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<strong>Annual</strong> <strong>Review</strong> | 09/10<br />

Working with deafblind<br />

and disabled children and<br />

adults all over <strong>Scotland</strong><br />

Supporting people:<br />

• to live independently in their own homes<br />

• through day support services<br />

• with residential short breaks and respite<br />

• through arts, music, drama and outdoor activities<br />

• with specialist advice, information and resources


25 Year Timeline_<br />

<strong>Sense</strong> <strong>Scotland</strong> is 25 years old<br />

In 1985 <strong>Sense</strong> <strong>Scotland</strong> was formalised as a charity. This year’s annual review will look at the past<br />

year in the organisation while reflecting on the past 25 years through the favourite memories of<br />

families, staff and the people who use our services. <strong>Sense</strong> <strong>Scotland</strong> works with children and adults<br />

who have communication support needs because of deafblindness, sensory impairment, learning<br />

or physical disability. We lead the field in communication and innovative support services for<br />

people who are marginalised because of challenging behaviour, health care requirements and the<br />

complexity of their support needs. Our services are designed to provide choice and continuity across<br />

age groups and we work closely with families and colleagues from health, education and social work.<br />

More than 1,000 children, adults and their families benefit in some way from an involvement with<br />

<strong>Sense</strong> <strong>Scotland</strong>. In April <strong>2010</strong> we had over 1200 staff. We are providing services to people from<br />

21 Scottish local authorities.<br />

Contents:<br />

01. Chairman<br />

02. Chief Executive<br />

03. Supporting people<br />

04. Connecting with donors<br />

06. Rural communities<br />

08. 25 Years on<br />

Our current strategic<br />

priorities are to:<br />

• support and develop<br />

positive health for service<br />

users and staff.<br />

• actively promote a culture<br />

of high standards and<br />

quality.<br />

• support and promote<br />

service users and families to<br />

drive forward change.<br />

• develop opportunities<br />

for service users, families,<br />

and staff.<br />

• promote an efficient<br />

and effective organisation<br />

at all levels.<br />

10. Overbridge<br />

11. Highlights<br />

12. Working with families<br />

14. Supporting transitions<br />

17. Creating opportunities<br />

21. Thank yous /<br />

Financial summary<br />

Services:<br />

• family advisory services<br />

• community living with support<br />

for adults<br />

• support services for adults<br />

• support services for children<br />

• residential short breaks for<br />

adults (Dundee and South<br />

Lanarkshire) and for children<br />

in Greater Glasgow and<br />

Argyll and Bute<br />

• art development work for<br />

children and adults<br />

• outdoor education for<br />

children and adults<br />

• practice skills training for<br />

professionals<br />

• assessments, representation,<br />

consultation and policy<br />

development<br />

• general and health information<br />

• enquiry services<br />

Trustees / Areas of interest:<br />

Roy Cox Chair<br />

Neil Farquharson Vice Chair<br />

Douglas Smart Treasurer<br />

David Newton Legal<br />

Norman Ritchie Business<br />

Duncan Tannahill Business<br />

and Fundraising<br />

Marion McArdle Family Issues<br />

Isobel Allan Family Issues<br />

and Public Policy<br />

Usman Rehman Family Issues<br />

and Health<br />

National Service User<br />

Consultation Group:<br />

Steph Clark<br />

Ewen Farquharson<br />

Murray Farquharson<br />

Ian Johnston<br />

Ailill Finlayson<br />

Yvonne Larkin<br />

John Ross<br />

Lewis Scott<br />

Peter Wilson<br />

Highland Consultation Group:<br />

Laura Boreland<br />

Gavin McCulloch<br />

Alex Gemmell<br />

Johnny Cousins<br />

Farquhar Keenan<br />

Gail Richardson<br />

David McConnachie<br />

Lewis Anderson<br />

Michael Fraser<br />

John Mackay<br />

Alex Smith


1985 – <strong>Sense</strong> <strong>Scotland</strong> becomes a formal voluntary organisation and appoints its first member of staff, Gillian Morbey. //<br />

Looking back... looking forward<br />

Roy Cox, Chairman<br />

We are celebrating 25 years of <strong>Sense</strong> <strong>Scotland</strong> but<br />

actually the organisation’s roots go back much<br />

further. I was reflecting on the hard work of the<br />

first group of parents who began meeting in the<br />

mid-1970s. Sadly some of those dedicated parents<br />

like Dr John Tulloch and Danny Nimmo are no<br />

longer with us but still their legacy remains with<br />

us today. Over the period we have also lost some<br />

of our children, staff and trustees, all people that<br />

have made a difference and contributed to what<br />

<strong>Sense</strong> <strong>Scotland</strong> is today.<br />

I was privileged to attend our first staff and<br />

volunteer awards ceremony this year. At this<br />

wonderful event I was reminded of the incredible<br />

dedication of volunteers who have served the<br />

organisation for over twenty years, really from the<br />

beginning. I was also delighted to see the hard<br />

work of our younger staff recognised. While the<br />

history of our organisation is important, it’s equally<br />

important that our younger staff are given the<br />

space to grow and make their own histories.<br />

So, 25 years on we have undoubtedly made<br />

mistakes, I’m sure we could have done things<br />

differently but I also know that we have achieved<br />

a great deal with many things which have made<br />

me and the other trustees exceptionally proud.<br />

Of course we have worked together with many<br />

colleagues and partners and we have had the<br />

fantastic benefit of two wonderful Patrons in Mary,<br />

Dowager Countess of Strathmore LLD DL and now<br />

the Duchess of Sutherland.<br />

In concluding on behalf of the trustees, I think we<br />

can allow ourselves some reflections from the past<br />

on our 25th anniversary. In doing so, I am sure<br />

we will all be looking forward to another 25 years<br />

and beyond.<br />

<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />

01


1986 – First office and charity shop open in Glasgow.<br />

25 years of inspiration!<br />

Gillian Morbey OBE, Chief Executive<br />

Last year I was reflecting on funding and our<br />

need to restructure staffing in direct services.<br />

It was a tough year and looking at the financial<br />

and other forecasts I think we are all expecting<br />

funding and services to remain difficult at least for<br />

the next year or so. T<strong>here</strong> are a number of possible<br />

responses to difficult times. They could include<br />

doing less, cutting services and saying no to<br />

further developments. However our organisation<br />

has grown from parents who believed that<br />

everything is possible and I think that approach<br />

is now locked into the organisation DNA.<br />

T<strong>here</strong> is no doubt that we are cautious, assessing<br />

risks and challenges more closely but we are<br />

still developing innovative ways of doing things<br />

that are not all about money. We are also rich in<br />

resources with service users, staff, families and<br />

colleagues, so t<strong>here</strong> is still much that can be done.<br />

We are in a much stronger position to ‘weather’<br />

the storm, not least because of our fantastic<br />

supporters and funders. Many of the Trusts,<br />

who have experienced difficulties, have continued<br />

to support us through some wonderful funding.<br />

I believe our responsibility in return is to<br />

continue to drive forward change that increases<br />

opportunities for service users and families while<br />

being as efficient as possible with resources.<br />

To this end we have experienced some fantastic<br />

moments. The Auchtermuchty Burns supper, now<br />

a famous annual event was a wonderful occasion<br />

entirely organised by staff and service users. The<br />

‘In Our Own Voices’ exhibition in Inverness brought<br />

colleagues from social work and the NHS together<br />

along with carers and service users. The event<br />

allowed people to remember and celebrate life in<br />

long stay hospital while at the same time looking<br />

forward to new lives in the community.<br />

The service users astonished us with their<br />

performance of their own play PARK.<br />

They performed at the Fringe Festival in Edinburgh<br />

and later at TouchBase and t<strong>here</strong> are plans to<br />

go on tour to Dundee and Inverness. T<strong>here</strong> were<br />

also ordinary but just as inspiring moments.<br />

Service users celebrated birthdays and a variety of<br />

personal achievements; they undertook their work<br />

with dedication and dignity; they experienced their<br />

first holidays and took many first steps both large<br />

and small, but all significant.<br />

One day I plan to gather these wonderful people<br />

and moments together and we will write a book<br />

that tells the stories of so many difficult but<br />

inspiring journeys. Maybe our 25th year is a good<br />

time to ask you all to share your memories,<br />

good and not so good.<br />

Our annual review can only give you a taste of a<br />

year with <strong>Sense</strong> <strong>Scotland</strong> but nevertheless I hope<br />

you enjoy reading some of this year’s moments.<br />

02 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>


1987 – First group of people move into the new service in Overbridge, Glasgow. the first service for deafblind adults in <strong>Scotland</strong>; first family adviser appointed. //<br />

