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<strong>Annual</strong> <strong>Review</strong> | 09/10<br />
Working with deafblind<br />
and disabled children and<br />
adults all over <strong>Scotland</strong><br />
Supporting people:<br />
• to live independently in their own homes<br />
• through day support services<br />
• with residential short breaks and respite<br />
• through arts, music, drama and outdoor activities<br />
• with specialist advice, information and resources
25 Year Timeline_<br />
<strong>Sense</strong> <strong>Scotland</strong> is 25 years old<br />
In 1985 <strong>Sense</strong> <strong>Scotland</strong> was formalised as a charity. This year’s annual review will look at the past<br />
year in the organisation while reflecting on the past 25 years through the favourite memories of<br />
families, staff and the people who use our services. <strong>Sense</strong> <strong>Scotland</strong> works with children and adults<br />
who have communication support needs because of deafblindness, sensory impairment, learning<br />
or physical disability. We lead the field in communication and innovative support services for<br />
people who are marginalised because of challenging behaviour, health care requirements and the<br />
complexity of their support needs. Our services are designed to provide choice and continuity across<br />
age groups and we work closely with families and colleagues from health, education and social work.<br />
More than 1,000 children, adults and their families benefit in some way from an involvement with<br />
<strong>Sense</strong> <strong>Scotland</strong>. In April <strong>2010</strong> we had over 1200 staff. We are providing services to people from<br />
21 Scottish local authorities.<br />
Contents:<br />
01. Chairman<br />
02. Chief Executive<br />
03. Supporting people<br />
04. Connecting with donors<br />
06. Rural communities<br />
08. 25 Years on<br />
Our current strategic<br />
priorities are to:<br />
• support and develop<br />
positive health for service<br />
users and staff.<br />
• actively promote a culture<br />
of high standards and<br />
quality.<br />
• support and promote<br />
service users and families to<br />
drive forward change.<br />
• develop opportunities<br />
for service users, families,<br />
and staff.<br />
• promote an efficient<br />
and effective organisation<br />
at all levels.<br />
10. Overbridge<br />
11. Highlights<br />
12. Working with families<br />
14. Supporting transitions<br />
17. Creating opportunities<br />
21. Thank yous /<br />
Financial summary<br />
Services:<br />
• family advisory services<br />
• community living with support<br />
for adults<br />
• support services for adults<br />
• support services for children<br />
• residential short breaks for<br />
adults (Dundee and South<br />
Lanarkshire) and for children<br />
in Greater Glasgow and<br />
Argyll and Bute<br />
• art development work for<br />
children and adults<br />
• outdoor education for<br />
children and adults<br />
• practice skills training for<br />
professionals<br />
• assessments, representation,<br />
consultation and policy<br />
development<br />
• general and health information<br />
• enquiry services<br />
Trustees / Areas of interest:<br />
Roy Cox Chair<br />
Neil Farquharson Vice Chair<br />
Douglas Smart Treasurer<br />
David Newton Legal<br />
Norman Ritchie Business<br />
Duncan Tannahill Business<br />
and Fundraising<br />
Marion McArdle Family Issues<br />
Isobel Allan Family Issues<br />
and Public Policy<br />
Usman Rehman Family Issues<br />
and Health<br />
National Service User<br />
Consultation Group:<br />
Steph Clark<br />
Ewen Farquharson<br />
Murray Farquharson<br />
Ian Johnston<br />
Ailill Finlayson<br />
Yvonne Larkin<br />
John Ross<br />
Lewis Scott<br />
Peter Wilson<br />
Highland Consultation Group:<br />
Laura Boreland<br />
Gavin McCulloch<br />
Alex Gemmell<br />
Johnny Cousins<br />
Farquhar Keenan<br />
Gail Richardson<br />
David McConnachie<br />
Lewis Anderson<br />
Michael Fraser<br />
John Mackay<br />
Alex Smith
1985 – <strong>Sense</strong> <strong>Scotland</strong> becomes a formal voluntary organisation and appoints its first member of staff, Gillian Morbey. //<br />
Looking back... looking forward<br />
Roy Cox, Chairman<br />
We are celebrating 25 years of <strong>Sense</strong> <strong>Scotland</strong> but<br />
actually the organisation’s roots go back much<br />
further. I was reflecting on the hard work of the<br />
first group of parents who began meeting in the<br />
mid-1970s. Sadly some of those dedicated parents<br />
like Dr John Tulloch and Danny Nimmo are no<br />
longer with us but still their legacy remains with<br />
us today. Over the period we have also lost some<br />
of our children, staff and trustees, all people that<br />
have made a difference and contributed to what<br />
<strong>Sense</strong> <strong>Scotland</strong> is today.<br />
I was privileged to attend our first staff and<br />
volunteer awards ceremony this year. At this<br />
wonderful event I was reminded of the incredible<br />
dedication of volunteers who have served the<br />
organisation for over twenty years, really from the<br />
beginning. I was also delighted to see the hard<br />
work of our younger staff recognised. While the<br />
history of our organisation is important, it’s equally<br />
important that our younger staff are given the<br />
space to grow and make their own histories.<br />
So, 25 years on we have undoubtedly made<br />
mistakes, I’m sure we could have done things<br />
differently but I also know that we have achieved<br />
a great deal with many things which have made<br />
me and the other trustees exceptionally proud.<br />
Of course we have worked together with many<br />
colleagues and partners and we have had the<br />
fantastic benefit of two wonderful Patrons in Mary,<br />
Dowager Countess of Strathmore LLD DL and now<br />
the Duchess of Sutherland.<br />
In concluding on behalf of the trustees, I think we<br />
can allow ourselves some reflections from the past<br />
on our 25th anniversary. In doing so, I am sure<br />
we will all be looking forward to another 25 years<br />
and beyond.<br />
<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />
01
1986 – First office and charity shop open in Glasgow.<br />
25 years of inspiration!<br />
Gillian Morbey OBE, Chief Executive<br />
Last year I was reflecting on funding and our<br />
need to restructure staffing in direct services.<br />
It was a tough year and looking at the financial<br />
and other forecasts I think we are all expecting<br />
funding and services to remain difficult at least for<br />
the next year or so. T<strong>here</strong> are a number of possible<br />
responses to difficult times. They could include<br />
doing less, cutting services and saying no to<br />
further developments. However our organisation<br />
has grown from parents who believed that<br />
everything is possible and I think that approach<br />
is now locked into the organisation DNA.<br />
T<strong>here</strong> is no doubt that we are cautious, assessing<br />
risks and challenges more closely but we are<br />
still developing innovative ways of doing things<br />
that are not all about money. We are also rich in<br />
resources with service users, staff, families and<br />
colleagues, so t<strong>here</strong> is still much that can be done.<br />
We are in a much stronger position to ‘weather’<br />
the storm, not least because of our fantastic<br />
supporters and funders. Many of the Trusts,<br />
who have experienced difficulties, have continued<br />
to support us through some wonderful funding.<br />
I believe our responsibility in return is to<br />
continue to drive forward change that increases<br />
opportunities for service users and families while<br />
being as efficient as possible with resources.<br />
To this end we have experienced some fantastic<br />
moments. The Auchtermuchty Burns supper, now<br />
a famous annual event was a wonderful occasion<br />
entirely organised by staff and service users. The<br />
‘In Our Own Voices’ exhibition in Inverness brought<br />
colleagues from social work and the NHS together<br />
along with carers and service users. The event<br />
allowed people to remember and celebrate life in<br />
long stay hospital while at the same time looking<br />
forward to new lives in the community.<br />
The service users astonished us with their<br />
performance of their own play PARK.<br />
They performed at the Fringe Festival in Edinburgh<br />
and later at TouchBase and t<strong>here</strong> are plans to<br />
go on tour to Dundee and Inverness. T<strong>here</strong> were<br />
also ordinary but just as inspiring moments.<br />
Service users celebrated birthdays and a variety of<br />
personal achievements; they undertook their work<br />
