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LeagueNews - Cerebral Palsy League

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National trial results<br />

THE Queensland Health Minister<br />

launched the Australian <strong>Cerebral</strong> <strong>Palsy</strong><br />

Register Conference, which presented<br />

the analysed results of a national trial<br />

classification of cerebral palsy system<br />

in Brisbane during October at the Royal<br />

Children’s Hospital.<br />

The Queensland <strong>Cerebral</strong> <strong>Palsy</strong> Register<br />

participated in the trials, which<br />

represented a potential international<br />

breakthrough in recording and analysing<br />

clinical symptoms of people with<br />

cerebral palsy.<br />

The next step in implementing the<br />

classification system will be testing its<br />

effectiveness with university students and<br />

other clinicians across the country to<br />

use.<br />

Following the results of this trial, further<br />

changes may be made before the<br />

system can be promoted for use<br />

throughout Australia and offered<br />

internationally.<br />

Manager of the Queensland <strong>Cerebral</strong><br />

<strong>Palsy</strong> Register, Michael deLacy, said<br />

Witness: Minister for Health Hon Stephen<br />

Robertson witnessed the application of<br />

the 1200th participant in the Queensland<br />

<strong>Cerebral</strong> <strong>Palsy</strong> Register: James FitzGerald,<br />

2, pictured with his mum Leone at the<br />

Australian <strong>Cerebral</strong> <strong>Palsy</strong> Register<br />

Conference.<br />

Results of a national trial classification<br />

system of cerebral palsy were announced<br />

at the conference, which was held in<br />

October, in Brisbane.<br />

more consistent and transferable data<br />

within registers, achieved by a universal<br />

classification system, will fast track<br />

research into causes and preventions<br />

of cerebral palsy.<br />

“With a greater resource of information<br />

to use for research, identifying potential<br />

causes will speed up exponentially and<br />

this will lead us to preventions,” Mr<br />

deLacy said.<br />

Parents of eighteen-month old<br />

Brisbane resident, James FitzGerald,<br />

signed James onto the Queensland<br />

<strong>Cerebral</strong> <strong>Palsy</strong> Register, which now<br />

includes some 1,200 Queenslanders<br />

with cerebral palsy, during the<br />

conference.<br />

James was recently diagnosed with<br />

cerebral palsy, which affects the<br />

mobility in his legs and means he is<br />

not yet walking, crawling or sitting up<br />

unassisted.<br />

It is not possible to confirm the cause<br />

of James’ disability.<br />

James’ parents said they supported the<br />

Register to contribute to better<br />

research into cerebral palsy that will<br />

lead to better treatment and possible<br />

prevention.<br />

For information on the Queensland<br />

<strong>Cerebral</strong> <strong>Palsy</strong> Register:<br />

www.qcpr.org.au<br />

Film and Fanfare<br />

TEN young actors found new<br />

talents when producing<br />

Inside-Outside, a DVD<br />

documentary exploring the<br />

experience of discrimination<br />

for young people with<br />

disabilities, through Screech<br />

Theatre Company, a troupe of<br />

young actors with mixed<br />

abilities.<br />

The actors reached another<br />

milestone in their remarkable<br />

journey which has spanned<br />

more than three years when<br />

Brisbane film-maker, Luke<br />

Mansour, joined Screech to<br />

help the troupe plan, film and<br />

produce the documentary.<br />

Facilitator Chris Pye of<br />

Interaction Drama and<br />

<strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong><br />

occupational therapist, Margo<br />

Wratten said they saw the<br />

project as a way for children<br />

who attended Screech to learn<br />

and grow from their traditional<br />

experiences of performing on<br />

stage.<br />

“Each year Screech facilitates<br />

a series of skills development<br />

workshops through which<br />

young actors develop a<br />

performance to showcase<br />

their hard work and talent as a<br />

final project,” Ms Wratten said.<br />

Both Chris and Margo also<br />

worked to secure funding to<br />

enable Screech to continue<br />

each year and set the<br />

groundwork for another year of<br />

operation in 2007.<br />

Continuing in their stead will be<br />

Alex McCullum as Creative<br />

Director and Faye Carver as<br />

Screech Coordinator.<br />

The Inside-Outside DVD is<br />

available for purchase from<br />

the <strong>League</strong> for $10.<br />

Further information:<br />

Caitlin Neville<br />

Phone: 07 3347 7200<br />

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