Supporting people all year round<br />

Brian Crichton: a life with <strong>Sense</strong> <strong>Scotland</strong><br />

Brian Crichton, who turns 40 in <strong>2010</strong> as we<br />

celebrate our 25th anniversary year, was one<br />

of the first to use the organisation’s services.<br />

Brian now uses sign language to communicate<br />

but had very limited signs and communication<br />

when he moved into Overbridge. He has shared,<br />

like many of the people we work with, a wide<br />

range of challenges and experiences and is now<br />

a talented artist who is devoted to the outdoor<br />

life. Brian’s parents Jean and Jimmy talked<br />

about the kind of support he has received from<br />

<strong>Sense</strong> <strong>Scotland</strong> over the years. Jimmy passed<br />

away very recently and our thoughts are with<br />

Jean, Brian and all his family.<br />

When Brian was born in 1970, his family<br />

faced many challenges in trying to secure the<br />

support and services they knew he needed<br />

as a disabled child.<br />

“The first 3 years of Brian’s life was<br />

mostly hospitals and clinics,” explained<br />

mum Jean. “T<strong>here</strong> wasn’t really very<br />

much for him. He would go to crèche<br />

maybe one day a week. I always<br />

thought t<strong>here</strong> was more to Brian...<br />

because they said t<strong>here</strong> were no reflexes<br />

when he was born. And I always treated<br />

him as a normal child.”<br />

Support was difficult to get, then when he was<br />

aged three, Jean got a call from long-time <strong>Sense</strong><br />

<strong>Scotland</strong> supporter Sheena Tulloch, whose son<br />

Richard is also now supported by us. Sheena had<br />

started a group for disabled children in Brechin,<br />

which proved to be a real success for Brian.<br />

Following times spent in various schools and in<br />

hospital, Brian moved towards adult support<br />

services and the chance to live in his own home.<br />

This was the start of Brian’s relationship with<br />

<strong>Sense</strong> <strong>Scotland</strong>. Opened in 1987 and still used<br />

today Overbridge was the first service for<br />

deafblind adults in <strong>Scotland</strong>. Brian was part of<br />

the first group who lived t<strong>here</strong>. “That was the<br />

perfect place for him, because art was all round<br />

about,” explained Jean. “Brian came on in leaps<br />

and bounds since he came through t<strong>here</strong>. <strong>Sense</strong><br />

<strong>Scotland</strong> has come a long way since Brian started<br />

t<strong>here</strong>.” Brian’s passion for drawing has always<br />

been encouraged by Jean. “I used to draw with<br />

him a lot. That’s the way I used to communicate<br />

with him...through drawing.” Brian’s skill in visual<br />

arts has always been supported by <strong>Sense</strong> <strong>Scotland</strong><br />

and he was highly commended in the third<br />

Helen Keller art award.<br />

In 2003 as support services expanded across<br />

the country, Brian had the chance to move closer<br />

to his family. With his own flat, he had more<br />

independence and saw his family regularly as<br />

Jean explained: “I’m quite happy w<strong>here</strong> Brian<br />

is now. I can see him any time I want and he<br />

comes <strong>here</strong> as well.”<br />

Brian has had some amazing outdoor experiences<br />

including Scandanavian treks, camping and<br />

regular walks. He has also been working with our<br />

Outdoor Activities Coordinator and visual arts<br />

tutors, to take part in an exhibition about his<br />

countryside walks. Jean is delighted to see how<br />

Brian has flourished: “We’ve had a lot of ups and<br />

downs with Brian but I can’t say that I’ve ever<br />

regretted any of it.”<br />

<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />

03


1989 – Children in Need award us £300,000 for a new Family Centre.<br />

Connecting with our donors<br />

Sara Bannerman was awarded the prestigious<br />

Fundraiser of the year Award at the Institute of<br />

Fundraising Awards. Sara has responsibility for<br />

raising income from individuals for <strong>Sense</strong> <strong>Scotland</strong>.<br />

John Brady, our Head of Fundraising said,<br />

“Income from individuals has risen dramatically<br />

from £280,000 when she came into post as donor<br />

development manager in 2001, to over £915,000<br />

last year, a 3-and-a-half fold increase over 7 years.<br />

This award is fully deserved and we appreciate the<br />

care she has given our donors over the years.”<br />

Kimberley talks about<br />

being supported in her own flat<br />

We support Kimberly to live in her own flat<br />

in Dundee. She explained how important her<br />

support staff were:<br />

“When I was at respite I didn’t get good<br />

support and was left on my own a lot, but in<br />

my own place, it’s a lot better.”<br />

What do you like best about the staff that<br />

work with you?<br />

“They’re very<br />

supportive.”<br />

…and what kind of things do you like doing?<br />

“I like going out shopping,<br />

going out to my activities,<br />

go to the blind society<br />

in the town, I like going<br />

swimming, going to the<br />

blind club on a Thursday<br />

night, that’s about it<br />

really, and I like doing<br />

my house work.”<br />

Staff Awards<br />

Our first Staff Awards<br />

ceremony celebrated<br />

the achievements<br />

of staff across<br />

<strong>Scotland</strong>. Organised<br />

and presented by the<br />

Training and Learning<br />

Centre (TLC) and<br />

colleagues, the event<br />

recognised professional<br />

development through<br />

SQA attainment and<br />

professional awards<br />

across a range of<br />

other disciplines.<br />

“This wonderful event<br />

recognised the hard<br />

work of volunteers<br />

and support staff,<br />

who are totally<br />

committed to the<br />

people we support,”<br />

said Chief Executive,<br />

Gillian Morbey.<br />

Shop achievements<br />

Our shops continue<br />

to thrive, generating<br />

literally hundreds of<br />

thousands of pounds<br />

to support the disabled<br />

children and adults<br />

we work with.<br />

Our Peebles shop<br />

was given the Shop<br />

of the Year Award.<br />

Lorna Stavert,<br />

Manager of the<br />

Peebles shop,<br />

was delighted to<br />

receive the award<br />

along with staff<br />

and volunteers.<br />

Over 60 individuals<br />

were recognised and<br />

three teams were<br />

shortlisted for the<br />

Team of the Year<br />

Award, won by our<br />

Auchtermuchty<br />

housing support<br />

service. A group of long<br />

serving shop volunteers<br />

were rewarded with a<br />

specially commissioned<br />

print by <strong>Sense</strong> <strong>Scotland</strong><br />

artist Sasha.<br />

Two support staff<br />

won Professional<br />

Development Award<br />

grants to help them<br />

pursue a creative idea<br />

which will benefit<br />

<strong>Sense</strong> <strong>Scotland</strong> and<br />

the people we support.<br />

Lorna explains why the<br />

shop is successful:<br />

“Customers know<br />

they get really good<br />

value with quality<br />

products at bargain<br />

prices. All staff and<br />

volunteers are really<br />

approachable, both<br />

volunteers and staff<br />

keep it a friendly shop!”<br />

Our Bathgate<br />

shop celebrated its<br />

10th anniversary,<br />

while Peebles won<br />

an ‘Apprentice-style’<br />

challenge,<br />

raising £2,200.<br />

04 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>


Working towards change<br />

We continue to work with families and the people<br />

who use our services in a variety of different<br />

ways to ensure that their views are expressed<br />

to government and other policy makers. One<br />

of our trustees with an interest in family issues<br />

works with us on our Public Policy Group and her<br />

input and support is very valuable indeed. Other<br />

family members have been supported to attend<br />

meetings with policy makers. Timescales are<br />

often short during consultations and families’<br />

priorities need to be balanced with care of their<br />

sons and daughters. We appreciate very much the<br />

contribution they make. Our Consultation Group<br />

is made up of people who use our services and<br />

its members have also made valuable<br />

contributions over the last year.<br />

1991 – Her Royal Highness The Princess Royal opens Family Centre. //<br />

Getting together across the country<br />

It’s great to catch up with friends. At services<br />

throughout the country the people we support<br />

have been celebrating at a number of parties.<br />

The Inverness Christmas party was a great night<br />

with some guests as far travelled as Skye and<br />

Glenfinnan. Ian, who is supported to live in his own<br />

home, just outside Inverness, was a very confident<br />

and welcoming Santa for the event. Glenrothes<br />

also celebrated Christmas in style with a buffet<br />

lunch and music. In Auchtermuchty, the annual<br />

Burns Night brought some winter cheer with<br />

people from Fife, Dundee, Bridge of Earn<br />

and Forfar seeing old friends and celebrating<br />

with music and a traditional Burns supper.<br />

Singers for the evening were Murray and Ewen<br />

Farquharson, Stephanie Clarke, and John Ross.<br />

A special mention for the wonderful accordian<br />

medley by Alan and Murray.<br />

Husky trio<br />

raise thousands<br />

A trio of intrepid supporters<br />

successfully completed a 250km<br />

journey across the Arctic,<br />

raising over £9,000 in the<br />

process. Congratulations to Lisa<br />

McIntosh, Pam Goodwin and<br />

George Antill for braving the<br />

extreme temperatures as they<br />

each drove their own team of<br />

dogs through the wilderness<br />

from Norway to Sweden. The<br />

fact that one of the participants<br />

described the challenge as<br />

“gruelling, punishing, awesome<br />

and magnificent” is pretty<br />

clear indication that this was a<br />

genuine experience of a lifetime.<br />

<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />

05


1992 - First Helen Keller art award held. // 1993 – First respite services offered to children at the Family Centre. //<br />