with dedication and dignity; they experienced their<br />
first holidays and took many first steps both large<br />
and small, but all significant.<br />
One day I plan to gather these wonderful people<br />
and moments together and we will write a book<br />
that tells the stories of so many difficult but<br />
inspiring journeys. Maybe our 25th year is a good<br />
time to ask you all to share your memories,<br />
good and not so good.<br />
Our annual review can only give you a taste of a<br />
year with <strong>Sense</strong> <strong>Scotland</strong> but nevertheless I hope<br />
you enjoy reading some of this year’s moments.<br />
02 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>
1987 – First group of people move into the new service in Overbridge, Glasgow. the first service for deafblind adults in <strong>Scotland</strong>; first family adviser appointed. //<br />
Supporting people all year round<br />
Brian Crichton: a life with <strong>Sense</strong> <strong>Scotland</strong><br />
Brian Crichton, who turns 40 in <strong>2010</strong> as we<br />
celebrate our 25th anniversary year, was one<br />
of the first to use the organisation’s services.<br />
Brian now uses sign language to communicate<br />
but had very limited signs and communication<br />
when he moved into Overbridge. He has shared,<br />
like many of the people we work with, a wide<br />
range of challenges and experiences and is now<br />
a talented artist who is devoted to the outdoor<br />
life. Brian’s parents Jean and Jimmy talked<br />
about the kind of support he has received from<br />
<strong>Sense</strong> <strong>Scotland</strong> over the years. Jimmy passed<br />
away very recently and our thoughts are with<br />
Jean, Brian and all his family.<br />
When Brian was born in 1970, his family<br />
faced many challenges in trying to secure the<br />
support and services they knew he needed<br />
as a disabled child.<br />
“The first 3 years of Brian’s life was<br />
mostly hospitals and clinics,” explained<br />
mum Jean. “T<strong>here</strong> wasn’t really very<br />
much for him. He would go to crèche<br />
maybe one day a week. I always<br />
thought t<strong>here</strong> was more to Brian...<br />
because they said t<strong>here</strong> were no reflexes<br />
when he was born. And I always treated<br />
him as a normal child.”<br />
Support was difficult to get, then when he was<br />
aged three, Jean got a call from long-time <strong>Sense</strong><br />
<strong>Scotland</strong> supporter Sheena Tulloch, whose son<br />
Richard is also now supported by us. Sheena had<br />
started a group for disabled children in Brechin,<br />
which proved to be a real success for Brian.<br />
Following times spent in various schools and in<br />
hospital, Brian moved towards adult support<br />
services and the chance to live in his own home.<br />
This was the start of Brian’s relationship with<br />
<strong>Sense</strong> <strong>Scotland</strong>. Opened in 1987 and still used<br />
today Overbridge was the first service for<br />
deafblind adults in <strong>Scotland</strong>. Brian was part of<br />
the first group who lived t<strong>here</strong>. “That was the<br />
perfect place for him, because art was all round<br />
about,” explained Jean. “Brian came on in leaps<br />
and bounds since he came through t<strong>here</strong>. <strong>Sense</strong><br />
<strong>Scotland</strong> has come a long way since Brian started<br />
t<strong>here</strong>.” Brian’s passion for drawing has always<br />
been encouraged by Jean. “I used to draw with<br />
him a lot. That’s the way I used to communicate<br />
with him...through drawing.” Brian’s skill in visual<br />
arts has always been supported by <strong>Sense</strong> <strong>Scotland</strong><br />
and he was highly commended in the third<br />
Helen Keller art award.<br />
In 2003 as support services expanded across<br />
the country, Brian had the chance to move closer<br />
to his family. With his own flat, he had more<br />
independence and saw his family regularly as<br />
Jean explained: “I’m quite happy w<strong>here</strong> Brian<br />
is now. I can see him any time I want and he<br />
comes <strong>here</strong> as well.”<br />
Brian has had some amazing outdoor experiences<br />
including Scandanavian treks, camping and<br />
regular walks. He has also been working with our<br />
Outdoor Activities Coordinator and visual arts<br />
tutors, to take part in an exhibition about his<br />
countryside walks. Jean is delighted to see how<br />
Brian has flourished: “We’ve had a lot of ups and<br />
downs with Brian but I can’t say that I’ve ever<br />
regretted any of it.”<br />
<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />
03
1989 – Children in Need award us £300,000 for a new Family Centre.<br />
Connecting with our donors<br />
Sara Bannerman was awarded the prestigious<br />
Fundraiser of the year Award at the Institute of<br />
Fundraising Awards. Sara has responsibility for<br />
raising income from individuals for <strong>Sense</strong> <strong>Scotland</strong>.<br />
John Brady, our Head of Fundraising said,<br />
“Income from individuals has risen dramatically<br />
from £280,000 when she came into post as donor<br />
development manager in 2001, to over £915,000<br />
last year, a 3-and-a-half fold increase over 7 years.<br />
This award is fully deserved and we appreciate the<br />
care she has given our donors over the years.”<br />
Kimberley talks about<br />
being supported in her own flat<br />
We support Kimberly to live in her own flat<br />
in Dundee. She explained how important her<br />
support staff were:<br />
“When I was at respite I didn’t get good<br />
support and was left on my own a lot, but in<br />
my own place, it’s a lot better.”<br />
What do you like best about the staff that<br />
work with you?<br />
“They’re very<br />
supportive.”<br />
…and what kind of things do you like doing?<br />
“I like going out shopping,<br />
going out to my activities,<br />
go to the blind society<br />
in the town, I like going<br />
swimming, going to the<br />
blind club on a Thursday<br />
night, that’s about it<br />
really, and I like doing<br />
my house work.”<br />
Staff Awards<br />
Our first Staff Awards<br />
ceremony celebrated<br />
the achievements<br />
of staff across<br />
<strong>Scotland</strong>. Organised<br />
and presented by the<br />
Training and Learning<br />
Centre (TLC) and<br />
colleagues, the event<br />
recognised professional<br />
development through<br />
SQA attainment and<br />
professional awards<br />
across a range of<br />
other disciplines.<br />
“This wonderful event<br />
recognised the hard<br />
work of volunteers<br />
and support staff,<br />
who are totally<br />
committed to the<br />
people we support,”<br />
said Chief Executive,<br />
Gillian Morbey.<br />
Shop achievements<br />
Our shops continue<br />
to thrive, generating<br />
literally hundreds of<br />
thousands of pounds<br />
to support the disabled<br />
children and adults<br />
we work with.<br />
Our Peebles shop<br />
was given the Shop<br />
of the Year Award.<br />
Lorna Stavert,<br />
Manager of the<br />
Peebles shop,<br />
was delighted to<br />
receive the award<br />
along with staff<br />
and volunteers.<br />
Over 60 individuals<br />
were recognised and<br />
three teams were<br />
shortlisted for the<br />
Team of the Year<br />
Award, won by our<br />
Auchtermuchty<br />
housing support<br />
service. A group of long<br />
serving shop volunteers<br />
were rewarded with a<br />
specially commissioned<br />
print by <strong>Sense</strong> <strong>Scotland</strong><br />
artist Sasha.<br />
Two support staff<br />
won Professional<br />
Development Award<br />
grants to help them<br />
pursue a creative idea<br />
which will benefit<br />
<strong>Sense</strong> <strong>Scotland</strong> and<br />
the people we support.<br />
Lorna explains why the<br />
shop is successful:<br />
“Customers know<br />
they get really good<br />
value with quality<br />
products at bargain<br />
prices. All staff and<br />
volunteers are really<br />
approachable, both<br />
volunteers and staff<br />
keep it a friendly shop!”<br />
Our Bathgate<br />
shop celebrated its<br />
10th anniversary,<br />
while Peebles won<br />
an ‘Apprentice-style’<br />
challenge,<br />
raising £2,200.<br />
04 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>
Working towards change<br />
We continue to work with families and the people<br />
who use our services in a variety of different<br />
ways to ensure that their views are expressed<br />
to government and other policy makers. One<br />
of our trustees with an interest in family issues<br />
works with us on our Public Policy Group and her<br />
input and support is very valuable indeed. Other<br />
family members have been supported to attend<br />
meetings with policy makers. Timescales are<br />
