Palliative Care - Congrès international sur les soins palliatifs

Wednesday, October 10, 2012At 11:00 participants may attend either Day 2 of the Seminar onPediatric Palliative Care (A01/L01/B01/C01), the Special Seminar“Fundamentals of Palliative Care Nursing” (A02, B02, C02), or theSpecial Seminar “Pharmacotherapy and Palliative Care” (A03/B03/C03),all of which continue until 17:30; or alternatively choose from a selection ofworkshops at 11:00 (A04-A14), at 14:00 (B04-B14) and at 16:00 (C04-C14).11:00 – 17:30 SPECIAL SEMINARSponsored byA01/L01/B01/C01 PEDIATRIC PALLIATIVE CARE – DAY 2Organizers and Co-Chairs: Stephen Liben and Mary Ellen Macdonald,The Montreal Children’s Hospital, MUHC, Montréal, QC, CanadaContinuation of two-day Seminar on Pediatric Palliative Care. For Day 1 see S1,page 9. The lunch break will be from 12:30 to 14:00 (film shown during thelunch hour; bring your own lunch), and the afternoon break from 15:30 to 16:00.11:00 – 12:30A01 A) On Being "Vulnerable Enough": A Pathway to Self-understandingDanai Papadatou, University of Athens, Athens, GreeceB) A Road Less Traveled: Beyond Coping, to Meaning and GrowthStephen Liben, The Montreal Children’s Hospital, Montréal, QC, Canada13:00 – 13:50L01 Film: “Difficult Decisions in Pediatric Care: Just Because We Can, ShouldWe?” tells the stories of five critically ill children and their families and exploresthe ethical dilemma of when parents of children are told their child “needs” aparticular treatment, surgery or intervention without palliative care optionsbeing offered. Produced by Linda Strodtman and Maureen Giacomazza, Universityof Michigan School of Nursing, Ann Arbor, MI, United States(Length: 29 minutes, followed by discussion)14:00 – 15:30B01 A) Development of a Therapeutic Algorithm to Guide CliniciansConsidering Palliative Sedation Therapy in Pediatric Patients atthe End of LifeLiza-Marie Johnson 1 , Doralina L. Anghelescu 1 , Dustin Hamilton 2 , Lane G. Faughnan 1 ,Justin N. Baker 11. St. Jude Children's Research Hospital, Memphis, TN, United States2. University of Tennessee, Memphis, TN, United StatesB) Symptoms in Children with Rare Life-limiting Conditions:Findings from a Prospective Mixed-method StudyCari Malcom 1 , Sally Adams 1 , Gillian Anderson 1,4 , Richard Hain 2 , Faith Gibson 3 ,Anthea Morley 1 , Liz Forbat 11. University of Stirling, Stirling, Scotland, United Kingdom; 2. University of Cardiff,Cardiff, Wales, United Kingdom; 3. Southbank University, London, England, UnitedKingdom; 4. Children’s Hospice Association Scotland, Scotland, United Kingdom14