Supporting people in rural communities<br />

Growing with Katie<br />

We started to support Katie in 2005, to live in her<br />

own home in Glenfinnan, close to w<strong>here</strong> her family<br />

stays. Support workers Margaret and Linda have<br />

seen how Katie’s confidence has grown through<br />

her support by <strong>Sense</strong> <strong>Scotland</strong> and has a great<br />

time visiting her favourite shops and being out and<br />

about. Katie uses some signing to communicate<br />

along with her own gestures and vocalisations<br />

and has a photo-board indicating which staff<br />

are working and the activities she has planned.<br />

What did Katie’s family hope the move to her<br />

own home would achieve?<br />

Linda explained how the move to her own home<br />

had worked out: “The good thing is that the family<br />

is able to drop in. It is very important that they<br />

can see Katie on a regular basis.”<br />

Katie has also started getting more involved<br />

with wider social and group activities. “Anything<br />

outdoors, anything w<strong>here</strong> t<strong>here</strong>’s a bit of<br />

excitement and lots of activity, Katie’s really<br />

happy,” said Linda.<br />

Support staff also encourage Katie to look<br />

after and enjoy her home through an activity<br />

planner, which changes weekly.<br />

“We’ll support Katie hand over hand to do the<br />

washing up after dinner, although she doesn’t<br />

like the pots!” explained Linda. “She draws the<br />

line t<strong>here</strong>. Katie likes to be involved in things,<br />

just normal every day living sort of things.”<br />

Because of w<strong>here</strong> Katie lives she is very reliant<br />

on the car, so it’s up to the team to help and<br />

support Katie to budget as effectively as she can.<br />

Linda spoke to Katie: “We don’t waste your money!<br />

I think that’s probably the biggest challenge we’ve<br />

got, but otherwise it is just careful planning.”<br />

“I’ve seen a huge improvement in Katie’s<br />

communication,” added Linda. “Today, on the<br />

bus, Margaret and I were talking and Katie<br />

actually got Margaret’s face and turned it<br />

and said “don’t speak to Linda, speak to me!”<br />

Katie’s independence is developing…<br />

and what we do today obviously helps<br />

Katie for tomorrow..”<br />

New respite service in Argyll and Bute<br />

Last Autumn building started<br />

on our new respite service<br />

in Helensburgh. With five<br />

residential places, disabled<br />

children throughout Argyll and<br />

Bute can expect high quality<br />

care and support. At present<br />

these young people have to<br />

travel to other parts of the<br />

country for specialist support.<br />

This new, accessible base will<br />

make life easier for children and<br />

their families. Run in partnership<br />

with Argyll and Bute Council and<br />

supported by the Ardlui Trust<br />

from the start, the resource<br />

will be supporting people from<br />

summer <strong>2010</strong>.<br />

06 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>


1994 – Day services base for adults opens in Durham Street, Glasgow. //<br />

Steven’s move to independence<br />

Steven is in his mid twenties and has 24-hour<br />

support to live in his own home in Skye for 3 years.<br />

Having previously been at school in Aberdeen,<br />

the move allowed him to live more closely<br />

to his parents, Mike and Sheena, and the rest<br />

of his family. Initially t<strong>here</strong> was real difficulty in<br />

getting a service set up for Steven, so his parents<br />

approached a number of organisations and were<br />

pleased with <strong>Sense</strong> <strong>Scotland</strong>’s approach. Steven<br />

is very precise in the way that he communicates<br />

and needs staff to be equally precise and to<br />

support him with things he does not understand.<br />

Steven and his team have worked hard at<br />

achieving and maintaining his independence.<br />

“We wanted Steven to have a bit of<br />

independence...and also that he wouldn’t<br />

be too far away from us,” said Mike. “He’s<br />

quite fond of his family, and they are of him of<br />

course. It’s worked out well him being <strong>here</strong>.”<br />

Sheila said, “It’s running well, and Steven’s come<br />

on great. He’s happy! We’re very lucky, and we’ve<br />

got a great team of support staff and carers.”<br />

Steven’s support staff make sure he gets involved<br />

in the wider community. Mike explained,<br />

“He travels into Inverness to his music class,<br />

he goes bowling, and he likes things like that.<br />

Most of the stuff is quite a distance away. He’s got<br />

a Motability car… so any of his carers can drive it.”<br />

Steven likes to be active, loves his music and goes<br />

swimming when they can fit it in. He also enjoys<br />

his computer and he does jigsaws on it.<br />

“He’s got a better social life than we have!”<br />

joked Sheila. “He’s much more settled now<br />

when he comes home. He’s much happier.<br />

We have quality time with him now at home.”<br />

Steven’s parents are also clear about the qualities<br />

needed from support staff. Sheila said, “I think just<br />

caring is the main thing and just understanding.<br />

“Cos it’s not easy.”<br />

Mike added, “Human qualities as much as<br />

anything. And common sense.”<br />

Young at heart Bill leads abseil<br />

85 years young Bill Rossine was in the very first<br />

group up the Finnieston Crane for our charity<br />

abseil. Raising a whopping £485 he led the way<br />

for 51 other participants who collectively raised<br />

over £10,000. After zig-zagging their way up<br />

the metal stairwell through the heart of the crane<br />

the abseilers then descended165 feet, SAS-style<br />

in a freefall abseil. Well done to everyone<br />

who took part.<br />

Children and Families’ fundraisers<br />

Two events have helped raise hundreds of pounds<br />

to support our Children and Families Services.<br />

‘Ladies at Eleven’ in TouchBase was a chance<br />

to enjoy lunch, tea and scones topped off with<br />

comedian Raymond Mearns. Our third LUV Fete,<br />

also at TouchBase, included a raffle, tombola and<br />

stalls selling crafts made by children and young<br />

people. Story teller Clare Humes was a big hit with<br />

her sensory story about love.<br />

<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />

07


1995 – Community houses open in Coatbridge, Fife and Glasgow. Chief Executive Gillian Morbey, awarded OBE.<br />

<strong>Sense</strong> <strong>Scotland</strong>, 25 Years On<br />

It’s 25 years since <strong>Sense</strong> <strong>Scotland</strong> was formalised as a charity, growing from its roots as a small<br />

group of families pressing for services for their children who were affected by deafblindness, many<br />

because of maternal rubella. From this small group and its first employee (our now Chief Executive<br />

Gillian Morbey), the organisation has supported hundreds of disabled people and their families.<br />