often short during consultations and families’<br />
priorities need to be balanced with care of their<br />
sons and daughters. We appreciate very much the<br />
contribution they make. Our Consultation Group<br />
is made up of people who use our services and<br />
its members have also made valuable<br />
contributions over the last year.<br />
1991 – Her Royal Highness The Princess Royal opens Family Centre. //<br />
Getting together across the country<br />
It’s great to catch up with friends. At services<br />
throughout the country the people we support<br />
have been celebrating at a number of parties.<br />
The Inverness Christmas party was a great night<br />
with some guests as far travelled as Skye and<br />
Glenfinnan. Ian, who is supported to live in his own<br />
home, just outside Inverness, was a very confident<br />
and welcoming Santa for the event. Glenrothes<br />
also celebrated Christmas in style with a buffet<br />
lunch and music. In Auchtermuchty, the annual<br />
Burns Night brought some winter cheer with<br />
people from Fife, Dundee, Bridge of Earn<br />
and Forfar seeing old friends and celebrating<br />
with music and a traditional Burns supper.<br />
Singers for the evening were Murray and Ewen<br />
Farquharson, Stephanie Clarke, and John Ross.<br />
A special mention for the wonderful accordian<br />
medley by Alan and Murray.<br />
Husky trio<br />
raise thousands<br />
A trio of intrepid supporters<br />
successfully completed a 250km<br />
journey across the Arctic,<br />
raising over £9,000 in the<br />
process. Congratulations to Lisa<br />
McIntosh, Pam Goodwin and<br />
George Antill for braving the<br />
extreme temperatures as they<br />
each drove their own team of<br />
dogs through the wilderness<br />
from Norway to Sweden. The<br />
fact that one of the participants<br />
described the challenge as<br />
“gruelling, punishing, awesome<br />
and magnificent” is pretty<br />
clear indication that this was a<br />
genuine experience of a lifetime.<br />
<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />
05
1992 - First Helen Keller art award held. // 1993 – First respite services offered to children at the Family Centre. //<br />
Supporting people in rural communities<br />
Growing with Katie<br />
We started to support Katie in 2005, to live in her<br />
own home in Glenfinnan, close to w<strong>here</strong> her family<br />
stays. Support workers Margaret and Linda have<br />
seen how Katie’s confidence has grown through<br />
her support by <strong>Sense</strong> <strong>Scotland</strong> and has a great<br />
time visiting her favourite shops and being out and<br />
about. Katie uses some signing to communicate<br />
along with her own gestures and vocalisations<br />
and has a photo-board indicating which staff<br />
are working and the activities she has planned.<br />
What did Katie’s family hope the move to her<br />
own home would achieve?<br />
Linda explained how the move to her own home<br />
had worked out: “The good thing is that the family<br />
is able to drop in. It is very important that they<br />
can see Katie on a regular basis.”<br />
Katie has also started getting more involved<br />
with wider social and group activities. “Anything<br />
outdoors, anything w<strong>here</strong> t<strong>here</strong>’s a bit of<br />
excitement and lots of activity, Katie’s really<br />
happy,” said Linda.<br />
Support staff also encourage Katie to look<br />
after and enjoy her home through an activity<br />
planner, which changes weekly.<br />
“We’ll support Katie hand over hand to do the<br />
washing up after dinner, although she doesn’t<br />
like the pots!” explained Linda. “She draws the<br />
line t<strong>here</strong>. Katie likes to be involved in things,<br />
just normal every day living sort of things.”<br />
Because of w<strong>here</strong> Katie lives she is very reliant<br />
on the car, so it’s up to the team to help and<br />
support Katie to budget as effectively as she can.<br />
Linda spoke to Katie: “We don’t waste your money!<br />
I think that’s probably the biggest challenge we’ve<br />
got, but otherwise it is just careful planning.”<br />
“I’ve seen a huge improvement in Katie’s<br />
communication,” added Linda. “Today, on the<br />
bus, Margaret and I were talking and Katie<br />
actually got Margaret’s face and turned it<br />
and said “don’t speak to Linda, speak to me!”<br />
Katie’s independence is developing…<br />
and what we do today obviously helps<br />
Katie for tomorrow..”<br />
New respite service in Argyll and Bute<br />
Last Autumn building started<br />
on our new respite service<br />
in Helensburgh. With five<br />
residential places, disabled<br />
children throughout Argyll and<br />
Bute can expect high quality<br />
care and support. At present<br />
these young people have to<br />
travel to other parts of the<br />
country for specialist support.<br />
This new, accessible base will<br />
make life easier for children and<br />
their families. Run in partnership<br />
with Argyll and Bute Council and<br />
supported by the Ardlui Trust<br />
from the start, the resource<br />
will be supporting people from<br />
summer <strong>2010</strong>.<br />
06 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>
1994 – Day services base for adults opens in Durham Street, Glasgow. //<br />
Steven’s move to independence<br />
Steven is in his mid twenties and has 24-hour<br />
support to live in his own home in Skye for 3 years.<br />
Having previously been at school in Aberdeen,<br />
the move allowed him to live more closely<br />
to his parents, Mike and Sheena, and the rest<br />
of his family. Initially t<strong>here</strong> was real difficulty in<br />
getting a service set up for Steven, so his parents<br />
approached a number of organisations and were<br />
pleased with <strong>Sense</strong> <strong>Scotland</strong>’s approach. Steven<br />
is very precise in the way that he communicates<br />
and needs staff to be equally precise and to<br />
support him with things he does not understand.<br />
Steven and his team have worked hard at<br />
achieving and maintaining his independence.<br />
“We wanted Steven to have a bit of<br />
independence...and also that he wouldn’t<br />
be too far away from us,” said Mike. “He’s<br />
quite fond of his family, and they are of him of<br />
course. It’s worked out well him being <strong>here</strong>.”<br />
Sheila said, “It’s running well, and Steven’s come<br />
on great. He’s happy! We’re very lucky, and we’ve<br />
got a great team of support staff and carers.”<br />
Steven’s support staff make sure he gets involved<br />
in the wider community. Mike explained,<br />
“He travels into Inverness to his music class,<br />
he goes bowling, and he likes things like that.<br />
Most of the stuff is quite a distance away. He’s got<br />
a Motability car… so any of his carers can drive it.”<br />
Steven likes to be active, loves his music and goes<br />
swimming when they can fit it in. He also enjoys<br />
his computer and he does jigsaws on it.<br />
“He’s got a better social life than we have!”<br />
joked Sheila. “He’s much more settled now<br />
when he comes home. He’s much happier.<br />
We have quality time with him now at home.”<br />
Steven’s parents are also clear about the qualities<br />
needed from support staff. Sheila said, “I think just<br />
caring is the main thing and just understanding.<br />
“Cos it’s not easy.”<br />
Mike added, “Human qualities as much as<br />
anything. And common sense.”<br />
Young at heart Bill leads abseil<br />
85 years young Bill Rossine was in the very first<br />
group up the Finnieston Crane for our charity<br />
abseil. Raising a whopping £485 he led the way<br />
for 51 other participants who collectively raised<br />
over £10,000. After zig-zagging their way up<br />
the metal stairwell through the heart of the crane<br />
the abseilers then descended165 feet, SAS-style<br />
in a freefall abseil. Well done to everyone<br />
who took part.<br />
Children and Families’ fundraisers<br />
Two events have helped raise hundreds of pounds<br />
to support our Children and Families Services.<br />
‘Ladies at Eleven’ in TouchBase was a chance<br />
to enjoy lunch, tea and scones topped off with<br />
comedian Raymond Mearns. Our third LUV Fete,<br />
also at TouchBase, included a raffle, tombola and<br />
stalls selling crafts made by children and young<br />
people. Story teller Clare Humes was a big hit with<br />
her sensory story about love.<br />
<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />
07
1995 – Community houses open in Coatbridge, Fife and Glasgow. Chief Executive Gillian Morbey, awarded OBE.<br />
<strong>Sense</strong> <strong>Scotland</strong>, 25 Years On<br />
It’s 25 years since <strong>Sense</strong> <strong>Scotland</strong> was formalised as a charity, growing from its roots as a small<br />
