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The Floridian - Order Sons of Italy in America

The Floridian - Order Sons of Italy in America

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COOLEY’S ANEMIAKaren DiGiovanni, Chair<strong>The</strong> Grand Lodge <strong>of</strong> Florida together with the Supreme Lodge aregenerous philanthropists and have concentrated their efforts onAlzheimer‟s, Cooley‟s anemia, Cancer and just recently Autism. I havebeen the Chairperson for the Cooley‟s anemia Foundation for 3 years andhave a personal <strong>in</strong>terest <strong>in</strong> this cause as my husband had a cous<strong>in</strong> whohad Cooley‟s anemia and died before puberty. This was the future forthese children many years ago. Today people with thalassemia can enjoyand live normal lives. A recent study exam<strong>in</strong>ed pregnancy <strong>in</strong> women withthalassemia, an area <strong>of</strong> <strong>in</strong>creas<strong>in</strong>g <strong>in</strong>terest <strong>in</strong> the Thalassemia community.<strong>The</strong> study exam<strong>in</strong>ed 58 pregnancies among 47 women with thalassemiamajor and 17 pregnancies <strong>in</strong> women with thalassemia <strong>in</strong>termedia at fourcenters <strong>in</strong> <strong>Italy</strong>. <strong>The</strong> study reports that conception was spontaneous <strong>in</strong> all<strong>of</strong> those with thalassemia <strong>in</strong>termedia; among those with thalassemiamajor <strong>in</strong>duced ovulation was required <strong>in</strong> 33 <strong>of</strong> the women.Accord<strong>in</strong>g to the study 91% <strong>of</strong> the pregnancies among thalassemia major patients resulted <strong>in</strong> live births (45s<strong>in</strong>gle births, 5 sets <strong>of</strong> tw<strong>in</strong>s, one set <strong>of</strong> triplets). Women with thalassemia <strong>in</strong>termedia who had never beentransfused or who had only m<strong>in</strong>imal transfusion prior to pregnancy were found to be a risk <strong>of</strong> severe anemia iftransfusions were required dur<strong>in</strong>g pregnancy. Of the 17 Pregnancies <strong>in</strong> thalassemia <strong>in</strong>termidia 15 resulted <strong>in</strong>live births.<strong>The</strong> study concludes that provided a multidiscipl<strong>in</strong>ary team is available, pregnancy is possible, safe and usuallyhas a favorable outcome <strong>in</strong> patients with thalassemia. Unfortunately there was noth<strong>in</strong>g <strong>in</strong> the report <strong>of</strong> thebirths and whether they contacted thalassemia from the pregnancy. But the fact that women with thalassemialive to give birth is <strong>in</strong> its self a wonderful advance that was made possible because <strong>of</strong> your generosity and theleadership <strong>of</strong> the <strong>Order</strong> <strong>Sons</strong> <strong>of</strong> <strong>Italy</strong> <strong>in</strong> <strong>America</strong>. Thank you for your cont<strong>in</strong>ued will<strong>in</strong>gness to give.John and RoseMarie Boniello <strong>in</strong> memory <strong>of</strong>our Son, John G. Boniello IITHE FLORIDIAN/September 201110 | P a g e

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