Look I’m Here<br />

Gill Morbey and Stuart Aitken look back<br />

25 years to a survey carried out in the early<br />

days of <strong>Sense</strong> <strong>Scotland</strong>.<br />

Twenty-five years ago we set to find out how<br />

many deafblind people t<strong>here</strong> were in <strong>Scotland</strong>,<br />

w<strong>here</strong> they were, and, most important of all<br />

what kind of services they were receiving.<br />

At the time we didn’t know what we would<br />

find, so we couldn’t be sure what would help<br />

to make people’s lives better, nor how best<br />

to effect that change with and for people.<br />

We identified many people, the few who<br />

were well supported being far outnumbered<br />

by the many in unsuitable accommodation,<br />

often medicated to sort out their challenging<br />

behaviour, while underlying medical problems<br />

that could have been addressed were left<br />

untreated. We committed ourselves to bringing<br />

about change not just in the lives of individuals<br />

and their families. We understood too that<br />

for change to stand the test of time attitudes<br />

would have to change, and new structures<br />

would have to be put in place.<br />

We engaged with professionals, local authorities,<br />

health boards and central government and<br />

achieved notable successes along the way.<br />

Identifying what changes needed to take place<br />

was always easy because we asked families<br />

and deafblind people themselves to tell us<br />

what mattered to them. We still work that way.<br />

Effecting that change took a lot more work<br />

but we, then, don’t give up easily!<br />

The impact of Look I’m Here belies the size<br />

of the document. Its findings drove what<br />

<strong>Sense</strong> <strong>Scotland</strong> did and, through the core<br />

values we later established, how we did it.<br />

Much remains to be done.<br />

Dr. Stuart Aitken, Senior Consultant<br />

and Gillian Morbey, Chief Executive<br />

08 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>


1997 – Dundee, community housing and supported living services open. //<br />

<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />

09


1998 – Supported living services in Ardrossan and Auchtermuchty open. Advisory office opens in Dundee. Arts development services introduced.<br />

Overbridge: a stepping stone for independence<br />

Our Overbridge service is central to history<br />

of the organisation and many of the people<br />

we support spent time at this, our first ever<br />

service. Andy Murphy, our registered manager<br />

at Overbridge, found out what happened<br />

to the people who spent time t<strong>here</strong>:<br />

“Compiling the names brought back some<br />

memories of the unique people that we have<br />

supported over the year. It’s good to see<br />

that the majority have remained with<br />

<strong>Sense</strong> <strong>Scotland</strong>”<br />

Overbridge: W<strong>here</strong> Are They Now?<br />

Katie S:<br />

Katie now lives<br />

in her own house<br />

in Kelty.<br />

Lesley N:<br />

Lesley moved to a<br />

shared house then<br />

on to her own flat<br />

in Glasgow.<br />

Lewis S:<br />

Lewis moved to a<br />

shared house then<br />

on to his own flat<br />

in Glasgow.<br />

Stephen D:<br />

Stephen moved<br />

into his own house<br />

in Saltcoats,<br />

sharing with his<br />

flatmate.<br />

Robert G:<br />

Robert moved<br />

into his own house<br />

in Coatbridge,<br />

sharing with his<br />

flatmate.<br />

Mark H:<br />

Moved into<br />

his own house<br />

in Coatbridge,<br />

sharing with<br />

his flatmate.<br />

Nicola B:<br />

Nicky moved into<br />

her own house in<br />

Pollok. Sadly she<br />

died in 2005.<br />

Peter T:<br />

Peter moved into<br />

his own house in<br />

Pollok, sharing<br />

with his flatmate.<br />

Stephen M:<br />

Stephen came<br />

for a holiday at<br />

Overbridge.<br />

Paul I:<br />

Paul moved into<br />

his own house<br />

Saltcoats, sharing<br />

with his flatmate.<br />

Sadly, Paul died<br />

in 2006.<br />

Morag M:<br />

Moved into her<br />

own house in<br />

Braidcraft Road<br />

in Pollok, sharing<br />

with her flatmate.<br />

Angela P:<br />

Moved into her<br />

own house in<br />

Pollok, sharing<br />

with her flatmate.<br />

Daniel M and<br />

Robert B,<br />

Andrena M<br />

and Ruth B:<br />

Danny, Robert,<br />

Andrena and<br />

Ruth continue to<br />

live in their own<br />

independent flats<br />

within Overbridge.<br />

Steven A:<br />

Steven moved<br />

to his own flat in<br />

Glasgow, sharing<br />

with his flatmate.<br />

Brian C and<br />

Richard T:<br />

Brian and Richard<br />

Moved to their<br />

own flats within<br />

a house in Forfar,<br />

sharing with<br />

flatmates.<br />

Julie M:<br />

Moved to a shared<br />

house in Glasgow<br />

then went to live<br />

with her parents.<br />

Susan M:<br />

Susan moved into<br />

her own house in<br />

Pollok sharing with<br />

her flatmate.<br />

Kirsty C:<br />

Kirsty moved to<br />

her own house in<br />

North Kelvinside,<br />

Glasgow.<br />

Eleanor S,<br />

Stephen M,<br />

Mark H,<br />

Kerry F and<br />

Ghazala A:<br />

They are all<br />

moving to their<br />

own flats<br />

in Glasgow in<br />

July <strong>2010</strong>.<br />

Felicity S:<br />

Felicity died<br />

peacefully in<br />

Overbridge<br />

in <strong>2010</strong>.<br />

Andrena M:<br />

Andrena<br />

continues to live<br />

at Overbridge.<br />

Allison H:<br />

Allison moved<br />

into her own<br />

house in John<br />

Smith Gardens<br />

in Coatbridge.<br />

David F:<br />

David moved<br />

into his own<br />

house in John<br />

Smith gardens<br />

in Coatbridge,<br />

sharing with his<br />

flatmate.<br />

Scott M:<br />

Now lives in<br />

his own house<br />

in Kelty.<br />

10 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>_<strong>2010</strong>


1999 – <strong>Sense</strong> <strong>Scotland</strong> artists exhibit in Glasgow and Portugal. Day service provision introduced in Dundee. //<br />

People reflect on their <strong>Sense</strong> <strong>Scotland</strong> highlights!<br />

Family involvement<br />

is important to<br />

parents and carers.<br />

Jamie’s mum,<br />

Lesley explains:<br />

“For myself the most<br />

important thing when<br />

I came in was the<br />

family involvement<br />

and the fact that it was<br />

an organisation based<br />

around families. The<br />

fact that you can pick<br />

up the phone, speak<br />

to someone and get<br />

advice; they’ve always<br />

maintained that.”<br />

Support worker<br />

Leas from Dundee:<br />

“Kimberly has a great<br />

sense of humour, I can<br />

see that she’s come<br />

on leaps and bounds<br />

since she’s moved in<br />

<strong>here</strong> and I like knowing<br />

that I’m part of that<br />

and that I’ve helped<br />

her to develop and her<br />

confidence to grow.”<br />

James West,<br />

Regional Manager<br />

for the North East:<br />

“I spent a lot of my<br />

first few years in <strong>Sense</strong><br />

<strong>Scotland</strong> opening new<br />

services, seeing people<br />

move out of hospital,<br />

develop new skills and<br />

gain opportunities. Just<br />

seeing the change in<br />

people over a period<br />

of time after they<br />

left a hospital setting<br />

for their own homes.<br />

So developing new<br />

services has definitely<br />

been my highlight.”<br />

For Doug from<br />

Inverness, a simple<br />

moment stands out:<br />

“I feel quite fortunate<br />

that I’ve been involved<br />

in the transition from<br />

a hospital situation to<br />

seeing people moving<br />

into their own homes<br />

and to see how they<br />

have enjoyed their own<br />

homes. I can give one<br />

example, very early,<br />

when people were in<br />

their own homes some<br />

post came through<br />

a service user’s door<br />

and that person picked<br />

up the mail and just<br />

looked at it for quite<br />

a long time. I suddenly<br />

thought that person<br />

never had post put<br />

through their own<br />

door before, that was<br />

very humbling.”<br />

Paul Hart,<br />

Principal Officer for<br />

Special Projects:<br />

A camping trip<br />

organised as part of<br />

our Getting Together<br />

project a few years<br />

ago was memorable.<br />

Sitting up late around<br />

the campfire, telling<br />

stories and waking up<br />

in the morning under<br />

the stars. The reaction<br />

from one camper<br />

Robert when he woke<br />

up will stay with me<br />

for a long time. He<br />

was very excited while<br />

at the same time<br />

completely bemused.<br />

He started laughing<br />

and this spread to<br />

others around the<br />

camp and it was<br />

a very jolly start<br />

to the day.<br />

Manager Julie Ritchie<br />

from Aberdeen:<br />

“I just wanted to do<br />

something good with<br />

my life, I think it’s<br />

a very rewarding job,<br />

helping people and<br />

making their life<br />

a little bit better, it’s<br />

very rewarding.”<br />

Gillian McGrory<br />

manager of our<br />

children’s respite<br />

service in Glasgow<br />

values the involvement<br />

she has with parents<br />

and carers:<br />

“We’ve actually<br />

got a really good<br />

relationship with<br />

the parents of the<br />

young people who<br />

use this service.<br />

Parents are able to<br />

come in whenever<br />

they like.”<br />

<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />

11


2000 – First supported living services in Aberdeen and Finglassie. New respite service starts in Dundee. // 2001 – Supported living services start in Inverness. //<br />