group of families pressing for services for their children who were affected by deafblindness, many<br />
because of maternal rubella. From this small group and its first employee (our now Chief Executive<br />
Gillian Morbey), the organisation has supported hundreds of disabled people and their families.<br />
Look I’m Here<br />
Gill Morbey and Stuart Aitken look back<br />
25 years to a survey carried out in the early<br />
days of <strong>Sense</strong> <strong>Scotland</strong>.<br />
Twenty-five years ago we set to find out how<br />
many deafblind people t<strong>here</strong> were in <strong>Scotland</strong>,<br />
w<strong>here</strong> they were, and, most important of all<br />
what kind of services they were receiving.<br />
At the time we didn’t know what we would<br />
find, so we couldn’t be sure what would help<br />
to make people’s lives better, nor how best<br />
to effect that change with and for people.<br />
We identified many people, the few who<br />
were well supported being far outnumbered<br />
by the many in unsuitable accommodation,<br />
often medicated to sort out their challenging<br />
behaviour, while underlying medical problems<br />
that could have been addressed were left<br />
untreated. We committed ourselves to bringing<br />
about change not just in the lives of individuals<br />
and their families. We understood too that<br />
for change to stand the test of time attitudes<br />
would have to change, and new structures<br />
would have to be put in place.<br />
We engaged with professionals, local authorities,<br />
health boards and central government and<br />
achieved notable successes along the way.<br />
Identifying what changes needed to take place<br />
was always easy because we asked families<br />
and deafblind people themselves to tell us<br />
what mattered to them. We still work that way.<br />
Effecting that change took a lot more work<br />
but we, then, don’t give up easily!<br />
The impact of Look I’m Here belies the size<br />
of the document. Its findings drove what<br />
<strong>Sense</strong> <strong>Scotland</strong> did and, through the core<br />
values we later established, how we did it.<br />
Much remains to be done.<br />
Dr. Stuart Aitken, Senior Consultant<br />
and Gillian Morbey, Chief Executive<br />
08 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>
1997 – Dundee, community housing and supported living services open. //<br />
<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />
09
1998 – Supported living services in Ardrossan and Auchtermuchty open. Advisory office opens in Dundee. Arts development services introduced.<br />
Overbridge: a stepping stone for independence<br />
Our Overbridge service is central to history<br />
of the organisation and many of the people<br />
we support spent time at this, our first ever<br />
service. Andy Murphy, our registered manager<br />
at Overbridge, found out what happened<br />
to the people who spent time t<strong>here</strong>:<br />
“Compiling the names brought back some<br />
memories of the unique people that we have<br />
supported over the year. It’s good to see<br />
that the majority have remained with<br />
<strong>Sense</strong> <strong>Scotland</strong>”<br />
Overbridge: W<strong>here</strong> Are They Now?<br />
Katie S:<br />
Katie now lives<br />
in her own house<br />
in Kelty.<br />
Lesley N:<br />
Lesley moved to a<br />
shared house then<br />
on to her own flat<br />
in Glasgow.<br />
Lewis S:<br />
Lewis moved to a<br />
shared house then<br />
on to his own flat<br />
in Glasgow.<br />
Stephen D:<br />
Stephen moved<br />
into his own house<br />
in Saltcoats,<br />
sharing with his<br />
flatmate.<br />
Robert G:<br />
Robert moved<br />
into his own house<br />
in Coatbridge,<br />
sharing with his<br />
flatmate.<br />
Mark H:<br />
Moved into<br />
his own house<br />
in Coatbridge,<br />
sharing with<br />
his flatmate.<br />
Nicola B:<br />
Nicky moved into<br />
her own house in<br />
Pollok. Sadly she<br />
died in 2005.<br />
Peter T:<br />
Peter moved into<br />
his own house in<br />
Pollok, sharing<br />
with his flatmate.<br />
Stephen M:<br />
Stephen came<br />
for a holiday at<br />
Overbridge.<br />
Paul I:<br />
Paul moved into<br />
his own house<br />
Saltcoats, sharing<br />
with his flatmate.<br />
Sadly, Paul died<br />
in 2006.<br />
Morag M:<br />
Moved into her<br />
own house in<br />
Braidcraft Road<br />
in Pollok, sharing<br />
with her flatmate.<br />
Angela P:<br />
Moved into her<br />
own house in<br />
Pollok, sharing<br />
with her flatmate.<br />
Daniel M and<br />
Robert B,<br />
Andrena M<br />
and Ruth B:<br />
Danny, Robert,<br />
Andrena and<br />
Ruth continue to<br />
live in their own<br />
independent flats<br />
within Overbridge.<br />
Steven A:<br />
Steven moved<br />
to his own flat in<br />
Glasgow, sharing<br />
with his flatmate.<br />
Brian C and<br />
Richard T:<br />
Brian and Richard<br />
Moved to their<br />
own flats within<br />
a house in Forfar,<br />
sharing with<br />
flatmates.<br />
Julie M:<br />
Moved to a shared<br />
house in Glasgow<br />
then went to live<br />
with her parents.<br />
Susan M:<br />
Susan moved into<br />
her own house in<br />
Pollok sharing with<br />
her flatmate.<br />
Kirsty C:<br />
Kirsty moved to<br />
her own house in<br />
North Kelvinside,<br />
Glasgow.<br />
Eleanor S,<br />
Stephen M,<br />
Mark H,<br />
Kerry F and<br />
Ghazala A:<br />
They are all<br />
moving to their<br />
own flats<br />
in Glasgow in<br />
July <strong>2010</strong>.<br />
Felicity S:<br />
Felicity died<br />
peacefully in<br />
Overbridge<br />
in <strong>2010</strong>.<br />
Andrena M:<br />
Andrena<br />
continues to live<br />
at Overbridge.<br />
Allison H:<br />
Allison moved<br />
into her own<br />
house in John<br />
Smith Gardens<br />
in Coatbridge.<br />
David F:<br />
David moved<br />
into his own<br />
house in John<br />
Smith gardens<br />
in Coatbridge,<br />
sharing with his<br />
flatmate.<br />
Scott M:<br />
Now lives in<br />
his own house<br />
in Kelty.<br />
10 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>_<strong>2010</strong>
1999 – <strong>Sense</strong> <strong>Scotland</strong> artists exhibit in Glasgow and Portugal. Day service provision introduced in Dundee. //<br />
People reflect on their <strong>Sense</strong> <strong>Scotland</strong> highlights!<br />
Family involvement<br />
is important to<br />
parents and carers.<br />
Jamie’s mum,<br />
Lesley explains:<br />
“For myself the most<br />
important thing when<br />
I came in was the<br />
family involvement<br />
and the fact that it was<br />
an organisation based<br />
around families. The<br />
fact that you can pick<br />
up the phone, speak<br />
to someone and get<br />
advice; they’ve always<br />
maintained that.”<br />
Support worker<br />
Leas from Dundee:<br />
“Kimberly has a great<br />
sense of humour, I can<br />
see that she’s come<br />
on leaps and bounds<br />
since she’s moved in<br />
<strong>here</strong> and I like knowing<br />
that I’m part of that<br />
and that I’ve helped<br />
her to develop and her<br />
confidence to grow.”<br />
James West,<br />
Regional Manager<br />
for the North East:<br />
“I spent a lot of my<br />
first few years in <strong>Sense</strong><br />
<strong>Scotland</strong> opening new<br />
services, seeing people<br />
move out of hospital,<br />
develop new skills and<br />
gain opportunities. Just<br />
seeing the change in<br />
people over a period<br />
of time after they<br />
left a hospital setting<br />
for their own homes.<br />
So developing new<br />
services has definitely<br />
been my highlight.”<br />
For Doug from<br />
Inverness, a simple<br />
moment stands out:<br />
“I feel quite fortunate<br />
that I’ve been involved<br />
in the transition from<br />
a hospital situation to<br />
seeing people moving<br />
into their own homes<br />
and to see how they<br />
have enjoyed their own<br />
homes. I can give one<br />
example, very early,<br />
when people were in<br />
their own homes some<br />
post came through<br />
a service user’s door<br />
and that person picked<br />
up the mail and just<br />
looked at it for quite<br />
a long time. I suddenly<br />
thought that person<br />
never had post put<br />
through their own<br />
door before, that was<br />
very humbling.”<br />
Paul Hart,<br />
Principal Officer for<br />
Special Projects:<br />
A camping trip<br />
organised as part of<br />
our Getting Together<br />
project a few years<br />
ago was memorable.<br />
Sitting up late around<br />
the campfire, telling<br />
stories and waking up<br />
in the morning under<br />
the stars. The reaction<br />
from one camper<br />
Robert when he woke<br />
up will stay with me<br />
for a long time. He<br />
was very excited while<br />
at the same time<br />
