screech Coordinator.<br />
The Inside-Outside DVD is<br />
available for purchase from<br />
the <strong>League</strong> for $10.<br />
Further information:<br />
Caitlin Neville<br />
Phone: 07 3347 7200<br />
4