Working with families and carers<br />

We work with disabled people of all ages<br />

and their families. Our family advisory service<br />

responds to families’ requests across <strong>Scotland</strong><br />

and our Parent Enabler Project (PEP) supports<br />

families with younger children in the NHS<br />

Greater Glasgow and Clyde area.<br />

Chloe<br />

Since her play sessions from our Parent Enabler<br />

Project when she was 3 years old, Chloe and her<br />

parents, Lorraine and Pete, have received support<br />

from <strong>Sense</strong> <strong>Scotland</strong> in a range of different ways.<br />

Initial play sessions were a crucial way for our<br />

PEP team to connect with Chloe and find out what<br />

she enjoyed doing. Sensory stories and messy<br />

play, helped Chloe to play and learn.<br />

“We looked at eye-pointing, to encourage<br />

Chloe to make some choices in her play, around<br />

that time.” explained PEP advisory worker<br />

Rachael Tonge.<br />

“She does that very well now!” Mum Lorraine<br />

added: “You can tell if she wants to do it, or if<br />

she doesn’t, very clearly.”<br />

PEP also worked early on through physiotherapy<br />

which involved lots of actions and movement.<br />

“At the time, Chloe was not quite as able to sit<br />

as she is now…and supporting her, it was difficult.<br />

It was good to have the extra pair of hands - and<br />

the extra person to sing!”<br />

Rachael also helped through the process of<br />

choosing schools for Chloe and passed on useful<br />

information and contacts for the family.<br />

Lorraine and Chloe are especially fond of the<br />

regular parties which <strong>Sense</strong> <strong>Scotland</strong> throw<br />

for children and young people.<br />

“We love the Christmas parties because the<br />

interactive story is great.”<br />

And as Lorraine noticed, a sensory story at our<br />

recent LUV Fete event, had a real impact on Chloe:<br />

“She loved that. We spent ages afterwards talking<br />

to the storyteller because Chloe had been so<br />

animated. She had actually been trying to pick<br />

the beads up out of the jewellery box… We’ve still<br />

got the two pink hearts that Claire (the storyteller)<br />

gave us at the end of the story.”<br />

Our Out and About resource was the next area<br />

of support within Children and Families services,<br />

which gave Chloe a range of new experiences<br />

and had some unexpected benefits for mum:<br />

“She loves the sensory room!”<br />

12 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>


2002 – Parent Enabler Project and the Out and About services introduced to support children and families in the Greater Glasgow area.<br />

10th charity shop opens in St Andrews. Deafblind Studies diploma course introduced. //<br />

“She clearly enjoyed it,” added Pete. “…because<br />

she was still wanting to tell me all about it when<br />

she got home. She was just gabbling away,<br />

because she can’t make a lot of proper words;<br />

but as soon as she came in, I’d say ‘ how was<br />

it today?’ and she was away. And you can see<br />

by her eyes…and I’d think ‘oh yeah!’ You were<br />

loving it!”<br />

So what kind of difference has having input<br />

from an organisation like <strong>Sense</strong> <strong>Scotland</strong> meant<br />

to the family? “Support,” Pete said, “T<strong>here</strong> was<br />

somebody t<strong>here</strong> that you could fall back on and<br />

say ‘help!’ ”<br />

For Lorraine it was having someone to talk to.<br />

“… in the early days when you (PEP) were coming<br />

out to the house, I could sit and gab away.<br />

It’s just having someone t<strong>here</strong>!”<br />

“She thoroughly enjoyed it. I was actually sitting<br />

in the families’ room, with my feet up on the<br />

couch, with a book, a cup of coffee and<br />

a sandwich. I wouldn’t do that at home.<br />

And Chloe didn’t even look for me, after the first<br />

couple of weeks. She was quite happy being<br />

involved with the other children.”<br />

“Our experience with <strong>Sense</strong> <strong>Scotland</strong><br />

is that people can see beyond<br />

that and say ‘what’s possible?’ – not<br />

what’s impossible,” Pete added.<br />

“That’s a big difference.”<br />

My <strong>Sense</strong> <strong>Scotland</strong>:<br />

Pat Brown<br />

Family Adviser<br />

How long have you worked with <strong>Sense</strong> <strong>Scotland</strong>?<br />

I started working <strong>here</strong> about 15 years ago.<br />

What does your job involve?<br />

I am the family adviser for the west of <strong>Scotland</strong>,<br />

which includes Inverness, and beyond. We are<br />

the first point of contact; we meet the family<br />

and begin to find out a bit more about their son<br />

or daughter. We will liaise with social work if<br />

a direct service will be needed.<br />

What’s the most challenging part of your job?<br />

Dealing with the number of referrals that we<br />

receive. Since we opened TouchBase in 2007,<br />

t<strong>here</strong> has been a huge influx of parents, carers<br />

and professionals that want to come and visit.<br />

What has been the most rewarding moment<br />

in your time with <strong>Sense</strong> <strong>Scotland</strong>?<br />

It has been a privilege to have met so many<br />

families in the last 15 years, those younger<br />

children who are now in our adult services.<br />

I have worked with some brilliant colleagues<br />

and some who helped me with my Diploma<br />

in Deafblind studies which I gained this year.<br />

Moving to TouchBase has been brilliant.<br />

<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />

13


2003 - New supported living services in Forfar, Saltcoats, Glasgow, Ellon and Aberdeen. Healthy Living for Deafblind People project starts.<br />

Supporting people through transitions<br />

T<strong>here</strong> are many transitions we go through in<br />

life and <strong>Sense</strong> <strong>Scotland</strong> is experienced in<br />

supporting children and adults of all ages<br />

through these life changes.<br />

Our family advisers and support staff offer<br />

sensitive and practical support for transition into<br />

our services for the first time. We recognise that<br />

it is a huge transition to move between services,<br />

whether it is to day support in the community<br />

or for the move into a new home.<br />

Gavin leads the way<br />

Gavin McCulloch, who has just moved into his<br />

own home for the first time in Inverness, recently<br />

became an Assistant Walk Leader. Working<br />

alongside James Finlayson, our Highlands walk<br />

leader, the project is funded jointly funded by<br />

Paths to Health and Scottish Natural Heritage.<br />

Gavin is completing his John Muir Award w<strong>here</strong><br />

he has to discover, explore, conserve and share<br />

a wild place. As assistant walk leader he takes<br />

register at the weekly group walk, leading walks<br />

he is familiar with, putting up the tent at the lunch<br />

spot, choosing w<strong>here</strong> the next walk will be and<br />

reminding people about the upcoming walks.<br />

Gavin said:, “I really enjoy the walk leader job<br />

because I like being outside and walking.”<br />

He is also delighted with his move from<br />

a long-stay hospital into his own home:<br />

“The biggest difference is more freedom I guess,<br />

more activities, which is good, being able to go<br />

out and get the shopping, choose the stuff<br />

I want to buy. My favourite thing about having my<br />

own home is being able to live in the community.”<br />

Gavin is also clear about what he gets from<br />

support staff:<br />

“The things I do with them, the help<br />

they give me, the way they’re willing<br />

to take me, out is good.”<br />

New flats for Glasgow<br />

Building work is almost complete on two sites in<br />

Glasgow’s Southside. These will provide housing<br />

support services for 12 adults. Funding for the<br />

development has come from Glasgow City<br />

Council and Southside Housing Association.<br />

John Roxburgh, <strong>Sense</strong> <strong>Scotland</strong>’s Regional<br />

Manager for services in the West, said:<br />

“The 12 deafblind and disabled people<br />

who move t<strong>here</strong> during the summer of<br />

<strong>2010</strong> will enjoy a wonderful standard of<br />

living, as well as greater independence.”<br />

14 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>


2004 – <strong>Sense</strong> <strong>Scotland</strong> purchase Glasgow building to transform into a new head office and resource base for disabled people and their families.<br />

Expression Unlimited, an international theatre piece by deafblind people premieres in <strong>Scotland</strong>. //<br />