completely bemused.<br />
He started laughing<br />
and this spread to<br />
others around the<br />
camp and it was<br />
a very jolly start<br />
to the day.<br />
Manager Julie Ritchie<br />
from Aberdeen:<br />
“I just wanted to do<br />
something good with<br />
my life, I think it’s<br />
a very rewarding job,<br />
helping people and<br />
making their life<br />
a little bit better, it’s<br />
very rewarding.”<br />
Gillian McGrory<br />
manager of our<br />
children’s respite<br />
service in Glasgow<br />
values the involvement<br />
she has with parents<br />
and carers:<br />
“We’ve actually<br />
got a really good<br />
relationship with<br />
the parents of the<br />
young people who<br />
use this service.<br />
Parents are able to<br />
come in whenever<br />
they like.”<br />
<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />
11
2000 – First supported living services in Aberdeen and Finglassie. New respite service starts in Dundee. // 2001 – Supported living services start in Inverness. //<br />
Working with families and carers<br />
We work with disabled people of all ages<br />
and their families. Our family advisory service<br />
responds to families’ requests across <strong>Scotland</strong><br />
and our Parent Enabler Project (PEP) supports<br />
families with younger children in the NHS<br />
Greater Glasgow and Clyde area.<br />
Chloe<br />
Since her play sessions from our Parent Enabler<br />
Project when she was 3 years old, Chloe and her<br />
parents, Lorraine and Pete, have received support<br />
from <strong>Sense</strong> <strong>Scotland</strong> in a range of different ways.<br />
Initial play sessions were a crucial way for our<br />
PEP team to connect with Chloe and find out what<br />
she enjoyed doing. Sensory stories and messy<br />
play, helped Chloe to play and learn.<br />
“We looked at eye-pointing, to encourage<br />
Chloe to make some choices in her play, around<br />
that time.” explained PEP advisory worker<br />
Rachael Tonge.<br />
“She does that very well now!” Mum Lorraine<br />
added: “You can tell if she wants to do it, or if<br />
she doesn’t, very clearly.”<br />
PEP also worked early on through physiotherapy<br />
which involved lots of actions and movement.<br />
“At the time, Chloe was not quite as able to sit<br />
as she is now…and supporting her, it was difficult.<br />
It was good to have the extra pair of hands - and<br />
the extra person to sing!”<br />
Rachael also helped through the process of<br />
choosing schools for Chloe and passed on useful<br />
information and contacts for the family.<br />
Lorraine and Chloe are especially fond of the<br />
regular parties which <strong>Sense</strong> <strong>Scotland</strong> throw<br />
for children and young people.<br />
“We love the Christmas parties because the<br />
interactive story is great.”<br />
And as Lorraine noticed, a sensory story at our<br />
recent LUV Fete event, had a real impact on Chloe:<br />
“She loved that. We spent ages afterwards talking<br />
to the storyteller because Chloe had been so<br />
animated. She had actually been trying to pick<br />
the beads up out of the jewellery box… We’ve still<br />
got the two pink hearts that Claire (the storyteller)<br />
gave us at the end of the story.”<br />
Our Out and About resource was the next area<br />
of support within Children and Families services,<br />
which gave Chloe a range of new experiences<br />
and had some unexpected benefits for mum:<br />
“She loves the sensory room!”<br />
12 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>
2002 – Parent Enabler Project and the Out and About services introduced to support children and families in the Greater Glasgow area.<br />
10th charity shop opens in St Andrews. Deafblind Studies diploma course introduced. //<br />
“She clearly enjoyed it,” added Pete. “…because<br />
she was still wanting to tell me all about it when<br />
she got home. She was just gabbling away,<br />
because she can’t make a lot of proper words;<br />
but as soon as she came in, I’d say ‘ how was<br />
it today?’ and she was away. And you can see<br />
by her eyes…and I’d think ‘oh yeah!’ You were<br />
loving it!”<br />
So what kind of difference has having input<br />
from an organisation like <strong>Sense</strong> <strong>Scotland</strong> meant<br />
to the family? “Support,” Pete said, “T<strong>here</strong> was<br />
somebody t<strong>here</strong> that you could fall back on and<br />
say ‘help!’ ”<br />
For Lorraine it was having someone to talk to.<br />
“… in the early days when you (PEP) were coming<br />
out to the house, I could sit and gab away.<br />
It’s just having someone t<strong>here</strong>!”<br />
“She thoroughly enjoyed it. I was actually sitting<br />
in the families’ room, with my feet up on the<br />
couch, with a book, a cup of coffee and<br />
a sandwich. I wouldn’t do that at home.<br />
And Chloe didn’t even look for me, after the first<br />
couple of weeks. She was quite happy being<br />
involved with the other children.”<br />
“Our experience with <strong>Sense</strong> <strong>Scotland</strong><br />
is that people can see beyond<br />
that and say ‘what’s possible?’ – not<br />
what’s impossible,” Pete added.<br />
“That’s a big difference.”<br />
My <strong>Sense</strong> <strong>Scotland</strong>:<br />
Pat Brown<br />
Family Adviser<br />
How long have you worked with <strong>Sense</strong> <strong>Scotland</strong>?<br />
I started working <strong>here</strong> about 15 years ago.<br />
What does your job involve?<br />
I am the family adviser for the west of <strong>Scotland</strong>,<br />
which includes Inverness, and beyond. We are<br />
the first point of contact; we meet the family<br />
and begin to find out a bit more about their son<br />
or daughter. We will liaise with social work if<br />
a direct service will be needed.<br />
What’s the most challenging part of your job?<br />
Dealing with the number of referrals that we<br />
receive. Since we opened TouchBase in 2007,<br />
t<strong>here</strong> has been a huge influx of parents, carers<br />
and professionals that want to come and visit.<br />
What has been the most rewarding moment<br />
in your time with <strong>Sense</strong> <strong>Scotland</strong>?<br />
It has been a privilege to have met so many<br />
families in the last 15 years, those younger<br />
children who are now in our adult services.<br />
I have worked with some brilliant colleagues<br />
and some who helped me with my Diploma<br />
in Deafblind studies which I gained this year.<br />
Moving to TouchBase has been brilliant.<br />
<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />
13
2003 - New supported living services in Forfar, Saltcoats, Glasgow, Ellon and Aberdeen. Healthy Living for Deafblind People project starts.<br />
Supporting people through transitions<br />
T<strong>here</strong> are many transitions we go through in<br />
life and <strong>Sense</strong> <strong>Scotland</strong> is experienced in<br />
supporting children and adults of all ages<br />
through these life changes.<br />
Our family advisers and support staff offer<br />
sensitive and practical support for transition into<br />
our services for the first time. We recognise that<br />
it is a huge transition to move between services,<br />
whether it is to day support in the community<br />
or for the move into a new home.<br />
Gavin leads the way<br />
Gavin McCulloch, who has just moved into his<br />
own home for the first time in Inverness, recently<br />
became an Assistant Walk Leader. Working<br />
alongside James Finlayson, our Highlands walk<br />
leader, the project is funded jointly funded by<br />
Paths to Health and Scottish Natural Heritage.<br />
Gavin is completing his John Muir Award w<strong>here</strong><br />
he has to discover, explore, conserve and share<br />
a wild place. As assistant walk leader he takes<br />
register at the weekly group walk, leading walks<br />
he is familiar with, putting up the tent at the lunch<br />
spot, choosing w<strong>here</strong> the next walk will be and<br />
reminding people about the upcoming walks.<br />
Gavin said:, “I really enjoy the walk leader job<br />
because I like being outside and walking.”<br />
He is also delighted with his move from<br />
a long-stay hospital into his own home:<br />
“The biggest difference is more freedom I guess,<br />
more activities, which is good, being able to go<br />
out and get the shopping, choose the stuff<br />
I want to buy. My favourite thing about having my<br />
own home is being able to live in the community.”<br />
Gavin is also clear about what he gets from<br />
support staff:<br />
“The things I do with them, the help<br />
they give me, the way they’re willing<br />
to take me, out is good.”<br />
New flats for Glasgow<br />
Building work is almost complete on two sites in<br />
