Wednesday, October 10, 2012At 11:00 participants may attend either Day 2 of the Seminar onPediatric <strong>Palliative</strong> <strong>Care</strong> (A01/L01/B01/C01), the Special Seminar“Fundamentals of <strong>Palliative</strong> <strong>Care</strong> Nursing” (A02, B02, C02), or theSpecial Seminar “Pharmacotherapy and <strong>Palliative</strong> <strong>Care</strong>” (A03/B03/C03),all of which continue until 17:30; or alternatively choose from a selection ofworkshops at 11:00 (A04-A14), at 14:00 (B04-B14) and at 16:00 (C04-C14).11:00 – 17:30 SPECIAL SEMINARSponsored byA01/L01/B01/C01 PEDIATRIC PALLIATIVE CARE – DAY 2Organizers and Co-Chairs: Stephen Liben and Mary Ellen Macdonald,The Montreal Children’s Hospital, MUHC, Montréal, QC, CanadaContinuation of two-day Seminar on Pediatric <strong>Palliative</strong> <strong>Care</strong>. For Day 1 see S1,page 9. The lunch break will be from 12:30 to 14:00 (film shown during thelunch hour; bring your own lunch), and the afternoon break from 15:30 to 16:00.11:00 – 12:30A01 A) On Being "Vulnerable Enough": A Pathway to Self-understandingDanai Papadatou, University of Athens, Athens, GreeceB) A Road Less Traveled: Beyond Coping, to Meaning and GrowthStephen Liben, The Montreal Children’s Hospital, Montréal, QC, Canada13:00 – 13:50L01 Film: “Difficult Decisions in Pediatric <strong>Care</strong>: Just Because We Can, ShouldWe?” tells the stories of five critically ill children and their families and exploresthe ethical dilemma of when parents of children are told their child “needs” aparticular treatment, <strong>sur</strong>gery or intervention without palliative care optionsbeing offered. Produced by Linda Strodtman and Maureen Giacomazza, Universityof Michigan School of Nursing, Ann Arbor, MI, United States(Length: 29 minutes, followed by discussion)14:00 – 15:30B01 A) Development of a Therapeutic Algorithm to Guide CliniciansConsidering <strong>Palliative</strong> Sedation Therapy in Pediatric Patients atthe End of LifeLiza-Marie Johnson 1 , Doralina L. Anghe<strong>les</strong>cu 1 , Dustin Hamilton 2 , Lane G. Faughnan 1 ,Justin N. Baker 11. St. Jude Children's Research Hospital, Memphis, TN, United States2. University of Tennessee, Memphis, TN, United StatesB) Symptoms in Children with Rare Life-limiting Conditions:Findings from a Prospective Mixed-method StudyCari Malcom 1 , Sally Adams 1 , Gillian Anderson 1,4 , Richard Hain 2 , Faith Gibson 3 ,Anthea Morley 1 , Liz Forbat 11. University of Stirling, Stirling, Scotland, United Kingdom; 2. University of Cardiff,Cardiff, Wa<strong>les</strong>, United Kingdom; 3. Southbank University, London, England, UnitedKingdom; 4. Children’s Hospice Association Scotland, Scotland, United Kingdom14
Wednesday, October 10, 2012B1 – continuedC) Parental Perceptions of Foregoing Artificial Delivery of Nutritionand Hydration during End-of-Life <strong>Care</strong> for Their ChildrenAdam Rapoport 1,2,3 , Rose Steele 4 , Jenny Shaheed 5 , Maria Rugg 6 , Christine Newman 1,21. Hospital for Sick Children, Toronto, ON, Canada; 2. University of Toronto, Toronto, ON,Canada; 3. Mount Sinai Hospital, Toronto, ON, Canada; 4. York University, Toronto, ON,Canada; 5. Princess Margaret Hospital, Toronto, ON, Canada; 6. Credit Valley Hospital,Mississauga, ON, CanadaD) When Emergency Health Services and Pediatric <strong>Palliative</strong> <strong>Care</strong>Intersect: Breaking Down the SilosRebecca Earle 1,2 , Alix Carter 2,3 , Gerri Frager 1,2 , Marie-Claude Gregoire 1,2 ,Grace MacConnell 1,2 , Todd MacDonald 31. IWK Health Centre, Halifax, NS, Canada2. Dalhousie University, Halifax, NS, Canada3. Emergency Health Services, NS, Canada16:00 – 17:30C01 A) Let’s Wait and See What Develops: Access to <strong>Palliative</strong><strong>Care</strong> Services for Children with Life-Limiting Conditions andLife-Threatening Illness in the NICU-PICUPaula Kelly 1 , Patricia Mendoza 2 , Finella Craig 2 , Delia Rizpah Hollowell 1 ,Katherine Twamley 1 , Myra Bluebond-Langner 11. University College London, Institute of Child Health, London, United Kingdom2. Great Ormond Street Hospital NHS Trust, London, United KingdomB) Clinical Supervision – Pediatric <strong>Palliative</strong> <strong>Care</strong>Julie Duffield, Sara Fleming, Women's and Children's Health Network,Adelaide, SA, AustraliaC) Navigating the Decision-Making Process: Workshops forParents of Severely Ill Children in a Home <strong>Care</strong> SettingJosée Chénard 1 , Marie-Eve Cardinal 21. Université du Québec en Outaouais, Saint-Jérôme, QC, Canada2. Le Phare Enfants et Famil<strong>les</strong> - The Lighthouse, Montréal, QC, CanadaD) The Daily Show with S & M:Your hosts, Stephen & Mary Ellen, summarize the day's presentationsunburdened by objectivity, journalistic integrity or expensive graphics.15
- Page 1 and 2: 19 th InternationalCongress onPalli
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- Page 55 and 56: Place Jacques-CartierMontréalA CIT
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- Page 63 and 64: NameSession CodeKeats, Kerry ......