Artist from Helen Keller’s home State wins award<br />

The winners of the Helen Keller International<br />

Award main and under-16 prizes were revealed<br />

at a ceremony in the Glasgow Royal Concert Hall.<br />

The £1500 main prize went to Rich Curtis, from<br />

Alabama, USA (he is from the same Shoals area<br />

w<strong>here</strong> Dr Helen Keller was born). His work titled<br />

‘Sight Unseen’, comprises 20 textured paintings<br />

on paper, and was collaboration with sensory<br />

impaired people. The £100 cheque for the under<br />

16 prize went to ‘Medusa’ a large sculptural piece<br />

made from recycled material and found objects,<br />

by Shawlands Academy in collaboration with<br />

Hazelwood School (a school for children and<br />

young people with sensory impairment).<br />

Both schools are based in Glasgow.<br />

<strong>Sense</strong> <strong>Scotland</strong> Patron, the Duchess of<br />

Sutherland, made presentations. Although Rich<br />

was unable to attend the awards he was keen<br />

to share the thoughts behind his work:<br />

“I was happy to participate in the<br />

first place. But, to win the competition<br />

among such wonderful fellow artists<br />

makes me very pleased. I am honored.”<br />

“Once I researched a little about <strong>Sense</strong> <strong>Scotland</strong>,<br />

and found what an incredible organisation they<br />

are, I was compelled to enter the competition.<br />

After some modifications, I developed this<br />

exercise of collecting sound-response drawings.<br />

Participation and involvement<br />

We have just introduced a new booklet on<br />

participation and involvement aimed specifically<br />

at the people who use our services. We hope this<br />

encourages more people to get involved in our<br />

work and the services we operate.<br />

<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />

15


2005 – New respite services open in Dundee and South Lanarkshire.<br />

Katie and Holly<br />

Katie and Holly were three at Christmas but<br />

when they were born t<strong>here</strong> were severe<br />

complications. Over those first few months<br />

parents Clare and Derek were told that Katie<br />

had quadriplegic cerebral palsy and Bulbar palsy.<br />

This means she cannot speak or swallow so she<br />

is tube-fed. If she is sick she doesn’t make any<br />

noise and she has to be watched 24 hours<br />

a day. She can easily choke so she has to sleep<br />

propped up and mum and dad have to take<br />

turns to watch her throughout the night.<br />

Clare told us, “Holly loves her sister and is so<br />

gentle with her. As Katie’s condition is life limiting<br />

she needs 24 hour care which takes lots of our<br />

attention. But it is important to us that Holly<br />

doesn’t feel left out. That is why Holly loves<br />

the <strong>Sense</strong> <strong>Scotland</strong> parties, as <strong>Sense</strong> <strong>Scotland</strong><br />

staff make her feel special too.”<br />

“We first heard of <strong>Sense</strong> <strong>Scotland</strong><br />

through our own internet search.<br />

Until then we had found it really<br />

difficult to access any practical help<br />

with Katie’s care.”<br />

“Gillian from <strong>Sense</strong> <strong>Scotland</strong> (Parent Enabler<br />

Project) came to see us and started to teach<br />

Katie (and the rest of the family) Makaton sign<br />

language. She picked it up so quickly and blows<br />

kisses to say “Goodbye” when Gillian leaves.<br />

Katie often has to go to hospital, 10 miles away,<br />

sometimes up to three times a week. But as<br />

the twins’ dad is at work and I don’t drive,<br />

Gillian comes to the rescue. She picks us up<br />

and looks after Holly while Katie and I are with<br />

the doctors. We really do appreciate all the help<br />

and support <strong>Sense</strong> <strong>Scotland</strong> provide.”<br />

Exhibition reflects life in<br />

Scottish long-stay hospitals<br />

During the winter a<br />

Heritage Lottery funded<br />

exhibition was held in<br />

the Highlands which<br />

explored the lives of<br />

people who stayed in<br />

long-stay hospitals.<br />

Through a storytelling<br />

project, the ‘In Our<br />

Own Voices: Leaving<br />

New Craigs’ exhibition<br />

explored social histories<br />

of people leaving<br />

Craig Phadraig, Craig<br />

Dunain, and New Craigs<br />

Hospitals in Inverness.<br />

Incorporating artworks<br />

and an interactive<br />

journey through<br />

aspects of life in<br />

long-stay hospital, the<br />

exhibition honoured<br />

the lives and work of<br />

staff and residents and<br />

recreated aspects of<br />

hospital life, including<br />

a bedroom. Project<br />

partners were Highland<br />

Council, NHS Highland<br />

and the Centre for<br />

Health Science.<br />

“The people I worked<br />

with as part of this<br />

project have been on<br />

an amazing journey,<br />

which I hope the<br />

exhibition captured,”<br />

explained storyteller<br />

and exhibition curator<br />

Karrie Marshall. “The<br />

Craig hospitals played<br />

a major role in learning<br />

disability care for over<br />

140 years, so we have<br />

seen the ending of an<br />

important era as people<br />

move into their own<br />

homes. The project<br />

felt like a crucial way<br />

of supporting people<br />

to reflect on their lives<br />

together, as a new<br />

chapter in their<br />

lives began.”<br />

Routines...a former<br />

resident commented:<br />

“I had a bath every<br />

Tuesday. I still do, but<br />

I have a shower now<br />

for the other days.<br />

Tuesday is a good day<br />

for a bath.”<br />

Caring relationships...<br />

a former staff member<br />

remembered: “T<strong>here</strong><br />

was one particular<br />

boy, who I have fond<br />

memories of… I used<br />

to carry him around in<br />

my arms… keep him<br />

happy… I’ve seen him<br />

grow up, a young man.”<br />

16 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>


Creating exciting opportunities<br />

2006 – Overall funding for the new head office/family resource, called TouchBase, exceeds £1.8m. //<br />

Our arts and wellbeing team have practitioners<br />

in visual arts, music, drama, outdoor activities<br />

and crafts. They encourage creative approaches<br />

to enable everyone, regardless, of their support<br />

needs, to enjoy art sessions, performances,<br />

exhibitions and a range of outdoor pursuits.<br />

Beach Days<br />

Since the summer of <strong>2009</strong> services in Fife have<br />

been involved in a variety of Arts and Outdoor<br />

activities as part of a year-long funded healthy<br />

living programme based at the Fife Sensory<br />

Impairment Centre.<br />

The project is developing activities such as<br />

music, art, rebound therapy, friendship groups<br />

and outdoor activities. This is an excellent chance<br />

for the people who use our services in more<br />

rural areas, to participate as part of a wider<br />

social group.<br />

Our beach day at West Sands in St Andrews saw<br />

one of the biggest turn outs for an event, with<br />

around 50 service users from Fife, Dundee, Forfar<br />

and Aberdeen join arts and wellbeing staff in<br />

a music group session on the grassy bank by the<br />

sea. TouchBase Artist in Residence, John Shankie,<br />

shared kite-making tips and following a BBQ feast<br />

t<strong>here</strong> were music sessions, music jams led by<br />

Murray and Ewen Farquharson and a walking<br />

and art group which beachcombed for items<br />

to make memory sticks.<br />

Francis Murray from Dundee, finished the day<br />

singing and performing with a backing band<br />

of guitars and percussion. Arts and Wellbeing<br />

Manager, Kiran Singh, said: “Speaking to service<br />

users and staff who attended, it was obvious the<br />

event was very well received. People had choices<br />

to participate and interact with one another<br />

through diverse and creative activities.”<br />

Information and Communication Technology<br />

Technology can be an excellent way of increasing<br />

independence, communication and participation.<br />

At a family event in <strong>2009</strong> we explored:<br />

• Low tech, single message devices (BigMack,<br />

Chipper) which, are useful for incorporating<br />

regular messages such as “Good morning”,<br />

“Turn the page”.<br />

• Switch access devices to control toys and other<br />

equipment that can make life easier e.g. a switch<br />

adapted camera, switch accessible MP3 player,<br />

switch accessible videos.<br />

• Cheap (usually free) accessible books in<br />

alternative formats such as audio format for MP3<br />

player, PDF documents that can speak.<br />

• Cheap video cameras that service users can use<br />

to record ordinary events in their lives.<br />

<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />

17


2007 – Huge service development in and around Inverness to support 37 people moving from a long stay hospital into their own homes.<br />

Terry Wogan opens the Children in Need sponsored child and family resource at TouchBase.<br />