Glasgow’s Southside. These will provide housing<br />
support services for 12 adults. Funding for the<br />
development has come from Glasgow City<br />
Council and Southside Housing Association.<br />
John Roxburgh, <strong>Sense</strong> <strong>Scotland</strong>’s Regional<br />
Manager for services in the West, said:<br />
“The 12 deafblind and disabled people<br />
who move t<strong>here</strong> during the summer of<br />
<strong>2010</strong> will enjoy a wonderful standard of<br />
living, as well as greater independence.”<br />
14 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>
2004 – <strong>Sense</strong> <strong>Scotland</strong> purchase Glasgow building to transform into a new head office and resource base for disabled people and their families.<br />
Expression Unlimited, an international theatre piece by deafblind people premieres in <strong>Scotland</strong>. //<br />
Artist from Helen Keller’s home State wins award<br />
The winners of the Helen Keller International<br />
Award main and under-16 prizes were revealed<br />
at a ceremony in the Glasgow Royal Concert Hall.<br />
The £1500 main prize went to Rich Curtis, from<br />
Alabama, USA (he is from the same Shoals area<br />
w<strong>here</strong> Dr Helen Keller was born). His work titled<br />
‘Sight Unseen’, comprises 20 textured paintings<br />
on paper, and was collaboration with sensory<br />
impaired people. The £100 cheque for the under<br />
16 prize went to ‘Medusa’ a large sculptural piece<br />
made from recycled material and found objects,<br />
by Shawlands Academy in collaboration with<br />
Hazelwood School (a school for children and<br />
young people with sensory impairment).<br />
Both schools are based in Glasgow.<br />
<strong>Sense</strong> <strong>Scotland</strong> Patron, the Duchess of<br />
Sutherland, made presentations. Although Rich<br />
was unable to attend the awards he was keen<br />
to share the thoughts behind his work:<br />
“I was happy to participate in the<br />
first place. But, to win the competition<br />
among such wonderful fellow artists<br />
makes me very pleased. I am honored.”<br />
“Once I researched a little about <strong>Sense</strong> <strong>Scotland</strong>,<br />
and found what an incredible organisation they<br />
are, I was compelled to enter the competition.<br />
After some modifications, I developed this<br />
exercise of collecting sound-response drawings.<br />
Participation and involvement<br />
We have just introduced a new booklet on<br />
participation and involvement aimed specifically<br />
at the people who use our services. We hope this<br />
encourages more people to get involved in our<br />
work and the services we operate.<br />
<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />
15
2005 – New respite services open in Dundee and South Lanarkshire.<br />
Katie and Holly<br />
Katie and Holly were three at Christmas but<br />
when they were born t<strong>here</strong> were severe<br />
complications. Over those first few months<br />
parents Clare and Derek were told that Katie<br />
had quadriplegic cerebral palsy and Bulbar palsy.<br />
This means she cannot speak or swallow so she<br />
is tube-fed. If she is sick she doesn’t make any<br />
noise and she has to be watched 24 hours<br />
a day. She can easily choke so she has to sleep<br />
propped up and mum and dad have to take<br />
turns to watch her throughout the night.<br />
Clare told us, “Holly loves her sister and is so<br />
gentle with her. As Katie’s condition is life limiting<br />
she needs 24 hour care which takes lots of our<br />
attention. But it is important to us that Holly<br />
doesn’t feel left out. That is why Holly loves<br />
the <strong>Sense</strong> <strong>Scotland</strong> parties, as <strong>Sense</strong> <strong>Scotland</strong><br />
staff make her feel special too.”<br />
“We first heard of <strong>Sense</strong> <strong>Scotland</strong><br />
through our own internet search.<br />
Until then we had found it really<br />
difficult to access any practical help<br />
with Katie’s care.”<br />
“Gillian from <strong>Sense</strong> <strong>Scotland</strong> (Parent Enabler<br />
Project) came to see us and started to teach<br />
Katie (and the rest of the family) Makaton sign<br />
language. She picked it up so quickly and blows<br />
kisses to say “Goodbye” when Gillian leaves.<br />
Katie often has to go to hospital, 10 miles away,<br />
sometimes up to three times a week. But as<br />
the twins’ dad is at work and I don’t drive,<br />
Gillian comes to the rescue. She picks us up<br />
and looks after Holly while Katie and I are with<br />
the doctors. We really do appreciate all the help<br />
and support <strong>Sense</strong> <strong>Scotland</strong> provide.”<br />
Exhibition reflects life in<br />
Scottish long-stay hospitals<br />
During the winter a<br />
Heritage Lottery funded<br />
exhibition was held in<br />
the Highlands which<br />
explored the lives of<br />
people who stayed in<br />
long-stay hospitals.<br />
Through a storytelling<br />
project, the ‘In Our<br />
Own Voices: Leaving<br />
New Craigs’ exhibition<br />
explored social histories<br />
of people leaving<br />
Craig Phadraig, Craig<br />
Dunain, and New Craigs<br />
Hospitals in Inverness.<br />
Incorporating artworks<br />
and an interactive<br />
journey through<br />
aspects of life in<br />
long-stay hospital, the<br />
exhibition honoured<br />
the lives and work of<br />
staff and residents and<br />
recreated aspects of<br />
hospital life, including<br />
a bedroom. Project<br />
partners were Highland<br />
Council, NHS Highland<br />
and the Centre for<br />
Health Science.<br />
“The people I worked<br />
with as part of this<br />
project have been on<br />
an amazing journey,<br />
which I hope the<br />
exhibition captured,”<br />
explained storyteller<br />
and exhibition curator<br />
Karrie Marshall. “The<br />
Craig hospitals played<br />
a major role in learning<br />
disability care for over<br />
140 years, so we have<br />
seen the ending of an<br />
important era as people<br />
move into their own<br />
homes. The project<br />
felt like a crucial way<br />
of supporting people<br />
to reflect on their lives<br />
together, as a new<br />
chapter in their<br />
lives began.”<br />
Routines...a former<br />
resident commented:<br />
“I had a bath every<br />
Tuesday. I still do, but<br />
I have a shower now<br />
for the other days.<br />
Tuesday is a good day<br />
for a bath.”<br />
Caring relationships...<br />
a former staff member<br />
remembered: “T<strong>here</strong><br />
was one particular<br />
boy, who I have fond<br />
memories of… I used<br />
to carry him around in<br />
my arms… keep him<br />
happy… I’ve seen him<br />
grow up, a young man.”<br />
16 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>
Creating exciting opportunities<br />
2006 – Overall funding for the new head office/family resource, called TouchBase, exceeds £1.8m. //<br />
Our arts and wellbeing team have practitioners<br />
in visual arts, music, drama, outdoor activities<br />
and crafts. They encourage creative approaches<br />
to enable everyone, regardless, of their support<br />
needs, to enjoy art sessions, performances,<br />
exhibitions and a range of outdoor pursuits.<br />
Beach Days<br />
Since the summer of <strong>2009</strong> services in Fife have<br />
been involved in a variety of Arts and Outdoor<br />
activities as part of a year-long funded healthy<br />
living programme based at the Fife Sensory<br />
Impairment Centre.<br />
The project is developing activities such as<br />
music, art, rebound therapy, friendship groups<br />
and outdoor activities. This is an excellent chance<br />
for the people who use our services in more<br />
rural areas, to participate as part of a wider<br />
social group.<br />
Our beach day at West Sands in St Andrews saw<br />
one of the biggest turn outs for an event, with<br />
around 50 service users from Fife, Dundee, Forfar<br />
and Aberdeen join arts and wellbeing staff in<br />
a music group session on the grassy bank by the<br />
sea. TouchBase Artist in Residence, John Shankie,<br />
shared kite-making tips and following a BBQ feast<br />
t<strong>here</strong> were music sessions, music jams led by<br />
Murray and Ewen Farquharson and a walking<br />
and art group which beachcombed for items<br />
to make memory sticks.<br />
Francis Murray from Dundee, finished the day<br />
singing and performing with a backing band<br />
of guitars and percussion. Arts and Wellbeing<br />
Manager, Kiran Singh, said: “Speaking to service<br />
users and staff who attended, it was obvious the<br />
event was very well received. People had choices<br />
to participate and interact with one another<br />
through diverse and creative activities.”<br />
Information and Communication Technology<br />
Technology can be an excellent way of increasing<br />
independence, communication and participation.<br />
At a family event in <strong>2009</strong> we explored:<br />
• Low tech, single message devices (BigMack,<br />
Chipper) which, are useful for incorporating<br />
regular messages such as “Good morning”,<br />
“Turn the page”.<br />
• Switch access devices to control toys and other<br />
equipment that can make life easier e.g. a switch<br />
adapted camera, switch accessible MP3 player,<br />
switch accessible videos.<br />
• Cheap (usually free) accessible books in<br />
alternative formats such as audio format for MP3<br />
player, PDF documents that can speak.<br />
• Cheap video cameras that service users can use<br />
to record ordinary events in their lives.<br />
<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />
17
2007 – Huge service development in and around Inverness to support 37 people moving from a long stay hospital into their own homes.<br />
Terry Wogan opens the Children in Need sponsored child and family resource at TouchBase.<br />
Summer Fridays at TouchBase<br />
During July and August t<strong>here</strong> was something<br />
for everyone each Friday at TouchBase over lunch.<br />
A great success not just for the performers but<br />
for the many people who got involved and joined<br />
in with these sessions.<br />
The events included ‘Summer Grooving’ with<br />
Ghanaian rhythms and songs classical Indian<br />
dance performances, workshops on hand<br />
gestures, mime and use of instruments, creating<br />
a Tussie Mussie and scented handmade paper.<br />
The final piece titled ‘Passages’, was a musical<br />
performance of improvised sound by Amir<br />
Aznefzadeh, Sarah Dietch and an ensemble<br />
of performers including Harry Mackie.<br />
Service users take on canoe challenge<br />
Service users from across the country took part<br />
in a canoe day on Loch Tay and for most it was<br />
the first time they had ever tried canoeing and<br />
it was a great success. Those who participated<br />
ended up spending a good hour out on the Loch<br />
investigating the shoreline and racing each other<br />
across the bay. The day was also a fundraiser,<br />
with participants raising £2,000.<br />
“Thanks to everyone who contributed to this<br />
fantastic event. It’s always amazing to witness<br />
the way the people we support embrace<br />
new opportunities like the ones offered at<br />
Abriachan,” said Gillian Morbey.<br />
Service User Conference 5th anniversary<br />
The Service User Consultation Group’s five year<br />
anniversary was celebrated at their conference<br />
in TouchBase last autumn. The conference was<br />
said to have a great feel about it and featured<br />
exhibitors including Guide Dogs, Energy Saving<br />
Trust, and The Holiday File. Presentations were<br />
given by group members, other service users,<br />
and external speakers. The highpoint as usual<br />
was the evening party, with the TouchBase<br />
AllStars and the usual mix of karaoke and<br />
traditional music. The weekend ended with<br />
a stroll in Pollok Park.<br />
Conference comments: “I’ve never seen service<br />
users having such a good time”. “I was amazed<br />
at what service users were doing, most staff<br />
wouldn’t stand up at a conference and talk like<br />
that”. “The party was really good, what talent!<br />
And the accordion music was enjoyed so much.”<br />
River City’s Libby launches exhibition<br />
Our ‘Inspired’ exhibition, shown at TouchBase,<br />
then later at BBC <strong>Scotland</strong>’s Pacific Quay building,<br />
featured artwork by children supported by our<br />
children and families’ services. Using themes<br />
based on timelines and seasons throughout<br />
the year, the artists created paintings, drawings<br />
and sculptures exploring identity, expression,<br />
movement and our place in the world. River City<br />
actress Libby McArthur made sure the launch at<br />
TouchBase was a lot of fun, spending plenty of<br />
time with families after her launch.<br />
Isabel McLachlan, Head of Children and Family<br />
Services said: “Inspired has proven to be an<br />
inspirational journey for those involved. The young<br />
people have invested a lot of creativity into their<br />
work and are very proud to see it displayed.<br />
We’re also very grateful to Libby McArthur for<br />
taking the time to launch the exhibition.”<br />
18 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>
2008 - HRH The Princess Royal officially opens TouchBase. <strong>Sense</strong> <strong>Scotland</strong> hosts the 4th international Listen 2 Me Conference for families of deafblind children.<br />
New family support service for North Lanarkshire. //<br />
PARK performance wows audiences<br />
On Friday the 9 October <strong>2009</strong>, a group of young<br />
disabled performers premiered their theatre piece<br />
`PARK’. Developed by the cast over the course<br />
of a year and produced by <strong>Sense</strong> <strong>Scotland</strong> in<br />
association with Dance Ihayami, the show<br />
focused on a day in the life of a public park.<br />
The work was directed by Jon Reid and Karen<br />
Watts, produced by Ailill Finlayson and was only<br />
possible with the hard work of dedicated support<br />
staff. Through non- verbal movement, gesture,<br />
space and proximity, the performers worked<br />
together to produce a shared story. The audience<br />
loved it and when the lights dimmed at the end<br />
of the sold-out performance, the proud actors<br />
were given an ecstatic response.<br />
The piece was also previewed as part of the<br />
Edinburgh Festival. The cast were:<br />
Eilidh Shortread, Stephanie McCann,<br />
Ghazalla Akram, Anne Neeson, Robert McGurgan,<br />
Ian Johnstone, Jamie Ahmed, Amir Asnafzadeh<br />
and Gavin McCulloch. Ailill Finlayson, from<br />
Edinburgh, was the producer of PARK.<br />
These shows are supported by the Scottish Arts<br />
Council and the Lottery Funded Awards For All.<br />
Harry’s sessions lead to performance<br />
Harry Mackie, who is 13, began taster music<br />
sessions with music tutor David McCluskey at<br />
TouchBase in June <strong>2009</strong>. Harry’s wide taste<br />
in music and a project based on the theme of<br />
song writing lead him to explore the 1970s John<br />
Denver song, ‘Country Roads’. Following regular<br />
music sessions, he was able to arrange his own<br />
interpretation the country classic, through shared<br />
singing and guitar activities.<br />
Harry said he would like to perform his work before<br />
a live audience with backing band, ‘The TouchBase<br />
All-stars’ as part of Summer Fridays. Harry’s mum<br />
wrote about the project:<br />
“Harry has had a fantastic experience during his<br />
sessions at <strong>Sense</strong> <strong>Scotland</strong>. Since not being at<br />
school Harry misses out on music, which he loves.<br />
He clearly enjoyed working closely with David<br />
and benefited enormously by having a real sense<br />
of accomplishment, especially as t<strong>here</strong> was the<br />
end product with the Passages concert. Harry has<br />
found an enthusiasm and real sense of purpose<br />
through his music lessons and has thoroughly<br />
enjoyed his relationship with David.”<br />
Rain can’t stop Highland Barbeque<br />
Despite heavy rain t<strong>here</strong> was a great turnout in<br />
late July to the gathering organised by Highland<br />
staff for service users at Abriachan Forest Trust.<br />
From cycling through the muddy tracks, to<br />
guided treks led by our assistant walk leader,<br />
Gavin, t<strong>here</strong> was a great chance for everyone<br />
to engage with the wonderful setting.<br />
T<strong>here</strong> was also a great gathering in the Forest<br />
School building for a drumming session, followed<br />
by a rousing sing-along. T<strong>here</strong> followed a short<br />
presentation of artwork by Gavin to Paths For All,<br />
one of the funders of the walking programme<br />
in Inverness. The day ended with a muchappreciated<br />
barbeque provided by support staff.<br />
<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />
19
<strong>2009</strong> - Life Histories story telling project to supports people leaving a long-stay hospital in Inverness, culminates in a major exhibition and archive resource.<br />
Exploring the world together through visual arts<br />
Visual arts tutors Audrey O’Brien and Mhari Baxter<br />
have been collaborating on two group projects<br />
for adults and children. Participants become<br />
explorers, collecting and making objects as well<br />
as having a whole range of new experiences.<br />
Using signifiers to encourage participation, the<br />
‘Little Light Adventures’ project with children<br />
collected found objects to make kaleidoscopes,<br />
mobiles, jars of sweetie wrappers and shiny<br />