Summer Fridays at TouchBase<br />

During July and August t<strong>here</strong> was something<br />

for everyone each Friday at TouchBase over lunch.<br />

A great success not just for the performers but<br />

for the many people who got involved and joined<br />

in with these sessions.<br />

The events included ‘Summer Grooving’ with<br />

Ghanaian rhythms and songs classical Indian<br />

dance performances, workshops on hand<br />

gestures, mime and use of instruments, creating<br />

a Tussie Mussie and scented handmade paper.<br />

The final piece titled ‘Passages’, was a musical<br />

performance of improvised sound by Amir<br />

Aznefzadeh, Sarah Dietch and an ensemble<br />

of performers including Harry Mackie.<br />

Service users take on canoe challenge<br />

Service users from across the country took part<br />

in a canoe day on Loch Tay and for most it was<br />

the first time they had ever tried canoeing and<br />

it was a great success. Those who participated<br />

ended up spending a good hour out on the Loch<br />

investigating the shoreline and racing each other<br />

across the bay. The day was also a fundraiser,<br />

with participants raising £2,000.<br />

“Thanks to everyone who contributed to this<br />

fantastic event. It’s always amazing to witness<br />

the way the people we support embrace<br />

new opportunities like the ones offered at<br />

Abriachan,” said Gillian Morbey.<br />

Service User Conference 5th anniversary<br />

The Service User Consultation Group’s five year<br />

anniversary was celebrated at their conference<br />

in TouchBase last autumn. The conference was<br />

said to have a great feel about it and featured<br />

exhibitors including Guide Dogs, Energy Saving<br />

Trust, and The Holiday File. Presentations were<br />

given by group members, other service users,<br />

and external speakers. The highpoint as usual<br />

was the evening party, with the TouchBase<br />

AllStars and the usual mix of karaoke and<br />

traditional music. The weekend ended with<br />

a stroll in Pollok Park.<br />

Conference comments: “I’ve never seen service<br />

users having such a good time”. “I was amazed<br />

at what service users were doing, most staff<br />

wouldn’t stand up at a conference and talk like<br />

that”. “The party was really good, what talent!<br />

And the accordion music was enjoyed so much.”<br />

River City’s Libby launches exhibition<br />

Our ‘Inspired’ exhibition, shown at TouchBase,<br />

then later at BBC <strong>Scotland</strong>’s Pacific Quay building,<br />

featured artwork by children supported by our<br />

children and families’ services. Using themes<br />

based on timelines and seasons throughout<br />

the year, the artists created paintings, drawings<br />

and sculptures exploring identity, expression,<br />

movement and our place in the world. River City<br />

actress Libby McArthur made sure the launch at<br />

TouchBase was a lot of fun, spending plenty of<br />

time with families after her launch.<br />

Isabel McLachlan, Head of Children and Family<br />

Services said: “Inspired has proven to be an<br />

inspirational journey for those involved. The young<br />

people have invested a lot of creativity into their<br />

work and are very proud to see it displayed.<br />

We’re also very grateful to Libby McArthur for<br />

taking the time to launch the exhibition.”<br />

18 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>


2008 - HRH The Princess Royal officially opens TouchBase. <strong>Sense</strong> <strong>Scotland</strong> hosts the 4th international Listen 2 Me Conference for families of deafblind children.<br />

New family support service for North Lanarkshire. //<br />

PARK performance wows audiences<br />

On Friday the 9 October <strong>2009</strong>, a group of young<br />

disabled performers premiered their theatre piece<br />

`PARK’. Developed by the cast over the course<br />

of a year and produced by <strong>Sense</strong> <strong>Scotland</strong> in<br />

association with Dance Ihayami, the show<br />

focused on a day in the life of a public park.<br />

The work was directed by Jon Reid and Karen<br />

Watts, produced by Ailill Finlayson and was only<br />

possible with the hard work of dedicated support<br />

staff. Through non- verbal movement, gesture,<br />

space and proximity, the performers worked<br />

together to produce a shared story. The audience<br />

loved it and when the lights dimmed at the end<br />

of the sold-out performance, the proud actors<br />

were given an ecstatic response.<br />

The piece was also previewed as part of the<br />

Edinburgh Festival. The cast were:<br />

Eilidh Shortread, Stephanie McCann,<br />

Ghazalla Akram, Anne Neeson, Robert McGurgan,<br />

Ian Johnstone, Jamie Ahmed, Amir Asnafzadeh<br />

and Gavin McCulloch. Ailill Finlayson, from<br />

Edinburgh, was the producer of PARK.<br />

These shows are supported by the Scottish Arts<br />

Council and the Lottery Funded Awards For All.<br />

Harry’s sessions lead to performance<br />

Harry Mackie, who is 13, began taster music<br />

sessions with music tutor David McCluskey at<br />

TouchBase in June <strong>2009</strong>. Harry’s wide taste<br />

in music and a project based on the theme of<br />

song writing lead him to explore the 1970s John<br />

Denver song, ‘Country Roads’. Following regular<br />

music sessions, he was able to arrange his own<br />

interpretation the country classic, through shared<br />

singing and guitar activities.<br />

Harry said he would like to perform his work before<br />

a live audience with backing band, ‘The TouchBase<br />

All-stars’ as part of Summer Fridays. Harry’s mum<br />

wrote about the project:<br />

“Harry has had a fantastic experience during his<br />

sessions at <strong>Sense</strong> <strong>Scotland</strong>. Since not being at<br />

school Harry misses out on music, which he loves.<br />

He clearly enjoyed working closely with David<br />

and benefited enormously by having a real sense<br />

of accomplishment, especially as t<strong>here</strong> was the<br />

end product with the Passages concert. Harry has<br />

found an enthusiasm and real sense of purpose<br />

through his music lessons and has thoroughly<br />

enjoyed his relationship with David.”<br />

Rain can’t stop Highland Barbeque<br />

Despite heavy rain t<strong>here</strong> was a great turnout in<br />

late July to the gathering organised by Highland<br />

staff for service users at Abriachan Forest Trust.<br />

From cycling through the muddy tracks, to<br />

guided treks led by our assistant walk leader,<br />

Gavin, t<strong>here</strong> was a great chance for everyone<br />

to engage with the wonderful setting.<br />

T<strong>here</strong> was also a great gathering in the Forest<br />

School building for a drumming session, followed<br />

by a rousing sing-along. T<strong>here</strong> followed a short<br />

presentation of artwork by Gavin to Paths For All,<br />

one of the funders of the walking programme<br />

in Inverness. The day ended with a muchappreciated<br />

barbeque provided by support staff.<br />

<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />

19


<strong>2009</strong> - Life Histories story telling project to supports people leaving a long-stay hospital in Inverness, culminates in a major exhibition and archive resource.<br />

Exploring the world together through visual arts<br />

Visual arts tutors Audrey O’Brien and Mhari Baxter<br />

have been collaborating on two group projects<br />

for adults and children. Participants become<br />

explorers, collecting and making objects as well<br />

as having a whole range of new experiences.<br />

Using signifiers to encourage participation, the<br />

‘Little Light Adventures’ project with children<br />

collected found objects to make kaleidoscopes,<br />

mobiles, jars of sweetie wrappers and shiny<br />

sticks. The children then explored light through<br />

objects and reflective papers. A tactile stories<br />

project with Paul, Julia, Laura, Steven and Jamie<br />

incorporated objects, instruments and storytelling<br />

along with each participant’s likes and dislikes.<br />

These elements were used to build a ‘path’ which<br />

incorporated a range of tactile experiences for<br />

the artists.<br />

“I enjoyed sharing the excitement<br />

of explorative approach and with<br />

an open-ended session the most<br />

magical results happen, for example<br />

David found a red silver box and put<br />

a small torch inside and light beamed<br />

out of the box,” said Audrey.<br />

Looking back at the work of the projects, Mhari<br />

said: “What struck me as special was sharing the<br />

practice of other artists, finding ways to interpret<br />

them through signifiers encouraging the inner<br />

artist of the young people involved. For example<br />

in one session it was great that Joanna lifted her<br />

head and smiled exploring the light when looking<br />

through her kaleidoscope.”<br />

Policy Group contributes to Scottish Government consultations<br />

We responded to a wide range<br />

of consultations during the<br />

year, including:<br />

• Affordable housing investment<br />

• Paediatric audiology<br />

• Improving access to taxis<br />

• The way ahead (British Medical<br />

Association consultation on<br />

general practitioner services)<br />

• Response to the Scottish<br />

Parliament Local Government<br />

Committee on tendering<br />

• End of life treatment<br />

and care: good practice in<br />

decision-making, General<br />

Medical Council<br />

• Housing Bill<br />

• Public Services Reform Bill<br />

• Better diabetes care<br />

• Accountant of Bankruptcy<br />

consultation on changes to<br />

bankruptcy arrangements:<br />

effect on disabled people and<br />

families<br />

• Right to Control<br />

• Equality Bill: public sector duty<br />

• <strong>Review</strong> of television access<br />

services, Ofcom<br />

• Mental Health Care and<br />

Treatment Act review<br />

(named person)<br />

• Code of Practice on ASL Act<br />

• Housing benefit<br />

• Scottish Autism Bill<br />

• Protection of Vulnerable<br />

Groups: Automatic listing,<br />

specified criteria, relevant<br />

offences, unlawful requests for<br />

scheme records, membership<br />

fees, prescribed services,<br />

modification of regulated work<br />

with adults, modification of<br />

regulated work with children<br />

• Partnership working<br />

between allied health<br />

professions and education<br />

20 <strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong>


Thank yous<br />

<strong>2010</strong> – 25th Anniversary of <strong>Sense</strong> <strong>Scotland</strong>. _25 Year Timeline //<br />

Trusts and Foundations<br />

A M Pilkington’s Charitable Trust<br />

Aberbrothock Charitable Trust<br />

Agnes C Montgomerie<br />

Charitable Trust<br />

Alexander Moncur’s Trust<br />

Alexander Torrance<br />

Cathro Bequest<br />

Andrew Paton’s Charitable Trust<br />

Bellahouston Bequest Fund<br />

Biggart Baillie - The RKT Harris<br />

Charitable Trust<br />

Callendar Charitable Trust<br />

Cares 4 Kids<br />

Cash for Kids - Clyde Action<br />

Douglas Hay Trust -<br />

Barstow & Millar<br />

Dr Guthrie’s Association<br />

Harold Adams Charitable Trust<br />

Heritage Lottery Fund<br />

IBB Trust<br />

Jennie S Gordon Memorial<br />

Foundation<br />

John & James Napier’s Trust<br />

Lamb, Middleton & MacGregor<br />

Bequest Funds<br />

Lintel Trust<br />

Low & Bonar Charitable Trust<br />

Margaret J Stephen’s<br />

Charitable Trust<br />

MEB Charitable Trust<br />

Miss E C Hendry’s<br />

Charitable Trust<br />

Mrs Ma Lascelles’ Charitable Trust<br />

Netherdale Trust<br />

Northwood Charitable Trust<br />

Paths to Health<br />

PF Charitable Trust<br />

Ponton House Trust<br />

R J Larg Family Trust<br />

R S Hayward Trust<br />

Scottish Natural Heritage<br />

Sir James Miller EdinburghTrust<br />

Strathclyde Police<br />

Benevolent Fund<br />

Tay Charitable Trust<br />

The Adamson Trust<br />

The Andrew & Mary Elisabeth<br />

Little Charitable Trust<br />

The Ann Jane Green Trust<br />

The Annie Jack Memorial Trust<br />

The Appletree Trust<br />

The Bethesda Trust<br />

The Big Lottery Fund<br />

The Biggart Trust<br />

The Dinning Charitable Trust<br />

The Ecton Charitable Trust<br />

The Gemmell Bequest Fund<br />

The Hugh Fraser Foundation<br />

The James & Jessie Shaw<br />

Charitable Trust<br />

The James Wood Bequest Fund<br />

The John M Archer<br />

Charitable Trust<br />

The JTH Charitable Trust<br />

The Leng Charitable Trust<br />

The Maidenwell Charitable Trust<br />

The Margaret Elizabeth &<br />

Alexander Brownlie M.C.<br />

The Margaret Murdoch<br />

Charitable Trust<br />

The Martin Connell CharitableTrust<br />

The Mary Andrew Charitable Trust<br />

The Miller Foundation<br />

The Paul Charitable Trust<br />

The Peter Brough Bequest Fund<br />

The R S Macdonald<br />

Charitable Trust<br />

The Rozelle Trust<br />

The Russell Trust<br />

The Scottish Arts Council<br />

The St Katharine’s Fund<br />

The Sylvia Aitken CharitableTrust<br />

The Trinafour Trust<br />

The W M Mann Foundation<br />

The W.M.Sword Charitable Trust<br />

The Webmart Charitable Trust<br />

The William S. Phillips’ Fund<br />

The Woodford<br />

Foundation <strong>Scotland</strong><br />

W A Cargill Fund<br />

Widowers’ Children’s Home Trust<br />

William Grant & Sons Ltd<br />

Williamina Mclaren Trust<br />

Organisations and<br />

Companies<br />

Abbey Community Partnership<br />

Borders Friends Group<br />

Broughty Ferry & District<br />

Round Table<br />

BT South of <strong>Scotland</strong><br />

Crookston Bowling Club<br />

Eastwood Golf Club<br />

Glasgow City Council -<br />

Arts Development<br />

Glasgow Fundraising Group<br />

Glenerrol Limited<br />

Hospital Amublance Car<br />

Service Ltd<br />

Incas Global Europe Ltd<br />

La’Cor Hairdressers<br />

Scot West Credit Union Ltd<br />

Scottish and Southern Energy<br />

Talteg Limited<br />

The Herald Time Group<br />

The Military & Hospitaller Order<br />

of St Lazarus of Jerusalem<br />

Vector Aerospace<br />

Financial summary: Income and expenditure account for the year ended 31 March <strong>2010</strong>.<br />

Income £<br />

Expenditure:<br />

£<br />

Fees and Allowances 18,269,769<br />

Grants Receivable 486,892<br />

Donations and Gifts 1,079,662<br />

Legacies Receivable 162,426<br />

Committed Giving 767,056<br />

Income from Shops 875,506<br />

Income from TouchBase 117,523<br />

Interest Receivable 4,169<br />

Total Income (Revenue & Capital) 21,763,004<br />

Residential and Community Services 17,425,014<br />

Individual and Family Services 285,243<br />

Health Education 46,216<br />

Policy, Development and Resources 879,009<br />

Fundraising Cost & publicity? 333,127<br />

Committed Giving Cost 537,969<br />

Shop Expenditure 833,229<br />

TouchBase Business Centre 53,123<br />

Governance Cost 17,640<br />

Total Expenditure 20,410,571<br />

Operating surplus (Total Funds) 1,352,433<br />

Relating to Restricted and<br />

Designated Funds<br />

787,146<br />

Net Income to General Funds 565,287<br />

<strong>Sense</strong> <strong>Scotland</strong> <strong>Annual</strong> <strong>Review</strong> <strong>2009</strong>/<strong>2010</strong><br />

21


To find out more about <strong>Sense</strong> <strong>Scotland</strong>:<br />

email: info@sensescotland.org.uk<br />

or visit: www.sensescotland.org.uk<br />

Head Office, West Region<br />

and Children and Family<br />

Services contact:<br />

TouchBase<br />

<strong>Sense</strong> <strong>Scotland</strong><br />

43 Middlesex Street<br />

Glasgow<br />

G41 1EE<br />

Phone: 0141 429 0294<br />

Fax: 0141 429 0295<br />

Text: 0141 418 7170<br />

<strong>Sense</strong> <strong>Scotland</strong><br />

North East Region<br />

The Gatehouse<br />

Quarry Road<br />

Northfield Industrial Estate<br />

Aberdeen<br />

AB16 5UU<br />

Phone: 01224 695510<br />

Fax: 01224 789945<br />

<strong>Sense</strong> <strong>Scotland</strong><br />

Highland Region<br />

Robertson House<br />

Shore Street<br />

Inverness<br />

IV1 1NF<br />

Phone: 01463 709 555<br />

Fax: 01463 718 229<br />

<strong>Sense</strong> <strong>Scotland</strong><br />

East Region<br />

11 Edison House<br />

Fullerton Road<br />

Queensway Industrial Estate<br />

Glenrothes<br />

KY7 5QR<br />

Phone/text: 01592 752005<br />

Fax: 01592 751121<br />

Designed by strutdesign.co.uk<br />

Photography by <strong>Sense</strong> <strong>Scotland</strong>.<br />

This publication is available in various<br />

formats on request.<br />

<strong>Sense</strong> <strong>Scotland</strong> is a company limited by<br />

guarantee, registered in <strong>Scotland</strong> Number<br />

147570, and a registered Scottish charity,<br />

Number SC022097.<br />

Patron: The Duchess of Sutherland.<br />

Honorary Patron: Mary, Dowager,<br />

Countess of Strathmore LLD DL.<br />

Publication number ISSN 1358-5274

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