sticks. The children then explored light through<br />
objects and reflective papers. A tactile stories<br />
project with Paul, Julia, Laura, Steven and Jamie<br />
incorporated objects, instruments and storytelling<br />
along with each participant’s likes and dislikes.<br />
These elements were used to build a ‘path’ which<br />
incorporated a range of tactile experiences for<br />
the artists.<br />
“I enjoyed sharing the excitement<br />
of explorative approach and with<br />
an open-ended session the most<br />
magical results happen, for example<br />
David found a red silver box and put<br />
a small torch inside and light beamed<br />
out of the box,” said Audrey.<br />
Looking back at the work of the projects, Mhari<br />
said: “What struck me as special was sharing the<br />
practice of other artists, finding ways to interpret<br />
them through signifiers encouraging the inner<br />
artist of the young people involved. For example<br />
in one session it was great that Joanna lifted her<br />
head and smiled exploring the light when looking<br />
through her kaleidoscope.”<br />
Policy Group contributes to Scottish Government consultations<br />
We responded to a wide range<br />
of consultations during the<br />
year, including:<br />
• Affordable housing investment<br />
• Paediatric audiology<br />
• Improving access to taxis<br />
• The way ahead (British Medical<br />
Association consultation on<br />
general practitioner services)<br />
• Response to the Scottish<br />
Parliament Local Government<br />
Committee on tendering<br />
• End of life treatment<br />
and care: good practice in<br />
decision-making, General<br />
Medical Council<br />
• Housing Bill<br />
• Public Services Reform Bill<br />
• Better diabetes care<br />
• Accountant of Bankruptcy<br />
consultation on changes to<br />
bankruptcy arrangements:<br />
effect on disabled people and<br />
families<br />
• Right to Control<br />
• Equality Bill: public sector duty<br />
• <strong>Review</strong> of television access<br />
services, Ofcom<br />
• Mental Health Care and<br />
Treatment Act review<br />
(named person)<br />
• Code of Practice on ASL Act<br />
• Housing benefit<br />
• Scottish Autism Bill<br />
• Protection of Vulnerable<br />
Groups: Automatic listing,<br />
specified criteria, relevant<br />
offences, unlawful requests for<br />
scheme records, membership<br />
fees, prescribed services,<br />
modification of regulated work<br />
with adults, modification of<br />
regulated work with children<br />
• Partnership working<br />
between allied health<br />
professions and education<br />
20 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>
Thank yous<br />
<strong>2010</strong> – 25th Anniversary of <strong>Sense</strong> <strong>Scotland</strong>. _25 Year Timeline //<br />
Trusts and Foundations<br />
A M Pilkington’s Charitable Trust<br />
Aberbrothock Charitable Trust<br />
Agnes C Montgomerie<br />
Charitable Trust<br />
Alexander Moncur’s Trust<br />
Alexander Torrance<br />
Cathro Bequest<br />
Andrew Paton’s Charitable Trust<br />
Bellahouston Bequest Fund<br />
Biggart Baillie - The RKT Harris<br />
Charitable Trust<br />
Callendar Charitable Trust<br />
Cares 4 Kids<br />
Cash for Kids - Clyde Action<br />
Douglas Hay Trust -<br />
Barstow & Millar<br />
Dr Guthrie’s Association<br />
Harold Adams Charitable Trust<br />
Heritage Lottery Fund<br />
IBB Trust<br />
Jennie S Gordon Memorial<br />
Foundation<br />
John & James Napier’s Trust<br />
Lamb, Middleton & MacGregor<br />
Bequest Funds<br />
Lintel Trust<br />
Low & Bonar Charitable Trust<br />
Margaret J Stephen’s<br />
Charitable Trust<br />
MEB Charitable Trust<br />
Miss E C Hendry’s<br />
Charitable Trust<br />
Mrs Ma Lascelles’ Charitable Trust<br />
Netherdale Trust<br />
Northwood Charitable Trust<br />
Paths to Health<br />
PF Charitable Trust<br />
Ponton House Trust<br />
R J Larg Family Trust<br />
R S Hayward Trust<br />
Scottish Natural Heritage<br />
Sir James Miller EdinburghTrust<br />
Strathclyde Police<br />
Benevolent Fund<br />
Tay Charitable Trust<br />
The Adamson Trust<br />
The Andrew & Mary Elisabeth<br />
Little Charitable Trust<br />
The Ann Jane Green Trust<br />
The Annie Jack Memorial Trust<br />
The Appletree Trust<br />
The Bethesda Trust<br />
The Big Lottery Fund<br />
The Biggart Trust<br />
The Dinning Charitable Trust<br />
The Ecton Charitable Trust<br />
The Gemmell Bequest Fund<br />
The Hugh Fraser Foundation<br />
The James & Jessie Shaw<br />
Charitable Trust<br />
The James Wood Bequest Fund<br />
The John M Archer<br />
Charitable Trust<br />
The JTH Charitable Trust<br />
The Leng Charitable Trust<br />
The Maidenwell Charitable Trust<br />
The Margaret Elizabeth &<br />
Alexander Brownlie M.C.<br />
The Margaret Murdoch<br />
Charitable Trust<br />
The Martin Connell CharitableTrust<br />
The Mary Andrew Charitable Trust<br />
The Miller Foundation<br />
The Paul Charitable Trust<br />
The Peter Brough Bequest Fund<br />
The R S Macdonald<br />
Charitable Trust<br />
The Rozelle Trust<br />
The Russell Trust<br />
The Scottish Arts Council<br />
The St Katharine’s Fund<br />
The Sylvia Aitken CharitableTrust<br />
The Trinafour Trust<br />
The W M Mann Foundation<br />
The W.M.Sword Charitable Trust<br />
The Webmart Charitable Trust<br />
The William S. Phillips’ Fund<br />
The Woodford<br />
Foundation <strong>Scotland</strong><br />
W A Cargill Fund<br />
Widowers’ Children’s Home Trust<br />
William Grant & Sons Ltd<br />
Williamina Mclaren Trust<br />
Organisations and<br />
Companies<br />
Abbey Community Partnership<br />
Borders Friends Group<br />
Broughty Ferry & District<br />
Round Table<br />
BT South of <strong>Scotland</strong><br />
Crookston Bowling Club<br />
Eastwood Golf Club<br />
Glasgow City Council -<br />
Arts Development<br />
Glasgow Fundraising Group<br />
Glenerrol Limited<br />
Hospital Amublance Car<br />
Service Ltd<br />
Incas Global Europe Ltd<br />
La’Cor Hairdressers<br />
Scot West Credit Union Ltd<br />
Scottish and Southern Energy<br />
Talteg Limited<br />
The Herald Time Group<br />
The Military & Hospitaller Order<br />
of St Lazarus of Jerusalem<br />
Vector Aerospace<br />
Financial summary: Income and expenditure account for the year ended 31 March <strong>2010</strong>.<br />
Income £<br />
Expenditure:<br />
£<br />
Fees and Allowances 18,269,769<br />
Grants Receivable 486,892<br />
Donations and Gifts 1,079,662<br />
Legacies Receivable 162,426<br />
Committed Giving 767,056<br />
Income from Shops 875,506<br />
Income from TouchBase 117,523<br />
Interest Receivable 4,169<br />
Total Income (Revenue & Capital) 21,763,004<br />
Residential and Community Services 17,425,014<br />
Individual and Family Services 285,243<br />
Health Education 46,216<br />
Policy, Development and Resources 879,009<br />
Fundraising Cost & publicity? 333,127<br />
Committed Giving Cost 537,969<br />
Shop Expenditure 833,229<br />
TouchBase Business Centre 53,123<br />
Governance Cost 17,640<br />
Total Expenditure 20,410,571<br />
Operating surplus (Total Funds) 1,352,433<br />
Relating to Restricted and<br />
Designated Funds<br />
787,146<br />
Net Income to General Funds 565,287<br />
<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />
21
To find out more about <strong>Sense</strong> <strong>Scotland</strong>:<br />
email: info@sensescotland.org.uk<br />
or visit: www.sensescotland.org.uk<br />
Head Office, West Region<br />
and Children and Family<br />
Services contact:<br />
TouchBase<br />
<strong>Sense</strong> <strong>Scotland</strong><br />
43 Middlesex Street<br />
Glasgow<br />
G41 1EE<br />
Phone: 0141 429 0294<br />
Fax: 0141 429 0295<br />
Text: 0141 418 7170<br />
<strong>Sense</strong> <strong>Scotland</strong><br />
North East Region<br />
The Gatehouse<br />
Quarry Road<br />
Northfield Industrial Estate<br />
Aberdeen<br />
AB16 5UU<br />
Phone: 01224 695510<br />
Fax: 01224 789945<br />
<strong>Sense</strong> <strong>Scotland</strong><br />
Highland Region<br />
Robertson House<br />
Shore Street<br />
Inverness<br />
IV1 1NF<br />
Phone: 01463 709 555<br />
Fax: 01463 718 229<br />
<strong>Sense</strong> <strong>Scotland</strong><br />
East Region<br />
11 Edison House<br />
Fullerton Road<br />
Queensway Industrial Estate<br />
Glenrothes<br />
KY7 5QR<br />
Phone/text: 01592 752005<br />
Fax: 01592 751121<br />
Designed by strutdesign.co.uk<br />
Photography by <strong>Sense</strong> <strong>Scotland</strong>.<br />
This publication is available in various<br />
formats on request.<br />
<strong>Sense</strong> <strong>Scotland</strong> is a company limited by<br />
guarantee, registered in <strong>Scotland</strong> Number<br />
147570, and a registered Scottish charity,<br />
Number SC022097.<br />
Patron: The Duchess of Sutherland.<br />
Honorary Patron: Mary, Dowager,<br />
Countess of Strathmore LLD DL.<br />
Publication number ISSN 1358-5274